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,'v[nre people are 131.

1NDeci by DEFINITION rhan by any orher


Basic Concepts and cause.
-Jahocla, personal communication, no uate available

Terms for Low Vision


Rehabilitation ow vision is a common physical impairment in the

August Colenbrander, Donald C.


L United States. It can occur at any age, but its
prevalence increases with age. As the proportion
of elderly persons in our population increases, serious
vision loss is expected to become more prevalent
Fletcher (Tielsch, 1994). Thus, it is inevitable that occupational
therapists will be involved more often in rehabilitation of
Key Words: blindness. low vision. vision loss persons with visual impairments even if they are not spe-
cifically working in a low vision rehabilitation program.
The dedication of this special issue of the American]our-
nal a/Occupational Therapy to rehabilitation of persons
with visual impairment is evidence of this increasing
As the involvement 0/ occupational therapists in the involvement.
rehahilitation of people with visual impairments in- A scudy of a rehabilitation unit in a New York Hospi-
creases, it is important/or all professionals involved tal found that 5.8% of the admissions to the rehabilitation
to communicate clearlv hy using the rnosr accurate inpatient unit met the criterion for legal hlindness al-
terminology. This aUide suggesrs rhe mosr appropriare though none of the patients were admitted for that diag-
use of rerms and coneeprs. ir recommends that rhe dis- nosis (\Vainapel, 1989) More than two thirds of those
Linerions heftl'een the uarious a::,pects of I 'ision loss he
with vision impairments are older than 65 years. Among
recognized and tbat the old dichotomy at lcgall) , blind
persons aged 65 veal'S and older, 6.8% have a moderate or
I'crsus legalll' sighred he replaced hy the more detailed
classljicarion ofrhe inLemational Classification oIDis- more marked visual impairment; among persons aged 85
eases, 9rh rel/ision, Clinical iVlodij/carion (lCD-9-C/vf) , veal'S and older, thiS incidence reaches 25% (Nelson,
u'bich recognizes multiple levels o/I!isual 1987) For those older than 70 years, vision loss ranks
pe I1°r/1u/t2ce. third among the chronic conditions that cause a need for
assistance in activities of daily living, behind arthritis and
hean disease (LaPlante, 1988) A recent report in the New
England/oumal ot J\!Iedicine confirmed these ftndings
(Tielsch, Javirt, Coleman, Katz, & Sommer, 1995).
Because rehabilitation is always a team effort, it is
important for all professionals involved to use the most
accurate terminology. This article suggests the most ap-
propriate use of various terms and concepts.

Basic Concepts and Terms

Low vision is not a single condition. Some persons classi-


fied as having low vision suffer visual acuity loss, others
suffer visual field loss; some benefit from more light,
others need dark glasses, and so forth. Successful low
vision rehabilitation requires an understanding of this
diversity of physical conditions and needs. In many in-
stances, this understanding is hindered by the lingering
legal'\' of the simpliStic black-and-\vhite dichOtomy be-
tween those who are called leRallv sighLed and those who
are legall)' hlind Basic terms are reviewed below.
August Colenbrander, .\Ill. is Director, Low Vision Services,
Depanment of Ophthalmology, California Pacific Meclical Cen- Vision las~ is a relatively neutral term that can be
ter, San Francisco, California. used to describe any type or degree of change in vision. It
may apply to visual acuity loss as well as to visual field
Donald C Fletcher. \ID. is Clinical Professor, Department of changes. It may apply to those who have lOSt only a little
Ophthalmology, University of South Florida, Fon Mver::;, Flor-
vision, as well as to those who have little vision left.
ida 33906.
Rlindness, bv defmition, is total loss of Sight. Unfor-
T!.Jis (Ii·tide II 'a,' accepted/cli' pu/J/icutioll Feht'liwy J4. 1995. tUlliltelv, distortions of this term have crept into common

The Americall .lountal 0/ Gccllpaliollul 'fhel'apl' 865

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usage. In a technical sense, the use of the word blindness when viewed from different angles, vision loss may be
has often been diluted by extending it to conditions of considered from various points of view. The terms visual
partial vision loss, as in legal blindness, and even to minor disorder, visual impairment, visual disability and visu-
deficiencies, as in color blindness. In the emotional al handicap, although often used as if they were syn-
realm, many associate blindness with the hapless condi- onyms, actually describe different aspects and points of
tion of a beggar selling pencils on a street corner sooner view. The terms visuaL disorder and visuaL impairment
than with the image ofa successful blind executive. Thus, focus on the condition of the visual system, whereas visu-
the term bLindness has become associated more with the aL disabilitv and visuaL handicap describe the condition
pitiable feelings surrounding vision loss than with the of the person (see Table 1).
type or degree of vision loss itself. No wonder, then, that The distinctions among disorders, impairments, dis-
many patients are said to fear blindness more than death. abilities, and handicaps is not limited to vision. It can be
The term LegaL bLindness originated in the 19205 and applied to any organ system. The WHO has promoted
1930s. The U.S. definition of"20/200 or less" (Department and standardized the use of these terms in the Interna-
of Health and Human Services, 1986; Snell, 1925) was tionaL CLassification of Impairments, DisabiLities and
based on the finding that employability was considerably Handicaps (IClDH) (WHO, 1980) as a companion vol-
reduced at this level of vision loss, a relationship more ume to the ICD-9.
clearly reflected in earlier terms such as industrial or The term visuaL disorder refers to the anatomical
occupational blindness. Unfortunately, the widespread condition that causes vision loss. Disorders are described
use of the term Legal blindness to denote severe vision in anatomical terms: cataract, retinal scar, optic atrophy,
loss perpetuates black-and-white thinking. It is as prepos- and so forth.
terous to call a patient with severe vision loss LegaLzv The anatomical condition by itself, however, does
blind as it would be to call a severely ill patient LegaLzv not describe how well the eye functions. The functional
dead. As rehabilitation professionals, dedicated to the status of the visual system is described under the term
effective use of residual vision, we should fight these visuaL impairment, in terms of functional measure-
distorted perceptions by avoiding the term bLindness ments, such as visual aCUity, visual field, and contrast
when we are actually referring to lesser levels of vision sensitivity. These measurements indicate how well each
loss eye functions on standardized clinical tests but do not
The simplistic dichotomy of vision-blindness was of- describe huw well the person functions in everyday tasks.
ficially abandoned in 1975 when the World Health Organi- A visual disability does not refer to the condition of the
zation (WHO) in the ninth revision of the International eye but to the ability of the person as a whole. To measure
CLassification ofDiseases (ICD-9 for use worldwide, ICD- and describe the ability or disability of the person re-
9-CM for use in the United States) (1978) recognized that quires broader descriptors, such as daily living skills, vo-
there is a vast gray area between normaL vision and cational skills, urientation and mobility skills, reading
bLindness. This area is referred to as Low vision. The word skills, and writing skills.
low indicates that vision is not normal, the word vision Visual disability may be a consequence or result of
indicates that it is not blindness. The condition of low visual impairment, but thiS is not a fIXed relationship. It is
vision is at least 10 times more prevalent than is actual also influenced by training and by the availability of aids.
blindness (Tielsch, 1994). One of the primary goals of rehabilitation is to exploit this
flexibility to optimize one's abilities in the presence of a
Aspects of Vision Loss
given impairment. Indeed, if the relation between impair-
Like a modern sculpture that may appear quite different ment and ability were rigidly fixed, rehabilitation would

Table 1
Aspects of Vision Loss

Visual Disorder Visual Impairment Visual Disability Visual Handicap


I I
... the organ ~ ...- - - the person ~

anatomical functional skills and social,economic


changes changes abilities consequences

Examples:
corneal opacity visual acuity reading skills need for extra
cataract visual field writing skills effort
retinal scar color vision ADL skills loss of
optic atrophy night vision mobility skills independence
stroke ocular motility vocational skills loss of earning
potential

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not be possihle at all. rate clinical work, additional detail is needed. The left side
Describing a person's abilities is important, yet it ofTable 2 (based on lCD-9-CNI) , provides a funher subdi-
does not indicate how that person's role or place in soci- vision into seven subcategories or impairment ranges.
ety is affected. The term visual handicap refers to the Each of these ranges contains four lines on the standard-
societal and economic consequences of vision loss and ized visual acuity scale.
may be described in terms of the extra effort a person has The right side of Table 2 contains a similar break-
to use to obtain the same goal and in terms of indepen- down of reading ability, the ability most affected by visual
dence and interdependence issues such as economic acuity impairment. On average, there is a good correla-
independence, independent living, and independent tion between the two classifications, but this correlation
mobility is only an estimate. The actual abilities of any patient are
Handicaps depend not only on the condition and also greatly inf1uenced by training, motivation, and the
skills of the person, hut also on the physical environment availability of aids.
(good lighting and contrast, in the case of vision). Atti-
tudes and expectations in the human environment (in-
volvement and education of a spouse, employer, or teach-
Normal Vision
er) may also be very important. Furthermore, the same The normal vision range covers 20112, 20/16, 20/20, and
impairment-disability may present different handicaps 20/25. Note that normal vision is not limited to a single
for different tasks: uncorrected nearsightedness may not value and that the range extends beyond 20/20. The 20/20
be a handicap for a jeweler; it is a serious handicap for a level is a reference standard; average normal vision is
hunter. Here again, the flexibility of the link between better than 20/20. Just as the U.S. measurement of 1 foot
impairment-disability and handicap provides the work- is defined physically and not as the average length of
ing space for rehabilitation. American feet, standard vision is defined on the basis of
Some examples of proper terminology are as foJlows: physical parameters (visual angle), not on average vision
(International Council of Ophthalmology, 1984; Snellen,
• Services for the visually handicapped refer to ser-
1862) .
vices aimed at improving the general quality of life
Standard vision refers to the ability to just he able to
for persons with vision loss. In this context the
read a standard letter size (1M print, average newsprint
term handicap is approrriate because one is deal-
size) at a standard distance (1 meter, 40 in.) Visual acuity
ing With social and economic consequences.
as measured on a letter chart refers to threshold acuity; in
• Benefits for the Visually impaired refer to benefits
reading, we normally bring newsprint two or three times
available at a certain level of impairment. Use of
closer (33 cm-50 em, 13 in.-20 in.); that is, we read most
the term impairment is appropriate hecause eligi-
comfortably at twO to three times the threshold.
bility criteria are usually based on impairment lev-
els. lmpairment can he measured more easily and
more objectively than skills or handicaps. Describ- Near-Normal \!ision
ing benefits for the legally blind as benefits for the
The near-normal vision range covers 20/30, 20/40, 20/50,
severefy visually impaired (without any change in
and 20/60 A person with 20/60 (1/3) can just read news-
eligibility criteria) would greatly reduce the psy-
print (lM) at 1/, the standard distance of 1 meter (40
chological stigma most patients experience from
in.) - that is, \/, m (33 cm, 13 in.). Moving the print a little
the label legal blindness
closer, say, to 25 cm (10 in.) provides some spare capac-
• Health surveys often include questions about the
ity. Persons in the near-normal range can generally read
ability to read newsprint. Inability to do so is re-
by bringing the print closer, which may require using a
poned as severe visual impairment. This term is
stronger reading glass prescription (uP to 4 diopters).
inapprorriate because the question refers to read-
A 25-cm reading distance is generally conSidered the
ing skills, not to a visual acuity measurement. A
closest comfortable distance for prolonged reading; it is
better term would be seuere uisual disability.
used as the reference distance to express the magnifying
• Inability to earn a living or to hold a job due to
power of magnifiers.
vision loss describes a socioeconomic conse-
quence and should be referred to as a severe visu-
al handicap. Moderate Low Vision
The moderate low vision range covers 20/80, 20/100,
20/125, and 20/160. Persons in this range must bring the
Levels of Visual Performance print closer than 25 em (10 in.), which is not comfortable
Replacement of the dichotomy between legally sighted for prolonged use, unless convergence is aided by base-in
and legally hlind by the three main categories of normal prism in reading glasses. For this group of patients, low-
vision, low Vision, and blindness, is a beginning. For accu- power magnifiers are also of assistance.

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Table 2
Degrees of Vision Loss

CLASSIFICATION of
DIS-ABILITY ESTIMATES
VISUAL IMPAIRMENT
I I
Range of 20/12
Normal 16 Normal reading performance.
(NEAR) Vision 20/20 Normal reading distance.
25
NORMAL
Near- 20/30
VISION normal 40 Normal performance, using
vision 50 shorter reading distance.
60

Moderate 20/80
Low 100 (Near-)normal performance
Vision 125 with magnifiers, other aids.
160

LOW Severe 20/200


Low 250 Slower than normal, with aids.
VISION Vision 300 ( 'legal blindness' U.S.A. )
400

Profound 20/500
Low 600 Limited reading with aids.
Vision 800 Orientation, Mobility problems.
1000

Near- 20/1250
(NEAR) Blindness 1600 Vision unreliable.
2000
BLIND- 2500
NESS
Total NLP No vision.
Blindness

Persons with moderate low vision can generally screen, which can be viewed binocularly.
maintain near-normal reading speeds with these aids, but Persons with severe low vision can read, but their
students may have difficulty keeping up with normal reading will be slower than normal. Often they will start to
classroom tasks. Special education teachers and other use other senses as an adjunct to vision (e.g., listening to
educational assistance are generally made available to the radio rather than reading the newspaper). We refer to
persons in this range of vision. these tech niques as vision substitution rather than vision
enhancement. In the United States, government regula-
tions consider persons with this level of vision loss as
Severe Low Vision
legally blind (an unfortunate term, as discussed previous-
The severe low vision range covers 20/200, 20/250, ly). A variety of additional services and benefits is available
20/300, and 20/400. If visual acuity is worse than 20/200 to these persons.
(1/10), the reading distance for average newsprint (1 M)
must be closer than 110 m (10 cm, 4 in.). At these dis-
Profound Low Vision
tances, binocularity cannot be maintained any longer,
even with prisms; the diameter of optical magnifiers can- The profound low vision range covers 20/500, 20/600,
not be made large enough to allow binocularity either. 20/800, and 20/1000. Reading distances for persons with
Consequently, persons in this group must use their best profound low vision must be less than 5 cm (2 in.). In thiS
eye for reading, while ignoring or covering the other eye. range, recreational reading is often considered too labori-
One exception to this rule is when a video magnifier ous to be enjoyable; reading will generally be limited to
(closed circuit television ICClV)) is used; this equipment essential materials (spot reading). Use of a video magnifi-
can proVide a high level of magnification on a video er (CC1V) , which is helpful at previous levels, may be-

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come mandatory in this range. The same holds true for terminology. Such use will maximize communication and
alternative techniques based on the use of senses other team work and foster further development of rehabilita-
than vision (talking books, tape recordings, use of read- tion techniques ..
ers). In the WHO classification and in many European
countries, persons do not qualify for tax benefits until References
they have reached this level, although other benefits may Department of Health and Human Services (1986). Disabil-
be available earlier. ily evaluation under Social Security. Washington, DC: Author.
International CounciJ of Ophthalmology. (1984). Visual
acuity measurement standard. Italian joumal of Ophthalmol-
ogv, /1(1). 1-15
Near-Blindness Nelson, K. A. (1987). Visual impairment among elderly
Americans: Statistics in transition. joumal of Visual Impair-
The near-blindness range covers persons with less than
ment and Blindness, 81, 331-334.
20/1000 vision. These persons will often find their vision LaPlante, M. P. (1988). Prevalence of conditions causing
unreliable. In this range, vision becomes an adjunct to need for assistance in activities of daily Jiving. In Date on dis-
other senses. Most of the emphasis in rehabilitation for abilitYfrom the National Heatth Interview Survey, 1983-1985
this group will be on vision substitution skills and devices. -Info use report. Washington, DC: U.S. National Institute on
Vision substitution devices may range from low-tech, Disabilitv and Rehabilitation Research.
Sne'li. A. C (1925). Visual efficiency of various degrees of
such as braille, a long cane, raised tactile dots on a ther- subnormal visual acuity, its effect on earning ability.joumal of
mostat dial and books on tape, to high-tech, such as the American ",vledical Association. 85. 1367-1373.
talking clocks and other computer voice output devices. Snellen. H. (1862). Leltelproeven tal Bepa/ing del' Ce-
zigtsschelple. Utrecht, Netherlands: P. W van der Weyer
Tielsch. J. M. (1994). Vision problems in the U. S. Schaum-
burg. IL: Prevent Blindness America
Blindness Tielsch, J M., Javitt, J C. Coleman, A., Katz,.J., & Sommer,
A. (1995. May 4). Prevalence of blindness and visual impairment
This term should be reserved for persons who have no
among nursing home residents in Baltimore. New England
vision at all. As discussed previously, it is inappropriate .1oumal of :vledicine. 332, 120'5-1209
and misleading to use this term for persons with residual Wainapel. S. F. (1989). Severe visual impairment on a reha-
vision. bilitation unit: Incidence and implications. Archives ofPhysical
jledicine and Rehabilitation, 70, 439-44l.
World Health Organization. (1978). Inte171alional classiJi'-
cation of disease. 9th revision. clinical modification (lCD-9-
Conclusion 011). Ann Arbor, MI: Commission on Professional and Hospital
Anivities.
As the field of low vision rehabilitation moves forward World Health Organization (1980). International classifi-
within the health care community, it will be beneficial for curion of impairments. disahilities and handicaps. Geneva:
both clinicians and researchers to use accurate universal Author.

The American Joumal Qf Occupalional Therapr 869


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