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SupportGroove: An interdisciplinary collaboration to develop an online positive psychology

intervention for dyads post-spinal cord injury


Corinne Buffo, BA, Hop Nguyen, BS, Adam Bullough, BS, Jackie Einerson, MOT, OTR/L, Alexandra L. Terrill, PhD
Department of Occupational & Recreational Therapies, University of Utah, Salt Lake City, USA

Participant Feedback Results


Research Overview Qualitative data from participant feedback interviews supported and expanded
• Navigating changes following a spinal cord injury (SCI) can contribute on quantitative results (Table 2).
to deleterious effects on mental health and quality of life for individuals Table 2. Results
with SCI and their carepartners. • Data collected from 5 dyads (1 dyad dropped out)
“...what might be more intuitive to me is if you
• Current literature provides little evidence regarding interventions could have a drop-down menu for everything.” • Age range: 27-53 (Mean = 36 [SD = 9.21])
addressing these issues or various accessibility barriers. - Individual with SCI • Female: 2 individuals with SCI (40%), 3 carepartners (60%)
• Existing interventions lack the convenience of mobile interventions. • Found at least moderate benefit from activities for self and as a dyad

Objective: In response, we developed a web-based app (SupportGroove)


100% • Were neutral or disagreed that they would recommend the beta
version of the app to those with SCI and their carepartner
in collaboration with therapeutic gaming and apps lab (GApp Lab) to
“...if it’s a rehab setting or • Were at least moderately satisfied with activities
deliver a positive psychology intervention (PPI) for dyads post-SCI.
something you can say...this is 75% • Mostly disagreed that even with training, most people would NOT be
something that will help you able to use the app effectively
“I would kind of just take away the cope with your injury.”
icons and put them in the menu. It
- Individual with SCI 62.5% • At least somewhat agreed the app provided useful information
Figure 1. Design Process would be nice to be able to change
• At least somewhat agreed the app was accessible to those with SCI
the date of the activity, instead of
• At least somewhat agreed that the app was easy to use
having everything be today.” 50% • At least somewhat agreed that the app was frustrating to use
- Carepartner
• At least somewhat agreed that the app was confusing to use
Activities perceived to be most helpful:
Working towards goals, expressing gratitude,
Table 1. Participant Characteristics
Complete/ fostering relationships, and acts of kindness
Participant Time since SCI SCI cause SCI level
Incomplete
501 18 years Motor vehicle accident Incomplete C4 Figure 2a. Previous layout of app
502 7 years, 10 months Epidural Incomplete T5
503 12 years, 3 months Sledding Incomplete C4-C5
504 1 year, 3 months Cancer Incomplete C6
506 8 months Fall Incomplete L1

“...it just helped us make sure


that there was at least one time “...as far as the society we’re in
a week, that we were talking now, I think having just kind of
about life and not about, ‘how is the app there as a reminder, Figure 2b. Layout of latest prototype
self-care?’ And, ‘when's your because we’re on our phones all
next appointment? What's going the time, and then from there it
Methods on next week?’” helps me to remember to do
- Carepartner things to build our relationship.”
• Based on a previous PPI for couples coping with stroke.
- Carepartner
• Stakeholders/end-users informed design and usability of
SupportGroove. Design process outlined in Figure 1.
• Preliminary testing of app was completed by five dyads, recruited
primarily through clinical referral. Participant characteristics are “...that’s one of the things where people can
described in Table 1. get into a lot of trouble with this, is all of a
sudden, I’ve seen it in my marriage honestly, I
• Eight-week self-administered PPI including activities to be done became a job, not a partner…just having Conclusion
individually and together, which was recorded on a mobile device. something to work on together that we both
Activity categories consisted of gratitude, kindness, relationships, could do that…it could be simple stuff, but it’s • Online tools provide ease and accessibility for behavioral interventions. SupportGroove’s first cohort,
positivity, goals, savoring and spirituality. something to do together to reinforce yes, on average, appear to have benefitted from the intervention, showing future promise for the app.
we’re still partners.” • Participant feedback on app design and interface (depicted in figure 2) will be implemented as the app
• Quantitative and qualitative feedback related to feasibility and - Individual with SCI undergoes structural changes prior to data collection from a second cohort.
usability of the app were collected via post-intervention web-based
surveys and phone interviews.

Acknowledgement of financial support: Craig H. Neilsen Foundation PSR#440457; University of Utah Consortium for Families & Health Research
Contact: alex.terrill@hsc.utah.edu

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