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Improving Mental Health Access for

Low-Income Children and Families


in the Primary Care Setting
Stacy Hodgkinson, PhD,a Leandra Godoy, PhD,a Lee Savio Beers, MD,a Amy Lewin, PsyDb

Poverty is a common experience for many children and families in the abstract
United States. Children <18 years old are disproportionately affected
by poverty, making up 33% of all people in poverty. Living in a poor or NIH
low-income household has been linked to poor health and increased risk aChildren’s National Health System, Washington, District
for mental health problems in both children and adults that can persist of Columbia; and bUniversity of Maryland School of Public
across the life span. Despite their high need for mental health services, Health, College Park, Maryland

children and families living in poverty are least likely to be connected Dr Hodgkinson conceptualized and designed the
with high-quality mental health care. Pediatric primary care providers components of the review article, drafted sections
of the initial manuscript, and revised and organized
are in a unique position to take a leading role in addressing disparities in
sections submitted by the coauthors; Drs Godoy,
access to mental health care, because many low-income families come to Beers, and Lewin drafted sections of the manuscript
them first to address mental health concerns. In this report, we discuss and reviewed and revised the manuscript; and
the impact of poverty on mental health, barriers to care, and integrated all authors approved the final manuscript as
submitted.
behavioral health care models that show promise in improving access and
DOI: 10.1542/peds.2015-1175
outcomes for children and families residing in the contexts of poverty. We
Accepted for publication Oct 10, 2016
also offer practice recommendations, relevant to providers in the primary
care setting, that can help improve access to mental health care in this Address correspondence to Stacy Hodgkinson,
PhD, Diane L. and Stephen A. Goldberg Center for
population. Community Pediatric Health, Children’s National
Health System, 111 Michigan Ave, NW, Washington,
DC 20010. E-mail: shodgkin@childrensnational.org
Although it is 1 of the wealthiest individual barriers to accessing mental PEDIATRICS (ISSN Numbers: Print, 0031-4005; Online,
nations, the rate of poverty in the health care, promising interventions 1098-4275).
United States continues to exceed that and integrated behavioral health Copyright © 2017 by the American Academy of
of many other industrialized nations. care models have emerged that Pediatrics
Poverty has been consistently linked can be implemented in the primary FINANCIAL DISCLOSURE: The authors have
with poor health and increased risk care setting to help PCPs close the indicated they have no financial relationships
enormous gap between mental health relevant to this article to disclose.
for psychological disorders in children
and adults that can persist across the needs and access for children and FUNDING: Preparation of this manuscript was
families experiencing poverty. supported by a grant from the National Institute
life span.1–3 Despite the mental health on Minority Health and Health Disparities
needs of families living in poverty, This article briefly summarizes the of the National Institutes of Health, under
few gain access to high-quality mental current landscape of poverty in award P20MD000198. The content is solely
health services.4–6 There is a growing the responsibility of the authors and does not
the United States, the relationship necessarily represent the official views of the
urgency to develop models of mental between poverty and compromised National Institutes of Health. Funded by the National
health care that are tailored to the mental health, and barriers to Institutes of Health (NIH).
needs of these vulnerable children care among children and families POTENTIAL CONFLICT OF INTEREST: The authors
and their families. Pediatric primary experiencing poverty. It also provides have indicated they have no potential conflicts of
care providers (PCPs) are in a unique an overview of promising mental interest to disclose.
position to take a leading role in this health service delivery models and
effort because families often turn strategies, based in the pediatric To cite: Hodgkinson S, Godoy L, Beers LS, et al.
to them first for help with mental primary care setting, that can improve Improving Mental Health Access for Low-Income
Children and Families in the Primary Care Setting.
health concerns. Although there are access to mental health care in this
Pediatrics. 2017;139(1):e20151175
a number of systemic, cultural, and population and discusses practice

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PEDIATRICS Volume 139, number 1, January 2017:e20151175 STATE-OF-THE-ART REVIEW ARTICLE
recommendations relevant to PCPs. ~3 times more likely than white relational factors (eg, quality
In this review, we use the terms and Asian children to be poor.11 of family relationships), and
psychological disorders and mental Children raised by single parents institutional factors (eg, schools and
health to refer to a range of social– and children raised in the South or neighborhoods). At the individual
emotional and behavioral disorders, West are also more likely to be poor level, poverty is correlated with
including internalizing, externalizing, or low income than children residing physiologic responses to stress,
and substance use disorders, while in the Northeast.8 Poverty status at such as changes in blood pressure
excluding developmental disorders birth and low parental educational and cortisol levels, with longer
such as autism. attainment are the demographic exposure to poverty associated
factors most strongly associated with with more problematic responses.1
being persistently poor throughout Over time, the effects of early and
POVERTY AND COMPROMISED MENTAL childhood.11 chronic exposure to stressors can
HEALTH cause vulnerabilities, including
A wide range of research has linked
physiologic disruptions and changes
Living in a poor or low-income poverty to lower ratings on measures
in brain architecture and functioning,
household is a disturbingly common of well-being across the life span.12
which can lead to negative long-
occurrence that many Americans Longitudinal research indicates that,
term physical and mental health
will experience over the course of compared with children of higher
consequences.17,18 Additionally,
their lives.7 The effects of poverty socioeconomic status (SES), children
research suggests that exposure to
on families and children are of low SES experience higher rates
stressors changes DNA methylation18
extraordinarily complex. Although of parent-reported mental health
and that these changes may cause
descriptive statistics do not reflect problems and higher rates of unmet
epigenetic alterations across
the nuances and individual variation mental health needs.13 It is important
generations.19
inherent in this difficult condition, to note that although poverty is often
they do give some insight into the studied as a dichotomous variable, it
Poverty can also adversely affect
depth and breadth of its impact, can be more informative to instead
children’s mental health through
which in turn inform intervention. In examine multiple correlated social
family and community-level factors.
2014, 46.7 million people were living risk factors. It is evident that there
Families living in poverty experience
at or below the federal poverty level is a strong gradient effect of social
a unique array of stressors (eg, food
(an income of ≤$23 624 for a family risk factors on child well-being;
insecurity, housing problems). These
of 4 with 2 children), well below the as social risk factors increase in
stressors can increase parental
income level research suggests is number, so does the risk for poor
risk for mental health problems
generally needed to meet a family’s mental health.14,15 This gradient is
and substance abuse, which can
needs.8,9 Children <18 years of age also seen specifically in the following
diminish their capacity to engage
are disproportionately affected by relationship between family income
in positive parenting practices
poverty, making up 23% of the total and child health; increases in
(eg, warmth and responsiveness,
population but 33% of all people in family income are associated with
nurturance, supervision)20,21 and
poverty.8 In 2014, 20% of all children a corresponding increase in child
increase the potential for child
lived in low-income households. Ten physical health, behavioral health,
abuse and neglect.22 Low-income
percent of children live in “persistent development, and health care access
communities are often characterized
poverty” (spend at least half their and utilization.14 Thus, children
by poor housing, limited resources,
childhood poor), putting them at from families across the spectrum of
inadequate schools, and high crime
greater risk for adverse outcomes lower income levels incur some risk
and violence, all of which are
across their life span.8,10 for adverse health outcomes, with
associated with adverse mental
children from families facing the
There are disparities in poverty health outcomes.3,23,24
greatest poverty experiencing the
rates depending on age, race or
greatest risk.
ethnicity, family structure, and Although poverty is correlated with
geographic location. Although the Researchers have explored a compromised mental health across
largest number of poor and low- number of pathways through the life span, the timing and extent
income children are white, minority which poverty is thought to affect of poverty affect outcomes. More
children are disproportionately children’s development and social– extended exposure to poverty
affected, particularly African emotional functioning. Yoshikawa and exposure during childhood
American, American Indian, and et al16 discuss factors occurring at have been linked with poorer
Hispanic children.9 In 2013, Hispanic 3 levels, including the individual outcomes,10,12,25 suggesting that the
and African American children were child level (eg, nutritional intake), benefits of prevention and intervention

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2 HODGKINSON et al
might be best realized if focused on the Children and families living in children and family. Instead, families
early childhood period.17 poverty face a range of barriers that may rely on their own coping skills
reduce their ability to access mental or support from family and friends
health services, maintain compliance whose disapproval of formal mental
BARRIERS TO ACCESSING AND USING with treatment, and achieve health treatment may also be a
MENTAL HEALTH SERVICES favorable treatment outcomes. barrier to care.6,32,33
Families in rural areas, in particular,
often have to travel long distances to PCPs are often the first encounter
Despite resounding evidence of the
access mental health services.4,7 families have with mental health
deleterious effects of poverty on the
Additionally, lack of insurance or care, and this encounter can affect
psychological well-being of children
type of “carve out” and quantity of how families engage in treatment and
and families, there is a vast unmet
mental health services provided future help-seeking behavior.34,35
need for mental health services in
However, research suggests that
this population.5,6 It is estimated that under managed care plans can
prevent children and families from PCPs are not immune to the effects
among children experiencing poverty
accessing needed mental health care of culture and class-related biases.36
who are in need of mental health
services.27 For example, providers who were
care, <15% receive services, and even
presented with clients described
fewer complete treatment.5,6
The conventional practice of as having lower SES appeared less
Although there is no significant
most mental health agencies also inclined to work with them and were
difference in the prevalence of
contributes to disparities in access more likely to view them as having a
mental health problems among
to mental health care. Clinic hours, mental illness.30,37,38 Providers report
children residing in poverty by race
which are more often during the many challenges in meeting the
or ethnicity or geographic residence,
day, do not accommodate people mental health needs of children and
after demographic and family
working in low-wage shift positions, families generally, including lack of
variables are controlled for, there are
who may not have the flexibility to training, time, and external resources
statistically significant disparities
consistently attend weekly mental to which they can refer families.
in mental health service utilization
health appointments held during Additionally, they report challenges
across racial and ethnic groups
business hours.28 Mental health to addressing the needs of children
and between children residing in
clinics often have long wait times for living in poverty, including lack of
urban and rural areas.4 Studies have
appointments and require multiple training for practice in the context of
generally found lower mental health
intake visits before treatment is poverty, facing their own personal
service utilization among African
rendered.29 The effects of these biases and beliefs, stigma associated
American and Hispanic children,
barriers are exacerbated by the daily with working with families from low-
compared with white children.5,26
stressors and demands of living in income communities, and difficulties
Native American children in urban
poverty that can keep families from applying a traditional diagnostic
areas are more likely to have received
prioritizing mental health needs.6 framework with children and families
mental health care than white
struggling with poverty.30
children, whereas African American Children and families experiencing
children residing in urban areas and poverty encounter additional social
Latino children residing in both rural and psychological barriers. The
STRATEGIES TO IMPROVE MENTAL
and urban areas are less likely to stigma of mental health treatment
HEALTH ACCESS AND OUTCOMES IN
be connected to mental health care and the stigma of living in poverty PRIMARY CARE
than white children. White children can engender self-blame and self-
in rural areas are significantly less loathing, which can inhibit families There are a growing number of
likely to receive mental health from seeking care.30 Parents raising evidence-based treatments39 for
services than their counterparts children in poverty, particularly children experiencing mental health
in urban areas.4 These findings mothers, have real fears about being concerns, many of which have
remain statistically significant even labeled “crazy,” concerned that a been implemented successfully
after income, family composition, diagnosis may cause their children (ie, demonstrated feasibility and
and health insurance status are to be removed from their care.31 As statistically significant outcomes)
controlled for, and they suggest that a result, many families may have a with families from lower
there may be other determinants, general mistrust of the mental health socioeconomic communities.40–45 Yet,
such as communication, bias and care system, perceiving that any as noted above, socioeconomically
discrimination, and practical barriers disclosure of mental health problems disadvantaged families face
that may affect access to mental may result in hospitalization, greater difficulties with treatment
health services. overmedication, or separation from engagement45,46 and, even when they

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PEDIATRICS Volume 139, number 1, January 2017 3
complete treatment, may not benefit to services in a trusted setting, and Referral to external resources (eg,
to the same extent as higher-income facilitate better communication and higher-acuity cases or those needing
families.47 Consequently, there is a collaboration between medical and more specialty services) may also be
need for more upstream, innovative, behavioral health providers,34,53,54 facilitated by pediatric providers in
comprehensive approaches to addressing many of the barriers that a variety of ways. As a core concept,
addressing mental health problems children and families experiencing a PCP’s awareness of the barriers to
among families experiencing poverty. poverty face in accessing care.53–57 care, and ability to discuss them with
Specifically, programs that are Families with children who have families in a sensitive and culturally
family driven, target children in behavioral problems tend to use competent way, increases access by
their natural contexts, incorporate pediatric services more than other empowering families to engage in
evidence-based interventions, and families,58 thus increasing the their child’s mental health care.63
take a comprehensive approach to opportunity for primary care to serve Yet given limitations on providers’
treatment that addresses relevant as an entryway into mental health time, the complexity of most local
social determinants (eg, housing or care. Moreover, parents who discuss mental health care delivery systems,
food insecurity) may be associated their children’s social–emotional and the needs of families living in
with greater therapeutic changes,48 or behavioral problems with their poverty, targeted care coordination
decreased treatment attrition,49 pediatrician are more likely to may increase successful linkages
and increased engagement.50–52 obtain mental health services for from primary care to the community.
Despite the promise of these types their children than those who do not Care coordination, a collaborative
of approaches and increasing discuss these issues.59 and family-centered approach to
recognition of their importance, their organizing health care delivery,
availability is limited. Although there is considered to be an essential
Routine, universal developmental
is the beginning of a trend toward component of the medical home64,65
and mental health screening,
more transformative, comprehensive, that has been effective for children
administered by the pediatric
preventive systems that span from in low-income households.65
provider or other clinical staff (eg,
communities to schools to health Care coordination involves the
nurses, social workers, mental health
systems, we focus in this section on organization of patient care activities,
providers), has been highlighted
strategies that can be implemented in often facilitated by information
pediatric primary care settings. as a way to identify potential exchange between clinicians involved
concerns earlier among a wider in a patient’s care, ensuring that
range of families.60,61 Specifically, services provided across settings
Integrated behavioral health care
within the patient-centered medical universal screening can help to (eg, school and primary care) are
home (PCMH) is a particularly address the fact that pediatricians well coordinated.65 In mental health
promising strategy to reduce barriers tend to have low sensitivity rates in settings, care coordination by using
and increase access to mental health identifying mental health problems.62 either paraprofessionals or family
care across pediatric populations. Additionally, screening can help associates (paraprofessionals with
The central characteristics of the reduce disparities in health care lived experience) is a promising
PCMH, including a patient-centered because all children receive a similar strategy for engaging families in the
orientation, comprehensive and assessment regardless of family use of mental health services after a
coordinated team-based care, characteristics or provider discretion. referral has been made,51,66 although
continuous access, and a system- Expanding universal screening to more research is needed on care
based approach, reflect core elements include parent mental health and coordination in primary care for
that lead to improved mental health family adverse experiences can be children with mental health concerns.
outcomes in primary care settings.53 beneficial in identifying families Care coordination is considered
Integrated behavioral health care in need of additional support.25 best practice in improving health
in the PCMH is a new concept that Despite the notable advantages of care quality, yet payment for these
is still taking shape in practice and routine mental health screening, it supports remains a barrier, with
currently exists in many different is not being widely implemented by great variability across states and
forms, ranging from routine mental pediatricians, and a recent report third-party payers.
health screening as part of well from the American Academy of
child care to colocation of mental Pediatrics noted significant barriers Ideally, direct mental health support
health providers within a primary to screening including lack of time, and services are also available to
care practice. These models of care, lack of reimbursement, lack of families in the primary care setting,
described in greater detail below, can available mental health resources, provided by either the PCP or a
decrease stigma, allow easier access and potential liability issues.61 mental health specialist. Pediatric

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4 HODGKINSON et al
providers can provide mental children living in poverty, but they and multidisciplinary teams. These
health care by using interventions also face challenges. Barriers unique recommendations are compiled
intended for primary care settings. to the primary care setting may from a review of mental health care
Examples of empirically supported include pediatric provider time delivery research, expert opinion,
interventions aimed at reducing limitations, space limitations, billing and policy recommendations from
social–emotional or behavioral restrictions, competing priorities, the American Academy of Pediatrics
problems implemented in primary inadequate training, pediatric and others, tailored for the practicing
care include Triple P Positive providers’ understanding of the role pediatric PCP. Both the scientific
Parenting Program, a multilevel of mental health specialists, and and lay literature were reviewed,
family preventive intervention difficulty integrating new behavioral with special attention to expert
program that includes a specific health systems into a busy, complex recommendations that are evidence
primary care component, and Brief practice setting. In recognition of the based and have been implemented in
Parent Child Interaction Therapy, complexity of these concerns and a variety of settings.
a shortened version of a treatment strategies needed to address them,
that improves the parent–child resources exist to support providers 1. Education and training should
relationship and interaction patterns in building integrated care models, focus on both cultural shifts
by using live coaching.40,44 Modular including those available through the and skill development, given
or common factors treatments are American Academy of Pediatrics.73 the importance of the primary
also ideally suited for primary care care physician in identifying
because they use evidence-based and managing mental health
principles to target underlying RECOMMENDATIONS concerns and in helping families to
processes in a flexible manner engage in mental health care. To
There is a clear and growing
that accounts for heterogeneous overcome barriers to care faced
consensus across the fields of
symptom presentations.67,68 Many by children from low-income
pediatrics, psychiatry, psychology,
pediatricians report lack of training families, PCPs, mental health
and child advocacy that integrating
and confidence treating mental professionals, and families all
mental health services into existing
health disorders.69 Child mental need to change their expectations
service settings, including pediatric
health access programs, in which a of what mental health service
primary care, is the most promising
mental health team (eg, psychiatrists, delivery looks like and come to
means of increasing access to mental
psychologists) provide real-time see the medical home as a source
health care, particularly for children
consultation to pediatricians, offer of behavioral as well as physical
from low-income families.38,54,74
a cost-effective strategy to support health care, recognizing the strong
However, optimal implementation
pediatricians in implementing mental reciprocal relationship between
requires changes in policies,
health intervention.70 them. Some specific areas for
workforce development, health care
education and technical assistance
Mental health professionals financing, community service system
include the following:
integrated within primary care, who infrastructure, clinical workflow,
benefit from warm hand-offs and and provider practices. The
⚬ Increasing the capacity of
shared trust, can serve in a range of recommendations below focus on
providers and staff to address
roles. For example, they can provide provider-level changes. A review of
practical, logistical, and
brief consultations to triage concerns, needed policy and regulatory change
psychological barriers to patient
clarify diagnoses, inform treatment is beyond the scope of this article,
engagement in mental health
planning, and provide ongoing but we encourage interested readers
care.75 This includes increasing
intervention services.55–58,70–73 In to contact their local professional
attention to social determinants
a cluster-randomized trial, on-site societies, advocacy groups, or state
of health (eg, housing,
mental health care was associated agencies to learn about key issues
neighborhood conditions), and
with higher rates of treatment and become involved in system
recognition and discussion of
initiation and completion and with transformation at a local or federal
their role in both physical and
greater reductions in mental health level.
mental health care.76,77 PCPs
symptoms and parental stress when
Recommendations for provider-level can seek additional training or
compared with facilitated specialty
change to improve access to mental collaboration with other clinical
care referral.56
health care for low-income families in providers (eg, social workers and
Integrated care models as described the primary care setting are grouped psychologists) to identify and
above hold promise for increasing into 3 main categories: education address with families sources
access to mental health care for and training, clinical infrastructure, of toxic stress and to recognize

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PEDIATRICS Volume 139, number 1, January 2017 5
such topics as important providers to be available quickly, to address the comprehensive
components of pediatric care.25 eliminate repetitive intake needs of children and families.
processes, and enable effective The collaborative care model
⚬ Training and education that
and specific communication is an example of a health care
enable PCPs to identify and
between pediatric and mental system–level intervention
address emerging problems
health providers.80 that emphasizes collaboration
before they meet diagnostic
between providers and care
criteria, including a focus on ⚬ Creation of more effective
managers to link PCPs and
early childhood mental health mechanisms for communication
patients with mental health
(eg, Zero to Three).38,60 and comanagement between
providers more efficiently, either
providers including primary
⚬ Training to increase the PCP’s within or outside the primary
care clinicians, mental health
comfort and competency in care setting.38,60,64,81 There is
professionals, school personnel,
prevention, management, robust support for the use of
and case managers.60,74
and treatment of frequently collaborative care models as
occurring and lower-acuity ⚬ Assessment and adjustment a means of managing mental
mental health conditions in of workflow to allow health conditions in the primary
childhood and adolescence, implementation of child care setting.81
including medication and maternal mental health
⚬ Increase use of paraprofessionals
management and knowledge of screenings, management of
(eg, family navigators, family
evidence-based mental health behavioral problems (eg,
support workers) in pediatric
services.60,78 collaboration with front office
practices to facilitate access to
staff, nursing, social work,
⚬ Integrating education about care.51
and mental health clinicians),
mental health care into pediatric
and potentially colocation or ⚬ Advocate for changes in
graduate medical education.
integration of mental health policies or information
This step may involve including
specialists.77,80 technology to permit sharing
mental health experts in training
and synthesis of physical and
programs, coprecepting with ⚬ Provision of routine screening
behavioral health data between
mental health professionals in for child social emotional
these settings.77
residency continuity clinics, and problems and perinatal mood
increasing the amount of time and anxiety disorders as These recommendations are
allocated to training in mental standard components of well not intended to be fully
health within pediatric residency child care.25,38,79 comprehensive but are targeted
programs.60 toward high-impact interventions
3. Multidisciplinary teams that can be achievable in the typical
2. Clinical infrastructure is a critical are essential to providing primary care setting through a
factor in successfully increasing comprehensive, high-quality stepwise approach. Providers
access to care by creating mental health care to children are encouraged to assess their
attainable and sustainable from low-income families, own practices, implement small,
systems. Several changes can be who face increased barriers to incremental changes with continual
implemented at the individual accessing care through traditional reassessment, and partner with
practice level, which supports systems. Creating these teams can their local professional societies to
the integration of mental health entail a greater investment of time improve access to mental health care
into primary care, including the and resources on the part of the for low-income families.
following: pediatric provider; however, the
payoff in improved outcomes and
⚬ Establishment of collaborative
patient satisfaction can be great.
relationships that enable ABBREVIATIONS
Recommendations to support
pediatric clinicians to better
the development of these teams PCMH: patient-centered medical
coordinate with mental health
include the following: home
services.60,79 This change includes
PCP: primary care provider
the creation of referral protocols ⚬ Integrate care coordination
SES: socioeconomic status
that allow mental health services into clinical settings

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6 HODGKINSON et al
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Improving Mental Health Access for Low-Income Children and Families in the
Primary Care Setting
Stacy Hodgkinson, Leandra Godoy, Lee Savio Beers and Amy Lewin
Pediatrics 2017;139;
DOI: 10.1542/peds.2015-1175 originally published online December 12, 2016;

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Improving Mental Health Access for Low-Income Children and Families in the
Primary Care Setting
Stacy Hodgkinson, Leandra Godoy, Lee Savio Beers and Amy Lewin
Pediatrics 2017;139;
DOI: 10.1542/peds.2015-1175 originally published online December 12, 2016;

The online version of this article, along with updated information and services, is
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