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Caitlin E. Synovec
To cite this article: Caitlin E. Synovec (2020) Evaluating Cognitive Impairment and Its Relation to
Function in a Population of Individuals Who Are Homeless, Occupational Therapy in Mental Health,
36:4, 330-352, DOI: 10.1080/0164212X.2020.1838400
Article views: 65
ABSTRACT KEYWORDS
Individuals experiencing homelessness are at risk for cognitive Functional cognition;
impairment and decreased functional skills due to complex functional performance;
comorbidities and restricted contexts. A retrospective analysis homelessness; cogni-
tive screening
of occupational therapy evaluations within an integrated,
interprofessional primary care clinic serving adults experienc-
ing homelessness was completed. Evaluations included a
standardized cognitive screening assessment and a standar-
dized functional assessment. Assessment results were analyzed
to determine the prevalence of cognitive impairment, differen-
ces between cognitive and functional assessment perform-
ance, and the relationship between cognitive impairment and
functional performance. Although most participants’ perform-
ance indicated cognitive impairment, functional performance
was varied demonstrating the need for individualized evalu-
ation and care planning in the transition from homelessness
to housing.
Introduction
Previous research has suggested that adults who are homeless often have a
cognitive impairment and multiple medical co-morbidities impacting their
ability to complete functional tasks, such as self-care or managing health
care (Andersen et al., 2014; Depp et al., 2015; Spence et al., 2004). These
studies, however, are scarce and do not use a consistent methodology for
assessing cognitive impairment (Depp et al., 2015; Stone et al., 2019). Even
fewer studies are available regarding the functional skills of individuals
experiencing homelessness and the relationship of these skills to cognition
(Helfrich & Fogg, 2007; Raphael-Greenfield, 2012). Although these studies
identified a high level of cognitive impairment, they also showed this popu-
lation demonstrated the ability to develop independent living skills and
maintain housing with appropriate supports (Helfrich & Fogg, 2007;
CONTACT Caitlin E. Synovec CESynovec@gmail.com National Institute for Medical Respite Care, National
Health Care for the Homeless Council, Nashville, TN 37206, USA.
ß 2020 Taylor & Francis Group, LLC
OCCUPATIONAL THERAPY IN MENTAL HEALTH 331
Homelessness
Homelessness remains a significant social and health inequity problem in
the United States, with over 560,000 individuals experiencing homelessness
on a single night in 2019 (Henry et al., 2020). There are many factors that
contribute to a person becoming homeless, including poverty, health, and a
lack of affordable housing (National Health Care for the Homeless Council
[NHCHC], 2019; National Low Income Housing Coalition, 2017; To et al.,
2016; Topolovec-Vranic et al., 2017). Studies have reported a high preva-
lence of mental health and substance use diagnoses, brain injury, and
chronic conditions among those experiencing homelessness (Fazel et al.,
2014; Stubbs et al., 2020; Topolovec-Vranic et al., 2017; Zlotnick & Zerger,
2009). In response, specific models of supportive housing and integrated
health care have been developed to address the specific and complex health
needs of this population. Models such as Housing First and Health Care
for the Homeless (HCH) have increased access to permanent housing,
mental health and primary care, and case management services (Aubry
et al., 2015; Rabiner & Weiner, 2012). Integration of occupational therapy
services in these models of care has been inconsistent, despite research in
occupational therapy has demonstrated effectiveness in addressing func-
tional needs of this population through evaluation and intervention
(Gutman & Raphael-Greenfield, 2017; Helfrich & Fogg, 2007; Helfrich &
Synovec, 2019; Marshall et al., 2020; Roy et al., 2017; Synovec et al., 2020;
Thomas et al., 2011, 2017).
Cognition
Cognition can be defined as “information-processing functions carried out
by the brain that include attention, memory, executive functions (i.e., plan-
ning, problem solving, self-monitoring, self-awareness), comprehension and
formation of speech, calculation ability, visual perception, and praxis skills”
(AOTA, 2019, p. 2). Cognitive impairment, or cognitive dysfunction, has
332 C. E. SYNOVEC
Method
Research design
A retrospective, descriptive study was undertaken to examine the cognitive
status and functional performance of a homeless population receiving med-
ical and mental health services at a health care agency specifically for this
population. Further analyses were completed to determine the relationship
of performance on cognitive screening tools to functional performance, as
measured by functional assessments. Retrospective data were obtained
using the agency’s electronic medical record (EMR) system. Functional
assessments included the Executive Function Performance Test (EFPT)
and/or the Assessment of Motor and Process Skills (AMPS); cognitive
screenings included the Allen Cognitive Level Screen Version 5 (ACLS-5)
and/or the Montreal Cognitive Assessment (MoCA) (Allen et al., 2007;
Baum & Wolf, 2013; Fisher & Bray Jones, 2010a; Nasreddine et al., 2005).
Use of participant data through a retrospective study was approved by the
Boston University Institutional Review Board and did not require
signed consent.
Study population
Agency records for 172 individuals for whom occupational therapy evalua-
tions were completed over a 2-year period were selected for analysis.
Selection was based on the following criteria: (1) the evaluations in the
record included at minimum of one standardized functional assessment
(EFPT, AMPS) and one standardized cognitive screening (ACLS-5,
MoCA); (2) the individual was over the age of 18; (3) the individual was
able to independently consent for services; and (4) was referred by a pro-
vider at the agency for an occupational therapy evaluation. Participation
in ongoing occupational therapy services was not required for inclusion.
At the time of evaluation, the individual may have been considered home-
less (living on the street or in a shelter) or unstably housed (e.g.,
“doubling up” or living with others but without their own room or name
on the lease). All were receiving medical and/or mental health services at
the agency prior to referral to occupational therapy. Individuals may have
been referred to the occupational therapist for evaluation for several rea-
sons, inclusive of concerns for cognitive impairment or decline; concern
regarding functional skills and ability to live independently; desire to have
a greater understanding of the individual’s cognition or functional
abilities; and to determine supports needed once qualified for housing
opportunities (e.g., permanent supportive housing, apartment within
the community).
OCCUPATIONAL THERAPY IN MENTAL HEALTH 335
Measures
The selected measures, described below, are used routinely in the study set-
ting due to the relevance for the clinic’s population. Clinical reasoning was
used to select one cognitive assessment (ACLS or MoCA) and one func-
tional assessment (EFPT or the AMPS) based on: reason for referral, client
report, and analysis of the client by the practitioner during the interview.
Clinical procedures
Setting
Participants received services from an integrated primary health care
organization in an urban area that is specifically designed to meet the
complex needs of homeless individuals is a Federally Qualified Health
Center (FQHC) (Bonin et al., 2010; U. S. Department of Health & Human
Services, Health Resources & Services Administration, 2018).
Comprehensive services are delivered on-site by interdisciplinary teams of
providers including physicians, nurse practitioners, nurses, social workers,
case managers and two full-time occupational therapists providing medical
care, mental health and addiction counseling, case management, and occu-
pational therapy (Synovec et al., 2020).
Clients were referred for an occupational therapy evaluation by any of
their current providers. Upon referral for the occupational therapy
OCCUPATIONAL THERAPY IN MENTAL HEALTH 339
Data collection
A search feature in the EMR was used to obtain cognitive and functional
evaluation records. For each record that met the inclusion criteria, the final
scores on both the cognitive and functional assessments were gathered
along with demographic data for analysis. Diagnoses for mental health and
chronic conditions were obtained from the client’s problem list within the
EMR; diagnoses were determined by a behavioral health or primary care
provider based on the Diagnostic and Statistical Manual of Mental
Disorders, Fifth Edition (DSM-5) and International Classification of
Diseases, Tenth Revision (ICD-10) categories (American Psychiatric
Association, 2013; World Health Organization, 1992). The clients’ cognitive
and functional assessment scores were entered into a de-identified data
sheet for analysis, which sorted participants by cognitive and functional
assessment completed.
Data analysis
Individuals were grouped into categories based on their performance on
the cognitive screening assessments (ACLS-5: mild, moderate, or severe;
MoCA: normal, mild, or severe). Placement into category groups was deter-
mined by using guidelines of the assessment manuals and by reviewing the
literature. The results on the EFPT or AMPS for each of the cognitive
340 C. E. SYNOVEC
Results
Demographics of study population
The study population ranged in age from 23 to 73 with a mean age of 51.
Seventy-three percent identified as male, 26% identified as female, and 1%
identified gender as “other.” Table 1 depicts the distribution of mental health
and chronic conditions. Of the individuals whose records were selected, 91%
were diagnosed with a psychiatric disorder; affective (66%) and substance use
(60%) disorders were the most commonly occurring mental health diagnoses.
Half of the population experienced chronic pain (51%) and 34% had experi-
enced at least one head trauma. Twenty-three percent were identified as having
cognitive impairment prior to occupational therapy evaluation. Notably, 85%
were diagnosed with at least one mental health and one chronic health condi-
tion, with 39% experiencing at least one mental health condition and 3 or more
chronic health conditions, indicating a high prevalence of co-morbidities.
were administered and the number of clients that completed each cognitive
assessment and functional assessment. Table 3 illustrates the distribution of
cognitive performance groups and their functional assessment performance.
Of clients who completed the ACLS-5 (n ¼ 97), none achieved a score of
6.0. Of those who completed the MoCA (n ¼ 75), only 16% achieved a
score within normal cognitive performance. These results indicate a high
prevalence of cognitive impairment within the participant group.
Allen Cognitive Level Screen and Assessment of Motor and Process Skills
ANOVA indicated there was no significant difference on performance
among the ACLS-5 cognitive groups and the AMPS-M (p ¼ 0.85) or the
OCCUPATIONAL THERAPY IN MENTAL HEALTH 343
Table 5. Pearson product moment correlation for cognitive and functional assessment
performance.
EFPT AMPS-M AMPS-P
ACLS-5 .472 .194 .209
MoCA .434 .287 .307
Note. Levels of correlation: 0 ¼ No correlation; 0.1–0.3/0.1–()0.3 ¼ Weak; 0.4–0.6/()0.4–().06 ¼ Moderate;
0.7–0.9/()0.7–()0.9 ¼ Strong.
Discussion
The results of this study present several significant findings. The overall
performance of the clients on the cognitive screening tools indicates a pre-
dominance of cognitive impairment in the tested population. What may be
most notable is that though the initial EMR data has a similar percentage
of cognitive impairment to the Depp et al. (2015) study, after administering
cognitive assessments, 92% of individuals were found to have some level of
cognitive impairment. The majority of screening tools used to identify cog-
nitive impairment in this population are the Mini Mental Status Exam or
344 C. E. SYNOVEC
young adult who is now homeless after aging out of the foster care system
with limited access to IADL experiences.
The heterogeneity of the study population likely impacted the range of
functional performance. Different than other research groups, this study
determined a population by contextual similarities (homelessness) versus
diagnoses; however, the cognitive sub-groups demonstrate more similarities.
All of the severe cognitive impairment groups demonstrated the least func-
tional skills except for the ACLS severe cognitive group and the AMPS-P.
The lack of significance between the ACLS-5 severe cognitive group and
the AMPS-P could be attributed to the small number of participants (3)
within this subgroup. The groups with severe cognitive impairment per-
formed similarly to diagnostic groups where severe cognitive impairment is
more likely to be present, such as moderate and severe CVA, serious men-
tal illness and chronic substance use, and homelessness compounded by
substance use (AOTA, 2019; Ayres & John, 2015; Raphael-Greenfield, 2012;
Rojo-Mota et al., 2014). Overall, participants of this study performed lower
than normed control groups for both functional assessments. Both the cog-
nitive and functional performance were also likely skewed toward higher
rates of impairment, as participants were referred for assessment secondary
to demonstrating or reporting concerns regarding cognition or functional
performance. Thus, the decreased performance may not be generalizable to
the whole population of adults experiencing homelessness.
The identified decreased functional performance may be impacted by
several factors. First, most participants experienced both mental health and
chronic health condition, which compounded, may have a greater impact
on performance than more homogenous study groups. Even if other diag-
nostic groups experience comorbidities, the environmental restrictions of
homelessness in which persons are unable to routinely engage in occupa-
tions limits the opportunity to refine and develop skills. Additional context-
ual factors, such as poor sleep, inadequate nutrition, and lack of
community and social supports, may be moderating factors contributing to
decreased functional skills. These factors may impact overall skill acquisi-
tion and use and can also impact response to assessments. If a person
enters an evaluation appointment after a limited sleep from sleeping at a
bus stop and not having eaten, this can influence both the person’s ability
to respond to assessment questions and instructions. It is critical that
practitioners working with this population assess these factors prior to
assessment and consider their impact if the assessment is administered.
When working with this population, these circumstances may not
necessarily prohibit completion of the assessment (with client consent) and
point to the need to consider how these factors impact day to day
functioning.
346 C. E. SYNOVEC
The results of this study also have implications for supporting individuals
transitioning to housing. Previous studies identified that cognitive and
executive functions did not improve after participants transition from
homelessness to housing (Seidman et al., 2003); however, it has been dem-
onstrated that individuals are able to move into and maintain stable hous-
ing with appropriate supports, such as client-directed mental health care
and economic supports (Raphael-Greenfield, 2012; Stergiopoulos et al.,
2019). Addressing functional cognition through occupational therapy can
enhance the experiences of those transitioning into housing and provide
opportunity for individualized skill development within effective supportive
housing models. Performance-based assessments provide an opportunity
for the occupational therapy practitioner to identify existing skills, underly-
ing strengths, and client-specific barriers to functional performance.
Much like cognitive screening tools, further validation of functional
assessments for adults experiencing homelessness is needed. Due to the
restricted contexts, this population does not routinely have access to spe-
cific skills, which may limit applicability of certain assessments. For
example, while living a shelter, an individual may have extremely limited
experience in bill payment, limiting the use of the bill payment task within
the EFPT as it would be assessing a novel skill. There may also not be a
best or natural environment in which to complete tasks as recommended
by the AMPS, due to the instability of housing and circumstances for the
population. Assessments that allow for the practitioner to use clinical rea-
soning and client experiences to determine tasks that are appropriate and
familiar allows for psychometric properties to be upheld while providing an
accurate assessment of skills. As within many areas of practice, there is
likely not one true or best assessment, however, ensuring that assessments
are culturally relevant to diverse populations with a variety of life circum-
stances supports the applicability of tools across settings and populations.
Limitations
Due to the retrospective structure of this study based on clinical data, the
groups were not evenly distributed among the cognitive and functional
assessment groups, which could impact the strength of statistical analyses.
Additionally, due to the retrospective structure, additional moderating factors
could not be explored as data was not consistently captured in the EMR,
such as length of time spent homeless, education, or employment status.
Conclusion
Individuals experiencing homelessness present with a high rate of cognitive
impairment, but variability in functional skills. Increased cognitive impairment
OCCUPATIONAL THERAPY IN MENTAL HEALTH 347
is likely due to the presence of multiple medical and mental health conditions,
as well as the chronic stress and trauma of homelessness. Each individual’s
independent living skills are unique, based on both cognition and life experi-
ences, thus evaluation of both is necessary. Overall, the results of this study
provide support for incorporating occupational therapy services into programs
serving adults experiencing homelessness. Occupational therapy can both
identify presence of cognitive impairment and identify a person’s functional
skills and abilities, a role typically not fulfilled by other providers (Merryman
& Synovec, 2020). By identifying cognitive and functional performance, pro-
viders can understand the client’s current skills and experiences and to tailor
their education and skill building of novel information and tasks specific to
their learning needs, resulting in appropriate accommodations and sup-
port services.
Implications
This study has two major implications. First, it supports the body of evi-
dence regarding the need for occupational therapy to administer both cog-
nitive and functional assessments. This is especially applicable to diverse
populations such as adults experiencing homelessness, where there is an
increased prevalence of cognitive impairment, yet variability in functional
skills. However, there is a need for further research to explore the use of
functional and cognitive assessments with this population to increase valid-
ity of these measures with adults experiencing homelessness.
Second, this study provides significant evidence regarding the benefit of
the availability of occupational therapy services within agencies serving
adults experiencing homelessness. Understanding of cognitive and func-
tional abilities of clients can enhance care and develop more individualized
care planning. Understanding cognitive and functional performance sup-
ports continued development of evidence-based interventions in response
to client needs and performance. Evaluation and corresponding interven-
tions can improve the effectiveness of services with the ultimate goal of
successful transitions into housing and the community.
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