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P O S I T I O N S T A T E M E N T

Diabetes Care in the School and Day Care


Setting
AMERICAN DIABETES ASSOCIATION

D
iabetes is one of the most common the child’s usual school setting with as lit- personnel must have an understanding of
chronic diseases of childhood (1). tle disruption to the school’s and the diabetes and must be trained in its man-
There are ⬃186,300 individuals child’s routine as possible and allowing agement and in the treatment of diabetes
⬍20 years of age with diabetes in the U.S. the child full participation in all school emergencies (3,18,19,20,34,36). Knowl-
Based on 2002–2003 data, the rate of new activities (8,9). edgeable trained personnel are essential if
type 1 diabetes cases was 19.0 per Despite these protections, children in the student is to avoid the immediate
100,000 children and of type 2 diabetes the school and day care setting still face health risks of low blood glucose and to
was 5.3 per 100,000 (2). The majority of discrimination. For example, some day achieve the metabolic control required to
these young people attend school and/or care centers may refuse admission to chil- decrease risks for later development of di-
some type of day care and need knowl- dren with diabetes, and children in the abetes complications (3,20). Studies have
edgeable staff to provide a safe school en- classroom may not be provided the assis- shown that the majority of school person-
vironment. Both parents and the health tance necessary to monitor blood glucose nel have an inadequate understanding of
care team should work together to pro- and administer insulin and may be pro- diabetes (21,22). Consequently, diabetes
vide school systems and day care provid- hibited from eating needed snacks. The education must be targeted toward day
ers with the information necessary to American Diabetes Association works to care providers, teachers, and other school
allow children with diabetes to participate ensure the safe and fair treatment of chil- personnel who interact with the child, in-
fully and safely in the school experience dren with diabetes in the school and day cluding school administrators, school
(3,4). care setting (10 –15) (www.diabetes.org/ nurses, coaches, health aides, bus drivers,
schooldiscrimination). secretaries, etc. (3,20). Current recom-
DIABETES AND mendations and up-to-date resources re-
THE LAW — Federal laws that protect Diabetes care in schools garding appropriate care for children with
children with diabetes include Section Appropriate diabetes care in the school diabetes in the school are universally
504 of the Rehabilitation Act of 1973 (5), and day care setting is necessary for the available to all school personnel (3,23).
the Individuals with Disabilities Educa- child’s immediate safety, long-term well The purpose of this position state-
tion Act (originally the Education for All being, and optimal academic perfor- ment is to provide recommendations for
Handicapped Children Act of 1975) (6), mance. The Diabetes Control and Com- the management of children with diabetes
and the Americans with Disabilities Act plications Trial showed a significant link in the school and day care setting.
(7). Under these laws, diabetes has been between blood glucose control and later
considered to be a disability, and it is il- development of diabetes complications,
GENERAL GUIDELINES FOR
legal for schools and/or day care centers to with improved glycemic control decreas-
THE CARE OF THE CHILD IN
discriminate against children with dis- ing the risk of these complications
THE SCHOOL AND DAY CARE
abilities. In addition, any school that re- (16,17). To achieve glycemic control, a
SETTING
ceives federal funding or any facility child must check blood glucose fre-
considered open to the public must rea- quently, monitor food intake, take medi-
I. Diabetes Medical Management
sonably accommodate the special needs cations, and engage in regular physical
Plan
of children with diabetes. Indeed, federal activity. Insulin is usually taken in multi-
An individualized Diabetes Medical Man-
law requires an individualized assessment ple daily injections or through an infusion
agement Plan (DMMP) should be devel-
of any child with diabetes. The required pump. Crucial to achieving glycemic con-
oped by the student’s personal diabetes
accommodations should be documented trol is an understanding of the effects of
health care team with input from the par-
in a written plan developed under the ap- physical activity, nutrition therapy, and
ent/guardian. Inherent in this process are
plicable federal law such as a Section 504 insulin on blood glucose levels.
delineated responsibilities assumed by all
Plan or Individualized Education Pro- To facilitate the appropriate care of
parties, including the parent/guardian,
gram (IEP). The needs of a student with the student with diabetes, the school
the school personnel, and the student
diabetes should be provided for within nurse as well as other school and day care
(3,24,25). These responsibilities are out-
● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ● ●
lined in this position statement. In addi-
Originally approved 1998. Revised 2008. tion, the DMMP should be used as the
DOI: 10.2337/dc11-S070
© 2011 by the American Diabetes Association. Readers may use this article as long as the work is properly basis for the development of written edu-
cited, the use is educational and not for profit, and the work is not altered. See http://creativecommons. cation plans such as the Section 504 Plan
org/licenses/by-nc-nd/3.0/ for details. or the IEP. The DMMP should address the

S70 DIABETES CARE, VOLUME 34, SUPPLEMENT 1, JANUARY 2011 care.diabetesjournals.org


Position Statement

specific needs of the child and provide maintenance of the blood glucose lows: level 1 training for all school
specific instructions for each of the fol- monitoring equipment (i.e., cleaning staff members, which includes a ba-
lowing: and performing controlled testing sic overview of diabetes, typical
per the manufacturer’s instructions) needs of a student with diabetes, rec-
1. Blood glucose monitoring, including and must provide materials neces- ognition of hypoglycemia and hyper-
the frequency and circumstances re- sary to ensure proper disposal of ma- glycemia, and who to contact for
quiring blood glucose checks, and use terials. A separate logbook should be help; level 2 training for school staff
of continuous glucose monitoring if kept at school with the diabetes sup- members who have responsibility for
utilized. plies for the staff or student to record a student or students with diabetes,
2. Insulin administration (if necessary), blood glucose and ketone results; which includes all content from level
including doses/injection times pre- blood glucose values should be trans- 1 plus recognition and treatment of
scribed for specific blood glucose val- mitted to the parent/guardian for re- hypoglycemia and hyperglycemia
ues and for carbohydrate intake, the view as often as requested. Some and required accommodations for
storage of insulin, and, when appro- students maintain a record of blood those students; and level 3 training
priate, physician authorization of par- glucose results in meter memory for a small group of school staff mem-
ent/guardian adjustments to insulin rather than recording in a logbook, bers who will perform student-
dosage. especially if the same meter is used at specific routine and emergency care
3. Meals and snacks, including food con- home and at school. tasks such as blood glucose monitor-
tent, amounts, and timing. 2. The DMMP completed and signed by ing, insulin administration, and glu-
4. Symptoms and treatment of hypogly- the student’s personal diabetes health cagon administration when a school
cemia (low blood glucose), including care team. nurse is not available to perform
the administration of glucagon if rec- 3. Supplies to treat hypoglycemia, in- these tasks and which will include
ommended by the student’s treating cluding a source of glucose and a glu- level 1 and 2 training as well.
physician. cagon emergency kit, if indicated in 3. Immediate accessibility to the treat-
5. Symptoms and treatment of hypergly- the DMMP. ment of hypoglycemia by a knowl-
cemia (high blood glucose). 4. Information about diabetes and the edgeable adult. The student should
6. Checking for ketones and appropriate performance of diabetes-related remain supervised until appropriate
actions to take for abnormal ketone tasks. treatment has been administered,
levels, if requested by the student’s 5. Emergency phone numbers for the and the treatment should be available
health care provider. parent/guardian and the diabetes as close to where the student is as
7. Participation in physical activity. health care team so that the school possible.
8. Emergency evacuation/school lock- can contact these individuals with di- 4. Accessibility to scheduled insulin at
down instructions. abetes-related questions and/or dur- times set out in the student’s DMMP
ing emergencies. as well as immediate accessibility to
A sample DMMP (http://www.diabe 6. Information about the student’s treatment for hyperglycemia includ-
tes.org/uedocuments/DMMP-finalfor meal/snack schedule. The parent ing insulin administration as set out
matted.pdf) may be accessed online and should work with the school during by the student’s DMMP.
customized for each individual student. the teacher preparation period before 5. A location in the school that provides
For detailed information on the symp- the beginning of the school year or privacy during blood glucose moni-
toms and treatment of hypoglycemia and before the student returns to school toring and insulin administration, if
hyperglycemia, refer to Medical Manage- after diagnosis to coordinate this desired by the student and family, or
ment of Type 1 Diabetes (26). A brief de- schedule with that of the other stu- permission for the student to check
scription of diabetes targeted to school dents as closely as possible. For his or her blood glucose level and
and day care personnel is included in the young children, instructions should take appropriate action to treat hypo-
APPENDIX; it may be helpful to include this be given for when food is provided glycemia in the classroom or any-
information as an introduction to the during school parties and other activ- where the student is in conjunction
DMMP. ities. with a school activity, if indicated in
7. In most locations, and increasingly, a the student’s DMMP.
II. Responsibilities of the various signed release of confidentiality from 6. School nurse and back-up trained
care providers (3) the legal guardian will be required so school personnel who can check
that the health care team can commu- blood glucose and ketones and ad-
A. The parent/guardian should provide nicate with the school. Copies should minister insulin, glucagon, and other
the school or day care provider with be retained both at the school and in medications as indicated by the stu-
the following: the health care professionals’ offices. dent’s DMMP.
7. School nurse and back-up trained
1. All materials, equipment, insulin, B. The school or day care provider school personnel responsible for the
and other medication necessary for should provide the following: student who will know the schedule
diabetes care tasks, including blood of the student’s meals and snacks and
glucose monitoring, insulin adminis- 1. Opportunities for the appropriate work with the parent/guardian to co-
tration (if needed), and urine or level of ongoing training and diabetes ordinate this schedule with that of
blood ketone monitoring. The par- education for the school nurse. the other students as closely as pos-
ent/guardian is responsible for the 2. Training for school personnel as fol- sible. This individual will also notify

care.diabetesjournals.org DIABETES CARE, VOLUME 34, SUPPLEMENT 1, JANUARY 2011 S71


American Diabetes Association

Table 1—Resources for teachers, child care providers, parents, and health professionals ties (3,18,20). These school personnel
Helping the Student with Diabetes Succeed: A Guide for School Personnel. National Diabetes Education
need not be health care professionals
Program, 2003. Available at http://www.ndep.nih.gov/Diabetes/pubs/Youth_SchoolGuide.pdf (3,9,20,28,33,35).
Diabetes Care Tasks at School: What Key Personnel Need to Know. Alexandria, VA, American It is the school’s responsibility to pro-
Diabetes Association, 2008. Available online at http://shopdiabetes.org/58-diabetes-care- vide appropriate training of an adequate
tasks-at-school-what-key-personnel-need-to-know-2010-edition.aspx. number of school staff on diabetes-related
Your School & Your Rights: Protecting Children with Diabetes Against Discrimination in Schools tasks and in the treatment of diabetes
and Day Care Centers. Alexandria, VA, American Diabetes Association, 2005 (brochure). emergencies. This training should be pro-
Available online at http://www.diabetes.org/assets/pdfs/schools/your-school-your-right- vided by the school nurse or another
2010.pdf.* qualified health care professional with ex-
Children with Diabetes: Information for School and Child Care Providers. Alexandria, VA, pertise in diabetes. Members of the stu-
American Diabetes Association, 2004 (brochure). Available at http://shopdiabetes.org/42- dent’s diabetes health care team should
children-with-diabetes-information-for-school-and-child-care-providers.aspx.* provide school personnel and parents/
ADA’s Safe at School campaign and information on how to keep children with diabetes safe at guardians with educational materials
school. Call 1-800-DIABETES and go to www.diabetes.org/living-with-diabetes/parents- from the American Diabetes Association
and-kids/diabetes-care-at-school/safe-at-school and other sources targeted to school per-
American Diabetes Association: Complete Guide to Diabetes. Alexandria, VA, American sonnel and/or parents. Table 1 includes a
Diabetes Association, 2005. Available at http://shopdiabetes.org/114-american-diabetes- listing of appropriate resources.
association-complete-guide.aspx.
Raising a Child with Diabetes: A Guide for Parents. Alexandria, VA, American Diabetes III. Expectations of the student in
Association, 2000. Available at http://shopdiabetes.org/137-ada-guide-to-raising-a-child- diabetes care
with-diabetes-2nd-edition.aspx. Children and youth should be allowed to
Clarke W: Advocating for the child with diabetes. Diabetes Spectrum 12:230–236, 1999. provide their own diabetes care at school
School Discrimination Resources. Alexandria, VA, American Diabetes Association, 2006. Avail- to the extent that is appropriate based on
able at http://www.diabetes.org/living-with-diabetes/know-your-rights/discrimination/school- the student’s development and his or her
discrimination/* experience with diabetes. The extent of
Every Day Wisdom: A Kit for Kids with Diabetes (and their parents). Alexandria, VA, American the student’s ability to participate in dia-
Diabetes Association, 2000. Available at http://www.diabetes.org/living-with-diabetes/ betes care should be agreed upon by the
parents-and-kids/everyday-wisdom-kit.html school personnel, the parent/guardian,
ADA’s Planet D, on-line information for children and youth with diabetes. Accessible at and the health care team, as necessary.
http://www.diabetes.org/living-with-diabetes/parents-and-kids/planet-d/ The ages at which children are able to per-
form self-care tasks are variable and de-
*Available in the American Diabetes Association’s Education Discrimination Packet by calling 1-800-
DIABETES.
pend on the individual, and a child’s
capabilities and willingness to provide
self-care should be respected (18).
the parent/guardian in advance of 12. Permission for the student to use the
any expected changes in the school restroom and have access to fluids 1. Toddlers and preschool-aged children:
schedule that affect the student’s (i.e., water) as necessary. unable to perform diabetes tasks in-
meal times or exercise routine and 13. An appropriate location for insulin dependently and will need an adult
will remind young children of snack and/or glucagon storage, if necessary. to provide all aspects of diabetes care.
times. 14. A plan for the disposal of sharps Many of these younger children will
8. Permission for self-sufficient and ca- based upon an agreement with the have difficulty in recognizing hypo-
pable students to carry equipment, student’s family, local ordinances, glycemia, so it is important that
supplies, medication, and snacks; to and Universal Precaution Standards. school personnel are able to recog-
perform diabetes management tasks; 15. Information on serving size and ca- nize and provide prompt treatment.
and to have cell phone access to reach loric, carbohydrate, and fat content However, children in this age range
parent/guardian and health care pro- of foods served in the school (27). can usually determine which finger
vider. to prick, can choose an injection site,
9. Permission for the student to see the The school nurse should be the key and are generally cooperative.
school nurse and other trained coordinator and provider of care and 2. Elementary school–aged children: de-
school personnel upon request. should coordinate the training of an ade- pending on the length of diagnosis
10. Permission for the student to eat a quate number of school personnel as and level of maturity, may be able to
snack anywhere, including the class- specified above and ensure that if the perform their own blood glucose
room or the school bus, if necessary school nurse is not present at least one checks, but usually will require su-
to prevent or treat hypoglycemia. adult is present who is trained to perform pervision. Older elementary school–
11. Permission to miss school without these procedures in a timely manner aged children are generally
consequences for illness and re- while the student is at school, on field beginning to self-administer insulin
quired medical appointments to trips, participating in school-sponsored with supervision and understand the
monitor the student’s diabetes man- extracurricular activities, and on trans- effect of insulin, physical activity,
agement. This should be an excused portation provided by the school or day and nutrition on blood glucose lev-
absence with a doctor’s note, if re- care facility. This is needed in order to els. Unless the child has hypoglyce-
quired by usual school policy. enable full participation in school activi- mic unawareness, he or she should

S72 DIABETES CARE, VOLUME 34, SUPPLEMENT 1, JANUARY 2011 care.diabetesjournals.org


Position Statement

usually be able to let an adult know betes can fully participate in the school lead to unconsciousness and convulsions
when experiencing hypoglycemia. experience. To this end, the family, the and can be life-threatening if not treated
3. Middle school and high school–aged health care team, and the school should promptly with glucagon as per the stu-
children: usually able to provide self- work together to ensure a safe learning dent’s DMMP (18,24,29,30,31).
care depending on the length of diag- environment. High blood glucose (hyperglycemia)
nosis and level of maturity but will occurs when the body gets too little insu-
always need help when experiencing APPENDIX lin, too much food, or too little exercise; it
severe hypoglycemia. Independence may also be caused by stress or an illness
in older children should be encour- Background information on diabetes such as a cold. The most common symp-
aged to enable the child to make his for school personnel (3) toms of hyperglycemia are thirst, frequent
or her decisions about his or her own Diabetes is a serious, chronic disease that urination, and blurry vision. If untreated
care. impairs the body’s ability to use food. In- over a period of days, hyperglycemia and
sulin, a hormone produced by the pan- insufficient insulin can lead to a serious
Students’ competence and capability creas, helps the body convert food into condition called diabetic ketoacidosis
for performing diabetes-related tasks are energy. In people with diabetes, either the (DKA), which is characterized by nausea,
set out in the DMMP and then adapted to pancreas does not make insulin or the vomiting, and a high level of ketones in
the school setting by the school health body cannot use insulin properly. With- the blood and urine. For students using
team and the parent/guardian. At all ages, out insulin, the body’s main energy insulin infusion pumps, lack of insulin
individuals with diabetes may require source— glucose— cannot be used as supply may lead to DKA more rapidly.
help to perform a blood glucose check fuel. Rather, glucose builds up in the DKA can be life-threatening and thus re-
when the blood glucose is low. In addi- blood. Over many years, high blood glu- quires immediate medical attention (32).
tion, many individuals require a reminder cose levels can cause damage to the eyes,
to eat or drink during hypoglycemia and kidneys, nerves, heart, and blood vessels.
The majority of school-aged youth Acknowledgments — The American Diabe-
should not be left unsupervised until such tes Association thanks the members of the
treatment has taken place and the blood with diabetes have type 1 diabetes. People
health care professional volunteer writing
glucose value has returned to the normal with type 1 diabetes do not produce insu- group for this updated statement: William
range. Ultimately, each person with dia- lin and must receive insulin through ei- Clarke, MD; Larry C. Deeb, MD; Paula Jame-
betes becomes responsible for all aspects ther injections or an insulin pump. son, MSN, ARNP, CDE; Francine Kaufman,
of routine care, and it is important for Insulin taken in this manner does not cure MD; Georgeanna Klingensmith, MD; Des-
school personnel to facilitate a student in diabetes and may cause the student’s mond Schatz, MD; Janet H. Silverstein, MD;
reaching this goal. However, regardless of blood glucose level to become danger- and Linda M. Siminerio, RN, PhD, CDE.
a student’s ability to provide self-care, ously low. Type 2 diabetes, the most com-
help will always be needed in the event of mon form of the disease, typically
afflicting obese adults, has been shown to References
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