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The American Journal of Bioethics

ISSN: (Print) (Online) Journal homepage: https://www.tandfonline.com/loi/uajb20

Vexing, Veiled, and Inequitable: Social Distancing


and the “Rights” Divide in the Age of COVID-19

Amy Fairchild, Lawrence Gostin & Ronald Bayer

To cite this article: Amy Fairchild, Lawrence Gostin & Ronald Bayer (2020) Vexing, Veiled, and
Inequitable: Social Distancing and the “Rights” Divide in the Age of COVID-19, The American
Journal of Bioethics, 20:7, 55-61, DOI: 10.1080/15265161.2020.1764142

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Published online: 19 May 2020.

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THE AMERICAN JOURNAL OF BIOETHICS
2020, VOL. 20, NO. 7, 55–61
https://doi.org/10.1080/15265161.2020.1764142

TARGET ARTICLE

Vexing, Veiled, and Inequitable: Social Distancing and the “Rights” Divide in
the Age of COVID-19
Amy Fairchilda, Lawrence Gostinb, and Ronald Bayerc
a
The Ohio State University College of Public Health; bGeorgetown University Law Center; cMailman School of Public Health

ABSTRACT KEYWORDS
Although unprecedented in scope and beyond all our life experiences, sweeping social dis- Public health; history
tancing measures are not without historical precedent. Historically, racism, stigma, and dis-
crimination resulted in grossly inequitable application of disease containment measures. But
history also provides examples in which broad measures enjoyed remarkable public support.
When it comes to COVID-19, blame and division continue to shape containment responses.
But the COVID-19 pandemic also resonates with moments in which there was broad social
support for containment precisely because lockdowns or stay at home orders are, on the
surface, remarkably equitable. Yet even in a context in which a majority of Americans sup-
port social distancing, small but coordinated conservative groups are challenging social dis-
tancing as a matter of individual rights. In sharp contrast, vulnerable populations, who bear
the heaviest burden of disease, have claimed a right to social distancing as a matter
of protection.

“The ‘Flu’ Is After Us,” ran a headline in Gunnison Our response to the COVID-19 pandemic, caused
News-Champion, the newspaper of a small mountain by the virus SARS-CoV-2, may be unprecedented in
town in Colorado (Gunnison News-Champion 1918). scope, but isolating individuals who are infected with
The October 18, 1918 story outlined the social dis- a disease, quarantining those exposed, establishing
tancing measures that Gunnison would take to try to cordon sanitaires (what we hear refer to in the media
stave off spread of pandemic influenza. Absolutely no as a “lockdown”) around an entire country, or enact-
meetings, indoors or out, would be allowed. ing sweeping social distancing measures are not with-
Congregating on the streets was prohibited. The out historical precedent. But what we are experiencing
schools were closed. now is beyond all our life experiences.
As the epidemic advanced in Colorado, local health What we can learn from looking at the application
officials decided to blockade the entire county “against of these different measures across a range of diseases
all the world” (Carroll 2020). They diverted automo- that stir fear and often panic is that these remarkable
biles, barricaded the major rail line into Gunnison, displays of community or government authority—
and prohibited people from entering the community sometimes heavy-handed but typically widely socially
without submitting to a two-day quarantine. In an accepted—were not equal in the ways they treated
epidemic that killed some 40 million worldwide and groups within society. So often diseases turn us
more than 500,000 in the U.S. alone, this Colorado against “the other,” blaming countries and even
county reported only two cases and no deaths. particular ethnic communities.
Gunnison was one of many communities that As we consider the current COVID-19 pandemic,
enacted sweeping protective measures in response to we see broad continuity with the vexing historical
pandemic influenza. Communities across the nation theme of blame. But we also see an important divide
required citizens to wear masks, canceled church and over social distancing emerging. On the one hand, we
school, staggered business hours, and in some instan- argue, the nature of the threat has created a remark-
ces closed business and transportation lines able degree of consensus about the importance of
(Peever 2020). measures that leave almost no one untouched. At least

CONTACT Amy Fairchild Fairchild.139@osu.edu The Ohio State University College of Public Health, Dean’s Office, 1841 Neil Avenue, Columbus, OH
43210, USA.
ß 2020 Taylor & Francis Group, LLC
56 A. FAIRCHILD ET AL.

notionally, social distancing applies equally to all in a white residents. Chinese residents, in contrast, were
political context marked by social polarization. blockaded inside the district’s perimeter (Craddock
On the other hand, the pandemic is changing the 2000, 126–128). A federal court struck down the lock-
nature of ethical and legal reasoning about the meas- down, saying it operated “with an evil eye and an
ures required to justify such sweeping intrusions. It unequal hand” (Yick Wo v. Hopkins 1886).
was perhaps inevitable that small but vocal conserva- During the 1916 polio outbreak in New York City,
tive groups, supported by the President, would despite a summertime tradition of charitable organiza-
increasingly make the case against any ongoing intru- tions sending poor mothers and children to the coun-
sion on economic liberty, despite continuing biparti- try to restore their health, officials prohibited poor
san support. At the same time, even when applied residents from leaving. Wealthy families, of course,
equally, containment measures can and do create vast, continued to try to flee to mountain resorts or coastal
veiled inequities. Ironically, although we so often homes (Rogers 1992a, 33–34) meaning that the effect-
frame them as a government intrusion that requires ive barricade applied only to immigrant families and
safeguards to prevent misuse, the lack of access to the poor, who lacked the resources to leave.
appropriate social distancing and quarantine measures At this stage in American history, identifying car-
is being expressed in terms of rights to protection. riers of poliomyelitis, also known as infantile paralysis,
was not yet possible. Neighboring states enacted what
the Pennsylvania State Health Commissioner called
LEARNING FROM HISTORY
“radical measures”: quarantines against New York
In September 1888, the postmaster in Cairo, Illinois, travelers (Rogers 1992c, 35). Even cities within New
dispatched a telegram to Washington, D.C. warning York State barred New York City residents from
that the “country below is in the hands of a howling entering or even traveling through (Rogers 1992d, 36).
mob” (The Atlanta Constitution 1888). Yellow fever Others instituted two-week quarantines for nonresi-
terror radiated from the Deep South. It was one of dents. The New York experience with polio was one
many unwanted visits from “Yellow Jack” in the years repeated throughout communities in the U.S. in the
after the Civil War—a plague causing painful, grue- hot summer months.
some death. The cause was unknown but the disease Not only during the 1916 polio outbreak but
was popularly connected to the exchange of infected throughout the first half of the 20th century, com-
bedding and clothing (Humphreys 1992). munities closed pools, delayed school openings, and
Locals not yet touched by disease often cast a broad canceled parades. They barred children from church,
quarantine net around surrounding communities. In the circus, and theaters (Rogers 1992b, 40–43).
the absence of permanent public health officials or In the early years of the AIDS pandemic in the
institutions, coalitions of citizens and elected officials mid-1980s and early 1990s, calls for broad limitations
living in uninfected areas sometimes took up arms to or restrictions on those with HIV were denounced as
impose “shotgun” quarantines to fend off outsiders. In homophobic and lacking scientific merit. The notion
Jackson, Mississippi, residents ripped up railroad that public health and human rights were intimately
tracks leading into the city in 1897 (Chicago Daily connected took hold, challenging long-held assump-
Tribune 1897, 3). The targets of such reactive tions that, in an urgent situation, the interests of
“shotgun” quarantines were typically middle- and population health always trumped the rights of indi-
upper-class citizens with the resources to attempt to viduals. Any effort to treat people infected with HIV
flee a community touched by the disease, hoping to differently or exclude them from work, housing or
find an uninfected town. In Jackson, even the gov- care was viewed as highly stigmatizing (Oppenheimer
ernor was barred from entering “his own capital,” as and Bayer 2009). Stigma emerged as a profound threat
“the public officers had no respect of persons in to effective public health (Fairchild and Bayer 2017).
enforcing the rule” (M’Laurin Gov. 1897, 3). The outbreak of multi-drug-resistant tuberculosis
The classic American example of a race-based cor- that dovetailed with the AIDS epidemic provided an
don sanitaire—the lockdown of an entire area—comes urgent justification for imposing isolation on individ-
from San Francisco at the turn of the 20th century. In uals with active tuberculosis, an airborne disease. But
1900, the operators of a shabby hotel in Chinatown because of the ways in which AIDS had established
found Chick Gin, a local resident, dead in the hotel’s the importance of individual rights, the imperative to
basement. At the first suspicion that he died of impose limits on those who were infectious was
plague, city officials ordered the evacuation of all bounded by important legal protections for the
THE AMERICAN JOURNAL OF BIOETHICS 57

individual. Thus, AIDS helped to usher in a moment finger at a secure biological research laboratory near
in which the state was required to seriously consider Wuhan. Neither conspiracy theory is backed
the rights of individuals (Fairchild et al. 2007). by evidence.
It is remarkable, then, that in the early 1990s, after The “finger of blame” has greatly impeded the glo-
Haitian asylum seekers tested positive for HIV in bal response. Even the March 2020 G-7 summit, which
Belize and Honduras, the U.S. Coast guard began test- planned to align big powers in their response to
ing all Haitian refugees intercepted at sea for HIV. COVID-19, broke down with bitter recriminations.
The Coast Guard had already been intercepting G7 countries were unable to even issue a consensus
Haitians fleeing their country by boat and conducting statement. Why? The United States insisted the state-
shipboard screenings to determine potential eligibility ment refer to “the Wuhan virus” rather than WHO’s
for asylum. The Coast Guard transferred all who official designation of COVID-19. Europe refused to
seemed to qualify for asylum to the U.S. military base, go along with President Trump (Lee 2020). Tellingly,
Camp Buckley, on Guantanamo Bay, Cuba. to this day we call the Great Influenza Pandemic of
By 1993, more than 200 refugees who had tested 1918, the “Spanish flu,” but in reality, that pandemic
positive for HIV, along with their families, were quar- began in the United States. We never called the H1N1
antined in an overcrowded, unsanitary camp sur- Influenza pandemic of 2009, the “US flu” even though
rounded by razor wire. Some of the earliest arrivals it originated in the United States and Mexico.
had been, in 1993, interned for more than 2 years President Trump withheld funding from the World
(Fairchild and Tynan 1994). Health Organization, which amounted to $553 million
Over the course of American history, quarantines last year (Trump halts World Health Organization
and lockdowns have often targeted groups unfairly funding 2020), claiming it “very much sided with
and often on the basis of race, class, or national ster- China” in the COVID-19 response (Trump Lashes Out
eotypes (Abel 2007). Ultimately, they reflect stories of at WHO 2020). Of course, there are no “sides” in a
blame that resonate today. In some cases, like the pandemic. Yet this coronavirus pandemic has divided
actions in Chinatown and the waters off the coast of the global community. And it has deepened longstand-
Haiti, liberty-limiting measures were challenged in the ing divides here in the United States. Much of the div-
courts. In others, like the 1918 influenza pandemic ide is political but also based on class, education, and
and polio outbreaks, they reflected a broad social con- geography. But perhaps most remarkable, because of
sensus (Fairchild et al. 2020). And here there is a far the scope and scale of the COVID-19 pandemic and
more complex story that underscores the ways in the knowns and unknowns about its spread, we are
which COVID-19 reflects longstanding themes but is also seeing a transition in the ethical and legal dis-
changing the language of rights in potentially conse- course around liberty-limiting restrictions.
quential ways.
SOCIAL DISTANCING AS RESTRICTION
BLAME AND DIVISION
Although in large measure our current approach, in
One way to understand the past approach to disease which the need for procedural transparency goes with-
and containment is to read it in a story of blame and out question precisely because of historical examples
social division. From that perspective, there are key that underscore the place of the law in protecting
continuities between the past and the present. individuals or stigmatized groups from arbitrary gov-
Since COVID-19 originated in an animal wet mar- ernment action, more striking than the continuities
ket in Wuhan, it has been China and its government are the discontinuities with the past.
and people that have been at the center of global con- At the outset of the COVID-19 pandemic, ethical
troversy. Sadly, people of Asian descent have been and legal analysis of the use of quarantine was rooted
blamed and scapegoated in the United States and the in a Constitutional rights approach to containment.
West. At the same time, the two world superpowers SARS seemed to provide a relevant model. Following
have blamed the other, with the World Health the SARS outbreak in Ontario in 2003, targeted quar-
Organization caught in the middle. Conspiracy theo- antines were effective. Health officials imposed “work”
ries have been ablaze. Chinese social media has quarantines on health workers, so they could travel
swirled with the idea that the United States military only between home and hospital. Along with other
engineered the novel coronavirus, SARS-CoV-2, while traditional public health prevention measures they
social media in the United States has pointed the were credited with containing a pandemic. Yet it was
58 A. FAIRCHILD ET AL.

also impossible to deny, in retrospect, that large-scale had issued stay at home orders. And all but six had
quarantines had been too sweeping. banned mass gatherings (https://www.stateside.com/
We wrote a piece justifying reliance on precaution blog/2020-state-and-local-government-responses-
in the case of SARS, making the case that the risks in covid-19). As of April 7, 2020, some 300 million
a context of uncertainty made it necessary to err on Americans—95 percent of the population—were under
the side of containing the disease. At that time, we some form of lockdown (https://www.businessinsider.
also made a strong case for procedural due process. In com/us-map-stay-at-home-orders-lockdowns-2020-3).
2003, we wrote in the pages of JAMA, “Due process In this context in which the threat of both public
requires the right to be heard by an independent tri- health and economic catastrophe is of a scale without
bunal in a timely manner with representation by an historical precedent, traditional constitutional safe-
attorney. The US Supreme Court has noted that civil guards for these large-scale interventions appear
confinement constitutes ‘a significant deprivation of impractical. But also remarkable is that, sweeping
liberty’ that ‘can engender adverse social consequen- though they are, because nearly nation-wide social
ces.’ Although some may argue that home quarantine distancing measures focus not on individuals or
need not trigger a full-blown hearing, we believe that groups, but populations as a whole, they have a note-
anyone deprived of liberty under color of law, what- worthy equality. In response to COVID-19, cities and
ever the place of confinement, should have available a states around the country have closed all schools, res-
due process hearing. In a public health emergency, it taurants, bars, and movie theaters. No one can go to
may be necessary to confine individuals before a hear- church, out to a bar, or congregate at a sporting
ing is held, but a speedy hearing should, if requested, events. Because key federal officials and both demo-
follow. We make these observations aware of the vast cratic and republican governors across the nation
logistical complications of hearings in the event of have made persuasive scientific arguments, the major-
mass quarantines” (Gostin et al. 2003, 3234). ity of Americans have remained supportive.
That remained our position at the outset of the According to polling data released by the Pew
COVID-19 pandemic. Even as it became clear that Research Center on April 16, 2020, 65 percent of
COVID-19 represented a threat that would justify those interviewed expressed concern that opening the
even more rigorous interventions–indeed, at levels economy too quickly would allow the virus to con-
that US citizens had not experienced since 1918–the tinue spreading. This position was also held by a
approach remained one in which it was vital to care- majority of Republicans (Russonello 2020).
fully balance public health with rights to privacy and As a result, large-scale stay at home orders applic-
liberty. In the balancing process, officials should able across large geographic areas remain untested in
ensure that interventions were evidence-based, pro- the courts, though that is likely to change. It is con-
portionate, and no more restrictive than necessary. nected to political efforts in the streets.
The standard was individualized assessments of the FreedomWorks, Tea Party Patriots, and other groups
risk posed by the person whose liberty is being hostile to government intervention—some with poten-
deprived (Gostin et al. n.d.). Precisely because tial ties to President Trump’s team—are organizing
COVID-19 was more threatening, protection of indi- protests in the name of rights. Strikingly, and reveal-
vidual rights to due process were more pressing. ing of a deep divide, 65 percent of those who identi-
As late as March 2020, mass quarantines were still fied themselves as “very conservative” were concerned
viewed as too blunt an instrument that would bring that efforts to reopen the economy were moving too
too many people who do not pose a risk to the public slowly. The Facebook page of a conservative group
into its ambit. Even under a declared public health that claimed two million “likes,” posted a statement
emergency, it was hard to envision the courts uphold- that read, “heavy handed government orders that
ing a mass quarantine (Gostin 2020). interfere with our most basic liberties are certain to
Yet it also became clear that presymptomatic or do more harm than good” (Russonello 2020).
asymptomatic transmission might be surprisingly Although relatively small, in some instances, and
high. In addition to evidence that suggests that some seemingly the outcome of “astroturfing” initiatives
individuals never experience any symptoms, evidence organized by Washington conservatives rather than
suggests that up to half of those who test positive are organic, local social movements (Vogel 2020) such
presymptomatic (Kimball 2020). opposition was amplified by the White House. The
By April 17, 2020, all but nine states had ordered New York Times, in a front page story headlined,
the closure of non-essential businesses. All but eight “Trump Gives Right Wing Protestors a Megaphone,”
THE AMERICAN JOURNAL OF BIOETHICS 59

focused on the President’s efforts to press for an end become ill and die, dying at twice the rates of whites
to what he viewed as both unacceptable and unneces- and Asians in New York City (https://www1.nyc.gov/
sary limitations imposed in the name of public health. assets/doh/downloads/pdf/imm/covid-19-deaths-race-
In a tweet on April 17th, even as his health officials ethnicity-04082020-1.pdf). In Chicago, where less than
urged the nation to lift restrictions in a slow, meas- one third of the population is African American, 72.2
ured fashion, President Trump called upon states to percent of those who had died were Black. In
“LIBERATE” their citizens from guidelines that Louisiana, where Blacks represent less than one third
entailed social restrictions on the economy. of the population, 70 percent of the pandemic-related
Thousands of Michigan protestors chanted “lock her diseases were among African Americans (Eligon
up” in reference to Democratic Governor Gretchen 2020). Working class white Americans in industrial
Whitmer. Liberate Minnesota, a St. Paul-based group, and, particularly, rural areas may be at similar risk.
demanded the end of what they called Democratic Recent data underscore that while infections and
Governor Tim Walz’s “Lockdown!” by protesting at deaths are not yet as high, the rate of growth in non-
his home. Republic governors, too, felt the heat of metro areas (both those adjacent to metro areas and
small but vocal public protests. In Columbus, Ohio, those that are not) is alarmingly high. The rate of
protestors took to the state house. Tightly packed nearly doubling nearly every two days far exceeds the
together, they pressed against the doors of the state rate of growth in metro areas, where it is doubling
capital to challenge Republican Governor Mike every four days (Goetz et al. 2020).
DeWine’s measured, systematic steps that culminated So, while social distancing, in theory and practice,
in closing all non-essential businesses and a stay at operates equally in that it applies to the entire popula-
home order. Back in Colorado, hundreds of protes- tion rather than subgroups, it also operates in a con-
tors, only some in masks, rallied at the state capital. text characterized by profound inequalities and also
“End the virus, not the economy” and “Fear is the ways that are profoundly unequal. Moreover, many
real virus” was the theme in placards and chants.
people sheltering in place are vulnerable or historically
Underscoring the divide, healthcare workers wearing
disadvantaged, including the elderly, those with
face masks and scrubs protested. In contrast to the
chronic conditions, the uninsured, undocumented
evening cheers that healthcare workers receive in New
immigrants, and communities of color. In other
York City, in Colorado protests honked horns
words, stay at home orders may apply to all, but the
and hurled insults at those on the front lines of
burdens of those orders are far from fairly distributed.
the response (Protest in Washington, DC 2020). The
There are other compound inequities playing out.
President empathized with demonstrators across the
Perhaps the highest risk venue for SARS-CoV-2 trans-
nation and characterized social distancing measures as
mission are congregate settings like nursing homes,
“too tough” (Shear and Mervosh 2020).
group homes for persons with mental disabilities, jails,
The New York Times has reported lawyers with
prisons, and homeless shelters. We have seen infection
connections to socially conservative groups or causes
have filed lawsuits aimed at governors. Some are nar- sweep through these settings taking many vulner-
rowly focused and aim to lift bans on church services. able lives.
Others target democratic governors. In Michigan, Much of the recent debate among bioethics has
Governor Whitmer’s order banning vacation home focused on questions of fair allocation of ventilators
travel and gatherings that extend beyond household and treatment (Troug et al. 2020). But the more fun-
members has been challenged in a lawsuit. Wisconsin damental public health issue has been largely
Republicans have sued to block governor’s orders to neglected. Consider, for example, the plight of home-
extend social distancing orders. Attorney General less people. They literally have nowhere to shelter, to
William Barr has suggested the Justice Department protect themselves. On the streets, they are met by
may support such legal challenges (Vogel 2020). police telling them to shelter in place. There are few
passersby for whom to ask for help. So, as a result
they resort to shelters, which are now overcrowded at
SOCIAL DISTANCING AS RIGHT historic high occupancy, beds inches or feet apart, a
Despite the population-wide nature of the public “virus time bomb.” As one homeless man told the
measures adopted, the patterns of disease and death New York Times, “If this is a worldwide pandemic, we
have reflected longstanding social inequalities. Blacks should have a fair chance to protect ourselves. We
and Hispanics are overrepresented among those who don’t really have that chance” (Stewart et al., 2020).
60 A. FAIRCHILD ET AL.

Remarkably, reflecting the extent to which conser- perspective of both economic and physical health.
vatives support of social distancing measures, when Economists predict an 8 percent decline in GDP if
the American Enterprise Institute released a roadmap spread of the virus is contained but a 13 percent
for reopening America on March 28, it argued that decline if left unchecked (McKinsey and Company
“measures will need to be in place in each state until 2020). And in a context in which effective social dis-
transmission has measurably slowed down and health tancing measures have left herd immunity low, mod-
infrastructure can be scale dup to safely manage the els are predicting a relatively swift resurgence of
outbreak and care for the sick.” Although the aim was outbreaks if social distancing measures are lifted in
to create a framework for avoiding a return to sweep- anything but a carefully staged fashion (Stanford
ing measures, it stressed that, moving forward, University 2020). Indeed, the Director of the CDC,
“massively scale[d] contact tracing and isolation and Dr. Robert Redfield, has warned of a second deadly
quarantine” was a must. And it suggested that those wave in the fall, when COVID-19 and seasonal influ-
who would be called on to make sacrifices had rights, enza intersect (Sun 2020).
not to resist, but to expect “comfortable, free facili- Not only lawsuits and astroturfing but also the
ties … for cases and their contacts who prefer local potential spread of the virus to areas thus far not
isolation, quarantine, and treatment away from heavily impacted (Elving 2020) may transform the
home.” Although, they argued, individuals should not nature of the political debate when it comes to fram-
be forced into isolation or quarantine away from ing social distancing as an intrusive measure to be
home, the framing underscores how far the pandemic resisted, or as a right to be extended and defended. In
had shifted thinking in a think tank historically either case, however, rights are squarely at the center
opposed to government intervention (Gottlieb, et all; of the evolving social distancing debate.
American Enterprise Institute).
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