Professional Documents
Culture Documents
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Ethics and Neurodiversity
Edited by
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Ethics and Neurodiversity,
Edited by C.D. Herrera and Alexandra Perry
All rights for this book reserved. No part of this book may be reproduced, stored in a retrieval system,
or transmitted, in any form or by any means, electronic, mechanical, photocopying, recording or
otherwise, without the prior permission of the copyright owner.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CONTENTS
Introduction ................................................................................................. 1
What’s The Difference?
C.D. Herrera
Chapter One............................................................................................... 18
Noise and Metonymic Thinking in the Philosophy of Arthur
Schopenhauer: Some Benefits of Retrospective Psychiatric Diagnosis
Alexandra Perry
Chapter Four.............................................................................................. 67
Mindblindness: A Troubling Metaphor?
Janette Dinishak
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
vi Contents
William Simkulet
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Ethics and Neurodiversity vii
Notes........................................................................................................ 286
Contributors............................................................................................. 295
Index........................................................................................................ 300
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
ACKNOWLEDGMENTS
Winter, 2013
C. D. Herrera and Alexandra Perry, Society for Moral Inquiry
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
INTRODUCTION
C.D. HERRERA
Overview
There are trivial differences between people, just as there are what we
might consider trivial labels and offenses to go along with those differences.
Nevertheless, trivial differences are at least noticeable (as when we
routinely distinguish between those who have a sense of humor and those
who do not). They are noticeable enough to raise important questions
about which differences we are supposed to honor with a label, and what,
if anything, should be said when we do. I would have a hard time
convincing people that you had offended me when you claimed that I had
a bad memory. We typically make light of such things. But what if my bad
memory is due to some disability that I have had since I was a child? In
another setting, what if I say that you make me uncomfortable when you
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
walk over and begin speaking to me? It would be hard to fault me for that,
though I might not be given this latitude if I announced that it is not you,
but your kind that makes me uncomfortable.
Questions about differences and labels are no easier to avoid than
human interaction is, and it is hard to envision how we could survive
without both. In the settings that I just sketched, the point is to show that
there are things about those differences that we're not supposed to say, and
as some advocates for a more inclusive society might add, things we're not
supposed to think either. Interestingly, the warnings about how careful we
should be to respect differences have a familiar ring to them, as do the
warnings that we should be on the lookout for differences in the first place.
We are used to hearing that labels lead to or are a form of exclusion,
and that this is especially wrong when the differences have to do with
ethnicity or gender, for instance. Most of us probably also have a fairly
good grasp of the reasons for thinking that labels can cause harm. This is
easy to understand where skin color is concerned. Among the things that
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
2 Introduction
was wrong with the rules for segregated water fountains in the U.S., for
instance, was the fact that they left members of both groups to wonder
what they had done to merit such exclusive treatment. One cannot choose
a skin color, we might explain. Similar explanations would account for the
improvement in attitudes which led to more females being able to enter the
workplace. One can now change gender, but not easily, and this does in
any event only lead to new questions about that difference.
In instances like these, the question is not whether differences exist,
but what society ought to make of them. The good news is that many now
think that differences should be irrelevant for purposes of choosing
employees or allowing people to hydrate. Even the most cynical among us
can find some encouragement in the fact that society is taking more
responsibility for clarifying the issues related to difference, inclusion,
accommodation, and justice. But we are less accustomed to discussing
differences that seem to relate to cognitive abilities or behavioral traits,
and I will try to say a bit about those here.
As an introduction to the essays in this anthology, I want to address the
following problem. We take it on faith that it is better to live in a world
where no person has to feel excluded, and one suspects, where fewer
people need to feel uncomfortable. But the challenge has always been one
of knowing how we can make good on such a lofty promise. I will try to
pose questions rather than supply answers. I am not convinced that the
answers we need exist.
My goal is to take a skeptical view, and suggest ways that we might
rethink the philosophical side of our labeling routines. If I am correct, we
are too casual about the fact that the same person who devotes her life to
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
What’s the Difference? 3
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
4 Introduction
make one of the most visible distinctions, that between rational beings and
those, such as animals, that we think act only on instinct or genetic
momentum. There is a great deal of wishful thinking in our preoccupation
with using rationality as this dividing line:
If human equality is true, it is not in respect to any host property we can
see or touch; it is, as we have urged, because all rational persons share
uniformly the capacity to be morally good. But that is believable if, first,
all rational humans have a uniform capacity freely to strive to discover and
realize the correct way and, second, if this striving works towards a
person's moral self-perfection (Coons & Brennan, 1999, 121).
Even where we can say that our desire for this kind of taxonomy is
itself made on more rational grounds, it has always been hard to avoid the
political or social bias. The fact is that we very often want to live
alongside others whose behavior can in some respects be understood, if
not predicted. And we know what type of behavior we would like to
follow from this common rationality, and that is not limited to the
behaviors used to solve math problems or find the best price on new
furniture.
The sentiment behind wanting to use rationality as a baseline does
seem to be aimed in the right direction, that of trying to align different
perspectives to a common morality. But there is more than one rationality
to speak of, and there are still many more cognitive or behavioral
differences that, taken in themselves, do not immediately bear on moral
issues or even a vague sense of a social good. There is, for this reason, no
solution to our problems in the systematic treatment of unequals, or those
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
who we feel are unequal, as though they are equal. A strategy where we
talk of embracing difference without making value judgments about which
ones should take priority would have us acting" as if we were so impressed
by the fact that we could not unscramble scrambled eggs that we denied
that any legitimate distinction could be made between the ingredients"
(Cooper, 1981, 65).
There is also the possibility that in our attempt to avoid privileging one
claim of injustice over another, we would reduce complex moral issues to
the equivalent of slogans ("celebrate difference!"). Slogans, we know from
the history of social reform, tend to be bundled tightly with accusations
and moral obligations, both so vague that society finds it almost
impossible to respond to them in a way that does not leave everyone
involved vulnerable to the next round of slogans. It seems, then, that we
must draw some lines when we weigh claims about injustice, or when we
talk of goals like inclusion. If we don't, we are going to be hard-pressed to
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
What’s the Difference? 5
defend the solutions that we do arrive at. It does not make much sense if
we, in an honest attempt to get serious about the full range of offense
claims, work from a model of justice that will in the end leave us able to
respond only to a few of them. This guardedly skeptical outlook follows
from the belief that any account of justice worth having is going to ask that
we make tough choices in light of our increasing stock of knowledge. The
outlook is rationalistic as well, in the sense that reform is needed because
in almost everything we do, we risk misunderstanding the motives, interests,
and abilities of others.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
6 Introduction
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
What’s the Difference? 7
idea that recognizing differences often means acknowledging that there are
behaviors we prefer, personality traits that we find endearing, and those
that we would rather avoid at all costs. If you are delivering a public
lecture on the need to embrace difference, and I choose that moment to
throw a pie in your face, it is hard to imagine that I would get much
sympathy if I explained that, as it happens, this is just a disposition that I
was born with. It is about time that you learn to be more accommodating, I
might add.
To address the moral issues that scenarios like this one (minus the pie-
throwing) raise, we will have to grant that the potential for offense exists
wherever our conversations rely on the distinctions that we feel we must
make between groups of people, or the attributes that we associate with
individuals in those groups. We might decide that this means that the
Members of the Pie-Throwers United! movement will have to understand
that, in some cases, they must live with the fact that the differences which
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
8 Introduction
they use to self-identify give others reason to want to find another place to
conduct their lectures. "They have their place, and we have ours," we
might say, if we wanted to put a spin on a very conventional interpretation
of justice or personal liberty.
The trouble this time is that history reminds us that we know better.
We know that in our conversations about difference it can appear that
separate but equal is often too separated and not very equal. There is also
the fact that, some would say, we are learning more about how many of
the differences can be modified, treated, and even eliminated. This is
another point on which it is difficult to make analogies to, say, ethnic
differences, but it is also not something that gives us very much traction
for reform. The prospect that things like differences in emotional reaction
might be altered through various means does not tell us very much about
whether they should be. If anything, that prospect delivers new puzzles
about the boundaries of individual and community. If you notice my
anxiety at parties, can you argue that I need treatment for that, so as not to
upset the other guests? Should Uncle David seek medication that will
block his urge to share smutty thoughts during family gatherings? Why
can't he reply that the rest of the family should not impose their standards,
and their labels, on him?
There are several ways to understand the tension in scenes like these.
But I am interested in the idea that our feelings about cognitive or
behavioral differences are not always reliable guides to what an
appropriate reaction would be. I think that this unreliability is due in part
to the deep-seated ambiguity about what it is that qualifies as a difference
(a word that can itself function as a label), and the way that our reactions
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
to difference, and our sense that we are different, are in the end expressions
of feelings. It is a truism that one person can never share another person's
feeling the way the two might share a park bench, so to the extent that the
most common way to express and compare those feelings is to rely on
language, we can answer calls for social reform by committing ourselves
to better understanding the labels that we use when we describe differences.
When we try to understand labels, differences, and reactions to both,
we should assume that there is not much that is new or simple in the
puzzles related to our labeling. Questions about how we should describe
and understand differences have been asked, since ancient times, within
the larger conversations about human flourishing and what it can tell us
about how to structure society. There are questions which have to do with
the ontological status of the categories that we attach the labels to. Is there
a real line between the normal and the deviant, or only an imagined,
constructed one? Can a person be in one category while experiencing some
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
What’s the Difference? 9
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
10 Introduction
benefits to us: if nothing else, the relationship would have helped us know
when we were playing the games correctly. The labels might also have
met the metaphysical test of referring to real divisions among groups and
between individuals. Along these lines, it is also easy to think that as
children we brought to our games of Cops and Robbers (or Afternoon Tea
Party) roughly the same types of cultural resources that adults find
necessary in social contexts. Admittedly, there is an important difference
in that, as adults, we place a high value on reflection when we are in a
specific role or when we need to assign someone (or some group) a label.
And as adults we do spend a great deal of time wondering which of our
linguistic references needs to be accurate, and which moral judgments
should apply to the conduct of our games. But it nonetheless seems
plausible to think that we had a vague sense of these things in our childhood
games.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
What’s the Difference? 11
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
12 Introduction
play. On the contrary, it is probably true that games like cops and robbers
have never been terribly sensitive to the realities of police work or the self-
image of robbers. But the thought experiment can test intuitions that we
have about labels like "autistic" or "bipolar," for instance. If we don't think
that children should act out the roles that go along with such labels, it is
worth asking why. It is noteworthy also that parents do ask similar
questions about whether games of cowboys and Indians are insensitive
toward certain groups too. And there the idea is that it is not enough to
draw on what we think we know about our social world and its linguistic
counterpart. The point is to challenge that knowledge. It would be a
valuable lesson in itself if children could grow up thinking that some
labels are ruled out today as holdovers from a time when we did not
understand differences as we do now.
I have no illusions that these would be easy lessons to share with
children either. The difficulty in talking about such things with adults
suggests otherwise. In any event, there seems as much of a risk in thinking
that children don't reflect as much as we might want them to about labels
as there is a risk that we adults will come away from such hypotheticals
thinking that we are better at that reflection than we really are. To that end,
we would want the children to understand that, as vague as our labels can
be, it is rare that we know for sure how they might affect the people we
label. We would want to explain that tossing questions about roles back
and forth is a complicated, serious game in itself because it forces us to
poke around in so many other areas of private and public life.
This dynamic occurs when we focus on things like the different
emotional reactions that people have to environmental stimuli. We
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
probably think that we have a good idea of what to tell children about how
they should react towards police officers (or cowboys and Indians).
Shouldn't we be able to explain to someone who asks what should be done
when a person in our midst expresses sadness in a way that we don't
expect? We might think that something is amiss if a person laughs during
a funeral ceremony. The trouble is in getting clear on what the wrongness
involves, or how we should deal with the person who finds humor in that
situation. The lines quickly blur when we try to describe the emotional
reactions and judge their social value. If this were not the case, it would be
a simple task to explain why we think that it is right that people be moved
when looking at, say, photos of the victims of a natural disaster, and wrong
that they be moved by looking at photos of their neighbors undressing.
We might imagine how a student could feel an emotional connection
with a particular culture that he has learned about from his teacher. The
student might then try to dress and speak like the people he associates with
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
What’s the Difference? 13
We Should Talk
These sketches are meant to get at question like the following. What is
and what should be happening when we apply labels and make choices in
light of them? Why is one act of ranking people acceptable and another is
exclusionary or discriminatory? What should we make of a girl who
attempts to model her behavior on the behavior of people she thinks
exhibit symptoms of depression? Or another student who admires what he
takes to be deaf culture, and announces that he will respond to others only
if he can lip-read, for example? Would we judge these students the same
way we might a student who is enamored with what he thinks are aspects
of the culture of the Scottish Highlands, and takes to wearing a "kilt" to
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
school?
Such questions seem to reveal the two elements at the core of many
labels: a claim that X belongs in a certain group, and a claim that one
ought to feel a certain way about that. The labels let us distinguish: we
carve the social world with our words, and then, standing back, we rate our
efforts. But as useful as these distinctions are, our rules of language use
leave out an account of whether the same moral rules, for instance, which
allow us to tell children not to accept a ride home from someone we would
label a stranger, will let us decide whose children get to sit next to ours on
the bus. When we make social distinctions, we usually do so in a way that
will allow us to discriminate based on the qualities that we think a person
ought to possess in a specific context, and based on the behaviors that we
ourselves value in it.
To return to the skeptical point that I mentioned at the start, it seems
that loaded into these distinctions are cultural values that might or might
not have rational backing. This suggestion, that our use of labels outstrips
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
14 Introduction
our ability to justify ourselves, will for some require an explanation. There
are some who would argue instead that, as it often happens, their labels
have a self-contained justification, one that somehow immune from
rational reconstruction. I have occasionally heard something to this effect,
and the argument goes like this. Labels are to be fought over like turf, and
the claim to that territory will be established by those who truly understand
the real interests of the who are labeled. Where those who are labeled lack
political or economic clout, it is necessary to establish spokespersons,
institutions, and social movements in support of the reform of language,
and in the name of justice. This could then be seen a positive development,
a way of giving a voice to those who would otherwise have been left out
of our discussions about difference.
In other cases, however, this idea that, once established in their proper
social domain, labels are beyond moral criticism, can be an invitation to
demagoguery and still more discrimination. It is as if the spokespersons
are under the impression that we can speak of inclusion while we build
even more fences. Activists who approach problems related to difference
this way often have a bone to pick with scholars and other researchers who
would recommend that we understand labels as dynamic reflections of the
changing values in society. For those researchers, the way to arrive at
proper balance of difference and discrimination is to update our labeling
routines using scientific or clinical knowledge.
The advocates of this rationalistic method sometimes overstate the
chances of success. As I have tried to explain, whether there is a rational
justification for our labeling routines should not be the question. The better
question is how open to examination our reasoning is, and where we can
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
look for help when we want to validate it. If one agrees that this is
important, then it would make sense to also examine our methods of
arriving at conclusions about the social world, since that is where the
labels and our routines are. I think that when we look there, we will find
more pluralism and change than we will stability and consensus. Questions
about offense, labels, and justice are controversial because so many of
them turn on more fundamental disputes about how well they should hold
up to scientific and moral scrutiny.
I am not sure that there is a way around the responsibility we have to
continually reinterpret labels. It seems reasonable to assume that we keep
improving our ability to identify one person as belonging to a particular
group (and most people as belonging to several), for instance, just as we
can identify behavior or attributes that we propose as being better or
worse, more advanced, and so on. And if we want to understand how
principles of justice can apply to those people, we must take seriously the
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
What’s the Difference? 15
idea that there are empirical characteristics that the sciences might study,
and abstract or conceptual details that philosophy might examine.
What worries some critics is that neither science nor philosophy can
claim priority within the process itself. They warn that since these and
other disciplines have not always been good at self-policing, we should not
trust the scholars to reform our thinking about differences. The trouble is,
when we talk about inclusion, it is unclear where the discussion should
turn if not in the direction of philosophical and scientific territory. The
hope is that science, philosophy, and other speculative disciplines like
fiction can offer checkpoints for our attempts to get clear on what it is that
people are capable of, interested in, and just as important, how we ought to
react to whatever that is. If we assume that the talks that we should be
having will concern what constitutes "normal," for example, any consensus
will require judgments that are themselves informed by scientific accounts
of things like human physiology. In that case too, the only live issue then
is how much philosophy and science we think we need.
In some quarters, drawing those lines is as difficult as it is to know
what should count as a meaningful discussion about justice. Not long ago,
I participated in a panel discussion about, among other things, what should
be done to improve the treatment of cognitively impaired patients. Things
looked promising because the room was packed with scholars and
specialists from across the disciplines, assembled for a day-long conference
on neuro-diversity. But this discussion was off to a bad start when the first
panelist worked a number of jokes into her introduction, announcing at
one point that "when you meet one moral philosopher, you've met them
all." (This was supposed to play on a popular slogan which refers to
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
16 Introduction
explain what we mean by such terms. When using labels we will have to
come to an understanding, of how far we want to welcome some kinds of
behavior in society and restrict other kinds. And regardless of our
disciplinary backgrounds, we should be secure enough in the knowledge
of our own limitations to bring to these kinds of questions a welcome
skepticism, not just about the possible answers, but to the way that we, as
scholars, choose to break the questions off from the surrounding context.
We can make our skepticism work for us if we continually look for ways
to improve our conversations about what it means to not only live
together, but talk about each other as well.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
What’s the Difference? 17
References
Agam-Segal, R. (2009). Contours and Barriers: What Is It to Draw the
Limits of Moral Language? Philosophy, 84 (4), 549-570.
Coons , J. E. & Brennan, P. M. (1999). By Nature Equal: The Anatomyof a
Western Insight, Princeton: Princeton University Press.
Cooper, N. (1981). The Diversity of Moral Thinking. NY: Oxford
University Press.
Oberdiek, H. (2001). Tolerance: Between Forbearance and Acceptance.
Lanham, MD: Rowman & Littlefield.
Strawson, G. (2007). Episodic Ethics. In Hutto, D. (ed), Narrative and
Understanding Persons, 85-115. NY: Cambridge University Press.
Temkin, L. (1993). Inequality. NY: Oxford University Press.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CHAPTER ONE
ALEXANDRA PERRY
widely debated, and this type of diagnosis is often done using historical
methods by looking at biographical or autobiographical accounts of
authors and historical figures. Historical methods were used, for example,
to retrospectively diagnose Frédéric Chopin with cystic fibrosis and
bipolar disorder (Majka, 2003; Karenberg 2007).
Shortly after his death, Chopin’s autopsy report was lost, and so
medical historians and geneticists have used the medical records of
members of Chopin’s family to construct a genetic profile for the
musician. Evidence that his father and two of his sisters had died
prematurely from respiratory illnesses led medical historians to believe
that the family might have carried the CTFR gene, which is often linked to
Cystic Fibrosis and Tuberculosis.
Accounts of Chopin’s melancholic periods offered by his pupils and
friends in letters and eulogies have led historians to believe that the
musician also likely suffered from bipolar disorder, and perhaps from
hallucinatory disorder as well (Vasquz, 2011). Relatively conclusive
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Noise and Metonymic Thinking in the Philosophy of Arthur Schopenhauer 19
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
20 Chapter One
superior to theirs. Yet in fact this is just our society’s way of thinking: true
for us and our world, but not necessarily true for other societies and other
times. (Cunningham, 2002, 14).
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Noise and Metonymic Thinking in the Philosophy of Arthur Schopenhauer 21
Metonymical Thinking
The term “metonymic” refers to a rhetorical device similar to a
metaphor called “metonymy.” Metonymy, as figurative language, is the
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
22 Chapter One
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Noise and Metonymic Thinking in the Philosophy of Arthur Schopenhauer 23
affair); instrumental (the phrase “live by the sword, die by the sword” uses
the word “sword” as metonymical for “violence” because it is a tool or
instrument of violence); or associatively (“locker room behavior” might
refer to the kind of gender-specific joking or bonding that might
commonly take place in a gym locker room).
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
24 Chapter One
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Noise and Metonymic Thinking in the Philosophy of Arthur Schopenhauer 25
be perceived.
In discussing the concept of the self, Schopenhauer proposes a duality
that mirrors his view of the world. He argues that there are two kinds of
knowledge. The first, intuitive knowledge, is not representational, but
rather a view of the body “in-itself.” Intuitive knowledge, then, is an
analog to the will. The second form of knowledge, abstract knowledge, is
representational, and is analogous to the world as idea. So, while the
world exists as will and idea, the self exists as intuition and abstraction or
representation.
While this metaphysical theory is not extreme in its own right,
Schopenhauer’s proposal that this dual-nature of the self be extended to
our understanding of the world is one that is often viewed with some
skepticism (Jacquette, 2008, 73). Schopenhauer “proposes that this dual
knowledge and dual-sidedness of the self be extended to the world as a
whole” and that “insight into one’s own nature as will thereby provide us
with an analogical understanding of the inner nature of the World as Will”
(Shapshay, 2010, 799).
This generalization from self to world, individual to collective, is
typical of the philosophical moves that Schopenhauer makes in using
phenomenological accounts. Jacquette (2008) claims that Schopenhauer’s
analogy falls short because:
“[P]erceptual knowledge of the body is not merely analogous to knowledge
of the world as representation as a whole, and hence not a basis for
analogical inference, but is rather a focus of perceptual knowledge directed
specifically to the individual knowing subject’s body.”
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
26 Chapter One
Thus, since he aimed at finding for every empirical function of the faculty
of knowledge an analogous a priori function, he remarked that, between
our empirical perceiving and our empirical thinking, carried out in abstract
non–perceptible concepts, a connection very frequently, though not always,
takes place, since every now and then we attempt to go back from abstract
thinking to perceiving. We attempt this, however, merely to convince
ourselves that our abstract thinking has not strayed far from the safe
ground of perception, and has possibly become somewhat high–flown or
even a mere idle display of words, much in the same way as, when walking
in the dark, we stretch out our hand every now and then to the wall that
guides us. We then go back to perception only tentatively and for a
moment, by calling up in imagination a perception corresponding to the
concept that occupies us at the moment, a perception which yet can never
be quite adequate to the concept, but is a mere representative of it for the
time being (Schopenhauer, 1818, 449).
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Noise and Metonymic Thinking in the Philosophy of Arthur Schopenhauer 27
one resonates with and thus gains insight into the essence of these
emotions—regardless of where, when, why, and in whom they occur... It is
not that such symphonic music is felt upon reflection to be like or similar
to the vicissitudes of blind willing, just as Juliet is felt to be like Romeo’s
sun, to play the kind of role in his life that the sun plays for all living
creatures. Rather, music is, according to Schopenhauer, the most direct
expression of the will a human being can experience, seen through the
lightest of veils—in time, but outside of space and distinct from particular
motives, and without the distortions created by the subject’s own willing.
(Shapshay, 2008, 219)
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
28 Chapter One
argument. But there were other ways of putting things in a nice order.
And that was why I had Good Days and Black Days. And I said that some
people who worked in an office came out of their house in the morning and
saw that the sun was shining and it made them feel happy, or they saw that
it was raining and it made them feel sad, but the only difference was the
weather and if they worked in an office the weather didn’t have anything to
do with whether they had a good day or a bad day (Haddon, 2003, 47).
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Noise and Metonymic Thinking in the Philosophy of Arthur Schopenhauer 29
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
30 Chapter One
Bartleby is not typical, preferring not to write for his employer yet
continuing to show up to his job each day, putting in longer hours than
anyone else in the office.2 The narrator seems to oscillate between
reverence and revulsion for Bartleby, but in either case views Bartleby as
residing outside of the norms. As the story ends, the narrator leaves his
readers with the following commentary on Bartleby:
Conceive a man by nature and misfortune prone to a pallid hopelessness,
can any business seem more fitted to heighten it than that of continually
handling these dead letters, and assorting them for the flames? For by the
cart-load they are annually burned. Sometimes from out the folded paper
the pale clerk takes a ring: --the finger it was meant for, perhaps, moulded
in the grave; a bank-note sent in swiftest charity: --he whom it would
relieve, nor eats nor hungers any more; pardon for those who died
despairing; hope for those who died unhoping; good tidings for those who
died stifled by unrelieved calamities. On errands of life, these letters speed
to death. Ah Bartleby! Ah humanity! (Melville, 1853)
As Aaij (1999) points out, “...the narrator is wholly given over to his
poetic imagination--he does not answer to us exactly how Bartleby stands
for humanity.” It is not clear, however, how Melville or the narrator saw
Bartleby as metonymically related to humanity. Perhaps this last
paragraph might be clarified a bit if the narrator had made a claim that
Bartleby was representative of how society ought to be, but it is not clear
how he represents society as such. Rather, this seems to be an example of
an atypical metonym, one in which the user felt a true connection between
two things but did not take account of how unconventional this metonym
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
actually was.
Literary critics have also cited some of Melville’s other short stories
and novels, such as The Paradise of Bachelors and the Tartaus of Maids
(Melville, 1855), and Pierre: or, the Ambiguities (Melville, 1852), as
using metonym in atypical ways. In both cases, Melville makes references
to women in ways that illustrate complex metonymical thinking, and his
contrasted is contrasted with the more typical metonymical use of
Hawthorne (Levine, 2008; Dimock, 1997).
The use of metonym in Moby Dick (Melville, 1851) has also been
noted as atypical and open to multiple interpretations (Reed, 2005).
Scholars have cited Melville’s use of “whiteness” in describing the whale,
and also the use of whalebone to replace Captain Ahab’s formerly ivory
prosthetic leg as examples of atypical metonym (Taylor, 2011). Other
indications of autistic experience, such as a strong interest in details
related to a particular and narrow interest have also been observed in Moby
Dick. The level of detail with which Melville describes whales and the
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Noise and Metonymic Thinking in the Philosophy of Arthur Schopenhauer 31
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
32 Chapter One
the behaviors of others, then he or she may ascribe his or her own mental
states to others. Schopenhauer, it seems, does this in his relation of
“genius” to his own view of metaphysics. Similarly, Melville illustrates
this kind of ascription in his use of metonym. He assumes, for example,
that his readers will understand the metonymic relationship between
Bartleby and humanity when this relationship is not as straightforward as
he seems to think that it is.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Noise and Metonymic Thinking in the Philosophy of Arthur Schopenhauer 33
woeful and disastrous, cutting his thought asunder, much as the executioner’s
axe severs the head from the body. (218)
Sensory experiences, like those that Grandin points out, are commonplace
across the spectrum (Klintwall, 2011). Further still, Schopenhauer again
demonstrates the ascription of his own mental states to others, a move that
is associated closely with autism. He writes:
There are people, it is true- nay, a great many people- who smile at such
things, because they are not sensitive to noise, but they are just the very
people who are also not sensitive to argument, or thought, or poetry, or art,
in a word, to any kind of intellectual influence. The reason of it is that the
tissue of their brains is of a very rough and coarse quality. On the other
hand, noise is a torture to intellectual people. In the biographies of almost
all great writers, or wherever else their personal utterances are recorded, I
find complaints about it; in the case of Kant, for instance, Goethe,
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Lichtenberg, John Paul; and if it should happen that any writer has omitted
to express himself on the matter, it is only for want of an opportunity (216).
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
34 Chapter One
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Noise and Metonymic Thinking in the Philosophy of Arthur Schopenhauer 35
on autism and might also inform the decisions that the patient’s caretakers
make (Perry, 2012).
One problem with views like those of Hacking and McGeer is that,
perhaps because of the ability that autistic stories and narratives have to
transform public understanding of autism, bias-free accounts of autistic
experience are hard to come by. Narratives and stories might support or
be written from the point of view of the recovery movement, which views
autism as a disorder likely caused by vaccine damage or environmental
factors. Narratives might also support the views of the neurodiversity
movement, which views autism as a naturally occurring human difference.
Dramatizations of Autism like the movie Adam, or the television show
Parenthood for example, feature autistic characters who want to be
accepted for their differences, and who try to help others understand
autistic experience. This is also true of a character in the novel The Speed
of Dark. In movies such as Rainman or Mercury Rising and in books
such as The Girl with the Dragon Tattoo, and The Curious Incident of the
Dog in the Night-Time, however, characters with autism are portrayed as
struggling against a disorder that leaves them struggling and, in extreme
cases, unable to engage with their environment. The movie Mozart and
the Whale takes on this polarity and features two characters. One
character is proud of being on the spectrum while the other tries to be
“normal” and keep his diagnosis from his co-workers and employers. The
movie illustrates the tension between the two characters and the positions
that they represent. Autobiographies by those on the spectrum are often
faulted for the same bias and one-sidedness.
Given the current climate surrounding autism, narratives and stories of
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
autism written today are often biased to the point of being useless.
Though Cunningham’s objections to retrospective diagnosis certainly
make the use of historical methods to diagnose autism risky, one
advantage that the retrospective diagnosis of historical figures might offer
is that they were undiagnosed while they were living. If Schopenhauer
were writing today he might feel the pull to downplay his natural aversion
to noise and to condemn those who had caused the noise in the first place
citing noise-aversion as a valuable human difference. Likewise, if
Schopenhauer had been brought up under the recovery movement
paradigm, he might be compelled to view noise-aversion as pathological,
something that set him apart from the world. As it stands, Schopenhauer
was undiagnosed, and so clinicians and the general public might make use
of his philosophy to understand autistic thought patterns and of his
introspective accounts to understand the degree to which sensory
disturbances might affect autistic functioning or experience.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
36 Chapter One
References
Abel, D. (1969). Black Glove and Pink Ribbon: Hawthorne’s Metonymic
Symbols. The New England Quarterly 42(2) pp. 163-180.
Bredin, H. (1984). Metonymy. Poetics Today 5(1) pp. 45-58.
Brown, J. (2010). Writers on the Spectrum
—. (2010). Writers on the Spectrum: How Autism and Asperger Syndrome
have Influenced Literary Writing. Philadelphia: Jessica Kingsley
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Publishers
Chew, K. (2008). Fractioned Idiom: Metonymy and the Language of
Autism. In Autism and Representation, ed. Osteen, M. New York,
NY: Routledge. pp. 133-144.
Cunningham, A. (2002). Identifying Disease in the Past: Cutting the
Gordian Knot. Asclepio 54: 13-34.
Dimock, W.C. (1997). Reading the Incomplete. In Melville’s Evermoving
Dawn: Centennial Essays, John Bryant and Robert Milder, eds. Kent,
Ohio: Kent State University Press, 99-118.
Dolis, J. (1984). Hawthorne’s Metonymic Gaze: Image and Object.
American Literature 56(3) pp. 362-378.
Fitzgerald, M. (2005). The Genesis of Autistic Creativity.
Garrard, P., Maloney, L., Hodges, J., and Patterson, K. (2005) The effects
of very early Alzheimer's disease on the characteristics of writing by a
renowned author. Brain 128(2), 250-260.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Noise and Metonymic Thinking in the Philosophy of Arthur Schopenhauer 37
Melville, H. (1852). Pierre: or, The Ambiguities. New York: Harper &
Brothers.
—. (1853) Bartleby the Scrivener: A Story of Wall-Street.
—. (1855). The Paradise of Bachelors and the Tartarus of Maids. Harper's
New Monthly Magazine, Vol. 10, 670-678.
Mitchell, P. (2011). Retrospective Diagnosis and the Use of Historical
Texts for Investigating Disease in the Past. International Journal of
Paleopathology 1(2), 81-88.
Murray, S. (2008). Representing Autism: Culture, Narrative, Fascination.
Liverpool, UK: Liverpool University Press.
Perry, A. (2012). Autism Beyond Pediatrics: Why Bioethicists Ought to
Rethink Consent in Light of Chronicity and Genetic Identity. Bioethics
26(5), 236-241.
Reed, J. (2005). The Gentleman in the White Waistcoat: Dickens and
Metonymy. Style 39(4), 412-426.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
38 Chapter One
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CHAPTER TWO
EQUALITY, CAPABILITY,
AND NEURODIVERSITY
DOUGLAS PALETTA
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
40 Chapter Two
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Equality, Capability, and Neurodiversity 41
morality, the government should not prioritize one set of goods or values
over another. Rather, politically we should be concerned with what
everyone values. Rawls called these primary social goods which “are
things it is supposed a rational man wants whatever else he wants”
(Rawls, 1999, 79). These goods are unique in being all-purpose means
and include things like rights, opportunities and money. Regardless of
what someone values, these are the kinds of resources that allow any
citizen to develop and pursue what they think it means to live a good life.
Ensuring citizens have equal access to primary social goods thereby
respects everyone’s standing as agents in a scheme of social cooperation.
While this traditional paradigm works well when idealized, the account
sidesteps issues of neurodiversity in at least two ways: one methodological
and one more substantive. Methodologically, Rawls sets out to determine
“what is the most appropriate conception of justice for specifying the
terms of social cooperation between citizens regarded as free and equal,
and as normal and fully cooperating members of society over a complete
life” (12). He considers this the fundamental question of justice because
failing here means the theory fails in the least ambiguous philosophical
context. The goal is to find a successful theory in the clearer context and
expand the theory to harder philosophical cases. In doing so, he explicitly
sets aside individuals who do not fit neatly into the system as part of his
methodology.
More substantially, this understanding of the point and currency of
equality has implications for who should count as a citizen. Citizens are
characterized as having two moral powers: rationality and reasonableness
(Rawls, 1980, 525).2 Citizens are rational in that each can develop an idea
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
of what it means to live a good life and devise a plan to pursue it. Being
reasonable, citizens recognize others as legitimate sources of limits on
their pursuits and are motivated to abide by rules that others also accept. In
short, citizens demonstrate a level of motivation, analyticity, sociality and
independence that allows them to contribute to a scheme of social
cooperation. The focus on primary social goods recognizes that these
abilities and skills require certain conditions be in place to develop them,
but traditionally neurological variation among those who have the skills or
capacity to develop those skills is not seen as relevant to the justification
of principles of justice. Rather, from the standpoint of justification Rawls
suggests we should use an ideal “conception of ourselves as moral persons
and of our relation to society as free and equal citizens” (520). Doing so
relegates facts about human variation to secondary considerations.
Neurological variation becomes a fact that needs to be considered when
constructing actual laws rather than something that informs the fundamental
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
42 Chapter Two
Normalizing Neurodiversity
The fact of neurodiversity serves as an important corrective at several
levels in political theorizing. The central insight provided by neurodiversity
involves a change in perspective that challenges heretofore assumed
notions of the normal. As sketched in the previous section, philosophers
tend to ignore and more recently idealize away neurodiversity. As
understood in the literature, the neurodiversity movement makes two
central claims (Jaarsma and Welin, 2012, 20-21). First, the difference
between the neuro-typical members of society and those neurologically
different results from natural human variation and does not signal a sharp
break between the normal and abnormal. In part because there is not a
sharp break, a significant amount of the characterization, stigma and
differences in treatment is rooted in the social. Second, we should value –
or at least not stigmatize – our cognitive differences. For present purposes,
we need a framework for understanding this variation to inform both our
account of equality and how it may apply politically. 3
Neurodiversity refers to the neurological constellation of different
neurological types, which can be delineated according to a trait or set of
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Equality, Capability, and Neurodiversity 43
these different sets of neurological traits can, and do, comprise individual’s
identity and potentially provide a basis for culture (Davidson, 2008).
The sharp distinction between the neuro-typical and others breaks
down when considering two factors: the differences already present within
the neuro-typical community and the similarity between those perceived as
low-functioning and those perceived as neuro-typical at different stages in
life. The first shifts from a binary notion of agency focused on rationality
to one that admits of difference and degree. The second demonstrates
overlap between those normally included and those excluded in a way that
further blurs the line of normal.
Rawlsian rational and reasonable citizens gloss over a range of
diversity within the traditional normal range. Many within the range are
autistic, obsessive, compulsive, depressed, and so on. The focus on rational
agency fails to capture the first or second personal agency of these people.
As mentioned earlier, these people are not otherwise neuro-typical with
some affliction, but instead the combination of characteristics or traits
partly makes up who they are. Someone is not a person with autism, but an
autistic person. Put differently, someone’s neurological make up has a
significant impact on how they agentially approach the world. Again
consider the case of an autistic person. This neurological difference will
affect how he perceives the world and thus how he processes decisions. To
take the first, an autist “can focus on the details of parts but not on the
general patterns of wholes” (Glannon, 2007, 2).4 This affects both the
information he has to act on and the way he makes decisions. For example,
one study found that autist’s “susceptibility to the frame manipulation
[including frames invoking emotional context cues] was markedly
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
reduced” (De Martino, 2008, 10478). This led autists to make more
consistent decisions in risky situations than non-autists. Making more
consistent decisions does not necessarily indicate that autists make better
or worse decisions, the framing or emotional cues may contain important
information or be irrelevant depending on the situation. It does, however,
point to a sharp difference in how autists relate to the world. Importantly,
many people with these neurological traits may well be rational and
reasonable in Rawls’s sense. However, characterizing their agency, and
subsequently disseminating the same bundle of resources, fails to
recognize the difference in agency and thereby equalizes citizens in a way
that is not sensitive to that difference. In fairness, the traditional theory
isn’t supposed to capture these differences, but this is precisely the
problem.
Second, accepting the impact of neurological variation on agency
further makes sense of how to include those in dependency relationships.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
44 Chapter Two
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Equality, Capability, and Neurodiversity 45
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
46 Chapter Two
social goods is that though some may find them more or less useful this
bundle of goods will have the kind of things that allow people to pursue a
meaningful life. The fact of neurodiversity greatly expands the range of
how useful citizens will find primary social goods. Different neurological
traits leading to different modes of engaging the world may have a
significant impact on the usefulness, and perhaps even recognition, of
certain resources. If the point of primary social goods is to enable citizens
to pursue a good life, in a neurodiverse society resources serve as a poor
proxy for flourishing. In contrast, the capabilities approach cuts directly to
the point. The goal of equality is not to give people the same starting point
but to allow them to function in a way that enables them to meaningfully
engage the world as each sees it. As Nussbaum puts it, the goal is to
ensure citizens live with dignity.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Equality, Capability, and Neurodiversity 47
birth anyone who could potentially develop the capacities for rationality
and reasonableness still need certain conditions to be in place to direct and
ensure their growth. For example, historical conditions that deprived
women of education and locked them into servile roles in misogynistic
cultures inhibited their development of capacities. Wong argues liberal
societies “must provide citizens labeled with cognitive disabilities with the
Enabling Conditions until they become fully cooperating members of
society” (399). Failing to do so marginalizes a group that explicitly
deserves membership in the political community. In addition to ensuring
that borderline cases have the opportunity to become part of the
community, denying rightful members of the community access to the
political sphere directly disenfranchises them. To deny those labeled
cognitively disabled relevant enabling conditions and access to the
political arena errs on the side of injustice.
The opposite seems less true. The potential harm of including in so-
called low-functioning individuals who turn out to lack sufficient capacity
to engage politically, even with enabling conditions in place, attaches to
those in the political community rather than the person who falls short of
being able to become part of it. This potential harm may manifest itself in
various ways. The next section will address a potential worry about the
costs associated with providing enabling conditions, though it should be
noted these concerns with efficiency may not trump concerns about
equality and justice. Perhaps the chief concern is granting equal political
power to an individual who is incapable of wielding it. The lack of
capacity motivating this concern, however, partly mitigated the worry. If
someone who seems like a borderline case turns out not to be able achieve
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
48 Chapter Two
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Equality, Capability, and Neurodiversity 49
certain capabilities may require confederates and caregivers likely calls for
an increase support for care takers, perhaps by changing what counts as a
tax deductible expense, providing access to care and providing well-
researched, current information to caretakers. This is to say, creating a
more open, equal society may well generate new additional costs.
However, many of the changes would be structural rather than ongoing
and many of the prima facie positive duties involve expanding and
targeting services already in place. The capabilities approach provides a
conception of equality tat can serve as a framework for targeting those
services.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
50 Chapter Two
Conclusion
From this discussion, there are a few important points to take away.
The fact of neurodiversity should impact our theorizing as much as it does
our practice. Though the issue has largely been set aside, we already have
large segments of theory to address issues of neurodiversity. Most
importantly, we should not let the perfect be the enemy of the good. We
have a pretty good, though still nascent, philosophical framework for
incorporating and addressing neurodiversity. It is a framework that
mitigates some of the concerns over limits and points to several areas, like
creating more neurologically open public spaces, that can be implemented
and lead to a more equal society.
References
Anderson, Elizabeth. What Is the Point of Equality? Ethics 109, no. 2
(January 1999): 287–337.
Baker, Dana. Neurodiversity, Neurological Disability, and the Public
Sector: Notes on the Autism Spectrum. Disability and Society 21, no. 1
(2006): 15–29.
Carlson, Licia, and Eva Feder Kittay. Rethinking Philosophical
Presumptions in Light of Cognitive Disability. Metaphilosophy 40, no.
3–4 (July 2009): 307–330.
Carmien, Stefan, Melissa Dawe, Gerhard Fischer, Andrew Gorman, Anja
Kintsch, and James Sullivan Jr. Socio-Technical Environments
Supporting People with Cognitive Disabilities Using Public
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Equality, Capability, and Neurodiversity 51
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CHAPTER THREE
POLICING NEURODIVERSITY
IN HIGHER EDUCATION:
A DISCOURSE ANALYSIS OF THE TALK
SURROUNDING ACCOMMODATIONS
FOR UNIVERSITY STUDENTS
Introduction
Currently, nine percent of students enrolled in US colleges and
universities have disabilities (Institute for Higher Education Policy, 2010).
Historically, university systems have relied upon federal laws to set the
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
tone and create the policies that facilitate the inclusion and/or exclusion of
students with disabilities. Specifically, the rights of university students
with disabilities are protected under the Americans with Disabilities Act
(ADA, 1990) and Section 504 of the Rehabilitation Act (1973). Yet, even
with legalized norms in place, the meanings ascribed and access granted to
students with disabilities is left, in many regards, to the individual
university to construct. While some universities make claims of pursuing
and welcoming a diverse student body, others express caution in moving
too far beyond their established norms.
Within this chapter, we present findings from a discourse analysis,
informed by poststructural thought (Derrida, 1981; Laclau & Mouffe,
1985) and discursive psychology (Edwards & Potter, 1993), examining
how the top 30 universities and colleges in the United States position the
meaning of disabilities and construct their role in facilitating access for
students with disabilities. Specifically, we analyzed the publically available
web pages of the universities’ offices of disability services, taking note of
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Policing Neurodiversity in Higher Education 53
the ways in which they took up (or not) legal discourses when making a
case for why (or why not) accommodations should be provided to students
with disabilities. We attended to how the offices of disability services were
described, with some being positioned as existing because of the law, in
spite of the university’s interests. Others presented their existence as being
about something far more than a law, as they sought to become a space of
inclusion and diversity. We discuss here the function and potential
consequence of discourses that position students’ rights in opposition to
the integrity of institutional programs. In such instances, the university’s
obligation resides not with defending students’ rights, but in protecting the
integrity of institutional objectives. In a previous study (Dostal, Gabriel, &
Lester, in press), we reported on the ways in which the language employed
on many university websites positioned access for students with
disabilities as something that resides outside of the university; housed
instead within federal law. We discussed how orienting to equal access as
being beyond the scope of the university results in students with
disabilities being positioned as too far beyond the norm to be fairly
included. In this chapter, we build upon this earlier work, specifically
illustrating the ways in which neurodiversity is policed and restricted by
the language choices employed on the selected university webpages.
We first present a brief review of the literature surrounding access in
higher education for those who identify and/or are identified as students
with disability labels. Then, we discuss the theoretical commitments that
framed this project and sensitized our data analysis and interpretation.
Next, we conclude by presenting the findings, with discussion embedded
throughout.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Literature Review
The Association of Higher Education and Disability (AHEAD) has
developed and disseminated standards and indicators for disability service
providers on college campuses (Dukes, 2006; Shaw & Dukes, 2006), as
well as a tool for the evaluation of disability services (Dukes, 2011). Such
tools have informed the evaluation and design of a number of offices, as
well as research that examines the relationship between disability service
unit and the larger institution (Harbour, 2009), and the governing
philosophy of a given unit (Guzman & Balcazar, 2010).
The majority of studies in the area of disability services in higher
education focus on program design or service delivery and have relied
upon survey data or other forms of self-reported data (e.g., interview,
questionnaire, etc.). For example, drawing upon a disabilities studies
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
54 Chapter Three
Theoretical Perspectives
There were several theoretical perspectives that shaped the way we
made sense of the data. First, we assumed that the very notion of “normal”
and “abnormal” (Kincheloe & Steinberg, 1993) is constructed in and
through discourse. Bodies, minds, and identities materialize in and through
the symbols and images that are part of the everyday, mundane activities
of life. Canguilhem (1989) suggested that “normal” is always compared to
that which is constructed as “pathological,” with the two constructs being
mutually constituted. For instance, one cannot be a disabled college
student, unless there is an abled college student by which to compare her.
Canguilhem further stated that “every conception of pathology must be
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Policing Neurodiversity in Higher Education 55
based on prior knowledge of the corresponding normal state” (p. 51), for
“this normal or physiological state is no longer simply a disposition which
can be revealed and explained as fact, but a manifestation of an attachment
to some value” (p. 57). Therefore, through a priori standards that are
situated within culturally and historically contingent values and practices,
that which counts as “abnormal,” “disabled,” or “pathological” is always
already constituted and reconstituted.
Positions that invite neurodiversity inevitably confront and conflict
with a deficit and binary-based (you are either “normal” or “abnormal”)
perspective. In contrast to a deficit perspective, a perspective that invites
neurodiversity describes persons through a lens of diversity across
identities (e.g., ethnicity, religion, gender, nationality, ability, sexual
orientation, etc.) (Robertson, 2010). Identity is presumed to be shifting,
dynamic, multiple, and socially embedded. Strengths and weaknesses are
presumed to exist, yet are located within the contexts in which they
emerge. In other words, a college student who identifies as disabled may
only experience “disabling effects” when the environment is structured in
such a way that it makes achievement and access impossible. If, on the
other hand, environmental re-structuring occurred, the student may access
and achieve what they sought to achieve. A socialized orientation to
disability has certainly resulted in a shift from focusing on the “individual”
as the sole “problem” to the ways in which the environment itself can be
shifted to eliminate or (at least) decrease the effects of disabling barriers.
Thus, rather than asking what “deficits” are within the individual that
result in them not being able to access higher education, we can ask: how
can the environment be changed in order to increase the students’ access to
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
56 Chapter Three
Method
We took a discourse analysis approach (Wood & Kroger, 2000), which
was shaped by the theoretical perspectives discussed above. In taking this
approach, we assumed that discourse is action-oriented; which led us to
focus on what text does within a given context (Potter, 2004). What
identities are produced and made relevant, for instance? We also oriented
to discourse as constructed, resulting in a focus on what various rhetorical
devices do to reify certain versions of reality. Finally, we oriented to
discourse as situated, always being bound up and embedded within given
interactions and institutional practices and norms. Thus, as we pursued the
analysis process, we attended carefully to the language choices and how
such choices constructed certain realities, making some actions and
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Policing Neurodiversity in Higher Education 57
Findings
Perspectives that embrace neurodiversity have primarily been outlined
by federal laws in order to protect the rights of students with disabilities.
Offices of Disability Services (ODSs) on college and university campuses
exist, at least in part, to ensure compliance with federal laws related to
equal access and opportunity for individuals with disabilities in education.
Indeed 80% (26/30) of the sites we analyzed made at least one explicit
reference to The Individuals with Disabilities Education Act (IDEA)
(2004), most often within their mission or “about us” statements. Still,
some ODSs described their work as going beyond protecting the university
by simply ensuring compliance with the law and reached towards a more
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
58 Chapter Three
Presenting a Purpose
We highlight here the ways in which the purpose statements on the
ODS website served to frame the inclusion/exclusion of students with
disabilities in particular ways. We present contrasting excerpts.
Excerpt 1 serves as an example of a university that locates inclusion as
central to its overarching mission, not as an aside.
Excerpt 1.
Welcome to the Office of Accessible Education! Stanford University has a
strong commitment to maintaining a diverse and stimulating academic
community, representing a broad spectrum of talents and experiences.
Students with disabilities, actively participating in the various aspects of
life at Stanford, are an essential part of that diversity.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Policing Neurodiversity in Higher Education 59
Excerpt 2.
MIT Student Disabilities Services, as required under the Americans with
Disabilities Act (ADA) of 1990 and Section 504 of the Rehabilitation Act
of 1973, makes every reasonable effort to provide appropriate
accommodations and assistance to students with disabilities. The objective
is to ensure that our students receive equal access to all Institute programs
and services. To that end, we seek to balance the student's right to access
with our obligation to protect the integrity of Institute programs and
services.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
60 Chapter Three
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Policing Neurodiversity in Higher Education 61
Excerpt 3.
The mission of the Disability Services Office is to assist students with
disabilities at Boston College in achieving their educational, career, and
personal goals through the full range of institutional and community
resources. The office ensures that students with disabilities receive support
services and accommodations that permit equal access to all Boston
College programs and the opportunity to realize their potential and develop
effective self-advocacy skills.
Excerpt 3 uses the word “full” when describing how Boston College
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
will go about assisting students achieve their goals (“through the full range
of institutional and community resources”). Accommodations, here, are
positioned as that which results in “equal access”, standing in contrast to
the notion that only “reasonable” accommodations remain as the goal (as
was noted in Excerpt 2). If the goal is to assist students, rather than solely
and primarily protect the “integrity” of the university, there is no dilemma
when deciding what accommodations to allow. On the other hand, for
some institutions, as was noted in Excerpt 2, the ODS is positioned as
being required to mediate tensions between what students with disabilities
request and what the university is prepared and willing to give. Excerpt 2
represents a case in which the amount and kind of accommodation is
constructed as an ethical dilemma because of the ways in which
participation at the university level has been conceptualized. In contrast,
within Excerpt 3, a dilemma is not made relevant as “full...resources” and
“equal access” subsumed within the overall mission.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
62 Chapter Three
Excerpt 4.
I don’t know if I have a “disability” per se, but I am having academic
difficulties that don’t make sense to me, and I might want to explore the
possibility. Can SAS help?
We may! Very bright individuals - such as those accepted for selective
schools like Dartmouth College - can have a so-called “cognitive
disability” that goes undetected through high school. “Cognitive disabilities”
refers to various neurologic-based impairments that significantly affect
learning and perhaps other major life activities. Some cognitive disabilities
result from head injuries. Some are lifelong circumstances experienced
from childhood.
Excerpt 5
To ensure the intellectual richness of research and education, the
University of Chicago seeks to provide an environment conducive to
learning, teaching, working, and conducting research that values the
diversity of its community. The University strives to be supportive of the
academic, personal and work related needs of each individual and is
committed to facilitating the full participation of students with a disability
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Policing Neurodiversity in Higher Education 63
Excerpt 6
Service eligibility is based in large part on the quality and comprehensiveness
of a student’s disability documentation and degree of current functional
need. A record of prior accommodation, in and of itself, is usually
insufficient to support academic accommodations in higher education. A
physician’s, psychologist’s or other practitioner’s determination/
recommendation/assertion about appropriate accommodations is valued, but
there are many factors to consider and the ultimate judgment rests with a
college or university.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
64 Chapter Three
Concluding Thoughts
There are potential, perhaps unintended, consequences when particular
discourses position students’ rights in certain ways: some in opposition to
the integrity of institutional programs and others in alignment with the
aims of the institution. First, rights and identities, when constructed, create
certain degrees of possibility. The ways in which an ODS positions itself
in relation to the interests of students, and the ways in which this position
constructs the degree of alignment between students’ rights and university
integrity, can have an impact on the meaning of disability in that setting.
Moreover, through our discourse analysis, we have noted that universities
are often positioned as the authority on both the presence of a disability
and the institutional response to disability. Thus, we argue here that
language choices employed often serve to police what counts as “normal”
or “abnormal”, delineating what qualifies as being an “abled” or
“disabled” way of being and way of learning. Such policing is also
accomplished in texts that construct certain versions of what it means to
make accommodations – with some universities orienting to
accommodations with and for students and some agreeing to only do what
they deem “reasonable” and “appropriate”.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Policing Neurodiversity in Higher Education 65
References
Americans with Disabilities Act of 1990, Pub. L. No. 101-336, § 2, 104
Stat. 328 (1991).
Canguilhem, G. (1989). The normal and the pathological. Brooklyn, NY:
Zone Books.
Collins, M., & Mowbray, C. (2008). Students with psychiatric disabilities
on campus: Examining predictors of enrollment with disability support
services. Journal of Postsecondary Education and Disability, 21(2),
91.
Derrida, J. (1981). Positions. Chicago: University of Chicago Press.
Dostal, H., Gabriel, R., & Lester, J. N. (In press). Disabilities at work in
school: A critical analysis of disability services and support for faculty
at U.S. colleges and universities. K. R. Johnson & K. Couture (Eds.),
Disability discrimination at work. Piraeus Books, LLC.
Dukes, L. (2006). The process: Development of the revised AHEAD
program standards and performance indicators. Journal of
Postsecondary Education and Disability , 19(1), 5.
—. (2011). The iEvaluate OSD guidelines and exemplars: A disability
services evaluation tool. Journal of Postsecondary Education and
Disability, 24(2), 71.
Edwards, D. (2000). Extreme case formulations: Softeners, investment,
and doing nonliteral. Research on Language and Social
Interaction, 33(4), 347-373.
Edwards, D., & Potter, J. (1993). Language and causation: A discursive
action model of description and attribution. Psychological review,
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
100(1), 23-41.
Foucault, M. (1995). Discipline and punish: The birth of the prison. New
York, NY: Vintage.
Guzman, A., & Balcazar, F. (2010). Disability services' standards and the
worldview guiding their implementation. Journal of postsecondary
education and disability , 23(1), 48.
Harbour, W. (2009). The relationship between institutional unit and
administrative features of disability services offices in higher
education. Journal of Postsecondary Education and Disability , 21(3),
138.
Kincheloe, J., L. & Steinberg, S. R. (1993). A tentative description of post-
formal thinking: The critical confrontation with cognitive theory.
Harvard Educational Review, 63(3), 296- 320.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
66 Chapter Three
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CHAPTER FOUR
MINDBLINDNESS:
A TROUBLING METAPHOR?
JANETTE DINISHAK
Introduction
Currently autism is understood as a pervasive, lifelong,
neurodevelopmental condition that can manifest in diverse ways. It is
diagnosed via a triad of behavioral criteria: difficulties with social
interaction (e.g., little or no eye contact), linguistic challenges (e.g.,
misunderstanding pragmatic uses of language), and repetitive or
stereotyped activities (e.g., spinning objects). There are few uncontested
facts about autism. Although we have some clues about possible
environmental triggers and the biological underpinnings of autism, its
causes are unknown. An intensely debated issue is whether we should
develop ways to eliminate autism, if and when its causes are discovered.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
68 Chapter Four
In short, metaphors are not just empty tags; they have practical and
ethical significance because they may influence how we think and feel
about the subjects they describe.
Many metaphors, especially in science, prompt a conceptual movement
from the known to the unknown. They invite us to understand the
unknown through the known by making a comparison between the two.
Autism is often depicted as a deeply mysterious condition that resists
understanding. For instance, a widely used and controversial autism
awareness symbol is a puzzle piece. Given all that we do not know about
autism, it is unsurprising that metaphors figure prominently in scientific,
medical, and media representations of it. For instance, autists1 are
portrayed as robotic or alien, as people whose real selves are missing,
hidden, or kidnapped by autism.2 Another metaphor for autism is
“mindblindness.” “Mindblindness” has been used pervasively since Baron-
Cohen (1990) introduced it to characterize autism. The metaphor appears
frequently in the scientific literature on autism (e.g., Baron-Cohen, 2002,
2008, 2009; Carruthers, 1996; Harris, 1999, 2009; Lombardo & Baron-
Cohen, 2011; Myers, Baron-Cohen, & Wheelwright, 2004; Senju,
Southgate, White, & Frith, 2009), practical guides for caregivers and
teachers (O’Toole, 2012; Stanford, 2011; Williams, Wright, & Young,
2004), news pieces (e.g., Gopnik, 2005; Harmon, 2011; Linklater, 2006;
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Martin, 2010; Moore, 2001; Ojalvo, 2010; Stevens, 2008;), and even in the
title of a fictional work with an autistic character (Roy, 2010) and a work
in popular psychology that discusses “temporary autism” (Gladwell, 2005).
In this paper I identify three problems with using mindblindness as a
metaphor for autism. First, the comparison between autism and blindness
is misleading in some respects. Second, common uses of “mindblindness”
do not make clear how the difficulties that people with autism have
understanding mental phenomena relate to the difficulties that non-autistic
individuals have understanding mental phenomena. Third, common uses
of “mindblindness” do not do justice to the conceptual distinction between
differences and deficits, a distinction that is important to autism debates
and advocacy movements. Given these limitations, if we continue to use
the metaphor, we should do so in ways that better reflect the complexities
of autists’ social and communication differences and how these
differences overlap with and differ from the social and communication
challenges that non-autistic individuals face in their interactions both with
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Mindblindness: A Troubling Metaphor? 69
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
70 Chapter Four
between these children and the access people without autism naturally
have to other people’s minds” (1990, p. 88). In this quote Baron-Cohen
provides two rationales for his choice of metaphor. First, the metaphor
stresses that, on this theory, the cognitive deficit that explains autistic
persons’ social-communicative difficulties is specific. Impairments in
“general intelligence” (e.g., mental retardation) are not a sufficient
explanation for social-communicative difficulties associated with autism
(Baron-Cohen, Leslie, & Frith, 1985). Second, the metaphor makes vivid
the gulf between autistic and non-autistic persons. Autists are “blind to the
existence of mental states” (Baron-Cohen, 1990, p. 83), while non-autistic
individuals “naturally have [access] to other people’s minds” (Baron-
Cohen, 1990, p. 88). After 1990, Baron-Cohen began using “mindblindness
theory” to designate his theory of autism.
One shortcoming of the mindblindness theory, acknowledged by
Baron-Cohen himself (2008), is that it does not explain the “nonsocial”
features of autism (e.g., attention to detail, the need for sameness)
(Boucher, 2012). Another is that it does not take into account the aspect of
empathy that involves responding appropriately to the feelings and
thoughts of others (Baron-Cohen, 2008). To address these limitations
Baron-Cohen (2002) developed the empathizing-systemizing theory.
Before I discuss problems with dominant uses of the mindblindness
metaphor, I should note the features of Baron-Cohen’s revised theory that
are relevant to my analysis of those uses in the sections below. On the
revised view, autism is best explained with reference to two psychological
factors, empathizing and systemizing. Delays and deficits in empathizing
explain the social features of autism (i.e., social and communication
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Mindblindness: A Troubling Metaphor? 71
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
72 Chapter Four
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Mindblindness: A Troubling Metaphor? 73
what the blind person can or cannot see” (Omansky, 2011, pp. 4-5). In
fact, the blindness-sightedness binary is misleading when we interpret it in
an either/or or all-or-nothing way; most blind people have some residual,
usable vision. Likewise, we should be wary of simplistic distinctions
between mindreading and mindblindness. We must be careful not to
neglect the diversity underlying the term mindblindness. In later
developments of his theory (2009), Baron-Cohen says that people with
autism are mindblind to varying degrees, but he does not specify whether
and how differences in degrees of mindblindness correspond to different
social and communication behaviors in people with autism. Talk of
different degrees of mindblindness is a step towards acknowledging the
diverse ways autism presents in particular individuals, but we should learn
ways of talking about autism that allow for qualitative differences too. We
would be one step closer to heeding an oft-repeated caution, “If you have
met one person with autism, you have met one person with autism.” These
words are used as a reminder that autism manifests in many different ways
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
74 Chapter Four
of mind and the mindblind, who lack a theory of mind or employ one
unsuccessfully or with great effort and only when explicitly prompted to
do so. The distinction between mindreader and mindblind is murkier than
these broad, unqualified definitions of mindblindness suggest. Mindreading
is not an all-or-nothing trait of a person. Non-autistic individuals can have
considerable difficulty making accurate mental attributions to other non-
autistic individuals and to themselves. As Epley (2008) notes, “Accurate
mind reading is not simply a trait that some people possess and others
don’t, but is rather a more variable state that people can have at some
times more than at others” (p. 1457). Furthermore, recent empirical work
suggests that construing mindreading as an effortless ability to read others’
minds may be misleading. For instance, Lin, Keysar, and Epley (2010)
argue that it takes effortful attention for people to overcome their
“reflexive default” (p. 552): relying on their own mental states to interpret
others’ behavior. In other words, people tend to interpret others’ behavior
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Mindblindness: A Troubling Metaphor? 75
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
76 Chapter Four
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Mindblindness: A Troubling Metaphor? 77
respect and support autistic individuals that see their autism as an essential
part of their identity. Not all differences are deficits. Some differences are
not harmful to oneself or to others. And some differences are advantageous
to oneself and to others. Can the mindblindness metaphor accommodate
manifestations of autistic social and communicative differences that are
not deficits? Insofar as “mindblindness” is widely used to designate a
deficit, it leaves no conceptual room for understanding some social and
communication behaviors of people with autism as differences that are not
deficits.
Baron-Cohen aptly observed that supporting an “autism is a difference”
point of view and alleviating disabilities are not mutually exclusive:
Nobody would dispute the place for interventions that alleviate areas of
difficulty, while leaving the areas of strength untouched. But to talk about
a 'cure for autism' is a sledge-hammer approach and the fear would be that
in the process of alleviating the areas of difficulty, the qualities that are
special - such as the remarkable attention to detail, and the ability to
concentrate for long periods on a small topic in depth - would be lost.
Autism is both a disability and a difference. We need to find ways of
alleviating the disability while respecting and valuing the difference (qtd.
in Saner, 2007).
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
78 Chapter Four
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Mindblindness: A Troubling Metaphor? 79
about cattle that others did not attend to, and this helped her to design
more humane slaughterhouses. She believes that her autism results in
heightened sensory perceptions that allow her to imagine how an animal
will feel moving through a system. Below she describes some of her
observations of cattle behavior and how they informed her slaughterhouse
designs:
The principle behind my designs is to use the animals’ natural behavior
patterns to encourage them to move willingly through the system. If an
animal balks and refuses to walk through an alley, one needs to find out
why it is scared and refuses to move… It is the little things that make them
balk and refuse to move, such as seeing a small piece of chain hanging
down from an alley fence…Cattle will also balk and refuse to walk through
an alley if they can see people up ahead…This is one of the reasons that I
designed curved single-file alleys with solid sides. They help keep cattle
calmer…the cattle are unable to see people up ahead, and each animal
thinks he is going back where he came from (pp. 142-149).
Conclusion
The psychiatric diagnostic category “autism” has undergone a variety
of changes, and scientific and media representations of autism have shifted
over time. Yet the mindblindness metaphor persists, especially in scientific
discourse on autism, where it is used pervasively. I have argued that
common uses of the mindblindness metaphor are troubling in several
respects and have invited the reader to consider some of the potential
pitfalls of such uses. In the light of these concerns, we should consider
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
80 Chapter Four
References
Akhtar, N., & Gernsbacher, M. A. (2008). On privileging the role of gaze
in infant social cognition. Child Development Perspectives, 2, 59-65.
http://dx.doi.org/10.1111/j.1750-8606.2008.00044.x
Akhtar, N., & Jaswal, V.K. (in press). Deficit or difference? Interpreting
diverse developmental paths: An introduction to the special section.
Developmental Psychology.
Baron-Cohen, S. (1990). Autism: A specific cognitive disorder of ‘mind-
blindness’. International Review of Psychiatry, 2, 81-90.
http://dx.doi.org/10.3109/09540269009028274
—. (1995). Mindblindness: an essay on autism and theory of mind.
Cambridge, MA: MIT Press.
—. (2002). The extreme male brain theory of autism. Trends in Cognitive
Sciences, 6 (6), 248-254.
http://dx.doi.org/10.1016/S1364-6613(02)01904-6
—. (2008). Theories of the autistic mind. The Psychologist, 21 (2), 112-
116.
—. (2009). Autism: The empathizing-systemizing (ES) theory. Annals of
the New York Academy of Sciences, 1156, 68-80. doi: 10.1111/j.1749-
6632.2009.04467.x
Baron-Cohen, S., & Belmonte, M.K. (2005). Autism: A window onto the
development of the social and analytic brain. Annual Review of
Neuroscience, 28, 109-126. doi:
10.1146/annurev.neuro.27.070203.144137
Baron-Cohen, S., Leslie, A., & Frith, U. (1985). Does the autistic child
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Mindblindness: A Troubling Metaphor? 81
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
82 Chapter Four
Harris, J.R. (1999). The nurture assumption: Why children turn out the
way they do. New York, New York: Touchstone.
—. (2009). The nurture assumption: why children turn out the way they
do. New York, New York: Free Press.
Kleege, G. (1999). Sight unseen. New Haven, CT: Yale University Press.
Köhler, W. (1929). Gestalt psychology. New York, NY: Horace Liveright.
Lin, S., Keysar, B., & Epley, N. (2010). Reflexively mindblind: Using
theory of mind to interpret behavior requires effortful attention.
Journal of Experimental Social Psychology, 46, 551-556.
doi:10.1016/j.jesp.2009.12.019
Linklater, A. (November 3, 2006). The baby who was badly put together.
The Guardian. Retrieved from www.guardian.co.uk
Lombardo, M.V., & Baron-Cohen, S. (2011). The role of the self in
mindblindness in autism. Consciousness and Cognition 20, 120-140.
doi:10.1016/j.concog.2010.09.006
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Mindblindness: A Troubling Metaphor? 83
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
84 Chapter Four
http://autismmythbusters.com/general-public/autistic-vs-people-with-
autism/jim-sinclair-why-i-dislike-person-first-language/
Smukler, D. (2005). Unauthorized minds: How ‘theory of mind’ theory
misrepresents autism. Mental Retardation, 43(1), 11-24. doi:
http://dx.doi.org/10.1352/0047-
6765(2005)43<11:UMHTOM>2.0.CO;2
Solomon, A. (2008, May 25). The autism rights movement. New York
Magazine. Retrieved from http://nymag.com
Stanford, A. (2011). Business for Aspies: 42 best uses of Asperger
Syndrome traits in the workplace. London, UK and Philadelphia,
USA: Jessica Kingsley Publishers.
Stevens, C. (2008, March 15). How our son taught us the secret songs of
autism. The Observer. Retrieved from
www.guardian.co.uk/theobserver
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Mindblindness: A Troubling Metaphor? 85
Wells, H.G. (2006). The country of the blind. In M. Gardner (Ed.), The
country of the blind and other science-fiction stories (pp. 4-30).
Mineola, NY: Dover Publications. (Original work published 1904).
Williams, C., Wright, B., & Young, O. (2004). How to live with autism
and Asperger Syndrome: Practical strategies for parents and
professionals. London, UK and Philadelphia, USA: Jessica Kingsley
Publishers.
Wimmer, H., & Perner, J. (1983). Beliefs about beliefs: Representation
and constraining function of wrong beliefs in young children’s
understanding of deception. Cognition, 13, 103-128.
http://dx.doi.org/10.1016/0010-0277(83)90004-5
Wittgenstein, L. (1953). Philosophical investigations. Oxford, UK:
Blackwell.
—. (1980). Remarks on the philosophy of psychology I. Oxford, UK:
Blackwell.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CHAPTER FIVE
ANTIDEPRESSANTS, GENDER,
AND THE CONSTRUCTION
OF THE MORAL SELF
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Antidepressants, Gender, and the Construction of the Moral Self 87
there are now many other similar drugs available. I have tried generally to
avoid claims about particular drugs, except where other authors have done
so.
In this paper, I want to move somewhat beyond the debate regarding
whether antidepressant use as “cosmetic psychopharmacology” is morally
legitimate. My goal is not to argue in favor of or against antidepressant
use; either position would be too simplistic. I want to focus on questions
about the construction of the moral self that are raised by the frequent use
of antidepressants, especially as their use affects women. I argue that
antidepressant use raises philosophical challenges regarding the
development of the moral self, specifically with regard to self-reflection
and the means through which the self should be constructed. Moreover,
the disproportionate rate of antidepressant use in women raises even
greater concerns regarding the kinds of moral selves that may be
encouraged and the ways in which we construct the moral self. This
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
88 Chapter Five
should prompt us to revisit the problem from a new perspective, one that
takes more seriously women’s moral experiences and opens the door to a
fuller understanding of the feminist implications of antidepressant use.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Antidepressants, Gender, and the Construction of the Moral Self 89
construction of the self, and antidepressant use are even more complex,
and perhaps a little mysterious. Two of Kramer’s cases illustrate this point.
Lucy was an over-sensitive, young college student who suffered
childhood trauma (Kramer 1993, pp. 103-107). Her difficulties were
predominantly in handling relationships. She was incredibly sensitive in
her interpretations of other people’s actions: she perceived even the
smallest of slights, intended or not. This sensitivity nearly undermined her
ability to have functional relationships. Very short-term use of Prozac
made a big difference for Lucy: just a brief period on the drug altered her
perceptions of herself (Kramer 1993, pp. 102-103). The drug made her less
vulnerable, even if briefly, so that she could then begin to see the ways in
which her behavior appeared to other people. Even after she was off the
drug, she was able to alter her understanding of her own behavior, which
in turn enabled her to alter her behavior itself. This indicates that in Lucy’s
case the use of Prozac prompted self-reflection, rather than being the result
of it.
Kramer’s case of Allison provides an even more compelling case for
alternative interpretations of the relationship between Prozac and self-
reflection. Allison suffered from such dramatic low self-esteem that she
could hardly see herself except for her faults (Kramer 1993, pp. 204-208).
It was as if she felt foreign to herself: she was detached from her own
successes, could barely connect the image in the mirror with herself, and
experienced consistent impending tearfulness. Treatment with Prozac,
after many years of therapy, enabled her to be sure of her husband’s love,
to feel confident in her work, and to feel like a more loving person. As
Kramer puts it, “when the change occurred, it seemed a matter of changed
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
90 Chapter Five
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Antidepressants, Gender, and the Construction of the Moral Self 91
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
92 Chapter Five
Maartje Schermer points out, the mountain climber who takes a helicopter
to the top has certainly arrived at the top of the mountain, but any sense of
himself as a mountain climber is merely delusional (2008, p. 360). The
Physicians Committee on Bioethics suggests that this same kind of
distinction is relevant in thinking about antidepressants. They suggest that
antidepressants encourage us to treat states of mind as goals and targets
separate from the process of arriving at them (2003, pp. 238-239).
In the case of the construction of the self (and likely also in many other
activities), however, the distinction between a process good and an
outcome good is not so clear-cut. On a narrative conception of the self, the
self is often described in terms that would imply it is a fixed state. This
would make it seem like an outcome good, for example, I might want to
come to have certain traits, and the achievement of them might be viewed
as an outcome good. At the same time, we typically also value a particular
process in coming to a sense of self. Unless we value the self as fixed and
unchanging, it will undergo a continual process of change and alteration. It
undergoes constant revision as new experiences and new insights become
parts of the narrative. These alterations may not always be significant or
meaningful, but on a narrative conception of the self, the self is always
something of a work in progress. Thus, on a narrative conception of the
self, the self may be properly conceived of as both an outcome good and a
process good. We care both about who we are and how we acquired that
identity, and in a narrative conception of the self, who and how are
intimately intertwined.
It is easy, then, to think that antidepressants are problematic insofar as
they unduly influence the narrative; they derail the narrative in progress,
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Antidepressants, Gender, and the Construction of the Moral Self 93
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
94 Chapter Five
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Antidepressants, Gender, and the Construction of the Moral Self 95
view is perfectly consistent with other kinds of views that reflect the
importance of culture, experience, tradition, or role. Gilligan, however,
made the powerful claim that in our society, the experiences of men and
women are significantly different enough that they tend to result in a
different kind of approach to morality and the development of the moral
self.
Thus, a care ethic, as Gilligan’s approach has come to be characterized,
grows in some sense out of the traditional realm of women. Women have
historically been responsible for maintaining households, caring for
children, and protecting relationships. Such responsibilities carry with
them the development of certain kinds of moral traits. If the maintenance
of relationships is the focus of my life or at least an important part of my
traditional role, my conception of my moral self will be dependent upon
the degree to which I do this well. The kinds of moral characteristics that I
will expect of myself and that others will expect of me will involve those
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
96 Chapter Five
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Antidepressants, Gender, and the Construction of the Moral Self 97
roles. However, numerous sources indicate that the pressure for women to
take on caring responsibilities has not shifted in any significant way. Arlie
Hochshild’s famous book, The Second Shift, laid out the dilemma that
many women experience (1989). Though now quite a few years old, more
contemporary literature suggests that the balance has not shifted that
much. Anne-Marie Slaughter might have stated the case as compelling as
one could expect in her recent cover story for the Atlantic titled “Why
Women Still Can’t Have It All” (2012). Karine Moe and Dianna Shandy’s
new book, Glass Ceilings and 100-Hour Couples, lays out the challenges
of balancing family and a career for contemporary women (2009). Nancy
Folbre argues in The Invisible Heart that we must, as a society, begin to
consider the economic costs of caring (2002). No one of these books or
articles will easily confirm that women tend to experience their moral
selves differently than men do. However, if our selves are developed
partly in response to our role, this diverse literature does indicate that
women’s role is still not the same as men’s and that they still experience
the pressures of caring as an important part of their role. If this is the case,
and women are experiencing these demands as a significant challenge as
much of the literature indicates, then the fact that they would seek
assistance through the use of a drug that can make personal relationships
less stressful and less demanding should not come as any real surprise.
Antidepressants can make patients less sensitive to rejection, more
confident in relationships, more able to navigate complex psychological
situations, more outgoing, and less obsessive. One of Kramer’s patients
finds herself less over-sensitive to the needs of others and less sensitive to
conflict; she was able to abandon a humiliating relationship and gained
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
98 Chapter Five
Nothing I have said here can draw a straight line between the
expectations of a caring approach to the self and women’s use of
antidepressants. Surely the relationship is not altogether direct. However, I
take the differing moral and psychological expectations for men and
women to be a fruitful line of inquiry, one that deserves further attention.
Perhaps women are more inclined to antidepressant use because it enables
them to live up to moral expectations that are more frequently held of
women than of men. Nothing in this suggestion should undermine the
value of a caring approach to the moral life and the moral self. But, we
must note that expectations for the moral self can also be experienced as
burdens if they seem out of reach.
References
Barber, Charles. (2008a). The medicated Americans. Scientific American
Mind. February/March 2008, 45-51.
—. (2008b). Comfortably Numb: How Psychiatry is Medicating a Nation.
New York: Pantheon Books.
Begley, Sharon. Happiness: enough already. Newsweek, February 11,
2008.
DeGrazia, David. (2000). Prozac, enhancement, and self-creation.
Hastings Center Report, 30, 2, 34-40.
Folbre, Nancy. (2002). The Invisible Heart: Economics and Family
Values. The New Press.
Gilligan, Carol. (1983). In a Different Voice: Psychological Theory and
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Antidepressants, Gender, and the Construction of the Moral Self 99
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CHAPTER SIX
DO NO HARM:
NEURODIVERSITY, HEALTH CARE ADVOCACY,
AND THE LANGUAGE AND CULTURE
OF INFORMED CONSENT
Perchance he for whom this bell tolls may be so ill as that he knows not it
tolls for him. And perchance I may think myself so much better than I am,
as that they who are about me, and see my state, may have caused it to toll
for me, and I know not that.
—John Donne
Meditation 17, Devotions Upon Emergent Occasions
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Do No Harm 101
vulnerability. People do not seek medical care because health exists, but
because illness and injury (often covertly) do. Moreover, caregiver-patient
communications continue, despite impressive institutional efforts to
minimize examination times, because they are crucial to recognizing the
strengths and vulnerabilities likely to affect patient health at the time of the
exam.
These communications are documented. An abbreviated summary,
along with laboratory and imaging findings, potential treatments, and/or
interventional strategies, are entered into each patient’s chart via a
nomenclature rarely unencumbered by health care lore. When read by
other health care professionals, these entries have the potential to evoke
ritualized responses and interchanges (Goffman 1981). Thus in the patient
chart, whether documented in digital or paper format, communities and
standard of care, legal liability, and patient statements summarily converge
in a formalized vocabulary that can enhance or degrade care. Where
physician interview empathy is concisely represented in this record,
respect for the patient – and concomitantly, standard of care –may be
enhanced among other caregivers; where empathy is lacking, respect and
care may well be degraded. The interprofessional exchange occurring
through patient charts is moreover not limited to language, but extends to
perusal of images, quantitative findings compared to a ‘normative’ range,
digitized diagnostic codes, and so forth.
The impact on care posed by this ritualized interprofessional
communication is itself a critical factor within the daily practice of
medicine, as all who present for care do so subject to a power imbalance
delineated by a language that routinely, perhaps of necessity, connotes
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
102 Chapter Six
voluntary informed consent for both research and the selection by a patient
of available therapeutic options in accordance with personal views and
physician explanations. Improvements in standard of care developed
alongside formal frameworks supporting increased transparency in the
provision of health care information, although the burden of documenting
compliance was not trivial. Most importantly, physicians were explicitly
charged with explaining to patients the risks and benefits of competing
treatment options (including the election to forego all therapy) and, where
necessary, to further inform family or other surrogate decision-makers.
With efforts to improve the sharing of medical information, however,
came an increasing identification of gaps in expectations and care.
Discussions on these topics, many of which transpired concurrently with
reductions in times allotted for patient visits by health care institutions,
helped increase cognizance of systemic gaps in access-to-care imposed by
such factors as race and ethnicity, socioeconomic status, employment
status, language group, educational status and literacy level, cultural
assumptions, and belief systems. Debates and investigations of these
factors led to further studies assessing the negative impact they could exert
on health outcomes, as well as strategies for mitigating their impact within
clinical care (Fox 2005, Parker 2012, Delphine-Rittmon 2012) .
Not least in the rise of neurodiversity as a topic within health care
advocacy, improvements in imaging techniques resulted by the end of the
20th century in functional images of brain activity (Belliveau 1991, Kwong
2012). These images introduced a new, albeit still emerging, visual
vocabulary with a concomitant rhetoric. Functional brain images obtained
from animal models, human subjects research, patients and control
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Do No Harm 103
states and behaviors, they appear to share one assumption: “Unless one’s
brain has the capacity to represent something – percepts, images, thoughts,
emotions, abstract concepts, sense of the position of one’s body in space –
one cannot be aware of it” (Grigsby, 2000). Thus, in clinical care, a
dilemma is posed wherever a discrepancy exists between one’s capacity to
experience and one’s capacity to represent that experience. In the contexts
of informed consent and neurodiversity, this discrepancy can be pivotal to
seeking a surrogate decision-maker.
Clinicians must determine in quick succession whether or not a given
patient has the capacity to provide consent at a specific time for a specific
procedure or intervention. Given the constraints imposed by clinical
exigency, claims raised by advocates of neurodiversity for reconstituting
the understanding of health and illness may appear remote, however
important. To invite clinicians to enter meaningfully into discussions of
neurodiversity, the unstable nature of health and the sheer fact of human
vulnerability must be acknowledged. Deeply troubling experiences at the
limits of health are what clinicians are charged with ameliorating
throughout their professional lives. Better clinical care will not emerge if
their experiences are discounted. Likewise, the medical model will not
proceed apace with scientific advances if the experience of human
neurodiversity, as represented within the neurodiverse community and by
its advocates, is trivialized or ignored.
Despite advances in studies of brain function and newly emerging
visual vocabularies for health and illness, an appropriate clinical lexicon
for acknowledging neurodiversity without tacitly or explicitly representing
neurological difference as a “morbidity” remains lacking. The bell-shaped
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
104 Chapter Six
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Do No Harm 105
backing, supported by statutes and case law, and social consensus for a
responsible exercise of professional duties.
Better rubrics for assessing vulnerability, rather than mere difference,
within neurodiversity remain wanting. In their place, a summative clinical
judgment, although reductive, attempts to secure protections from
exploitation or marginalization that may not yet be afforded by an
increased understanding of productive, functional alterities. However
described, no individual can achieve either maximum capacity or ideal
health; all are subject to genetic, anatomical, physiological, and
environmental factors that limit functional and interactive capacities.
While a legal standard can describe health and capacity in static terms, a
clinician – and any useful medical framework – must account each day for
the fact that both terms are poised in a dynamic interaction with
compromise, disease and injury. Thus the language at the fulcrum of each
patient’s personal narrative contributes to standard of care during clinical
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
106 Chapter Six
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Do No Harm 107
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
108 Chapter Six
clinician faces two key dilemmas. The first dilemma occurs when the
patient presents with a condition that he or she does not deem a pathology,
but for which the clinician possesses knowledge of potentially beneficial
resources and treatments. In this situation, such terms as patient,
pathology, therapy, therapist, and so forth are less important to the
physician than the fact that information about beneficial possibilities
cannot be accessed owing to a strict interpretation of and adherence to
definitions. The second scenario occurs when the communication of
alternatives to care is blocked by a difference in how such information is
processed. In this case, differing beliefs concerning pathology and health
are not at stake, but rather currently unbridgeable differences in
information processing.
Within clinical practice, this latter difference is likely to be constituted
as “difference as comorbidity.” The physician possesses information
concerning a greater “access-to-health” that cannot be communicated
through currently available lexicons to patients who might benefit from it
– and patients possess an experiential reality equally challenging to
represent. Communicating these experiences so as to render the fund of
knowledge of each party accessible remains a key goal for actually
securing informed consent or dissent in the context of neurodiversity.
Until this challenge is surmounted, rather than a charted “yes-no” rubric of
capacity for a given patient deemed applicable at every juncture, a sliding
scale assessment, obtained at specific decision-making junctures, could
demonstrate salient ‘capacity’ features of concern to patients, advocates,
physicians, families, and frontline caregivers. Such a time- and situation-
limited scale could for the moment help safeguard autonomy, protect the
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Do No Harm 109
References
American Psychiatric Association. DSM-5: The Future of Psychiatric
Diagnosis. (2012) Accessed at:
http://www.dsm5.org/Pages/Default.aspx ; Retrieved between March
15, 2012 and September 17, 2012.
Belliveau JW, Kennedy DN Jr, McKinstry RC, Buchbinder BR, Weisskoff
RM, Cohen MS, Vevea JM, Brady TJ, Rosen BR. (1991) Functional
mapping of the human visual cortex by magnetic resonance imaging.
Science. 1991 Nov 1; 254 (5032): 716-9
Blascovich J, Berry Mendes W, Hunter SB, Lickel B. (2000) Stigma,
threat, and social interaction. In: The Social Psychology of Stigma.
Eds. Heatherton TF, Kleck RE, Hebl MR, Hull JG. New York: The
Guilford Press, 2000, 307-333.
Brownlow C, O’Dell L. (2009) Representations of autism: Implications
for community healthcare practice. Community Pract. 2009 Jul; 82
(7): 13-21.
Delphin-Rittmon ME, Andres-Hyman R, Flanagan EH, Davidson L.
(2012) Seven Essential Strategies for Promoting and Sustaining
Systemic Cultural Competence. Psychiatr Q. 2012 May 12. [Epub
ahead of print]. http://www.ncbi.nlm.nih.gov/pubmed/22581030
Dovidio JF, Major B, Crocker J. (2000) Stigma: Introduction and
overview. In: The Social Psychology of Stigma. Eds. Heatherton TF,
Kleck RE, Hebl MR, Hull JG. New York: The Guilford Press, 2000,
1-28.
Fenton A, Krahn T. (2007) Autism, neurodiversity and equality beyond
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
the ‘normal’. Journal of Ethics in Mental Health. 2007 Nov; 2 (2) 1-6.
Fox, RC. (2005) Cultural competence and the culture of medicine. N Engl
J Med. 2005 Sep 29; 353(13): 1316-9.
Gawande A. (2007) Complications: A Surgeon’s Note on an Imperfect
Science. New York: Metropolitan Books, 2007.
Glannon W. (2007) Neurodiversity. Journal of Ethics in Mental Health.
2007; 2 (2): 1-6.
Goffman E. (1981) Forms of Talk. Philadelphia: University of
Pennsylvania Press, 1981.
Gow DW Jr. (2012) The cortical organization of lexical knowledge: a
dual lexicon model of spoken language processing. Brain Lang. 2012
Jun; 121 (3): 273-88.
Grigsby J, Stevens D. (2000) Neurodynamics of personality. New York:
The Guilford Press, 2000, p236.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
110 Chapter Six
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CHAPTER SEVEN
AUDREY L. ANTON
Introduction
The scientific community recognizes both Psychopathy and Sociopathy
as disorders. But what constitutes a disorder? Are all disorders bad?
Intuitively, we can say that a condition is a disorder if it is out of order
relative to that of typical human functions. But we must be more precise,
since having an eidetic memory, for example, is certainly an abnormal
function of the mind, but we are reluctant to call that condition a disorder.
In fact, an eidetic memory would seem to be more of a blessing than a
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
curse. It seems that disorders also constitute disadvantages for the subject.
However, this notion illuminates another problem: it is not clear that
psychopathy and sociopathy are disadvantages for the “afflicted.”
Perhaps our quandary needs a new approach. Perhaps we ought to
question whether psychopathy and sociopathy truly are disorders in the
traditional sense. According to Craig et al. (2009), a psychopathic trait is:
“Not a fault necessarily, and not something that could be classified as a
disease or that is always a disadvantage. At a certain frequency in the
populations, the traits of psychopathy may be highly advantageous to the
individual.” In this paper, I shall argue that psychopathy and sociopathy
can be advantages for both the patient and society when social conditions
are right. Indeed, the psychopath and sociopath have the potential to
develop certain virtues that the rest of us are ill equipped to acquire.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
112 Chapter Seven
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
The Virtue of Psychopathy 113
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
114 Chapter Seven
Therefore, for the remainder of this essay, I shall use literature concerning
both sociopaths and psychopaths and I shall heretofore take the liberty of
using the terms loosely and interchangeably.
Neurobiology
In order to consider our psychopath’s potential virtues, we must first
investigate what distinguishes them neurologically and psychologically
from the rest of us. Recent research in the fields of psychiatry and
neurobiology suggests that the structure and processes of the brains of
psychopaths are significantly distinct from those who are neither. For
example, from the mid-1990’s through 2002, R. James Blair studied how
psychopathic inmates were able to distinguish moral rules and transgressions
from conventional ones. Blair’s control participants distinguished well moral
from conventional rules, whereas his psychopathic inmates found difficulty
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
The Virtue of Psychopathy 115
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
116 Chapter Seven
another sort, expediency is not identity. It is true that once a person learns
Latin, learning another romance language would be much easier. Still, we
would be wrong to say that because our student knows Latin, she also
knows Spanish and Italian. Being equipped to adapt to new situations does
not entail being adapted to new situations. The particular virtues of
individual persons are particular. Therefore, a search for the objectively
virtuous person is sure to fail.
The weakness of the second premise is not as clear. Still, I contend that
this standard is too demanding. The unity of the virtues holds that no one
is virtuous unless that person is fully virtuous. While it is possible, in
theory, that a single person could acquire all of the virtues, it is highly
improbable that such people exist. Again, due to every individual’s limited
context and experience, people experience virtue-learning opportunities of
some types more than others. For instance, contemporary virtue ethicist
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
The Virtue of Psychopathy 117
Julia Annas (2011) argues that we must continually develop and maintain
our virtues in the face of trying to minimize or render ineffective our vices.
The simultaneous development and completion of all virtues presents
another problem for the unity of the virtues. Given that we learn virtue
through experience and habit and different moral facts are salient in
different situations, it seems highly unlikely that we learn a little bit about
all of the virtues as we become virtuous. Certainly, some virtues do what
Annas calls clustering—they are often found together in complimentary
ways. For instance, the virtues of generosity, kindness, and justice are
often coextensive. One might kindly give to a needy person whose need
justifies them as a beneficiary. Still, it is difficult to see how this relates to
courage. Most importantly, the unity of the virtues is contrary to our
experience. Everyone seems more virtuous in certain ways and less
virtuous in others. If this is the case, we can safely say that one can be
more virtuous in some regards while failing to exhibit all of the virtues.
I acknowledge that some philosophers disagree with the position
advanced here. For example, Martha Nussbaum (2012), a critic of the
relative virtue movement, states:
The rejection of general algorithms and abstract rules in favor of an
account of the good life based on specific modes of virtuous action is
taken, by writers as otherwise diverse as Alasdair Maclntyre, Bernard
Williams, and Philippa Foot, to be connected with the abandonment of the
project of rationally justifying a single norm of flourishing life for and to
all human beings, and with a reliance, instead, on norms that are local both
in origin and in application (p. 756).
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Philosophers who believe that all virtues are relative to societies and
social contexts deny that anything grounds similarities between a virtuous
person in one culture and a virtuous person in another. Proponents of this
view point to the fact that no universal list of virtues exists; something
considered a virtue by one culture could be a vice in another. Alasdair
McIntyre (1997) unites distinct views of the virtues across cultures by
connecting them to a few basic, broadly defined, cardinal virtues. For
McIntyre, the virtues of truthfulness, justice, and courage are essential to
all cultures; how they manifest in other ways depends on a culture’s values
as determined by its practices.
Regardless of whether we take up a thoroughly relativistic view of the
virtues or a moderate one like McIntyre’s, it is easy to see how a sociopath
could acquire some virtues. For example, a capitalist’s idea of truthfulness
is thin. There are times when lying is inappropriate (basically, when it is
against the law), but otherwise truthfulness is optional. Similarly, a
capitalist’s idea of justice is whatever the market produces, and courage is
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
118 Chapter Seven
the will and fortitude necessary to take financial risks. So it is possible for
one to be a virtuous businessperson with characteristics like truthfulness,
justice, and courage while being a sociopath. The sociopath can value
being the best swindler possible while “fairly” acquiring such wealth. This
is compatible with deceiving others routinely so long as such deception is
permissible according to the rules of the practice.
It is perfectly consistent to say that sociopaths are precluded from
becoming virtuous people while maintaining that there are virtues the
sociopath can acquire. This is my stance on the issue. I recognize a
difference between being a good human being and being a good American,
for example. In fact, it seems to me that very few people become virtuous
qua human being, whereas many people have character traits that can be
considered virtues in their given contexts.7 Therefore, if we abandon the
ideas that a virtue is context-independent and necessarily united to all
other virtues, we can see how even a sociopath could have some virtues
(even if she has many vices!). In order to see this possibility, we must
envision the kind of context in which sociopathic characteristics are
valuable and facilitate flourishing.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
The Virtue of Psychopathy 119
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
120 Chapter Seven
with their conscience. Psychopaths, on the other hand, are naturally able to
avoid such difficulties. As Aristotle tells us, some characteristics are
natural and we may consider them first nature. Other characteristics are
developed voluntarily and over time and we call these second nature. A
good defense lawyer who is not a sociopath but lies well is skilled at
deception as a matter of second nature only. A good defense lawyer who is
a sociopath will be deceptive naturally as well as through practice and
habit. How one develops a characteristic and the difficulty encountered
while developing it have little consequence once the characteristic is
solidified. The sociopath is all but guaranteed to develop virtuous
deception expediently.
Still, we should be careful when considering deception a virtue. To be
a virtue, the sociopath must be motivated to use deception within the
parameters of the law for the benefit society. For instance, if a cunning
sociopath lies when paying taxes, under oath, and about the bodies buried
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
The Virtue of Psychopathy 121
in her basement, her guile is not a virtue in the sense under consideration.
Her guile might be useful for her, but it only harms society. In this sense,
her guile is merely a personal advantage and not a virtue.
alive. But part of remaining alive is to kill the enemy before he kills you.
And it is not always the case that good soldiers patiently wait until they
find themselves under attack. It is often the job of a soldier to strike first.
Research suggests that typical soldiers (i.e., those who are not
sociopaths) rarely have what it takes to kill another human being. As Stout
(2005) discusses, one study of the firing rates of American soldiers during
World War II illuminates this trend. While the vast majority of soldiers
would fire their weapons when commanded by a superior officer, when the
commanders were absent, firing rates under similar conditions were as low
as 15-20%. In addition, similar studies suggest that even when soldiers in
such situations do fire a weapon, their woefully poor aim suggests that
they missed their human targets intentionally (pp. 65-67).
Stout uses this data to show the impact of authority on the typical
human being as well as the natural prohibition from killing that most
empathic humans experience. I repeat the results here instead to draw
attention to the dangers such natural human tendencies create. A soldier’s
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
122 Chapter Seven
job is to kill other human beings to protect oneself, one’s fellow soldiers,
and mission at hand. Having a conscience could make it very difficult to
perform these essential tasks well. The following analogy to drives the
point home: a soldier with a strong conscience is like a pair of scissors
with dull blades. While both might be able to perform their functions, in
neither case will the outcome be excellent. Regardless of whether the
soldier is in a defensive or offensive context, she cannot afford to hesitate
or struggle with her conscience. A good soldier’s conscience does not get
in the way. A good soldier gets the job done.
One’s conscience might get in the way even after the job is done. For
instance, thoroughly training a man with a conscience might eradicate all
hesitation when under fire. However, thorough training is not sufficient for
mitigating guilt after the fact. As Jonathan Shay (1995) argues in his book,
Achilles in Vietnam: Combat Trauma and the Undoing of Character, the
increase of post-traumatic stress disorder among Vietnam Vets is not
simply due to the fact that so many veterans were civilians drafted and
given minimal preparation. On the contrary, argues Shay, the trouble
stems from the lack of time extended to soldiers to grieve. Given the
difficulties that American troops faced in Vietnam, there was no time for
processing trauma, resting, or even enjoying peace of mind between
battles. Military leaders cultivated the anger of remorseful soldiers and
encouraged the expression of rage in future acts of destruction as
substitutes for grieving. Naturally, this strategy created a vicious cycle of
guilt and remorse, and it drove many of our soldiers insane. A sociopathic
soldier, on the other hand, would not have such problems.
Some might object that while sociopathic soldiers wouldn’t suffer from
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
extreme guilt and remorse, they could still suffer from the stress of
constant fear for their lives. While this objection has some weight, it
highlights another typical (though not necessarily universal) characteristic
of sociopaths. Many sociopaths are high risk-takers with a high threshold
for stimulation. Sociopaths reportedly are comfortable taking safety risks
and some even need to so do regularly to “feel alive” (Hare 1999, pp. 61-
62). This thrill-seeking characteristic might shield sociopaths from post-
traumatic stress related to extreme dangers. In fact, since they seem to
crave such high stimulation, perhaps extreme danger creates an opportunity
for the sociopath to flourish.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
The Virtue of Psychopathy 123
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
124 Chapter Seven
others to purchase your product whether they need it or not. For example,
when someone wants to convey that someone else excels in sales, they say
of the person, “He could sell ice to Eskimos!” The objective is to convince
customers that they do need your product. Such convincing might only be
possible if the seller manipulates the customer. The businessperson must
imagine the potential customer’s desires and finding ways to connect the
desires with the product. Certain positions in business give sociopaths
permission to practice such techniques and earn money while doing it.
Western capitalism is particularly attractive to sociopaths, given the
role that corporations play in the marketplace. In the U.S., corporations are
considered legal persons who have rights to own and sell property, among
other things. A corporation’s only responsibility is to maximize profits for
its shareholders. In fact, the popular documentary film The Corporation
diagnoses this collective person as psychopathic (Achbar et al., 2004). If
the nature of a corporation is psychopathic, corporations are inviting
places to work for psychopaths. Someone must represent the whole by
acting in accordance with its sociopathic principles—who better to do that
than an actual sociopath?
Our culture is also a factor in the prevalence of sociopaths in the
corporate workforce. As Stout (2005) surmises:
It is entirely possible that the environmental influences on sociopathy are
more reliably linked with broad cultural characteristics than with any
particular child-rearing factors…Instead of being the product of childhood
abuse within the family, or of attachment disorder, maybe sociopathy
involves some interaction between the innate neurological wiring of
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
individuals and the larger society in which they end up spending their lives
(p. 135).
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
The Virtue of Psychopathy 125
experts agree that certain cultural norms constitute fertile grounds for
raising sociopaths.
In business, sociopaths have certain advantages over their empathic
counterparts. Having little emotional interest, a sociopath can compete
objectively in the marketplace. She can envision herself as a client or
competitor and easily imagine what their selfish motives might be. When
she purchases and dismantles other corporations, she does so without
remorse. She is, in essence, the impartial judge. She may be a very partial
negotiator, but her ability to see all sides strengthens her hand in
negotiations.
While a business can benefit greatly from a sociopath at the helm, such
sociopaths will need empathic “normal” people as guides in matters of
justice. For example, in the 1970’s, the Ford motor company manufactured
and sold the Pinto, a car they knew to have safety deficiencies that could
result in explosions of gas tanks that could severely injure or kill
passengers. The vehicles could have been altered to prevent such
explosions—a part installation costing approximately $11 per vehicle.
Refraining from the part upgrade was a legal option. Top executives and
analysts did a cost-benefit analysis to determine whether “it was worth it”
to upgrade the cars. They determined that the number of likely deaths
resulting from no upgrade was relatively low. Ford anticipated paying less
in damages for such incidents than it would cost to upgrade the Pintos. The
company opted not to repair the cars and continued production of the Pinto
as planned.
What Ford did not anticipate was public knowledge of this calculation.
When Ford was brought to court to answer for several cases, juries
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
126 Chapter Seven
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
The Virtue of Psychopathy 127
References
Achbar M. (Director/Producer), Abbott, J. (Director), Bakan, J. (Writer),
& Simpson, B. (Producer) (2004). The corporation [DVD]. Canada:
Big Picture Media Corporation.
Babiak, P., & Hare, R.D. (2006). Snakes in suits: when psychopaths go to
work. New York: Harper.
Blair, R.J. (2010). A cognitive developmental approach to morality:
investigating the psychopath. In T. Nadelhoffer, E. Nahmias & S.
Nichols (Eds.), Moral psychology: historical and contemporary
readings (pp. 48-63). London, England: Wiley-Blackwell.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
128 Chapter Seven
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
The Virtue of Psychopathy 129
Millon, T., Simonsen, E., Birket-Smith, M., & Davis, R.D. (Eds.). (1998).
Psychopathy: antisocial, criminal, and violent behavior. New York:
Guilford Press.
Nadelhoffer, T., Nahmias, E. & Nichols, S. (Eds.). (2010). Moral
psychology: historical and contemporary readings. London: Wiley-
Blackwell.
Nichols, S. (2010). How psychopaths threaten moral rationalism: is it
irrational to be amoral? In T. Nadelhoffer, E. Nahmias & S. Nichols
(Eds.), Moral psychology: historical and contemporary readings (pp.
73-83). London, England: Wiley-Blackwell.
Nussbaum, M. (2012). Non-relative virtues: an Aristotelian approach. In
S.M. Cahn & P.M. Markie (Eds.), Ethics: history, theory, and
contemporary issues, 5th edition (pp. 755-774). Oxford: Oxford
University Press.
Reid, W. H. (1998). Antisocial character and behavior: threats and
solutions. In T. Millon, E. Simonsen, M. Birket-Smith, & R. D. Davis
(Eds.), Psychopathy: antisocial, criminal, and violent behavior (pp.
110-121). New York: Guilford Press.
Rygaard, N. P. (1998). Psychopathic children: indicators of organic
dysfunction. In T. Millon, E. Simonsen, M. Birket-Smith, & R. D.
Davis (Eds.), Psychopathy: antisocial, criminal, and violent behavior
(pp. 247-259). New York: Guilford Press.
Shay, J. (1995). Achilles in Vietnam: combat trauma and the undoing of
character. New York: Simon & Shuster.
Siever, L. J. (1998). Neurobiology in psychopathy. In T. Millon, E.
Simonsen, M. Birket-Smith, & R. D. Davis (Eds.), Psychopathy:
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
130 Chapter Seven
Widiger, T.A. & Lynam, D.R. (1998). Psychopathy and the five-factor
model of personality. In T. Millon, E. Simonsen, M. Birket-Smith, &
R. D. Davis (Eds.), Psychopathy: antisocial, criminal, and violent
behavior (pp. 171-187). New York: Guilford Press.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CHAPTER EIGHT
THE NEURODIVERSE
AND THE NEUROTYPICAL:
STILL TALKING ACROSS AN ETHICAL DIVIDE
DEBORAH R. BARNBAUM
Introduction
Persons with autism occasionally refer to themselves as “neurodiverse”
and refer to those without autism as “neurotypical.” Not all persons with
autism think of themselves as aligned with the “neurodiverse,” or the
“neurodiversity moement,” just as not all persons with typically
developing cognitive processes think of themselves as “neurotypical.”
However, for purposes of this paper, I will refer to those with ASD as
“neurodiverse” and those without ASD as “neurotypical.” The neurodiverse
and the neurotypical differ with respect to some cognitive characteristics.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
132 Chapter Eight
is a disagreement in which one party is just wrong, but both agree about
their background assumptions, such as which is the correct moral theory.
But what if the situation is more complex than the claim that one side
is simply wrong in their beliefs? What if the ethical divide exists in virtue
of a more complex debate? If the debate is in fact more complex, three
accounts emerge that explain the divide beyond the claim that one party
must be wrong. It may be the case that there is a fundamental difference in
the language that is used to communicate about disorders or disabilities,
and that this difference accounts for the divide. It may be that there is a
fundamental difference in moral theories used by the two groups which
accounts for the ethical divide. Finally, there may be a fundamental
difference in the concept of disease, malady, or disability that accounts for
the ethical divide. The remaining sections of this chapter, “Lack of a
Common Language,” “Lack of a Common Moral Theory,” and
“Competing Conceptions of Disease, Malady, or Disability” examine these
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
The Neurodiverse and the Neurotypical 133
What is Neurodiversity?
Philosophers have recently begun to analyze the concept of
neurodiversity. The term ‘neurodiverse’ is used to describe not only
individuals with autism, but also those with schizophrenia, bipolar disorder,
and other conditions. When considering neurodiversity and autism in
particular, it is helpful to begin with the views of Glannon, who observes
that “‘Neurodiversity’ usually appears in discussions of autism spectrum
disorders as the view that individuals with these disorders have at least as
much mental ability as disability” (Glannon, 2007b). Glannon’s claim
about neurodiversity is not as precise as one might hope. In saying that
persons with autism spectrum disorders (ASD) have “at least as much
mental ability as disability” Glannon implies that the abilities of persons
with ASD are limited, as their abilities are somehow only proportionate to
their disabilities. Glannon refines his position, later clarifying that
“…neurodiversity… recognizes that many people have a combination of
neurological and psychological abilities and disabilities” (Glannon 2009a,
quoting Baker, 2006). This is a better formulation, as it makes clear that
the abilities of persons with ASD are not limited by being merely
proportionate to their disabilities. However, this description doesn’t
sufficiently elaborate the concept of neurodiversity. Most people are hard-
pressed to think of anyone they know who doesn’t have a combination of
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
134 Chapter Eight
arguments for the claims that autism should be cured, or left uncured.
Their arguments consider concerns such as the liberty of the person who
may be forcibly cured, the harms that result from certain disabling
conditions, whether personal identity is compromised, the costs of cure,
and whether certain talents will be lost as a result. Rather than engage in
that level of debate, this discussion goes a step further: Given that there
may be disagreement among the neurodiverse and the neurotypical about
the soundness of Barnes’ and McCabe’s arguments, what accounts for this
disagreement? Is it possible that the disagreement is not a function of the
soundness of the arguments, but of something else?
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
The Neurodiverse and the Neurotypical 135
stand to reason that one group may be making one set of claims about
ASD, while the other could be claiming something very different. One
version of this hypothesis is that the language of the neurotypicals is
predicated on a common ascription of propositional attitudes typical of
individuals with a fully functioning theory of mind (ToM). If this
hypothesis is true, as it is postulated by psychologists such as Simon
Baron-Cohen (Baron-Cohen, 1995), then theories of meaning familiar to
philosophers that require shared propositional attitude ascription –
Gricean, Davidsonian, Lewisian – would be non-starters for persons with
ASD (Barnbaum, 2008). Grice’s theory requires that the individual who
hears a proposition uttered by a speaker understand not merely what the
hearer thinks the words mean, but also understand what the speaker means
for the hearer to think what the speaker means when language is used.
Such a complex set of iterated mental-state ascriptions, and shared mental-
state ascriptions, would seem problematic for persons with ASD on Baron-
Cohen’s absence of ToM account. Lewisian theories of meaning rely on a
shared common knowledge among users of a language, a common
knowledge which is predicated on shared mental-state ascriptions. Thus,
Lewis’s theory also poses challenges for the autistic language user.
Donald Davidson’s theory of radical interpretation, in which all speakers
attempt to interpret others’ utterances with an eye towards understanding
those utterances to be true, similarly is challenged by individuals who have
compromised ToM. All three of these theories of meaning are thus
unworkable by persons with autism, on Baron-Cohen’s account. As such,
the language used by the neurotypicals, whose meaning requires
functioning and effortless ascription of ToM, may not be the same
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
136 Chapter Eight
(McGeer, 2009). According to McGeer, persons with ASD are not skilled
in the shared folk-psychological expertise that characterizes the form of
life of the neurotypical. Thus a divide emerges by which neurotypicals
and neurodiverse do not understand each other. Instead of a “thick”
understanding, the neruodiverse and the neurotypical are both relegated to
a mere “thin” understanding of each other’s psychology (McGeer, 2009).
According to both Baron-Cohen’s ToM thesis and McGeer’s “form of
life” hypothesis, the language of neurotypicals is fraught with terms that
may be foreign to individuals with the social impairments that characterize
ASD. McGeer observes that Ian Hacking’s discussions of autobiographies
of the neurodiverse may reflect precisely this problem:
[T]he language available to display those minds is still our (nonautistic)
communal language, a language geared, for the most part, to typical
psychological experiences. As Hacking points out, autistic individuals will
have their work cut out for them to adapt, manipulate, and perhaps outright
distort the common meanings of our words in order to convey something
of their own subjective experience (McGeer, 2009).
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
The Neurodiverse and the Neurotypical 137
then would we be able to determine that the two parties were in fact using
language to describe different things. But in the absence of a shared meta-
language, which could be used to arbitrate debates among the two object
languages actually being used by the neurodiverse and the neurotypical,
we would never know if this solution is correct. Another explanation that
accounts for the ethical divide is needed.
To the extent that both groups (those with autism spectrum conditions and
those who are neurotypical) succeeded in viewing moral dilemmas in terms
of mental content, they do so in different ways, with individuals with ASC
using verbal scaffolding to increase their ability to draw meaning from
social scenes (Barnes, et al, 2009).
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
138 Chapter Eight
cite moral philosophy, but familiar themes that characterize moral theories
are a fixture of our moral discourse. The claim that the neurodiverse don’t
employ the same theories as the neurotypical is a claim that the reasons
and justifications offered by the neurodiverse for making moral decisions
are distinct from those offered by neurotypicals.
Persons with ASD are able to employ moral reasons, and be subject to
moral responsibilities, just as typically developing persons are. They
merely do so via a different method from the neurotypicals. What might
this method entail? As Barnes, et al, suggest, this method is a departure
from the neurotypical method of making mental-state ascriptions that
allow neurotypicals to utilize the theories mentioned above. David
Shoemaker articulates this claim when evaluating the moral capacities of
persons with high-functioning autism (HFA):
What is missing for those with HFA, remember, is just the ability to
recognize moral reasons via the standard route, by picking up on the
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
The Neurodiverse and the Neurotypical 139
groups agree more often than not; their most fundamental disagreement
may be about the applied ethical question whether autism should be cured.
The best explanation for an applied ethical divide is that there may be a
divide amongst ethical theories. However, while the neurotypical and the
neurodivese may use different moral theories, or different moral
methodologies, to draw ethical conclusions, that is not to say that they
ultimately draw different moral conclusions. Two moral theories may the
extensionally equivalent, drawing the same conclusions even as they base
their conclusions on different moral considerations. The incessant
perseverating on third-person perspective taking on the part of the
neurotypical, or the lack of effortless and spontaenous third-person
persepctive taking that characterizes the thought of the neurodiverse, does
not necessarily demand that different moral conclusions are drawn. That
is the lesson of Barnes, et al’s, work: The neurodiverse and neurotypical
may draw the same moral conclusions, based on different methodologies.
Thus, while the “lack of a common moral theory” may better reflect what
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
140 Chapter Eight
neurodiverse and the neurotypical. First, perhaps they are both using the
same conception of disease, disability, or malady, but they disagree as to
whether autism fits that shared conception. Whether or not there is a
moral imperative to cure certain diseases is at best situationally
determined; a fortiori there is no moral imperative to “cure” that which
isn’t a disease. Second, perhaps they are using distinct conceptions which
accounts for their disagreement as to whether autism should be cured. If
the second is true, it is easy to see how the neurodiverse and the
neurotypical would arrive at different conclusions as to whether ASDs
should be cured. But even if the first claim is true – that the neurodiverse
and the neurotypical are operating from the same conceptual views – it is
still the case that they may be in disagreement when assessing the moral
imperative to cure autism.
One set of definitions of disease or impairment posit that these
concepts are best understood as adverse deviations from typical species
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
The Neurodiverse and the Neurotypical 141
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
142 Chapter Eight
for long periods of time – surely these are nontrivial harms, say the
neurotypical. The neurodiverse respond by saying that they aren’t
suffering, or wouldn’t be, if the neurotypical were more inclusive. As
Fenton and Krahn observe, the neurodiverse “contend that autism is, or
perhaps certain forms of autism are, best regarded as different “ways of
being” from what is commonly represented… For these individuals autism
is not something from which they suffer, but is rather who they are…”
(Fenton and Krahn, 2007). It is true that those with ASD are suffering the
harms of lack of social interaction or eye contact, but only because the
neurotypicals set the agenda as to what counts as harming conditions. The
neurotypicals will respond that there is a fact of the matter that these are
harmful, and that they did not make the rules as to what counts as a harm
or not. The ethical divide can be accounted for via alternative notions of
what it is to suffer a malady, or alternative notions as to whether those
with ASD are objectively harmed by having ASD.
Finally, rather than focusing on naturalistic claims or attempting to
make claims about objective harms, a third approach holds that disabling
conditions are socially constructed:
If some portion of the difficulty of disability stems from the biological
limitations, the majority does not and is in fact socially constructed. In
asserting disability is socially constructed, I am making two claims: first,
that even those characteristics we label as “disabling” are at least partly
socially determined; second, that disability’s all-too-frequent consequences
of isolation, deprivation, powerlessness, dependence, and low social status
are far from inevitable and within society’s power to change (Asch 1989).
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
The Neurodiverse and the Neurotypical 143
Conclusion
A great deal rests on bridging the divide between the neurodiverse and
the neurotypicals who disagree whether or not autism should be cured.
The decision to cure or not has an impact on health care resources,
families’ time and efforts, and the possible infringement of a right of the
neurodiverse to be left alone without being changed without consent.
Barnes and McCabe (2011) were correct to engage the arguments for and
against curing autism head-on. This chapter attempted to go a step further,
and explain why the debate among the neurodiverse and the neurotypical
exists in the first place.
Three explanations may account for an ethical divide among the
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
144 Chapter Eight
References
Asch, A. (1989). Reproductive technology and disability. In S. Cohen
and T. Taub (Eds) Reproductive laws for the 1990’s. Clifton, NJ:
Humana Press, pp. 73.
Baker, D.L. (2006). Neurodiversity, neurological disability and the public
sector: Notes on the autism spectrum. Disability and Society vol 21,
pp. 15-19.
Barnbaum, D.R. (2008). The ethics of autism: Among them but not of
them. Bloomington, IN: Indiana University Press.
Barnes, J.L, Lombardo, M.V., Wheelwright, S., Baron-Cohen, S. (2009).
Moral dilemmas film task: A study of spontaneous narratives by
individuals with autism spectrum conditions. Autism Research vol
2(3), pp. 148-56.
Barnes, R. E. and McCabe, H. (2011). Should we welcome a cure for
autism? A survey of the arguments. Medicine, Healthcare and
Philosophy, August 12, epub ahead of print.
Baron-Cohen, S (2003). The essential difference: The truth about the male
and female brain. New York, NY: Basic Books.
—. (1995). Mindblindness: An essay on autism and theory of mind.
Cambridge, MA: MIT Press.
Blair, R.J.R. (1996). Brief report: Morality in the autistic child. Journal
of Autism and Developmental Disorders 26(5), pp. 571-579.
Caplan, A.L. (1996). The concepts of health, illness, and disease. In R.M.
Veatch (Ed.) Medical ethics. Sudbury, MA: Jones and Bartlett, p. 66.
Cohon, R. (2004). Disability: Ethical and societal perspectives. In S. G.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
The Neurodiverse and the Neurotypical 145
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CHAPTER NINE
WHO’S COUNTING?
COGNITIVE DISABILITY
AND RAWLSIAN CONTRACTUALISM
CHRISTOPHER MESAROS
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Who’s Counting? Cognitive Disability and Rawlsian Contractualism 147
range over large and diverse groups of individuals who have the potential
to exercise the two moral powers. I will also generally be referring to the
severely cognitively disabled unless noted otherwise. As far as I can tell,
the only uniform rubric for what we mean when we use the term “severe”
seems to be qualitative, in that it is a placeholder for something “like lack
of sufficient faculties that would make the individual an agent, a person, a
cooperator, etc.” I will begin with problematic features of Rawls’s own
theory and what he says regarding the disabled.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
148 Chapter Nine
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Who’s Counting? Cognitive Disability and Rawlsian Contractualism 149
Returning to the discussion at hand, the two moral powers are meant to
provide a conception of agency that most human beings will meet at some
point in their lives. The sorts of individuals lacking in the two moral
powers are young children, elderly persons with diminished cognitive
faculties, those whose unreasonable doctrines (e.g. religious fundamentalists)
or conceptions of the good inhibit or prevent the development or exercise
of their capacity for a sense of justice, and the severely cognitively
disabled. It is significant that of this group of outliers, the disabled are the
only ones that are incapable of having the two moral powers, as all of the
rest have them, had them at one point, or will potentially develop them.
Another outlier group that share permanent lack of the moral powers
would be non-human animals, and while there is much that could be said
here, I will not be concerned to discuss Rawls and animals in this paper.
Returning to Andrew, we can see how the two moral powers may not
necessarily be an all or nothing package. For someone with a behavioral
disability:
The behavioral characteristics of emotional disturbance include an inability
to learn, an inability to build or maintain satisfactory interpersonal
relationships, inappropriate types of behavior or feelings, a general
pervasive mood of unhappiness or depression, and a tendency to develop
physical symptoms or fears (Ysseldyke, 2006, 12).
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
150 Chapter Nine
Rawls goes on to note that the decisions to be made in these cases are
ones that promote the development of the two moral powers. We should
make choices for disabled individuals from the standpoint of the OP and in
a way that we could justify these choices to the individual should they
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Who’s Counting? Cognitive Disability and Rawlsian Contractualism 151
disabled. Rawls’s notion of primary goods simply does not consider the
needs or desires of the disabled, and so we should ask why these goods
would be the right ones for someone like Andrew. Certainly, it may turn
out that there is near or perfect overlap with what a disabled individual
would in fact desire as goods, but given that the goods are meant to be
based on and applicable to only and all rational and reasonable agents,
there is no necessary reason why this would be the case. Rawls’s theory
does not pretend to take into consideration whether these goods are the
right ones for outliers, and in the case of the disabled, it is explicitly not
considering these individuals. After all, rational agents are not able to
comprehend the objective interests of those who are banned from the OP;
it is this variance in cognitive functioning that prohibited the disabled from
representation in the first place.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
152 Chapter Nine
Self-Respect
Self-respect plays a crucial role in justice as fairness, as Rawls
frequently mentions it as perhaps the most important primary good. He
mentions the two most important aspects of self-respect as a person’s
sense of his own value and confidence in his ability to fulfill intentions.
Not having self-respect means not valuing one’s projects or not believing
them to be attainable. He says:
It is clear then why self-respect is a primary good. Without it nothing may
seem worth doing, or if some things have value for us, we lack the will to
strive for them…Therefore the parties in the original position would wish
to avoid at almost any cost the social conditions that undermine self-
respect (Rawls, 1971, 440).
Paternalism
In discussing the four pressure points, I mentioned above that Rawls’s
own proposal for how we might approach the disabled is to employ
paternalism after the four-stage procedure has been completed.
Unfortunately, this account of paternalism is rather underdeveloped and
leads me to some serious concerns. One worry I have is that it is not clear
exactly how we are supposed to act on the behalf of those whose mental
functioning we cannot pretend to comprehend, including what primary
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Who’s Counting? Cognitive Disability and Rawlsian Contractualism 153
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
154 Chapter Nine
society, since this would mean that coma patients or anencephalic infants
count as persons despite their obvious inability to contribute. Given these
limiting cases, we should eliminate that option immediately. The other
considerations require some analysis.
It is possible to adopt a definition of personhood that makes use of IQ,
but I have already supplied an argument against this suggestion. For the
disabled, IQ measurements present a host of complications that could
artificially deflate their performance: disabilities may inhibit focus and
concentration; individuals may test highly in one area while lacking in
many others; and testing requires an ability to communicate effectively in
response to the test, which is simply not possible for some due to certain
cognitive limitations. While IQ measurements may give us precise
boundaries, the cost of the precision is exclusion of individuals who make
important contributions yet who nonetheless test poorly. As they stand, IQ
tests cannot tell us anything important about whether or not an individual
is a subject of justice, and so we should be suspicious of any normative
account that employs this empirical notion, even in part.
Another option open is to employ a certain minimum standard of moral
faculty. For Rawls, this standard is the valuing of one’s own projects and
the recognition of the right of others to value and pursue their own projects
(i.e. a capacity to be ‘rational’ and ‘reasonable’). While we might think
these qualities are valuable in those who determine principles of justice
and set policy, if the principles and policies focus only on individuals with
such moral functioning, then we run head on into my worries elucidated
above. However, I am not rejecting Rawls’s standard wholesale. As a
device for achieving agreement on principles of justice, the two moral
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
powers are highly apt, and so I think we should not throw the baby out
with the bathwater. Moral faculty has some place in an inclusive
conception, for example when determining principles of justice.
A final candidate consideration is contributions made by the disabled.
These contributions might be labor, taxes, voting, etc., though they need
not be. Rawls says:
Our topic…is that of social justice. For us the primary subject of justice is
the basic structure of society, or more exactly, the way in which the major
social institutions distribute fundamental rights and duties and determine
the division of advantages from social cooperation (Rawls, 1971, 7).
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Who’s Counting? Cognitive Disability and Rawlsian Contractualism 155
all value the same primary goods, then we owe an explanation as to why
this is so. If, on the other hand, we determine that something like freedom
of religion is not primary when we consider an inclusive conception of
personhood, then we need to be able to distinguish between goods
valuable to some versus valuable to all. Of course, we are not looking for a
list of goods that are valuable to each and every individual given their
subjective interests, rather we want to know what goods are the subject of
justice and why.
Stepping Back
I have been arguing that Rawls’s theory as it stands faces considerable
worries and that it must be amended in some form in order to accommodate
the disabled. I gave three desiderata that Rawls would need to satisfy, and
I have not yet said whether these can be met via a Rawslian framework.
However, there is still the option for Rawls to bite the bullet and deny that
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
156 Chapter Nine
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Who’s Counting? Cognitive Disability and Rawlsian Contractualism 157
this point, the compassionate approach of the 19th century backslid for
several reasons including—importantly—lack of resources such as
facilities, funding, and staff. Both electroconvulsive therapy and sedation
have been and continue to be used in contemporary America, and both
remain sources of controversy. A similar firestorm of controversy rages on
regarding the use of restraint and seclusion, both of which are the subject
of a recent Education Department report that mentions the use of duct tape
to mechanically restrain preschool aged children and one case of a woman
in Kentucky who found her autistic son stuffed in a canvas duffel bag in
his school’s hallway (Hefling, 2012).
Suffice it to say, treatment of the disabled in democracies as a whole
has been generally better than in other political systems and is trending
upward, yet there is no reason to think that each liberal democracy—which
is Rawls’s focus—would necessarily be preferable to, say, a Communist or
Socialist society for someone with mental disabilities. Even where
resources are devoted, care in the United States has the possibility for
regrettable abuses. In this regard, I agree with Eva Kittay that the caregiver
profession is grievously undervalued (Kitay, 2001, 575) and one must
wonder how commonplace these dehumanizing cases would be were
caregivers held in as high esteem as, say, nurses or compensated as well as
other healthcare providers.
The point here is to highlight the reason that justice for the disabled
should be of such concern to political philosophers. Of course, none of this
shows that our concern for the disabled should be a matter of justice rather
than a duty of benevolence, yet it is clear that those goods that are most
often a matter of justice have historically been denied to most disabled
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
158 Chapter Nine
would mean) for the disabled would not fall under the purview of
distributive justice.4 One could compellingly argue that parents have duties
to their disabled children, for example, but this does not explain how we as
a society regard orphaned children with disabilities. If the duty is more
general, such that we are indeed concerned to ensure a minimum standard
of living for all individuals with disabilities, and the goods being
distributed are those that any individual would require for subsistence in
society, then the only difference between one’s being a subject of justice
versus being a subject of morality is the terms involved. Morality would
either be playing the role of justice by distributing goods and structuring
laws, or it would play a less compelling normative role where we say how
we ought to treat the disabled without guaranteeing such treatment. The
former makes morality’s role redundant with that of justice and the latter
raises the question of how we compel just treatment for the disabled if not
through laws and legislatures.
The OP device is the vehicle by which we provide goods and
determine principles of justice for Rawls, and these goods range from
access to employment, to education, to protections under the law. An
alternative or ex post facto moral account would presumably distribute
many of these same resources (though perhaps not an identical set),
otherwise the disabled would be left without vital goods and services. But
if this is the case, then the distribution of goods is not merely political after
all. We might be able to say that the justification of the distribution for the
disabled is now based on moral reasons, but the fact is that we are
distributing goods that are the concern of justice. In addition, justifying the
distribution of goods on moral grounds and not because of the
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
contributions being made turns the disabled into charity cases and
devalues their participation. As Elizabeth Anderson says, “Self-respecting
citizens would reject a society based on principles that treat them as
inferiors, even if the principles are kept secret” (Anderson, 1999, 306). To
be satisfied with a moral account for the distribution of goods is to ignore
Andrew’s labor, love, and self-respect.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Who’s Counting? Cognitive Disability and Rawlsian Contractualism 159
The benefit of this account is that it secures a basic minimum for the
disabled as a matter of justice—something Rawls does not explicitly
accomplish. This also alleviates some concerns about the principles of
justice being chosen without considering the disabled, though not entirely.
While Stark’s suggestion may address worries about providing goods
for the disabled, we would still require either justification for Rawls’s
goods or a separate account of goods for the disabled, given that Rawls’s
own primary goods are contingent on a definition of personhood not
attainable by the disabled. It also fails to capture self-respect—something
that Rawls acknowledged as essential for citizens. Namely, it ignores the
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
self-respect of not only individuals with severe disabilities, but also those
citizens with familial connections to these individuals by still discounting
the value of their loved ones in the political process, since they still lack
representation at the most crucial stage of the procedure. That is, if self-
respect involves valuing one’s political system and the freedom of its
citizens, then seeing one’s family member who could potentially make
contributions to society treated in a less than equal manner due purely to
their natural deficits would plausibly cause one to value the fairness of
their society less, and hence damage their self-respect. In effect, Stark’s
amendment merely pushes the problem down a level without addressing
serious worries about the contributions and status of the disabled.
It is possible that Stark is worried only with those individuals that
would never be able to make contributions to the basic structure,
regardless of advances in medicine or appropriate therapy. If this is the
class of human beings with whom she is concerned, then she and I are
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
160 Chapter Nine
talking past one another, since I am focusing on individuals who have the
capacity to both contribute and potentially develop the two moral powers
given proper consideration. However, this would mean that she has
nothing to say about individuals like Andrew and the entire spectrum of
disabled individuals between those with the two moral powers and those
who could never develop them. I am reading her description of those who
cannot participate in a scheme of cooperation as referring to those who
may be able to contribute and yet may not be able to cooperate to a
sufficient degree. If her account is targeting individuals who could never
make contributions to a scheme of cooperation, then this makes the
amendment even more restricted in scope, and so I will read her as
focusing on the same sorts of disabled individuals with whom I am
currently concerned.
Rawls stipulates that the representatives are fully rational throughout
the four-stage procedure, and this would hold true for the constitutional
convention stage where despite the fact that the veil of ignorance is lifted
to some extent and the procedure becomes less abstract, the parties are still
imagined as fully rational. The OP, wherein the two principles are chosen,
informs the entirety of the process from thereon. By the time Stark’s
amendment comes into play, representatives would have already made
decisions that would significantly impact the formation of society by
selecting the principles of justice. Thus, it seems that even if we allow for
representation in the conventional stage, we are still doing a disservice to
the self-respect of the disabled, so long as they are not allowed to have a
voice in the OP.
While Stark’s modification does overcome certain concerns, including
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
a lack of treatment of the disabled within the scope of justice, it does not
satisfy all of the desiderata I have supplied, and hence falls victim to
worries similar to those I raised against Rawls. There is on this
modification at least some attempt to address goods that would be primary
for all by virtue of the fact that parties consider the interests of the disabled
at the convention stage. However, there is no obvious attempt at an
inclusive account of personhood, since this modification does more to
protect the interests of citizens with the two moral powers than it does to
consider seriously the contributions and self-respect of those with
disabilities. Concordantly, lack of representation in the OP means that
fundamental tenets of the political system are being selected without ever
considering the disabled, and by the time the parties reach the
constitutional convention stage, these principles are merely being applied,
regardless of whether they are the correct principles for all.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Who’s Counting? Cognitive Disability and Rawlsian Contractualism 161
development of the two moral powers still holds for the disabled when we
focus on their potential. It is an empirical question, she argues, whether or
not an individual has these faculties but is unable to communicate them
sufficiently (as with her many examples of individuals who are
misdiagnosed or misunderstood), or does not currently have the faculties
but may one day develop them to a degree appreciable by fellow citizens
and thus qualify as rational for Rawls. Individuals with cognitive deficits
may require greater resources for the development of the two moral
powers, yet this is a case for why they should receive a greater distribution
of primary goods, not an argument as to why we should not focus on the
moral powers to begin with or assume that they are discounted from
consideration in the OP, she claims.
Wong laments the prevalence of misunderstandings about the nature of
the disabled and how varied cognitive deficits can be, yet she seems to
ignore the fact that humans can lack rationality, reasonableness (as with
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
162 Chapter Nine
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Who’s Counting? Cognitive Disability and Rawlsian Contractualism 163
This account allows for health care to “prevent and treat disease or
disability and other uses, for example, to enhance otherwise normal traits,”
with the caveat that these disabilities must be publicly recognizable (258-
9). The publicity condition, I take it, is meant to fend off claims of illness
that cannot be diagnosed or are not commonly recognized, e.g. being a
“sex addict.”
Daniels’s account has appeal to me, but just as did Wong’s, I believe it
misses the mark to some degree and undermines Rawls’s own account.
The project of normalization requires much more from citizens than justice
as fairness asks; it places a great deal of economic and social burden on
society in order that the disabled develop traits that may never come to
fruition. An objection to normalization where ideal citizenship is held as
the norm for all agents is that it may violate the strains of commitment for
those shouldering the costs. The economic burden on the “normal” citizens
would be quite large, if contemporary health care and education costs are
any indication: special and regular education programs costs were in
excess of $77 billion for 1999-2000 in the United States alone (“What Are
We Spending on Special Education Services in the United States”). The
disabled often require not only technology but also human assistance to
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
perform even the most basic functional tasks. One might think that a
society would have to be quite wealthy in order that all citizens assent to
the sort of investments that would be requisite for even the most basic
assistive technology across the board.
Of course, someone like Daniels might insist that the funding be
proportional to the wealth of the society and of course we could not
bankrupt the many for the gains of a few individuals. This also seems to
me a mistaken line of argument without an inclusive conception of
personhood precisely because justice for the disabled is then proportional
to the wealth of society and, unlike for the least advantaged, we could
conceivably have a just liberal democratic society that is economically
able to provide a minimum standard for its cooperating members yet
provides nothing for the disabled. Hence, a society lacking an inclusive
conception of personhood has the potential to be one where the disabled
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
164 Chapter Nine
are not regarded as a matter of justice at all, which puts us back at the
initial concern of completely discounting the disabled.
There are at least two potential ways for Daniels to avoid the worry
mentioned above. The first is to suggest that society would provide a
minimum amount of goods necessary for survival as a matter of moral
obligation that we have towards the disabled, regardless of the wealth of
such a society. However, this would mean that the modification does not
address concerns about the disabled internal to the system of justice, and
we are back where we started with an unmodified Rawlsian system. The
second way to avoid the worry is to say that society would provide such a
minimum standard as a matter of justice, perhaps by regarding the disabled
as amongst the least advantaged. I think this would be the right way of
responding to the challenge, but it is not clear to me that Daniels has this
sort of a response at his disposal, since the disabled are not regarded as
citizens in the OP and we would need additional machinery for this
account in order that they are counted as such. I will make a case for this
below.
Daniels has come the closest of all the modifications I have examined
to giving us a satisfactory account, but I have argued that simply providing
access to health care will not be sufficient. While it might be the case that
this would meet the standards for goods primary to all and also address
worries about someone like Andrew whose position may be significantly
improved with proper health care, we still lack an inclusive account of
personhood. This means that Daniels cannot yet count the disabled
amongst the least advantaged, and hence does not have the theoretical
framework in place to indemnify them against unbearable conditions.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Who’s Counting? Cognitive Disability and Rawlsian Contractualism 165
Inclusive Contractualism
In the rest of the paper I will present a modification to Rawls’s theory,
drawing heavily on recent work by Christie Hartley, particularly her
suggestion that contribution to any form of the basic structure of society
will suffice for one to be considered a subject of justice, as laid out in “An
Inclusive Contractualism” and elsewhere. As with her account, I will be
addressing those individuals who, though they lack the two moral powers,
may nonetheless be able to develop them through adequate distribution of
goods. I reserve discussion of those individuals wholly incapable of
developing the capacities for rationality and reasonableness for a more
complete account than the one offered here. This modification is meant to
include the majority of disabled individuals and would exclude, for
example, anencephalic infants. My account will be necessarily brief, and I
do not mean to completely address my concerns elucidated above. I intend
for my desiderata for inclusive theories of justice that I have provided to
stand on their own as concerns for any theory, regardless of how
successfully I can amend justice as fairness. That said, I will now offer a
theory for an inclusive Rawlsian contractualism.
While Rawls may be susceptible to worries about the disabled being
excluded, I think that his account has incredible promise for capturing
what an inclusive account should offer. He identifies the importance of the
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
basic structure, formulates the concept of the primary goods, has a device
for abstracting away from bias, shows the importance of self-respect, and
provides a minimum standard of living for all citizens. What we need is a
way to include the interests and welfare of the disabled in this account, and
I mean the account I provide to function as a plausible amendment to
Rawls’s own work.
Access
In a sense, what should be sought for the disabled is not all that
different from what most persons would want for themselves. Elizabeth
Anderson offers a tripartite conception of individual functioning: as a
human being (the means to one’s biological survival); as an equal
participant (the means to contribute via labor, production, etc.); and as a
citizen. (Anderson, 1999).6 Being a citizen means having access not only
to what we typically view as political rights, such as freedom of speech,
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
166 Chapter Nine
but also access to civil society. This last point is particularly relevant when
discussing the disabled, so I shall dwell on it for a moment.
Civil society, according to Anderson, includes institutions like public
parks, restaurants, theaters, sports stadiums, airports, schools, hospitals,
and so on. Having the right of being a citizen means not only having
access to these institutions, but also having the right to not feel shame or
exclusion when participating in their use. She says of functioning as a
citizen, “This also entails the social conditions of being accepted by
others, such as the ability to appear in public without shame, and not being
ascribed outcast status” (Anderson, 1999, 318). We can easily imagine
where this might go awry in the public domain: segregated seating;
restrictive access; limited viewing times; inferior facilities; and less
tangible discrimination such as gawking, leers, and derision. Discreet
institutional discrimination (e.g. subtle racist hiring practices), as American
history has shown, can be just as detrimental as overt discrimination.
Access need not guarantee respectful treatment, though this should be a
goal for a liberal democracy. Andrew’s need to feel as though he fits in
should be validated to the extent that he can participate in the same
institutions as others without being the subject of ridicule or being made to
feel like an outcast. This does not suggest that a just society employs
thought police, rather that the system is structured to promote inclusion
and respect in the same way Rawls envisions we promote the development
of the two moral powers, namely through education and socialization.
Access to institutions is important, and it goes a long way towards
addressing my worry about self-respect, but if the access is not extended to
the political domain, then my worry remains. That is to say, so long as the
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Who’s Counting? Cognitive Disability and Rawlsian Contractualism 167
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
168 Chapter Nine
very difficult to appreciate what an individual who lacks the two moral
powers would truly desire. Indeed, one might have trouble appreciating the
value of such a life as even being worth living—fully rational agents may
undervalue a life below Rawls’s threshold where development of even
basic capacities requires great effort and substantial resources. Yet, though
there may be an element of paternalism to even the modified Rawlsian
account, it is not the same as that account employed by Rawls once the
four-stage procedure has been completed. Rawls would have the parties
stipulate when others are authorized to act on their behalf in order to
protect them from themselves. This account would have the parties
consider what goods would help promote the development of their
capacities and respect their ability to contribute to the basic structure.
While both accounts employ a form of paternalism, the veil modification
account does so with the intention of helping the individuals more fully
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Who’s Counting? Cognitive Disability and Rawlsian Contractualism 169
realize their capacities, and it does so in the OP in order that the disabled
citizens receive representation.
Goods
Rawls’s own account of primary goods is comprehensive and well
thought out to the point that I have been criticizing him by showing how
he fails to guarantee these goods for the disabled. It is of my opinion that
an inclusive account should provide those same primary goods that Rawls
proffers as valuable to rational and reasonable citizens. Again, these goods
include: rights and liberties; freedom of movement and freedom of
occupation; powers and responsibility; income and wealth, and the social
bases of self-respect. However, because the disabled face unique
challenges and because the history of Western democracies has been far
from just in their treatment of the disabled, I will be concerned to highlight
those goods that are of particular value to the disabled.
Even in contemporary democracies, the disabled often lack those basic
human necessities. For example, it is estimated that 20-25% of the
homeless in America have a severe mental illness, as compared with 6%
of the total population, suggesting that the disabled are often the worst off
among us (Mental Illness and Homelessness). Anderson notes that,
“Homelessness—that is having only public dwelling—is a condition of
profound unfreedom” (Anderson, 1999, 318). However, even having
domiciles does not guarantee protections. In 2009 there was a case of
reported abuse where the staff of a school in Corpus Christi, Texas for
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
adult males with severe disabilities would stage “fight clubs” by goading
the clients into fighting with one another while staff recorded and mocked
the spectacle. Police said twenty such videos were found spanning nearly a
year (Sabo, 2011). Cases like the Kentucky mother and the Texas fight
club point to mistreatment and lack of compassion even where housing
and care are made available. Counting the disabled as citizens would mean
that we would provide at least some bare minimum of support for
nourishment, housing, health care, and so forth, and all of these can easily
fall under the umbrella of Rawls’s goods, so long as the disabled are
accorded the same basic minimum as the least advantaged.
Another set of goods that often escape the disabled are protections by
the state that facilitate biological survival. This would mean not only
protection by law enforcement, but also recognition of the special needs of
the disabled when it comes to policing, e.g. training in psychological
approaches rather than physical. It would also include protection from
abuses in care settings where the disabled are often at their most
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
170 Chapter Nine
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Who’s Counting? Cognitive Disability and Rawlsian Contractualism 171
of threatening the ability for citizens to pursue their interests (i.e. exercise
their capacity for rationality). For an inclusive Rawlsian account, these
goods are meant to apply to all who contribute to society where
contribution is understood as benefiting the basic structure as a part of the
social community. Though my set of primary goods is identical to those
Rawls provides, this discussion is meant to illustrate that certain basic
goods are often denied to the disabled in contemporary societies which
makes their distribution for the disabled all the more important.
follows:
Social and economic inequalities are to satisfy two conditions: first, they
are to be attached to offices and positions open to all under conditions of
fair equality of opportunity; and second, they are to be to the greatest
benefit of the least-advantaged members of society (the difference
principle) (Rawls, 2001, 42-3).
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
172 Chapter Nine
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Who’s Counting? Cognitive Disability and Rawlsian Contractualism 173
average citizen, and so the worst case for a disabled citizen would
potentially be even much worse than for cognitively average citizens.
There is still a question of whether or not parties would select
Rawlsian principles when given an option that still provides a basic
minimum for disabled citizens and yet does not maximize the benefit of
the least advantaged.8 For example, consider a utilitarian account that
would not allow for starvation and yet was more cost effective for the
citizens by not allocating resources for the development of the two moral
powers with regards to the disabled. In such a case, we might wonder
whether the parties in the OP would still prefer justice as fairness given the
immense burdens it may require of citizens in contrast with a more
egalitarian utilitarianism that may have a lower standard for the least
advantaged and yet does not ask them to endure an unbearable life with no
basic liberties or rights.
I believe parties in the OP would still prefer the more costly maximin
option in contrast with a utilitarian option that provides a basic minimum.
The representatives would still be behind the veil of ignorance and hence
would not have access to things like probability of having a disability or
becoming disabled. Since the primary goods are meant to apply to citizens
with the two moral powers, representatives would value those goods most
when able to exercise their capacities to a satisfactory level. One might
still have access to goods on a utilitarian scheme that provided a basic
minimum, but without the capacity to utilize such goods, it is hard to see
how they would have value for citizens. Hence, parties would be
concerned to ensure that disabled citizens would be in the best position to
value the goods they were allotted, and this means selecting the modified
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
174 Chapter Nine
Objections
No Method for Determining Objective Interests
One objection that might be presented with respect to my account is
that I have not satisfied the second of my own three desiderata, namely
that we have a method for determining the objective interests of the
disabled. I will have to offer some defense, though I think there is still a
residual worry.
The first thing to say on my behalf is that, contrary to Rawls’s original
account, we are in a better position on my amended version to determine
the objective interests of the disabled. This is because the representatives
will know certain features of those individuals being represented, namely
that they may be disabled in any of a variety of ways. However, there is
still the cognitive barrier between the representatives and the disabled such
that if we do not have a sufficient means of understanding what goods
would be of value to irrational or unreasonable agents who may still
develop the two moral powers, it can be near impossible to determine what
goods are objectively valued by disabled citizens. We will have to hope
that in making an earnest effort we come close enough. Of course, by
promoting the development of the two moral powers we promote
capacities that would make use of the primary goods being distributed.
The second defense of my account is that we are at least making the
effort to consider what might be primary goods for the disabled. That is to
say, Rawls is open to the worry by virtue of the fact that he fails to even
consider the disabled as citizens, and so we immediately rule out concern
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
over whether the goods align with their actual interests. My account may
still fall victim to the empirical worry about how we actually know what
goods are the correct ones, but structuring our society in ways that attempt
to appreciate the needs of the disabled will almost necessarily do better at
finding the right goods; this is a response that I believe is open to Hartley
in defense of her own work.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Who’s Counting? Cognitive Disability and Rawlsian Contractualism 175
speak for the future actions of those who are potentially irrational or
unreasonable. Recall Andrew who sincerely wants to fit in, yet cannot stop
himself from doing harm in a fit of rage.
My reply to this objection is to say that while the representatives
cannot give assurances, they can assent to structuring the laws in such a
way that they guarantee respectful and reasonable punishments for
violations by the disabled. I suggested earlier that police should be given
training in order to be sensitive to the special needs of the disabled, and
this would be an example of the function of representatives in the contract
that would give assurances to the other participants that defections will not
be permitted. Representatives in the OP would be able to assent to such
laws because they would uphold the principles of justice, and the disabled
would not be harmed by such laws because they would take into
consideration the limitations of some disabled persons as regards obedience
towards the law.
Conclusion
In this paper I suggested four pressure points of Rawls’s theory that
open him up to criticism by those who insist that the contributions of the
disabled merit consideration within a political conception of justice. I then
gave three desiderata that any inclusive theory would need to address,
which consisted of an inclusive conception of personhood, a method for
determining objective interests, and an accurate list of primary goods. In
the last half of the paper I gave a positive account of an inclusive Rawlsian
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
contractualism that builds off both Rawls and Hartley, and which
employed some work by Elizabeth Anderson. While I think critics are
right to insist that there is insufficient treatment of this issue in Rawls’s
work, I disagree that this amounts to abandoning justice as fairness as a
viable candidate for an inclusive theory of justice.
What I have offered is a modification of Rawls that is meant to treat
seriously the self-respect of someone like Andrew and the contributions of
all disabled individuals. I have rejected the idea that we face a dichotomy
between an ineffectual contractualism where everyone is allowed
participation and no overlapping consensus is possible, and a contractualism
that rejects the disabled as a subject of justice and ignores their contributions
to the basic structure of society. This modification notices that disabled
individuals are part of the web of society and so intuitively deserve rights,
recognition, and protections that derive not merely from principles of
charity.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
176 Chapter Nine
References
Anderson, Elizabeth. What Is the Point of Equality? Ethics. 109.2 (1999):
287-337.
Brownlee, Kimberly and Adam Cureton (ed.) Disability and
Disadvantage. Oxford: Oxford University Press, 2009.
Comer, Ronald J. Fundamentals of Abnormal Psychology. 3rd ed. New
York: Worth Publishers, 2001. 10-11.
Daniels, Norman. Democratic Equality: Rawls’s Complex Egalitarianism.
The Cambridge Companion to Rawls. Ed. Samuel Freeman. New
York: Cambridge University Press, 2003. 241-276.
—. Equity of Access to Health Care: Some Conceptual and Ethical Issues.
The Milbank Memorial Fund Quarterly. Health and Society. 60.1
(1982): 51-81.
Hartley, Christie. “Disability and Justice.” Philosophy Compass 6.2
(2011): 120-132.
—. Justice for the Disabled: A Contractualist Approach. Journal of Social
Philosophy. 40.1 (2009): 17-36.
Hefling, Kimberly. The San Diego Union-Tribune. Activists seek to curtail
restraining students. Web. 24 March 2012.
Kittay, Eva Feder. At the Margins of Moral Personhood. Ethics. 116.1
(2005): 100-131.
—. When Caring Is Just and Justice Is Caring: Justice and Mental
Retardation. Public Culture. 13.3 (2001): 557-579.National Coalition
for the Homeless. Mental Illness and Homelessness. July 2009. Web. 2
June 2011.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Who’s Counting? Cognitive Disability and Rawlsian Contractualism 177
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CHAPTER TEN
KEISHA RAY
cases when there is a consensus about what role health care ought to play
in individuals’ lives and what conditions are considered diseases. Concerning
the neurodiverse, however, specifically individuals with Asperger’s
syndrome (AS), utilizing normal as a baseline for judgments in health care
can be detrimental to making mental health care available to individuals
whose place within the spectrum of “normality” is unclear, yet can
reasonably be expected to benefit from mental health therapy.
Many explanations of “normal” have been utilized by the sciences for
purposes ranging from theoretically and clinically distinguishing “health”
from “disease” to determine what conditions health insurance ought to
fund. For example Wachbroit (1994) offers three different ways of
understanding normality: 1) as a statistical concept in which what is
normal is the mean of multiple items; 2) as societal norms, in which one’s
culture determines what is normal, typically by distinguishing actions,
behaviors, and viewpoints that are typical or common in that society from
those actions, behaviors, and viewpoints that are unusual or uncommon in
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
How Empirical and Social Explanations of Normal Influence 179
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
180 Chapter Ten
Asperger’s Syndrome
Asperger’s syndrome is a cognitive disorder with autistic-like
characteristics, but without significant linguistic or cognitive delays.
Although AS is a form of autism, AS is typically contrasted with autism
based on the typically above normal intellectual abilities. This includes a
typical superb sense of their surroundings, but below normal social skills
possessed by some individuals with AS (Landeweerd, 2011). The below
normal social skills typically associated with individuals with AS include
the inability to empathize with others, act in accordance with commonly-
held rules of social interaction, and appear interested in conversation.
Also, individuals with AS often have very rigid, specific interests
(“Asperger’s Syndrome,” n.d.; Ghaziuddin, 2010; Landeweerd, 2011).
Because individuals with AS often have a high level of intelligence
(Horowitz, 2008), they are often thought to have an advantage that most
individuals without AS do not have. Additionally, they are often thought
to not have a disability or a disadvantageous condition that needs to be
treated. Attesting to this, Baron-Cohen (2000) states that describing AS as
a disability may be an inappropriate description of the syndrome, rather
“difference” may better describe the disability. For funding purposes,
however, Baron-Cohen states that we might want to continue to describe
AS a disability. In further support of Asperger syndrome’s questionable
disability status, Landeweerd (2011) gives a testimony from a mother with
AS who explains the disadvantages AS brings to her social life, yet she
also notes the advantages it has brought to her children. Landeweerd
(2011) also gives a testimony from a graphic designer/photographer with
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
AS who explains how her “disability” allows her to perform her job better
because it made her a visual thinker, a skill important to her career. As
additional testament to the growing belief that AS is not always a
disadvantageous condition, it has been debated whether AS should not be in
the DSM-V, partly because some believe AS to be no different than high
functioning autism (Ghaziuddin, 2010), an uncontested condition, and
arguably, partly because of the believed advantages it brings individuals
with AS demonstrated by the testimony of the designer/photographer.
Based on the characteristics associated with AS, namely high level of
intellectual abilities, individuals with AS are often thought to be normal or
above normal by at least some explanations of normal. Perhaps because of
the potential career and monetary benefits of superior intellectual ability
and societal values of capitalism and financial security, the intellectual
abilities of individuals with AS often overshadow the social impairments
associated with AS, even though social skills, arguably, are also a societal
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
How Empirical and Social Explanations of Normal Influence 181
Normal Functioning
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
182 Chapter Ten
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
How Empirical and Social Explanations of Normal Influence 183
least in some sense), and based on this belief we can make the claim that
individuals with AS are not a concern of health care personnel or at least
are not a priority. Even if we conceded that individuals with AS are
functioning normally, the claim that they are not a concern of health care
personnel does not follow. This is especially true if we take into account
the likely biological basis for the below normal social functioning
associated with AS. If biological dysfunction were considered a concern
of health care personnel, then below social functioning would make
individuals with AS a concern of health care. Similarly, if we utilize EOP,
a commitment to the idea that individuals with AS are functioning
normally, does not necessarily lend support to the idea that they are not a
concern of health care personnel.
When applying EOP to individuals with AS the argument seems to
both support and not support the decision to treat and fund mental health
therapy. The high verbal IQ (Ghaziuddin & Mountain-Kimchi, 2004) and
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
184 Chapter Ten
AS.
I contend that the disadvantages of AS entitle individuals with AS to
medical care; however, relying on some explanations of “normal”
excludes individuals with AS from receiving beneficial medical care.
Counter to this contention is the belief that a lack of social skills is an
impairment that confers minimal disadvantages to individuals with AS.
Because of the mild nature of the impairment, health care personnel are
not obligated to treat individuals with AS. As the argument goes, there are
many factors that determine access to opportunity, and a lack of social
skills, as one of those many factors may not be detrimental to accessing
opportunities, at least no more detrimental than if an individual lacked one
of the other factors that impacts access to opportunities. Social skills may
be just one of the many factors that influences access to opportunity;
however, this does not lead to the conclusion that individuals with AS
should not have access to medical care. This argument bases the claim that
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
How Empirical and Social Explanations of Normal Influence 185
Treatment/Enhancement Distinction
Like philosophers of medicine, political philosophers have also offered
accounts of just health care. For instance luck egalitarianism, a philosophical
position that distinguishes between luck and choice to determine what is a
just distribution of resources, offers an account of just health care. Shlomi
Segall (2010) uses the differences between medical intervention that is
considered treatment and medical intervention that is considered
enhancement to describe one such luck egalitarianism account of just
health care. Treatment can be understood as medical interventions that are
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
186 Chapter Ten
we are not obligated to fund all treatments. Treatments that we are not
obligated to fund may include treatments that are unlikely to successfully
remedy an individual’s ailment. Furthermore, in most cases we are not
morally obligated to fund medical intervention in instances when there is
no disease, but we might be morally obligated to do so when funding
medical intervention is done in the name of championing values such as
equality. Daniels (2000) gives the example of funding abortions when
pregnancy is unwanted for non-medical reasons. Daniels (2000,1981)
concludes that health care personnel is only morally obligated to raise
individuals to a level of species normal functioning; however, health care
personnel is not obligated to raise individuals to a level of functioning
beyond normal, but may do so for other reasons.5 Relying on Daniels’ own
example of abortion, we are lead to conclude that in some instances a
system of health care may be obligated to fund some interventions that can
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
How Empirical and Social Explanations of Normal Influence 187
also be argued that society creates the environment that makes certain
conditions, such as AS disadvantageous by being unaccommodating to
different styles of communication (Daniels, 2001). Our role in creating
such an environment gives us the option to alter those values, thus
changing the disadvantageous nature of particular conditions. Since it
would be a timely endeavor for a culture to significantly change its values,
we also have the option to promptly help individuals lessen the effects of
their disadvantageous condition.
Treatment/Enhancement Distinction
and Asperger’s Syndrome
A consensus concerning whether AS is a disease would make the
question of whether AS is a concern of health care personnel much easier
to answer within the framework of T/E. Within the framework of T/E, AS
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
188 Chapter Ten
Conclusion
I have offered common judgments concerning just health care that are
grounded in an explanation of normal. These judgments can be used to
exclude individuals with Asperger’s syndrome from health care by
supporting the viewpoint that these individuals are functioning normally.
To counter this viewpoint I have given ways that individuals with AS can
benefit from health care, and how they may be at a disadvantage because
of AS. Although I used the specific case of individuals with AS, my
argument could easily apply to any member of the neurodiverse
community. Any member of the neurodiverse community whose place
within the wide spectrum of normal and not normal is unclear is subject to
my argument. Any member of the neurodiverse community who does not
neatly and without controversy fit societal, empirical, and/or functional
accounts of what it means to be normal, could potentially be excluded
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
How Empirical and Social Explanations of Normal Influence 189
from the benefits of health care, even though they could benefit from
mental health therapy.
I give the example of individuals living with AS to give light to the
problems that arise when we use standards of normality to make
judgments about individuals who make it particularly difficult to judge
whether they are normal or not normal. Although we must have some
method of distributing health care’s limited resources, and utilizing
explanations of “normal” is one way to do that, we cannot help but
question the value of “normal” in such judgments if utilizing this concept
has the potential to withhold treatment from members of the neurodiverse
community. I do not claim that we should completely terminate using
judgments concerning just health care that utilize explanations of
“normal;” however, utilizing normal must be weighed against values such
as equality. In the name of other societal values, in some instances we are
required to ensure mental health therapy, despite the guidelines that may
be set forth by explanations of “normal” in cases where individuals can
reasonably be expected to benefit from medical intervention.
References
Asperger’s syndrome. Retrieved June 5, 2012, from http://www.autism-
society.org/about-autism/aspergers-syndrome/
Baron-Cohen, S. (2000). Is Asperger syndrome/high-functioning autism
necessarily a disability?. Development and Psychology, 12(3), 489-
500.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
190 Chapter Ten
http://www.mayoclinic.com/health/aspergers-syndrome/DS00551/
DSECTION=treatments-and-drugs
Wachbroit, R. (1994). Normality as a biological concept. Philosophy of
Science, 61(4), 579-591.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CHAPTER ELEVEN
FROM NEURODIVERSITY
TO NEUROCOSMOPOLITANISM:
BEYOND MERE ACCEPTANCE
AND INCLUSION
RALPH SAVARESE
Neurodiversity has begun to receive its due. More and more attention
is being paid to the idea of neurological differences as both a natural
reflection of human variation and a complex, if not paradoxical, boon—
what one writer, speaking of bipolar disorder, calls “a gift with a shadow
side” (Antonetta, 2010, p. 73). My own co-edited special issue of Disability
Studies Quarterly, “Autism and the Concept of Neurodiversity,” presents
some forty contributors from different academic disciplines and indeed
occupations, each of whom argues in her own way for the need to
eschew a strictly pathologizing view of autism (E. Savarese & R.J.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
192 Chapter Eleven
who “can taste sound and smell colors” (2010a)? Or, like Amanda
Baggs, who organizes the world in elaborate, non-symbolic patterns? Or,
like Tito Mukhopadhyay, who flaps to know that he has arms. That DJ,
Dawn, Amanda, and Tito use language so effectively doesn’t diminish
their difference; rather it attests to the work they have done to learn how
neurotypicals operate. That neurotypicals fail, in turn, to apprentice
themselves to an autistic neurology (including very different sensory
processing) points to the limits of neurodiversity as an emancipatory
concept and to the need for some kind of alternative.
Before discussing the articles I mentioned by Amanda Baggs and
Dawn Prince, I want to establish what postcolonial scholars mean when
they speak of cosmopolitanism. At its most basic, the term signifies a
belief in a single, transnational community, a community whose shared
values can forestall the often negative effects of differences such as
nationality, race, ethnicity, class, language, and culture. The dream of a
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
From Neurodiversity to Neurocosmopolitanism 193
deaf and hearing people to meet “halfway” (1989, p. 146). Bragg didn’t
recognize the young man because he was now fluent in sign language.
Upon learning who he was, he exclaimed joyously, “Halfway!” Bragg’s
notion of “halfway” is akin to what I’m calling, in the context of autism
and other neurological differences, neurocosmopolitanism.
Amanda Baggs became famous for her 2007 YouTube sensation, In
My Language, which presents, initially without explanation, a woman
engaging in what medical professionals would term perseverative
behavior. About halfway through the video, the phrase “A Translation”
appears, and Baggs begins to unpack, with the aid of a text-to-voice
synthesizer, what the viewer has actually just seen. Referring to such
perseverative behavior as her “native language,” she declares, “My
language is not about designing words or even visual symbols for people
to interpret. It is about being in a constant conversation with every aspect
of my environment” (2007). Although she lays bare the presumption of
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
194 Chapter Eleven
intellectual disability with her keen sense of argument, Baggs wants the
viewer to appreciate her more natural way of experiencing the world. The
viewer can both hear and see her playing with running water in a sink.
“The water doesn’t symbolize anything,” she explains. “I am just
interacting with the water as it interacts with me” (2007). “Far from being
purposeless,” she adds, “the way that I move is an ongoing response to
what is around me” (2007).
At this point in the YouTube, Baggs explicitly politicizes the
denigration of her kind of thinking: “Ironically, the way that I move when
responding to everything around me is described as ‘being in a world of
my own’ whereas if I interact with a much more limited set of responses
and only react to a much more limited part of my surroundings, people
claim I am ‘opening up to true interaction with the world’” (2007).
Rejecting what Erin Manning calls “the primacy of the verbal” (2009, p.
39) and the narrow engagement it affords, Baggs uses her senses in an
utterly dynamic and yet non-symbolic manner. She “call[s] forth a field of
relation rather than a static, interactive self” (2009, p. 40), a self that
masters such sensation with meaning. “To interact in a self-contained
verbal way,” Manning contends, “would involve parsing [the world’s]
taking-form into a simple activity” (2009, p. 40). Might neurotypicals,
then, Baggs implies, fit the definition of autism: people alone in the world,
unable to interact fully and appropriately with their (nonhuman)
surroundings?
Of course, this more holistic response to the environment puts at risk
the personhood of the autist. For one thing, being so attuned to the
relational field can render linguistic distinction a baffling contrivance and
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
From Neurodiversity to Neurocosmopolitanism 195
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
196 Chapter Eleven
while bedecked, say, with sound jewelry. In fact, Baggs almost seems to
intuit a Bragg-like meeting ground or “halfway” point in symbolic
language.
Nevertheless, she says that “patterns and connections,” which arise
from “the movements of [her] body” and “the smells in the air,” are “more
[her] language than the words that appear on the screen when [she] let[s
her] fingers use the keyboard” (2010). And she shows how autism can act
like a pattern forging accelerant, as differently expressive and communicative
as typical language:
I have a body language that some others—usually autistic people—can
under-stand. I have the way I interact with things around me at a particular
time,compared to how I usually interact with them. I have ways of
arranging objects and actions that give clues about where my interest is
directed and in what manner. I can tap out rhythms in general or those of
my favorite numbers (I really like the rhythm of seven, for example.). I
can speak Feline about as well as anyone with my limited human senses
(2010).
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
From Neurodiversity to Neurocosmopolitanism 197
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
198 Chapter Eleven
oneself means being at home with all manner of organisms and entities,
for identity is always mixed, fluid, and permeable.
It is precisely her feeling of “extreme connection” (Savarese, R.J.,
2010), to borrow Tito Mukhopadhyay’s phrase, the force of her
synesthetic understanding, that allows Prince to communicate with the
non-human world in what she calls “the language of silence”:
When I was young I talked to animals in that language of silence. I knew
what trees and streams were saying because they told me. I knew what
sow bugs were saying because they molded me. I grew together with them
because of the words of living together in a world where everything needed
everything else. Sometimes my grandfather would ask me in the garden,
“What are the worms saying today?” “Fine fine slither dirt push good
rotting green,” I would answer smiling (2010b).
Here again, the alternative language conceit strives to give voice to the
voiceless, if only to undermine the privileged status that neurotypical
humans grant themselves. Unfortunately, this happy, animistic time didn’t
last because Prince was compelled to use language more conventionally--
as a “weapon…that cut up the world [and] also cut groups of people one
from another” (2010b). In this way, “autism” became a term denoting
pathological otherness and deficiency, not relational wholeness.
As Prince relates in Songs of a Gorilla Nation (2010c), she found
herself increasingly alienated from neurotypical society, even becoming
homeless for a while. Only by interacting with gorillas at the zoo, by
mimicking their behavior and language, was she able to reaffirm her
difference and eventually to return to college and even to embark on a
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ph.D. in anthropology. One day, while in graduate school, she flew down
to Decatur, Georgia to meet Kanzi, a Bonobo chimpanzee famous for his
acquisition of human language through keyboard lexigrams and whom
Prince calls a “captive born man” to stress the way that neurotypicals
enforce a rigid and condescending distinction between our species and
other animals. “Naturally, I fell into the gorilla language I knew,” she
reports in “The Silence Between” (2010b). After she had developed a
relationship with Kanzi by “play[ing] chase up and down the fence line,
both of [them] on all fours, smiling in a sea of breath” (2010b), he pointed
to the word “gorilla” on his word board and then made the American Sign
Language sign for “question,” though he himself had only seen a video of
a gorilla using ASL. Because Kanzi hadn’t seen any other gorillas, he
assumed that all gorillas communicated in this fashion. “Are you a
gorilla?” he was asking.
“There were so many miracles of language in that one interaction,”
Prince explains, “that I didn’t know where to start writing about it within
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
From Neurodiversity to Neurocosmopolitanism 199
the rules: I couldn’t build on other people’s ideas. I couldn’t cite previous
research, I couldn’t capture what had happened in terse and distant
language. Even the subject itself was taboo as ‘anthropomorphism’”
(2010b). This sort of “halfway” moment seems to mock the categorical
division upon which conventional language is based, to say nothing of the
tradition of disinterested investigation. If a bonobo chimpanzee can call an
autistic woman a gorilla, why can’t an autistic woman call the bathroom a
hippopatamus? Kanzi’s act of species misrecognition—one might even
say of species neurocosmopolitanism--inspires Prince to imagine a larger
community of the unrecognized and disregarded:
All of these creatures the normal world imagines silent. The autistic child,
the ape in the zoo or in the laboratory, the homeless, dogs in cages.
Thinking their silence means they lack language, lack consciousness, is
convenient. We are starting to speak the language of the masses, though,
and the time of silence without meaning is coming to a close…. A
language of the masses larger than us--the world as it warms, the ground as
it’s choked with trash, the animals saying goodbye—is either having the
last word or the first. It depends on our conception of language (2010b).
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
200 Chapter Eleven
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
From Neurodiversity to Neurocosmopolitanism 201
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
202 Chapter Eleven
Timur takes in more of the human world and Eva takes in more of the
nonhuman one. She does so precisely by recognizing as valuable
everything that the habit of relentless categorization diminishes or
occludes. And, of course, she, too, is given the experience of pleasure.
Lest this poetic process be thought of as just some pretty, pie-in-the-
sky corrective, I should emphasize that it produces effects in patients that
both caregivers and practitioners would call “improvement,” even as these
effects might not be explained by standard evaluative criteria and even as
the issue of “improvement” might never be applied to the neurotypical
actors in this scenario. In her article Park argues for criteria as relationally
aware as the practice she follows, criteria that recognize the “tight
entanglement between intercorporeality and intersubjectivity” (2010)—
between, that is, movement, sensory stimulation, affect, cognition, speech,
and sociality. The knowledge we create, Park implies, must be as
dynamically interconnected as the human body (and larger world) from
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
From Neurodiversity to Neurocosmopolitanism 203
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
204 Chapter Eleven
else that matters” (2010). Echoing Nancy Frazer, she calls for a “parity of
participation,” and we certainly see that in Mottron’s lab.
In his essay “Communicate with Me,” my son declares, The time has
come…to get ready for college, so I am here to ask you to help me. What
can you do to help me? The answer is to communicate with me. Boldly
reach out to me, and together we will goldenly share our views of the
world we long to greet (2010).
References
Antonetta, S. (2010). Dis. Seneca Review, 39-40 (2-1), 68-74.
Baggs, A. (2007). In my language. Retrieved October 8, 2012 from
http://www.youtube.com/watch?v=JnylM1hI2jc
—. (2010). Up in the clouds and down in the valley: my richness and
yours. Disability Studies Quarterly, 30 (1). Retrieved October 8, 2012
from http://dsq-sds.org/issue/view/43
Bragg, B. (1989). Lessons in laughter. Washington, D.C.: Gallaudet
U.P.Finding amanda. (2007). Anderson cooper 360. CNN. Television.
Gilroy, P. (2006). Postcolonial melancholia. New York: Columbia U.P.
Manning, E. (2009). What if it didn’t all begin and end with containment?
Toward a leakysense of self. Body & Society, 15 (3), 33-45.
Park, M. (2010). Beyond calculus: apple-apple-apple-ike and other
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
From Neurodiversity to Neurocosmopolitanism 205
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CHAPTER TWELVE
WILLIAM SIMKULET
both the control group and those with traumatic brain injuries, say from
car accidents, the autistic individuals in both groups experienced an
unexpected side-effect; the drug overwrote their atypical neurological
processes and replaced them with those more similar to their neurotypical
peers.
The question this chapter seeks to answer is whether it would ever be
morally acceptable for autistic persons to take, or be given, drug X, and if
so, under what conditions. The morally right thing to do in any given
situation is that which one has the best reasons for. In the following three
sections, I discuss reasons one might have for taking, or giving, drug X,
and in the final section I discuss a reason not to take drug X.
Personhood
Autism is a neurological condition characterized by atypical social
interaction and communication skills, as well as repetitive behavior and
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Neurodiversity and Personhood 207
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
208 Chapter Twelve
beliefs. A human being lacking any of these traits would have a hard time
navigating and flourishing in her world.
Rather than approach the concept of personhood from arbitrary
biological or psychological terms, I think the best way to understand
persons is in moral terms - persons are moral agents. Moral agents can be
said to have the right to life; meaning that all else being equal, it is morally
wrong to kill innocent moral agents. 1 To be a moral agent is to be the sort
of thing that can be truly morally responsible for one's actions. To be truly
morally responsible for one's actions requires that one is the nonarbitrary
source of one's actions; such that it makes sense to trace the goodness or
badness of one's actions back to the agent herself and no farther. Beings
that lack this are not in an enviable position, and to deprive one of such
freedom is amongst the greatest harms that can be done. For the remainder
of this chapter, I use the term "personhood" to pick out all and only the
things that can be appropriately held morally responsible for their actions.
By this, I do not mean to say that only persons have value, or that it is
morally acceptable to ignore the wellbeing of nonpersons.
The control principle, a foundational moral principle, states that one
cannot be morally responsible for something that is outside of one's
control. Assuming the truth of the control principle, personhood requires
free will, or the ability to choose one's actions from a list of possible
alternatives - it is to have the ability to choose either to do the right thing,
or to do the wrong thing. Moral agency, or personhood, of this kind is a
prerequisite for moral praiseworthiness. To be a full moral agent one must
be able to choose one's actions for reasons - to act for good reasons is to be
praiseworthy, to act for bad reasons is to be blameworthy. Beings who
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
lack the ability to differentiate good reasons from bad reasons cannot be
held fully morally responsible for their actions - for example children, the
ignorant, and human beings with various severe mental disorders often
lack the ability or experience to judge their actions, and are thus not
responsible for their actions in the same way a well informed adult moral
agent would be.
Children generally lack the psychological characteristics and knowledge
to be either responsible moral agents or fully morally responsible for their
actions. It is possible that there are some adult autistic human beings that
might similarly lack complete moral personhood of this kind, either as a
result of unsatisfactory education, or because some neurological processes
associated with autism might act as an impediment towards the informed
exercise of free will.
Moral agency is a necessary, but not sufficient, condition to live a
good, praiseworthy life. To be deprived of full personhood is a substantial
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Neurodiversity and Personhood 209
moral harm - arguably one of the worst possible harms that can befall a
human being. If, in some cases, autism prevents full personhood, then
autism in those cases causes a substantial moral harm to the individual. In
such cases, there would be a strong moral reason to provide drug X to the
autistic individual. For these individuals, drug X would, by stipulation,
cure them of the neurological impediments to full moral personhood. It is
worth noting that drug X, also by stipulation, does not discriminate
between good and bad aspects of autism, and may end up taking valuable
neurological processes away to be replaced with their lesser neurotypical
counterparts. If taking drug X is a morally acceptable treatment in this
cases, it is so in the same way amputation is a treatment to stop the spread
of gangrene - by taking the good with the bad.
Quality of Life
In the previous section, I argued that if atypical neurological processes
prevent an autistic individual from developing as a moral agent, it is one of
the greatest moral harms that can befall them because they can never be
truly morally praiseworthy for their good deeds. However, surely the vast
majority of autistic individuals aren't in such a position. What reason do
these persons have for considering drug X?
One of the most notable conditions associated with autism is the
difficulty many autistic persons have communicating with their neurotypical
peers. Compare this with other, neurotypical groups such as the mute and
deaf communities. Although these conditions do not undermine the moral
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
210 Chapter Twelve
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Neurodiversity and Personhood 211
career to try to take their shot at being a big Hollywood actor, or trades
their reliable car in for a boat, we might agree that they have engaged in
morally bad actions - that they should have done otherwise - but while it
may be acceptable to question their actions, or try to convince them
otherwise, it is prima facie morally wrong to substitute our judgment for
theirs and force them to act as we want.
Because drug X is liberty-expanding (and contracting), apart from
questions whether taking X is morally acceptable, there is good reason to
think one ought to have the right to take it. Whether an autistic person is
willing to trade parts of her current neurological framework for her more
neurotypical counterpart's seems no less within her rights than any of the
decidedly less beneficial options discussed above. It's worth noting that in
such circumstances, it might be inappropriate to call X a "cure" for
anything, but it strikes me the anti-cure part of the neurodiversity
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
212 Chapter Twelve
Consent
In the previous sections we've seen that in some cases, some aspects of
autism might constitute serious harms and some less serious harms. In the
second section, I argued that autistic persons ought to have the same right
to self-determination as any person, including the right to expand or limit
their opportunities as they see fit. In this section, I seek to address whether
parents and guardians exert similar rights over those autistic individuals
they are charged with who cannot give their own informed consent. To
that end, it is important to distinguish between two categories of autistic
individuals - first, those judged to be incapable of achieving personhood
without intervention, and second those who are expected to achieve full
personhood at some point in the future without intervention.
In the first section, I argued personhood is a necessary condition to live
a morally praiseworthy life. In light of this, informed legal guardians who
are taking care of autistic individuals of the first kind, those whose autism
stands between them and full moral personhood, have a prima facie strong
moral obligation to consent to treating their charges with drug X if
available. Cases where informed legal guardians fail to do so would seem
to constitute abuse; analogous to parents of coma patient victims refusing
treatment that is expected to awake their charges from their coma.
In cases where both X and X* are available, the anti-cure movement
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Neurodiversity and Personhood 213
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
214 Chapter Twelve
An Anti-Cure Response
In some cases, some aspects of autism may constitute serious harms to
autistic individuals. I have argued that autistic persons have the right to
pursue treatment for autism if so desired, and that they may have good
reason to do so. I have also argued that we have a moral obligation to
confer personhood on autistic nonpersons if possible, as personhood is a
prerequisite for moral praiseworthiness. Finally, I have argued that
guardians of autistic individuals have a moral obligation to pursue the
treatment they believe is in the best interest of those they are charged with
taking care of, and in many, but not all cases, this may constitute treatment
of autism. This has all been built on an assumption - that an autistic
human being is the same person prior to treatment that they would be post
treatment. Jim Sinclair challenges this notion, contending that autism is
inseparable from the individual (Sinclair, 1993). According to Sinclair, to
wish that an autistic person is cured just is to wish that person disappeared
and another, completely different person existed in her place.
There is an ambiguity in Sinclair's claim - the same sort of ambiguity
that faces anyone attempting to articulate a theory of personal identity over
time. The overwhelming commonsense moral intuition is that in the
majority of cases, the person you are now is numerically identical to the
person you were 5 minutes ago, the person you were as a child, and the
person you will be 5 minutes or 5 years from now (if all goes well).
Assuming this, personal identity survives substantial neurological change -
it survives even the change from non-person to person. Our childhood
selves had a radically different neurology and understanding of the world
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
than we do, yet we believe, in all relevant respects, that we are the same
person we once were. If this is true, personal identity survives such
changes.
There are exceptions to this commonsense notion of personal identity -
one person may become a separate, numerically distinct person by a
number of extreme, atypical, changes to their neurological composition -
for example, it is sometimes said that an amnesiac might be a different
person than they were before they lost their memory. When one's cerebral
hemispheres are separated, arguably one person has become two separate
persons, neither of which is numerically identical to who they were before.
Similarly, the destruction of a large portion of one's mind might constitute
the creation of a new person. There is, at least, a passing similarity
between these kinds of radical, often artificial or atypical, changes to one's
mind and the change drug X is stipulated to have in autistic individuals.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Neurodiversity and Personhood 215
The primary problem with Sinclair's position is that it rests upon the
assumption that we are who we are because of our composite neurology -
rob us of a piece of what makes us tick, and you have a different watch.
But this is a mistake - our commonsense intuition is that we were the same
people we were as kids, even though we have grown up, changed our
priorities and adopted both radically different beliefs and radically
different ways of viewing the world than we had as children. If autism is
to be understood as a set of neurological traits, it seems plausible that
identity persists through the removal and replacement of these traits by
drug X just as it would by the removal or replacement of any number of
other neurological traits that come and go as we develop. This is to say
that there is no reason to think that our personal identity is disproportionately
related to those particular neurological traits than any other neurological
traits. For Sinclair's assertion to be taken seriously would require that
autism not simply be understood as a small set of traits, but a substantial
percentage of an autistic human's neurology - to rob such a human of
autism, then, would be akin to ripping out a hemisphere of their mind.
This, I think, is a mistake - an autistic person is more than just autism with
a little bit of extra neurotypical bits dangling; they are a person with a
certain set of neurological traits. One can take pride in these traits, just as
one might take pride in any number of other traits, abilities, or beliefs one
has, without being defined by them.
Conclusion
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
216 Chapter Twelve
References
American Psychiatric Association, Diagnostic and Statistical Manual of
Mental Disorders, 4th, text revision (DSM-IV-TR) ed. 2000. ISBN 0-
89042-025-4, accessed 2-12-2012
http://www.cdc.gov/ncbddd/autism/hcp-dsm.html
Grandin, Temple, 1999, Choosing the Right Job for People with Autism or
Asperger's Syndrome, accessed 2-18-2012,
http://www.autism.com/ind_choosing_job.asp
Jaarsma, Pier; Welin, Stellan, 2011, "Autism as a Natural Human
Variation: Reflections on the Claims of the Neurodiversity Movement,"
Health Care Anal, accessed 2-17-2012
http://www.imh.liu.se/avd_halsa_samhalle/filarkiv1/1.264263/Jaarsma
Welin2011Autismasanaturalvariation.pdf
Marquis, Don, 1989, “Why Abortion is Immoral,” The Journal of
Philosophy, Vol. 86, No. 4 (Apr., 1989), pp. 183-202
Sinclair, Jim (1993). "Don't mourn for us," The Edmonds Institute,
retrieved 2007-11-07,
http://en.wikipedia.org/wiki/Autism_rights_movement, originally:
http://www.edmonds-institute.org/dontmour.html
Solomon, Andrew, 2008-05-25, "The Autism Rights Movement," New
York, accessed 2-12-2012 http://nymag.com/news/features/47225/
Woodford, Gillian, 2006, "'We Don't Need to be Cured' Autistics Say,"
National Review of Medicine, Volume 3. No. 8., accessed 2-17-2012
http://www.nationalreviewofmedicine.com/issue/2006/04_30/3_patient
s_practice05_8.html
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CHAPTER THIRTEEN
ERICK RAMIREZ
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
218 Chapter Thirteen
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Moral Reasons, and Responsibility 219
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
220 Chapter Thirteen
empathy (Hare and Neumann 2010, 93-95). Hare also includes behavioral
traits like impulsivity and violations of social and legal norms (Hare and
Neumann 2010, 95). Although developed initially for use with men in
correctional or psychiatric institutions, Hare's PCL-R has been adapted for
use with juveniles (Ridenour and Dean 2001, 227), women (Weizmann-
Henelius, Sailas, Viemerö, and Eronen 2002, 355), and outside of
correctional institutions (DeMateo, Heilburn, and Marczyk 2006, 133).
The PCL-R is a two part diagnostic tool containing both a structured
interview and a historical behavioral assessment. Interviewers ask
questions that aim to identify the degree to which the subject might be said
to possess a psychopathic personality trait. Interviewers rate each question
from 0-2 depending on whether subjects manifest the trait in question
strongly (2), somewhat (1), or not at all (0). A “perfect” score, the score
most indicative of psychopathy, is 40 points. Normal subjects score
between 5 and 6 points; scores are slightly higher for incarcerated subjects
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Moral Reasons, and Responsibility 221
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
222 Chapter Thirteen
and Cooke 2010, 434). Criminal behavior is diagnostic for (i.e. provides
evidence for a diagnosis of) ASPD and PCL-R but there are important
differences. The PCL-R contains multiple factors, multiple diagnostic
criteria, that make up the construct of psychopathy. Only one of these
factors makes reference to prior criminal behavior; the other factors are
characterological (glibness, selfishness, lack of empathy, etc.). On the
other hand, a person can be diagnosed with ASPD based purely on their
prior criminal behavior. Although there is an important difference between
PCL-R and ASPD in terms of the diagnostic relevance of past criminal
behavior, Skeem and Cooke argue that the PCL-R associates antisocial
personality traits with violent or criminal actions too strongly. They
instead suggest that the antisocial traits characteristic of psychopathy need
not result in or manifest as violent or criminal behavior. They go on to
argue that Hare's focus on antisocial behavior as a marker for antisocial
personality traits strays from the defining features of psychopathy seen in
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Moral Reasons, and Responsibility 223
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
224 Chapter Thirteen
how we think about the nature of moral reasons and moral motivation.
Some philosophers argue that psychopaths are capable of understanding
moral norms without feeling motivated to act upon them and that this tells
us something important about the nature of moral reasons.3 Furthermore,
because psychopathic agency combines the paradoxical capacities of
pragmatic rationality and moral incompetence it poses a challenge to
theories of moral responsibility. While psychopaths are capable of causing
immense suffering to others and of violating our trust, psychopathic
agency leaves moral reasons outside of what Cleckley called their “orbit of
awareness” (Cleckley 1941/1988, 40). For these reasons, psychopaths are
said to suffer from moral blindness. Philosophers disagree on whether this
moral blindness exempts them from responsibility for their bad behavior.
In this section I map the contours of the traditional debate over moral
responsibility. I pay special attention to views that give pride of place to
moral emotions; I then show why adherents of these theories claim that
psychopaths cannot be held accountable for their actions. I conclude by
offering an alternative to this view. I argue that psychopaths are open to
several forms of normative address despite their lack of moral
responsibility. These forms of address are based on what psychopathic
choices express, the kinds of attitudes psychopathic harms evoke, and
ultimately the forms of punishment psychopathic actions merit.
There are close connections between our concepts of free will and
moral responsibility. In many cases it appears that an action of ours must
be free in order for us to be responsible for it. Notoriously, philosophers
disagree over how to define free actions. Some argue that free actions
require that physical determinism, the claim that the laws of physics
necessitate every action that has happened and that ever will happen, is
false; freedom, on this understanding, requires the ability to act in ways
that are not necessitated by past events, it requires the existence of genuine
metaphysical alternative possibilities (Pereboom 1995, 23-26; O'Connor
1995, 173). Others argue that a will can be free even if determinism is true
so long as we are open to reasons, are able to deliberate about our options,
and act on the products of our deliberation (Fischer and Ravizza 1998, 62-
91; Frankfurt 1971, 10-14). Others opt for an asymmetric view; they claim
that morally praiseworthy acts can be determined and still be praiseworthy
but that moral blame is appropriate if (and only if) the wrongdoer could
have done otherwise (Wolf 1980, 151; Nelkin 2008, 497). One of the main
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Moral Reasons, and Responsibility 225
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
226 Chapter Thirteen
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Moral Reasons, and Responsibility 227
R(A): A person is the proper source of their action if and only if they
are an apt target for reactive emotions in a general sense.
R(x): A person is morally responsible for a specific action, x if and
only if they are an apt target for the reactive attitudes generally and it is
appropriate to respond to the agent reactively in virtue of his or her x-ing.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
228 Chapter Thirteen
action. When you rightly resent me for having stepped on your toes
maliciously you do so because of my malicious intent. This is why
resentment is not be appropriate when I step on your toes to save you from
the spider. It is in this sense that reactive attitudes focus on the quality of a
person's will. Call this the quality of will thesis. We can define excuses
and exemptions by their effects on our reactive attitudes. When a person
has a legitimate excuse it is inappropriate for us to continue expressing
negative reactive attitudes toward them. An excuse shows us that we were
mistaken about the quality of a person's will (Wallace 1994, 136-147). If
you knock me over I might resent you until I learn that you pushed me out
of the way of falling debris. If made aware of this, I might instead feel
gratitude but should find it inappropriate to continue resenting you.
Excuses inform us that we were mistaken about what action was done.
Excuses do not cast doubt on a person's ability to be an agent, their
attributability, but instead inform us that we were wrong about what action
we attributed to them. Excuses are singular events. Particular actions are
excused. If you have a global excuse then you are exempt from
responsibility.
Exemptions cause us to question whether a person meets the
attributability requirement. Imagine again that I get knocked over except
now I learn that the person who knocked me over suffers from significant
and persistent psychotic delusions that lead her to believe that she is at
constant risk of alien abduction and that I was an alien. Unlike excuses, a
person whose agency is hampered by delusions as severe as these is not a
proper target for our reactive attitudes at all. Agency as abnormal as this is
exempt from judgments of attributability and accountability. Exempt
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
agents are not the true source of their actions because exempt agents lack
the ability to regulate their behavior in an intelligibly rational way
(Wallace 1994, 166-180).
The logic of excuses and exemptions implies that responsible agency
requires at minimum the ability to perceive moral reasons and the ability
to understand how these reasons function. Furthermore, many believe that
an agent must have the opportunity to avoid wrongdoing as a result of his
or her agency in order to satisfy the attributability requirement (Shoemaker
2011, 6). Psychopaths, because they seem both rational and morally
incompetent, cut across these traditional distinctions. They possess some
but arguably not all of the necessary qualities for full moral agency.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Moral Reasons, and Responsibility 229
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
230 Chapter Thirteen
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Moral Reasons, and Responsibility 231
whether psychopaths are morally responsible for their choices given what
we know about psychopathic agency.
If moral responsibility requires the capacity to understand moral
reasons as distinctly moral and this is grounded on a further capacity to
empathize with others, then psychopaths cannot understand moral reasons.
This lack of understanding is shown by their performance on
distinguishing between moral and conventional norms. For some, this is
enough to exempt psychopaths from responsibility: “[c]ertain psychopaths
...are not capable of recognizing...that there are moral reasons...this sort of
individual is not appropriately receptive to reasons, on our account, and
thus is not a morally responsible agent” (Fischer and Ravizza 1998, 79).
Further, if the reactive attitudes germane to accountability are sensitive to
the quality of an agent's will, then psychopathic agents cannot express
immoral wills because they do not understand morality. This deficiency
affects the degree of control they have over their choices because “[w]hat
makes it appropriate to exempt the psychopath from accountability...is the
fact that psychopathy...disables an agent's capacities for reflective self
control” (Wallace 1994, 178).
A number of philosophers argue that this analysis of psychopaths and
reactive attitudes is incomplete. We are better served, they argue, by
appreciating the full scope of reactive attitudes and how these attitudes
correspond with the kind of will psychopaths can express with their
actions (Greenspan 2003; Talbert 2008; Talbert 2012). This highlights an
important sense in which some reactive attitudes are appropriate to direct
at the psychopath. These attitudes respond to the lack of care psychopaths
express about human worth when they cause us harm. Successful
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
232 Chapter Thirteen
all of us have “blind spots” about certain narrow classes of reasons and we
stand to those reasons in the same relation that psychopaths stand to moral
reasons; these blind spots do not excuse us from accountability in a
general way and they ought not excuse psychopaths from accountability in
a global way either (Greenspan 2003, 435).
What would non-moral accountability look like in practice? Imagine an
atheist who has a blind spot for divine reasons and values (i.e. reasons and
values stemming only from divine commands). She lives in a community
where divine reasons are routinely appealed to and where they drive some
aspects of her local culture (how members dress, how they greet one
another, whether they work on certain days, etc). Although only able to
understand divine reasons from an external perspective, she understands
that people appeal to divine reasons to justify actions and has some
understanding of how divine reasons work. If the atheist decides to work
on a divinely-mandated rest day, then we can attribute to her the judgment
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Moral Reasons, and Responsibility 233
that she believes that no sufficient reasons speak against working on that
day. Members of her community could hold the atheist accountable for her
decision to flout divine reasons despite her inability to understand or
appreciate them. Although it would be unfair to damn the atheist (i.e. to
religiously condemn her) because she lacks the right kind of access to the
concept of damnation, it may be appropriate for members of her
community to express contempt toward her, a non-religious attitude, given
the kinds of values her judgments express.6
The same holds for the psychopath. Psychopaths satisfy the
attributability requirement in virtue of their practical rationality. They can
deliberate about what to do and modify their desires in the light of reasons.
However, their inability to fully understand moral reasons disqualifies
them from moral accountability. This fact does not imply that psychopaths
are free from all forms of accountability. Psychopathic judgments can
express values that we find contemptible, hateful, spiteful, or disgusting.
In many cases it would be appropriate to express these attitudes at
psychopaths because the attitudes would be appropriate given the values
expressed by their judgments. In doing so we hold them accountable
despite the fact that it would not be appropriate to hold them morally
accountable via attitudes like resentment or indignation. When a
psychopath judges that nothing speaks against repeatedly lying to or
manipulating others we can justifiably direct reactive attitudes at the
psychopath because of the quality of will these actions express. Reactive
attitude theorists are correct that psychopaths cannot fairly be held morally
responsible but moral accountability does not exhaust the forms of reactive
accountability available to us.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Conclusion
Psychopathy is a controversial and complicated phenomenon. Well
before psychopathy became clinically sharpened as a diagnosis in the 20th
and 21st centuries, moral philosophers worried about how best to handle
people who frequently violated moral norms and who were devoid of guilt
and shame. These questions remain relevant today. Although psychopaths
lack an understanding of moral emotions, they seem to be rational agents.
Successful psychopaths are especially good at understanding reasons and
use this understanding to manipulate others. Successful psychopaths have
been identified working in managerial positions in corporations, (Babiak,
Neumann, and Hare 2010) as practicing lawyers, and even psychology
students (Mullins-Sweat, Glover, Derefinko, Miller, and Widiger 2010).
Successful psychopaths make clear that the affective deficits characteristic
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
234 Chapter Thirteen
References
American Psychiatric Association. (2000). Diagnostic and statistical
Manual of Mental Disorders 4th ed., text revision. Washington, DC
Babiak P., Neumann C., and Hare R.D. (2010). Corporate Psychopathy:
Talking the Walk. Behavioral Sciences and the Law Vol. 28, 2, 174-
193.
Barbaree, H. (2005). Psychopathy, Treatment Behavior, and Recidivism:
An Extended Follow-Up of Seto and Barbaree Journal of Interpersonal
Violence Vol. 20, 1115-1131.
Blair R.J. (1995). A Cognitive Developmental Approach to Morality:
Investigating the Psychopath. Cognition, Vol. 57, 1-29.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Moral Reasons, and Responsibility 235
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
236 Chapter Thirteen
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Moral Reasons, and Responsibility 237
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CHAPTER FOURTEEN
MARA BOLLARD
Introduction
In recent years, psychopaths have been of special interest to moral
philosophers. Psychopaths are famously amoral, so some theorists have
thought that an examination of their peculiar deficiencies might shed light
on the capacities that are required for moral agency. More specifically,
theorists have looked to empirical findings about psychopaths to help
determine whether moral agency is underwritten by reason, or by affective
sentiments.1 With respect to the latter possibility, empathy is often taken
as the primary focus, something that isn’t all that surprising in light of the
commonsense appeal of the idea that empathy matters a great deal to
morality (Roskies, 2011).2 Given that one of psychopaths’ most glaring
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
deficits is a lack of empathy, they seem perfectly suited as a test case for
the hypothesis that empathy is necessary for moral agency.
However, psychopaths are not the only group of philosophical interest
when it comes to empathy: people with autism also lack empathy, so it is
reasonable to think that any empirically-informed attempt to answer the
question of whether empathy is necessary for moral agency should give
due attention to findings from autism as well as from psychopathy.
Jeanette Kennett’s thought-provoking paper, ‘Autism, Empathy and Moral
Agency’ (2002), which analyses the respective moral statuses of
psychopaths and autistic people, is the first and arguably the most notable
example of such an attempt. As such, this chapter will take Kennett’s
paper as its focus in an effort to further elucidate the role of empathy in
moral agency.
In brief, Kennett’s argument runs as follows: She begins with the claim
that psychopaths are amoral, and that a common and plausible explanation
as to why this is so is that psychopaths lack empathy. However, autistics,
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Autism and Questions of Moral Agency 239
like psychopaths, lack empathy, yet, unlike psychopaths, they are not
amoral. As such, a lack of empathy cannot explain psychopaths’
amoralism. In order to account for the differing moral statuses of the
groups, Kennett argues that autistic people possess a certain ‘reverence for
reason’ that enables them to become capable moral agents. Psychopaths
lack this rational capacity, and it is this defect, not the empathic one, that
explains why they are amoral. Kennett therefore concludes that empathy is
not necessary for moral agency. Rather, she holds that ‘reverence for
reason’ is sufficient.
In this chapter, I argue that Kennett’s argument is untenable. First, I
review the empirical evidence in order to demonstrate that there is a
component of empathy called affective empathy that is impaired in
psychopaths but largely preserved in autistics. As such, the claim that
psychopaths and autistics share a common lack of empathy is unjustified.
Second, I challenge Kennett’s claim that empathy plays no role in
explaining the moral difference between psychopaths and autistics.
Instead, I contend that the intact affective empathy of autistic people is a
crucial component of their capacity to act out of reverence for reason.
Background
The Traditional Form of the Debate: Hume versus Kant
Kennett’s argument is best understood in the context of the long-
running debate between sentimentalists and rationalists. In this debate,
“the relation between reason, emotion, moral judgment, and behavior is an
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
old and contested one, with paradigm and opposing positions associated
with Hume on one side and Kant on the other” (McGeer, 2008). According
to Hume (and proponents of sentimentalism in general), “sympathy alone
can be the foundation of morals” (Hume, 1777): that is, that to be a moral
agent is to possess the capacity for sympathy (where sympathy
corresponds to what we currently call ‘empathy’). Conversely, for Kant
(and rationalists in general), to be moral is just the same as being rational.
Kant argued that the requirements of morality are based upon a supreme
rational principle known as the categorical imperative (Kant, 1785). To
qualify as a moral agent is to obey the categorical imperative, which, in its
first formulation, is to “act only in accordance with that maxim through
which you can at the same time will that it become a universal law” (421).
In other words, agents must act for reasons of a type that they would
regard as valid for anyone else in similar circumstances. Agents are
capable of acting in accordance with the categorical imperative only
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
240 Chapter Fourteen
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Autism and Questions of Moral Agency 241
age. They are impulsive, irresponsible, and have a constant need for
excitement. They also tend to live parasitic lifestyles and are sexually
promiscuous. Further, they are unable to set or stick to realistic goals for
themselves or to consider the possible consequences of their actions,
which can lead to self-destructive behavior.
emotional reactions. Even able autistic people seem to have great difficulty
achieving empathy in this sense (Frith, 1989, 154-55).
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
242 Chapter Fourteen
Defining Empathy
It is often claimed that our present understanding of empathy derives
from Hume’s concept of sympathy. Hume thought that sympathy – the
capacity to receive and respond to the sentiments of others – was a
sentiment available to and experienced by all people, albeit in varying
degrees. A generally accepted modern definition says that empathy refers
to the emotional or affective reaction of a given subject in response to the
expressive behavior of others (Davis, 1994). However, empathy is a
notoriously tricky concept, the study of which has often been attended by
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Autism and Questions of Moral Agency 243
that this poses any problem to our current project. Even if we disregard
any evidence pertaining to sympathy and focus solely on emotional
contagion, it will be seen in what follows that my criticisms of Kennett’s
definition of empathy still carry significant weight.
Differing Deficits
Thus far, we have seen that Kennett’s conception of empathy lines up
with a view that is broadly agreed upon in the literature insofar as she
thinks that empathy consists in a cognitive and an affective component.
However, in stating that the emotional response stems from simulation,
Kennett is claiming that cognitive empathy is a necessary precursor to
affective empathy. This is contentious. Although cognitive and affective
empathy may sometimes interact, the presence of one need not necessarily
imply the other. As such, it is reasonable to think that different types of
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
244 Chapter Fourteen
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Autism and Questions of Moral Agency 245
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
246 Chapter Fourteen
above) also lends support to this point. Though the autistic group struggled
to infer the mental states of the individuals in the photographs, when they
were given feedback about the correct answer – i.e. when the emotional
information about the people in the photos was made salient – they
exhibited emotional reactions in response to the pictures that were on par
with (normal) responses shown by controls [35].
So, it seems that, as long as the emotional expression of others is
obvious enough, autistic people display an appropriate emotional response
to others. This is evidenced by Sacks’ description of a conversation he had
with Grandin during which he told her about a young man with Tourette’s
syndrome who, afflicted by violent tics, gouged out his own eyes.
According to Sacks, Grandin was deeply affected by the story. Sacks
writes that, when it came to “expressions of raw impulse, violence, pain,
she perceived [and] reacted to them straight away” [36]. In a similar vein,
Margaret Dewey says,
“In cases where the pain and suffering of other people is spelled out clearly
– as in the headline, “children are dying from hunger” – the autistic person
can show as much deep concern as any other caring and sensitive person”
[37].
others.
Here it might be objected that, by conceding that affective empathy is
dependent on cognitive empathy, I have failed to show that the two
components are dissociable. However, such a claim is too strong. That
there isn’t a total dissociation does not mean that there is no dissociation at
all. Even though the ability to show intact affective empathy does depend
on cognitive empathy, it does not depend on unimpaired cognitive
empathy. The point is that Kennett does not acknowledge that autistics’
impaired cognitive empathy need not imply a corresponding impairment
of affective empathy.
On the basis of the above evidence, we can conclude that, although
autistics’ cognitive empathy is profoundly impaired, they exhibit
(relatively) intact affective empathy. Admittedly, autistic individuals are
not as adept as normal subjects and do sometimes fail to show affective
empathy because of a failure of cognitive empathy. However, I suggest, in
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Autism and Questions of Moral Agency 247
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
248 Chapter Fourteen
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Autism and Questions of Moral Agency 249
for moral agency, but I do think we have strong cause to doubt that it is
sufficient, because it is underpinned by a shaky premise: that psychopaths
and autistic people share a common lack of empathy. Significantly, the
weakness of the premise gives us reason to doubt the claims that follow it:
it is far from conclusive that empathy (or one of its elements, affective
empathy) does not play an important role in explaining why autistic
individuals are capable of moral agency but psychopaths are not.
In this section, I examine the evidence that Kennett puts forward in
support of her claim that autistic people are capable of becoming
conscientious moral agents according to a Kantian account of moral
agency because they possess reverence for reason. To succeed in this task,
Kennett must show that the ‘reverence for reason’ she is talking about
maps onto the Kantian conception of reverence. However, I will try to
show that Kennett does not convincingly establish that autistic people
display the sort of reverence for reason that Kant thinks is required for
moral agency. I argue that the evidence Kennett invokes to make her case
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
250 Chapter Fourteen
Which Reverence?
For Kant, ‘reverence for reason’ means respect for the moral law. To
have reverence for reason is to act in accordance with the moral law for
the sake of the moral law; in other words, to act from duty [50]. To say
that an agent acts from duty is to say that he acts because he thinks he is
morally required to act. Only actions that are performed from duty can be
said to be morally worthy. Also, for Kant ‘practical reason’ is the process
by which an agent works out, prospectively, how he ought, morally, to act
[51].
Like Kant, Kennett explicitly equates reverence for reason with duty,
describing “reverence for reason – or duty – [as] the core moral motive”
[52]. More specifically, she says that the preserved moral sensibility of
autistics can be explained by their ability to “develop or discover moral
rules and principles of conduct for themselves by reasoning” [53]. I think
we can plausibly take the latter claim to mean that autistics engage in
practical reasoning in order to work out the rules, or maxims, that they
ought to act on. Rules are of great value to autistics because establishing
and following rules is a means by which they can find their way through a
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Autism and Questions of Moral Agency 251
“[Grandin] had built up a vast library of experiences over the years… they
were like a library of videotapes which she could play in her mind and
inspect at any time – ‘videos’ of how people behaved in different
circumstances. She would play these over and over again and learn, by
degrees, to correlate what she saw, so that she could then predict how
people in similar circumstances might act” [56].
affective empathy within Kant’s ethics, and I will explore it further below.
For present purposes, however, the point is that without more information
about Grandin’s primary motive, we can’t say for sure whether her
implementation of this videotape system is an action that evinces moral
worth.
Perhaps, though, Kennett does not intend us to interpret Grandin’s
methodology as an example of morally worthy action. It could be that she
is just trying to demonstrate, by analogy, what the process of practical
reasoning looks like in autistic people: that it is a logical process not
dependent on empathy. Kennett draws from the experience of Jim Sinclair
(an autistic person we have already encountered) to give what she takes to
be an example of autistic practical reasoning:
“I have to develop a separate translation code for every person I meet…
Even if I can tell what the cues mean, I may not know what to do about
them. The first time I ever realized someone needed to be touched was
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
252 Chapter Fourteen
eventually does settle on the right course of action: touching the person.
But just because Sinclair’s action accords with what’s right does not mean
he acted from duty. To draw out this idea, let us consider some possible
motives that could underlie Sinclair’s behavior.
First, we could adopt the explanation that Kennett favors and say that
Sinclair’s motive is to do what’s morally right, whatever that happens to
be. In other words, Sinclair has a de dicto desire to do what’s right. On this
model, Sinclair uses his power of practical reason to work out what the
right thing to do is, and then does it. By these lights, Sinclair is acting from
reverence for reason, so his action is morally admirable. The second
possibility is that Sinclair’s primary motive is to do whatever people
would typically do in that situation, perhaps in order to make social
interaction run smoothly, or to fit in. This is not an implausible suggestion:
many autistic people do have a strong desire to fit in and “pass for normal”
[61]. So, suppose that Sinclair’s motive is to do whatever people would
normally do whenever someone cries. He eventually works out that the
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Autism and Questions of Moral Agency 253
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
254 Chapter Fourteen
common lack of empathy, and the subsequent claim that autistic people
display intact affective empathy, I think that we have found a way by
which we can legitimately incorporate affective empathy into a Kantian
framework. In what follows, I aim to show that it is possible to view
affective empathy as an important source of information that helps agents
to act out of reverence for reason. I also briefly discuss the implications of
this interpretation for our assessments of the moral statuses of psychopaths
and autistic people.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Autism and Questions of Moral Agency 255
us, and to make use of them as so many means to sympathy based on moral
principles and the feeling appropriate to them. – It is therefore a duty not to
avoid the places where the poor who lack the most basic necessities are to
be found but rather to seek them out, and not to shun sickrooms or debtors’
prisons and so forth in order to avoid sharing painful feelings one may not
be able to resist. For this is still one of the impulses that nature has
implanted in us to do what the representation of duty alone might not
accomplish” [64].
From this, it can be seen that Kant considers affective empathy – here
described as the emotional response one has to others’ suffering – as one
of the natural endowments that we are morally required to cultivate [65].
In doing so, we increase our receptiveness to the concept of duty, thereby
increasing the number of actions we perform from duty, and making
ourselves into morally better agents.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
256 Chapter Fourteen
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Autism and Questions of Moral Agency 257
Conclusion
In this chapter, I examined Jeanette Kennett’s compelling paper,
‘Autism, Empathy and Moral Agency’. I argued that Kennett’s argument,
as it stands, is untenable because it rests on a false premise: that autistic
people and psychopaths share a common lack of empathy. This is because
the empathic deficits of the two groups cannot be said to be equivalent:
psychopaths possess intact cognitive empathy but are deficient when it
comes to affective empathy, whereas autistics lack cognitive empathy but
retain intact affective empathy. I went on to attempt to provide a Kantian
argument for why affective empathy is, at least sometimes, necessary for
morally worthy action. It is important to note, however, that from the
Kantian perspective we only have grounds to value affective empathy as a
morally necessary means, not as intrinsically valuable. This means that my
arguments in support of the importance of affective empathy do not imply
that we ought to reject a Kantian moral framework in favor of a Humean
one. But this has never been my intention. Rather, I have tried to show that
Kennett’s removal of empathy from her rationalist framework and her
subsequent insistence that empathy does not play a role in the explanation
of why autistic people are capable of moral agency but psychopaths are
not has given rise to an impoverished account that does not paint a full
enough picture of the respective moral sensibilities of autistic people and
psychopaths.
Ultimately, it is clear that I have reached much the same conclusions as
those reached by Kennett: I agree with her that autistic people are at least
sometimes capable of becoming morally admirable agents, whereas
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
psychopaths most certainly are not, because (some) autistic people – but
not psychopaths – possess reverence for the moral law. However, though I
agree with Kennett when she insists that an agent is capable of moral
agency insofar as she is capable of the perception of a principle or reason
to which she feels bound, I have criticized her for failing to appreciate that
affective empathy is one way by which the agent can come to have that
perception.
More broadly, in arguing for empathy’s inclusion within a Kantian
framework, I have aimed to show that there is room for a more nuanced
approach to the debate between Kant and Hume than the traditional
“reason versus empathy” view. If we are to gain anywhere near a complete
understanding of the nature of moral agency, we must dispense with any
sort of all-or-nothing approach that forces either reason or empathy out of
the equation.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
258 Chapter Fourteen
References
American Psychiatric Association (1994), Diagnostic and Statistical
Manual of Mental Disorders (4th edn.; Washington, DC: Author).
Bemporad, J. (1979), 'Adult recollections of a formerly autistic child',
Journal of Autism & Developmental Disorders, 9, pp. 179-97.
Blair, R., L. Jones, F. Clark & M. Smith (1997), ‘The psychopathic
individual: a lack of responsiveness to distress cues?’ Psychophysiology,
34, pp. 192-98.
Cesaroni, L. & M. Garber (1991), 'Exploring the experience of autism
through first hand accounts', Journal of Autism & Developmental
Disorders, 21, pp. 303-12, p. 310.
Cleckley (1964), The Mask of Sanity (4th edn.; Saint Louis: C.V. Mosby
Co.).
Corcoran, R. (2000), ‘Theory of mind in other clinical conditions: is a
selective 'theory of mind' deficit exclusive to autism?', in Simon Baron-
Cohen, Helen Tagger-Flusberg & Donald J. Cohen (ed.), Understanding
Other Minds: Perspectives From Developmental Cognitive
Neuroscience (2nd edn.; Oxford: Oxford University Press), pp. 391-
421, p. 407.
Dewey, M. (1992), 'Autistic Eccentricity', in Eric Schopler & Gary B.
Mesibov (ed.), High-Functioning Individuals With Autism (New York
& London: Plenum Press), pp. 281-88, p. 284.
Dziobek, I., Kimberley Rogers, Stefan Fleck, Markus Bahnemann,
Hauke R. Heekeren, Oliver T. Wolf, & Antonio Convit (2008),
'Dissociation of cognitive and emotional empathy in adults with
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Psychopathy, Autism and Questions of Moral Agency 259
With Autism (New York & London: Plenum Press), pp. 41-64, p. 42
Sacks (1995), An Anthropologist on Mars (London: Picador).
Sinclair, J. (1992), 'Bridging the Gaps: An Inside-Out View of Autism (Or,
Do You Know What I Don't Know?)', in Eric Schopler & Gary B.
Mesibov (ed.), High-Functioning Individuals With Autism (New York
& London: Plenum Press), pp. 294-302, p. 295.
Shoemaker , D. (2009), 'Responsibility and Disability', Metaphilosophy,
40 (3/4), pp. 438-61, p. 442.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CHAPTER FIFTEEN
Introduction
Jacob is a sixteen-year-old student at an alternative learning center and
is diagnosed with autism. Although he can feed and bathe himself, and is
even able to perform basic math equations, he is unable to construct full
sentences without being aided by another. Each day he aims to earn going
to the school library to look at Clifford books, and as he reads through
them all he begins to narrow the list down to his favorite. The problem,
however, is that Jacob has a habit of putting items that he desires to make
his own into his book bag when he thinks that no one is looking, and this
particular book has become his new target. After realizing that he would
not succeed in hiding the book in his bag since the classroom teacher
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
started to check it each day before Jacob would get on the bus, Jacob
devised a plan. One day he went home, took the same Clifford book out of
his own collection, and attempted to make it look exactly like the book in
the school’s library. Using construction paper he made a place for the
library card, taped a red circle to the book’s spine (indicating what section
that book belonged in), and even wrote the name of the librarian on the
back inside-cover. When he came to school the next day he ran into the
library and attempted to switch the two books without anyone noticing
(unfortunately for Jacob, his paraprofessional was with him the entire
time).
While outside at recess one day, Mary, a fifteen-year-old student with
autism, decides that she would like a specific chair that is against the
school building. Like Jacob, Mary is considered to have the same
cognitive ability as a first-grader, and is unable to complete full sentences
without aid. After making this decision, she begins to move the chair a few
inches closer to her classroom window each day until it is close enough for
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Are People with Autism Morally Responsible for Their Harmful Actions? 261
her to run to the window and attempt to pull it through from the other side.
This required planning over a long period of time, and indicates that she
knew what she was doing was not acceptable since she seemed to attempt
to move the chair at a rate that would go unnoticed.
Alexander is a fifteen-year-old boy with autism and is generally non-
violent. He tends to repeat the same sentences continually on impulse, and
is considered to be on the same cognitive level as a pre-kindergartener.
What the staff at his school has to watch for, though, is when a particular
female student enters Alexander’s view. If this happens, he begins to
perseverate on her name and violently attacks her, showing no remorse if
he is successful in hurting her.
What these cases share that is most relevant to this chapter is that, due
to the severity of Jacob and Mary’s diagnoses, neither would be held
morally responsible for their actions (at least not nearly to the degree that
an individual without autism would). This chapter will address how to
assess the moral responsibility of people with autism for their actions; this
will include all actions, but our focus will be on those that harm or distress
others, and also on cases where they do not show care or attention to
others where there are normally expectations to do so. The main point is
to understand what difference autism makes to a person's moral
responsibility. We will argue that there are ways that autism does make a
difference, but having autism does not take away moral responsibility
altogether.1
From the start, it is worth emphasizing the tentative and preliminary
nature of this discussion. While there has been a great deal of scientific
study of autism, it is not a well understood condition. The criteria for what
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
counts as having autism are subject to change, and the autistic spectrum
covers a wide range of conditions. There is room for doubt that the
spectrum is unified by a common feature, and there is evidence that it
instead will require multiple explanations (Volkmar et al, 2009; Happé,
2006). So the ideas about moral responsibility will apply differently
depending where on the spectrum an autistic person is.
A central concern in the project of assessing moral responsibility of
people with mental and neurological disorders is that it may play into
further stigmatizing them and making their lives more difficult. Readers
may wonder what motive authors have for wanting to raise the possibility
of blaming autistic people for their problematic or socially disapproved
behavior. It is a responsibility for us to be mindful of such concerns. We
can make two main points in explaining the project. First, to argue that
people with autism have moral responsibility for their actions is to
emphasize their moral agency and their status as part of our moral
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
262 Chapter Fifteen
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Are People with Autism Morally Responsible for Their Harmful Actions? 263
Overall Position
We can start off with uncontroversial claims: simply having a mental
disorder does not mean that a person is no longer morally responsible for
their actions. It is of course true that people with mental disorders are
often held legally responsible for their criminal actions. It is also true that
having depression, anxiety, and even non-psychotic mania do not count as
complete excuses for hurting others. Many, and probably most, people are
inclined to hold psychopaths morally responsible for their harmful
behavior, and also they hold sexual abusers, especially those of children,
morally responsible, even if they have a diagnosis of a sexual disorder.
It is possible that some might hold a much more restricted notion of
what counts as a mental disorder, what would not include many conditions
that currently count in the West. In such a case, it would be more feasible
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
264 Chapter Fifteen
getting their actions to fit with their inner values, because they are less
able to control their behavior. There is plenty of sympathy that
accompanies the idea that in some sense, the person is taken over by the
disorder and is not fully responsible for their actions.
So we need to look at the particular features of autism to see how it
might affect judgments of moral responsibility. Our method here will not
be to try to develop a whole philosophical theory of moral responsibility.
Rather, it will be much more modest, in comparing autism with other
disorders and seeing if this helps shed light on how we consider the moral
responsibility of the autistic person.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Are People with Autism Morally Responsible for Their Harmful Actions? 265
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
266 Chapter Fifteen
to argue that psychopaths are not morally responsible for their bad actions
(Malatesti & McMillan, 2010). People with autism may share with
psychopaths or people with a variety of personality disorders a difficulty
in empathizing with others, although as we will see later, it seems that the
kinds of difficulty that people with autism have are distinctively different.
Thus it may be difficult for them to understand the effects their actions
have on other people. If they genuinely are not able to fully understand
the feelings of other people, then their moral competence may be severely
limited, and thus it would seem to follow that their moral responsibility
would be at least limited, and possibly negated altogether. We will pursue
this in more depth later.
The claim that in order to be morally responsible for an action the
agent had to be able to do otherwise is controversial although it has a great
deal of plausibility. It rests on the idea that if a person had no choice in
what to do, then it is unfair to blame them. The strongest examples that
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Are People with Autism Morally Responsible for Their Harmful Actions? 267
people with autism have when acting in ways that are difficult or
dangerous. We will look at a few different kinds of behavior and reaction
to stimuli and discuss how the different cases require different kinds of
analysis. One central moral question is whether people with autism are in
some ways selfish, self-centered, uncaring, angry or malicious. When they
do hurt others, what are their moral motives, and can they be related in an
explanatory way with their autism?
Empirical Research
One recent paper reports, "Little is known about risk factors for
violence among individuals with autism spectrum disorder (ASD)"
(Långström, Grann, Ruchkin, Sjöstedt, & Fazel , 2009). Nevertheless, a
paper does report that aggression "is a common and serious problem
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
268 Chapter Fifteen
reactions.
Philosophical Discussion
Philosophers have been particularly interested in psychopaths and their
moral responsibility because it is an important test case for different
theories (See for example Nichols, 2002). Some of this interest has
extended to autism precisely because, like psychopathy, autism involves a
deficit in the ability to empathize with others, yet at the same time it is
such a different condition that it is far from clear that what would be true
of the moral responsibility of psychopaths would also be true of people
with autism. One prominent discussion is by Kennett. Kennett (2002)
argues that people with Asperger’s are capable of moral understanding
because they are able to understand moral rules, even though they have
less ability to experience empathy with other people. She uses this to
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Are People with Autism Morally Responsible for Their Harmful Actions? 269
argue for a Kantian over a Humean view of the nature of morality. That is
to say, she believes that the capacity to be a moral agent consists in the
ability to understand and follow moral rules, and thus is a matter of
theoretical and practical rationality. She argues that people with Asperger's
have this form of rationality, even if they have difficulty understanding
moral feelings. The opposing Humean view is that what makes a person a
moral agent is the ability to be moved to action by feelings of sympathy,
compassion, outrage at injustice, resentment at maltreatment, and other
distinctively moral emotions. While people with Asperger's may lack
feelings of empathy for other people, they are good at understanding rules,
and they have the capacity to modify their actions to guide their actions in
accordance with those rules. By way of contrast, she argues that while
psychopaths may achieve some shallow understanding of the rules (in the
sense that they are aware that other people follow those rules), they do not
modify their behavior accordingly, to treat others as they would want to be
treated, for example, and they also have problems with impulse control.
One question that arises for Kennett is whether her analysis rests on a
simplistic or incorrect characterization of Asperger's. This worry is raised
by Krahn and Fenton (2009), who point out that “Adopting an analysis of
empathy that distinguishes cognitive and affective empathy, for example,
has yielded experimental results that suggest a largely spared capacity for
affective, though probably not cognitive, empathy among HFAs [High
Functioning people with Autism]. Unqualified claims about a lack of
empathy among individuals with autism seem suspect in this light" (page
158). Thus, although people with Asperger's may have difficulty
recognizing the emotions of others as registered in their facial expressions
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
and body language, they still have the capacity for emotions reflecting
those of others. If Krahn and Fenton are right, then even Humeans will be
more inclined to agree that people with Asperger's are capable of moral
responsibility.
Another worry we might have with Kennett's assumptions is in her
supposition that people with Asperger's do not have significant problems
with impulse control and more generally with practical reason, the ability
to act on one's beliefs. The evidence cited earlier that they have a higher
risk of criminal prosecution, and the high rate of ADHD in the population,
suggests that impulse control and reaction to emotional stimuli may be
particularly difficult for them. If so, this would mean that they have more
problems with practical reasoning, and thus on Kennett's own criteria, they
are more similar to psychopaths than she realizes.
More work needs to be done on getting a good way to categorize
different subtypes of autism with respect to people's relevant moral
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
270 Chapter Fifteen
cases, and we can tolerate the uncertainty of how much blame to apportion
without deciding that the whole practice of holding people responsible is
vitiated. So we can work out an adequate way to do it in the case of
autism.
This will help us to distinguish different cases of autism. For example,
people with severe autism who are low functioning will have less moral
responsibility for their actions: their cognitive deficits will mean that they
are less able to empathize and will be less able to understand and follow
moral rules. In the most extreme cases, we may be hesitant to say they are
moral agents at all.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Are People with Autism Morally Responsible for Their Harmful Actions? 271
that very difficult, and they can react strongly. Sometimes the reactions
can be violent (Bronsard, Botbol, & Tordjman, 2010). Another frequent
explanation of the difficult behavior of people with ASD is that they have
a low frustration tolerance. They have difficulty making themselves
understood. They may also be perfectionists, and of course perfection is
very difficult to achieve. Because of their frustration, they sometimes
become agitated and violent. These explanations are fairly easy for people
without autism to understand. We all experience frustration and it is easy
to empathize with overstimulation; introverts, for example, do not like to
be among many people, and often people find the experience of going into
a casino very difficult with all the flashing lights, the loud noise level, and
the different kinds of games going on around. We can easily imagine
reacting badly to such circumstances. However, if typical adults become
violent after getting frustrated or overstimulated, we would see this as a
moral failing. This would be true even if they were very frustrated. So
merely experiencing frustration or overstimulation is not by itself a
complete justification for violent or hurtful behavior. However, it does
give us some reason to understand the violent reaction.
People with autism can have temper tantrums, rage, and extreme anger.
These emotions can lead to violent behavior towards others. Again, these
episodes may be caused by frustration and overstimulation. However,
they are still attitudes and actions that we directly condemn in typical
adults; we only think that people are justified in becoming very angry if
they, or people they care for or represent, have been badly treated or
denied rights. When people get angry to a degree out of proportion to the
original problem, we don't regard their tiredness, frustration, or personal
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
272 Chapter Fifteen
Forgiveness
Given that autism is a real disability and a struggle, we should be very
open to forgive people with autism who are (to an extent) morally
responsible for hurting others. We might even be willing to do this in
cases of terrible action such as murder, and we should be ready to do it in
cases of everyday frustration. Of course, the notion of forgiveness is not
simple, and there are questions it raises. Should we forgive someone who
remains defiant or simply will not ask for forgiveness? Should we forgive
immediately, as a default position, or should we be selective about what
actions to forgive? How do we decide if any actions are unforgiveable?
These are difficult questions that take us in a different direction, and may
be impossible to answer without specifying a more particular moral stance,
such as Christianity.
While there has been considerable philosophical discussion of
forgiveness and the conditions necessary for it to be appropriate, virtually
none of that is about the actions of people with neurodevelopmental
conditions or mental illness. As Hughs (2010) writes, the standard
definition of forgiveness "is the re-establishment or resumption of a
relationship ruptured by wrongdoing." There may be a psychological
necessity for caregivers of people with autism to forgive actions which
they hold their charges or relations morally responsible, if they are to
remain in the position of caring. It is difficult to simultaneously be a good
caregiver and harbor feelings of resentment and anger towards the person
you are helping. If they cannot forgive, then they may need to give up
their position as a caregiver.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
What seems pretty clear is that even when people with autism have
done something harmful or hurtful for which they carry at least some
moral responsibility, they still have a strong claim to forgiveness. This
claim derives from the fact that their autism makes life more difficult for
them in many ways, and they have been unlucky in having the condition of
autism. We might also note that should we rethink the status of autism as
a disability, deciding to describe it a difference instead, then we will be
likely to rethink the claim of a person with autism to forgiveness.
Conclusion
As this discussion has exemplified, the discussion of the moral
responsibility of people with autism for their actions is by nature
speculative and tentative, and it will be difficult to achieve any certainty in
conclusions. Nevertheless, we hope that we have shown that it is at least
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Are People with Autism Morally Responsible for Their Harmful Actions? 273
possible to systematically address the issues and shed some light on what
is at stake. Given the uncertainty involved, and the vulnerable position of
people with autism in our society, we need to be cautious in the expression
of blame towards them for their actions. Anger, resentment and blame can
be caustic emotions, and they can damage the lives of the people they are
directed at.
Nevertheless, there is a case to be made that people with autism have
the ability to experience moral feelings and that they are capable of
understanding moral rules. Their abilities, especially in regards to
understanding and sympathizing with the experiences of other people, may
be impaired, but they still exist in many cases. According to the main
theories of moral agency, it follows that people with autism can be moral
agents, deserving of praise and blame for their actions. There may be
occasions when it is entirely appropriate and reasonable to express moral
disapproval and anger to them for their actions, and to request an apology.
In the cases of people who have strong verbal abilities and who are
high-functioning, this conclusion seems easy to accept. While they are
different from people without the condition, and they have distinct
challenges in their moral understanding, they are still rather obviously
capable of moral credit and blame for their actions, even if they have blind
spots in their understanding where we will be less inclined to hold them
responsible for failings.
So let us finish by considering the cases of Jacob, Mary and Alexander,
who we started with. These three young people had more severe
problems, with developmental delays and major deficits in their language
abilities and their cognitive abilities. Given their environment and their
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
274 Chapter Fifteen
social rules and appropriateness (a story about a student getting on the bus
being tailored for an individual who is obstinate when needing to leave for
school in the morning, for example). With the considerations mentioned
in this paper and the effectiveness of these practices in mind, it seems,
then, that the conditions that lead us to assume some degree of agency of
even some of the severe cases of autism are the same conditions that allow
us to think of and treat individuals with autism as moral agents.
References
Baron, M. (2007). Excuses, excuses. Criminal Law and Philosophy, 1(1),
21–39. doi:10.1007/s11572-006-9001-2
Eshleman, A. (2009). Moral Responsibility. Retrieved from The Stanford
Encyclopedia of Philosophy: http://plato.stanford.edu/cgi-bin/ency
clopedia/archinfo.cgi?entry=moral-responsibility
Fischer, J. M. (2006). Free Will and Moral Responsibility. In D. Copp,
The Oxford Handbook of Ethical Theory (pp. 321-356). New York:
Oxford University Press.
Grandin, T. (1995). Thinking in pictures: and other reports from my life
with autism XE "autism" . New York: Doubleday.
Hellings, J., Nickel, E., Weckbaugh, M., McCarter, K., Mosier, M., &
Schroeder, S. (2005). The Overt Aggression Scale for Rating
Aggression in Outpatient Youth With Autistic Disorder: Preliminary
Findings. The Journal of Neuropsychiatry and Clinical Neurosciences ,
17 (1), 29-35.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Are People with Autism Morally Responsible for Their Harmful Actions? 275
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CHAPTER SIXTEEN
KRISTINA CHEW
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Odysseus and “The Fools” 277
rate in the late 20th and early 21st century. Once considered a rare disorder
occurring at a rate of one in some or even several hundred thousand,
prevalence rates for autism are now as low as one in 88 and even one in 38
(Kim, 2011).3 In Unstrange Minds: Remapping the World of Autism,
anthropologist Roy Richard Grinker writs about the impact cultural and
societal changes (such as for the diagnostic criteria for autism) have had
on autism prevalence and on cultural and societal acceptance of autism. As
Grinker writes, “the cluster of symptoms we now know as autism has
probably been around for a long time, but no one really knows for sure”
(Grinker, 2003, 52). A "perfect storm" of certain historical and cultural
circumstances have contributed to the rising interest and understanding,
and therefore the rising numbers, of autism diagnoses.
While the perspective of understanding and acceptance about
neurological difference is very much a feature of contemporary culture, an
examination of ancient texts suggests that an awareness of what we today
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
278 Chapter Sixteen
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Odysseus and “The Fools” 279
ȃȒʌȚȠȢ means "infant, child" and also childish" and "not yet speaking";
by extension, it means "silly, without foresight, blind."5 It is made up of
the negating prefix ȞȘ- and the word ʌȠȢ, which means "word," "speech."
ȃȒʌȚȠȢ has connotations of being unable to talk like an infant; of being
unable to communicate and to voice only sounds that have no meaning. To
be ȞȒʌȚȠȢ is to be without speech in a similar formulation as the Latin
word infans, the in- negating what follows (fans means "speaking" and is
from for, fari, fatus sum).
In ȞȒʌȚȠȢ, “not speaking” is associated with not being able to think.
Forms of ȞȒʌȚȠȢ are used 21 times in the Odyssey. Notably, the word
occurs in line 8 of the proem of the Odyssey, with the narrator castigating
Odysseus' men for eating the cattle of the sun, thereby negating their
return home.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
280 Chapter Sixteen
in a similar sense when he refers to his men as ȞȒʌȚȠȚ when they drink and
eat unwarrantly against his admonitions,10 in a use of the word recalling
that in the opening lies of the Odyssey when such behavior is expressively
identified as the reason Odysseus' men do not return home.
The word ȞȒʌȚȠȢ is often used in proximity to mention of women and
mothers. In 19.530, Penelope, speaking to Odysseus disguised as a beggar,
uses ȞȒʌȚȠȢ along with ȤĮȜȓijȡȦȞ ("slow of wit, thought") to describe the
young Telemachus who, she says, so long as he was such, would not allow
her to remarry and leave her husband's house.11
In the latter books of the Odyssey, ȞȒʌȚȠȢ is used in reference to the
suitors in another instance of the word being associated with those who are
less than intelligent. The suitor Antinous uses ȞȒʌȚȠȢ to tell off the other
suitors as ȞȒʌȚȠȚ ȐȖȡȠȚȫIJĮȚ (“foolist and boorish”) at 21.86, when they are
all unable to string Odysseus' bow. At 22.32, the narrator calls the
suitors—on the verge of being killed by Odysseus who has just revealed
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Odysseus and “The Fools” 281
his true identity—ȞȒʌȚȠȚ, "fools" who did not know (ȑȞȩȘıĮȞ).12 Medon
the herald also uses ȞȒʌȚȠȚ to describe the suitors, and distance himself
from them, at 22.370, in pleading for his life after hiding himself in an ox-
hide. Finally, at 24.469 ȞȒʌȚȠȢ is used (ȞȘʌȚȑȘıȚ) specifically to describe
the words of the old lord Halitherses, who rebukes the actions of the now
slain suitors to their families, who seek vengeance against Odysseus.13
To a modern reader, ȞȒʌȚȠȢ thematizes disability almost too well, as
being associated with being foolish, childlike, unable to think reasonably
for oneself and making errors of judgment. To be ȞȒʌȚȠȢ is to slow of
thought and, in essence, cognitively impaired.
people think and act, an ability that is arguably a reason for his survival.
He saves his men and himself after they are trapped in the Cyclops' cave
by giving himself a false name (ȠȣįİȓȢ, "nobody") and coaxing the
Cyclops to drink wine, calculating that the one-eyed giant will not have
tried such before and will be unable to stop drinking, much manage the
effects of wine.
Odysseus is also ʌȠȜȪIJȡȠʌȠȢ because of his verbal ability, his
signature talent to talk his way out of any and every tight spot. His
heroism lies as much in his verbal ability, his power as a speaker, as in his
military feats and strength. He is not simply clever but able to adapt with
circumstances. His verbal ability is highlighted early in the Iliad in Book 2
in a passage that clearly contrasts him with a figure who could be
considered ȞȒʌȚȠȢ and that has been remarked upon as suggesting ancient
attitudes towards disability. This is Odysseus’ encounter with Thersites
who, a commoner and not a member of the aristocracy, fiercely upbraids
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
282 Chapter Sixteen
Agamemnon, the commander of the Greeks, for keeping the army at Troy
into a tenth year.
[Bowl-legged he was and lame in his other foot: And his shoulders
curved, hunched over his chest and higher up
Was his malformed head, with sparse hairs on it.]
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Odysseus and “The Fools” 283
The word țĮțȠȪȡȖȠȚ means, most literally, “those doing ill,” and, by
extension, “mischievous, villanous, malefactor.” ȀĮțȩȢ is “bad” and
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
“evil,” while ȡȖȠȞ means “work” or “deed.” The etymology of țĮțȩȢ can
be traced back to the Proto-Indo-European word kakka, “to defecate”:
ȀĮțȩȢ means nothing nice or good. Its additional meanings are “ugly,” in
terms of appearance; “ill-born,” in terms of birth (in contrast, the heroes in
the Trojan War are all of “noble birth” (ȖȞȒıȚȠȢ); “cowardly”; “worthless,
unskilled, sorry” (for instance, of a sailor or doctor who is “bad” at what
he claims to do); “base, evil” in a moral sense; “abusive, foul,” of words.
Used as a noun (and in the neuter gender), țĮțȩȢ has the additional
meaning of “harm” or “ill,” in the sense of “evil coming to a person.”
The various meanings of țĮțȩȢ cohere with the criteria for choosing
the ijĮȡȝĮțȩȢ, the scapegoat as described by Vernant and Vidal-Naquet.
Notably, those chosen to be ijĮȡȝĮțȩi (the plural form of ijĮȡȝĮțȩȢ) were
not only those who had done some evil—a crime—but also those who
were “physically ugly,” which is another meaning of țĮțȩȢ. Physical
ugliness and deformity is, then, associated with baseness of character.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
284 Chapter Sixteen
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Odysseus and “The Fools” 285
References
Autism Spectrum Disorders (ASDs), Data & Statistics. Centers for
Diseases and Control, last modified March 29, 2012,
http://www.cdc.gov/ncbddd/autism/data.html.
Grinker, R. (2003). Unstrange Minds: Remapping the World of Autism.
New York: Basic Books.
Hexter, R.J. and Selden, D.J. ed., (1992). Innovations of Antiquity
Routledge: New York & London.
Jaarsma, P. and Welin, S. (2012). “Autism as a natural human variation:
reflections on the claims of the neurodiversity movement,” Health Care
Analysis 20, no. 1: 20-30.
Young, S.K., et al., “Prevalence of autism spectrum disorders in a total
population sample,” American Journal of Psychiatry 168, no. 9 (2011):
904-912.
ȞȒʌȚȠȢ, Greek Word Study Tool, Perseus, accessed December 12,
2012.http://www.perseus.tufts.edu/hopper/morph?l=nhpios&la=greek#
lexicon.
ʌȠȜȪIJȡȠʌȠȢ, Greek Word Study Tool, Perseus, accessed December 12,
2012,http://www.perseus.tufts.edu/hopper/morph?l=neu%3Dron&la=g
reek&can=neu%3Dron0&prior=neuromh=trai#lexicontje.
Postlethwaite, N. (1988) “Thersites in the Iliad,” Greece & Rome, Second
Series, 5, no. 2, 123-136.
Rose, M. L., (2003). The Staff of Oedipus: Transforming Disability in
Ancient Greece. Ann Arbor: University of Michigan Press.
Vernant, J. and Videl-Naquet, P. trans. Janet Lloyd, (1968). Myth and
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
NOTES
Introduction
1
Discussing how it is that people might take "the moral point of view," the author
of an otherwise excellent book on the topic writes, "Think of what we are being
asked to imagine, someone with no capacity for sympathy or empathy, someone
with no concern for others, someone with no identification with any human
community, someone with no sense of fairness...What we are asked to imagine is a
truly colossal failure of socialization, someone who has no disposition that can be
satisfied by following moral rules, and who, even after serious reflection, would
still not have one. . . Such a person must be either autistic or a Martian" (Olen,
1988, pp. 51-52_). Olen, J. (1988)..Moral Freedom. Philadelphia: Temple University
Press.
Chapter One
1
Interestingly, some theorists claim that Bartleby himself is a quintessential
example of an autistic adult.
Chapter Two
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
1
See: Tan, Justice, Institutions, and Luck, 1.
2
For more on how Full Autonomy adds conditions to Rational Autonomy see
pages 528-530.
3
One important aspect of the literature in philosophy should be noted. While
neurodiversity refers to psychological or neurological difference, most
philosophers approach the issue by analyzing disability. While the terminology
triggers othering, here I use the ideas in service of the difference characterized with
neurodiversity.
4
One study looking at the quantification of small numbers further evidences this
point. Rather than seeing “four” when a small number of objects are presented, the
timing of responses is more consistent with a process that counts up to four and is
not subject to framing effects. See: Gagnon et al., “Quantification Judgement in
High Functioning Autism: Superior or Different?”.
5
Kittay and Carson think these individualls present the biggest challenge to
inclusion. See: Carlson and Kittay, “Rethinking Philosophical Presumptions in
Light of Cognitive Disability,” 313.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Ethics and Neurodiversity 287
6
For a nice piece that brings together Rawls’s notion of democracy and the
capabilities approach see: Anderson, “What Is the Point of Equality?”
7
For a nice schema on how to approach different kinds of positive interventions
and goals in resources allocations, see: Wolff, “Cognitive Disability in a Society of
Equals.”
Chapter Three
1
We elected not to anonymize the universities as the school rankings list is
publically available, and the included excerpts are traceable online.
Chapter Four
1
A contentious issue for autism advocates concerns the interplay between
language practices and identity. Is person-first (e.g., “person with autism”) or
autism-first (e.g., “autistic person”) language preferable? Some prefer “person with
autism” because it puts the person before the autism. Others have argued that
person-first language wrongly implies that autism is separable from the person
(Sinclair, 1999). I use both kinds of language in this paper to honor the different
ways individuals may choose to talk about themselves.
2
The existing literature on representations of autism (e.g., Broderick & Ne’eman,
2008; Duffy & Dorner, 2011; Hacking, 2009a, 2009b, 2009c; Sarrett, 2011:
Smukler, 2005) contains valuable analyses of these and other metaphors for
autism. These analyses and others like them are part of an ongoing critique of
tragedy narratives and disability, a central topic in disability studies. For more on
tragedy narratives and disability see Oliver (1990).
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
3
Hacking (2009c) notes: “Many people hardly waste the time to write out “Theory
of Mind” any more, they just write “ToM.” I do not follow this practice, because
the very fact that we use an abbreviation makes us take it for granted, as some sort
of proven fact” (p. 54). I am sympathetic with Hacking’s concern and do not use
“ToM” in this paper.
4
Actually, there is a slightly earlier occurrence of “mindblindness” in the autism
literature. See Frith (1989).
5
See Wittgenstein, 1953; 1980 and Köhler, 1929 for examples of perceptual access
views of other minds.
6
The views of these autistic advocates do not represent everyone on the spectrum.
Also, there are autistic persons whose functional challenges do not afford them the
opportunity to self-advocate.
7
For a thoughtful philosophical discussion of blindness, including a fascinating
discussion of Wells’ story, see the letter correspondence between the blind
philosopher, Martin Milligan and the sighted philosopher, Bryan Magee: Magee &
Milligan (1995).
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
288 Notes
8
And yet a metaphor that connotes “seeing differently” would still privilege vision
over the other senses and thus obscure the ways other senses may contribute to
social interaction and communication (Akhtar & Gernsbacher, 2008).
9
I am grateful to Nameera Akhtar, the audience at the Bergen Community College
conference, “Social, Political, and Ethical Perspectives on Autism” April, 2012,
and the editors of this volume for helpful feedback on earlier versions of this
paper.
Chapter Seven
1
For example, experimental philosopher Manuel Vargas claims that sociopathy,
psychopathy, and antisocial personality disorder are synonyms distinguished only
in age and are, therefore, interchangeable (2010, pp. 69-71). Clinical psychologist
Martha Stout, Ph.D. freely switches between the terms in her book The Sociopath
Next Door (2005).
2
Hopefully, this part of the conditions will be revised in the upcoming version of
the DSM, as many professionals acknowledge the existence of acquired
sociopathy, which happens as a result of extreme trauma to the areas of the brain
believed to be responsible for APDs.
3
For example, patient A might satisfy conditions 3, 4, and 5 and patient B might
satisfy conditions 1, 2, and 6. Both would have APD even though that might be all
that they have in common.
4
Lykken (1995) considers character neurosis a third species of APD and distinct
from psychopathy and sociopathy.
5
I want to leave it open that a person could be akratic (susceptible to acting
against her best judgment) and still have a conscience. While an akratic might
rarely do what her conscious demands, her conscious still makes demands of her
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
and punishes her with guilt and remorse after the fact. Such persons are probably
not clinically distinguishable, though their actions alone might suggest it. By
considering the meaning of the term ‘behavior’ broadly we can include emotional
experiences as well as overt actions.
6
While earlier research suggested similar conclusions, Craig et al. specifically
targeted connections between the OFC and amygdala related to white matter
connections. They found a reduced fractional anisotropy (FA) in the right unculate
fasciculus (UF) in the psychopathic subjects.
7
It should be noted that all instances in this paper that refer to sociopaths as
virtuous are to be interpreted with this caveat in mind. I argue that sociopaths can
have virtues, and that their virtues might even be enhanced and grounded in what
makes them sociopaths. I am not arguing that sociopaths can be virtuous morally
exemplary human beings without (somehow) curing themselves of their
sociopathy.
8
Babiak and Hare (2006) argue that only large businesses such as corporations are
likely to attract psychopaths since psychopaths can remain “under the radar” and
are able to climb the corporate ladder with ease and receive perquisites. Hare and
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Ethics and Neurodiversity 289
Babiak doubt that psychopaths would flourish in smaller business where mobility
is limited, mutual monitoring of employees is natural, and a team effort are
expected (pp. 95-7).
9
I am grateful for the comments and suggestions made by Stephen M. Kershner on
earlier versions of this manuscript. Several conversations with participants of The
Capacity-Character Project workshop (held at Delft University of Technology, the
Netherlands, May 21-22, 2012) were formative to the writing of this piece. These
interactions, along with the suggestions of helpful anonymous reviewers, proved
invaluable in the completion of this paper.
Chapter Eight
Acknowledgments: A shortened version of this paper was given as a Bioethics
Grand Rounds presentation at the Cleveland Clinic, Cleveland Ohio, USA, in
September 2010.
1
An accessible overview of the neurotypical movement can be found at the
Wikipedia entry for “Autism Rights Movement”, cross-referenced as “Neurodiversity”
at http://en.wikipedia.org/wiki/Neurodiversity_movement
2
Some of the blogs and websites that espouse a neurodiverse perspective include:
The Autism Women's Network: http://autismwomensnetwork.org/
The Autistic Self Advocacy Network, ASAN: www.autisticadvocacy.org
Autistics.org, with a portal to Second Life: www.Autistics.org
Amanda Bagg’s Blog: http://ballastexistenz.autistics.org/?cat=128
“Neurotypicals Are Weird” Blog: http://thiswayoflife.org/blog/
Asperger Square 8 by Bev http://aspergersquare8.blogspot.com/
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Chapter Nine
1
A helpful and concise discussion of the four-stage sequence is given by Leif
Wenar in the Stanford Encyclopedia of Philosophy’s entry “John Rawls.” See,
especially, “4.9 Institutions: The Four-Stage Sequence.” Web. 6 April 2012.
2
An additional confounding factor is scatter, the phenomenon whereby some
individuals may present much higher in certain categories, e.g. verbal tests, while
having diminished capacities elsewhere. Also, because labels are not mutually
exclusive, persons with emotional disabilities or mental retardation may have other
diagnoses that impede on their performance. For example, having ADHD could
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
290 Notes
mean test taking exceeds the person’s attention span causing skewed results, or
having an emotional disturbance could mean frustrating and challenging questions
would be ignored, or even completing the test itself could be rendered
impracticable. Eva Kittay raises this problem in At the Margins when she says,
“Sesha has no measurable IQ because IQ tests depend on capabilities to express
cognitive capacities and Sesha lacks these expressive capabilities” (127).
3
There are further complications with trying to define who is unreasonable due to
a lack of goods (e.g. mental health facilities or medication) versus someone like
Andrew whose unreasonableness cannot [yet?] be sufficiently mitigated by goods.
4
There is a disanalogy here between duties to animals and humans viz. negative
versus positive obligations. We have obligations to not harm both humans and
animals, but we clearly do not have a positive obligation to provide for the
biological needs of all animals, whereas a strong case could be made that we do
have this obligation for all humans. I owe this objection to Blain Neufeld.
5
For examples of the range of disabilities, consider first someone who is so
paralyzed they cannot even manage communication yet who retains their cognitive
abilities. On the other end of the spectrum, consider a person whose mental
functioning is perhaps at the level of some non-human animals, yet can perform
mechanical tasks (e.g. assembly line work) that allow them to hold employment. In
the middle somewhere we would find persons who have emotional impairments or
mental illnesses such that they can revise and pursue a conception of the good,
maintain employment, yet have no sense of justice and do not recognize the rights
of others. All of these non-citizen humans are capable of contributions in their own
ways, yet none would qualify as persons represented in the OP on Rawls’s
account.
6
In communication, Hartley tells me she has something like Anderson’s goods in
mind for her own account, though this has not yet been developed in her extant
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
writings).
7
I am indebted to Andrea Westlund for help with this idea.
8
I owe this worry to Julius Sensat.
Chapter Ten
1
In this chapter I use the terms “normal” and “normality” interchangeably.
2
Wachbroit ultimately argues against this understanding of normality.
3
I offer many of the prominent uses on normal in health care but I do not
necessarily argue for the use of any of these explanations of normal.
4
Daniels’ more recent account of justice in health care is given in economic terms.
See “Justice, health, and health care” in Medicine and Social Justice; Essays on the
Distribution of Health Care, edited by R. Rhodes, M.P. Battin, and A. Silvers.
5
Other reasons may include, but are not limited to, as a matter of justice or
equality.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Ethics and Neurodiversity 291
6
For the sake of brevity and a limited, yet focused account of just health care, I do
not present the diverse body of literature on “disease;” however, I acknowledge
this important literature
7
For exceptions, see section “Normal Functioning” and “Normal Functioning and
Asperger’s Syndrome.”
I have benefited greatly from the University of Wisconsin-Milwaukee’s
Philosophy Graduate Student Workshop, an audience at Michigan State University
and from comments by Blain Neufeld, Julius Sensat, Andrea Westlund and Justin
Bernstein
Chapter Twelve
1
There is a simple, analytic argument for why moral agents have a prima facie
non-arbitrary right to life and wellbeing that goes like this: (1) To be a moral agent
is to be the sort of thing that can be morally praiseworthy or blameworthy. (2) To
be morally praiseworthy just is to deserve that good things happen to you. To be
blameworthy is to deserve bad things happen to you. (3) Harms, such as death, are
uncontroversially bad things to happen to individuals in most cases. (4) To say
that something has a right to life just is to say that it would be inappropriate to kill
that thing. (5) Thus, it is prima facie morally wrong to kill morally praiseworthy
moral agents.
2
See: Konrad, Walecia, 2010, Dealing With the Financial Burden of Autism, The
New York Times, accessed 2-18-2012,
http://www.nytimes.com/2010/01/23/health/23patient.html?ref=health; Rudy, Lisa
Jo, 2010, Putting the Costs of Autism in Context, About.com, accessed 2-18-2012,
http://autism.about.com/b/2010/05/18/putting-the-costs-of-autism-in-context.htm;
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ganz, Michael, 2006, “The Costs of Autism,” from Understanding Autism: From
Basic Neuroscience to Treatment, CRC Press.
3
Suppose a person with a broken leg has an interview at the top of a flight of stairs
- under normal circumstances, she would be able to climb the stairs relatively
easily; however her broken leg makes climbing the stairs more difficult. Although
such a person may be able to do all the same things she could before she broke her
leg, it makes sense to say that her broken leg undermines her liberty because
climbing the stairs is more difficult than it otherwise would be. In contrast, a
person in a coma cannot choose to climb the stairs at all, and thus we can say her
liberty is undermined because she is incapable of making such a choice.
4
See Grandin, Temple, 1999
5
Exceptions can reasonably be made if the guardians believe a similar, but safer,
treatment would be available within a reasonable amount of time.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
292 Notes
Chapter Thirteen
I thank David Brink, Dana Nelkin, Julie Tannenbaum, Robb Eason, Margarita
Levantovskaya, Joyce Havstad, Adam Streed, Tim Jankowiak, Amy Berg, Per
Milam and two anonymous reviewers for valuable comments on drafts of this
material. I also thank audiences at the 2011 Pacific APA meeting in Seattle and the
2010 Rocky Mountain Ethics Congress in Boulder, CO where drafts of these
arguments were presented.
2
Yalin Yang and Adrian Raine claim that what separates the successful
psychopath from the standard psychopath is that standard psychopaths show
characteristic deficiencies in gray matter volume and that these deficits are
“associated with poor judgment and decision-making, thus rendering unsuccessful
psychopaths potentially more prone to conviction” [Yang and Raine 2008, 134-
135]. Successful psychopaths avoid incarceration but this does not rule out the fact
that they may, in Hare's defense, still behave with persistent criminality. They may
simply be better at getting away with their criminal behavior.
3
Whether moral reasons (or moral judgments) necessarily motivate agents, is a
debate between what philosophers call motivational internalism and externalism
about moral reasons. Internalists claim that moral judgments are connected with
desires to act in accordance with our judgments[Smith 1995; Garrard and
McNaughton 1998]; externalists, on the other hand, deny that moral judgments
imply or necessitate desires to act [Brink 1997; Roskies 2003]. Some alternative
positions resolve the issue by rejecting the belief-desire psychology on which it is
grounded [McDowell 1979]. It is beyond the scope of this chapter to address the
debate about internalism and the role of psychopathic agency in that debate.
4
Although I take inspiration from Watson, these distinctions have been
challenged. Jay Wallace recognizes that attributability and accountability are
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
separate judgments about an agent and his or her action but denies that the two
judgments are conceptually distinct. In this sense Wallace argues that the two
judgments are conceptually connected [Wallace 1994]. Watson's view of
attributability and accountability as singular concepts has been challenged. John
Fischer and Neil Tognazzini have claimed that there are at least two distinct
notions of attributability and as many as five different senses of accountability
[Fischer and Tognazzini 2011, 381].
5
Some claim that responsibility requires the possession of the kinds of capacities I
have been discussing and the further criterion that an actions flows from the right
kind of historical process. Although evil neurosurgeons may implant malicious
desires in my brain so that I, in the normal way, act on them, that process, even if it
does not undermine attributability, is not something I am fully responsible for on
these views. An action must also be traceable to past historical decisions in an
intelligible way [Fischer and Ravizza 1996, 17-206].
6
Shame is typically understood to be different from guilt because shame is a self-
directed emotion we feel when we judge that we have violated a community's
norms. Guilt, on the other hand, requires the moralized judgment that we have
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Ethics and Neurodiversity 293
acted wrongly. Because of this, shame does not appear to require that we accept or
internalize our community's norms in order to feel ashamed of violating them
[Williams 1993/2008; Taylor 1985]. If this analysis of shame is correct then it
might be appropriate for the atheist to feel ashamed of herself for violating her
community's norms even though she believes that it is not wrong to violate them.
Chapter Fourteen
1
See e.g. Shaun Nichols (2004), Sentimental Rules: On the Natural Foundations
of Moral Judgment (New York: Oxford University Press); Heidi Maibom (2005),
‘Moral Unreason: the Case of Psychopathy’, Mind & Language, 20, pp. 237-57.
2
See also Jesse Prinz (2011), ‘Is Empathy Necessary for Moral Agency?’, in Amy
Coplan and Peter Goldie (ed.), Empathy: Philosophical and Psychological
Perspectives (Oxford: Oxford University Press), pp. 211-29.
3
See e.g. Timothy Krahn & Andrew Fenton (2009), 'Autism, Empathy and
Questions of Moral Agency', Journal for the Theory of Social Behavior, 39 (2), pp.
145-66 and Heidi Maibom (2009), 'Feeling for Others: Empathy, Sympathy, and
Morality', Inquiry, 52 (5), pp. 483-99.For a definition of empathy that identifies it
exclusively with sympathy, see Batson et al. (1987), 'Adults' Emotional Reactions
to the Distress of Others', in Nancy Eisenberg & Janet Strayer (ed.), Empathy and
Its Development (Cambridge: Cambridge University Press), pp. 163-84.
4
Shaun Nichols’ discussion of the existence of a double dissociation between what
he calls the Concern Mechanism (equivalent to what we have been calling
affective empathy) and perspective-taking (i.e. cognitive empathy) reinforces this
point. See Nichols (2004), p. 59.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Chapter Fifteen
1
Note that we will vary the ways that we refer to the condition of autism and the
people diagnosed with it, with some preference for "people first" language, but
also recognizing that each form of reference has its own benefits and problems. In
any case, we understand that having autism is not an exhaustive account of a
person’s identity or personhood.
Chapter Sixteen
1
Froma I. Zeitlin, John J. Winkler and David Halperin, ed., Before Sexuality: The
Construction of Erotic Experience in the Ancient World (Princeton: Princeton
University Press, 1991); John J. Winkler, The Constraints of Desire. The
Anthropology of Sex and Gender in Ancient Greece (Routledge: New York &
London, 1990); Ralph J. Hexter and Daniel J. Selden, ed., Innovations of Antiquity
(Routledge: New York & London, 1992).
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
294 Notes
2
Indeed, in November of 2012, the American Psychiatric Association announced
that Asperger's Syndrome will not be included as a separate condition in the fifth
edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM). The
DSM-V, has been widely anticipated as having the potential to alter who qualifies
as on the autism spectrum and who, therefore, can receive educational and other
services.
3
Autism Spectrum Disorders (ASDs), Data & Statistics. Centers for Diseases and
Control, last modified March 29, 2012,
http://www.cdc.gov/ncbddd/autism/data.html.
4
This translation, and all those in this essay, are by the author.
5
ȞȒʌȚȠȢ, Greek Word Study Tool, Perseus, accessed December 12, 2012.
http://www.perseus.tufts.edu/hopper/morph?l=nhpios&la=greek#lexicon.
6
ȞȒʌȚȠȢ, Greek Word Study Tool, Perseus, accessed December 12, 2012,
http://www.perseus.tufts.edu/hopper/text?doc=Perseus:text:1999.01.0135:book=11
:card=440&highlight=.
7
ȞȒʌȚȠȢ, Greek Word Study Tool, Perseus, accessed December 12, 2012,
http://www.perseus.tufts.edu/hopper/text?doc=Perseus%3Atext%3A1999.01.0135
%3Abook%3D6%3Acard%3D288.
8
ȞȒʌȚȠȢ, Greek Word Study Tool, Perseus, accessed December 12, 2012,
http://www.perseus.tufts.edu/hopper/text?doc=Perseus:text:1999.01.0135:book=9:
card=1&highlight=.
9
ȞȒʌȚȠȢ, Greek Word Study Tool, Perseus, accessed December 12, 2012,
http://www.perseus.tufts.edu/hopper/text?doc=Perseus:text:1999.01.0135:book=4:
card=1&highlight=.
10
ȞȒʌȚȠȢ, Greek Word Study Tool, Perseus, accessed December 12, 2012,
http://www.perseus.tufts.edu/hopper/text?doc=Perseus:text:1999.01.0135:book=9:
card=1&highlight=.
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
11
ȞȒʌȚȠȢ, Greek Word Study Tool, Perseus, accessed December 12, 2012,
http://www.perseus.tufts.edu/hopper/text?doc=Perseus:text:1999.01.0135:book=19
:card=499&highlight=?.
12
ȞȒʌȚȠȢ, Greek Word Study Tool, Perseus, accessed December 12, 2012,
http://www.perseus.tufts.edu/hopper/text?doc=Perseus:text:1999.01.0135:book=22
:card=1&highlight=.
13
ȞȒʌȚȠȢ, Greek Word Study Tool, Perseus, accessed December 12, 2012,
http://www.perseus.tufts.edu/hopper/text?doc=Perseus%3Atext%3A1999.01.0135
%3Abook%3D24%3Acard%3D450.
14
ʌȠȜȪIJȡȠʌȠȢ, Greek Word Study Tool, Perseus, accessed December 12, 2012,
http://www.perseus.tufts.edu/hopper/morph?l=neu%3Dron&la=greek&can=neu%3
Dron0&prior=neuromh=trai#lexicontje.
15
Odyssey 11.489-491.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
CONTRIBUTORS
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
296 Contributors
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Ethics and Neurodiversity 297
and advocacy communities. Her research interests include literacy, ESL, and
composition. Jo Anne is currently examining the effect that communicative
models can have on hierarchies of naming, inclusion/exclusion, and stigma
in education, healthcare, and research.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
298 Contributors
University. His research investigates the ways that empirical data from
psychology and the neurosciences can inform meta-ethical debates about
the moral reasons, emotion, and responsibility. He has written on the
nature of emotion, Sentimentalism, and psychopathic moral psychology.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Ethics and Neurodiversity 299
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
INDEX
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Ethics and Neurodiversity 301
E
D
education · 47, 52, 53, 54, 55, 56,
da Vinci, Leonardo · 278 57, 58, 62, 63, 64, 65, 66, 107,
Daniels, Norm · 162, 163, 164, 168, 146, 149, 158, 162, 163, 166,
176, 182, 183, 184, 186, 187, 170, 184, 208, 211, 295, 296,
188, 189, 290 297
Dartmouth College · 62, 63 emotions · 9, 16, 26, 103, 113, 114,
Davidson, Donald · 43, 50, 109, 135 217, 224, 226, 227, 233, 241,
democratic · 39, 40, 45, 48, 161, 245, 247, 248, 254, 263, 264,
163 269, 271, 273
deontological · 139 empathy · 32, 70, 101, 104, 218,
determinism · 224 220, 222, 238, 239, 240, 241,
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Diagnostic and Statistical Manual · 242, 243, 244, 245, 246, 247,
112, 216, 221, 241, 277, 289, 248, 249, 250, 251, 252, 253,
294 254, 255, 256, 257, 268, 269,
difference · 1, 2, 3, 4, 5, 6, 7, 8, 12, 270, 286, 293
15, 16, 21, 35, 39, 42, 43, 68, 72, Employment · 170
73, 76, 77, 78, 79, 81, 94, 108, equality · 4, 39, 40, 41, 42, 44, 45,
110, 115, 119, 125, 126, 131, 47, 48, 49, 60, 78, 81, 109, 144,
134, 135, 140, 141, 185, 191, 162, 171, 179, 182, 184, 186,
192, 193, 199, 207, 222, 249 189, 290
disability services · 52, 53, 54, 56, Ethic of Care · 139
58, 62, 65
disabled · 47, 54, 55, 64, 66, 146,
147, 148, 149, 150, 151, 152, F
153, 154, 155, 156, 157, 158,
159, 160, 161, 162, 163, 164,
Fenton and Krahn · 142
165, 166, 167, 168, 169, 170,
Frankfurt, Harry · 224, 225, 235
171, 172, 173, 174, 175, 176,
Freedom · 225, 235, 237, 286
194, 282, 284
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
302 Index
Frith, Uta · 68, 69, 70, 71, 74, 80, Individual Education Programs ·
81, 84, 241, 242, 287 265
informed consent · 104, 106, 135
injustice · 2, 3, 4, 6, 9, 13, 46, 47,
G 269
introspection · 18, 21, 23, 24
Gilligan, Carol · 94, 95, 96, 98
Glannon, Walter · 42, 43, 51, 100,
109, 133, 140, 145 J
Grandin, Temple · 33, 78, 82, 209,
216, 245, 246, 250, 251, 253, justice · 2, 3, 5, 6, 8, 14, 15, 16, 39,
256, 265, 291 41, 47, 66, 68, 100, 104, 105,
Grice, Paul · 135 106, 107, 108, 117, 119, 121,
Grinker, Roy Richard · 277, 285 125, 146, 147, 148, 149, 150,
guilt · 113, 114, 122, 217, 218, 220, 151, 152, 153, 154, 155, 156,
226, 227, 233, 288, 292 157, 158, 159, 160, 161, 162,
163, 164, 165, 167, 170, 171,
172, 173, 175, 178, 179, 181,
H 182, 187, 188, 189, 190, 191,
290, 297
Hacking, Ian · 21, 34, 35, 37, 67,
76, 82, 136, 145, 287
hallucinatory disorder · 18 K
Happé, Francesca · 133, 134, 261
Hare · 112, 113, 115, 122, 123, 124, Kant, Immanuel · 24, 25, 26, 29, 33,
127, 128, 220, 221, 222, 223, 37, 145, 239, 240, 249, 250, 251,
233, 234, 235, 236, 240, 242, 254, 255, 257
288, 292 Kantian · 26, 51, 132, 139, 240,
Copyright © 2013. Cambridge Scholars Publisher. All rights reserved.
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Ethics and Neurodiversity 303
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
304 Index
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.
Ethics and Neurodiversity 305
Ethics and Neurodiversity, edited by Alexandra Perry, et al., Cambridge Scholars Publisher, 2013. ProQuest Ebook Central,
http://ebookcentral.proquest.com/lib/york-ebooks/detail.action?docID=1800417.
Created from york-ebooks on 2021-12-30 13:04:46.