Professional Documents
Culture Documents
Approach in Nursing
Practice
Diploma of Nursing
Tricia O'Connor RN MN
Palliative Care is a sensitive subject
privacy and confidentiality are essential
people's feelings and thoughts must be
respected
people's right not to disclose feelings and
thoughts must be respected.
Support
Self Care
Tricia O'Connor RN MN
Learning Objectives
To gain an understanding of what a palliative
care and a palliative approach to care is
To investigate what quality of life may mean to
different clients
Gain awareness of End of Life Care
Gain awareness of After Death Care
Tricia O'Connor RN MN
A definition
Palliative care aims to improve the quality of
life of patients and the families of patients,
who face the problem associated with life-
threatening illness. It involves the early
identification and impeccable assessment and
treatment of pain and other physical,
psychosocial and spiritual problems. It both
prevents and relieves suffering (World Health
Organisation).
Tricia O'Connor RN MN
What is Quality of Life
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Tricia O'Connor RN MN
W.H.O. definition for quality of life
“an individual’s perception of their position in
life in the context of the culture and value
systems in which they live and in relation to
their goals, expectations, standards and
concerns. It is a broad ranging concept
affected in a complex way by the person’s
physical health, psychological state, personal
beliefs, social relationships and their
relationship to salient features of their
environment”
Tricia O'Connor RN MN
What is a life-threatening illness?
Not just cancer,
can be
Tricia O'Connor RN MN
…..definition alternative
……. life-threatening illness.
Tricia O'Connor RN MN
Definition by Palliative Care Australia
Tricia O'Connor RN MN
Holistic
spiritual
physical cultural
psychologic
social
al
emotional
Tricia O'Connor RN MN
Barriers and Misconceptions
Loss of hope
Fighting the good fight- never give up
Death and dying is sanitised in western culture
Fear
Associated with speeding up death
Should only happen at the last minute
Will always use morphine = addiction
May have past history of bad experience in the family.
Living in rural and remote areas
Cultural concerns
Lack of knowledge about palliative care
Tricia O'Connor RN MN
What it is not.......
Stopping all treatment
Telling the client that there is no more
to be done
Giving exact time frame in which
someone will die
Euthanasia
Tricia O'Connor RN MN
Euthanasia versus Palliation
What is the difference?
Tricia O'Connor RN MN
Important
If a person dies soon after medication is
given to relieve pain or symptoms during
palliative treatment – this is not euthanasia –
as the intention is to relieve suffering by
legal and ethical means
Tricia O'Connor RN MN
Palliative care
Palliative care is designed to relieve the symptoms
of a disease rather than to cure it.
May still receive treatment but the aim has changed
It’s considered when a cure for a life-limiting illness
is not an option
When the client becomes so frail that death will be
the outcome.
There is no fixed point in a person’s life at which a
palliative approach should commence, as each client
will experience deterioration in their health
differently.
Tricia O'Connor RN MN
Palliative Care - Philosophy
The palliative approach comes early in the course of an
illness, not just as end-of-life care
Affirms life and regards dying as a normal process
Neither hastens nor postpones death
Provides relief from pain and other distressing symptoms
Integrates the physical, psychological, social, emotional and
spiritual aspects of care, with
Coordinated assessment and management of each persons needs
Offers a support system to help people live as actively as possible
until death
Offers a support system to help the family cope during the
persons illness
And in their bereavement.
Tricia O'Connor RN MN
Palliative care can be provided in three ways
Tricia O'Connor RN MN
GP
PCare
Hospic Specialis
e t
Patie
nt
OPD
HBPC
Tricia O'Connor RN MN
Recognising transition markers from
palliative approach to palliative care
(independent of disease)
Increase in dependence
Increased susceptibility to acute illness
Poor ability to recover stressors
Increased cognitive impairment
Symptom distress
Increasing family support needs
http://www.caresearch.com.au/Caresearch/Portals/0/Documents/whatispalliativecare/nationalprogram/rural-agpn/82-Philosphy-and-
Meaning-ofPC.pdf
Tricia O'Connor RN MN
Indication for Specialist Consultation
Exacerbation of previously stable symptoms
Needs exceed the capacity of the facility
Client requires complex symptom
management
Risk of complications, physical - social -
emotional
Tricia O'Connor RN MN
Who and Where
Who?
Young Women
Aged Men
Disability
Where?
Tricia O'Connor RN MN
Where?
Most patients who die an easily predictable
death from a diagnosed terminal illness want
to be cared for at home (>50%). However, only
about 16% are able to exercise this option, as
most patients now die in hospital; only 20% of
people die in hospices and 10% in nursing
homes. www.curriculum.racgp.org.au/statements/palliative-care/
Tricia O'Connor RN MN
When?
There is no fixed point in a person’s life at
which a palliative approach should
commence, as each client will experience
deterioration in their health differently.
Kaye's Story
Tricia O'Connor RN MN
Thoughts……?
Tricia O'Connor RN MN
Holistic Care
body
mind spirit
Tricia O'Connor RN MN
Holistic Care
spiritual
physical cultural
psychologic
social
al
emotional
Tricia O'Connor RN MN
The goals of end-of-life care
to maintain the comfort, choices, and quality of
life
to support their individuality
to care for the psychosocial and spiritual needs
of themselves and their families
support for families in bereavement (if required)
Tricia O'Connor RN MN
How people die remains
in the memories of
those who live on.
Saunders, C. M. & Baines, M. J. (1989). Living with dying: the management of terminal
disease (2nd ed.). Oxford, UK: Oxford University Press.
Tricia O'Connor RN MN
Care issues to consider
Comfortable positioning
Pain relief (other than oral)
Mouth care
Eye care
Elimination - retention
Breathing
Terminal restlessness
Delirium,
Tricia O'Connor RN MN
After Death
There is no need to hurry if family present
note time and
remain quiet, yet available
Console as you feel is appropriate to your
relationship.
Give the family time
friends and relatives may come and say their
goodbyes.
Telephone call if family not present
Listen more than you speak
Tricia O'Connor RN MN
Maintaining respectful support
• Give them the space to grieve in their own way and their own time.
• Be respectful of their privacy
• Try not to say things like “I know” or “I understand” unless you really do. • Don’t
make assumptions as to how they are feeling or what they need. Ask them.
• Listen to their needs, and try to assist in whatever ways you can.
• Appreciate that various cultures grieve and mourn in different ways – try not to
impose your own views and beliefs.
• Don’t avoid them. While there are no words that can heal their pain, to hear no
words and to feel isolated is far worse.
• Offer to spend time with them, but don’t commit to or suggest support that you
are unable or unwilling to follow through with.
• Avoid use of platitudes such as ‘They had a good innings’, ‘It was God’s will’ or ‘It
could be worse’
• Don’t take anger or strong emotions personally. Grief is an emotional
rollercoaster, and the reactions of the bereaved are not a personal attack on you.
• Avoid comparing their loss to other losses. Grief is as individual as a fingerprint,
and no loss is ever ‘the same’ as someone else’s www.grief.org.au
Tricia O'Connor RN MN
Practical after death care
RESPECT
DIGNITY
remove sources of heat
straighten limbs
replace dentures
Wash and dress : using Standard precautions as per
hospital policy. GLOVES
Incontinence pads
Paperwork and Funeral director
remove all medical lines (unless post mortem is
necessary then …)
Tricia O'Connor RN MN
Recap
What is a Palliative Care
What it is not
What is quality of life
and how can this concept be different for
different people,
can it change
Holistic care
End of life care
After death care
Tricia O'Connor RN MN
References
Kaye’s story https://www.youtube.com/watch?v=-h5TyhYhjCE
http://www.palliativecare.org.au/
http://www.who.int/cancer/palliative/definition/en/
http://www.who.int/mental_health/media/68.pdf
http://cicelysaundersinternational.org/
http://www.caresearch.com.au/Caresearch/Portals/0/Documents/whatispalliativ
ecare/nationalprogram/rural-agpn/82-Philosphy-and-Meaning-ofPC.pdf
https://www.researchgate.net/figure/7306678_fig1_Figure-I-Three-General-Traje
ctories-of-Function-and-Well-Being-over-Time-in-Eventually
http://www.intellectualdisability.info/physical-health/cancer-palliative-care-a
nd-intellectual-disabilities
www.curriculum.racgp.org.au/statements/palliative-care/
https://palliativecare.org.au/
Tricia O'Connor RN MN