CLINICAL INSTRUCTOR SEMIFINALS PERIOD “Life is pleasant. Death is peaceful. It's the transition that's troublesome.” (by: Isaac Asimov) “Human life is something sacred and taking a life is very wrong.” “Birth is a miracle. Death is a mystery. Neither fit easily into a biomedical model”. SUMMARY OF TOPICS FOR SEMIFINALS Dignity in Death and Dying 1. Euthanasia and prolongation of life 2. Inviolability of human life 3. Euthanasia and suicide 4. Dysthanasia 5. Orthothanasia 6. Administration of drugs to the dying 7. Advance directives 8. DNR or end-of-life care plan B. Ethical decision-making process Bioethics and Research A. Principles of Ethics in Research - Nuremberg Code, Declaration of Helsinki (DoH) & Belmont Report DIGNITY IN DEATH & DYING AND EOL INTRODUCTION Issues that surround the end of life become increasingly complex as our medical treatments improve. Almost 85% of all deaths in the U.S. occur in a facility such as a hospital, nursing home, or hospice. In 70% of these cases life prolonging treatments are opted to be withheld. During this two-week topics, we will examine the ethical issues that need to be addressed near the end of life (EOL). E.g. Technology makes it possible to maintain bodily functions, while ethics addresses questions concerning both the quantity and the quality of life. SHARING: Are you afraid of death? What makes death a unique event? Simple recall of concepts: What are the steps in the normal grieving process? What are your thoughts on these? INTRODUCTION Of all the problems that can be considered life and death ethics, none causes more moral anguish than the end of life issues of; a. withholding/withdrawing life support b. euthanasia c. assisted suicide The health care practitioner’s duty to respect life and preserve it as much as possible, may at times come into direct conflict with the duty to alleviate pain and suffering. DYING • The last stage of life; a process that from a medical point of view begins when a person has a disorder that is untreatable and inevitably ends in DEATH, or the final stages of a fatal disease. • Dying is a process, whereas death is an event. The essential task of the dying person is to work through psychologic response toward the reality of approaching death to a final and peaceful acceptance of that reality. NURSING RESPONSIBILITIES IN DEATH & DYING PROLONGATION OF LIFE The decision to preserve biological life at any cost leads to immense personal and social tragedies that consume individuals, human energies, and scarce resources - for no seeming good. Prolongation of Life- life support gadgets like defibrillators, pacemakers, mechanical ventilators, potent pain relievers like morphine and other narcotic analgesics, etc… The question then, is, what is to be done when all individual personality is permanently lost and all we can sustain is biological life? WHAT IS EUTHANASIA? WHAT IS EUTHANASIA? • Euthanasia - is when a doctor gives someone who is dying medication that will end their life. • Some use the terms: “assisted suicide, physician- assisted death, physician-assisted suicide, and mercy killing” as synonyms for euthanasia. • But legal and medical experts define these differently. What is Assisted Suicide? • Assisted suicide is when ill people kill themselves with someone else’s help. There are many different ways that a person might help with a suicide, but assisted suicide is generally defined as follows: • The person who wants to commit suicide has asked for help. • The person knows that what they are asking will cause death. • The person assisting knows what they’re doing. They intentionally help. • The person assisting provides medication to the person committing suicide. • The persons who want to die takes the drugs themselves. What is Assisted Suicide? • In physician-assisted suicide, a doctor provides medication to the person who wants to die. The doctor may also give instructions on how to take the medication so it will cause death. But the doctor does not inject the medication or even help the sick person swallow a drug. • Many Americans seem to support laws allowing physician-assisted suicide. In a poll of 1,024 Americans, 72% of people said doctors should be able to help someone with an incurable disease end their life if they wish to. • If a doctor or anyone else actually gives the person the lethal medication, the act is considered euthanasia. This can be a crime even in areas with assisted-suicide laws. BRAIN DEATH One essential differentiation among patient types is between those who have suffered brain death and those who are in a persistent vegetative state( PVS). Criteria for brain death given by the Harvard Medical School of Ad Hoc Committee; a. Unreceptivity and unresponsiveness b. No movements or breathing c. No reflexes d. Flat EEG of confirmatory value(detects electrical activity of the brain) INVIOLABILITY OF HUMAN LIFE The inviolability of the person which is a reflection of the absolute inviolability of God, finds its primary and fundamental expression in the inviolability of human life. Above all, the common outcry, which is justly made on behalf of human rights- for example, the right to health, to home, to work, to family, to culture - is false and illusory if the right to life, the most basic and fundamental right and the condition for all other personal rights, is not defended with maximum determination. - Pope John Paul II, Christifideles Laici (1988), no. 38 DEFINITION OF TERMS • SUICIDE - is defined as death caused by self-directed injurious behavior with intent to die as a result of the behavior. •DYSTHANASIA - an undignified and painful death due to inadequate control of symptoms. It is the term for futile or useless treatment, which does not benefit a terminal patient. DEFINITION OF TERMS ORTHOTHANASIA - The word was used for the first time in the 1950’s. It means correct dying, or allowing to die or letting die. In the case of letting die, what is directly intended is the relief of the acute pain of the patient. In allowing to or letting die, therefore, death is neither directly caused nor intended or postponed. It merely happens. It is an event, part of the temporal life of every human being. -Orthotanasia - refers to the art of promoting a humane and correct death, not subjecting patients to misthanasia or dysthanasia and not abbreviating death either, that is, subjecting them to euthanasia. Administration of Drugs to the Dying Patients perceive pain differently, depending partly on whether other factors (eg, fatigue, insomnia, anxiety, depression, nausea) are present. Analgesic choice depends largely on pain intensity and cause, which can be determined only by talking with and observing patients. Patients and physicians must recognize that all pain can be relieved by an appropriately potent drug at sufficient dosage, although aggressive treatment may also cause sedation or confusion. Commonly used drugs are aspirin, acetaminophen, or nonsteroidal anti-inflammatory drugs (NSAIDS) for mild pain; oxycodone for ADVANCE DIRECTIVES Health care advance directives are legal documents that communicate a person's wishes about health care decisions in the event the person becomes incapable of making health care decisions. Two basic kinds of advance directives: living wills and health care powers of attorney. a written statement of a person's wishes regarding medical treatment made to ensure those wishes are carried out should the person be unable to communicate them to a doctor. DO NOT RESUSCITATE (DNR) or EOL CARE PLAN - A DO-NOT-Resuscitate (DNR) order, is a medical order written by a doctor. It instructs health care providers not to do cardiopulmonary resuscitation (CPR) if a patient's breathing stops or if the patient's heart stops beating. - CPR and Advanced Cardiac Life Support (ACLS) , and interventions that could theoretically be offered to all patients within the hospital. By the 1970s, it became obvious that it was not in the best interest of certain patient groups to be resuscitated, and hospitals began to initiate policies governing DNR orders. LANGUAGE OF DNR DNR GUIDELINES 1. DNR orders should be documented in the written medical record. 2. DNR orders should specify the exact nature of the treatments to be withheld. 3. Patients when they are able, should participate in DNR decisions. Their involvement and wishes should be documented in the medical record. 4. Decisions to withhold CPR should be discussed th the health care team. 5. DNR status should be reviewed on a regular basis. PROXY DECISION-MAKING STANDARDS The courts have not made their decisions on the basis of personhood criteria but rather have created standards for the allowance of decision by proxy. 1. Doctrine of parens patriae - if a patient was never in a position to formulate a decision regarding acceptance or refusal of care, often the physician, hospital, or a family member may seek resolution of the problem m the courts prior to implementing a decision. 2. Best-interest standard - “Health is better than illness” or “Life is better than death.” e.g. In cases in which children have been denied life- preserving care by their parents, the state has often overturned the parental decisions based on the best-interest standard. 3. Substituted-judgment standard - maintains that the decision about treatment or non-treatment must remain that of the patient, based on the principle of autonomy.The fact that a previously competent patient becomes incompetent to make a decision for himself does not take from him the right to self-determination. A SUBSTITUTE is selected who is required to act in proxy for the patient - that is, to make the decision that the incompetent patient would have made if the patient had remained competent. Sharing of Insights/Assignment: Discuss the arguments against the adoption of active euthanasia as a practice of modern health care according to; a. religious standpoint b. non-religious standpoint REFERENCES • https://www.slideshare.net/AmboIsland/bioethics-dignity-in-death-and-dying • https://www.slideshare.net/ghaiath/death-dying-and-end-of-life • https://www.slideshare.net/maryamyasser372/euthanasia-ppt-55774612 • https://www.oclarim.com.mo/en/2017/06/09/life-matters-4-orthothanasia-or-allowing -to-die/ https://www.merckmanuals.com/professional/special-subjects/the-dying- patient/symptom-relief-for-the-dying-patient https://www.verywellmind.com/five-stages-of-grief-4175361 https://medicine.missouri.edu/centers-institutes-labs/health-ethics/faq/