Professional Documents
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Anastasios Galanopoulos, Dene Robertson, Emma Woodhouse, (2016),"The assessment of autism spectrum disorders in
adults", Advances in Autism, Vol. 2 Iss 1 pp. 31-40 http://dx.doi.org/10.1108/AIA-09-2015-0017
Sebastian Dern, Tanja Sappok, (2016),"Barriers to healthcare for people on the autism spectrum", Advances in Autism, Vol.
2 Iss 1 pp. 2-11 http://dx.doi.org/10.1108/AIA-10-2015-0020
Ashleigh Saunders, Karen E. Waldie, (2016),"Distinguishing autism from co-existing conditions: a behavioural profiling
investigation", Advances in Autism, Vol. 2 Iss 1 pp. 41-54 http://dx.doi.org/10.1108/AIA-09-2015-0018
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Neurodevelopmental Sciences, clinically and statistically meaningful benefits from individual and group-based psychological interventions,
Institute of Psychiatry, King’s specifically those which employ skills-based, behavioural, and cognitive techniques. Given the inherent
College London, London, UK. socio-communication, executive functioning, and theory of mind impairments that individuals with ASD can
Lucy O’Neill is based at MRC experience, it is deemed necessary to modify the design and delivery of interventions so as to enhance
SGDP Centre, King’s College engagement and outcomes. The paper aims to discuss these issues.
Design/methodology/approach – This general review provides a summary of the extant literature and
London, London, UK.
clinical guidelines for the provision of psychological interventions for adults with ASD.
Laura Harwood is based
Findings – Adaptations to the structure, process, content, and outcome measurement are outlined. It is
at the Goldsmiths University, likely that optimal treatment gains for adults with ASD are contingent on a prolonged assessment phase,
London, UK. pre-therapy interventions including psycho-education and skills-based interventions, thoughtful regard to the
Dr Eddie Chaplin is based at formulation of presenting difficulties, and consideration of, and methods to overcome, the difficulties that may
London South Bank University, arise when seeking to implement change, identify goals, and manage endings.
London, UK and Estia Centre, Originality/value – This is one of the first reviews to condense the clinical implications for providing
South London and Maudsley psychological interventions for adults with ASD.
NHS Foundation Trust, Keywords Cognitive behaviour therapy, Autism spectrum disorder, Psychological interventions
London, UK. Paper type General review
Introduction
Autism spectrum disorders (ASD) are common neurodevelopmental conditions. Increasingly, ASD
is diagnosed during adulthood (Wilson et al., 2013), which in part reflects the fact that core
characteristics, i.e. social and communication difficulties, engagement in routines, and narrow
interests (APA, 2013; WHO, 1992), are often subtle, becoming more evident over time. Adults with
ASD often experience co-occurring psychiatric conditions, including anxiety and affective disorders
(Hofvander et al., 2009; Joshi et al., 2013; Russell et al., 2015). UK Clinical Guidelines (NICE, 2012)
and Legislation (HM Government, Autism Act, 2009) stipulate that the needs of adults with ASD
should be assessed and appropriately met, including provision of psychological interventions.
To date, a handful of studies have investigated the feasibility and effectiveness of skills-based
and cognitive behaviour therapy (CBT) interventions. Studies have utilised non-randomised
methods, such as case or single-arm studies (e.g. Cardaciotto and Herbert, 2004; Hare, 1997;
Hillier et al., 2011; Weiss and Lunsky, 2010), quasi-experimental methods (e.g. Russell et al.,
2008; Turner-Brown et al., 2008), in addition to randomised controlled designs (e.g. Hesselmark
et al., 2013; Russell et al., 2013; Spek et al., 2013). Preliminary results are promising:
self-informant, and clinician-ratings indicate some improvement in social skills, as well as
Received 18 September 2015 reductions in general anxiety, OCD, rumination, and low mood (see Spain et al., 2015; Spain and
Revised 18 September 2015
Accepted 3 November 2015 Blainey, 2015, for a comprehensive review). While all studies appear to have incorporated
PAGE 24 j ADVANCES IN AUTISM j VOL. 2 NO. 1 2016, pp. 24-30, © Emerald Group Publishing Limited, ISSN 2056-3868 DOI 10.1108/AIA-09-2015-0016
adaptations to accommodate core and associated ASD characteristics, requisite methods for
enhancing treatment gains are yet to be determined. Nevertheless, it is likely that a considered
approach to the provision and evaluation of interventions may glean further positive outcomes
(see also, Anderson and Morris, 2006; Attwood, 2004; Gaus, 2011). This general review
provides a summary of the main principles, outlined in Clinical Guidelines and the extant
literature, regarding how best to design and deliver psychological interventions for adults with
high-functioning ASD (i.e. individuals who do not have a concurrent intellectual disability).
Clinical approaches
Access to services
While recent initiatives in the United Kingdom National Health Service (NHS) have sought to reduce
stigma and encourage self-referral to mental health services – e.g. the Improving Access to
Psychological Therapy service (NICE, 2011) – individuals with ASD do not typically initiate social
overtures, nor are they necessarily aware of the need for, or possibility of obtaining help. This may be
due to difficulties with introspection (Bird and Cook, 2013) and insight, a lack of confidence in terms
of asking for help, or difficulties knowing how best to access support. Therefore, they are likely to
require a more proactive approach by others (such as family members), if changes in mental health
or well-being are observed.
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Treatment options
It is feasible that several treatment interventions, for example social skills interventions as well as
CBT, will be indicated. Where clinically appropriate, it is ideal to offer one intervention at a time; or at
least stagger-start interventions (in order to allow for sequential hypothesis testing). Discussion about
which treatments to offer – and what these may, or may not entail – requires a considered approach.
Therapy structure
Individuals with ASD generally prefer routine, so it is best to offer appointments at regular and
designated intervals, rather than arranging these on an ad hoc basis. Similarly, confidentiality
permitting, it can be useful to confirm leave dates (e.g. annual leave or study leave) a few weeks in
advance, so as to limit the element of surprise. Undertaking therapy sessions in the same clinic
room can enhance a sense of familiarity, and thereby indirectly encourage engagement. Sessions
that adopt a similar or the same structure (Gaus, 2011), for example agenda-setting at the outset,
recapping regularly, and planning homework tasks, are likely to be better tolerated than sessions
with a free-flowing format. Also, while agenda-setting is ideally a collaborative or client-led
endeavour, therapists may need to have a more didactic style.
Therapy duration
The duration of therapy sessions may depend on the individual’s preference: while many services
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stipulate that treatment sessions should be 50 or 60 minutes, slightly shorter or longer sessions
(including the option of a break) may be more clinically appropriate, in order to accommodate
executive functioning deficits (e.g. Wilson et al., 2014). It may also be that session duration varies
over the course of treatment, e.g. depending on whether the intention is to undertake in vivo
experiments or behavioural tasks which can require an extended amount of time.
Introducing change
Embarking on a course of therapy involves signing up to the idea that change(s) may be
necessary, and that the timing for doing so is apt. Given that individuals with ASD can experience
significant difficulty with change, and that adherence to routines and rituals may be associated
with anxiety (e.g. Rodgers et al., 2012), motivational interviewing techniques (Miller and Rollnick,
2012) may prove beneficial, e.g. so as to identify potential advantages and disadvantages for
change and/or maintaining the status quo, and thereby to address any concerns. Also, it may be
that individuals with ASD are less able to conceptualise what change may look like and entail, e.g.
as this relies on a degree of abstract thought, and theory of mind. Hence, it can prove useful to
provide concrete anonymised examples of others’ experiences.
Goal setting
Identifying initial treatment goals can prove challenging, either because of the impact of core ASD
features (such as difficulties with planning and abstract reasoning), or associated characteristics
(such as anxiety about making the wrong decision, or concerns about failure). Consequently,
discussions about goal-setting may need to take place several sessions after treatment
commences, i.e. when the individual feels more comfortable, has a better understanding of the
nature of the intervention, and using a more didactic questioning style. This may also involve
clinicians offering examples of potential treatment goals, and providing clarity that attainment of
goals typically requires a graded approach. Focusing on short-term goals, such as those based
upon behavioural activation principles (Martell et al., 2013), can be a helpful starting point;
particularly as this can enhance a sense of personal agency, and indirectly improve mood.
It is important to facilitate conversation about factors that may prevent goals from being achieved,
in order to minimise and overcome potential obstacles.
Adaptations to treatment
While different therapeutic approaches employ different techniques, there are some common
modifications that may well improve treatment outcomes. First, all psychological interventions rely
on the development of rapport, reciprocity, and trust, between both parties. Given the inherent
socio-communication deficits that individuals with ASD can experience, it is important that
therapists seek to cultivate rapport with their clients, bearing in mind there may be a reduced
perception of reciprocity. Second, “pre-therapy interventions” are likely to be useful, including
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Homework
Many psychological therapies rely on individuals testing out new strategies and tasks between
sessions, i.e. homework. Individuals with ASD may experience difficulty with undertaking such
tasks, for example due to problems with recall or attention, a lack of clarity about what is
expected, or concerns about failure. To enhance compliance with homework it is important to
Managing endings
Individuals with ASD may find therapy endings distressing, either because this implies a change
to a developed routine, or because this evokes anxiety about how they will manage post-support.
To avoid premature disengagement or an increase in symptoms towards the end of therapy, the
following are likely to be beneficial: slowly increasing the gap between sessions; provision of
relapse prevention materials on several occasions; and potential replacement of therapy sessions
with alternative activities. Also, it may be worthwhile instigating referrals and links to other services
early on, so that these can be actioned without a significant lag. While the number of follow-up
sessions available may be determined by resource constraints, this clinical group will require
several appointments, in order to support the generalisation of skills acquired and to reduce the
potential risk for relapse.
Outcome measurement
It is ideal to measure outcomes using a variety of methods. The extent to which self-report
measures are reliable and valid for adults with ASD is yet to be definitively established, although
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there is no reason not to use standardised questionnaires to monitor change, as long as these
methods are augmented. Individuals are likely to require, at least in the first instance, support to
complete these, e.g. due to the ambiguity of some questions – for example “how anxious do you
feel?” – and the ensuing perseveration that can occur as a result. For individual therapy sessions,
it is worth developing an idiosyncratic outcome measure (Attwood, 2004; Gaus, 2011), for
example that incorporates “special interests”, as well as assessing subjective units of distress
(i.e. SUDS ratings). The frequency of outcome measurement requires consideration, given that
completing questionnaires weekly may prove too time-consuming for individuals and as
change may be more gradual. When possible, and confidentiality permitting, obtaining an
informant-rating may be useful, e.g. as this can provide a more ecologically valid measure of
change beyond therapy sessions.
Therapist factors
Working therapeutically with individuals with ASD is rewarding, but as is the case when
working with complex presentations, there are some considerations for therapists. It is
important to access regular clinical supervision, so as to have sufficient time to discuss and
review treatment plans, and to gain support. For CBT therapists specifically, there may be
differences between the formulation used in therapy sessions with the individual (e.g. a
maintenance model), compared with a more comprehensive and detailed longitudinal formulation
discussed during supervision. Finally, resource constraints may dictate the number of sessions
therapists can offer, and so discussions with supervisors and line managers may be necessary in
order to facilitate flexibility.
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Corresponding author
Dr Eddie Chaplin can be contacted at: eddie.chaplin@kcl.ac.uk
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