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INTRODUCTION
Scholastic literature has thoroughly established that diagnoses
of deafness and hearing loss in children of parents with typical
hearing has a profound impact on families (Calderon & Greenberg,
Joucelyn Rivadeneira, Ph.D., is adjunct professor in the Departamento de Ciencias Sociales at Uni-
versidad del Bío-Bío, Chillán, Chile. Núria Silvestre, Ph.D., is professor emeritus in the Departament de
Psicologia at Universitat Autònoma de Barcelona, Spain. Cristina Laborda, Ph.D., is senior lecturer in the
Departament d’Educació at Universitat Autònoma de Barcelona, Spain. Correspondence concerning this
manuscript may be addressed to Dr. Rivadeneira at jrivadeneira@ubiobio.cl.
2011; Jackson, 2011; Luckner & Velaski, 2004; Luterman, 1997, 2004;
MacKellin, 1995; Marschark, 2007; Stahlman, 1994). As to the family
experiences after the diagnosis in the child, parenting stress has
been widely examined over the past two decades. Previous studies
have explored the stress levels in families with typical hearing
who have children who are deaf and hard of hearing, and certain
factors have been found to be predictors of parenting stress, such
as language ability, mode of communication, age of identification
of hearing loss, and social support (Hintermair, 2006; Pipp-Siegel,
Sedey, & Yoshinaga-Itano, 2002; Sarant & Garrard, 2013). However,
the literature has failed to focus on the relationship between family
functioning and levels of parenting stress. In fact, little research
has been conducted on the comprehension of family functioning
—specifically, cohesion and adaptability (Ahlert & Greeff, 2012;
Henggeler, Watson, Whelan, & Malone, 1990; Weisel, Most, & Michael,
2007)—as variables that may contribute to explain the experience of
rearing a child with hearing loss in a family with typical hearing.
In this sense, the term “family cohesion” represents the emotional
bond between family members, while “family adaptability”
represents familial reactions to situational or developmental stress.
Stress in Families with Children Who Are Deaf and Hard of Hearing
The implications of hearing loss in families with typical hearing
has been a permanent focus of interest over time, and perhaps one of
the most extensively revisited areas may be parenting stress;
however, studies comparing parenting stress levels have shown
inconclusive findings. A few studies have found that mothers with
typical hearing who have children who are deaf and hard of hearing
show higher levels of parenting stress compared with mothers with
typical hearing who have children with typical hearing, yet the
majority of parents and children with hearing loss included in these
studies were recruited from early intervention programs. This could
be a significant factor to consider when analyzing the results.
Some of the first data came from the early 1990s. Quittner,
Glueckauf, and Jackson (1990) compared the impact of stressful life
events and chronic stressors related to parenting a child with
hearing loss. They assessed mothers of young children (2 to 5 years
of age) with severe to profound hearing loss (with no additional
children who are deaf and hard of hearing. Evidence showed that
children who are deaf and hard of hearing exhibit greater amounts
of behavior problems compared with children with typical hearing.
The assessment of behavior or socio-emotional difficulties might
include two dimensions: externalizing problems such as aggression,
hyperactivity, and conduct disorders; and internalizing problems
such as anxiety, depression, and other physical symptoms.
Van Eldik, Trefferes, Veerman, and Verhust (2004) found
greater behavioral problems among children who are deaf between 4
and 18 years of age than that of the normative sample. The authors
determined the prevalence of emotional/behavioral problems from
the parental report. Previously, Vostanis, Hayes, Du Feu, and
Warren (1997) assessed behavioral and emotional problems in
children with severe to profound hearing loss between 2 and 18
years of age. They also found a very high rate of social
maladjustment of children who are deaf in the sample, according to
general population norms.
Much less is known about the relationship between parenting
stress and emotional/behavioral problems in children who are deaf
and hard of hearing, although it is possible to find studies with
inconclusive findings. Watson, Henggeler, and Whelan (1990)
evaluated the association between some aspects of family
functioning, including family stress, and the adjustment of youths
who are deaf and hard of hearing (mean age: 12.7 years) including
behavior problems. Eighty-seven percent of the participants had an
additional disability, and all were enrolled in a special education
program for children with hearing loss in the United States. Results
showed that high parenting stress was associated with high parental
ratings of child behavior. Nevertheless, when parental emotional
distress was controlled, this association was no longer significant.
In another study, Hintermair (2006) examined the correlation
between parenting resources, demographic variables, parenting
stress, and child socio-emotional problems in children who are deaf
and hard of hearing in Germany. In this study, children (4 to 12.9
years of age) ranged from mild to profound hearing loss.
Furthermore, about 80% of the families used only oral
communication, whereas the remainder families used at least some
sign in combination with spoken language. Eighty percent of
Family Functioning
The family plays a crucial role in many areas of child
development, as it is considered the fundamental unit of society.
Moreover, Seligman (1991) stated that families are defined not only
by their structure, but also by the interactions that occur between
their members, such as cohesion, adaptability, communication,
and other domestic, recreational, and economic functions.
Family functioning is defined as the pattern of interactions
among family members and also the family members’ interactions with
social systems outside of the home (Rueschenberg & Buriel, 1995). These
interactions change throughout the family cycle and include variables
such as communication styles, traditions, clear roles and boundaries,
the ability to cope with adversity, the degree of cohesion between family
members, and the adaptability to change, among others (Winek, 2010).
One of the most widely used research tools for the assessment
of family functioning has been the circumplex model (Olson, Sprenkle, &
Russell, 1979). This model was used to develop the Family Adaptability
and Cohesion Scale (FACES) in 1980. Family cohesion is defined as the
emotional bonding that family members have towards one another.
Family cohesion includes variables such as bonds, interests, coalitions
(alliances between members), time together, friends, private space,
and recreation; whereas adaptability is defined as the ability of family
members to change their relationships, rules, and roles in response to
METHOD
Participants
This study was part of larger research that examined the
influence of new technologies on the psychological and linguistic
development of children who are deaf and hard of hearing. This was
a cross-sectional study conducted from 2006 to 2009. The sample for
the present study consisted of 37 mothers with typical hearing who
had children who are deaf and hard of hearing. Without the use of
hearing aids or cochlear implants, the degree of hearing loss ranged
from severe to profound. The children were between 1 and 8 years
of age and presented no additional disabilities. The mothers were
recruited through three intervention programs in Catalonia (Centres
de Recursos per a Deficients Auditius—CREDAS) where the children
received speech therapy support. All the families used listening and
spoken language only.
The mothers ranged in age from 22 to 45 years (M = 34.43
years, SD = 4.885). The mean years of education of the mothers was
15.19 (SD = 4.898, range 6 - 23).
The mean age of the children in the sample was 4.11 years
(SD = 2.025, range 1 - 8). Boys comprised 54.1% of the sample (N
= 20), while girls comprised 45.9% (N = 17). Of the 37 children
observed, 37.8% used cochlear implants (N = 14), and 62.2% used
hearing aids (N = 23). The mean age of identification of hearing loss
was 17 months (SD = 12.41 range 1 - 54).
Measures
Procedure
After contacting mothers of children who are deaf and
hard of hearing, they were informed about the procedures and
objectives of the research and appealed to for written consent of
study. All of the children were tested in a room in their language
intervention program. The questionnaires were sent to mothers
directly through the speech-language intervention programs.
Statistical Analyses. Zero-order Pearson product-moment
correlations were calculated to assess simple relationships among
variables. Categorical variables were converted to a numeric
dichotomic scale (child’s gender: 1 = male, 2 = female; prosthetic
hearing device: 1 = hearing aid, 2 = cochlear implant). The relationship
between parenting stress versus family cohesion/adaptability and
demographic variables was analyzed using linear models. These
models assume that the response-predictor variables are linearly
related and were preferred for their simplicity over more complex
models. Multicollinearity (i.e., strong correlation among two or more
predictor variables) may introduce bias in the modeling, confounding
the relative importance of variables. In order to account for the
impact of possible multicollinearity on the model selection, variance
inflation factor (VIF) was estimated for the full model (i.e., containing
all 12 predictors) using the package HH in the freely available
software R (Heiberger, 2013); predictors with VIF > 5 (indicating a
high collinearity) were removed from further analysis (Table 1). See
O’Brien (2007) for a discussion on the use of different cut-offs for VIF.
140
variance inflation factors (VIF) for all predictors, and a subset of predictors.VIF > 5 indicate strong collinearity of the predictor.
VIF VIF
Parenting stress
Mother’s years of education
Family cohesion
Family adaptability
Child’s sex
Child’s age
Hearing device
Reynell’s test-comprehension
Reynell’s test-expression
BASC-EP
BASC-IP
BASC-AS
Parenting stress
1.8 1.4 Hearing deviceb -0.01 -0.49 0.26 -0.03 0.02 0.13
6.3 2.2 Reynell’s test-comprehension -0.06 0.28 0.22 0.54 -0.17 0.39 -0.16
6.8 Reynell’s test-expression -0.06 0.25 0.26 0.37 -0.15 0.46 -0.09 0.88
16.5 BASC-EP 0.64 0.18 -0.16 0.2 -0.14 0.02 -0.28 0.29 0.33
4.6 1.4 BASC-IP 0.5 0.24 -0.14 0.04 0.08 0.21 -0.22 0.23 0.28 0.72
2.9 1.8 BASC-AS -0.54 0.14 0.08 0.35 0.31 0.18 -0.17 0.17 0.16 -0.29 -0.15
15.5 BASC-BSI 0.72 0.14 -0.12 0.02 -0.04 0.1 -0.14 0.18 0.22 0.91 0.82 -0.41
a
1 = male, 2 = female
b
1 = hearing aid, 2 = cochlear implant
The Volta Review, Volume 115(2), Fall/Winter 2015
RESULTS
The mean stress score was 69.47 (SD = 19.93, range 39 - 116).
The mean family cohesion score was 69.94 (SD = 5.21, range 59 - 77).
The mean family adaptability score was 51.36 (SD = 3.96, range 41 - 58).
The results indicated a significant negative correlation between
parenting stress and family cohesion (r = -0.53, p = .00). No significant
correlation was found between family adaptability and parenting
stress (r = -0.26, p = .13). As for the family functioning results, except
for the findings regarding parenting stress, no significant correlation
was found between family cohesion and the other variables in
this study. Regarding family adaptability, the results indicated a
significant positive relation between family adaptability and the
child’s age (r = 0.36, p = .04) and between family adaptability and
language development (Reynell Comprehension Scale, r = 0.52,
p = .00). No significant correlation between family adaptability and
other variables was found. All measures for behavior problems in
the child who is deaf or hard of hearing were related significantly
to parenting stress: BASC-EP (r = 0.64, p = .00); BASC-IP (r = 0.49,
p = .00); BASC-AS (r = -0.54, p = .00); BASC-BSI (r = 0.72, p = .00).
Linear models were used to examine the relationship
between parenting stress versus family cohesion/adaptability
and other variables. Importantly, the BASC-EP, BASC-BSI, and
the Reynell’s expression scale showed a large correlation with
other predictors which increased its degree of multicollinearity
Note: Only the top 10 models (out of 512 possible additive models) are shown. Abbreviations: AICc =
Akaike Information Criterion corrected for sample size; AICw = Weighted Akaike; cohe = Family Cohesion;
bint = BASC-IP; badp = BASC-AS; cage = Child’s age; cgen = Child’s sex; mstu = Mother’s years of study;
prot = Hearing device; reyc = Reynell’s test-comprehension
DISCUSSION
Despite consistent evidence demonstrating relevant factors
related with parenting stress in families with typical hearing who
have children who are deaf and hard of hearing, the correlation
of family functioning, parenting stress, language development,
language test (BASC), yet only two of them were considered in the
linear multi-model approach. Given the impact that higher rates of
parenting stress may cause in social development, these findings
support the importance of guidance and support for families with
typical hearing raising a child who is deaf or hard of hearing. With
regard to the relationship between internalizing problems in the
child who is deaf or hard of hearing and parenting stress, results
showed that mothers with typical hearing that experienced higher
levels of stress have children who are deaf and hard of hearing with
greater behavior problems related to anxiety, depression, and other
physical symptoms. Therefore, parenting stress could be considered
a risk factor of child development, because a highly stressed parent
may demonstrate parenting behaviors which do not promote child
growth. The importance of parenting stress and behavior of children
who are deaf and hard of hearing has scarcely been studied;
nevertheless, these results extend those reported by Hintermair
(2006) and Plotkin and colleagues (2013) who found that behavior
problems in youths/children with hearing loss are associated with
parenting stress. Contrarily, in a previous study of Watson and
colleagues (1990), this association was not found.
Overall, other results in our study suggest that mothers with
typical hearing of children who are deaf and hard of hearing
experienced normal levels of parenting stress, which is consistent
with other earlier studies (Åsberg et al., 2008; Meadow-Orlans, 1994;
Pipp-Siegel et al., 2002; Weisel et al., 2007). Also, our findings
complement the early study of Spanish mothers with typical hearing
who have children who are deaf and hard of hearing by Silvestre
and FIAPAS (2009) in which mothers with typical hearing
experienced normal levels of parenting stress. Still, additional
information is required in order to make more generalizations in this
population.
Because mothers of the sample were recruited from early
intervention programs, we agree with Pipp-Siegel and colleagues
(2002) and Weisel and colleagues (2007) that support programs may
mitigate parenting stress. Moreover, these findings support the
importance of parental counsel and guidance, especially in the early
years of a diagnosis of child hearing loss.
With regard to other correlations in our exploratory study,
ACKNOWLEDGMENTS
The study was supported by the Ministry of Science and
Innovation of the Spanish Government (SE 2006-100730). We are
grateful to all parents who took part in the study.
The corresponding author would like to thank K. De Bruyne, and
Alfred P. H. for their review and support, and to M. M. Rivadeneira
for his statistical advice.
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