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HEALTH POLICY PERSPECTIVES

Occupational Therapy and Management of Multiple Chronic


Conditions in the Context of Health Care Reform

Natalie E. Leland, Donald J. Fogelberg, Ashley D. Halle, Tracy M. Mroz

One in four individuals living in the United States has multiple chronic conditions (MCCs), and the already high
prevalence of MCCs continues to grow. This population has high rates of health care utilization yet poor out-
comes, leading to elevated concerns about fragmented, low-quality care provided within the current health care
system. Several national initiatives endeavor to improve care for the population with MCCs, and occupational
therapy is uniquely positioned to contribute to these efforts for more efficient, effective, client-centered man-
agement of care. By integrating findings from the literature with current policy and practice, we aim to highlight
the potential role for occupational therapy in managing MCCs within the evolving health care system.

Leland, N. E., Fogelberg, D. J., Halle, A. D., & Mroz, T. M. (2017). Health Policy Perspectives—Occupational therapy and
management of multiple chronic conditions in the context of health care reform. American Journal of Occupational
Therapy, 71, 7101090010. https://doi.org/10.5014/ajot.2017.711001

T he prevalence of people with multiple resulted in poor care for people with MCCs
Natalie E. Leland, PhD, OTR/L, BCG, FAOTA, is
Assistant Professor, Mrs. T. H. Chan Division of chronic conditions (MCCs) continues (Parekh et al., 2011). To address this long-
Occupational Science and Occupational Therapy and
to grow. Despite the disproportionately high standing, suboptimal care delivery system
Davis School of Gerontology, University of Southern
California, Los Angeles; nleland@usc.edu health care spending of this population, for those with MCCs and for other pa-
outcomes are poor in part because of frag- tients, recent health care reform initiatives
Donald J. Fogelberg, PhD, OTR/L, is Assistant mented, low-quality care provided within a have promoted prevention, targeted the
Professor, Division of Occupational Therapy, Department system that is not well designed to support improvement of population health, and
of Rehabilitation Medicine, University of Washington, efficient, effective, client-centered manage- incentivized the delivery of high-quality
Seattle.
ment of MCCs (Anderson, 2010; Gerteis care (U.S. Department of Health and
Ashley D. Halle, OTD, OTR/L, is Assistant Professor et al., 2014; Parekh, Goodman, Gordon, & Human Services [HHS], 2010). To these
and Coordinator of Primary Care Residency and Services, Koh, 2011). System redesign, such as pri- ends, several national health care initiatives
Mrs. T. H. Chan Division of Occupational Science and mary care transformation and the move to are focusing on improving care for people
Occupational Therapy, University of Southern California, true patient-centered care, is occurring, es- with MCCs, including enhancing primary
Los Angeles.
pecially in relation to MCCs. Achieving ef- care service delivery. Integrating findings
Tracy M. Mroz, PhD, OTR/L, is Assistant Professor, ficient care, reducing costs, and improving from the literature with current policy
Division of Occupational Therapy, Department of health in this group are critical to the entire and practice, this article highlights the
Rehabilitation Medicine, University of Washington, health care system because their care affects potential roles for occupational therapy in
Seattle. access and system costs for all. The occupa- addressing participation restrictions and
tional therapy role in this redesign must be promoting self-management of MCCs
nurtured in relation to MCCs to ensure that within the evolving health care system.
the knowledge, skills, and precepts of the
profession are fully used to improve health for
Prevalence and Impact of
all patients, including people with MCCs.
Multiple Chronic Conditions
Historically, the U.S. health care system
has been structured around a reactive re- More than 25% of the U.S. community-
sponse to acute medical issues and therefore living adult population has been diagnosed
has not effectively addressed the chronic care with MCCs, and their numbers are increasing
needs of the population. Care is often siloed, exponentially (Anderson, 2010; Office of
with different providers addressing specific the Assistant Secretary for Planning and
conditions or medical issues, which has Evaluation [OASPE], 2010). Among older

The American Journal of Occupational Therapy 7101090010p1


adults, the prevalence is even higher, with quality of care (Anderson, 2010; OASPE, 2014). Self-management is a core target
as many as 75% of people age 65 and 2010). Moreover, although single-disease for improving health care generally but
older having MCCs (Anderson, 2010; management programs have proliferated, especially for management of MCCs.
Lochner & Cox, 2013; Wolff, Starfield, limited client education on general princi- For instance, Stanford’s peer mentor–
& Anderson, 2002). Together, this pop- ples of chronic disease management makes led Chronic Disease Self-Management
ulation is responsible for more than 65% of self-management especially challenging Program is known worldwide (Brady et al.,
U.S. health care spending, primarily as a re- for those with MCC (Anderson, 2010; 2013; Kahvecioglu, Moore, Michaelides,
sult of progressive functional limitations OASPE, 2010). Ruiz, & Bertrand, 2011; Lorig, Sobel, Ritter,
and exacerbations of their chronic conditions Not only do MCCs result in high Laurent, & Hobbs, 2001). Occupational
(Anderson, 2010). People with MCCs have rates of health care utilization and corre- therapy, with its focus on habits, routines,
higher rates of emergency department spondingly high costs, they also have a and self-direction, fits well into any efforts
visits; more outpatient visits; and longer, negative impact on people’s occupational to support clients in improving their own
more expensive hospital stays (Gerteis performance and quality of life (Lochner & approach to health.
et al., 2014; Lochner & Cox, 2013; Lochner, Shoff, 2015). For example, Barstow, Warren, Within the traditional health care
Goodman, Posner, & Parekh, 2013; Skinner, Thaker, Hallman, and Batts (2015) found system, efforts are also being made to
Coffey, Jones, Heslin, & Moy, 2016). that clients with MCCs experience a loss of transition from a reactionary to a proactive
Among Medicare beneficiaries, those with independence in self-care and of safe partic- model of care delivery. To this end, HHS
a greater number of chronic conditions ipation in desired social and leisure activities. (2010) has developed a strategic framework
have higher Medicare expenditures, emer- These losses are further exacerbated by the aimed at enhancing the quality of care for
gency department visits, and 30-day hos- psychosocial implications of a new diagnosis: clients with MCCs. The framework em-
pital readmissions (Centers for Medicare People have reported feeling a loss of con- phasizes holistic and coordinated care for
and Medicaid Services [CMS], 2014a, trol over their own life, a theme reflected people with MCCs instead of disease-
2014b). across multiple client populations (Brereton & specific siloed care. Specifically, HHS has
Although more research is needed to Nolan, 2000; Pyatak, 2011; Wood, Connelly, four overarching goals: targeting system
better understand specific clusters of chronic & Maly, 2010). Research has demonstrated redesign, which includes changes to the
conditions, people with MCCs are faced that occupational therapy providers are ef- health care and public health systems;
with the task of simultaneously managing fective at tackling these common concerns empowering clients to engage in their own
a combination of chronic conditions, such related to MCC management by approach- care; and enhancing the evidence base by
as diabetes, hypertension, ischemic heart dis- ing these care needs from an occupational developing tools, training, and clinical
ease, heart failure, atrial fibrillation, arthritis, lens (Arbesman & Mosley, 2012; Clark et al., decision supports and by funding neces-
chronic kidney disease, chronic obstructive 2012). By understanding current policy di- sary research to improve care delivery
pulmonary disease, depression, and cancer rections, occupational therapy leaders can (HHS, 2010).
(Vogeli et al., 2007). Although clients typ- help position the profession to take a key role Primary care has been identified as
ically enter a health care encounter with a in these changes. one clinical area in which chronic disease
primary medical diagnosis, they frequently management can be enhanced. CMS’s
have multiple comorbid conditions that Center for Medicare and Medicaid In-
Policy Initiatives Related to
need to be taken into account to achieve a novation, established by the Patient Pro-
Multiple Chronic Conditions
successful outcome. tection and Affordable Care Act of 2010
Despite understanding the importance Several policy initiatives have been imple- (Pub. L. 111–148), has multiple ongoing
of addressing these multiple comorbid mented in response to the high level of projects aimed at enhancing and expanding
conditions to achieve successful outcomes, health care utilization among people with primary and coordinated care to enhance
clinical outcomes for people with MCCs MCCs and the persistent poor outcomes the quality of outcomes for clients with
remain poor. This is due in part to aspects they experience. The goal of these national MCCs, such as the Comprehensive Primary
of the health care system that are not well policy initiatives is to enhance care deliv- Care Initiative and the recent Comprehen-
structured to manage MCCs effectively ery, promote comprehensive care for this sive Primary Care Plus model and the
(Gerteis et al., 2014). Health care is often high-risk population, reduce adverse events, Patient-Centered Medical Home Initiative.
delivered by multiple professionals with and improve client outcomes (Bazemore,
minimal coordination and communication Petterson, Peterson, & Phillips, 2015).
Enhancing Care of Multiple
between providers, leading to fragmenta- Efforts to enhance the health of this
Chronic Conditions: Occupational
tion, duplication of services, and diffusion population are being developed and imple-
Therapy’s Contribution
of responsibility (Parekh et al., 2011). Epi- mented from a public health approach
sodes of care are too often focused on a through community-based group inter- Occupational therapy has a long-standing
single diagnosis, with limited attention paid ventions and within the health care system history of treating clients with MCCs in
to other conditions that may be present, (Ahn, Jiang, Smith, & Ory, 2014; Franek, acute and postacute settings to improve
diminishing the overall effectiveness and 2013; Nolte & Osborne, 2013; Ory et al., their occupational engagement. In these

7101090010p2 January/February 2017, Volume 71, Number 1


settings, occupational therapy practitioners therapy practitioners can collaborate with (e.g., pharmacists and behavioral health
typically consider MCCs in addition to the the client to develop foundational medical specialists), occupational therapy practi-
primary medical diagnosis and integrate management knowledge and integrate tioners need advocacy and an evidence
secondary and tertiary prevention strategies healthy lifestyle approaches into the client’s base to support their claim to a place on
into the care plan to optimize client out- daily routine to promote self-management the chronic disease management care team
comes, reduce the risk of subsequent medical skills (Mroz, Pitonyak, Fogelberg, & in primary care (Hildenbrand & Lamb,
exacerbations (e.g., acute hospitalization for Leland, 2015). 2013; Peikes et al., 2016).
chronic obstructive pulmonary disease), and As members of the care team, occu-
prevent adverse outcomes (e.g., infections, pational therapy practitioners can ap-
Interdisciplinary Care Teams in
accidental falls). proach the client’s functional and medical
Primary Care: A Place of
Occupational therapy has an estab- needs and enhance outcomes from an
lished record of addressing health man-
Opportunity occupational performance perspective in-
agement, wellness, and prevention in an In the context of current federal system stead of a disease-specific approach. By
effort to optimize people’s quality of life change priorities, which are intended to demonstrating that their skills transcend
(Arbesman & Mosley, 2012; Clark et al., enhance client engagement, promote care the clinical context and environment, oc-
2012; Meyer, 1922). By drawing on the coordination, and improve client out- cupational therapy practitioners can be key
profession’s experience in treating clients comes, occupational therapy is uniquely contributors to the MCC care team; they
with MCCs in acute and postacute care situated to be an integral part of the chronic can target self-management skills, foster
settings and its broader history of health disease management team, including in client engagement, and facilitate client and
promotion and management, the occupa- primary care. Given the profession’s spe- caregiver training with the goal of reducing
tional therapy practitioner can assess an cialized education (e.g., mental and physical risk and optimizing participation. These
client’s current knowledge, willingness, health, management, and advocacy) and opportunities include facilitating clients’
and ability to engage in health manage- skills in functional assessments, activity self-management skills for MCCs, engag-
ment and maintenance and other health- analysis, skill development, problem-solving ing in screening for and treatment of ad-
promoting occupations within the client’s barriers, environmental assessments, ad- verse events (e.g., readmissions, accidental
context while taking into account habits, aptation, compensation, and remediation, falls), serving as case managers and care
roles, and routines to optimize quality of occupational therapy practitioners are coordinators, and supporting client and
life (American Occupational Therapy As- well equipped to support clients in man- caregiver education (Hand, Law, & McColl,
sociation [AOTA], 2014). aging their MCCs (Krupa & Clark, 1995; 2011; Metzler, Hartmann, & Lowenthal,
Occupational therapy can contribute Robinson, Fisher, & Broussard, 2016). To 2012; Richardson et al., 2014; Sanders &
to national priorities aimed at enhanc- this end, occupational therapy is included Van Oss, 2013; Taylor, 2004).
ing care quality through the profession’s among the professions targeted in HHS’s For example, complying with and
holistic approach to care. Specifically, by (2015) MCC education and training managing medications associated with
evaluating and treating the client as an framework, a product that resulted from MCCs is an essential component of health
occupational being, taking into account all HHS’s (2010) strategic framework for MCC, management for this client population.
the factors that may affect participation, which challenges professional academic pro- Failure to adhere to a medication routine is
including MCCs, client factors, context grams to equip providers with the skills to associated with adverse events and hos-
and environment, and performance, the optimize their scope of practice in order to pitalizations (Malet-Larrea et al., 2016).
occupational therapy practitioner can help improve care delivery to and patient out- Occupational therapy practitioners can
facilitate care designed for the client rather comes among this population. work along with the physician and nurse to
than a specific disease or setting. More- However, as interdisciplinary primary optimize medication utilization. Occupa-
over, the occupational therapy perspective care teams have emerged, rehabilitation tional therapy practitioners can assess and
would infuse into these systems new ideas professionals have mostly been over- develop interventions related to the client’s
about the interplay between MCCs and the looked (Bazemore, Wingrove, Peterson, functional cognition, physical capacity,
client’s habits, roles, and routines, which & Petterson, 2016; Peikes, Chen, Schore, memory, and other issues to improve the
may affect their risk for adverse events and & Brown, 2009; Wagner, 2000). Primary client’s ability to manage medications
poor health outcomes. care teams are generally led by family phy- prescribed by the physician. The occupa-
Client activation and the delivery of sicians and most commonly include nurse tional therapy evaluation of medication
effective holistic self-care management ser- practitioners, registered nurses, licensed issues can guide recommendations for
vices are central to these national initiatives practical nurses, and physician assistants environmental and personal supports to
(HHS, 2010; Venkatesh, Goodrich, & and, to a lesser extent, pharmacists, behav- optimize medication management and
Conway, 2014), both of which are at ioral health specialists, and social workers adherence (AOTA, 2016). Moreover,
the core of occupational therapy practice. (Bazemore et al., 2016). Although some occupational therapy practitioners can
By taking a client-centered approach to approaches facilitate the diversification collaborate with the client to establish
the management of MCCs, occupational of disciplines represented in primary care and implement a medication routine that

The American Journal of Occupational Therapy 7101090010p3


aligns with the physician-prescribed regimen Human Development (K01HD076183); Brady, T. J., Murphy, L., O’Colmain, B. J.,
and fits into the client’s daily routine. Thus, and Ashley D. Halle was supported by Beauchesne, D., Daniels, B., Greenberg,
successful participation in occupations the Health Resources and Services Ad- M., . . . Chervin, D. (2013). A meta-analysis
can contribute to effective management of ministration, under the Geriatrics Work- of health status, health behaviors, and health-
chronic conditions, helping to achieve the force Enhancement Program Award. care utilization outcomes of the Chronic
Disease Self-Management Program. Prevent-
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