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REDUCING STIGMA, INCLUDING SELF-STIGMA

of California, Los Angeles Center for health education programme on early attitudes to mental illness. Psychiatry Clin individuals and other people in crisis. Suicide
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45. Penn DL, Guynan K, Daily T, reduction programs produce negative but education [published correction appears Adult Decision-Makers Aged 25+. San
Spaulding WD, Garbin CP, Sullivan M. transient effects on a depressed low- in Acad Psychiatry. 2008;32(3):265]. Francisco, CA: Runyon, Saltzman, and
Dispelling the stigma of schizophrenia: income community sample. J Soc Clin Acad Psychiatry. 2008;32(2):127---131. Einhorn Inc; 2012.
what sort of information is best? Schizophr Psychol. 2010;29(9):1020---1030. 58. Analysis of English and Spanish
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Bull. 1994;20(3):567---578. 50. Couture S, Penn D. Interpersonal Language Newspaper Coverage of Mental
Lawrie SM. Psychological autopsy studies
46. Penn DL, Kommana S, Mansfield M, contact and the stigma of mental illness: Health Issues in California, Fall 2012.
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Link BG. Dispelling the stigma of schizo- a review of the literature. J Ment Health. Burbank, CA: Entertainment Industries
Med. 2003;33(3):395---405.
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A test of the impact of biogenetic vs maritans of New York Suicide Awareness Advocates for Children and Families;
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K, Ozkan M. Effects of an antistigma pro- psychosocial causal explanations on implicit and Prevention Programme among com- 2012.
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On the Edge: a drama-based mental cational program on medical students’ enhancing mental health care for suicidal fl=06. Accessed October 22, 2012.

Reducing Self-Stigma by Coming Out Proud


Self-stigma has a perni- Patrick W. Corrigan, PsyD, Kristin A. Kosyluk, MS, and Nicolas Rüsch, MD
cious effect on the lives of
people with mental illness.
PEOPLE WITH MENTAL ILLNESS theoretical ground for the es- stigma as social constructions9;
Although a medical perspec-
who internalize stigma (self- sential public health goal of rather than being inherent, the
tive might discourage pa-
tients from identifying with stigma) often experience signifi- informing the advocacy com- meaning of behavior is subject to
theirillness,publicdisclosure cant loss of self-esteem and munity about how it might interpretation and definition
may promote empowerment self-efficacy,1,2 which may inter- develop an effective approach bounded by the constraints of
and reduce self-stigma. fere with the course of their to self-stigma change. The gay, language and symbol.10 This has
We reviewed the exten- illness,3 achievement of personal lesbian, bisexual, transgender, been further described in terms of
sive research that supports goals,3---5 and participation in and questioning (GLBTQ) identity11—the conceptualization of
this assertion and assessed
evidence-based services.5,6 An community calls this coming self meant to foster a sense of
a program that might di-
interesting empirical question is out: announcing to the world personal esteem and efficacy—and
minish stigma’s effect by
helping some people to the role of identity and disclo- one’s sexual orientation identity threat, the harm that oc-
disclose to colleagues, neigh- sure on self-stigma. A medical proudly to assert control over curs when one’s sense of self is
bors, and others their experi- perspective, which attempts to one’s life. Although the experi- challenged by association with
ences with mental illness, eliminate disease, might recom- ences of GLBTQ individuals a stigmatized group.12,13 Identity
treatment, and recovery. mend that people distance and people with mental illness threat appraisals have pernicious
The program encom- themselves from a mental illness effects on emotional well-being
are not precisely equivalent,
passes weighing the costs
identity and might see disclosure they have sufficient parallels to (increased anxiety and vigilance)
and benefits of disclosure in
as harmful to self-esteem and render research and theory and corresponding health.13 Social
deciding whether to come
out, considering different self-efficacy. However, research from the coming-out literature psychologists have further de-
strategies for coming out, shows that sharing one’s experi- useful to the self-stigma reduc- scribed stigma in terms of cogni-
and obtaining peer support ences with mental illness and tion goals of people with mental tive structures, perspectives that
through the disclosure pro- corresponding treatments can be illness. are especially useful for making
cess. This type of program empowering and may actually sense of identity threat and self-
may also pose challenges enhance self-esteem for some stigma in people with mental ill-
THE PROBLEM OF SELF-
for public health research.
people.7,8 STIGMA ness: stereotypes (usually negative
(Am J Public Health. 2013;
We sought to make sense of beliefs about a group, e.g., people
103:794–800. doi:10.2105/
AJPH.2012.301037) these seemingly contrary cir- Sociologists since Mead and with mental illness are dangerous),
cumstances and to discover Morris have framed deviance and prejudice (endorsement of these

794 | Reducing Stigma, Including Self-Stigma | Peer Reviewed | Corrigan et al. American Journal of Public Health | May 2013, Vol 103, No. 5
REDUCING STIGMA, INCLUDING SELF-STIGMA

beliefs leading to negative emo- others.33,34 These challenges lead influenced by public disclosure of individual who did not have suffi-
tional evaluation, e.g., that’s right; to counters—pithy statements membership in the stigmatized cient moral backbone to hold off
they’re dangerous, and I’m afraid people might use next time they group. Keeping secret and sup- Satan.54 The 19th and 20th cen-
of them), and discrimination (the catch themselves self-stigmatizing. pressing such important aspects of turies replaced religious models by
behavioral response to prejudice, More recently, a variant of this identity as sexual orientation have medicalizing these conditions.55,56
e.g., because I am afraid of them, I approach, acceptance and com- egregious effects—what Smart The Diagnostic and Statistical
am not going to hire them).14---16 mitment therapy, has been used to and Wegner call private hell44— Manual of Mental Disorders, First
Some people with mental illness address self-stigma.35,36 This ap- with harmful effects on mental Edition, for example, lists homo-
who internalize these stereotypes proach incorporates mindfulness and physical health, relationships, sexuality among the sociopathic
suffer significant blows to self- strategies to promote self-esteem employment, and well-being.44,45 personality disturbances.57
esteem and self-efficacy, which among group participants. Another Strategic disclosure of closet se- Similarly, most of what we con-
may undermine pursuit of goals intervention augments cognitive--- crets not only diminishes these sider to be major mental illnesses—
related to independent living, such behavioral therapy with narrative hurtful effects but often leads to schizophrenia, bipolar disorder,
as employment.17---22 This has enhancement, the sharing of per- a sense of personal empowerment major depression—have been de-
been called the “why try” effect, sonal stories with themes of hope and improved self-esteem.46---48 fined as medical conditions.57---59
exemplified by such sentiments as that contrast with stigmatizing The GLBTQ experience is Although it can serve as a useful
“Why try seek out a job? I am not views.37,38 Narrative enhancement a useful metaphor for discussion metaphor, the coming-out experi-
worthy of it.” and “Why attempt diminishes stigmatizing effects by of mental illness identity and dis- ence of GLBTQ persons differs
to live on my own? I do not have helping people experience them- closure,49 but the error of framing from that of people with serious
the skills to manage my own selves as entitled and able to create GLBTQ as mental illness, as the mental illness. People with mental
home.”5 Why try is a variant of meaning through constructing psychiatric profession did for illness are challenged by symp-
what Link et al. call modified a personally meaningful story in many years, should be avoided. toms and disabilities that interfere
labeling theory23,24; when people which they are protagonists. How are the 2 experiences simi- with life opportunities. Hence,
perceive devaluation, they avoid lar? The public cannot easily tell they must sort out barriers to life
situations where public disrespect IDENTITY AND that people are gay or mentally ill goals by evaluating stigma versus
is anticipated. Finally, self-stigma DISCLOSURE just by looking at them. Naive disabilities; current symptoms
can undermine participation in psychological notions might sug- will likely affect coming-out deci-
services that might ameliorate In summarizing social psycho- gest that homosexuality (or mental sions and activity.
a mental illness and its corre- logical theory about ways to chal- illness) distinguishes a unique cat- To escape the opprobrium of
sponding challenges.25---28 lenge the identity threat that egory from the rest of the popu- prejudice and discrimination,
Programs have been developed results from stigma, Major and lation, a duality that accentuates people might seek to deny self-
to reduce the pernicious and in- O’Brien point to an additional ap- the we-versus-they qualities that perceptions consistent with a stig-
sidious effects of the self-stigma of proach to resolving self-stigma.13 augment stigma.50 This can be matized role. For example, people
mental illness. A recent compre- Individuals who identify with their false. Although many people char- with sexual orientations that differ
hensive review of the literature stigmatized group may report less acterize themselves as either gay or from the majority might distance
yielded 14 studies that have stress arising from prejudice and straight, others self-identify as het- themselves from thoughts and be-
tested such programs.29 Most better self-esteem, a result found erosexuals and have had gay or haviors consistent with their orien-
common are psychoeducational in African Americans,39 older lesbian experiences, and still others tation to control pejorative self-
approaches, in which participants adults,40 women,41 and gay men are bisexual.51,52 Similarly, the statements (e.g., I am morally
are taught facts that dispute ste- and lesbians.42 The latter group, boundary between mental illness weak because I am attracted to
reotypes of mental illness.30---32 more broadly construed as and what is considered normal is people of the same gender).60 This
The educational experience is of- GLBTQ, is especially relevant for gray. Many symptoms of mental is analogous to advocacy of color
ten augmented by participants understanding the experiences of illness, including depression and blindness in the 1960s: people of
sharing their own experience with identity and mental illness because anxiety, are quite common. color should ignore their ethnic
the prejudice of others and its GLBTQ orientation and mental Finally, both groups have been differences in preference for
internalization. illness are conditions Goffman stigmatized because of society- a world without color bound-
A second approach to self- considered marked by discredit- wide misperceptions. In earlier aries.61,62 The Black Power move-
stigma reduction incorporates able stigma.43 Indication of group times, homosexuality and mental ment that emerged in that decade
cognitive---behavioral therapy, membership is not readily obvious illness were viewed in moral was in reaction to this naive view;
framing self-stigma as irrational to the public (compared, for ex- terms. Homosexuality represented it promoted proudly embracing
self-statements that the person ample, to skin color for ethnicity a volitional decision to opt for African heritage.62 Similarly, re-
seeks to strategically challenge or body type for gender). Hence, a sinful lifestyle.53 Mental illness search fairly consistently shows
by collecting feedback from effects of group identification are embodied the demon-possessed that GLBTQ persons who accept

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REDUCING STIGMA, INCLUDING SELF-STIGMA

and hold close their sexual orienta- showed not only more hope and view of recovery: pride is only mental illness who identified
tion, often publicly, experience better self-esteem, but enhanced achieved when symptoms abate more with the group were less
not only less self-stigma,63 but social functioning as well. Hence, and disabilities are resolved. An likely to experience harm to
also greater self-esteem,64 health identifying with mental illness alternative perspective recognizes self-esteem or self-efficacy as a
and wellness,64 relationship does not automatically lead to that a sense of agency (i.e., self- result of internalized stigma.20
satisfaction,65 and personal more stress; it is the perceived determination) in addition to the Another study showed that
achievement.66 legitimacy of the stigma that symptoms and disabilities of men- strong group identification was
threatens identity and harms tal illness fosters self-esteem and associated both with viewing
Identity and Mental Illness emotional health.75,77 Qualita- self-worth as part of an identity stigma as potentially more harmful
An intriguing contradiction tive research by Davidson et al. about which a person might be and with more perceived re-
may seem to challenge facile explains this in terms of the trans- proud.92 sources to cope with this threat.
extrapolation of this view of iden- formative process of constructing In this light, pride emerges from This means that identifying
tity development to the experi- a new sense of self.78---80 Roe de- a sense of self. Ethnic pride is with the group of people with
ences of people with mental ill- scribes the evolution from a clear example93---95: the state- mental illness can both expose
ness. Some research supports the patienthood to personhood as not ment, I am African American, does the individual to the risk of
health value of avoiding a mental necessarily a rejection of mental not suggest any accomplishment being discriminated against as
illness identity. Studies have illness but rather an integration of per se, but rather satisfaction with a member of that group (the
found correlations between as- its central experiences into a total heritage, an additional answer to downside of disclosure) and
suming a sick patient role and self-image.81 The ever-emerging the question, Who am I? This offer sources of support to cope
worse prognosis and greater conversation about recovery82,83 phenomenon explains mental with discrimination.75
pessimism.67---69 A further concern and capabilities84---86 seeks to illness as an identity in which
is that in persons with serious move beyond a medical perspec- a person might be proud. For Disclosure of Mental Illness
mental illnesses such as schizo- tive of recovery as an end-state some people, being a person with Identity
phrenia, a cogent sense of self remission of symptoms and over- mental illness defines much of If some kind of mental illness
may be disrupted by cognitive coming of disabilities.87 Research their daily experience. This kind identity has a potentially posi-
dysfunctions, including poor in- has shown that the definition of of identity promotes authenticity, tive impact, then—as for mem-
sight into the illness.70---72 This recovery should include a sense of a recognition of internal concep- bers of the GLBTQ community—
would seem to imply that identity hope, goal attainment, and com- tualizations in the face of an im- disclosure of that identity might
as a person with mental illness is munity.88---91 posing world. Although authen- yield health and other life ben-
to be avoided. A final consider- ticity and agency are concepts efits. In a previous study, Corri-
ation is the impact of identity Pride and Mental Illness that emerged from existential gan et al. conducted qualitative
threat on people with mental Identity philosophy96,97 and psychol- interviews with gay men and
illness. Research has validated Pride and identity have been ogy,98,99 social scientists have lesbians to identify specific atti-
Major and O’Brien’s model for understood in multifactorial applied it to empirical models of tudes and behaviors that exem-
people with mental illness,13 models that, among other things, sexual orientation,100,101 organi- plify the costs and benefits of
showing that higher perception distinguish accomplishment from zations,102 and ethnicity,103---105 staying in the closet or coming
of identity threat corresponds being. On one hand, people expe- operationalizing authenticity, for out.108
with lower self-esteem.73---75 rience pride in achieving a stan- example, in a tripartite model that In another study, Corrigan et al.
The relationship between iden- dard recognized by their culture encompasses self-alienation, au- transposed those findings into
tity and self-stigma is complex, (e.g., a medal for the long-distance thentic living, and accepting ex- a quantitative assessment of com-
however. An important study by runner or a college degree for the ternal influence.106 A scale mea- ing out with mental illness.7 An
Lysaker et al. showed that the person challenged by psychiatric suring this factor model was exploratory factor analysis of re-
effects of illness identity are influ- disabilities) or set by themselves shown to predict self-esteem and sponses provided by 85 people
enced by perceived legitimacy of (e.g., a personal-best running time aspects of well-being.106 Authen- with serious mental illnesses
mental illness stigma.76 Those or meeting a course deadline tic people are proud of their yielded a 2-factor structure: the
who identified with mental illness when experiencing a recurrence authenticity. benefits of being out versus the
but also embraced the stigma of of depression). These examples Group identification, defined reasons for staying in. Being out
their disorder reported less hope present overcoming the challenges as feelings of strong ties to a proved to be a protective factor
and diminished self-esteem. Con- of mental illness as leading to socially defined collection of against self-stigma’s effects on
versely, persons whose sense of identity pride, an experience not people,107 has been shown to di- quality of life and to augment
self prominently included their to be minimized. This view may minish the effects of stigma on a sense of personal empowerment
mental illness and who rejected have a downside, however, be- people with mental illness. One that enhanced well-being. If these
the stigma of mental illness cause it recapitulates the medical study found that people with findings are substantiated in

796 | Reducing Stigma, Including Self-Stigma | Peer Reviewed | Corrigan et al. American Journal of Public Health | May 2013, Vol 103, No. 5
REDUCING STIGMA, INCLUDING SELF-STIGMA

other research, coming out proud and in many social settings. Still, People who are victimized by about mental illness and involves
could have positive effects on the disclosure has potential costs as stigma may choose to not socialize much more than rejecting secrecy.
mental and physical health and well, including physical and emo- with, live near, or work alongside The goal is to seek out people
well-being of people with mental tional harm (hate crimes), dis- persons without disabilities. They with whom to share past history
illness. crimination, disapproval from may opt to live in a therapeutic and current experiences with
others, and self-consciousness community, work in a sheltered mental illness. People who broad-
COMING OUT PROUD AS (see the Box on this page).110 environment, or interact with cast foster their sense of power
A PUBLIC HEALTH The balance of costs and bene- friends in a social club developed over the experience of mental
PROGRAM fits depends on the individual and for mental illness. We suspect illness and stigma.
the setting (coming out at work social avoidance can lead to as
How do public health advocates probably has a different pattern of many negative as positive effects. Disclosing With a Community
promote coming out? Morrow costs and benefits than coming out People do not generally need of Peers
developed and tested a group in- in a faith community). Hence, to avoid work or community sit- GLBTQ persons often report
tervention meant to promote people must decide for them- uations to keep their experiences that affiliating with a community
coming out among lesbians.109 It selves. Guiding principles of moti- with mental illness private. Many of peers augments a proud identity
was an ambitious program with 10 vational interviewing may be use- people choose to enter these and eases disclosure.114 Similarly,
sessions that addressed such issues ful to facilitate the decision worlds but not share their expe- peer support may positively
as costs and benefits of living process: a facilitator expresses riences with others. Secrecy pro- facilitate identity and disclosure of
openly, homophobia communica- empathy with both costs and ben- vides a means to do this. An mental illness. Research has
tion skills, sexism assertiveness efits of the disclosure decision, alternative is selective disclosure. shown that people with serious
training, and workplace issues. avoids disputing interviewee re- Some people take a chance and mental illness who identify with
Results of a nonexperimental sponses, and supports self-efficacy disclose their mental illness to the mental illness group are more
study showed higher disclosure that moves the person to positive selected coworkers or neighbors. likely to attend a peer support
rates in the intervention than in change.111,112 These people risk being shunned program; participants in peer sup-
the control group. Increased dis- by those they confide in. How- port programs report a better
closure corresponded with lesbian Strategic Approaches to ever, with this risk comes oppor- quality of life.115 Peer support
identity development and en- Disclosure tunity. Persons who disclose may programs provide a range of ser-
hanced personal empowerment. Research shows that disclosure find support. Certain strategies vices: encouragement for those
We developed Coming Out Proud, is not a simple or solitary process can be used to test whether a po- who are just coming out; shared
derived from this model and but might be described by a hier- tential confidant will react posi- experiences, which foster a sense
the literature, for public health archy of approaches. In an ethno- tively. of community within a surround-
advocates to help people with graphic study of 146 people with Another option is indiscrimi- ing hostile culture; and advocacy
mental illness address disclosure mental illness, Herman identified nant disclosure: people abandon efforts to further promote group
and identity. It is a 3-part program 5 specific ways that people might secrecy altogether by making no pride.75,116---118 Unfortunately,
that addresses key issues related disclose; these are summarized in active efforts to conceal their men- research on the effects of peer
to disclosure: (1) the costs and the box on this page, along with tal health history and experiences. programs is limited. In qualitative
benefits of coming out, (2) the their costs and benefits.113 At the Abandoning concealment is not evaluations, participants reported
range of strategic approaches to most extreme level, people may the same as telling everyone one’s improvements in self-reliance and
disclosure, and (3) the augmenting stay in the closet—not come out at story. Broadcasting personal ex- independence, coping skills and
effects of peer support. all—through social avoidance. periences can educate people knowledge, and feelings of

Costs and Benefits of


Disclosing Some Costs and Benefits of Coming Out With Mental Illness at Work
Disclosure offers many benefits,
such as enhanced self-esteem Benefit Cost
and self-efficacy, which promote
No need to worry about hiding mental May face disapproval of mental illness or disclosure.
emotional and mental health that
illness from supervisor or coworkers. May face gossip.
in turn may improve physical
Can be more open about day-to-day affairs. May be excluded from work events or cooperative work projects.
health and well-being.109 The box
Can be honest with supervisor when requesting time May worry more about other people’s perceptions.
on the next page shows examples
off for appointments with mental health providers. May worry about being pitied or having competence questioned.
related to coming out at work.
May receive approval for disclosure.
Disclosing can improve relation-
May learn of others with similar experiences.
ships and expectations at work

May 2013, Vol 103, No. 5 | American Journal of Public Health Corrigan et al. | Peer Reviewed | Reducing Stigma, Including Self-Stigma | 797
REDUCING STIGMA, INCLUDING SELF-STIGMA

Hierarchy of Approaches to Disclosure of Mental Illness

Approach Benefit Cost

Social avoidance: tell no one; avoid situations Avoid people who might be harmful. Lose opportunity to meet supportive people.
where illness might be revealed.
Secrecy: keep illness a secret, but frequent environments No need to avoid important settings Possible guilt about keeping secrets.
with persons with and without mental illnesses. such as work or the community.
Selective disclosure: disclose illness to selected individuals Find a small group of understanding Some people may misuse disclosed information;
(e.g., coworkers, neighbors). and supportive people. may be difficult to keep track of who knows
and who doesn’t.
Indiscriminant disclosure: do not actively conceal illness No need to worry about who knows; Some people may misuse disclosed information.
from anyone. may find supportive people.
Broadcast experience: actively seek to educate others No need to worry about who knows; Some people may misuse disclosed information
through sharing personal experience of illness. feel empowered and fight stigma. or disapprove of political statement against stigma.

empowerment.116,117 Similar find- These efforts have been differen- 3424 S State St, Chicago, IL 60616 (e-mail: 3. Wright ER, Gronfein WP, Owens TJ.
corrigan@iit.edu). Reprints can be ordered at Deinstitutionalization, social rejection,
ings are emerging from a multisite tiated by researchers into educa-
http://www.ajph.org by clicking the “Reprints” and the self-esteem of former mental
experimental study of peer sup- tion programs (contrasting the link. patients. J Health Soc Behav. 2000;41
port programs.119,120 myths of mental illness with the This article was accepted August 7, (1):68---90.
2012.
The Wellness and Recovery facts) and contact (facilitating 4. Muñoz M, Sanz M, Pérez-Santos E,
Action Plan is another peer sup- interactions between people Quiroga Mde L. Proposal of a socio---
cognitive---behavioral structural equa-
port program that has garnered with lived experience and the Contributors tion model of internalized stigma in
research support. In one study, community).124 P. W. Corrigan developed the initial people with severe and persistent mental
draft of the article. K. A. Kosyluk illness. Psychiatry Res. 2011;186(2---3):
participants showed significant A recent meta-analysis found reviewed the literature. All authors 402---408.
improvements in self-reported that both forms of public stigma contributed ideas and reviewed all drafts
of the article. 5. Corrigan PW, Larson JE, Rüsch N.
symptoms, recovery, hopefulness, change lead to significant im- Self-stigma and the “why try” effect: im-
self-advocacy, and physical provements but that effect sizes pact on life goals and evidence-based
health.121 Another found that the for contact programs are signifi- Acknowledgments practices. World Psychiatry. 2009;8(2):
Preparation of the article was made 75---81.
program led to significant changes cantly larger and often 3 times
possible in part by a grant from the 6. Vogel DL, Wade NG, Haake S.
in attitudes regarding hope, re- greater.124 This finding reveals an
National Institute of Mental Health Measuring the self-stigma associated with
covery, and symptom manage- intriguing irony. Public health ef- (MH085981-03) that supports the seeking psychological help. J Couns Psy-
ment skills.122 More research is forts that promote contact will di- Center on Adherence and Self-Determi- chol. 2006;53(3):325---337.
nation.
needed to determine whether the minish stigma—providing the 7. Corrigan PW, Morris S, Larson J,
Thanks to Larry Davidson and David
beneficial effects of peer support community welcomes disclosure. et al. Self-stigma and coming out about
Roe for helpful comments on an earlier
one’s mental illness. J Community Psychol.
on self-stigma and disclosure con- To achieve this, however, people draft of this article.
2010;38(3):259---275.
tinue over time. with lived experience must come 8. Rappaport J. Community narratives:
out. Resources to support coming Human Participant Protection tales of terror and joy. Am J Community
No protocol approval was required be- Psychol. 2000;28(1):1---24.
Additional Public Health out and contact programs are
cause no human participants were in-
Approaches therefore essential. j 9. Mead GH, Morris CW. Mind, Self and
volved.
Society From the Standpoint of a Social
Coming Out Proud focuses on Behaviorist. Chicago, IL: University of
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Nicolas Rüsch is with the Department
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