You are on page 1of 14

Canadian Psychology / Psychologie canadienne © 2017 Canadian Psychological Association

2017, Vol. 58, No. 3, 292–304 0708-5591/17/$12.00 http://dx.doi.org/10.1037/cap0000107

COMMENTARY / COMMENTAIRE

Furthering the Discussion on a Physician-Assisted Dying Right for the


Mentally Ill: Commentary on Karesa and McBride (2016)
Dylan Davidson and Jocelyn A. Lymburner
Kwantlen Polytechnic University

In June 2016, Canada joined the handful of nations that have legalized physician-assisted dying (PAD). Yet,
with legislation restricting PAD to the terminally ill, many have been left contending for the right to PAD in
cases of debilitating chronic illness, including, but not limited to, severe mental illness. This commentary
serves to evaluate and continue the discussion of Canadian PAD for the mentally ill as introduced by Karesa
and McBride (2016), present and compare the results of our own research, and promote ongoing discourse on
this subject. Karesa and McBride (2016) surveyed psychologists regarding a prospective role for their
profession in the PAD process, as well as their attitudes toward PAD. We evaluate their methodology and
findings, suggesting manners in which future investigations of psychologists’ attitudes toward PAD can be
improved. Implementing some of these suggestions, our own study assessed n ⫽ 201 Canadian undergrad-
uates’ attitudes toward PAD for 2 mental illnesses (schizophrenia, depression) as compared with PAD for
physical illness (multiple sclerosis [MS]). In a repeated measures design, participants read vignettes depicting
individuals who suffer grievously from 1 of MS, schizophrenia, or depression. In accordance with the primary
hypotheses, schizophrenia and depression received lower levels of support for PAD, and were perceived as
involving less suffering, rationality, and futility of treatment compared to MS. Our study provides further
insight into the ways in which people differentiate physical and mental illnesses, and our discussion adds a
Canadian perspective to a pressing subject that, to date, has not been thoroughly investigated.

Keywords: physician-assisted dying, mental illness, schizophrenia, depression, multiple sclerosis

Despite increasingly liberal attitudes in the Western world, a voluntary, enduring, and well-considered request for PAD
physician-assisted dying (PAD) remains a fiercely debated sub- (Berghmans, Widdershoven, & Widdershoven-Heerding, 2013).
ject—legally, ethically, and morally. In many cases, PAD is con- Karesa and McBride’s (2016) investigation was conducted in light
ceived as a procedure reserved for patients suffering from a ter- of the Supreme Court of Canada’s initial ruling that PAD be restricted
minal illness, whereas support of PAD for nonterminal illness is by severity and futility, rather than by type of illness (Carter v.
more limited (McCormack & Fléchais, 2012). In their investiga- Canada, 2015). However, in June 2016, Bill C-14 (Parliament of
tion of psychologists’ attitudes toward PAD, Karesa and McBride Canada, 2016) restricted PAD to Canadians whose natural death is
(2016) broach a controversial yet pressing topic— both in terms of reasonably foreseeable in light of their medical condition. The nature
their discussion of PAD for the mentally ill, as well as their of Canada’s PAD legislation has stirred controversy among oppo-
discussion of a prospective role for psychologists in the PAD nents of PAD, as well as those who support PAD for chronic and/or
process. Both proponents and opponents of PAD have been ap- mental illness. While PAD in Canada is presently restricted to termi-
prehensive about extending the right to PAD to the mentally ill nally ill patients, legal battles and public uproar regarding a PAD right
(Appel, 2007). Many hold that patients with mental illness are for nonterminally ill patients are ongoing (Canadian Bar Association,
inherently unable to make a rational request for PAD, due to 2016). Interestingly, while Karesa and McBride’s (2016) survey of
distortions of perception or affect caused by mental illness (Cholbi, psychologists (foremost experts in mental health) demonstrated
2013). Yet, proponents of a PAD right for the mentally ill argue greater support of PAD for a terminally ill patient compared to a
that, despite undeniable ethical challenges, it is possible to cau- mentally ill patient, 28.9% of the psychologists were neutral or
tiously and responsibly proceed with PAD if a patient suffers supportive regarding the mentally ill patient’s right, potentially sug-
greatly with no prospect of relief, and if he or she clearly expresses gesting that PAD for the mentally ill may be appropriate in select
cases. It appears inevitable that relevant legislative debates will re-
surface in the future, given that developments in the law can be
conceived as faint echoes of societal expectations (Benabou & Tirole,
Dylan Davidson and Jocelyn A. Lymburner, Department of Psychology,
Kwantlen Polytechnic University.
2011).
Correspondence concerning this article should be addressed to Jocelyn In a recent survey conducted by the Canadian Medical Associ-
A. Lymburner, Department of Psychology, Kwantlen Polytechnic Univer- ation, only 29% of surveyed physicians were open to personally
sity, 12666 72nd Avenue, Surrey, BC V3W 2M8, Canada. E-mail: jocelyn providing medical aid in dying (Vogel, 2015). Of those who would
.lymburner@kpu.ca consider providing assistance, only 43% would aid in cases of

292
PHYSICIAN-ASSISTED DYING FOR THE MENTALLY ILL 293

nonterminal illness, and only 19% in cases of psychological suf- and 15% were undecided. In a Canadian study, Claxton-Oldfield
fering. Similarly, the Angus Reid Institute (2016) polled the Ca- and Miller (2015) found relatively high levels of support for PAD
nadian public and found that only 22% of respondents felt psy- in a comparison of attitudes among hospice palliative care (HPC)
chological suffering on its own is justifiable for PAD. It appears volunteers and the general public. Sixty-five percent of HPC
that many believe “physical” illness warrants greater access to volunteers and 72% of the public supported the legalization of
PAD than mental illness, yet little research explicitly measures the PAD. Yet, 74% of HPC volunteers and 55% of the public still
source of these beliefs. In light of these momentous developments preferred HPC for themselves over PAD if they were to become
in Canadian law, and the resulting debates, we investigated Cana- terminally ill. Claxton-Oldfield and Miller’s (2015) findings sug-
dian undergraduates’ attitudes and rationale concerning PAD for gest that among those who would not take the option themselves,
mental illness as compared with PAD for physical illness. The many may still believe in an individual’s right to choose PAD.
purpose of this commentary is threefold: To evaluate and continue Overall, support for PAD generally appears to be moderate in
the discussion of Canadian PAD for the mentally ill as introduced the Western world, but a more comprehensive literature base is
by Karesa and McBride (2016), to present and compare the results necessary to accurately compare differences in attitudes between
of our own research, and to promote ongoing discourse on this nations, populations, occupations, and most notably, types of ill-
subject that, to date, has not been thoroughly investigated. nesses. Despite the relevance of patient mental health status during
end-of-life care, psychologists are traditionally not directly in-
Attitudes Toward Physician-Assisted Dying: volved in the PAD process—a likely explanation as to why little
research has measured psychologists’ attitudes toward PAD. Thus,
Literature Review
Karesa and McBride’s (2016) investigation aids in addressing this
An initial exploration of the research landscape concerning gap in the literature base.
attitudes toward PAD will set the stage for a closer examination of
Karesa and McBride’s (2016) investigation, as well as our own Attitudes Toward Physician-Assisted Dying:
research. Despite considerable debate in the literature regarding
Methodological and Analytical Considerations
the ethical nature of PAD for the mentally ill, empirical research
investigating attitudes on this topic is scarce. However, attitudes Measuring attitudes toward PAD remains important because of
toward PAD as a general practice, or in the context of terminal potential future developments in the legal landscape, particularly
illness, have been studied extensively—primarily in the Western in nations where PAD is under legislative review or has recently
world. In general, research on attitudes toward PAD tends to been legalized. It is imperative that the best practices for accurately
present moderate levels of support, in many cases ranging from measuring these attitudes be determined and utilized in order to
⬃30 – 60%. maintain an accurate account of the stance held by the public and
In a sample of physicians practicing in Vermont, Craig et al. professionals such as physicians or psychologists. In terms of
(2007) found that 38.2% believed in the legalization of PAD, 16% methodology, we value Karesa and McBride’s (2016) decision to
believed it should be prohibited, 26% believed it should not be employ vignettes as a means of gauging psychologists’ attitudes
legislated, and 15.7% were undecided on the issue. Interestingly, toward PAD for depicted patients with either terminal or mental
physicians who regularly cared for patients with terminal illness illness. It is clear, particularly to mental health professionals, that
through the end of their life were significantly less likely to there is great diversity both between and within mental illness.
support legalization (34%) compared to those who did not regu- Different forms of mental illness can involve different symptoms,
larly care for terminal illness patients (48%). It is possible that levels of impairment, and quality of life outcomes. Undoubtedly, a
increased involvement with dying patients implores reduced will- patient who has suffered from treatment-refractory schizophrenia
ingness to “give up” on them (Craig et al., 2007; Emanuel et al., for decades presents a less hopeful situation compared to a patient
2000; Lindblad, Löfmark, & Lynöe, 2008). Emanuel et al. (2000) only recently diagnosed with major depressive disorder. Simulta-
surveyed 3,299 oncologists in the United States and found that neously, individuals with the same illness classification may ex-
only 22.5% supported PAD for terminal illness with enduring pain. perience multiple different symptoms and outcomes. For instance,
A great deal of research has revealed more conservative atti- two individuals diagnosed with schizophrenia may experience
tudes toward PAD among medical professionals compared to the entirely different symptoms, despite sharing the same diagnostic
general public. For example, Seale (2009) evaluated 3,733 U.K. label (American Psychiatric Association, 2013). While compelling
physicians’ attitudes toward PAD and compared them to a sample arguments have been made that it is ethically irresponsible to grant
of 1,080 members of the general public from the British Social PAD to any individual with mental illness, we posit that it is
Attitudes Survey (using the same methodology). In the case of inadequate to ask participants their attitudes toward PAD for the
PAD for terminal illness, 35.2% of physicians and 61.6% of the mentally ill without first specifying the nature of a depicted pa-
public believed that PAD definitely or probably should be allow- tient’s quality-of-life status. Vignettes are the ideal approach for
able under the law. For incurable, nonterminal illness, 21.7% of broaching these sorts of sensitive social conversations, as they
physicians and 41.3% of the public agreed that PAD definitely or simulate the complexities associated with the subject (Finch,
probably should be allowed. Similarly, Lindblad et al. (2008) 1987), thereby allowing us to approximate and understand the
surveyed Swedish physicians and found that 34% of the surveyed nature of informed reactions to real-world scenarios (Schoenberg
physicians supported the legalization of PAD, while 39% opposed, & Ravdal, 2000). In the context of PAD, this sort of simulation can
and 25% were “doubtful.” In a follow-up study, Lindblad, Löf- foster consideration of the patient’s individual circumstances—not
mark, and Lynöe (2009) found that 73% of a sample of the only their type of illness, but their unique expression of the illness.
Swedish public were in favour of PAD, while 12% were opposed, The vignette approach invites participants to make normative
294 DAVIDSON AND LYMBURNER

responses to a set of specific circumstances, rather than asking the terminally ill. Professional experience with mental illness is but
them to make generalisations about a specific population (Finch, one of many factors that may influence attitudes toward PAD for
1987). Thus, had more vignettes been employed, Karesa and the mentally ill. We feel that it is vital to explore these factors
McBride’s (2016) findings may have demonstrated different levels under the premise that mental illness is diverse, and that sweeping
of support for PAD depending on the form of mental illness judgments regarding its suitability for PAD should be transposed
depicted in the vignette. with judgments based on individual patient circumstances.
Karesa and McBride’s (2016) investigation allows us to ascer-
tain basic information from their descriptive statistics; for instance, Mental Illness and Physician-Assisted Dying:
participants clearly expressed greater support of PAD for the
Unique Implications
terminal illness patient. However, a statistical comparison of atti-
tudes toward PAD for terminal illness versus mental illness on a While general attitudes toward PAD have been measured ex-
number of factors (e.g., willingness to support the client’s request, tensively, little of this research evaluates attitudes toward PAD for
ability to remain neutral, etc.), as well as tests for significant the mentally ill specifically. Karesa and McBride (2016) contribute
differences between psychologists’ professional and personal to the addressing of this gap, and their findings regarding higher
opinions regarding PAD, would have been more informative. support for PAD in the case of terminal illness compared to mental
Inferential statistics confer a deeper understanding of the results, illness reflects a general trend observed in this limited literature
and often new information that is unattainable through a glance at base (McCormack & Fléchais, 2012). For example, Bolt, Sni-
the descriptive data. jdewind, Willems, van der Heide, and Onwuteaka-Philipsen
Following the vignettes, Karesa and McBride (2016), asked (2015) measured 1,456 Dutch physicians’ willingness to perform
psychologists to offer their personal and professional opinions PAD in cases of cancer, miscellaneous physical illness, mental
concerning patient rights to refuse medical treatment and receive illness, dementia, and general tiredness of living. Clear discrepan-
assistance in dying. We question the degree of discriminant valid- cies arose regarding support for each illness: Cancer (85%), mis-
ity present between the constructs of personal and professional cellaneous physical illness (82%), early-stage dementia (40%),
opinions. Unfortunately, a scan of the literature did not reveal to us mental illness (34%), advanced dementia (29 –33%), and being
any central explanation regarding usage of these constructs within tired of living (18 –27%). Similarly, Kouwenhoven et al. (2013)
the context of attitudes research, nor serve to repeal our concerns. compared attitudes toward PAD among Dutch physicians, nurses,
Furthermore, only minor differences were observed between psy- and the general public. They found that cancer with physical
chologists’ personal and professional opinions. Thus, while it is symptoms received significantly more support for PAD (physi-
possible that the psychologists’ personal and professional opinions cians, 77%; nurses, 49%; public, 65%) compared to cancer without
simply align on these issues, it is unclear whether they were even physical symptoms (physicians, 37%; nurses, 36%; public, 39%).
capable of compartmentalizing these different opinions. If attitudes Interestingly, severe chronic depression (physicians, 35%; nurses,
toward PAD are to be measured using the dichotomy of “personal 36%; public, 28%) received similar ratings to cancer without
versus professional opinion,” the boundaries of these constructs physical symptoms.
must be clearly defined for participants and readers alike. Supple- Such findings demonstrate a clear distinction between terminal
menting this notion is the fact that a notable portion of the and chronic illness with regard to professional and public support
psychologists expressed uncertainty or inability to remain profes- for PAD. Thus, we posit that comparing attitudes toward PAD for
sionally neutral when working with a client requesting PAD the terminally ill and the mentally ill does not provide an apt basis
(21.4% for the terminal illness vignette; 45.8% for the mental for understanding the unique implications of patient psychopathol-
illness vignette), thereby potentially discrediting their ability to ogy in the PAD process. Foremost, participants asked to indicate
possess diverging personal and professional opinions. Overall, it is their attitudes toward PAD for both terminal and mental illness are
our perspective that the data concerning psychologists’ opinions presented with a stark contrast in the urgency and futility of the
on the rights to refuse medical treatment and receive assistance in illnesses, which may manufacture decreased ratings of support of
dying should be viewed tentatively, at least until clarification of PAD for mental illness, particularly among professionals who are
the boundaries constituting personal and professional opinions, beholden to promoting mental health patients’ vitality and resil-
and how psychologists would be able to compartmentalize these ience. A more informative comparison that could have been posed
opinions during their response, are provided. to Karesa and McBride’s (2016) sample of psychologists would
In finding low support of PAD for the mentally ill among the have been one of attitudes toward PAD for those with chronic
surveyed psychologists, Karesa and McBride (2016) concluded mental illness versus those with chronic physical illness. In re-
that this finding is unsurprising, given that PAD for the mentally moving terminality from the equation, comparing attitudes toward
ill is not a frequently recognised practice. Infrequent recognition of PAD for these categories of illness allows for a more precise and
this practice may indeed inherently serve as a deterrent for ex- equitable measurement of the factors that may preclude or reduce
pressing a supportive viewpoint toward PAD for the mentally ill. mental illness’ suitability for PAD. Given that the right to PAD for
However, it is also worth considering that, because psychologists terminally ill individuals has now been legislated in Canada and a
are indebted to the prevention of harm and the promotion of number of other countries, we suggest that a more pressing and
vitality among their patients, posing the dilemma of granting a relevant focus for future research is on attitudes toward PAD for
PAD right to those with severe mental illness may yield more nonterminal illnesses, including mental illness. We argue that there
positive results among populations less intimate with mental ill- exist three primary concerns related to both the legitimacy of a
ness. If true, this phenomenon would mirror findings in the liter- request for PAD and key aspects of the Supreme Court of Can-
ature regarding oncologists’ generally lower support of PAD for ada’s ruling: The severity of the illness in question, the rationality
PHYSICIAN-ASSISTED DYING FOR THE MENTALLY ILL 295

of the patient, and prospects for treatment. It is these concerns that Treatment Prospects for Severe Mental Illness
specifically appear to divide support of PAD for the mentally ill.
Most cases of mental illness are treatable to some extent,
whereby therapy and/or medication often instill even a modicum
The Question of Unbearable Psychological Suffering of hope for a better future (Berghmans et al., 2013). A potential
concern is that allowing PAD for the mentally ill would suppress
Some opponents of PAD for the mentally ill believe that the motivation to improve the quality of social and medical resources
very act of comparing mental suffering to pain resulting from for these patients (Dembo, 2013). Mental health professionals are
failure of bodily functioning is depreciative of those suffering from obligated to investigate the source of and treat issues causing
such physical debilitation (Cholbi, 2013). Others may contend that suicidal ideation. If a patient requests PAD due to unbearable
psychological suffering is never truly unbearable, or that it is less mental suffering, this obligation is at odds with professionals’
authentic than physical suffering (Cholbi, 2013; Dembo, 2013). obligation to relieve patients’ suffering (Appel, 2007; Dembo,
Certainly, it is true that physical suffering (e.g., being wheelchair- 2010). Some argue that even entertaining the option of PAD with
bound) is more tangibly observable than mental suffering (Brown, a mental health patient compromises a vital component of the
Elliott, & Paine, 2013; Cholbi, 2013). Thus, one might conclude doctor-patient relationship—the prevention of demoralization and
that no form of mental illness warrants equal or greater consider- the promotion of hope (Berghmans et al., 2013).
ation of access to PAD. True as it may be that mental illness often occurs for a limited
Despite some challenges in quantifying mental suffering, nu- duration, some forms of mental illness can severely and/or chron-
merous studies have observed poor quality of life outcomes in ically impair patients for many years (Cholbi, 2013). In select
patients with severe mental illness, and a strong relationship be- cases, severe mental illness can be refractory to even the most
tween increased severity of mental illness and reduced quality of extreme methods of treatment (Dembo, 2010). Difficult as it may
life (Rogers, Hengartner, Angst, Ajdacic-Gross, & Rössler, 2014; be to conceive of granting PAD to one whose illness could be
Williams, Sands, Elsom, & Prematunga, 2015). Indeed, psycho- remedied in the future, it is also distressing to imagine an individ-
logical health issues and disorders are the leading cause of dis- ual with refractory mental illness who would feel forced to die in
ability in Canada (Canadian Mental Health Association, 2012; solitude and fear (Dembo, 2010), or even one who dies naturally
Mental Health Commission of Canada, 2014). Furthermore, for after a lifetime of suffering in the hope of treatment. It is here that
requests of PAD brought on by physical or terminal illness, mental the fundamental duty of mental health professionals is most im-
suffering still weighs heavily in physicians’ decisions to grant portant—is it possible that by refusing to support or administer
requests (Dembo, 2010). Many advocates believe that patients PAD, one would be committing the “harm” of prolonging the
should be allowed to choose when to end their own lives, and that irremediable suffering that these professionals are so indebted to
they should be allowed to avoid unwanted distress, be it physical prevent (Dembo, 2010)?
or psychological (Appel, 2007).

Other Potential Influences on Attitudes Toward PAD


Rationality in the Throes of Severe Mental Illness for the Mentally Ill
Many stress that a desire for PAD resulting from psychopatho- A variety of reasons may exist for both supporting and opposing
logical suffering is inherently irrational (Berghmans et al., 2013; PAD for the mentally ill. Clear possibilities include general atti-
Cholbi, 2013; Dembo, 2010). Arguably, the sheer difficulty of tudes toward PAD (i.e., PAD for terminal illness), as well as the
determining competence in patients with severe mental illness primary issues presented in the Canadian federal law: Namely, the
weighs against the notion of granting these individuals the right to severity of the illness, the patient’s rationality, and treatment
PAD (Moskowitz, 1996). In many cases, mental illness distorts prospects. These factors play a large role in determining attitudes
judgment and increases the risk of miscommunication—a legiti- toward PAD for any form of illness, and are subject to greater
mate, critical concern within the context of PAD (Brown et al., scrutiny in cases of mental illness. However, opinions on such a
2013). Certainly, an individual in the throes of severe mental complex issue undoubtedly are subject to more internalized influ-
illness may underestimate their treatment prospects (Appel, 2007), ences. Religiosity, stigma toward mental illness, and level of
and notably, many suicides do result from untreated, but presum- familiarity with mental illness are potential, but relatively unex-
ably treatable, mental illness (Berghmans et al., 2013). plored influences on support of PAD for the mentally ill.
On the other hand, many contend that if a request for PAD stems Religiosity. Numerous studies on attitudes toward PAD have
from a thorough and realistic evaluation of one’s past, present, and shown that there exists a negative correlation between religiosity
future life situation, and not purely from thought patterns caused and support for PAD. This relationship has been observed among
by a mental illness, then requesting PAD can be considered a several populations, such as mental health counselling students
rational response (Berghmans et al., 2013; Dembo, 2010; Groene- (Bevacqua & Kurpius, 2013), undergraduates (Peacock, Heath, &
woud et al., 1997). Appel (2007) claims that the practitioner values Grannemann, 2001), and physicians (McCormack, Clifford, &
of maximizing autonomy and minimising suffering logically lend Conroy, 2012), among others. Danyliv and O’Neill (2015) re-
themselves to competent, chronically mentally ill individuals as viewed British Social Attitudes Survey data from 1983–2012 to
well. It may be that that patients deserve an evaluation of their determine the role of religion in attitudes toward PAD and found
competency to request PAD, as opposed to decisions resting on the that general support for PAD increased over time, while religiosity
assumption that mental illness is invariably tied to an absence of was the most significant predictor of opposition toward PAD in all
competence (Appel, 2007). years analysed. Notably, these studies evaluated the relationship
296 DAVIDSON AND LYMBURNER

between religiosity and attitudes toward PAD on a general lev- ticipants indicated their level of support for granting PAD to the
el—it is unknown whether this relationship differs for cases of patient depicted in the vignette, and responded to items designed to
mental illness, although it is unlikely. gauge their rationale for their decisions. As such, we add relevant
Stigma toward mental illness. In the past few decades, edu- data to studies such as Karesa and McBride’s (2016), and are able
cation and public awareness regarding mental illness has greatly to more directly address consistent findings of greater support of
increased, but social rejection of those with mental illness has PAD for physical illnesses. We additionally evaluated general
remained alarmingly stable (Angermeyer & Dietrich, 2006; Scho- attitudes toward PAD, religiosity, stigma toward mental illness,
merus et al., 2012). While certain physical illnesses unfortunately and familiarity with mental illness as potential predictors for
are subjected to stigma, stigma toward mental illness as a whole participants’ level of PAD support.
tends to be more pronounced (Bahm & Forchuk, 2009; Chaudoir, Based on the extant literature, it was hypothesised that partici-
Earnshaw, & Andel, 2013; Corrigan et al., 2005). Prejudicial pants would show greater support of PAD for physical illness
attitudes can exist in virtually anyone, and a potential concern is (MS) compared to mental illness (schizophrenia, depression). In
that these attitudes may influence decision making in the context terms of rationale for participants’ decision, it was also hypoth-
of PAD. Patients may feel coerced into accepting PAD as a esised that the mentally ill patients would be seen as experiencing
solution to pressure from family, friends, the health care system, or less suffering, rationality, and futility of treatment. It was expected
society (Appel, 2007; Dembo, 2013). Stigma could cause exces- that general attitudes toward PAD (i.e., for terminal illness) would
sive justification for PAD in the case of mental illness, rather than predict higher support of PAD for each patient, with this relation-
as a last resort (Biggs & Diesfeld, 1995), or, alternatively, it could ship strongest for the physical illness (MS). Religiosity was ex-
cause reduced support or administration of PAD due to beliefs that pected to predict lower levels of support for PAD. Stigma toward
the mentally ill deserve fewer rights (Werner, 2015). Within the mental illness was also expected to predict negative attitudes
context of PAD, it may not be the case that quality of life toward PAD for mental illness, due to its tendency to cause beliefs
impairments among the mentally ill are given due consideration. in the need for restricting or controlling the rights of the mentally
Familiarity with mental illness. It is unclear to what extent ill. Lastly, due to limited findings regarding support for PAD
familiarity with mental illness would relate to support of PAD for among various levels of familiarity with mental illness (i.e., the
the mentally ill. For example, mental health professionals have
general public, medical experts, mental health experts), it was
joined both sides of the ethical debate. Those who are familiar with
unclear to what extent this construct would impact support of PAD
mental illness may feel that mentally ill patients deserve the right
for the mentally ill within the same population. Overall, evaluating
to PAD, but their experience may also influence greater caution
these hypotheses provides greater insight as to how and why
regarding the patient’s rationality, or increased hope regarding
people differentiate physical and mental illnesses with regard to
treatment prospects. Moreover, it is important to note that famil-
support for PAD.
iarity with mental illness is a broad concept. A psychologist’s
familiarity with mental illness could be considered a different form
of familiarity compared to an individual who has a relative with Method
mental illness, or compared to someone who has personally expe-
rienced severe mental illness.
Design and Procedure
Present Study This study constituted a repeated measures design such that
Similar to Karesa and McBride’s (2016) study, our research is participants indicated their level of support for PAD and rationale
also vignette-based. However, given the arguments made earlier for each depicted illness. Basic demographics, including age, gen-
with respect to the breadth of potential mental illnesses, as well as der, and the number of years spent in postsecondary education
appropriate comparison groups, we measured Canadian undergrad- were collected online from an undergraduate student sample. All
uates’ attitudes toward PAD for two mental illnesses (schizophre- participating students, at minimum, had completed or were in the
nia, depression) and one chronic physical illness (multiple sclero- process of completing an introductory psychology course. Follow-
sis [MS]). MS was selected as a representation of chronic physical ing collection of demographics, participants read three randomly
illness due to its often severe impact on quality of life and daily ordered vignettes that depicted fictional individuals who suffer
functioning. Schizophrenia and depression can also entail poor from one of three illnesses—MS, schizophrenia, or depression—
health outcomes, and were selected to represent chronic mental and who have requested PAD. After reading each vignette, partic-
illness due to the frequency of which these disorders have been ipants indicated their level of support for PAD for the depicted
compared in research studying attitudes toward mental illness individual, as well as their rationale for their decision. To account
(Angermeyer & Dietrich, 2006). Depression and schizophrenia are for participants who may select their primary rationale based on
also rather different health conditions, often generating different the options located at the top of the list, we randomized the order
feelings surrounding illness severity and rationality, and thus of items gauging participants’ rationale for their level of support
jointly represent some of the diversity of mental disorders. All for PAD. In addition to the vignettes and vignette response items,
three depicted illnesses are comparable in the sense that they can participants completed validated measures of general attitudes
involve a range of mild to devastating quality-of-life impairments. toward PAD, religiosity, stigma toward mental illness, and famil-
In the present study, participants read vignettes depicting individ- iarity with mental illness in order to evaluate these factors as
uals who suffer severely from one of MS, schizophrenia, or de- potential predictors of the relationship between illness type and
pression, and have requested PAD. Following each vignette, par- level of support for PAD.
PHYSICIAN-ASSISTED DYING FOR THE MENTALLY ILL 297

Measures integrate religion into their life. Past psychometric evaluations of


the DUREL have revealed high internal consistency (Cronbach’s
Vignettes and vignette response items. Participants read vi- alpha ⫽ .78 and .91), as well as high convergent validity with other
gnettes depicting a fictional man in his 50s with one of MS, schizo- measures of religiosity (r ⫽ .71–.86; Koenig & Büssing, 2010;
phrenia, or depression, and who suffered severe quality-of-life im- Storch et al., 2004). In the present study, internal consistency was
pairments due to his illness. In each case, the patient had persistently high, ␣ ⫽ .92.
requested PAD during states of normal mental health and awareness Opening Minds Stigma Scale for Health Care Providers
which were characterised by good judgment. Each patient had tried (OMS-HC; Kassam, Papish, Modgill, & Patten, 2012). We
the most common forms of treatment for each illness, as well as used the 12-item variant of the OMS-HC to discriminate between
last-resort methods of treatment, to no avail. Vignettes for each illness positive and negative dispositions toward the mentally ill. Al-
were approximately the same length in words. Similar to the vignette though the OMS-HC was designed to measure stigma toward
creation process of Karesa and McBride (2016), our schizophrenia mental illness among various health care providers, we deemed its
vignette is a heavily modified version of one created by Levy, Azar, items appropriately answerable by a student population. The scale
Huberfeld, Siegel, and Strous (2013). The MS and depression vi- itself was tested at various levels of health care experience and
gnettes were constructed based on the modified schizophrenia knowledge (e.g., medical student, social worker, physician), indi-
vignette in order to ensure comparability. In designing these vi- cating some flexibility for the responding population. Minor word-
gnettes, our intention was to connect distinct perceptions about ing changes were necessary for one item in order to adapt the scale
mental and physical illness to differences in level of support for for an undergraduate sample. The 12-item OMS-HC measures two
PAD for these illnesses. Thus, it was vital that the vignettes factors of stigma toward: (a) People with mental illness and (b)
describe cases of equally severe symptomatology and impact on Disclosure of mental illness. Internal consistency reliability esti-
quality of life. Pilot tests were conducted to evaluate whether mates for the 12-item version revealed acceptable coefficients for
participants viewed the three illnesses as having equal levels of the tested populations (Cronbach’s alpha ⫽ .73–.74; Modgill,
severity (rated on a scale from 1–10, where 1 ⫽ Not at all severe, Patten, Knaak, Kassam, & Szeto, 2014). For the present study’s
and 10 ⫽ Extremely severe), and to determine whether modifica- sample, ␣ ⫽ .73.
tions were necessary to balance the vignettes. Results of the first Level-of-Contact Report (Holmes, Corrigan, Williams, Ca-
pilot test revealed significant mean differences between each of nar, & Kubiak, 1999). Using a rank-order scoring system, the
three illnesses. After modifying the vignettes, a second pilot study 12-item Level-of-Contact Report assessed level of exposure to
(n ⫽ 20) revealed no significant differences, F(2, 38) ⫽ 1.71, p ⫽ severe mental illness. During the measure’s development, three
.19 between the vignettes in ratings of severity: MS (M ⫽ 8.7, experts on psychiatric disability ranked the items in terms of
SEM ⫽ .22); schizophrenia (M ⫽ 8.2, SEM ⫽ .32); and depression intimacy of contact to determine the weight of each item (Holmes
(M ⫽ 8.1, SEM ⫽ .28). The second iteration of the vignettes was et al., 1999). Among these raters, the mean of rank order correla-
thus used for the present study. tions summarising interrater reliability was .83.
Following each vignette, participants indicated the extent to which
they believed that the depicted individual should have the right to
PAD (1 ⫽ Not at all acceptable, 5 ⫽ Very acceptable). In order to Statistical Analyses
gauge rationale for their decision, participants then rated their level of All analyses were completed using the Statistical Package for
agreement with the following factors (1 ⫽ Strongly disagree, 5 ⫽ the Social Sciences (SPSS) 22.0. A repeated measures MANOVA
Strongly agree): (a) Whether the illness was severe enough for PAD; was conducted to evaluate pairwise mean differences between
(b) Whether the individual was capable of rationally requesting PAD; each illness on the measures of support for PAD, as well as the five
(c) Whether the illness could still respond to treatment; (d) Whether “rationale” items (e.g., whether the illness was perceived as treat-
the individual would be a burden on their family and friends should able), for a total of six dependent variables. In addition, multiple
they continue to live; and (e) Whether the individual’s quality of life linear regression analyses aided in determining which measured
was likely to improve. The first two rationale-based items were variables predict attitudes toward level of support for PAD (the
derived loosely from items created by Westefeld, Sikes, Ansley, and outcome variable). These potential predictors included the five
Yi (2004). The remaining items were created to provide a broader set rationale items, as well as scale/subscale scores from the ESQ,
of options when indicating rationale for the PAD decision. DUREL, OMS-HC, and Level-of-Contact Report. An a priori
Euthanasia Support Questionnaire (ESQ; Ho, 1998). The power analysis was conducted using GⴱPower 3.1 to determine
voluntary euthanasia factor of the ESQ was used to measure necessary sample sizes for a standard alpha level (␣ ⫽ .05), a
general attitudes toward PAD. Participants read brief statements medium effect size (f2 ⫽ .15), high statistical power (1 ⫺ ␤ ⫽
about the right to make decisions concerning life and death and .95), and 12 predictors. With these parameters, power analysis
indicated their agreement with each statement. The ESQ’s 6-item indicated a sample size of n ⫽ 182 would be required for regres-
voluntary euthanasia factor is highly reliable (Cronbach’s alpha ⫽ sion analyses, and a lower sample size was required for the
.87), with moderate item-total correlations (.68 –.76, with one MANOVA procedure. Two predictors were removed from the
item at .51; Ho, 1998). High internal consistency for the vol- final regression models.
untary euthanasia factor was maintained in the present study as
well, ␣ ⫽ .88.
Results
Duke University Religious Index (DUREL; Koenig, Parker-
son, & Meador, 1997). The DUREL’s 3-item intrinsic religios- A total of n ⫽ 201 undergraduate students completed the survey.
ity subscale was used to measure the degree to which participants The mean age of participants was M ⫽ 21.64 (SD ⫽ 4.16) and the
298 DAVIDSON AND LYMBURNER

sample was predominantly female (n ⫽ 164; 81.6%). The sample 180) ⫽ 55.8, p ⬍ .001, R2 ⫽ .76. Four significant predictors were
could be described as moderately religious overall, with an average found for support of PAD: Whether participants thought the illness
score of M ⫽ 7.96 (on a range of 3–15), and a fairly even was severe enough for PAD, ␤ ⫽ .62, t ⫽ 10.08, p ⬍ .001;
distribution of scores across this range. Most students were at an whether participants thought the patient would be a burden on their
early stage of their postsecondary education: First year of postsec- family/friends, ␤ ⫽ .13, t ⫽ 2.94, p ⬍ .01; intrinsic religiosity,
ondary education, n ⫽ 90 (44.8%); second year, n ⫽ 47 (23.4%); ␤ ⫽ ⫺.09, t ⫽ ⫺2.22, p ⬍ .05; and level of contact with mental
third year n ⫽ 38 (18.9%); fourth year, n ⫽ 20 (10%); fifth year illness, ␤ ⫽ ⫺0.1, t ⫽ ⫺2.53, p ⬍ .05.
or later, n ⫽ 6 (3%). Schizophrenia. A total of n ⫽ 190 participants were included
in the schizophrenia regression model (see Table 5). The entered
MANOVA Analysis predictors significantly predicted support of PAD for schizophre-
nia as well, F(10, 179) ⫽ 57.38, p ⬍ .001, R2 ⫽ .76. Four
Due to limitations in how SPSS responds to missing data in its significant predictors were found for support of PAD for schizo-
analyses, a total of n ⫽ 190 participants were included in the phrenia: Whether participants thought the illness was severe
repeated measures MANOVA procedure. Analyses of Shapiro- enough for PAD, ␤ ⫽ .58, t ⫽ 8.88, p ⬍ .001; whether participants
Wilk tests indicated violations of the assumption of normality for thought the patient could rationally request PAD, ␤ ⫽ .09, t ⫽
each variable. However, the Shapiro-Wilk test is more suitable for 1.05, p ⬍ .05; whether participants thought the illness would
small sample sizes, and is hypersensitive to small deviations from respond to treatment, ␤ ⫽ ⫺0.14, t ⫽ ⫺2.26, p ⬍ .05; and whether
normality when used in larger samples. participants thought the patient would be a burden on their family/
In line with the pilot data, vignettes were rates as equal in friends, ␤ ⫽ .1, t ⫽ 2.2, p ⬍ .05.
severity (F(2, 398) ⫽ 2.68, p ⫽ .07. Descriptive statistics for Depression. Finally, n ⫽ 187 participants were included in
support of PAD are provided in Table 1, while Table 2 displays the the regression model for depression (see Table 6). Once again, the
results of the MANOVA analysis. Mean ratings for support of entered set of predictors significantly predicted support of PAD for
PAD across the illnesses were as follows: MS (M ⫽ 3.49, SEM ⫽ depression, F(10, 176) ⫽ 59.29, p ⬍ .001, R2 ⫽ .77. Six signifi-
.08); schizophrenia (M ⫽ 3.12, SEM ⫽ .08); and depression (M ⫽ cant predictors were found for level of PAD support for depres-
2.71, SEM ⫽ .08). MANOVA analysis with a Greenhouse-Geisser sion: Whether participants thought the illness was severe enough
correction determined that level of support for PAD significantly for PAD, ␤ ⫽ .43, t ⫽ 7.1, p ⬍ .001; whether participants thought
differed based on the type of illness depicted, F(1.87, 353.52) ⫽ the patient could rationally request PAD, ␤ ⫽ .18, t ⫽ 3.61, p ⬍
57.49, p ⬍ .001, ␩2 ⫽ .23. There were also significant differences .001; whether participants thought the illness would respond to
in rationale for support of PAD across the illnesses: Whether the treatment, ␤ ⫽ ⫺0.15, t ⫽ ⫺2.97, p ⬍ .01; whether participants
illness was severe enough for PAD (Greenhouse-Geisser cor- thought the patient would be a burden on their family/friends, ␤ ⫽
rected), F(1.92, 362.97) ⫽ 48.56, p ⬍ .001, ␩2 ⫽ .2; whether the .11, t ⫽ 2.53, p ⬍ .05; general attitudes toward PAD, ␤ ⫽ .13, t ⫽
patient was rational enough to request PAD, F(2, 378) ⫽ 61.51, 2.68, p ⬍ .01; and intrinsic religiosity, ␤ ⫽ ⫺0.09, t ⫽ ⫺2.13, p ⬍
p ⬍ .001, ␩2 ⫽ .25; whether the illness would likely respond to .05.
treatment, F(2, 378) ⫽ 32.09, p ⬍ .001, ␩2 ⫽ .15; whether the
patient would be a burden on family/friends if they continued to Discussion
live, F(2, 378) ⫽ 40.25, p ⬍ .001, ␩2 ⫽ .18; and on whether the
patient’s quality of life was likely to improve, F(2, 378) ⫽ 57.08, p ⬍ Support for PAD was greatest for the MS patient, followed by
.001, ␩2 ⫽ .23. Using the Bonferroni method, pairwise comparisons the schizophrenia patient, followed by the depression patient, thus
of the mean differences between illnesses (see Table 3) revealed supporting the primary hypothesis that support would be greater
significant differences for all possible comparisons on each item, for physical illness compared to mental illness. In line with our
with one exception: The schizophrenia and depression patients did second hypothesis, rationale for support of PAD followed a similar
not significantly differ with regards to how rational they were trend, such that the MS patient’s condition was perceived as
perceived to be, p ⫽ .45. distinctly severe enough to warrant PAD, as well as involving
more rationality and futility of treatment compared to the schizo-
phrenia and depression patients. Interestingly, participants per-
Regression Analyses
ceived the schizophrenia and depression patients to be equally
Multiple sclerosis. A total of n ⫽ 192 participants were rational/irrational, perhaps suggesting that across the spectrum of
included in the MS regression model (see Table 4). The entered set mental disorders, the implications of impaired judgment were clear
of predictors significantly predicted support of PAD for MS, F(10, to participants. In terms of other reasons given in support of PAD,

Table 1
Descriptive Statistics: Level of Support for PAD Across Illnesses

Illness (n ⫽ 200) 1 2 3 4 5

Multiple Sclerosis 12 (6%) 25 (12.5%) 52 (26%) 78 (39%) 33 (16.5%)


Schizophrenia 19 (9.5%) 39 (19.5%) 63 (31.5%) 59 (29.5%) 20 (10%)
Depression 27 (13.5%) 55 (27.5) 77 (38.5%) 30 (15%) 11 (5.5%)
Note. PAD ⫽ Physician-assisted dying; 1 ⫽ Strongly Disagree; 5 ⫽ Strongly Agree.
PHYSICIAN-ASSISTED DYING FOR THE MENTALLY ILL 299

Table 2
MANOVA Results: Effects of Illness Type on Support for PAD and Rationale for Support

Measure Illness M (SD) SEM 95% CI (U, L) F ␩2

Support for PAD 57.49ⴱⴱⴱ .23


MS 3.49 (1.09) .08 (3.33, 3.65)
Sch 3.12 (1.13) .08 (2.95, 3.28)
Dep 2.71 (1.05) .08 (2.56, 2.86)
Illness is severe enough for PAD 48.56ⴱⴱⴱ .2
MS 3.52 (1.11) .08 (3.36, 3.67)
Sch 3.20 (1.15) .08 (3.04, 3.36)
Dep 2.75 (1.10) .08 (2.59, 2.91)
Patient is rational enough for PAD 61.51ⴱⴱⴱ .25
MS 3.83 (.89) .06 (3.71, 3.96)
Sch 3.06 (1.11) .08 (2.90, 3.22)
Dep 2.94 (1.13) .08 (2.78, 3.10)
Illness will respond to treatment in future 32.09ⴱⴱⴱ .15
MS 2.75 (.95) .07 (2.62, 2.89)
Sch 2.97 (1.03) .08 (2.82, 3.12)
Dep 3.35 (.95) .07 (3.21, 3.48)
Patient likely a burden on family/friends 40.25ⴱⴱⴱ .18
MS 2.83 (1.17) .09 (2.66, 3.00)
Sch 2.63 (1.22) .09 (2.45, 2.80)
Dep 2.20 (.99) .07 (2.05, 2.34)
Quality of life is likely to improve 57.08ⴱⴱⴱ .23
MS 2.58 (.98) .07 (2.44, 2.72)
Sch 2.81 (1.05) .08 (2.65, 2.96)
Dep 3.36 (.94) .07 (3.23, 3.50)
Note. PAD ⫽ Physician-assisted dying; MS ⫽ multiple sclerosis; Sch ⫽ schizophrenia; Dep ⫽ depression; CI ⫽ confidence interval.
ⴱⴱⴱ
p ⬍ .001.

the schizophrenia patient’s condition was viewed as distinctly illness would predict support for PAD was only partially sup-
severe enough to warrant PAD, less likely to respond to treatment, ported. Notably, stigma toward and level of contact with mental
more likely to be a burden on family/friends, and less likely to illness did not predict support of PAD for schizophrenia and
involve improvements in quality of life compared to depression. depression. Thus, in this study’s sample, internalized beliefs de-
Our third hypothesis that general attitudes toward PAD, religi- rived from experiences outside of personal prejudices/contact ap-
osity, stigma toward mental illness, and familiarity with mental pear to have contributed more to support of PAD for the mentally

Table 3
MANOVA Results: Pairwise Comparisons Between Illnesses

Illness Illness Mean Diff.


Measure 1 (I) 2 (J) (I ⫺ J) SEM 95% CI (U, L)
ⴱⴱⴱ
Level of PAD support MS Sch .37 .08 (.18, .56)
MS Dep .78ⴱⴱⴱ .08 (.60, .97)
Sch Dep .41ⴱⴱⴱ .06 (.26, .56)
Illness is severe enough for PAD MS Sch .32ⴱⴱⴱ .08 (.12, .51)
MS Dep .77ⴱⴱⴱ .08 (.57, .97)
Sch Dep .45ⴱⴱⴱ .07 (.28, .62)
Patient is rational enough for PAD MS Sch .77ⴱⴱⴱ .09 (.56, .99)
MS Dep .90ⴱⴱⴱ .09 (.68, 1.11)
Sch Dep .12 .08 (⫺.08, .32)
Illness likely to respond to treatment in the future MS Sch ⫺.22ⴱ .08 (⫺.40, ⫺.03)
MS Dep ⫺.6ⴱⴱⴱ .08 (⫺.78, ⫺.41)
Sch Dep ⫺.38ⴱⴱⴱ .07 (⫺.55, ⫺.20)
Patient likely a burden on family/friends MS Sch .21ⴱ .07 (.04, .37)
MS Dep .64ⴱⴱⴱ .08 (.45, .83)
Sch Dep .43ⴱⴱⴱ .07 (.26, .60)
Quality of life is likely to improve MS Sch ⫺.22ⴱ .08 (⫺.40, ⫺.04)
MS Dep ⫺.78ⴱⴱⴱ .08 (⫺.97, ⫺.59)
Sch Dep ⫺.56ⴱⴱⴱ .07 (⫺.73, ⫺.38)
Note. PAD ⫽ Physician-assisted dying; MS ⫽ multiple sclerosis; Sch ⫽ schizophrenia; Dep ⫽ depression;
CI ⫽ confidence interval.

p ⬍ .05. ⴱⴱⴱ p ⬍ .001.
300 DAVIDSON AND LYMBURNER

Table 4
Multiple Regression Results: Predictors of Support for PAD for Multiple Sclerosis

Predictor B SEB ␤ t 95% CI (U, L)


ⴱⴱⴱ
Believing patient’s illness is severe enough for PAD .61 .06 .62 10.08 (.49, .73)
Believing patient is rational enough for PAD .08 .06 .07 1.40 (⫺.03, .19)
Believing patient’s illness will be treatable in future ⫺.03 .07 ⫺.02 ⫺.36 (⫺.16, .11)
Believing patient will be a burden on family/friends if they continue to live .12 .04 .13 2.94ⴱⴱ (.04, .20)
Believing patient’s quality of life will improve if they continue to live ⫺.08 .07 ⫺.07 ⫺1.18 (⫺.22, .06)
General PAD attitude .02 .01 .09 1.69 (⫺.003, .04)
Intrinsic religiosity ⫺.02 .01 ⫺.09 ⫺2.22ⴱ (⫺.05, ⫺.003)
Stigma towards people w/mental illness ⫺.01 .01 ⫺.04 ⫺1.01 (⫺.04, .01)
Stigma towards mental illness disclosure .004 .01 .01 .31 (⫺.02, .03)
Level of contact w/mental illness ⫺.04 .01 ⫺.10 ⫺2.53ⴱ (⫺.06, ⫺.01)
Note. Model summary: F(10, 180) ⫽ 55.8, p ⬍ .001, R2 ⫽ .76. PAD ⫽ Physician-assisted dying.

p ⬍ .05. ⴱⴱ p ⬍ .01. ⴱⴱⴱ p ⬍ .001.

ill. Surprisingly, increased intrinsic religiosity predicted lower tient’s personal condition within the context of PAD. The
support of PAD for MS and depression, but not schizophrenia. It finding that stigma did not impact our participants’ decisions
seems unlikely that those with strong religious beliefs would perhaps indicates that these preconceptions were not necessar-
condemn PAD for some illnesses but permit it for others. Thus, ily prejudicial in nature. For example, although schizophrenia is
this finding would require replication to determine its validity. often correctly perceived as a more debilitating and less treat-
Another finding requiring further investigation is that general able illness than depression, this generalisation does not hold
attitudes toward PAD only predicted support of PAD for depres- true for all individual cases. When asked to rate the severity of
sion. each patient’s particular illness on a scale from 1–10, ratings
Karesa and McBride (2016) found low support of PAD for between the illnesses did not differ significantly. Yet, when
the patient in their mental illness vignette, though 28.9% of the asked whether the illness was severe enough to warrant PAD,
surveyed psychologists were neutral or supported PAD for the differences in ratings did occur. This discrepancy suggests that
patient. Considering that PAD for the mentally ill is rarely up individuals may be relying more on internalized schemas for
for discussion, they were unsurprised with this finding. Build- each illness, rather than the specific facts associated with each
ing on this argument, we suggested that psychologists’ experi- patient’s personal condition. If true, reliance on said internal-
ences with and duty to prevent harm to mentally ill patients ized schemas serves as an additional barrier to encouraging
likely served as an additional barrier to supporting PAD for the participants to focus on patient-specific circumstances con-
patient in the vignette. Naturally, our undergraduate sample is veyed in the vignettes.
collectively less experienced with mentally ill individuals than Collectively, the results suggest that participants viewed MS,
Karesa and McBride’s (2016) sample of psychologists, which schizophrenia, and depression as distinct entities with regard to
may partially explain why support of PAD for mentally ill support for PAD. Participants were more likely to support PAD
patients was comparatively more moderate in the present study. for physical illness than mental illness. However, it was also
However, we hold a similar conclusion to Karesa and McBride clear that participants neither condemned the notion of extend-
(2016)—while participants in the present study were asked to ing PAD to mental illness as a whole, nor treated the two mental
respond specifically to the depicted individuals’ symptomatol- illnesses alike with regard to rationale for support of PAD.
ogy, preconceptions about and traditional practices involving While the Angus Reid Institute (2016) poll found support of
each illness likely still coloured their perceptions of each pa- PAD for the mentally ill to be generally low, the present study

Table 5
Multiple Regression Results: Predictors of Support for PAD for Schizophrenia

Predictor B SEB ␤ t 95% CI (U, L)

Believing patient’s illness is severe enough for PAD .57 .06 .58 8.89ⴱⴱⴱ (.44, .69)
Believing patient is rational enough for PAD .01 .05 .09 2.05ⴱ (.003, .19)
Believing patient’s illness will be treatable in future ⫺.14 .06 ⫺.13 ⫺2.26ⴱ (⫺.27, ⫺.02)
Believing patient will be a burden on family/friends if they continue to live .09 .04 .10 2.20ⴱ (.01, .18)
Believing patient’s quality of life will improve if they continue to live ⫺.01 .06 ⫺.01 ⫺.22 (⫺.14, .11)
General PAD attitude .02 .01 .09 1.75 (⫺.003, .05)
Intrinsic religiosity ⫺.01 .01 ⫺.05 ⫺1.10 (⫺.03, .01)
Stigma towards people w/mental illness ⫺.02 .01 ⫺.05 ⫺1.18 (⫺.04, .01)
Stigma towards mental illness disclosure .004 .01 .01 .31 (⫺.02, .03)
Level of contact w/mental illness .01 .01 .02 .45 (⫺.02, .04)
Note. Model summary: F(10, 179) ⫽ 57.38, p ⬍ .001, R2 ⫽ .76. PAD ⫽ Physician-assisted dying.

p ⬍ .05. ⴱⴱⴱ p ⬍ .001.
PHYSICIAN-ASSISTED DYING FOR THE MENTALLY ILL 301

Table 6
Multiple Regression Results: Predictors of Support for PAD for Depression

Predictor B SEB ␤ t 95% CI (U, L)


ⴱⴱⴱ
Believing patient’s illness is severe enough for PAD .42 .06 .43 7.10 (.30, .53)
Believing patient is rational enough for PAD .17 .05 .18 3.61ⴱⴱⴱ (.08, .26)
Believing patient’s illness will be treatable in future ⫺.17 .06 ⫺.15 ⫺2.96ⴱⴱ (⫺.29, ⫺.06)
Believing patient will be a burden on family/friends if they continue to live .12 .05 .11 2.53ⴱ (.03, .22)
Believing patient’s quality of life will improve if they continue to live ⫺.10 .06 ⫺.08 ⫺1.63 (⫺.21, .2)
General PAD attitude .30 .01 .13 2.68ⴱⴱ (.01, .05)
Intrinsic religiosity ⫺.02 .01 ⫺.09 ⫺2.13ⴱ (⫺.04, ⫺.01)
Stigma towards people w/mental illness .001 .01 .003 .95 (⫺.02, ⫺.02)
Stigma towards mental illness disclosure .001 .01 .003 .09 (⫺.02, .02)
Level of contact w/mental illness .01 .01 .01 .37 (⫺.02, .03)
Note. Model summary: F(10, 176) ⫽ 59.29, p ⬍ .001, R2 ⫽ .77. PAD⫽ Physician-assisted dying.

p ⬍ .05. ⴱⴱ p ⬍ .01. ⴱⴱⴱ p ⬍ .001.

found support that could be described as low-to-moderate, status, competence, and prospects for the future. Thus, despite
which may suggest that individuals are slightly more open to potential response bias resulting from preconceived stereotypes
PAD for the mentally ill when faced with specific, severe cases. for each illness, and limitations in generalizability inherent to
On the other hand, the sample used in the present study con- the vignette approach, vignettes describing individual patients
sisted primarily of young adults, a group that tends to show remain the most realistic and fair method of evaluating attitudes
more positive attitudes toward PAD. In the present study, toward PAD.
variations were found between illnesses in predictors of support
for PAD. For example, it appears that more factors were con- Looking Forward
sidered when determining level of support for PAD for depres- While an abundance of research has measured attitudes to-
sion, perhaps suggesting that the decision regarding the depres- ward PAD among the public, as well as psychiatrists and other
sion patient was more difficult. In light of these findings, future physicians, little research has assessed the opinions of psychol-
research on this subject would do well to recognise the unique ogists, perhaps due to their general lack of direct involvement
implications of PAD for specific mental illnesses, in addition to with PAD. Karesa and McBride (2016) take an early step in
those surrounding PAD for the mentally ill as a whole. addressing this gap, but a larger literature base on this subject
would be required to make an informed judgment on psychol-
Limitations ogists’ attitudes toward PAD for the mentally ill. The nature of
Due to limitations in resources and contacts, we collected psychotherapy differs from other medical treatments in the
data from undergraduate students, though we also see merit in degree of rapport needed between caregiver and patient (Appel,
collecting data from physicians and/or psychiatrists, and share 2007). Psychologists are highly intimate with mental illness—
Karesa and McBride’s (2016) values regarding obtaining psy- arguably more so than any other profession. Thus, while the
chologists’ unique perspectives on PAD for the mentally ill. opinions of the public and medical experts are undoubtedly
Our sample of undergraduate students served as a proxy for the useful, psychologists’ opinions on this issue hold unique value.
general public, and future related studies would benefit from a It would be particularly advantageous to directly compare the
more precise assessment of the general public’s thoughts on this attitudes of mental illness experts (psychologists) to those of the
issue. Furthermore, a topic as provocative as PAD may have general public, and those of individuals who have the greatest
caused participants to concede to the social desirability bias or potential to be involved with or perform PAD (physicians).
other demand characteristics, although collecting data online Collectively, sampling from these populations would provide a
may have reduced the presence of these demand characteristics, great breadth of information on attitudes toward PAD for the
as participants may have felt more confident behind the veil of mentally ill. Future research assessing attitudes toward a wider
increased anonymity. However, performing online data collec- range of illnesses would paint a more accurate picture of how
tion is a limitation in itself, as having less control over the and why people differentiate physical and mental illness with
survey completion process adversely allows participants to con- regard to support for PAD. There is great diversity between and
sult with online resources or family members during survey within mental illnesses, and thus the present study serves a
completion, and so forth. Perhaps the greatest limitation of this secondary purpose of instigating more comprehensive investi-
study is that the employed vignettes represent a small handful gations of the subject—particularly in Canada and other nations
of different illnesses, and merely individual expressions of said that will consider extending a PAD right to the mentally ill in
illnesses. Karesa and McBride’s (2016) research manages a the future.
similar issue in their usage of two vignettes to represent termi-
Conclusion
nal and mental illness. Yet, PAD is not a procedure based
purely off diagnostic classification of the illness, but rather one Any changes to civil rights—particularly those that involve
that must also account for the patient’s personal quality-of-life life and death—warrant analysis to determine public opinion.
302 DAVIDSON AND LYMBURNER

Karesa and McBride (2016) opened an important door in re- Conformément aux hypothèses primaires, les personnes souffrant
searching Canadian psychologists’ attitudes toward a PAD right de schizophrénie et de dépression ont reçu les plus faibles niveaux
for mentally ill individuals. The present study also addresses a de soutien relativement à l’aide médicale à mourir, étant perçues
large gap in the literature base concerning attitudes toward PAD comme étant assujetties à moins de souffrances, de rationalité et de
for the mentally ill, and is one of few studies to investigate traitements inutiles en comparaison avec les personnes souffrant
specific rationales for support of PAD. Such combined research de sclérose en plaques. Notre étude apporte des éléments supplé-
efforts aid us in gaining further insight into how people differ- mentaires sur les façons selon lesquelles les gens distinguent les
entiate physical and mental illnesses, as well as adding to the maladies mentales et physiques. Notre discussion ajoute également
literature examining factors that affect perceptions toward men- une perspective canadienne à un sujet urgent, qui jusqu’à mainte-
tal illness. Our study suggests that people view PAD as less nant, n’a pas fait l’objet d’enquêtes approfondies.
warranted for those with mental illness, due to perceptions that
these illnesses are not severe enough, involve less rationality, Mots-clés : aide médicale à mourir, maladie mentale, schizophré-
and are less futile compared to physical illness. Furthermore, nie, dépression, sclérose en plaques.
the results suggest that people may rely more on internalized
schemas about mental illness as opposed to patient-specific
facts when forming opinions/making decisions regarding PAD. References
It is of the utmost importance that patients with mental illness American Psychiatric Association. (2013). Diagnostic and statistical man-
retain maximum autonomy and endure minimal suffering. Mea- ual of mental disorders (5th ed.). Washington, DC: Author.
suring opinions on this topic contributes to the discussion of Angermeyer, M. C., & Dietrich, S. (2006). Public beliefs about and
whether allowing PAD for the mentally ill aids in the preser- attitudes towards people with mental illness: A review of population
vation of these values. While neither positive nor negative studies. Acta Psychiatrica Scandinavica, 113, 163–179. http://dx.doi
attitudes toward PAD for the mentally ill are inherently incor- .org/10.1111/j.1600-0447.2005.00699.x
rect, mental illness is highly misunderstood and stigmatized by Angus Reid Institute. (2016). Physician-assisted dying: Canadians reject
certain Commons committee recommendations. Retrieved from http://
the public. Thus, if public opinion is influencing the contexts
angusreid.org/wp-content/uploads/2016/03/2016.04.01-Physician-
surrounding PAD for the mentally ill (decisions, referrals, etc.), Assisted-Suicide.pdf
it is important to determine whether these attitudes are formed Appel, J. M. (2007). A suicide right for the mentally ill? A Swiss case
for compassionate, well-informed reasons. Attaining a greater opens a new debate. The Hastings Center Report, 37, 21–23. http://dx
understanding of the rationales that inform end-of-life decisions .doi.org/10.1353/hcr.2007.0035
for the mentally ill brings us closer to ensuring fair treatment Bahm, A., & Forchuk, C. (2009). Interlocking oppressions: The effect
for all who suffer. of a comorbid physical disability on perceived stigma and discrimi-
nation among mental health consumers in Canada. Health & Social
Care in the Community, 17, 63–70. http://dx.doi.org/10.1111/j.1365-
Résumé 2524.2008.00799.x
Benabou, R., & Tirole, J. (2011). Laws and norms (No. w17579). National
En juin 2016, le Canada se joignait à une poignée de nations ayant
Bureau of Economic Research. Retrieved from http://cadmus.eui.eu/
légalisé l’aide médicale à mourir. Or, étant donné que la loi bitstream/handle/1814/18135/MWP_LS_B%E9nabou_Tirole_2011_05
restreint le recours à l’aide médicale à mourir aux malades en .pdf?sequence⫽1
phase terminale, plusieurs luttent pour obtenir le droit à l’aide Berghmans, R., Widdershoven, G., & Widdershoven-Heerding, I. (2013).
médicale à mourir dans les cas de maladie chronique invalidante, Physician-assisted suicide in psychiatry and loss of hope. International
y compris mais sans s’y limiter, les maladies mentales graves. La Journal of Law and Psychiatry, 36, 436 – 443. http://dx.doi.org/10.1016/
présente analyse sert à évaluer et à poursuivre la discussion de j.ijlp.2013.06.020
l’aide médicale à mourir au Canada pour les personnes souffrant Bevacqua, F., & Kurpius, S. R. (2013). Counseling students’ personal
de maladies mentales, tel qu’introduite par Karesa and McBride values and attitudes toward euthanasia. Journal of Mental Health Coun-
(2016), à présenter et comparer les résultats de nos propres recher- seling, 35, 172–188. http://dx.doi.org/10.17744/mehc.35.2.10109542
4625024p
ches et à favoriser un discours continu de pensées à ce sujet.
Biggs, H., & Diesfeld, K. (1995). Assisted suicide for people with depres-
Karesa and McBride (2016) ont sondé des psychologues concer- sion: An advocate’s perspective. Medical Law International, 2, 23–37.
nant un rôle éventuel qu’ils pourraient exercer au niveau du http://dx.doi.org/10.1177/096853329500200102
processus de l’aide médicale à mourir ainsi que sur leurs attitudes Parliament of Canada. (2016). Bill C-14 : An Act to amend the Criminal
vis-à-vis l’aide médicale à mourir. Nous évaluons leur méthodolo- Code and to make related amendments to other Acts (medical assistance
gie et leurs observations en proposant des façons selon lesquelles in dying). Retrieved from http://www.parl.gc.ca/HousePublications/
les futures enquêtes au niveau de l’attitude des psychologues Publication.aspx?DocId⫽8183660&Language⫽E&Mode⫽1
envers l’aide médicale à mourir pourrait être améliorée. Ayant mis Bolt, E. E., Snijdewind, M. C., Willems, D. L., van der Heide, A., &
en œuvre ces suggestions, notre propre étude a analysé les attitudes Onwuteaka-Philipsen, B. D. (2015). Can physicians conceive of per-
de n⫽201 étudiants canadiens de premier cycle vis-à-vis l’aide forming euthanasia in case of psychiatric disease, dementia or being
tired of living? Journal of Medical Ethics, 41, 592–598. http://dx.doi
médicale à mourir par rapport à deux maladies mentales (schizo-
.org/10.1136/medethics-2014-102150
phrénie, dépression) en comparaison avec l’aide médicale à mourir Brown, S. M., Elliott, C. G., & Paine, R. (2013). Withdrawal of nonfutile
liée à une maladie physique (sclérose en plaques). À l’aide d’un life support after attempted suicide. The American Journal of Bioethics,
schéma de mesures répétitives, les participants étaient invités à lire 13, 3–12. http://dx.doi.org/10.1080/15265161.2012.760673
des vignettes représentant des individus souffrant gravement de la Canadian Bar Association. (2016). Re: Medical assistance in dying—
sclérose en plaques, de la schizophrénie ou de la dépression. Advance requests, mature minors and persons with mental illness.
PHYSICIAN-ASSISTED DYING FOR THE MENTALLY ILL 303

Retrieved from http://www.cba.org/CMSPages/GetFile.aspx?guid⫽ Health Care Providers (OMS-HC). BMC Psychiatry, 12, 62. http://dx
3b89b7f9-4710-4531-9bf1-b975bdbe3f11 .doi.org/10.1186/1471-244X-12-62
Canadian Mental Health Association. (2012). Mental health for all fact Koenig, H. G., & Büssing, A. (2010). The Duke University Religion Index
sheet: Mental health is everyone’s concern. Retrieved from http:// (DUREL): A five-item measure for use in epidemiological studies.
mentalhealthweek.cmha.ca/files/2013/03/CMHA_MHW2012_Men Religions, 1, 78 – 85. http://dx.doi.org/10.3390/rel1010078
tal_Health_for_All_ENG_Final.pdf Koenig, H., Parkerson, G. R., Jr., & Meador, K. G. (1997). Religion index
Carter v. Canada, 5 Supreme Court of Canada. (2015). Retrieved from for psychiatric research. The American Journal of Psychiatry, 154,
http://scc-csc.lexum.com/scc-csc/en/page.do?location⫽important- 885– 886. http://dx.doi.org/10.1176/ajp.154.6.885b
notices.html Kouwenhoven, P. S., Raijmakers, N. J., van Delden, J. J., Rietjens, J. A.,
Chaudoir, S. R., Earnshaw, V. A., & Andel, S. (2013). “Discredited” versus Schermer, M. H., van Thiel, G. J., . . . van der Heide, A. (2013).
“discreditable”: Understanding how shared and unique stigma mecha- Opinions of health care professionals and the public after eight years of
nisms affect psychological and physical health disparities. Basic and euthanasia legislation in the Netherlands: A mixed methods approach.
Applied Social Psychology, 35, 75– 87. http://dx.doi.org/10.1080/ Palliative Medicine, 27, 273–280. http://dx.doi.org/10.1177/
01973533.2012.746612 0269216312448507
Cholbi, M. J. (2013). The terminal, the futile, and the psychiatrically Levy, T. B., Azar, S., Huberfeld, R., Siegel, A. M., & Strous, R. D. (2013).
disordered. International Journal of Law and Psychiatry, 36, 498 –505. Attitudes towards euthanasia and assisted suicide: A comparison be-
http://dx.doi.org/10.1016/j.ijlp.2013.06.011 tween psychiatrists and other physicians. Bioethics, 27, 402– 408. http://
Claxton-Oldfield, S., & Miller, K. (2015). A study of Canadian hospice dx.doi.org/10.1111/j.1467-8519.2012.01968.x
palliative care volunteers’ attitudes toward physician-assisted suicide. Lindblad, A., Löfmark, R., & Lynöe, N. (2008). Physician-assisted suicide:
American Journal of Hospice & Palliative Medicine, 32, 305–312. A survey of attitudes among Swedish physicians. Scandinavian Journal
http://dx.doi.org/10.1177/1049909114523826 of Public Health, 36, 720 –727. http://dx.doi.org/10.1177/140349
Corrigan, P. W., Lurie, B. D., Goldman, H. H., Slopen, N., Medasani, K., 4808090163
& Phelan, S. (2005). How adolescents perceive the stigma of mental Lindblad, A., Löfmark, R., & Lynöe, N. (2009). Would physician-assisted
illness and alcohol abuse. Psychiatric Services, 56, 544 –550. http://dx suicide jeopardize trust in the medical services? An empirical study of
.doi.org/10.1176/appi.ps.56.5.544 attitudes among the general public in Sweden. Scandinavian Journal of
Craig, A., Cronin, B., Eward, W., Metz, J., Murray, L., Rose, G., . . . Public Health, 37, 260 –264. http://dx.doi.org/10.1177/140349480
Vergara, M. E. (2007). Attitudes toward physician-assisted suicide 8098918
among physicians in Vermont. Journal of Medical Ethics, 33, 400 – 403. McCormack, R., Clifford, M., & Conroy, M. (2012). Attitudes of UK
http://dx.doi.org/10.1136/jme.2006.018713 doctors towards euthanasia and physician-assisted suicide: A systematic
Danyliv, A., & O’Neill, C. (2015). Attitudes towards legalising physician literature review. Palliative Medicine, 26, 23–33. http://dx.doi.org/10
provided euthanasia in Britain: The role of religion over time. Social .1177/0269216310397688
Science & Medicine, 128, 52–56. http://dx.doi.org/10.1016/j.socscimed McCormack, R., & Fléchais, R. (2012). The role of psychiatrists and
.2014.12.030 mental disorder in assisted dying practices around the world: A review
Dembo, J. S. (2010). Addressing treatment futility and assisted dying in of the legislation and official reports. Psychosomatics, 53, 319 –326.
psychiatry. Journal of Ethics in Mental Health, 5, 1–3. http://dx.doi.org/10.1016/j.psym.2012.03.005
Dembo, J. S. (2013). Are decisions made ‘in the throes’ of treatment- Mental Health Commission of Canada. (2014). Why investing in mental
refractory mental illness truly invalid? The American Journal of Bioeth- health will contribute to Canada’s economic prosperity and to the
ics, 13, 16 –18. http://dx.doi.org/10.1080/15265161.2012.760677 sustainability of our health care system. Retrieved from http://strategy
Emanuel, E. J., Fairclough, D., Clarridge, B. C., Blum, D., Bruera, E., .mentalhealthcommission.ca/pdf/case-for-investment-en.pdf
Penley, W. C., . . . Mayer, R. J. (2000). Attitudes and practices of U.S. Modgill, G., Patten, S. B., Knaak, S., Kassam, A., & Szeto, A. C. (2014).
oncologists regarding euthanasia and physician-assisted suicide. Annals Opening Minds Stigma Scale for Health Care Providers (OMS-HC):
of Internal Medicine, 133, 527–532. http://dx.doi.org/10.7326/0003- Examination of psychometric properties and responsiveness. BMC Psy-
4819-133-7-200010030-00011 chiatry, 14, 120. http://dx.doi.org/10.1186/1471-244X-14-120
Finch, J. (1987). The vignette technique in survey research. Sociology, 21, Moskowitz, E. H. (1996). Mental illness, physical illness, and the legal-
105–114. http://dx.doi.org/10.1177/0038038587021001008 ization of physician-assisted suicide. The Fordham Urban Law Journal,
Groenewoud, J. H., van der Maas, P. J., van der Wal, G., Hengeveld, 24, 781–794.
M. W., Tholen, A. J., Schudel, W. J., & van der Heide, A. (1997). Peacock, M. A., Heath, W. P., & Grannemann, B. D. (2001). Attitudes
Physician-assisted death in psychiatric practice in the Netherlands. The toward physician-assisted suicide: Effects of physician background,
New England Journal of Medicine, 336, 1795–1801. http://dx.doi.org/ patient prognosis and patient mental health status. Psychology, Crime &
10.1056/NEJM199706193362506 Law, 7, 217–242. http://dx.doi.org/10.1080/10683160108401795
Ho, R. (1998). Assessing attitudes toward euthanasia: An analysis of the Rogers, J., Hengartner, M. P., Angst, J., Ajdacic-Gross, V., & Rössler,
subcategorical approach to right to die issues. Personality and Individual W. (2014). Associations with quality of life and the effect of psy-
Differences, 25, 719 –734. http://dx.doi.org/10.1016/S0191-8869(98) chopathology in a community study. Social Psychiatry and Psychi-
00108-1 atric Epidemiology, 49, 1467–1473. http://dx.doi.org/10.1007/s0
Holmes, E. P., Corrigan, P. W., Williams, P., Canar, J., & Kubiak, M. A. 0127-014-0841-0
(1999). Changing attitudes about schizophrenia. Schizophrenia Bulletin, Schoenberg, N. E., & Ravdal, H. (2000). Using vignettes in awareness
25, 447– 456. http://dx.doi.org/10.1093/oxfordjournals.schbul.a033392 and attitudinal research. International Journal of Social Research
Karesa, S., & McBride, D. (2016). A sign of the changing times? Methodology, 3, 63–74. http://dx.doi.org/10.1080/136455700294
Perceptions of Canadian psychologists on assisted death. Canadian 932
Psychology/Psychologie Canadienne, 57, 188 –192. http://dx.doi.org/ Schomerus, G., Schwahn, C., Holzinger, A., Corrigan, P. W., Grabe, H. J.,
10.1037/cap0000058 Carta, M. G., & Angermeyer, M. C. (2012). Evolution of public attitudes
Kassam, A., Papish, A., Modgill, G., & Patten, S. (2012). The development about mental illness: A systematic review and meta-analysis. Acta Psy-
and psychometric properties of a new scale to measure mental illness chiatrica Scandinavica, 125, 440 – 452. http://dx.doi.org/10.1111/j
related stigma by health care providers: The Opening Minds Scale for .1600-0447.2012.01826.x
304 DAVIDSON AND LYMBURNER

Seale, C. (2009). Legalisation of euthanasia or physician-assisted suicide: tal Disabilities, 38, 262–271. http://dx.doi.org/10.1016/j.ridd.2014.12
Survey of doctors’ attitudes. Palliative Medicine, 23, 205–212. http://dx .030
.doi.org/10.1177/0269216308102041 Westefeld, J. S., Sikes, C., Ansley, T., & Yi, H. (2004). Attitudes toward
Storch, E. A., Roberti, J. W., Heidgerken, A. D., Storch, J. B., Lewin, rational suicide. Journal of Loss and Trauma, 9, 359 –370. http://dx.doi
A. B., Killiany, E. M., . . . Geffken, G. R. (2004). The Duke Religion .org/10.1080/15325020490517682
Index: A psychometric investigation. Pastoral Psychology, 53, 175–181. Williams, E., Sands, N., Elsom, S., & Prematunga, R. K. (2015). Mental
http://dx.doi.org/10.1023/B:PASP.0000046828.94211.53 health consumers’ perceptions of quality of life and mental health care.
Vogel, L. (2015). Many doctors won’t provide assisted dying. Canadian Nursing & Health Sciences, 17, 299 –306. http://dx.doi.org/10.1111/nhs
Medical Association Journal, 187, E409 –E410. http://dx.doi.org/10 .12189
.1503/cmaj.109-5136
Werner, S. (2015). Public stigma and the perception of rights: Differences Received February 1, 2017
between intellectual and physical disabilities. Research in Developmen- Accepted February 13, 2017 䡲
Reproduced with permission of copyright owner.
Further reproduction prohibited without permission.

You might also like