Professional Documents
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Decline — A Public
Health Issue
Subjective Cognitive Decline (SCD) is the self- Some cognitive decline can occur as adults age,
reported experience of worsening or more frequent but frequently forgetting how to perform routine
confusion or memory loss.1,2 It is a form of cognitive tasks, for example, is not a normal part of aging
impairment and one of the earliest noticeable and can affect a person’s ability to live and function
symptoms of Alzheimer’s disease and related independently. Some people with cognitive decline
dementias. 2,3 SCD can have implications for living may be unable to care for themselves or perform
with and managing chronic disease, or performing activities of daily living, such as meal preparation,
everyday activities like cooking or cleaning.2 Because managing medical appointments, or managing
SCD is self-reported, it does not imply a diagnosis of their personal finances. Limitations in cognitive
cognitive decline by a health care professional.1,2 ability may impact a person’s ability to effectively
manage medication regimens which can result in
Cognition is a combination of processes in the brain poor health outcomes of comorbid chronic diseases
that includes the ability to learn, remember, and like heart disease or diabetes. By educating people
make judgments.1 When cognition is impaired, it can about modifiable risk factors, encouraging early
have a profound impact on an individual’s overall assessment and intervention, and understanding its
health and well-being.1 Cognitive decline can range impact on adults and their families, the health and
from mild cognitive impairment to dementia, a form well-being of many older adults may be improved.1,2
of decline in abilities severe enough to interfere with
daily life.1 Alzheimer’s disease is the most common
form of dementia.1-3
1
1. http://www.cdc.gov/aging/healthybrain/. Accessed 01/2017.
2. Jessen F, Amarigliod RE, et.al, Subjective Cognitive Decline Initiative (SCD-I) Working Group, A conceptual framework for research on
subjective cognitive decline in preclinical Alzheimer’s disease, Alzheimers Dement. 2014 November; 10(6): 844–852.
3. Alzheimer’s Association. 2018 Facts and Figures. Alzheimers Dement 2018;14(3):367-429.
Subjective Cognitive Decline is a
Growing Public Health Issue
These data were examined in two age groups, adults 45-64 years and
65 years of age and older, as well as by sex, race, Hispanic ethnicity,
chronic disease status, and other demographic characteristics.
2
4. Behavioral Risk Factor Surveillance System, Centers of Disease Control and Prevention 2015- 2016
5. Taylor CA, Bouldin ED, McGuire LC (2018). Subjective Cognitive Decline Among Adults Aged ≥45 Years — United States, 2015–2016. MMWR
Morb Mortal Wkly Rep, 67(27): 753–757.
Quartile Percentage
First Quartile
South Dakota
Prevalence of Subjective Cognitive Decline in the U.S.
6.0%
Connecticut 7.3%
Hawaii Figure 1: Adults 45 years of age and older with Subjective Cognitive Decline
8.5%
Maryland 8.5%
Minnesota 8.7%
Washington Montana North Dakota
Delaware 8.8% Minnesota
11.1% 9.8% 9.9%
8.7%
New Hampshire 8.9%
Vermont
Maine
9.8%
Virginia 8.9%
South Dakota Wisconsin 10.3%
Oregon9.1% 6.0% 10.9%
Kansas Idaho
11.1% 10.8% Wyoming
Iowa 9.3% Michigan New York New Hampshire 8.9%
11.2% 12.0%
Iowa 11.2% Massachusetts 9.3%
Massachusetts 9.3% Nebraska 9.3% Connecticut 7.3%
Nebraska 9.4%
9.4% Pennsylvania Rhode Island 11.5%
Illinois Indiana Ohio
9.6% 10.5% 10.7% New Jersey 9.7%
Nevada
Utah Colorado West Delaware 8.8%
16.3% 10.7% Kansas Missouri Virginia
Second Quartile 10.8% Maryland 8.5%
9.1% 10.4% Kentucky 10.0%
Virginia
California
12.1% Washington, DC 12.1%
Illinois
11.7%
9.6% 8.9%
New Jersey 9.7% Oklahoma Tennessee North Carolina
New Mexico 13.6%
Arkansas 13.6% 10.7%
Arizona
Montana 9.8% 12.5% 16.2%
13.4% South Carolina
Mississippi
12.1%
Vermont 9.8%
15.2% Alabama
12.9%
Georgia
11.2%
5.3-9.4%
North Dakota 9.9% Texas
13.1%
West Virginia 10.0% Louisiana
14.6%
9.5-10.7%
Maine 10.3%
Third Quartile
Colorado 10.8%
Idaho 10.8%
Wisconsin 10.9%
During the past 12 months, have you experienced
Oregon 11.1%
confusion or memory loss that is happening more
often or is getting worse?
Washington 11.1%
Georgia 11.2%
Florida 11.3% • The prevalence of SCD among adults aged 65 years and older
Rhode Island 11.5% is 11.7% compared to 10.8% among adults 45-64 years of age.
California 11.7%
Michigan 12.0%
• The prevalence of SCD is 11.3% among men compared to
10.6% among women.
4th Quartile
• The prevalence of SCD differs among racial/ethnic groups,
District of Columbia 12.1%
10.9% of Whites report SCD compared to 12.8% of Blacks/
Kentucky 12.1%
African Americans, 11.0% of Hispanics, and 6.7% of Asians
South Carolina 12.1%
and Pacific Islanders.
New Mexico 12.5%
Alabama 12.9% • L
ower prevalence of SCD is reported in adults with more years
Texas 13.1% of formal education.
Arizona 13.4%
Oklahoma 13.6%
Tennessee 13.6%
Louisiana 14.6%
Mississippi 15.2%
Arkansas 16.2%
Nevada 16.3%
First Quartile
Hawaii
Utah
Percentage of Adults Living Alone with Subjective
20.0%
22.0%
Nevada 23.0%
Figure 2: Adults 45 years of age and older with Subjective Cognitive Decline who live alone
Illinois 23.9%
Michigan 24.4%
Maryland 29.6%
Alaska 33.0-52.2%
Arkansas
29.3%
29.8%
Hawaii No data available
20.0%
Third Quartile Puerto Rico
40.7%
New Hampshire 29.9%
Montana 30.3% How many adults aged 18 and older live in your
Indiana 30.4% household? How many children less than 18 years of
Louisiana 30.8% age live in your household?
Virginia 31.0%
Oklahoma 31.5% Older adults who live alone can be at risk for poor health
Georgia 31.6% outcomes, are less likely to use health services, and are more
Florida 32.2% vulnerable to self-neglect and fall-related injuries than those living
North Carolina 32.5% with others.6,7 Older adults who live alone report more unmet
Iowa 32.9% needs such as managing money, medications, mobility, and some
Ohio 32.9% activities of daily living.6,7
Kansas 34.7% • The prevalence of living alone among adults with SCD differs
New Jersey 34.7% among racial/ethnic groups. Of those with SCD, 30.4% of
Mississippi 35.7% Whites live alone compared to 35.5% of Blacks/African
Vermont 35.8% Americans, 18.3% of Hispanics, and 15.3% of Asians and
District of Columbia 36.6% Pacific Islanders.
Oregon 37.6%
Wisconsin 52.2%
First Quartile
Hawaii 33.8
Nebraska
Wyoming
Percentage of Adults with Subjective Cognitive Decline, who
36.1
37.4
Idaho
Iowa
health care professional
38.4
39.6
Texas 41.1
Washington Montana North Dakota
Minnesota
Arkansas
47.5% 41.6
48.6% 40.7%
44.3%
California 41.6 Vermont
Maine
45.7%
Arizona 41.7 South Dakota Wisconsin 54.4%
Oregon 43.3% 44.8%
Utah 43.2 Idaho
46.8% 38.4% Wyoming
37.4%
Michigan New York New Hampshire 47.7%
Iowa 43.8% 49.7% Massachusetts 54.8%
Nebraska 39.6% Connecticut 49.5%
Second Quartile
36.1% Pennsylvania Rhode Island 51.6%
Illinois Indiana Ohio
South Dakota 43.3 47.3% 43.8% 47.3% New Jersey 40.2%
Nevada
Utah Colorado West Delaware 47.6%
50.4% 43.2% Kansas Missouri Virginia
Indiana 43.8 46.2% Maryland 54.2%
45.2% 51.5% Kentucky 47.6%
Virginia
Michigan California 43.8
47.1% Washington, DC 50.0%
41.6% 51.7%
Minnesota 44.3 Oklahoma Tennessee North Carolina
New Mexico 44.3%
Arkansas 46.0% 45.6%
Arizona
Oklahoma 44.3
46.4% 41.6%
41.7% South Carolina
Wisconsin 44.8 Mississippi
45.7%
Mississippi 44.9
44.9% Alabama
49.0%
Georgia
40.0%
33.8-43.2%
Texas
41.1%
Kansas 45.2 Louisiana
38.3%
43.3-45.9%
North Carolina 45.6
Colorado 46.2
Oregon 46.8
Alaska 47.0
Kentucky 47.1
Illinois
Have you
47.3
or anyone else discussed your confusion or memory loss with a health care
Ohio professional?
47.3
Washington 47.5
Delaware
Researchers
47.6
have found that few adults with SCD discussed their confusion or memory loss with a health
West Virginia
care professional.
47.6
7-9
In fact, the prevalence of cognitive decline identified in community surveys is over
New Hampshire
twice that
47.7
reported in medical records of general practitioners.8, 9 Opportunities for improvement exist for
increased screening, diagnosis, and identification of treatable cause(s).9
4th Quartile
• Less than half of adults with SCD (45.3% of adults aged 45 years and older) reported discussing
Montana 48.6
Alabama
symptoms
49.0
of confusion or memory loss with a health care professional.
Connecticut
• Among
49.5
persons reporting SCD, 48.8% of those aged 45 to 64 years reported discussing their memory loss
New York
or confusion
49.7
with a health care professional compared to 39.8% of persons aged 65 years and older.
District of Columbia 50.0
Rhode Island
• The 51.6
percentage of those who discussed SCD with a health care professional varies by race and ethnicity.
Virginia
Among
51.7
Whites, 46.0% reported discussing SCD with a health care professional compared to 45.3% of
Maryland
Blacks/African
54.2
Americans, 40.2% of Hispanics and 34.1% of Asians and Pacific Islanders.
Maine 54.4
Massachusetts 54.8
5
Pennsylvania No Data Available
8. Buckley BF, Salingab MM, et.al., Subjective Cognitive Decline from a Phenomenological Perspective: A Review of the Qualitative Literature, J
Alzheimer’s Disease 48(2015) S125–S140
9. Waldorff FB, et.al. If you don’t ask (about memory), they probably won’t tell. J Fam Pract. 2008 Jan;57(1):41-4.
Quartile Percentage
First Quartile
Alaska 19.2
California 20.3
Wyoming 22.8
Figure 4:23.1Adults 45 years of age and older with Subjective Cognitive Decline who report having coronary heart
District of Columbia
Illinois 28.2
Florida
29.3%
28.6-31.3%
South Carolina 28.4
Alaska 31.4-40.5%
Montana 28.5 19.2%
Utah 28.5 Hawaii No data available
21.4%
Puerto Rico
30.3%
Third Quartile
Vermont 28.9
Florida 29.3
Idaho Has a29.3doctor, nurse or other health professional ever told you that you had one of the
North Dakota following:
29.3 Coronary heart disease (including angina and/or myocardial infarction)?
Massachusetts Has a29.8doctor, nurse or other health professional ever told you that you a stroke?
Michigan 29.9
Indiana 33.5 • One in four (26.3%) women with SCD reported having coronary heart disease or
Texas 34.0 stroke, compared to nearly one-third (31.3%) of men.
Arkansas 34.7
Delaware 35.7 • The prevalence of CHD among adults with SCD is 25.7% in adults who
Oklahoma 35.8 completed at least some post high school education or higher compared to
Missouri 37.0 31.7% among adults with a high school degree and 31.0% among adults with
Mississippi 37.4 less than a high school degree.
West Virginia 38.1
** Respondents were classified as having coronary heart disease if they reported experiencing a heart attack (i.e.,
Kentucky 40.5 myocardial infarction) or angina
First Quartile
Hawaii 55.2
California 55.3
Minnesota 59.5
Nebraska 61.9
Alaska 69.9-82.7%
57.3%
Third Quartile Hawaii No data available
55.2%
New York 66.2
Puerto Rico
Washington 66.2 69.3%
Virginia 66.5
Arkansas 67.1
Louisiana 67.1
Florida Multiple69.4
chronic diseases (two or more) have been found to be associated with increased cognitive
Delaware decline.12-14
69.8 As the number of chronic diseases increases, the management of these conditions becomes
Utah increasingly
69.8 complex, which may lead to a greater need for assistance. The presence of chronic diseases
includes the report of at least one of the following: heart attack, coronary heart disease, stroke, asthma,
4th Quartile
cancer, arthritis, or diabetes.
Kansas 69.9
Maine • More69.9
than two-thirds (66.2%) of adults with SCD and have two or more chronic diseases.
Indiana 70.1
Ohio
• More70.2
than two-thirds (69.1%) of adults 65 years of age and older have both SCD and two or more chronic
Illinois
diseases,
71.1
compared to 64.3% of adults 45-64 years of age.
Alabama
• With 72.4
respect to sex, 70.7% of women report SCD and having 2 or more chronic diseases compared to
Oklahoma 72.9
61.2% of men.
Missouri 73.6
Mississippi 75.6
Tennessee 75.6
Kentucky 82.7
About how many days during the past 30 days was your mental
health not good? (14 or more days = frequent mental distress)
8
15. Self-Reported Frequent Mental Distress Among Adults -- United States, 1993-1996, MMWR May 01, 1998 / 47(16);325-331.
16. Anderson L, et.al. Demographic and Health Status Differences Among People Aged 45 or Older With and Without Functional Difficulties
Related to Increased Confusion or Memory Loss, 2011 Behavioral Risk Factor Surveillance. Prev Chronic Dis 2015;12:140429
Call to Action
S ubjective Cognitive Decline (SCD) is a public health issue and public health has a role in alleviating
its impact. Below are some of the actions that can be taken to improve the health and well-being
of persons with SCD. For additional actions, refer to The Healthy Brain Initiative: State and Local Public
Health Partnerships to Address Dementias, The 2018-2023 Road Map.17
1. Educate the public and health care professionals about brain health and the burden of SCD.
2. Increase awareness that dementia, such as Alzheimer’s disease, is not a normal part of aging.
3. Raise awareness about the best available evidence on dementia (including detection) and dementia
caregiving, including risk reduction.
4. Use this report and other analyses to make informed decisions and policies and promote the role of
public health in addressing SCD as a priority.
5. Increase awareness about the importance of managing chronic diseases, including conditions associated
with coronary heart disease or stroke, among people with SCD and at all stages of dementia.
6. Encourage patients and health care professionals to discuss SCD during routine medical office visits.
Technical Information
The Behavioral Risk Factor Surveillance System (BRFSS) is the nation’s premier system of health-related
telephone surveys that collect state data about U.S. residents regarding their health-related risk behaviors,
chronic health conditions, and use of preventive services. Established in 1984 with 15 states, BRFSS now
collects data in all 50 states as well as the District of Columbia and three U.S. territories. BRFSS completes
more than 450,000 adult interviews each year, making it the largest and longest continuously conducted health
survey system in the world.
CDC’s Behavioral Risk Factor Surveillance System (BRFSS) helps states survey U.S. adults regarding a wide
range of health issues and behaviors that affect their health. The crucial information gathered through this
state-based telephone surveillance system is used by national, state, and local public health agencies to identify
populations that might be most at risk and to monitor the need for and the effectiveness of various public health
interventions.
Although the BRFSS is a useful tool for assessing cognitive decline in the older adult population, it has some
limitations: it excludes people who do not have telephones or are in institutions such as nursing homes; it may
underrepresent people who are severely impaired because of the functional capacity required to participate in
the survey; and responses to BRFSS are self-reported and therefore have not been confirmed by a healthcare
provider. Despite these limitations, the BRFSS is a uniquely powerful tool to provide the prevalence of cognitive
decline and related health issues among older community-dwelling U.S. adults, due to its large sample size and
proven reliability and validity.
The BRFSS is administered and supported by the Division of Population Health, National Center for Chronic
Disease Prevention and Health Promotion, CDC. For more information, please visit http://www.cdc.gov/brfss.
9
17. https://www.cdc.gov/aging/healthybrain/roadmap.htm 2018.
© 2018 National Association of Chronic Disease Directors.
The mark “CDC” is owned by the US Dept. of Health and Human Services and is used with permission. Use of this logo is not an
endorsement by HHS or CDC of any particular product, service, or enterprise.