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Social Science & Medicine 71 (2010) 2150e2161

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Social Science & Medicine


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Correlates and consequences of internalized stigma for people living with mental
illness: A systematic review and meta-analysis
James D. Livingston a, b, *, Jennifer E. Boyd c
a
Forensic Psychiatric Services Commission, BC Mental Health & Addiction Services, Provincial Health Services Authority, 70 Colony Farm Road,
Port Coquitlam, British Columbia, Canada V3C5X9
b
School of Criminology, Simon Fraser University, British Columbia, Canada
c
Department of Psychiatry, University of California/San Francisco and San Francisco VA Medical Center, California, USA

a r t i c l e i n f o a b s t r a c t

Article history: An expansive body of research has investigated the experiences and adverse consequences of internal-
Available online 12 October 2010 ized stigma for people with mental illness. This article provides a systematic review and meta-analysis of
the extant research regarding the empirical relationship between internalized stigma and a range of
Keywords: sociodemographic, psychosocial, and psychiatric variables for people who live with mental illness. An
Stigma exhaustive review of the research literature was performed on all articles published in English that
Mental illness
assessed a statistical relationship between internalized stigma and at least one other variable for adults
Meta-analysis
who live with mental illness. In total, 127 articles met the inclusion criteria for systematic review, of
Systematic review
which, data from 45 articles were extracted for meta-analyses. None of the sociodemographic variables
that were included in the study were consistently or strongly correlated with levels of internalized
stigma. The review uncovered a striking and robust negative relationship between internalized stigma
and a range of psychosocial variables (e.g., hope, self-esteem, and empowerment). Regarding psychiatric
variables, internalized stigma was positively associated with psychiatric symptom severity and nega-
tively associated with treatment adherence. The review draws attention to the lack of longitudinal
research in this area of study which has inhibited the clinical relevance of findings related to internalized
stigma. The study also highlights the need for greater attention on disentangling the true nature of the
relationship between internalized stigma and other psychosocial variables.
Ó 2010 Elsevier Ltd. All rights reserved.

Introduction understanding, or explicit articulation, of its conceptual ingredients


and boundaries. Manzo (2004) asserted that stigma is consistently
Stigma is an insidious social force that has been associated with “underdefined and overused” (p. 401). In a similarly critical fashion,
an endless number of attributes, circumstances, health conditions, Prior, Wood, Lewis, and Pill (2003) highlighted the adverse conse-
and social groups e with the literature primarily concentrated on quences of using stigma as an all-encompassing concept: “Stigma,
race, sexuality, mental illness, and HIV/AIDS (Manzo, 2004). The we suggest, is creaking under the burden of explaining a series of
focus of this paper is on the stigma of mental illness. More specif- disparate, complex and unrelated processes to such an extent that
ically, it investigates the correlates and consequences of internal- use of the term is in danger of obscuring as much as it enlightens”
ized stigma, also known as self-stigma, for people living with (p. 2192). This is particularly problematic as governments and
mental illness. professional organizations mobilize resources toward preventing
Conceptual clarity regarding ‘stigma’ is lagging behind the and managing “this thing called stigma” (Manzo, 2004, p. 413).
burgeoning body of research regarding its effects. As others have Erving Goffman’s conceptualization of ‘stigma’ has germinated
highlighted (Link & Phelan, 2001; Parker & Aggleton, 2003), social over forty years of a blossoming body of theory and research. In his
scientists too often study stigma without an apparent seminal work, Stigma: Notes on the Management of Spoiled Identity,
Goffman (1963) referred to stigma as: “an attribute that is deeply
discrediting” (p. 3), “an undesired differentness” (p. 5), and some-
* Corresponding author. Forensic Psychiatric Services Commission, BC Mental
thing that reduces the bearer “from a whole and usual person to
Health & Addiction Services, Provincial Health Services Authority, 70 Colony Farm
Road, Port Coquitlam, British Columbia, Canada V3C5X9. Tel.: þ1 6045247725. a tainted, discounted one” (p. 3). The utility of Goffman’s concep-
E-mail address: jlivingston@forensic.bc.ca (J.D. Livingston). tualization for understanding health-related stigma within the

0277-9536/$ e see front matter Ó 2010 Elsevier Ltd. All rights reserved.
doi:10.1016/j.socscimed.2010.09.030
J.D. Livingston, J.E. Boyd / Social Science & Medicine 71 (2010) 2150e2161 2151

context of contemporary society has been challenged (Sayce, 1998; this definition, the present study defines internalized stigma as
Scambler, 2006). For example, Weiss, Ramakrishna, and Somma a subjective process, embedded within a socio-cultural context,
(2006) have outlined several shortcomings in Goffman’s formula- which may be characterized by negative feelings (about self),
tion, including: the outdated language and concepts, the over- maladaptive behaviour, identity transformation, or stereotype
generalized application of stigma to an array of circumstances endorsement resulting from an individual’s experiences, percep-
unrelated to health, the failure to account for variability in stigma tions, or anticipation of negative social reactions on the basis of
experiences, the incompatibility of his analytic framework with their mental illness. The strength of this definition is that it
today’s multicultural or pluralistic societies, and the over-emphasis of recognizes the macro-socio-cultural forces that influence this
dyadic social interactions at the expense of structural considerations. subjective, individualized process (Yang et al., 2007). As well, this
More recently, authors have reframed the concept to improve its conceptualization pays attention to the multi-faceted dimensions
relevance for studying the social dimensions of public health prob- of internalized stigma (Link & Phelan, 2001), which involves
lems in the context of modern globalization and multiculturalism interacting processes at the individual and societal levels. This
(Corrigan, Kerr, & Knudsen, 2005; Corrigan, Watson, & Barr, 2006; definition encompasses the various conceptualizations of inter-
Herek, 2004; Herek, 2007; Herek, Gillis, & Cogan, 2009; Link & nalized stigma embodied in studies that were included in the
Phelan, 2001). In particular, contemporary conceptualizations have present review (see below).
paid greater attention to the socio-cultural processes and structures An expansive body of qualitative and quantitative research has
that sustain stigma, as well as the factors (including features of the investigated the experiences of internalized stigma for people with
disease) that produce variability in how it is experienced and mental illness. The fruition of this effort has manifested in the
expressed (Herek, 2007; Parker & Aggleton, 2003; Scambler, 2009; accumulation of findings regarding the factors and domains that
Weiss et al., 2006). are implicated in the process of internalized stigmatization. It is
The literature articulates three interacting levels of stigma: social, clear that, by impeding recovery and compounding suffering,
structural, and internalized (Corrigan, Kerr et al., 2005; Herek, 2007; internalized stigma presents a serious problem for many people
Herek et al., 2009). Social stigma, also known as public or enacted who live with mental illness. In order to learn from this rapidly
stigma, exists at the group (i.e., meso) level and describes “the growing body of literature, it is time to take stock of these findings
phenomenon of large social groups endorsing stereotypes about and and identify the existence of trends in research relating to inter-
acting against a stigmatized group” (Corrigan, Kerr et al., 2005, p. nalized stigma. Reviews have been completed with other stigma-
179). Structural stigma, also called institutional stigma, exists at the tizing conditions, including HIV (Logie & Gadalla, 2009) and
systems (i.e., macro) level and refers to the rules, policies, and a combination of others (Mak, Poon, Pun, & Cheung, 2007; Van
procedures of private and public entities in positions of power that Brakel, 2006). As well, narrative reviews have been performed on
restrict the rights and opportunities of people with mental illness stigma research relating to mental illness. For example, Link, Yang,
(Corrigan, Kerr et al., 2005; Corrigan, Watson et al., 2005). In this Phelan, and Collins (2004) provided a comprehensive review of the
form of stigma, “cultural ideology [is] embodied in institutional tools that researchers have used to assess mental illness stigma
practices” (Herek, 2007, p. 907) so that differentials in power and among several groups, including the general population, children
status are legitimated, and disadvantage and social exclusion are and youth, health professionals, and people with mental illness.
perpetuated (Corrigan, Kerr et al., 2005; Herek, 2007; Herek et al., More recently, Brohan, Slade, Clement, and Thornicroft (2010)
2009). published a review of measures that are designed to assess
Internalized stigma, also referred to as self or felt stigma, exists at stigma experiences among people with mental illness. A narrative
the individual (i.e., micro) level and, in the context of mental illness, review by Overton and Medina (2008) describes the effects of
can be described as a process whereby affected individuals endorse various forms of mental illness stigma (e.g., social, structural);
stereotypes about mental illness, anticipate social rejection, however, the findings related to internalized stigma are not
consider stereotypes to be self-relevant, and believe they are reviewed in a comprehensive or systematic manner.
devalued members of society (Corrigan, Kerr et al., 2005; Corrigan The present review represents the first systematic synthesis of
& Watson, 2002, Corrigan et al., 2006; Ritsher & Phelan, 2004). research findings relating specifically to internalized stigma of
Further distinctions have been made between felt and self stigma mental illness. The present study evaluates the sociodemographic,
(Herek, 2007; Herek et al., 2009). Whereas felt stigma describes psychosocial, and psychiatric variables that quantitative research
negative consequences resulting from an individual’s awareness of has demonstrated to have an empirical relationship with inter-
how society perceives, and will likely act toward, the group to nalized stigma for people who live with mental illness. In addition
which they belong (e.g., homosexual, mentally ill), self-stigma to providing a solid foundation for stigma researchers, this
refers to the process of an individual accepting society’s negative advancement will help policy-makers and program-planners to
evaluation and incorporating it into his or her own personal value understand the outcomes that they should reasonably expect to
system and sense of self. Similarly, distinctions have been made affect by targeting internalized stigma. For clinicians, it is important
between perceived stigma (awareness of stereotypes) and self- to know the extent to which internalized stigma adversely influ-
stigma, with the latter being defined as: “when the person inter- ences therapeutic outcomes and recovery processes for people with
nalizes the stigma and applies it to people with mental illness in mental illness. Moreover, answering the question of whether
general (stereotype agreement) or to him or herself (self-concur- internalized stigma of mental illness is particularly prevalent
rence)” (Corrigan et al., 2006, p. 882). The processes and factors that within certain populations is an important consideration for health
are involved in internalized stigma for people with mental illness promotion and prevention strategies.
have been elucidated in several models, including Corrigan and
Watson’s (2002) situational model and Link, Struening, Cullen, Method
Shrout, and Dohrenwend’s (1989) modified labelling theory.
Weiss et al. (2006) define health-related stigma as: “a social Study selection
process, experienced or anticipated, characterized by exclusion,
rejection, blame, or devaluation that results from experience, The search strategy included locating relevant articles by
perception or reasonable anticipation of an adverse social judg- searching several electronic databases, including PsychINFO,
ment about a person or group” (p. 280). Drawing primarily from PubMed, and Web of Science. Web of Science includes the Arts &
2152 J.D. Livingston, J.E. Boyd / Social Science & Medicine 71 (2010) 2150e2161

Humanities Citation Index (1975epresent), the Social Citation Initial search results 1
Index Expanded (1900epresent), and the Social Sciences Citation k = 3,127
Index (1956epresent). An inclusive search strategy that used broad
Titles excluded
keywords was purposely chosen in order to ensure a comprehen- k = 2,777
sive scan of the literature. In January 2010, the keywords ‘stigma’
AND ‘mental illness’ were entered into the databases, and English- Abstracts & full articles
reviewed 2
language titles were obtained. Additional titles were retrieved by k = 350
manually searching the references of all included full-text articles.
Publications not meeting inclusion criteria and
Selected stigma experts reviewed the reference list, but this process excluded k = 242
did not generate additional titles.
i. Not primary research k = 72
ii. Not focused on adults with mental illness k = 67
Inclusion criteria iii. No measure of internalized stigma k = 93
iv. No statistical relationship reported k = 9
v. Full-text article unavailable k = 1
An article was included for a full review if it met all of the Publications meeting
following criteria: (i) constituted primary research published in inclusion criteria
k = 108
a scholarly or professional journal, (ii) focused on the perspective of
adults diagnosed with a mental illness, (iii) included quantitative Publications identified
measures pertaining to internalized stigma or self-stigma and at by reference searching
k = 19
least one other variable (such as an outcome or demographic
variable), (iv) reported on the statistical relationship between the
two variables, (v) could be retrieved by contacting the author or Publications included in
systematic review
through university library services, and (vi) was written in English. k = 127
The aforementioned conceptualizations and definitions of inter-
Publications not meeting meta-analysis inclusion
nalized stigma were used to screen articles for inclusion. For criterion and excluded k = 82
purpose of this paper, ‘mental illness’ was defined as an Axis I
clinical disorder as specified by the Diagnostic and Statistical i. No included variable studied k = 8
ii. No established stigma measure used k = 42
Manual of Mental Disorders (American Psychiatric Association, iii. No r or t values reported k = 32
2000). Articles were excluded if their sample consisted of adults
Publications included in
diagnosed with substance-related disorders, but without any other
meta-analysis
comorbid Axis I mental illnesses. Articles were also excluded if they k = 45
were purely descriptive; that is, they did not examine associations
between internalized stigma and any other variable. The inclusion
1
criteria for the systematic review did not contain restrictions on Includes duplicates
2
publication date or methodological rigor. Excludes duplicates
Additional inclusion criteria were used for the meta-analyses. A Fig. 1. Search results and article selection procedures.
variable was selected for meta-analysis when the majority of
studies that had examined a particular variable indicated it was references for titles that appeared to be about internalized stigma,
significantly related with internalized stigma (see Table 3). The which generated an additional 19 articles that were included in the
rationale for this criterion was that small, non-significant effect review. In total, 127 articles were included in the systematic review
sizes were expected for variables that had not demonstrated and 45 articles were included in the meta-analyses.
a significant relationship with internalized stigma in the majority of
studies. This assumption was confirmed by analyzing one variable
(age) that failed to meet this meta-analysis inclusion criteria, with Data extraction
the results indicating a small, non-significant effect size with
internalized stigma (r ¼ .004, p > .05). Another rationale for this Data on the following variables were coded and entered into
meta-analysis inclusion criterion was that non-significant correla- a spreadsheet: author, publication date, country, sample size, study
tions were often mentioned in the articles without an indication of design, utilization of stigma intervention, length of follow-up period,
their statistical value. Therefore, large amounts of missing data living arrangement, gender, psychiatric diagnoses, average age in
were expected for these variables. An article was selected for years, marital status, employment status, average illness duration in
inclusion in the meta-analyses if it satisfied the following criteria: years, ethnicity, education, internalized stigma measures, and main
(i) measured internalized stigma using an established instrument, findings.
(ii) contained a variable that was selected for meta-analysis on the Several studies used multiple subscales or measures of a single
basis of the aforementioned criteria, and (iii) reported the statistical variable (e.g., internalized stigma, quality of life), which often
relationship using correlation coefficients or t-test values. resulted in mixed findings regarding the relationship (e.g., signifi-
As illustrated in Fig. 1, the initial search generated 3127 titles cance, strength, direction) between the two variables. In such cases,
that were reviewed by one author for relevance. The large number data on the variable’s total score was used. This approach is consis-
of titles that were initially retrieved was a consequence of the tent with that which was employed in a meta-analysis of HIV
comprehensive, inclusive search strategy. A total of 2777 titles were internalized stigma (Logie & Gadalla, 2009). If a total score was not
excluded, primarily because they did not constitute primary reported, then the findings relating to the dominant subscale or
research or they pertained to other forms of stigma (e.g., social measure e that is, the one that most closely resembled the construct
stigma). The abstracts and full-text articles of the remaining 350 and contained the most items e were used. A dominant subscale or
titles were thoroughly reviewed and 242 titles were excluded for measure of a particular variable could not be determined in eight
failing to meet one of the aforementioned inclusion criteria. The studies with mixed findings. In these cases, any subscale that was
remaining 108 titles were hand inspected by reading the full-text significantly related to the variable of interest was selected for
articles to locate other relevant articles and by reviewing the inclusion in the analysis. For example, a study by Griffiths,
J.D. Livingston, J.E. Boyd / Social Science & Medicine 71 (2010) 2150e2161 2153

Christensen, and Jorm (2008) found that gender was significantly The analyses in Table 4a and b indicates that the test of homoge-
related to the ‘personal stigma’ subscale of the Depression Stigma neity is significant for several variables. For this reason, and because
Scale, but was not related to the ‘perceived stigma’ subscale. Since the methodological characteristics of the included studies are vari-
neither of these subscales can be considered dominant, the personal able enough to have potentially influenced the results, the random
stigma subscale was selected for analysis. This approach ensured effects model was deemed to be more appropriate than the fixed
that a meta-analysis for a particular variable did not include multiple effect model (Borenstein, Hedges, Higgins, & Rothstein, 2009). The
effect sizes from a single study, which would violate the assumption random effects model is appropriate for heterogeneous effect size
of independent effect sizes (Quintana & Minami, 2006). distributions, since it assumes that the variability among the study-
level effect sizes results from both sampling error and between-study
variability (Berkeljon & Baldwin, 2009). One advantage of using
Data analysis a random effects model is that, unlike the fixed effects model,
statistical inferences may be made about the population of studies
The first step of the analysis involved selecting variables that were beyond those that are included in the meta-analysis (Berkeljon &
commonly assessed across the 127 included studies. For each variable Baldwin, 2009; Hedges & Vevea, 1998). Therefore, random effect
that was selected, descriptive analyses were performed to examine sizes were calculated for all of the variables.
the proportion of studies that detected a relationship between
internalized stigma and another variable at a .05 significance level. Results
Next, the direction (positive or negative) of each statistically signifi-
cant relationship was ascertained. Dummy variables, as are indicated Research characteristics
on Table 3, were used to determine the direction of a relationship;
however they were not used to ascertain the existence of a significant The reported characteristics of the 127 studies included in the
relationship. The meta-analysis inclusion criteria were satisfied by 45 review and the 45 studies used in the meta-analysis are outlined in
studies. Data were extracted and entered into the Comprehensive Table 1. Additional detail about the studies, including the outcome
Meta-analysis Version 2 software program for calculation of effect measures that were used, can be found in Supplementary Tables A
sizes for each variable (http://www.meta-analysis.com). Effect sizes and B. The description of study characteristics (below) concentrates
are an indication of the strength and magnitude of the relationship on the 45 meta-analysis studies.
between the variable of interest and internalized stigma (Berkeljon &
Baldwin, 2009). Since the purpose of the present study was to
Table 1
investigate the relationship between two variables, the most Research characteristics of the 127 studies included in the review and the 45 studies
appropriate effect size statistic was the correlation coefficient included in the meta-analysis.
(Quintana & Minami, 2006).
Characteristic All studies (k ¼ 127) Meta-analysis
Two separate analyses were performed on the variables that studies (k ¼ 45)
were included in the meta-analysis. For the first meta-analyses,
k Valid % k Valid %
effect sizes were calculated based on observed, or uncorrected,
Publication date
correlation coefficients. The second set of meta-analyses was per-
Pre 2000 13 10.2 1 2.2
formed after correcting for attenuation (Muchinsky, 1996). Consis- 2000 or later 114 89.8 44 97.8
tent with the suggestion by Hedges and Olkin (1985), study-level
Study design
effect sizes were individually adjusted to account for measurement Crossesectional 105 82.7 39 86.7
error (internal consistency) in both the predictor and dependent Longitudinal 22 17.3 6 13.3
variables. When information was available, coefficients of internal
Stigma intervention
consistency were taken directly from the included articles. If internal Yes 6 4.7 2 4.4
consistency was not reported in the article, then the values were No 121 95.3 43 95.6
obtained from another publication or, alternatively, by averaging
Region of study
reliability coefficients for measures of the same type across the North America 58 45.7 20 44.4
included studies (Mabe & West, 1982). Spearman’s (1910) equation Europe 42 33.1 15 33.3
for double correction was used to correct for measurement unreli- Asia 19 15.0 8 17.8
Middle East 7 5.5 1 2.2
ability. While corrected effect sizes are described in the results
South America 2 1.6 0 0
section, both corrected and uncorrected effect sizes are presented in Africa 2 1.6 1 2.2
Table 4a and b. Australia 1 .8 0 0
The homogeneity and heterogeneity of correlations across
Study sites
studies was assessed using the Q statistic and the I2 index, respec- Single country 123 96.9 43 95.6
tively. The Q statistic indicates if the variability of effect sizes around Multiple countries 4 3.1 2 4.4
the mean is equivalent to that which would be expected due to
Sample size
sampling error in the effect size distribution (Berkeljon & Baldwin, 1 to 100 53 41.7 23 51.1
2009; Quintana & Minami, 2006). A significant Q statistic indicates 101 to 250 46 36.2 19 42.2
that an effect size distribution is heterogeneous, which suggests 251 to 500 14 11.0 3 6.7
500 to 1000 10 7.9 0 0
that effect size variability may result from study characteristics.
1000þ 4 3.1 0 0
Whereas the Q test indicates the existence of heterogeneity in
a meta-analysis, I2 provides an index to quantify the degree of Internalized stigma measures
DDS 46 39.2 21 46.7
heterogeneity. As a test of heterogeneity, the I2 has several advan-
ISMI 15 11.8 10 22.2
tages over the Q test, such as its intuitive interpretation and wide SSMIS 9 7.1 8 17.8
range of applications (Higgins, Thompson, Deeks, & Altman, 2003; CESQ 6 4.7 6 13.3
Huedo-Medina, Sanchez-Meca, Marin-Martinez, & Botella, 2006). DSS 4 3.1 2 4.4
SSAS 4 3.1 1 2.2
Heterogeneity using this index may be interpreted as low (I2 ¼ 25),
Other/self developed 47 37.0 0 0
medium (I2 ¼ 50), or high (I2 ¼ 75) (Higgins et al., 2003).
2154 J.D. Livingston, J.E. Boyd / Social Science & Medicine 71 (2010) 2150e2161

Indicative of the growing interest in the topic of internalized majority of participants were men (55.4%, N ¼ 3052). Nineteen
stigma for people living with mental illness, 97.8% (k ¼ 44) of the studies (42.2%) provided details on the ethnic diversity of their
studies were published in 2000 or later. Most of the studies used samples, with participants representing 56.6% (N ¼ 1171) Caucasian
a cross-sectional design (86.7%, k ¼ 39), with 13.3% (k ¼ 6) of and 43.4% (N ¼ 900) non-Caucasian ethnic backgrounds.
studies reporting longitudinal designs. Two (4.4%) studies provided In the nine (20.0%) studies that reported education level using
data on the effectiveness of interventions that are aimed at a secondary/high-school scheme, the majority of participants
addressing various aspects of internalized stigma; the remaining 43 (58.4%, N ¼ 1128) had at least a high school level of education. The
(95.6%) studies used naturalistic designs. The median sample size of 17 (37.8%) studies that reported the employment status of partici-
the included studies was 100 participants, ranging from 20 to 500 pants indicate that the majority (63.6%, N ¼ 1453) were unem-
participants. Half of the studies (51.1%, k ¼ 53) were carried out ployed. Marital status was indicated in 46.7% (k ¼ 21) of the studies,
with 100 or fewer participants. with most participants (70.7%, N ¼ 1724) reported to be unmarried.
The included English-language studies represent findings from While the majority of study participants (90.1%, N ¼ 4622, k ¼ 38)
15 different countries. North American studies, mostly from the lived in the community, 9.9% (N ¼ 509, k ¼ 9) of participants were
United States (k ¼ 18), accounted for 44.4% (k ¼ 20) of the studies hospital inpatients. It is worth mentioning that not all of the
included in the meta-analyses. Research conducted in European participants in the included studies were actively using mental
countries accounted for 33.3% (k ¼ 15) of total studies, with slightly health services.
more research generated from Sweden (k ¼ 5) than any other The psychiatric diagnoses of participants were indicated in 43
European country. Eight (17.8%) of the included studies were from (95.6%) of the studies, with more than half of the participants
Asian regions, primarily Hong Kong (k ¼ 6). One study was con- (54.3%, N ¼ 3221, k ¼ 36) diagnosed with a schizophrenia spectrum
ducted in the Middle East and one in Africa. disorder and 26.5% (N ¼ 1576, k ¼ 18) of the participants diagnosed
with a mood or anxiety disorder. For the 19 (42.2%) studies that
Sample characteristics provide data on illness duration, the average time that participants
had been living with a mental illness or had been using mental
The reported characteristics of the study participants are outline health services was 14.7 years (SD ¼ 6.7).
in Table 2. This section describes the participants included in the 45
meta-analysis studies. There was substantial variability between Internalized stigma measures
the studies concerning the level of detail provided about their
sample characteristics. It is recognized that finer-level detail about Measures of internalized stigma that were used in the included
the sample characteristics is desirable; however, broad categories studies are outlined in Table 1. This section describes the standard-
were relied on in this study in order to maximize the number of ized measures that were used in the 45 meta-analysis studies. The
studies contributing to the data reported below. The average age of numbers reported below include translated versions and slightly
participants across the studies was 41.1 years of age (SD ¼ 5.7). The modified versions of measures that were identified in the English-

Table 2
Sample characteristics of the 127 studies included in the review and the 45 studies included in the meta-analysis.

Characteristic All studies (k ¼ 127) Meta-analysis studies (k ¼ 45)

N Valid % (average) N Valid % (Average)


Gender k ¼ 117 k ¼ 44
Men 12,202 49.4 3052 55.4
Women 12,496 50.6 2454 44.6

Ethnicity k ¼ 55 k ¼ 19
Caucasian 7475 58.9 1171 56.6
Non-Caucasian 5210 41.1 900 43.4

Education k ¼ 31 k¼9
Less than high school 3074 35.1 803 41.6
High school or more 5681 64.9 1128 58.4

Employment k ¼ 42 k ¼ 17
Employed 2937 38.1 831 36.4
Unemployed 4763 61.9 1453 63.6

Marital status k ¼ 52 k ¼ 21
Married 3339 28.5 714 29.3
Not married 8392 71.5 1724 70.7

Psychiatric diagnoses k ¼ 111 k ¼ 43


Schizophrenia spectrum 9284 38.7 3221 54.3
Mood or anxiety 11,484 47.8 1576 26.5
Comorbid substance use 1866 7.8 358 6.0
Other 1366 5.7 781 13.2

Living arrangement k ¼ 113 k ¼ 40


Inpatient setting 3008 11.6 509 9.9
Community setting 22,844 88.4 4622 90.1

Average age in years k ¼ 108 k ¼ 43


22,232 41.4 yrs (SD 7.0) 5466 41.1 yrs (SD 5.7)

Average illness duration in years k ¼ 40 k ¼ 19


7136 13.6 yrs (SD 5.9) 2331 14.7 (SD 6.7)
J.D. Livingston, J.E. Boyd / Social Science & Medicine 71 (2010) 2150e2161 2155

language articles. Further detail about these measures may be found were commonly studied. The sections below begin with a descrip-
in a recently published narrative review (Brohan et al., 2010). tive analysis of all the studies that were included in the systematic
The most frequently used internalized stigma measure was the review, which is then followed by the results of independent meta-
DevaluationeDiscrimination Scale (DDS) (Link,1987; Link, Mirotznik, analyses that were performed on a subset of the studies.
& Cullen, 1991), which was used in 46.7% (k ¼ 21) of the included
studies. It is also the oldest measure of internalized stigma for persons Sociodemographic variables
with mental illness. The DDS is a 12-item measure that assesses the As shown in Table 3, none of the sociodemographic variables e
extent to which respondents believe that people with mental illness including, gender, age, education, employment, marital status,
will be devalued or discriminated against. Several of the included income, and ethnicity e have, within the body of included studies,
studies used modified versions of the DDS, including an 8-item scale demonstrated consistently significant relationships with internal-
(Link, Castille, & Stuber, 2008). Across the studies that used the DDS, ized stigma for people with mental illness. For example, the asso-
the average coefficient for internal consistency was a ¼ .83. ciation between gender and internalized stigma was evaluated in
The second most commonly used measure was the Internalized 38 (29.9%) studies, with non-significance (p > .05) established in
Stigma of Mental Illness scale (ISMI) (Ritsher [Boyd], Otilingam, & 81.6% (k ¼ 31) of those studies. Age was the sociodemographic
Grajales, 2003), which was used by 22.2% (k ¼ 10) of the included variable with the highest number of studies that had significant
studies. The ISMI is a 29-item questionnaire that assesses subjective findings (31.4%, k ¼ 11); however, the direction of the relationship
experiences of stigma using a total score and five subscale scores, was mixed in the studies, with higher levels of internalized stigma
including alienation, stereotype endorsement, discrimination expe- associated with being older in 36.4% (k ¼ 4) of the studies and being
riences, social withdrawal, and stigma resistance. There are younger in 63.6% (k ¼ 7) of the studies. Because none of the soci-
numerous foreign-language versions of the ISMI, and numerous odemographic variables was significantly related to internalized
versions pertaining to specific psychiatric and non-psychiatric stigma in the majority of studies, they were not included in the
conditions. Although all the articles that used the ISMI that were meta-analyses. Overall, the findings suggest that sociodemographic
included in the present review were published in English, the variables are neither consistently nor strongly correlated with
following language versions were used in collecting data from levels of internalized stigma.
participants of the included studies: Yoruba (Adewuya et al., 2009),
Chinese (Ho, Chiu, Lo, & Yiu, 2010), German (Sibitz, Unger, Psychosocial variables
Woppmann, Zidek, & Amering, 2009), and Hebrew (Werner, Aviv, & All of the psychosocial variables included in this review e
Barak, 2008). The average coefficient for internal consistency on including hope, self-esteem, empowerment/mastery, self-efficacy,
the ISMI within the included studies was a ¼ .85. quality of life, and social support/integration e were significantly
The Self-Stigma of Mental Illness Scale (SSMIS) (Corrigan et al., associated with internalized stigma in the majority of studies,
2006) was used in 17.8% (k ¼ 8) of the studies. The SSMIS ranging from 58% to 100%, within which they were examined (see
contains 40 items and includes four subscales, including stereotype Table 3). For example, self-esteem had been examined in 34 (26.8%)
awareness, stereotype agreement, stereotype self-concurrence, of the included studies, and was significantly associated with
and self-esteem decrement. A Chinese version of the SSMIS has internalized stigma in 30 (88.2%) of those studies. In addition, the
been developed and reported in several English-language articles direction of these relationships was consistently negative in all of
(Fung, Tsang, Corrigan, Lam, & Cheung, 2007). On average, studies the studies with significant findings. This consistent pattern indi-
that used the SSMIS reported an internal consistency coefficient cates that internalized stigma is negatively associated with a range
of a ¼ .84. of psychosocial variables.
Six (13.3%) studies measured internalized stigma using the An independent meta-analysis was performed on each of the
Consumer Experiences of Stigma Questionnaire (CESQ) (Dickerson, psychosocial variables. The results of each relationship are pre-
Sommerville, Origoni, Ringel, & Parente, 2002; Wahl, 1999). The sented in Table 4a and b according to the strength of their effect sizes.
CESQ has 21 items and 2 subscales that assess the degree to which High levels of internalized stigma were associated with hopeless-
an individual has perceived negative social reactions on the basis of ness (r ¼ .58, p < .001), poorer self-esteem (r ¼ .55, p < .001),
their mental illness in the past month. The subjective processes lowered empowerment/mastery (r ¼ .52, p < .001), reduced self-
that are measured by the CESQ are encapsulated by the concept of efficacy (r ¼ .54, p < .001), decreased quality of life (r ¼ .47,
internalized stigma as defined by the present study. Across the p < .001), and weakened social support/integration (r ¼ .28,
included studies, the average coefficient for internal consistency for p < .05). The meta-analyses confirm the strength and consistency of
the CESQ was a ¼ .78. findings within the included studies regarding the relationship
The Depression Stigma Scale (DSS) (Kanter, Rusch, & Brondino, between internalized stigma and these psychosocial variables.
2008) was used in two studies. The DSS measures the stigma of
depression using 32 items and five subscales, including general self- Psychiatric variables
stigma, secrecy, public stigma, treatment stigma, and stigmatizing Findings concerning the relationship between internalized
experiences. The average coefficient for internal consistency for the stigma and a range of psychiatric variables e including psychiatric
DSS was a ¼ .94. The Taiwanese Self-Stigma Assessment Scale symptom severity, psychiatric diagnosis, psychiatric hospitaliza-
(SASS) (Yen, Chen, Lee, Tang, Ko, et al., 2005; Yen, Chen, Lee, Tang, tions, illness duration, insight, treatment adherence, treatment
Yen, et al., 2005) was used in one study. The Taiwanese-SASS setting, functioning, and medication side effects e were mixed. The
includes 8 items that measure internalized stigma in Taiwanese relationship between psychiatric symptom severity and internalized
populations with mental illness. The one study in the meta-analysis stigma was examined in 47.2% (k ¼ 60) studies, making it the most
that used the SSAS reported a Cronbach’s a of .80 (Yen, Chen, et al., frequently studied relationship in this body of research literature.
2009; Yen, Lee, et al., 2009). Symptom severity had statistically significant, positive associations
with internalized stigma in 50 (83.3%) studies, and there were no
Correlates of internalized stigma studies that found a statistically significant negative relationship.
Treatment adherence was examined in eleven (8.7%) studies, with
Tables 3 and 4 provide an overview of the relationship between 63.6% (k ¼ 7) of those studies demonstrating a significant, negative
internalized stigma (as defined above) and other variables that correlation with internalized stigma. As indicated in Table 3, none of
2156 J.D. Livingston, J.E. Boyd / Social Science & Medicine 71 (2010) 2150e2161

Table 3
Relationship between sociodemographic, psychosocial, and psychiatric variables with internalized stigma (includes 127 studies).

Variables A. B. C. D. E.

Number of Non-significant Significant Positive Negative


studies (k ¼ 127) relationship relationship relationship relationship
(p > .05) (p < .05) (p < .05) (p < .05)

k % k % k % k % k %
Sociodemographic 47 37.0
Gender (1) 38 29.9 31 81.6 7 18.4 4 57.1 3 42.9
Age 35 27.6 24 68.6 11 31.4 4 36.4 7 63.6
Education 27 21.3 22 81.5 5 18.5 1 20.0 4 80.0
Employment (2) 14 11.0 10 71.4 4 28.6 0 .0 4 100.0
Marital status (3) 11 8.7 9 81.8 2 18.2 1 50.0 1 50.0
Income 10 7.9 8 80.0 2 20.0 0 .0 2 100.0
Ethnicity (4) 9 7.1 5 55.6 4 44.4 4 100.0 0 .0

Psychosocial 86 67.7
Self-esteem 34 26.8 4 11.8 30 88.2 0 .0 30 100.0
Quality of life 24 18.9 1 4.2 23 95.8 0 .0 23 100.0
Social support 12 9.4 5 41.7 7 58.3 0 .0 7 100.0
Empowerment 12 9.4 1 8.3 11 91.7 0 .0 11 100.0
Self-efficacy 8 6.3 0 .0 8 100.0 0 .0 8 100.0
Hope 5 3.9 0 .0 5 100.0 0 .0 5 100.0

Psychiatric 99 78.0
Symptom severity 60 47.2 10 16.7 50 83.3 50 100.0 0 .0
Diagnosis (5) 25 19.7 15 60.0 10 40.0 3 75.0 1 25.0
Illness duration 14 11.0 9 64.3 5 35.7 1 20.0 4 80.0
Hospitalizations 12 9.4 7 58.3 5 41.7 4 80.0 1 20.0
Insight 12 9.4 10 83.3 2 16.7 1 50.0 1 50.0
Treatment adherence 11 8.7 4 36.4 7 63.6 0 .0 7 100.0
Treatment setting (6) 10 7.9 7 70.0 3 30.0 2 66.7 1 33.3
Functioning 8 6.3 4 50.0 4 50.0 0 .0 4 100.0
Medication side effects 2 1.6 2 100.0 0 .0 na Na na na

(1) Columns D & E: 1 ¼ Men.


(2) Columns D & E: 1 ¼ Employed.
(3) Columns D & E: 1 ¼ Married.
(4) Columns D & E: 1 ¼ Non-Caucasian.
(5) Columns D & E: 1 ¼ Schizophrenia spectrum.
(6) Columns D & E: 1 ¼ Hospital inpatient.

the other psychiatric variables were significantly related with was associated with greater psychiatric symptom severity and
internalized stigma in the majority of studies. poorer treatment adherence.
Meta-analyses confirmed the two main findings described
above: that internalized stigma was moderately correlated with Longitudinal findings
symptom severity (r ¼ .41, p < .001) and treatment adherence Longitudinal research designs were employed in 22 (17.3%) of the
(r ¼ .38, p < .001). Therefore, a higher level of internalized stigma studies, with six of these studies included in the meta-analyses. The

Table 4
Meta-analysis of the correlations between internalized stigma and select variables for people with mental illness (includes 45 studies).

Factor Number of studies Number of participants Random effect size (95% CI) Homogeneity index, Q Between-study variability, I2
a. Corrected for attenuation
Hope*** 4 390 .58 (.67,.48) 5.77 47.99
Self-esteem*** 19 2366 .55 (.62,.46) 129.42*** 86.09
Empowerment*** 7 764 .52 (.63,.39) 30.98*** 80.63
Self-efficacy*** 7 698 .54 (.72,.29) 94.98*** 93.68
Quality of life*** 13 1583 .47 (.56,.36) 79.54*** 84.91
Symptom severity*** 22 2453 .41 (.33, .49) 116.84*** 82.03
Treatment adherence*** 7 949 .38 (.47,.28) 15.97** 64.43
Social support* 3 306 .28 (.50,.03) 10.08** 80.15

b. Not corrected for attenuation


Hope *** 4 390 .51 (.58,.43) 2.30 .00
Self-esteem *** 19 2366 .46 (.53,.39) 81.35** 77.87
Empowerment *** 7 764 .44 (.53,.33) 17.12* 64.95
Self-efficacy *** 7 698 .43 (.57,.27) 36.62** 83.62
Quality of life *** 13 1583 .38 (.47,.29) 48.89** 75.46
Symptom severity *** 22 2453 .34 (.27, .41) 76.87** 72.68
Treatment adherence *** 7 949 .31 (.39,.23) 10.46 42.63
Social support * 3 306 .23 (.41,.03) 5.84 65.78

*p < .05.
**p < .01.
***p < .001.
J.D. Livingston, J.E. Boyd / Social Science & Medicine 71 (2010) 2150e2161 2157

median follow-up period across all the longitudinal studies was six effects of internalized stigma is important, and preliminary
months, ranging from 1.25 months to 24 months. These studies evidence suggests that it can be done (Calmes et al., 2009; Griffiths
attempted to address questions such as: To what extent is internalized et al., 2004; Knight, Wykes, & Hayward, 2006; MacInnes & Lewis,
stigma dynamic (i.e., changeable) or static (i.e., unchangeable)? 2008). This evidence is good news, given earlier disappointments
Which outcomes does internalized stigma predict? Which variables (Link, Struening, Neese-Todd, Asmussen, & Phelan, 2002).
predict internalized stigma? The results of this review offer little support for directing inter-
Regarding the first question, only two of the longitudinal studies nalized stigma-reduction strategies toward certain target pop-
included in this review explicitly report significant changes in ulations on the basis of sociodemographic characteristics, since
internalized stigma over time e both following an intervention. consistent patterns regarding statistical relationships were not
Griffiths, Christensen, Jorm, Evans, and Groves (2004) found small detected. Many of the studies were unique and not directly compa-
but significant reductions in personal stigma following an internet- rable, which may have contributed to this finding. It is also probable
based intervention for people with depression. MacInnes and Lewis that this finding is an artifact of methodological limitations of the
(2008) also detected a significant reduction in self-stigma following included studies. Despite the fact that individuals exist on multiple,
the implementation of a structured, group-based, cognitive thera- intersecting axes of difference (e.g., race, gender, class, disability), the
peutic intervention. While elevated levels of internalized stigma internalized stigma research has primarily focused on how a single
might be expected subsequent to initial illness onset or diagnosis, factor or status influences and shapes peoples’ subjective experi-
or after discrimination experiences, none of the longitudinal ences. A major weakness of such a research approach is that it
studies have featured this type of event during the follow-up excludes important social categories at the expense of over-simpli-
period. fying the complexity of a person’s lived experience. Furthermore,
In relation to the second question, four studies have found that studies that have considered multiple labels or social categories tend
baseline levels of internalized stigma are negatively associated with to employ additive, rather than intersectional, analytic frameworks.
levels of self-esteem at follow-up. As well, single studies have found Limiting analyses to cumulative effects may miss important discov-
that baseline levels of internalized stigma are associated with the eries concerning the interlocking effects of multiple axes of oppres-
following variables at follow-up: increased service utilization, sion/domination on subjective experiences with internalized stigma.
greater unmet service needs, greater emotional discomfort, poorer The ideas embedded within the ‘intersectionality’ research paradigm
social adjustment, increased depressive symptom severity, and are well positioned to address this limitation (Burgess-Proctor, 2006;
poorer medication adherence. Regarding the question of which Davis, 2008; Hancock, 2007; Hankivsky & Cormier, 2009).
baseline variables predicted elevated levels of internalized stigma at This review found that psychosocial variables were robustly
follow-up, single studies have revealed the following variables: (and moderately to strongly) associated with internalized stigma,
increased perceptions of coercion, lower self-esteem, non-psychotic which is itself a psychosocial variable. One interpretation of this
disorder diagnosis, increased positive symptom severity, recent finding is that, as a group, psychosocial variables are conceptually
onset of illness combined with level of social support, and shame- intersecting and experientially intertwined. Indeed, authors
related negative associations of mental illness. continue to struggle with creating meaningful operational defini-
tions of amorphous constructs such as internalized stigma, self-
Discussion esteem, quality of life, and empowerment. Internalized stigma is
a socially constructed concept that carries many different mean-
The systematic review uncovered a large body of research that has ings. Consequently, internalized stigma was measured in slightly
examined associations between internalized stigma and other soci- different ways across the studies that were reviewed. Variability in
odemographic, psychosocial, and psychiatric variables. The results the definition of stigma is, in part, a consequence of the funda-
from 127 studies produced interesting findings in each of these areas, mental epistemological and ontological differences of those who
including a relatively small set of results from longitudinal studies. seek to define the term. Link and Phelan (2001) pointed out that
Regarding sociodemographic variables, the lack of consistency across conceptual variability also results from the complexity of the
disparate studies indicates that people with a wide range of charac- phenomenon and the array of circumstances to which stigma has
teristics, who also have a mental illness, are susceptible to internal- been applied. Campbell and Deacon (2006) emphasized the
ized stigma. Regarding psychosocial variables, the review uncovered complexity of stigma by describing it as “a phenomenon rooted in
a striking and robust negative relationship between internalized the individual’s psyche, yet constantly mediated by the material,
stigma and a range of variables, with the meta-analyses revealing political, institutional and symbolic contexts” (p. 416).
significant correlation coefficients that range from .28 to .58. This Because of their nebulous nature, psychosocial variables some-
analysis indicates that a higher level of internalized stigma is asso- times overlap with one another, which is apparent in how inter-
ciated with lower levels of hope, empowerment, self-esteem, self- nalized stigma has been defined and measured in the research
efficacy, quality of life, and social support. Regarding psychiatric literature. Conceptual overlap is evident in leading definitions of
variables, the review indicates that internalized stigma is positively internalized stigma. For example, one definition conceptualizes
associated with psychiatric symptom severity and is negatively internalized stigma as “the loss of self-esteem and self-efficacy that
associated with treatment adherence. occurs when people internalize the public stigma” (Corrigan, Kerr
Focusing on the body of longitudinal studies, the present review et al., 2005, p. 179). Measurement overlap is apparent in several
offered preliminary evidence to suggest that a high level of stigma items and subscales that are contained within instruments that are
has detrimental effects on a wide range of outcomes, with self- designed to measure internalized stigma. For example, the Self-
esteem being the most widely studied. The review of longitudinal Stigma of Mental Illness Scale includes a subscale, ‘self-esteem
studies also offers an early glimpse at several variables (e.g., coer- decrement’, that measures the degree to which “the person’s self-
cion, self-esteem, positive symptoms of psychosis) that may, with esteem is diminished due to concurrence with the negative belief”
additional confirmatory evidence, serve as predictors of internal- (Corrigan et al., 2006, p. 877). Perhaps the difficulty of compart-
ized stigma over time. Importantly, two studies included in this mentalizing psychosocial variables into neat categories reflects the
review have demonstrated that anti-stigma interventions are messy and entangled nature of people’s lived experiences. Because
associated with reductions in internalized stigma. Finding effective of conceptual and measurement issues in the literature, the find-
ways to assist people with mental illness manage and cope with the ings of this review can only suggest that these things called
2158 J.D. Livingston, J.E. Boyd / Social Science & Medicine 71 (2010) 2150e2161

‘psychosocial variables’ are related to “this thing called stigma” different constructs (Brohan et al., 2010), from the meta-analysis.
(Manzo, 2004, p. 413). Greater attention needs to be paid to dis- Lastly, the degree to which the main findings of the current review
entangling the true nature of the relationship between internalized are a function of methodological variance was not ascertained. As
stigma and the range of psychosocial variables that have been such, it is possible that internalized stigma appears to be more
identified in this review. highly related to psychosocial variables, in comparison with soci-
The results of the present study should be interpreted with odemographic and psychiatric variables, because of similarities in
caution given the dearth of experimental, longitudinal research in the way that they are assessed (i.e., self-report).
this area. It appears that what is now known about internalized
stigma has been predominately produced by naturalistic, cross- Conclusion
sectional studies. Thus far, self-esteem is the only variable that has
demonstrated a robust relationship with internalized stigma using People who live with mental illness are susceptible to feeling as
both cross-sectional and longitudinal research designs. Indeed, the though they are devalued and discredited members of society. The
lack of longitudinal research in this area of study is a significant present study has synthesized the research findings to date
research gap that has inhibited the clinical relevance of findings regarding the correlates and consequences of internalized stigma
related to internalized stigma. Given the abundance of cross- for people with mental illness. The most promising avenue for
sectional research that has been published to date, it is advisable future research inquiry appears to be investigating the longitudinal
that social scientists direct their resources and efforts to investi- relationship between internalized stigma and the range of
gating the relationship between internalized stigma and other psychosocial variables that were identified in this review. This area
variables over time. This is particularly important as stigma- of research would benefit from further conceptual, theoretical, and
reduction strategies for people with mental illness are being psychometric attention so that meaningful conclusions can be
developed and implemented without a solid empirical under- drawn from the relationship between internalized stigma and
standing of the longitudinal nature of internalized stigma. other psychosocial variables. Once a sufficient number of studies
has accumulated for a particular relationship (e.g., internalized
Limitations stigma and self-esteem), it is recommended that more detailed
analyses be performed to examine the role of moderator variables,
Several limitations need to be considered when interpreting the including those related to study design. Moreover, in addition to
findings of the present study. First, although a diverse set of ensuring basic study quality, researchers should consider the
countries and populations were represented in the review, the following recommendations based on the findings and limitations
study did not include published research in languages other than of previous studies: (a) measuring internalized stigma using
English. This restricts the cross-cultural generalizability of these established measures in order to maximize the ability to draw
findings. Second, the review excluded qualitative research studies, comparisons across studies, (b) using a longitudinal design with
which means that internalized stigma in this study has been repeated measures, (c) employing mixed method design that
approached and understood using a quantitative research para- incorporates both qualitative and quantitative components, and (d)
digm. A large body of qualitative research has made discoveries adopting an intersectional approach to understand the influence of
about subjective experiences of internalized stigma for people with multiple social categories on experiences of internalized stigma.
mental illness that would not have been revealed using quantita- Building a stronger longitudinal research foundation would
tive methods (e.g., Collins, von Unger, & Armbrister, 2008; Yang improve the potential for identifying people who are at risk for
et al., 2010). New insights would likely emerge by integrating developing a high level of internalized stigma. As well, additional
these qualitative results using meta-synthesis or narrative review high-quality, longitudinal research is urgently needed in order to
methods. Third is the potential for null or negative findings to be inform the development of effective, evidence-based clinical
under-represented on account of publication bias, since researchers strategies for addressing the internalized stigma of mental illness.
and academic journals have traditionally minimized the impor-
tance of these findings (Quintana & Minami, 2006). The present
study did not include unpublished studies that met all the other Acknowledgements
inclusion criteria, which may limit the accuracy of this synthesis of
extant findings on account of ‘file drawer’ effects. It is also possible We are grateful for the valuable feedback on an early draft of this
that the data extraction process introduced biases toward statisti- manuscript that was kindly provided by Dr. Steven P. Hinshaw. We
cally significant findings; consequently, non-significant findings would also like to thank the anonymous reviewers of Social Science
may be underreported. Fourth, the present study was largely & Medicine for their thoughtful comments.
exploratory, primarily based on observational studies, and focused
on bivariate correlation data. As such, we are not able to draw Appendix. Supplementary material
causal inferences between internalized stigma and the other vari-
ables that were examined. Supplementary data related to this article can be found online,
The fifth limitation is that the included studies measured at doi:10.1016/j.socscimed.2010.09.030
internalized stigma and other variables (e.g., quality of life, self-
esteem, symptom severity) using a variety of instruments. As
References1
a result, conclusions drawn from the systematic review and meta-
analyses findings are limited by the fact that the studies may have ** Adewuya, A. O., Owoeye, O. A., Erinfolami, A. R., Ogun, O. C., Dada, M. U., Bello-
assessed somewhat different constructs, or different domains of Mojeed, M. A., et al. (2009). Prevalence and correlates of poor medication
adherence amongst psychiatric outpatients in southwestern Nigeria. General
the same construct. While the meta-analysis inclusion criteria
Hospital Psychiatry, 31(2), 167e174.
attempted to address this potential problem, substantial variability
exists among the six established measures of internalized stigma.
For example, the use of a more narrow operational definition of 1
NOTE: References marked with one asterisk indicate studies included in the
internalized stigma may have resulted in excluding the CESQ or the systematic review. References marked with two asterisks indicate studies included
DDS, which some researchers have asserted are measures of in both the systematic review and meta-analysis.
J.D. Livingston, J.E. Boyd / Social Science & Medicine 71 (2010) 2150e2161 2159

American Psychiatric Association. (2000). Diagnostic and statistical manual of mental Link, B., & Phelan, J. C. (2001). Conceptualizing stigma. Annual Review of Sociology,
disorders e Text revision. (4th ed.). Washington, DC: Author. 27, 363e385.
Berkeljon, A., & Baldwin, S. A. (2009). An introduction to meta-analysis for * Link, B., Struening, E., Cullen, F. T., Shrout, P. E., & Dohrenwend, B. P. (1989).
psychotherapy outcome research. Psychotherapy Research, 19(4), 511e518. A modified labeling theory approach to mental disorders e an empirical
Borenstein, M., Hedges, L. V., Higgins, J. P. T., & Rothstein, H. R. (2009). Introduction assessment. American Sociological Review, 54(3), 400e423.
to meta-analysis. West Sussex, UK: John Wiley & Sons. ** Link, B., Struening, E. L., Neese-Todd, S., Asmussen, S., & Phelan, J. C. (2002). On
Brohan, E., Slade, M., Clement, S., & Thornicroft, G. (2010). Experiences of mental describing and seeking to change the experience of stigma. Psychiatric Reha-
illness stigma, prejudice and discrimination. BMC Health Services Research, bilitation Journal, 6, 201e231.
10(80). doi:10.1186/1472-6936-10-80. Link, B., Yang, L. H., Phelan, J. C., & Collins, P. Y. (2004). Measuring mental illness
Burgess-Proctor, A. (2006). Intersections of race, class, gender, and crime: future stigma. Schizophrenia Bulletin, 30(3), 511e541.
directions for feminist criminology. Feminist Criminology, 1(1), 27e47. Logie, C., & Gadalla, T. M. (2009). Meta-analysis of health and demographic corre-
Calmes, C. A., Lucksted, A., Drapalski, A., DeForge, B., Forbes, C., & Boyd, J. (2009, lates of stigma towards people living with HIV. AIDS Care, 21(6), 742e753.
November). Resisting internalized stigma: a cognitive-behavioral group intervention Mabe, P. A., & West, S. G. (1982). Validity of self-evaluation of ability: a review and
targeting internalized stigma associated with mental illness. Paper presented at the meta-analysis. Journal of Applied Psychology, 67, 280e396.
meeting of the Association for Behavioral and Cognitive Therapies, New York, NY. ** MacInnes, D. L., & Lewis, M. (2008). The evaluation of a short group programme
* Campbell, C., & Deacon, H. (2006). Unravelling the contexts of stigma: from to reduce self-stigma in people with serious and enduring mental health
internalisation to resistance to change. Journal of Community & Applied Social problems. Journal of Psychiatric and Mental Health Nursing, 15(1), 59e65.
Psychology, 16, 411e417. Mak, W. W., Poon, C. Y., Pun, L. Y., & Cheung, S. F. (2007). Meta-analysis of stigma
Collins, P. Y., von Unger, H., & Armbrister, A. (2008). Church ladies, good girls, and and mental health. Social Science & Medicine, 65(2), 245e261.
locas: stigma and the intersection of gender, ethnicity, mental illness, and Manzo, J. F. (2004). On the sociology and social organization of stigma: some eth-
sexuality in relation to HIV risk. Social Science & Medicine, 67(3), 389e397. nomethodological insights. Human Studies, 27(4), 401e416.
Corrigan, P., Kerr, A., & Knudsen, L. (2005). The stigma of mental illness: explanatory Muchinsky, P. M. (1996). The correction for attenuation. Educational and Psycho-
models and methods for change. Applied & Preventive Psychology, 11(3), 179e190. logical Measurement, 56(1), 63e75.
Corrigan, P., & Watson, A. (2002). The paradox of self-stigma and mental illness. Overton, S. L., & Medina, S. L. (2008). The stigma of mental illness. Journal of
Clinical Psychology e Science and Practice, 9(1), 35e53. Counseling and Development, 86(2), 143e151.
** Corrigan, P., Watson, A., & Barr, L. (2006). The self-stigma of mental illness: Parker, R., & Aggleton, P. (2003). HIV and AIDS-related stigma and discrimination:
implications for self-esteem and self-efficacy. Journal of Social and Clinical a conceptual framework and implications for action. Social Science & Medicine,
Psychology, 25(8), 875e884. 57(1), 13e24.
Corrigan, P., Watson, A., Heyrman, M., Warpinski, A., Gracia, G., Slopen, N., et al. Prior, L., Wood, F., Lewis, G., & Pill, R. (2003). Stigma revisited, disclosure of
(2005). Structural stigma in state legislation. Psychiatric Services, 56(5), 557e563. emotional problems in primary care consultations in Wales. Social Science &
Davis, K. (2008). Intersectionality as buzzword: a sociology of science perspective Medicine, 56(10), 2191e2200.
on what makes a feminist theory successful. Feminist Theory, 9(1), 67e85. Quintana, S. M., & Minami, T. (2006). Guidelines for meta-analyses of counseling
** Dickerson, F. B., Sommerville, J., Origoni, A. E., Ringel, N. B., & Parente, F. (2002). psychology research. Counseling Psychologist, 34(6), 839e877.
Experiences of stigma among outpatients with schizophrenia. Schizophrenia ** Ritsher (Boyd), J. B., Otilingam, P. G., & Grajales, M. (2003). Internalized stigma of
Bulletin, 28(1), 143e155. mental illness: psychometric properties of a new measure. Psychiatry Research,
** Fung, K. M., Tsang, H. W., Corrigan, P. W., Lam, C. S., & Cheung, W. M. (2007). 121(1), 31e49.
Measuring self-stigma of mental illness in China and its implications for * Ritsher (Boyd), J. B., & Phelan, J. C. (2004). Internalized stigma predicts erosion of
recovery. International Journal of Social Psychiatry, 53(5), 408e418. morale among psychiatric outpatients. Psychiatry Research, 129(3), 257e265.
Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. Englewood Sayce, L. (1998). Stigma, discrimination and social exclusion: what’s in a word?
Cliffs, NJ: Prentice-Hall. Journal of Mental Health, 7(4), 331e343.
* Griffiths, K. M., Christensen, H., & Jorm, A. F. (2008). Predictors of depression stigma. Scambler, G. (2006). Sociology, social structure and health-related stigma.
BMC Psychiatry, 8(25). doi:10.1186/1471e244X-8-25. [Electronic version]. Psychology, Health & Medicine, 11(3), 288e295.
* Griffiths, K. M., Christensen, H., Jorm, A. F., Evans, K., & Groves, C. (2004). Effect of Scambler, G. (2009). Health-related stigma. Sociology of Health & Illness, 31(3),
web-based depression literacy and cognitive-behavioural therapy interventions 441e455.
on stigmatising attitudes to depression: Randomised controlled trial. British ** Sibitz, I., Unger, A., Woppmann, A., Zidek, T., & Amering, M. (2009). Stigma
Journal of Psychiatry, 185(4), 342e349. resistance in patients with schizophrenia. Schizophrenia Bulletin. doi:10.1093/
Hancock, A.-M. (2007). When multiplication doesn’t equal quick addition: examining schbul/sbp1048. [Electronic version].
intersectionality as a research paradigm. Perspectives on Politics, 5(1), 63e79. Spearman, C. (1910). Correlation calculated from faulty data. British Journal of
Hankivsky, O., & Cormier, R. (2009). Intersectionality: Moving women’s health Psychology, 3, 271e295.
research and policy forward. Vancouver: Women’s Health Research Network. Van Brakel, W. H. (2006). Measuring health-related stigma e a literature review.
Hedges, L. V., & Olkin, I. (1985). Statistical methods for meta-analysis. Orlando, Psychology, Health & Medicine, 11(3), 307e334.
Florida: Academic Press. Wahl, O. F. (1999). Mental health consumers’ experience of stigma. Schizophrenia
Hedges, L. V., & Vevea, J. L. (1998). Fixed- and random-effects models in meta- Bulletin, 25(3), 467e478.
analysis. Psychological Methods, 3(4), 486e504. Weiss, M. G., Ramakrishna, J., & Somma, D. (2006). Health-related stigma: rethinking
Herek, G. M. (2004). Beyond “homophobia”: thinking about sexual prejudice and concepts and interventions. Psychology, Health & Medicine, 11(3), 277e287.
stigma in the twenty-first century. Sexuality Research & Social Policy, 1(2), 6e24. ** Werner, P., Aviv, A., & Barak, Y. (2008). Self-stigma, self-esteem and age in
Herek, G. M. (2007). Confronting sexual stigma and prejudice: theory and practice. persons with schizophrenia. International Psychogeriatrics, 20(1), 174e187.
Journal of Social Issues, 63(4), 905e925. Yang, L. H., Kleinman, A., Link, B. G., Phelan, J. C., Lee, S., & Good, B. (2007). Culture
Herek, G. M., Gillis, J. R., & Cogan, J. C. (2009). Internalized stigma among sexual and stigma: adding moral experience to stigma theory. Social Science & Medi-
minority adults: insights from a social psychological perspective. Journal of cine, 64, 1524e1535.
Counseling Psychology, 56(1), 32e43. Yang, L. H., Phillips, M. R., Lo, G., Chou, Y., Zhang, X., & Hopper, K. (2010).
Higgins, J. P. T., Thompson, S. G., Deeks, J. J., & Altman, D. G. (2003). Measuring “Excessive thinking” as explanatory model for schizophrenia: impacts on
inconsistency in meta-analyses. British Medical Journal, 327, 557e560. stigma and “moral” status in Mainland China. Schizophrenia Bulletin, 36(4),
** Ho, W. W., Chiu, M. Y., Lo, W. T., & Yiu, M. G. (2010). Recovery components as 836e845.
determinants of the health-related quality of life among patients with schizo- * Yen, C. F., Chen, C. C., Lee, Y., Tang, T. C., Ko, C. H., & Yen, J. Y. (2005). Insight and
phrenia: structural equation modeling analysis. Australian and New Zealand correlates among outpatients with depressive disorders. Comprehensive
Journal of Psychiatry, 44(1), 71e84. Psychiatry, 46(5), 384e389.
Huedo-Medina, T. B., Sanchez-Meca, J., Marin-Martinez, F., & Botella, J. (2006). ** Yen, C. F., Chen, C. C., Lee, Y., Tang, T. C., Ko, C. H., & Yen, J. Y. (2009). Association
Assessing heterogeneity in meta-analysis: Q statistic or I2 index? Psychological between quality of life and self-stigma, insight, and adverse effects of medication
Methods, 11(2), 193e206. in patients with depressive disorders. Depression and Anxiety, 26(11), 1033e1039.
Kanter, J. W., Rusch, L. C., & Brondino, M. J. (2008). Depression self-stigma: a new * Yen, C. F., Chen, C. C., Lee, Y., Tang, T. C., Yen, J. Y., & Ko, C. H. (2005). Self-stigma and
measure and preliminary findings. Journal of Nervous and Mental Disease, 196(9), its correlates among outpatients with depressive disorders. Psychiatric Services,
663e670. 56(5), 599e601.
* Knight, M. T. D., Wykes, T., & Hayward, P. (2006). Group treatment of perceived * Yen, C. F., Lee, Y., Tang, T. C., Yen, J. Y., Ko, C. H., & Chen, C. C. (2009). Predictive
stigma and self-esteem in schizophrenia: a waiting list trial efficacy. Behavioural value of self-stigma, insight, and perceived adverse effects of medication for the
and Cognitive Psychotherapy, 34(3), 305e318. clinical outcomes in patients with depressive disorders. Journal of Nervous and
* Link, B. (1987). Understanding labeling effects in the area of mental disorders: an Mental Disease, 197(3), 172e177.
assessment of the effects of expectations of rejection. American Sociological
Review, 52(1), 96e112.
* Link, B., Castille, D. M., & Stuber, J. (2008). Stigma and coercion in the context of
outpatient treatment for people with mental illnesses. Social Science & Medi- Further reading
cine, 67(3), 409e419.
* Link, B., Mirotznik, J., & Cullen, F. T. (1991). The effectiveness of stigma coping * Alonso, J., Buron, A., Rojas-Farreras, S., de Graaf, R., Haro, J. M., de Girolamo, G.,
orientations: can negative consequences of mental illness labeling be avoided?. et al. (2009). Perceived stigma among individuals with common mental
Journal of Health and Social Behavior, 32(3), 302e320. disorders. Journal of Affective Disorders, 118(1e3), 180e186.
2160 J.D. Livingston, J.E. Boyd / Social Science & Medicine 71 (2010) 2150e2161

* Alvidrez, J., Snowden, L. R., Rao, S. M., & Boccellari, A. (2009). Psychoeducation to * Graf, J., Lauber, C., Nordt, C., Ruesch, P., Meyer, P. C., & Rossler, W. (2004). Perceived
address stigma in black adults referred for mental health treatment: stigmatization of mentally ill people and its consequences for the quality of life
a randomized pilot study. Community Mental Health Journal, 45(2), 127e136. in a Swiss population. Journal of Nervous and Mental Disease, 192(8), 542e547.
* Angermeyer, M. C., Beck, M., Dietrich, S., & Holzinger, A. (2004). The stigma of * Gumley, A., O’Grady, M., Power, K., & Schwannauer, M. (2004). Negative beliefs
mental illness: patients’ anticipations and experiences. International Journal of about self and illness: a comparison of individuals with psychosis with or
Social Psychiatry, 50(2), 153e162. without comorbid social anxiety disorder. Australian & New Zealand Journal of
* Angermeyer, M. C., Link, B. G., & Majcher-Angermeyer, A. (1987). Stigma perceived Psychiatry, 38(11/12), 960e964.
by patients attending modern treatment settings. Some unanticipated effects of ** Hansson, L., & Bjorkman, T. (2005). Empowerment in people with a mental
community psychiatry reforms. Journal of Nervous and Mental Disease, 175(1), illness: reliability and validity of the Swedish version of an empowerment scale.
4e11. Scandinavian Journal of Caring Sciences, 19(1), 32e38.
* Bahm, A., & Forchuk, C. (2009). Interlocking oppressions: the effect of a comorbid * Hayward, P., Wong, G., Bright, J. A., & Lam, D. (2002). Stigma and self-esteem in
physical disability on perceived stigma and discrimination among mental manic depression: an exploratory study. Journal of Affective Disorders, 69(1e3),
health consumers in Canada. Health and Social Care in the Community, 17(1), 61e67.
63e70. ** Jormfeldt, H., Arvidsson, B., Svensson, B., & Hansson, L. (2008). Construct validity
* Baldwin, M. L., & Marcus, S. C. (2006). Perceived and measured stigma among of a health questionnaire intended to measure the subjective experience of
workers with serious mental illness. Psychiatric Services, 57(3), 388e392. health among patients in mental health services. Journal of Psychiatric and
** Berge, M., & Ranney, M. (2005). Self-esteem and stigma among persons with Mental Health Nursing, 15(3), 238e245.
schizophrenia: implications for mental health. Care Management Journals, ** Kahng, S. K., & Mowbray, C. (2004). Factors influencing self-esteem among
6, 139e144. individuals with severe mental illness: implications for social work. Social Work
* Birchwood, M., Mason, R., MacMillan, F., & Healy, J. (1993). Depression, demor- Research, 28(4), 225e236.
alisation, and control over psychotic illness: a comparison of depressed and * Kahng, S. K., & Mowbray, C. T. (2005a). Psychological traits and behavioral coping
non-depressed patients with chronic psychosis. Psychological Medicine, 23, of psychiatric consumers: the mediating role of self-esteem. Health & Social
387e395. Work, 30(2), 87e97.
* Birchwood, M., Trower, P., Brunet, K., Gilbert, P., Iqbal, Z., & Jackson, C. (2007). * Kahng, S. K., & Mowbray, C. T. (2005b). What affects self-esteem of persons with
Social anxiety and the shame of psychosis: a study in first episode psychosis. psychiatric disabilities: the role of causal attributions of mental illnesses.
Behaviour Research and Therapy, 45(5), 1025e1037. Psychiatric Rehabilitation Journal, 28(4), 354e361.
** Bjorkman, T., & Svensson, B. (2005). Quality of life in people with severe mental * Karidi, M. V., Stefanis, C. N., Theleritis, C., Tzedaki, M., Rabaviles, A. D., &
illness. Reliability and validity of the Manchester Short Assessment of Quality of Stefanis, C. N. (2010). Perceived social stigma, self-concept, and self-stigmati-
Life (MANSA). Nordic Journal of Psychiatry, 59(4), 302e306. zation of patient with schizophrenia. Comprehensive Psychiatry, 51, 19e30.
** Bjorkman, T., Svensson, B., & Lundberg, B. (2007). Experiences of stigma among * King, M., Dinos, S., Shaw, J., Watson, R., Stevens, S., Passetti, F., et al. (2007). The
people with severe mental illness. Reliability, acceptability and construct validity stigma scale: development of a standardised measure of the stigma of mental
of the Swedish versions of two stigma scales measuring devaluation/discrimi- illness. British Journal of Psychiatry, 190, 248e254.
nation and rejection experiences. Nordic Journal of Psychiatry, 61(5), 332e338. ** Kleim, B., Vauth, R., Adam, G., Stieglitz, R. D., Hayward, P., & Corrigan, P. (2008).
** Blankertz, L. (2001). Cognitive components of self-esteem for individuals with Perceived stigma predicts low self-efficacy and poor coping in schizophrenia.
severe mental illness. American Journal of Orthopsychiatry, 71(4), 457e465. Journal of Mental Health, 17(5), 482e491.
** Bos, A. E. R., Kanner, D., Muris, P., Janssen, B., & Mayer, B. (2009). Mental illness * Kravetz, S., Faust, M., & David, M. (2000). Accepting the mental illness label,
stigma and disclosure: consequences of coming out of the closet. Issues in perceived control over the illness and quality of life. Psychiatric Rehabilitation
Mental Health Nursing, 30(8), 509e513. Journal, 23, 323e332.
* Botha, U. A., Koen, L., & Niehaus, D. J. (2006). Perceptions of a South African * Kroska, A., & Harkness, S. K. (2008). Exploring the role of diagnosis in the modified
schizophrenia population with regards to community attitudes towards their labeling theory of mental illness. Social Psychology Quarterly, 71(2), 193e208.
illness. Social Psychiatry and Psychiatric Epidemiology, 41(8), 619e623. ** Landeen, J. L., Seeman, M. V., Goering, P., & Streiner, D. (2007). Schizophrenia:
** Charles, H., Manoranjitham, S. D., & Jacob, K. S. (2007). Stigma and explanatory effects of perceived stigma on two dimensions of recovery. Clinical Schizo-
models among people with schizophrenia and their relatives in Vellore, South phrenia & Related Psychoses, 1(1), 64e68.
India. International Journal of Social Psychiatry, 53(4), 325e332. * Link, B., Struening, E. L., Neese-Todd, S., Asmussen, S., & Phelan, J. C. (2001). The
* Chee, C. Y. I., Ng, T. P., & Kua, E. H. (2005). Comparing the stigma of mental illness consequences of stigma for the self-esteem of people with mental illnesses.
in a general hospital with a state mental hospital e a Singapore study. Social Psychiatric Services, 52(12), 1621e1626.
Psychiatry and Psychiatric Epidemiology, 40(8), 648e653. ** Link, B., Struening, E. L., Rahav, M., Phelan, J. C., & Nuttbrock, L. (1997). On stigma
* Chen, H. T., Coakley, E. H., Cheal, K., Maxwell, J., Costantino, G., Krahn, D. D., et al. and its consequences: evidence from a longitudinal study of men with dual
(2006). Satisfaction with mental health services in older primary care patients. diagnoses of mental illness and substance abuse. Journal of Health and Social
American Journal of Geriatric Psychiatry, 14(4), 371e379. Behavior, 38(2), 177e190.
* Chowdhury, A. N., Sanyal, D., Bhattacharya, A., Dutta, S. K., De, R., Banerjee, S., et al. * Loffler, W., Kilian, R., Toumi, M., & Angermeyer, M. C. (2003). Schizophrenic
(2001). Prominence of symptoms and level of stigma among depressed patients patients’ subjective reasons for compliance and noncompliance with neuro-
in Calcutta. Journal of the Indian Medical Association, 99, 20e23. leptic treatment. Pharmacopsychiatry, 36(3), 105e112.
* Chung, L., Pan, A. W., & Hsiung, P. C. (2009). Quality of life for patients with major * Lundberg, B., Hansson, L., Wentz, E., & Bjorkman, T. (2007). Sociodemographic and
depression in Taiwan: a model-based study of predictive factors. Psychiatry clinical factors related to devaluation/discrimination and rejection experiences
Research, 168(2), 153e162. among users of mental health services. Social Psychiatry and Psychiatric Epide-
* Chung, K. F., & Wong, M. C. (2004). Experience of stigma among Chinese mental miology, 42(4), 295e300.
health patients in Hong Kong. Psychiatric Bulletin, 28(12), 451e454. ** Lundberg, B., Hansson, L., Wentz, E., & Bjorkman, T. (2008). Stigma, discrimina-
* Collins, P. Y., Elkington, K. S., von Unger, H., Sweetland, A., Wright, E. R., & tion, empowerment and social networks: a preliminary investigation of their
Zybert, P. A. (2008). Relationship of stigma to HIV risk among women with influence on subjective quality of life in a Swedish sample. International Journal
mental illness. American Journal of Orthopsychiatry, 78(4), 498e506. of Social Psychiatry, 54(1), 47e55.
* Corrigan, P., Thompson, V., Lambert, D., Sangster, Y., Noel, J. G., & Campbell, J. * Lundberg, B., Hansson, L., Wentz, E., & Bjorkman, T. (2009). Are stigma experiences
(2003). Perceptions of discrimination among persons with serious mental among persons with mental illness, related to perceptions of self-esteem,
illness. Psychiatric Services, 54(8), 1105e1110. empowerment and sense of coherence?. Journal of Psychiatric and Mental Health
* Depla, M. F., de Graaf, R., van Weeghel, J., & Heeren, T. J. (2005). The role of stigma Nursing, 16(6), 516e522.
in the quality of life of older adults with severe mental illness. International * Lysaker, P. H., Buck, K. D., Taylor, A. C., & Roe, D. (2008). Associations of meta-
Journal of Geriatric Psychiatry, 20(2), 146e153. cognition and internalized stigma with quantitative assessments of self-expe-
* Elkington, K. S., McKinnon, K., Mann, C. G., Collins, P. Y., Leu, C. S., & rience in narratives of schizophrenia. Psychiatry Research, 157(1e3), 31e38.
Wainberg, M. L. (2009). Perceived mental illness stigma and HIV risk behaviors ** Lysaker, P. H., Davis, L. W., Warman, D. M., Strasburger, A., & Beattie, N. (2007).
among adult psychiatric outpatients in Rio de Janeiro, Brazil. Community Mental Stigma, social function and symptoms in schizophrenia and schizoaffective
Health Journal, 46(1), 56e64. disorder: associations across 6 months. Psychiatry Research, 149(1e3), 89e95.
* Ertugrul, A., & Ulu, B. (2004). Perception of stigma among patients with schizo- ** Lysaker, P. H., Roe, D., & Yanos, P. T. (2007). Toward understanding the insight
phrenia. Social Psychiatry & Psychiatric Epidemiology, 39(1), 73e77. paradox: internalized stigma moderates the association between insight and
** Freidl, M., Spitzl, S. P., & Aigner, M. (2008). How depressive symptoms correlate social functioning, hope, and self-esteem among people with schizophrenia
with stigma perception of mental illness. International Review of Psychiatry, spectrum disorders. Schizophrenia Bulletin, 33(1), 192e199.
20(6), 510e514. ** Lysaker, P. H., Salyers, M. P., Tsai, J., Spurrier, L. Y., & Davis, L. W. (2008). Clinical
** Fung, K. M., & Tsang, H. W. (2009). Self-stigma, stages of change and psychosocial and psychological correlates of two domains of hopelessness in schizophrenia.
treatment adherence among Chinese people with schizophrenia: a path anal- Journal of Rehabilitation Research & Development, 45(6), 911e919.
ysis. Social Psychiatry and Psychiatric Epidemiology, 45(5), 561e568. ** Lysaker, P. H., Tsai, J., Yanos, P., & Roe, D. (2008). Associations of multiple domains
** Fung, K. M., Tsang, H. W., & Corrigan, P. W. (2008). Self-stigma of people with of self-esteem with four dimensions of stigma in schizophrenia. Schizophrenia
schizophrenia as predictor of their adherence to psychosocial treatment. Research, 98(1e3), 194e200.
Psychiatric Rehabilitation Journal, 32(2), 95e104. * Lysaker, P. H., Vohs, J. L., & Tsai, J. (2009). Negative symptoms and concordant
* Gilbert, P. (2000). The relationship of shame, social anxiety and depression: the impairments in attention in schizophrenia: associations with social functioning,
role of the evaluation of social rank. Clinical Psychology & Psychotherapy, 7(3), hope, self-esteem and internalized stigma. Schizophrenia Research, 110(1e3),
174e189. 165e172.
J.D. Livingston, J.E. Boyd / Social Science & Medicine 71 (2010) 2150e2161 2161

* Mak, W. W., & Wu, C. F. (2006). Cognitive insight and causal attribution in the ** Rüsch, N., Todd, A. R., Bodenhausen, G. V., Olschewski, M., & Corrigan, P. W.
development of self-stigma among individuals with schizophrenia. Psychiatric (2010). Automatically activated shame reactions and perceived legitimacy of
Services, 57(12), 1800e1802. discrimination: a longitudinal study among people with mental illness. Journal
** Manos, R. C., Rusch, L. C., Kanter, J. W., & Clifford, L. M. (2009). Depression self- of Behavior Therapy and Experimental Psychiatry, 41(1), 60e63.
stigma as a mediator on the relationship between depression severity and * Schomerus, G., Matschinger, H., & Angermeyer, M. C. (2009). The stigma of
avoidance. Journal of Social and Clinical Psychology, 28(9), 1128e1143. psychiatric treatment and help-seeking intentions for depression. European
* Mansouri, L., & Dowell, D. A. (1989). Perceptions of stigma among the long-term Archives of Psychiatry and Clinical Neuroscience, 259(5), 298e306.
mentally ill. Psychosocial Rehabilitation Journal, 13, 79e91. Simien, E. M. (2007). Doing intersectionality research: from conceptual issues to
* Margetic, B., Aukst-Margetic, B., Ivanec, D., & Filipcic, I. (2008). Perception of practical examples. Politics & Gender, 3(2), 264e271.
stigmatization in forensic patients with schizophrenia. International Journal of * Sirey, J. A., Bruce, M. L., Alexopoulos, G. S., Perlick, D. A., Friedman, S. J., & Meyers, B. S.
Social Psychiatry, 54(6), 502e513. (2001). Perceived stigma and patient-rated severity of illness as predictors of
* Markowitz, F. E. (1998). The effects of stigma on the psychological well-being and antidepressant drug adherence. Psychiatric Services, 52(12), 1615e1620.
life satisfaction of persons with mental illness. Journal of Health and Social * Sirey, J. A., Bruce, M. L., Alexopoulos, G. S., Perlick, D. A., Raue, P., Friedman, S. J.,
Behavior, 39(4), 335e347. et al. (2001). Perceived stigma as a predictor of treatment discontinuation in
* Markowitz, F. E. (2001). Modeling processes in recovery from mental illness: young and older outpatients with depression. American Journal of Psychiatry,
relationships between symptoms, life satisfaction, and self-concept. Journal of 158(3), 479e481.
Health and Social Behavior, 42(1), 64e79. ** Staring, A. B., Van der Gaag, M., Van den Berge, M., Duivenvoorden, H. J., &
* McCann, T. V., Boardman, G., Clark, E., & Lu, S. (2008). Risk profiles for non- Mulder, C. L. (2009). Stigma moderates the associations of insight with
adherence to antipsychotic medications. Journal of Psychiatric and Mental Health depressed mood, low self-esteem, and low quality of life in patients with
Nursing, 15(8), 622e629. schizophrenia spectrum disorders. Schizophrenia Research, 115(2e3), 363e369.
* Mechanic, D., McAlpine, D., Rosenfield, S., & Davis, D. (1994). Effects of illness * Struch, N., Levav, I., Shereshevsky, Y., Baidani-Auerbach, A., Lachman, M.,
attribution and depression on the quality of life among persons with serious Daniel, N., et al. (2008). Stigma experienced by persons under psychiatric care.
mental illness. Social Science & Medicine, 39(2), 155e164. Israel Journal of Psychiatry and Related Sciences, 45(3), 210e218.
* Mueller, B., Nordt, C., Lauber, C., Rueesch, P., Meyer, P. C., & Roessler, W. (2006). ** Switaj, P., Wciorka, J., Smolarska-Switaj, J., & Grygiel, P. (2009). Extent and
Social support modifies perceived stigmatization in the first years of mental predictors of stigma experienced by patients with schizophrenia. European
illness: a longitudinal approach. Social Science & Medicine, 62(1), 39e49. Psychiatry, 24(8), 513e520.
* Nuehring, E. M. (1979). Stigma and state hospital patients. American Journal of * Tarrier, N., Khan, S., Cater, J., & Picken, A. (2007). The subjective consequences of
Orthopsychiatry, 49(4), 626e633. suffering a first episode psychosis: trauma and suicide behaviour. Social
* Pan, A. W., Chung, L., Fife, B. L., & Hsiung, P. C. (2007). Evaluation of the psycho- Psychiatry and Psychiatric Epidemiology, 42(1), 29e35.
metrics of the social impact scale: a measure of stigmatization. International * Thompson, V. L. S., Noel, J. G., & Campbell, J. (2004). Stigmatization, discrimina-
Journal of Rehabilitation Research, 30(3), 235e238. tion, and mental health: the impact of multiple identity status. American Journal
* Perlick, D. A., Rosenheck, R. A., Clarkin, J. F., Sirey, J. A., Salahi, J., Struening, E. L., et al. of Orthopsychiatry, 74(4), 529e544.
(2001). Adverse effects of perceived stigma on social adaptation of persons * Thornicroft, G., Brohan, E., Rose, D., Sartorius, N., & Leese, M. (2009). Global
diagnosed with bipolar affective disorder. Psychiatric Services, 52(12), 1627e1632. pattern of experienced and anticipated discrimination against people with
** Prince, P. N., & Prince, C. R. (2002). Perceived stigma and community integration schizophrenia: a cross-sectional survey. Lancet, 373(9661), 408e415.
among clients of assertive community treatment. Psychiatric Rehabilitation ** Tsang, H. W. H., Fung, K. M. T., & Corrigan, P. W. (2006). Psychosocial treatment
Journal, 25(4), 323e331. compliance scale for people with psychotic disorders. Australian and New
* Pyne, J. M., Bean, D., & Sullivan, G. (2001). Characteristics of patients with Zealand Journal of Psychiatry, 40(6e7), 561e569.
schizophrenia who do not believe they are mentally ill. Journal of Nervous and ** Tsang, H. W. H., Fung, K. M. T., & Corrigan, P. W. (2009). Psychosocial and socio-
Mental Disease, 189(3), 146e153. demographic correlates of medication compliance among people with schizo-
* Pyne, J. M., Kuc, E. J., Schroeder, P. J., Fortney, J. C., Edlund, M., & Sullivan, G. (2004). phrenia. Journal of Behavior Therapy and Experimental Psychiatry, 40(1), 3e14.
Relationship between perceived stigma and depression severity. Journal of ** Vauth, R., Kleim, B., Wirtz, M., & Corrigan, P. W. (2007). Self-efficacy and
Nervous and Mental Disease, 192(4), 278e283. empowerment as outcomes of self-stigmatizing and coping in schizophrenia.
* Raguram, R., Weiss, M. G., Channabasavanna, S. M., & Devins, G. M. (1996). Stigma, Psychiatry Research, 150(1), 71e80.
depression, and somatization in South India. American Journal of Psychiatry, 153, * Verhaeghe, M., & Bracke, P. (2007). Organizational and individual level determi-
1043e1049. nants of stigmatization in mental health services. Community Mental Health
* Roeloffs, C., Sherbourne, C., Unutzer, J., Fink, A., Tang, L. Q., & Wells, K. B. (2003). Journal, 43(4), 375e400.
Stigma and depression among primary care patients. General Hospital Psychi- * Verhaeghe, M., & Bracke, P. (2008). Ward features affecting stigma experiences in
atry, 25(5), 311e315. contemporary psychiatric hospitals: a multilevel study. Social Psychiatry and
* Rosen, D. D., Greenberg, D., Schmeidler, J., & Shefler, G. (2008). Stigma of mental Psychiatric Epidemiology, 43(5), 418e428.
illness, religious change, and explanatory models of mental illness among * Verhaeghe, M., Bracke, P., & Bruynooghe, K. (2007). Stigmatization in different
Jewish patients at a mental-health clinic in North Jerusalem. Mental Health, mental health services: a comparison of psychiatric and general hospitals.
Religion & Culture, 11(2), 193e209. Journal of Behavioral Health Services & Research, 34(2), 186e197.
* Rosenfield, S. (1997). Labeling mental illness: the effects of received services and * Verhaeghe, M., Bracke, P., & Bruynooghe, K. (2008). Stigmatization and self-
perceived stigma on life satisfaction. American Sociological Review, 62(4), 660e672. esteem of persons in recovery from mental illness: the role of peer support.
* Rüsch, N., Corrigan, P. W., Powell, K., Rajah, A., Olschewski, M., Wilkniss, S., et al. (2009). International Journal of Social Psychiatry, 54(3), 206e218.
A stress-coping model of mental illness stigma: II. Emotional stress responses, * Verhaeghe, M., Bracke, P., & Christiaens, W. (2008). Part-time hospitalisation
coping behavior and outcome. Schizophrenia Research, 110(1e3), 65e71. and stigma experiences: a study in contemporary psychiatric hospitals. BMC
* Rüsch, N., Corrigan, P. W., Wassel, A., Michaels, P., Larson, J. E., Olschewski, M., et al. Health Services Research, 8, 125. doi:10.1186/1472-6963-8-125, [Electronic
(2009). Self-stigma, group identification, perceived legitimacy of discrimination version].
and mental health service use. British Journal of Psychiatry, 195(6), 551e552. * Warner, R., Taylor, D., Powers, M., & Hyman, J. (1989). Acceptance of the mental
** Rüsch, N., Corrigan, P. W., Wassel, A., Michaels, P., Olschewski, M., Wilkniss, S., illness label by psychotic patients: effects on functioning. American Journal of
et al. (2009a). Ingroup perception and responses to stigma among persons with Orthopsychiatry, 59(3), 398e409.
mental illness. Acta Psychiatrica Scandinavica, 120(4), 320e328. ** Watson, A. C., Corrigan, P., Larson, J. E., & Sells, M. (2007). Self-stigma in people
* Rüsch, N., Corrigan, P. W., Wassel, A., Michaels, P., Olschewski, M., Wilkniss, S., with mental illness. Schizophrenia Bulletin, 33(6), 1312e1318.
et al. (2009b). A stress-coping model of mental illness stigma: I. Predictors of * Werner, P., Stein-Shvachman, I., & Heinik, J. (2009). Perceptions of self-stigma and
cognitive stress appraisal. Schizophrenia Research, 110(1e3), 59e64. its correlates among older adults with depression: a preliminary study. Inter-
** Rüsch, N., Holzer, A., Hermann, C., Schramm, E., Jacob, G. A., Bohus, M., et al. national Psychogeriatrics, 21(6), 1180e1189.
(2006). Self-stigma in women with borderline personality disorder and women * Wright, E. R., Gronfein, W. P., & Owens, T. J. (2000). Deinstitutionalization, social
with social phobia. Journal of Nervous and Mental Disease, 194(10), 766e773. rejection, and the self-esteem of former mental patients. Journal of Health and
** Rusch, L. C. M. S., Kanter, J. W. P., Manos, R. C. M. S., & Weeks, C. E. M. S. (2008). Social Behavior, 41(1), 68e90.
Depression stigma in a predominantly low income African American sample ** Yanos, P. T., Roe, D., Markus, K., & Lysaker, P. H. (2008). Pathways between
with elevated depressive symptoms. Journal of Nervous & Mental Disease, 196 internalized stigma and outcomes related to recovery in schizophrenia spec-
(12), 919e922. trum disorders. Psychiatric Services, 59(12), 1437e1442.
** Rüsch, N., Lieb, K., Bohus, M., & Corrigan, P. W. (2006). Self-stigma, empower- * Yanos, P. T., Rosenfield, S., & Horwitz, A. V. (2001). Negative and supportive social
ment, and perceived legitimacy of discrimination among women with mental interactions and quality of life among persons diagnosed with severe mental
illness. Psychiatric Services, 57(3), 399e402. illness. Community Mental Health Journal, 37(5), 405e419.

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