Professional Documents
Culture Documents
NOTE: This manuscript is “in press” at the Journal of Behavioral and Cognitive Therapy
as of 12/25/2022. CITATION: Cohen, K., Dobias, M., Morris, R., & Schleider, J.L. (2022, in
press). Improving uptake of mental health crisis resources: Randomized test of a
single-session intervention embedded in social media. Journal of Behavioral and
Cognitive Therapy.
Katherine Cohen, M.A.a, Mallory Dobias, M.A.a, Rob Morris, Ph.D.b, & Jessica Schleider, Ph.D.a*
a
Department of Psychology, Stony Brook Universityb Department of Psychology, Stony Brook
University; mallory.dobias@stonybrook.edu
b
Koko AI, Inc; rob@kokocares.org
Abbreviations
DMHI: Digital Mental Health Intervention
SSI: Single Session Intervention
IMPROVING UPTAKE OF CRISIS RESOURCES 2
Abstract
Young people often experience difficulties accessing mental health support. In moments of
crisis, many young people search for mental health-related information or support on social
media platforms. When users search or post crisis-related content (e.g., “suicide”) on these
platforms, many are programmed to automatically provide the user with crisis hotlines. Little
research has examined whether young people use crisis hotlines when they are automatically
shared, or whether other resource-provision strategies may better support hope and
help-seeking. Methods: Users flagged as being potentially in-crisis by social media platforms
were referred to Koko—a nonprofit that partners with online platforms to provide crisis support.
Users were randomized to receive either a typical crisis response (988 crisis hotline provision)
or a one-minute, enhanced crisis response Single-Session Intervention (SSI). Results: Users
who received the enhanced crisis response SSI reported greater decreases in hopelessness ten
minutes later, compared to users who received the typical crisis response (t(153) = -2.16, p =
0.03, d = -0.35; 95% CI, -0.67, -0.03). Users who received the SSI were more than twice as
likely to report using the resources provided to them, compared to users who received the
typical crisis response (78.02% vs. 38.64%; χ2(1) = 27.02, p < 0.001, V = 0.28). Conclusion: An
enhanced crisis response SSI embedded within social media platforms can reduce users’
hopelessness and dramatically increase young people’s odds of accessing mental health
resources in moments of crisis.
Introduction
Young adults report alarming rates of psychological distress (Wang et al, 2020). Rates of
18-25 years old indicating severe psychological distress increased from 7.7% in 2008 to 13.1%
in 2017 (Twenge et al., 2019). Given the ubiquity of digital technologies among young adults
(Curtis et al., 2019), providing mental health support through digital mediums—particularly
platforms that young adults already naturalistically frequent, such as social media
platforms—could improve accessibility. Over 80% of young adults search online or via social
media for mental health information, suggesting that many are already using digital resources to
support their mental health (Pretorius et al., 2019).
Despite progress in the development of effective digital mental health interventions
(DMHIs) for young adults, real-world uptake is low (Lattie et al., 2021; Levin et al., 2022). One
explanation may be that accessing existing DHMIs requires additional user effort (e.g.,
downloading an app, requiring a subscription fee). Embedding DMHIs in online spaces that
young adults already frequent for mental health information-seeking purposes may overcome
user-burden barriers, capitalizing on moments of high motivation or perceived need (e.g., when
searching for mental health information online; when posting about suicidal thoughts).
Many social media apps use automated approaches to connecting users to mental
health crisis resources. For example, when users on Facebook, Instagram, or Tumblr search for
terms related to “suicide,” the platforms’ mental health response protocols are activated, and
they are presented with a crisis hotline number (e.g., 9-8-8). However, research has not
examined whether users subsequently use crisis hotlines when they are presented in this
context, nor whether this approach improves mental health outcomes. Qualitative research with
social media users suggests that this typical, automated approach to crisis resource-provision is
perceived as impersonal, insensitive, and insufficient by platform users (Biddle et al., 2020), who
prefer receiving resources personalized to their needs (Pretorius et al., 2020). Thus, research
must evaluate the assumed benefits and unintended harms of social media platforms’ standard
approaches to supporting users who may need mental health support.
Some social media platforms provide users flagged as “in crisis” with lists of multiple
resources (beyond a single hotline), presumably to increase odds that users will find one of
them helpful. However, it cannot be assumed that simply providing more resources to these
automated support protocols will necessarily help. Indeed, the authors of one recent study
suggested that providing resources that do not meet users’ needs may be harmful. In this study,
users who received referrals to in-person care following online mental health screeners were
more likely to later endorse suicidal intent. The authors of this study suggested that this could
be because the prospect of initiating in-person care was overwhelming to individuals (Jacobson
et al., 2022). No research has examined how online, automated crisis response protocols might
be optimized for positive real-world outcomes—that is, how they might be redesigned to
empower users and increase uptake of supports. Such research could inform critical decisions
made by large social media platforms and policy-makers, boosting millions of social media
users’ odds of connecting with care in moments of need.
IMPROVING UPTAKE OF CRISIS RESOURCES 4
Methods
Koko Platform
Recruitment
Users were recruited to the Koko platform through partnered social media networks,
including Tumblr, Discord, Telegram, and Facebook Messenger. Recruitment took place via two
IMPROVING UPTAKE OF CRISIS RESOURCES 5
methods: 1) within-platform advertisements invited users to engage with Koko using messages
such as “24/7 peer support for your community. Always free, completely anonymous.” and 2)
when words are detected as crisis-related by Koko’s algorithms, users were shown an in-app
overlay of the Koko platform. Data for this study were collected between August 26 and
September 14, 2022.
Onboarding
After being referred to Koko’s platform, users were presented with Koko’s privacy policy
and terms of service, which inform users that anonymized data may be shared for research
purposes. As all data were part of a completely anonymous program evaluation, this study was
deemed as nonhuman subjects research in consultation with the institutional review board at
Stony Brook University.
All users who agreed to the privacy policy and terms of service (regardless of
recruitment method) were asked, “What are you struggling with?” and their free-text response
was scanned for crisis-related words. If their response passed Koko’s moderation systems, the
user was excluded from this study. If their response triggered Koko’s crisis model, the user was
sent to the crisis flow. Specifically, they received the following message: “Thanks for sharing
that… I'm concerned about you though. It sounds like you're feeling pretty down or you're in a
tough situation, is that right?” If the user agreed, they were asked to indicate what they are
struggling with: suicidal thoughts, self-harm, eating disorder, abuse, or something else. Users
indicated whether they were struggling with suicidal thoughts (n = 154), self-harm (n = 76),
eating disorders (n = 11), abuse (n = 38), or something else (n = 95).. These users (n = 374)
were then individually randomized to either the enhanced crisis response SSI (n = 190) or the
control condition (n = 184). Figure 1 illustrates the flow of participants in the study.
Users in the “enhanced crisis response SSI” condition received information through a
brief (~1 minute) micro-intervention, based on design principles in the Single-Session
Intervention literature known to motivate hope, agency, and openness to treatment-seeking
(Schleider et al., 2020; Schleider & Weisz, 2018). Users in this condition received 1) a
psychoeducational validation statement (e.g., “A lot of Koko users struggle with self-harm. In
fact, 17% of young adults have purposefully harmed themselves at some point.”); 2) a
testimonial (e.g., “I have been struggling for years, but this [course] really changed me. We need
more things like this in the world.”); 3) the option to create a safety plan; 4) issue-specific links to
evidence-based “mini courses,” or online single-session interventions (described in Dobias et
al., 2022); and 5) global crisis lines. The testimonial that users were presented with differed
based on the concern they indicated struggling with. For example, users who indicated they
were struggling with an eating disorder were presented with the following message: “this course
felt very honest, and it helped me a lot to think about food + my body image in a healthier way.
Thanks!” Users were asked if they would use the resources they were presented with (i.e., “Be
honest, how likely are you to try the resources I just shared?”). Individuals who answered “very
likely” continued using the Koko platform as usual. Individuals who answered “not likely ...” were
IMPROVING UPTAKE OF CRISIS RESOURCES 6
Users in the control condition received only crisis line information (e.g., “If you or
someone you know is struggling, help is available. If you're in the US: Call or Text 988 Suicide &
Crisis Lifeline. Otherwise, try IASP: https://www.iasp.info/crisis-centres-helplines/.”) The control
condition reflects the typical response that users receive when they search for mental health
topics on social media platforms. Users were notified that they would be contacted in ten
minutes to check-in with them. Appendix B includes representative screenshots portraying the
control condition.
Measures
Demographics. At the 10-minute follow-up, users indicated their age, gender identity
(man/boy, woman/girl, nonbinary, questioning, or other) and sexual identity (bisexual,
gay/lesbian, heterosexual, questioning, pansexual, queer, or other).
Platform. Users were categorized based on the platform that referred them to Koko.
Potential platforms included Discord, Tumblr, Facebook, and Telegram.
Resources. At the ten-minute follow up, users were asked to self-report whether or not
they used any of the crisis or mental health resources that Koko provided. Users were
also asked to rate how helpful they believed the resources were on a 5-point Likert scale
from Very Helpful to Very Unhelpful. Higher scores indicated higher levels of perceived
helpfulness. The short-time span of our follow-up (10 minutes) is intentional and
informed by work demonstrating the importance of minute-to-minute changes in suicidal
IMPROVING UPTAKE OF CRISIS RESOURCES 7
thoughts. For example, research indicates that approximately 24% of individuals spend
less than 5 minutes between the decision to attempt suicide and the actual attempt
(Simon et al, 2001). As such, it may be possible that even small, positive changes over a
course of several minutes can provide substantial value.
Data Analysis
The RStudio Statistical Program was used to complete data analyses (Allaire, 2012). For
each statistical test, a p-value of < 0.05 was considered statistically significant.
College-Aged Subsample. Along with conducting analyses on the full sample of users
who engaged in the Koko platform, we conducted analyses on the subsample of users
classified as college-aged (between the ages of 18-25). We ran the same set of
analyses to see if there were effects for the college-aged population that differed from
the larger sample.
Uptake Patterns. We report follow-up rates and resource uptake using means, standard
deviations, and percentages. To determine whether follow-up rates or uptake of
resources differed between the treatment and control conditions, we conducted
chi-square tests. We report participants’ perceived helpfulness of resources using means
and standard deviations. To determine whether perceived helpfulness of resources
differed between the treatment and control conditions, we conducted a chi-square test.
Results
Participant Characteristics
IMPROVING UPTAKE OF CRISIS RESOURCES 8
Full Sample. A total of 374 users were randomized to a condition. The control condition
included 184 users. The enhanced crisis response SSI included 190 users. Figure 1
demonstrates the flow of participants in the study for the full sample. Table 1 includes
descriptive statistics for the participants who completed the 10-minute follow-up (n =
184). The average age was 17.93 (SD = 4.92, Range = 13-44). Participants’ gender
identities included woman/girl (n = 62, 41.06%), man/boy (n = 38, 25.17%), nonbinary (n
= 22, 14.57%), questioning (n = 10, 6.62%), and other (n = 19, 12.58%). Participants’
sexual identities included pansexual (n = 15, 27.78%), queer (n = 14, 7.41%),
heterosexual (n = 10, 18.52%), bisexual (n = 8, 14.81%), gay/lesbian (n = 5, 9.26%),
questioning (n = 3, 5.56%), and other (n = 9, 16.67%). Participants joined the Koko
platform from Tumblr (n = 288, 81.13%), Discord (n = 55, 15.49%), Facebook (n = 6,
1.7%), and Telegram (n = 6, 1.7%). Analyses indicated no significant differences
between participant characteristics in the control and the enhanced treatment response,
indicating successful randomization.
Dropout
Of the participants who were randomly assigned to a condition, 51.83% completed the
ten-minute follow-up survey. There was no evidence of differential dropout between participants
assigned to different conditions or participants from different platforms.
Full Sample. Table 3 presents means and standard deviations for all program outcomes
by experimental condition at baseline and 10-minute follow-up. Participants in the
enhanced crisis response SSI reported greater uptake of resources (78.02% utilized
resources) compared to participants in the control condition (38.64% utilized resources),
(χ2(1) = 27.02, p < 0.001, V = 0.28). Participants in the enhanced crisis response SSI
condition did not report statistically different rates of perceived helpfulness of resources
IMPROVING UPTAKE OF CRISIS RESOURCES 9
College-Aged Sample. Table 4 presents means and standard deviations for all program
outcomes by experimental condition at baseline and 10-minute follow-up. Participants in
the enhanced crisis response SSI condition reported greater uptake of resources
(85.71% utilized resources) compared to participants in the control condition (38.46%
utilized resources), though the number of participants was too small to conduct a test for
statistical significance. Participants in the enhanced crisis response SSI condition did not
report statistically different rates of perceived helpfulness of resources compared to
participants in the control condition, (t(53) = -1.23, p = 0.22, d = -0.34; 95% CI, -0.87,
0.2).
Hopelessness
Full Sample. Participants in the enhanced crisis response SSI condition reported greater
decreases in hopelessness, from baseline to 10-minutes post-intervention, compared to
participants in the control condition (t(153) = -2.16, p = 0.03, d = -0.35; 95% CI, -0.67,
-0.03). Regarding within-group effects, there was a statistically significant within-group
decrease in hopelessness among participants in the enhanced crisis response SSI
condition (t(71)=-2.47, p = 0.02, d = -0.41; 95% CI, -0.73, -0.08). In contrast, there was
not a significant difference between pre and post hopelessness scores among
participants in the control condition (t(72)=-0.39, p = 0.69, d = -0.06; 95% CI, -0.37,
0.25).
Discussion
Conclusion
When embedded within social media platforms, a 1-minute enhanced crisis response
SSI more than doubled users’ odds of accessing mental health resources (from 38.6% to
78.1%) compared to standard, broadly-implemented crisis response procedures (providing a
crisis hotline alone). Likewise, the enhanced crisis response SSI led to larger reductions in
hopelessness compared to standard crisis response protocols. Results were consistent across
college-aged and non-college-aged social media users, suggesting broad utility of our brief,
enhanced approach. This study suggests an evidence-based strategy for improving social
media users’ likelihood of connecting with mental health support at precise moments of
perceived need, carrying immediately-actionable implications for policy and practice.
Acknowledgments
The present study was supported by a research grant from Hopelab to RM and JLS. Outside of this
work, JLS has received funding from the National Institute of Health Office of the Director
(DP5OD028123), National Institute of Mental Health (R43MH128075), National Science Foundation
(2141710), Health Research and Services Association (U3NHP45406-01-00), Upswing Fund for
Adolescent Mental Health, Society for Clinical Child and Adolescent Psychology, and the
Klingenstein Third Generation Foundation. The preparation of this article was supported in part by
the Implementation Research Institute (IRI), at the George Warren Brown School of Social Work,
Washington University in St. Louis; through an award from the National Institute of Mental Health
(R25MH080916; JLS is an IRI Fellow).
Conflicts of Interest
IMPROVING UPTAKE OF CRISIS RESOURCES
12
KC is a contracted researcher for Koko. MLD is a contracted researcher for Koko. JLS serves
on the Scientific Advisory Board for Walden Wise and the Clinical Advisory Board for Koko, is
Co-Founder and Co-Director of Single Session Support Solutions. Inc., and receives book
royalties from New Harbinger, Oxford University Press, and Little Brown Book Group.
Author Contributions
JLS and RM conceptualized the project and developed the enhanced crisis response SSI. KC,
JLS, and RM contributed to study design. RM oversaw data collection. KC conducted primary
analyses and drafted the initial version of the manuscript. KC, MLD, and JLS contributed to
manuscript edits and revisions of subsequent drafts. All authors approved the final version of
the manuscript prior to submission.
IMPROVING UPTAKE OF CRISIS RESOURCES
13
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Gender Identity
Sexual Identity
Platform
Gender Identity
Sexual Identity
Questioning 3 (11.54%) 0
Platform
N Mean/ SD N Mean/ SD
Proportion Proportion
Hopelessnessa
Resource Utilizationb
Perceived
Helpfulnessc
a
Range: 4-16. Higher scores indicate greater levels of hopelessness.
b
Users indicated whether or not they used the resources that were provided to them.
c
Range: 1-5. Higher scores indicate greater levels of perceived helpfulness.
IMPROVING UPTAKE OF CRISIS RESOURCES
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Table 4. Means and Standard Deviations for College-Aged Sample.
N Mean/ SD N Mean/ SD
Proportion Proportion
Hopelessnessa
Resource Utilizationb
Perceived
Helpfulnessc
a
Range: 4-16. Higher scores indicate greater levels of hopelessness.
b
Users indicated whether or not they used the resources that were provided to them.
c
Range: 1-5. Higher scores indicate greater levels of perceived helpfulness.
IMPROVING UPTAKE OF CRISIS RESOURCES
23
Appendices