Indicators for monitoring stigma and

discrimination against persons

affected by [condition]

Wim H. van Brakel

Netherlands Leprosy Relief
 5-Question Stigma Indicator –
community stigma (5-QSI-CS)
In your community or Never Some- Often/ Don’t
neighbourhood: times usually know

1. Would having (had) condition cause

problems for a person to find work or 0 1 2 0
keep his or her job?
2. Would someone with [condition] be
0 1 2 0
worried about others knowing this?
3. Does having [condition] cause
0 1 2 0
shame to the person affected?
4. Would [condition] cause a problem
for a person to get married or in an 0 1 2 0
existing marriage?
5. Would people try to avoid someone
0 1 2 0
with [condition]?

5-QSI-CS indicator score: 0-10

 5-Question Stigma Indicator – affected
persons (5-QSI-AP)
In the past year: Never Some- Often/ Don’t
times usually know
1. Have you experienced problems in
finding or keeping work because you 0 1 2 0
have (had) [condition]?
2. Have you been worried about others
0 1 2 0
finding out you have (had) [condition]?
3. Have you felt ashamed because of
0 1 2 0
your condition?
4. Have you had problems getting
married / in your marriage because of 0 1 2 0
[condition]?
5. Have people tried to avoid because
0 1 2 0
you have (had) [condition]?

5-QSI-AP indicator score: 0-10