Professional Documents
Culture Documents
Gregory E. Pence
University of Alabama at Birmingham
MEDICAL ETHICS: ACCOUNTS OF GROUND-BREAKING CASES, EIGHTH EDITION
Published by McGraw-Hill Education, 2 Penn Plaza, New York, NY 10121. Copyright © 2017 by
McGraw-Hill Education. All rights reserved. Printed in the United States of America. Previous editions
© 2015, 2011, and 2008. No part of this publication may be reproduced or distributed in any form or
by any means, or stored in a database or retrieval system, without the prior written consent of
McGraw-Hill Education, including, but not limited to, in any network or other electronic storage or
transmission, or broadcast for distance learning.
Some ancillaries, including electronic and print components, may not be available to customers outside
the United States.
1 2 3 4 5 6 7 8 9 0 DOC 21 20 19 18 17 16
ISBN 978-1-259-90794-4
MHID 1-259-90794-5
Chief Product Officer, SVP Products & Markets: Marketing Manager: Meredith Leo
G. Scott Virkler Director, Content Design & Delivery: Terri Schiesl
Vice President, General Manager, Products & Program Manager: Jennifer Shekleton
Markets: Michael Ryan Content Project Managers: Jeni McAtee,
Vice President, Content Design & Delivery: Jodi Banowetz
Kimberly Meriwether David Buyer: Susan K. Culbertson
Managing Director: David Patterson Content Licensing Specialist: Melisa Seegmiller
Brand Manager: Jamie Laferrera Cover Image: ERproductions Ltd/Blend Images LLC
Director, Product Development: Meghan Campbell Compositor: Lumina Datamatics
Product Developer: Anthony McHugh Printer: R.R. Donnelley
All credits appearing on page or at the end of the book are considered to be an extension of the
copyright page.
The Internet addresses listed in the text were accurate at the time of publication. The inclusion of a
website does not indicate an endorsement by the authors or McGraw-Hill Education, and McGraw-Hill
Education does not guarantee the accuracy of the information presented at these sites.
mheducation.com/highered
Preface
This new edition retains in-depth discussion of famous cases, while providing
updated, detailed analysis of the issues those cases raise. Each chapter also focuses
on a key question that could be debated in class.
Unique to this text is a single, authorial voice integrating description of the cases
and their issues with historical overviews. The text is the only one that follows cases
over decades to tell readers what did and, often, what did not, happen. Written by
a professor who helped found bioethics and who has published in the field for 40
years, the text gives students a sense of mastery over this exciting, complex field.
After they have read the book, I hope that students will feel that they have learned
something important and that time studying the material has been well spent.
Death and Dying: The case of Brittany Maynard; the case of Jahi McMath.
Comas: Update on cases of Terri Schiavo, Belgian coma patient Rom Houben,
and minimally conscious states.
Abortion: Updates on death of Kenneth Edelin, declining numbers of abortion
in America. New topics: Telemedicine and early-stage self-abortions, the Planned
Parenthood video controversy, US Supreme Court decision limiting TRAP (Tar-
geted Regulation of Abortion Providers) laws.
Assisted Reproduction: Updates on the Gosselins, McCaughey septuplets, IVF
clinics, mistaken swaps of embryos, outsourced surrogates, and foreigners using
American surrogates; a sperm donor meets eight of his children, right-to-life
groups file in court to protect frozen embryos; state surrogacy laws, Snowflake
(embryo adoption and its high costs), brighter chances for infertile women aged
30–40 of having IVF baby on late tries.
Stem Cells, Cloning, and Embyros: Updates on stem cells, battles over embryos
among divorced couples and right-to-life friends, mitochondria-swapping to
cure genetic disease (“a child with three parents”); hucksterism in selling stem-
cell therapies; continuing problems in cloning primates.
Impaired Babies and Americans with Disabilities Act: Update on “Baby Jane Doe”
Keri-Lynn, Marlise Munoz case; UAB’s controversial SUPPORT study on
preemies, relevance to babies born with microcephaly from Zika virus.
Ethics of Research on Animals: Updates on the Great Ape Project, Edward Taub’s
work, legal protection for chimpanzees in research.
Transplants and Organ Allocation: Updates on numbers, costs, and outcomes,
especially for tracking bad outcomes of adult organ donors.
Genetics chapter: The pitfalls and promises of: personalized genetic testing and
Big Data, CRISPR, and testing for diseases with no treatments.
Chapter on Enhancement: New emphasis on relation of enhancements to people
with disabilities.
If you have suggestions for improvement, please email me at: pence@uab.edu.
®
The 8th edition of Medical Ethics is now available online with Connect, McGraw-Hill Educa-
tion’s integrated assignment and assessment platform. Connect also offers SmartBook for
the new edition, which is the first adaptive reading experience proven to improve grades
and help students study more effectively. All of the title's website and ancillary content is
also available through Connect, including:
• A full Test Bank of multiple choice questions that test students on central concepts and
ideas in each chapter;
• An Instructor's Manual for each chapter with full chapter outlines, sample test
questions, and discussion topics; and
• Lecture Slides for instructor use in class.
Analytics
Connect Insight®
Connect Insight is Connect’s new one-of-a-kind
visual analytics dashboard—now available for both
instructors and students—that provides at-a-glance
information regarding student performance, which is immediately
actionable. By presenting assignment, assessment, and topical
performance results together with a time metric that is easily visible
for aggregate or individual results, Connect Insight gives the user
the ability to take a just-in-time approach to teaching and learning, Students can view
which was never before available. Connect Insight presents data that their results for any
empowers students and helps instructors improve class performance
in a way that is efficient and effective. Connect course.
Mobile
Connect’s new, intuitive mobile interface gives students and
instructors flexible and convenient, anytime–anywhere access
to all components of the Connect platform.
Adaptive
THE FIRST AND ONLY
ADAPTIVE READING
EXPERIENCE DESIGNED
TO TRANSFORM THE
WAY STUDENTS READ
©Getty Images/iStockphoto
SmartBook®
Proven to help students improve grades and study
more efficiently, SmartBook contains the same
content within the print book, but actively tailors
that content to the needs of the individual.
SmartBook’s adaptive technology provides
precise, personalized instruction on what the
student should do next, guiding the student to
master and remember key concepts, targeting
gaps in knowledge and offering customized
feedback, driving the student toward
comprehension and retention of the subject
matter. Available on smartphones and tablets,
SmartBook puts learning at the student’s
fingertips—anywhere, anytime.
www.mheducation.com
About the Author
vii
Acknowledgments
viii
Brief Contents
Chapter 1 Good and Bad Ethical Reasoning; Moral Theories and Principles 1
Chapter 2 Requests to Die: Terminal and Nonterminal Patients 19
Chapter 3 Comas: Karen Quinlan, Nancy Cruzan, and Terri Schiavo 57
Chapter 4 Abortion: The Trial of Kenneth Edelin 84
Chapter 5 Assisted Reproduction, Multiple Gestations, Surrogacy, and Elderly
Parents 109
Chapter 6 Embryos, Stem Cells, and Reproductive Cloning 132
Chapter 7 Impaired Babies and the Americans with Disabilities Act 157
Chapter 8 Medical Research on Animals 179
Chapter 9 Medical Research on Vulnerable Populations 196
Chapter 10 Ethical Issues in First-Time Organ Surgeries 221
Chapter 11 The God Committee 243
Chapter 12 Using One Baby for Another 264
Chapter 13 Ethical Issues in the Treatment of Intersex and Transgender
Persons 284
Chapter 14 Involuntary Psychiatric Commitment and Research on People with
Schizophrenia 299
Chapter 15 Ethical Issues in Pre-Symptomatic Testing for Genetic Disease: Nancy
Wexler, Angelina Jolie, Diabetes and Alzheimer’s 325
Chapter 16 Ethical Issues in Stopping the Global Spread of Infectious Diseases:
AIDS, Ebola, and Zika 346
Chapter 17 Ethical Issues of the Patient Protection and Affordable Care Act 367
Chapter 18 Ethical Issues in Medical Enhancement (and their effect on people with
Disabilities) 392
Chapter 19 Ethical Issues in Treating Alcoholism 405
ix
Contents
PREFACE iii
1. Good and Bad Ethical Reasoning; Moral Theories and Principles 1
Good Reasoning in Bioethics 1
Giving Reasons 1
Universalization 2
Impartiality 3
Reasonableness 3
Civility 4
Mistakes in Ethical Reasoning 4
Slippery Slope 4
Ad Hominem (“To the Man”) 5
Tu Quoque (Pronounced “Tew-kwoh-kway”) 5
Straw Man/Red Herring 5
Post Hoc, Ergo Propter Hoc (“After This, Therefore, Because of This”) 6
Appeal to Authority 6
Appeals to Feelings and Upbringing 7
Ad Populum 7
False Dichotomy (“Either-Or” Fallacy) 7
Equivocation 7
Begging the Question 8
Ethical Theories, Principles, and Bioethics 8
Moral Relativism 8
Utilitarianism 9
Problems of Utilitarianism 10
Kantian Ethics 11
Problems of Kantian Ethics 12
The Ethics of Care 12
Virtue Ethics 13
Natural Law 13
x
Contents xi
Theories of Justice 15
Libertarianism 15
Rawls’s Theory of Justice 15
Marxism 16
Four Principles of Bioethics 16
Final Comment 18
Discussion Questions 18
Notes 18
Viability 103
The Supreme Court Fine-Tunes Roe v. Wade 103
Partial Birth Abortions 104
States Restrict Abortion Clinics 104
Self-Administered Abortion by Telemedicine 105
Further Reading 106
Discussion Questions 106
Notes 106
13. Ethical Issues in the Treatment of Intersex and Transgender Persons 284
David Reimer 284
Intersex People 287
Congenital Adrenal Hyperplasia 288
Fetal Dex 289
Ethical Issues 290
What Is Normal and Who Defines It? 290
Secrecy in the Child’s Best Interest 290
Ending the Shame and Secrecy 291
Transgender/Intersex and Civil Rights 292
Nature or Nurture, or Both? 292
An Alternative, Conservative View 293
Ken Kipnis’s Proposals 293
Medical Exceptions 294
The Dutch Approach: Delaying Puberty 294
Conclusion 295
Further Reading 295
Discussion Questions 295
Notes 296
xviiiContents
Ezekiel, whom the Arabs call Kazquil, was the son of an aged
couple, who had no children. They prayed to God, and He gave
them a son.
Ezekiel was a prophet, and he exhorted the men of Jerusalem to
war, but they would not go forth to battle. Then God sent a
pestilence, and there died of them every day very many. So, fearing
death, a million fled from the city, hoping to escape the pestilence,
but the wrath of God overtook them, and they fell dead.
Then those who survived in the city went forth to bury them, but they
were too numerous; therefore they built a wall round the corpses to
protect them from the beasts of the field; and thus they lay exposed
to the heat and cold for many years, till the flesh had rotted off their
bones.
Once the prophet Ezekiel came that way, and he saw this great
multitude of dead and dry bones. He prayed, and God restored them
to life again, and they stood upon their feet, a great army, and
entered into the city, and lived out the rest of their days. It is said that
among the Jews there are, to this day, descendants of those who
were resuscitated, and they may be recognized by the corpse-like
odour they exhale.[697]
The Jews relate that a celebrated Rabbi found the greatest difficulty
in comprehending the Book of Ezekiel; therefore his disciples
prepared for him three hundred tuns of oil to feed his lamp whilst he
studied at night the visions of the prophet.[698]
XLIII.
EZRA.
Cyrus, in the year 537 before Christ, put an end to the captivity of the
Jews in Babylon, as had been foretold by Daniel; and not only did he
permit the Jews to return to Jerusalem, but he furnished them with
the means of rebuilding their city and temple. The Oriental writers, to
explain the motive of Cyrus, say that his mother was a Jewess, and
that he himself was married to the Jewess Maschat, sister of
Zerubbabel, a granddaughter of the king Jehoiakim.
In 523 before Christ, Cambyses, having reigned a brief time, was
succeeded by Smerdis, the Magian, who is called, in the Scriptures,
Artaxerxes. He, being ill-disposed towards the Jews, withdrew from
them the gifts made by Cyrus, and arrested their work. Smerdis,
however, reigned only two years, and was succeeded by Darius
Hystaspes, who continued the work of Cyrus, by the hands of Ezra
or Esdras, one of the instruments used by God to restore His people.
Ezra was the son of Seraiah, of the lineage of Aaron.
In the Koran[699] it is said that Ezra, passing through a village near
Jerusalem, whose houses were ruined, exclaimed, “Can God restore
these waste places, and revive the inhabitants?”
Then God made him die; and he remained dead for one hundred
years. At the end of that time God revived him, and he saw the
village rebuilt, and full of busy people.
The commentators on the Koran say that Ezra (Ozaïr), when young,
had been taken away captive by Nebuchadnezzar, but that he was
delivered miraculously from prison, and returned to Jerusalem, which
he found in ruins. He halted at a village near the city, named Sair-
Abad. Its houses were fallen and without inhabitants, but the fig-tree
and vines remained in the gardens. Ezra collected the fruit, and
made himself a little cell out of the fallen stones. And he kept near
him the ass on which he had ridden.
The holy man, on contemplating from his hermitage the ruins of the
holy city and the temple, wept bitterly before the Lord, and said often
with a tone rather of lament than doubt, “How can the walls of
Jerusalem ever be set up again?”
Then God bade him die, and hid him from the eyes of men, in his
cell, with all that he had about him, his fruit, his mat, and his ass. At
the close of a century God revived him, and he found all as when he
had died; the ass standing, and the fruit unwithered. Then Ezra saw
the works that had been executed in Jerusalem, how the walls were
being set up, and the breaches repaired, and he said, “God is
Almighty; He can do whatsoever pleaseth Him!”
After his resurrection, he went into the holy city, and spent night and
day in explaining to the people the Law, as he remembered it. But it
had been forgotten by the Jews, and therefore they disregarded his
instruction.
The Iman Thalebi says, that the Jews, to test the mission of Ezra,
placed five pens in his hand, and with each he wrote at the same
moment with like facility as if he held only one; and he wrote all the
Books of the Sacred Canon, as he drew them from his memory,
without the assistance of a book.
The Jews, however, said amongst themselves, “How can we be sure
that what Ezra has written is the true sacred text, since there is none
amongst us who can bear witness?”
Then one of them said, “I have heard say that my grandfather
preserved a copy of the sacred books, and that they were hidden by
him in a hollow rock, which he marked so that it might be recognized
again.”
They therefore sought the place which had been marked, and there
they found a volume containing the Scriptures, which having been
compared with what Ezra had written, it was found that the
agreement was exact. Then the people, astonished at the miracle,
cried out that Ezra was a god.[700]
At the time of carrying away into Babylon, the sacred fire had been
cast into a well in the temple court. Ezra, having drawn some of the
dirt out of the well, placed on it the wood of the sacrifice; then the
flame, which for a hundred and forty years had been extinguished,
burst forth again out of the mire. When Ezra saw this wonder, he
thrice drank of the dust out of the well; and thus he imbibed the
prophetic spirit, and the power of recomposing from memory the lost
sacred books.[701]
XLIV.
ZECHARIAH.
Footnotes
1. Rev. xii. 7-9.
3. Luke x. 18.
8. Eisenmenger, i. p. 104.
9. Ibid., i. p. 820.
92. Gen. v. 1.
100.
Jacobus Vitriacus, Hist. Hierosol., c. lxxxv.
101.
As King Charles’s oak may be seen in the fern-root.
102.
Fabricius, i. p. 84.
103.
Neue Ierosolymitanische Pilgerfahrt. Würtzburg, 1667, p. 47.
104.
Stephanus Le Moyne, Notæ ad Varia Sacra, p. 863.
105.
Abulfeda, p. 15. In the Apocryphal book, The Combat of Adam
(Dillman, Das Christliche Adambuch des Morgenlandes;
Göttingen, 1853), the same reason for hostility is given. In that
account, Satan appears to Cain, and prompts him to every act
of wickedness.
106.
Tabari, i. c. xxx.
107.
Jalkut, fol. 11 a.
108.
Yaschar, p. 1089.
109.
Targums, ed. Etheridge, London, 1862, i. p. 172.
120.
Jalkut Chadasch, fol. 6, col. i.
121.
Pirke R. Eliezer, c. xxi.
122.
Ibid.
123.
Ibid.
124.
Eisenmenger, ii. p. 8.