Professional Documents
Culture Documents
DOI 10.1007/s10803-017-3236-8
ORIGINAL PAPER
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J Autism Dev Disord
disability. This transition to an advocacy-based approach Wehmeyer and Palmer 2003). Knowledge about one’s dis-
has proven challenging for many people with ASD, who ability, as well as its associated strengths and difficulties,
are less likely than students with other types of disabilities is critical to SD (Hitchings et al. 2001; Webster 2004). To
to take leadership of their own transition planning (Shogren target SD, STEPS focuses on building self-knowledge (e.g.,
and Plotner 2012). Per the ADA, however, many students about ASD, challenges in college), self-advocacy, and goal-
who have disclosed a disability to educational support staff directed behavior.
are entitled to accommodations which allow for access of Self-regulation (SR) is a multifaceted construct that
educational material. involves monitoring, oversight, and modulation of behav-
Among adolescents with ASD, both transition plan- ior, emotion, and cognition (Baumeister et al. 2007; Karoly
ning participation and identifying a transition goal of col- 1993). SR is closely related to executive functioning capac-
lege enrollment while still in high school is associated ity (e.g., one’s ability to update and monitor information,
with increased odds of attending a postsecondary insti- inhibit prepotent responses; Bridgett et al. 2013) and abil-
tution (Wei et al. 2016). Integrating perceptions of adult- ity to regulate one’s emotions, or adapt and modify one’s
hood and identity development at the high school level emotional response in the service of identified goals (i.e.,
could also work to address postsecondary expectations and goal-directed behavior; Bridgett et al. 2013; Thompson
overall outcomes (Anderson et al. 2015). Programming to 1994). Problems with SR, including executive function and
promote smooth transition from high school to postsecond- emotion regulation impairments, are commonly ascribed
ary education may prove critical in the prevention of a host to individuals with ASD (Corbett et al. 2009; Hewitt 2011;
of adverse outcomes as well as promotion of success in Mazefsky and White 2013). These deficits can be related
college. to a host of problems such as inflexibility in routines, poor
To receive accommodations once enrolled in college, inhibitory control and time management, amotivation or
students typically must register with their disability sup- impaired goal-directed behavior (e.g., Jahromi et al. 2009).
port office and disclose their disability. Students who dis- In STEPS, SR is targeted in several ways including teach-
close their disability before the end of their first year in ing effective stress management techniques, training in
college have been found more likely to graduate college problem-solving and goal-setting, and outings (practices)
than students who disclose later during their college ten- related to the student’s identified goals.
ure (Hudson 2013). Once registered for supports or accom- A bottom-up, multi-method approach was taken to create
modations, support staff must determine how to best meet a developmentally sensitive transition program that would
the needs of the student. Though limited, research suggests support students with ASD both prior to and during the
that the profile of challenges and needs that students with transition into college. To understand the challenges faced
ASD face is fairly unique, at least in relation to students by postsecondary students with ASD and those contemplat-
with ADHD (Elias and White 2017). This finding suggests ing high school graduation and matriculation into college,
a need for ASD-specific transition programming. four separate studies were undertaken (Duke et al. 2013;
Herein, we describe the development and content of a Elias and White 2017; Elias et al. 2017; White et al. 2016a)
transition program designed specifically for students with to ensure that the final program addressed consumer-per-
ASD. The program itself is both theoretically informed and ceived needs. Such a participatory process approach is crit-
empirically based. The goal of the program is two-fold: to ical to the development of programs to promote consumer
promote successful transition into postsecondary education utility and, ultimately, dissemination and adoption (e.g.,
and to improve the postsecondary school experience for Chambers et al. 2007).
students who have already matriculated. Following a preliminary focus group with college
students with ASD and consultation with experts in the
field of adult ASD and transition (Duke et al. 2013),
Development of the STEPS Program the preliminary version of the transition support pro-
gram was developed and piloted in a small group of col-
The Stepped Transition in Education Program for Students lege students (n = 6). Results from that pilot study were
with ASD (STEPS) is theoretically based and consumer- promising in terms of feasibility of implementation and
informed. Conceptually, the mechanisms of action are acceptability to the students (White et al. 2016b). Sub-
improved self-regulation and self-determination. Self-deter- sequently, White and colleagues (2016a) used a mixed
mination (SD), or the ability to identify and achieve one’s methods approach involving a nationwide online survey
own set goals (Field and Hoffman 1994), has been found and in-person focus groups with three stakeholder groups
to predict better post-school outcomes in typically develop- (students with ASD, parents of students with ASD, and
ing individuals as well as among students with other dis- educators and school personnel), the results of which
abilities (e.g., Chambers et al. 2007; Deci and Ryan 2002; indicated fairly high convergence in identified challenges
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J Autism Dev Disord
across the stakeholders. The most commonly identi- STEPS: Overview and Content
fied needs were in the domains of interpersonal compe-
tence, ability to manage competing demands in college, STEPS targets SD and SR, which are hypothesized to medi-
and poor emotional regulation (White et al. 2016b). The ate positive outcomes such as college adjustment, academic
third study included a series of focus groups with both performance, and healthy independent living. STEPS is
secondary and postsecondary educators, results of which comprised of two separate, distinct levels to match the stu-
revealed themes of competence, autonomy and independ- dent’s particular needs in relation to transition to higher
ence, and development of interpersonal relationships as education (see Fig. 1). Step 1 is for students currently in
the primary areas of difficulty faced by college students secondary school who are either planning for transition to
with ASD (Elias et al. 2017). college, or unsure of plans after secondary school. Step 2 is
Subsequent to the pilot study (White et al. 2016a), for currently enrolled college students, and those who have
the modified version of the STEPS program was shared exited secondary school but have not yet matriculated into
with an expert consultant panel comprised of clinical postsecondary education. The two steps are independent; in
scientists and educators in the fields of postsecondary other words, the program was not designed such that stu-
academic accommodations for students with disabili- dents must complete Step 1 prior to Step 2, although that
ties, ASD in adulthood and its assessment, and treat- can happen. STEPS is individualized and person-centered.
ment development. These consultants provided feedback There are core content modules for each these curricula
on the content areas covered and delivery modifications (see Table 1), but implementation is flexible so that the
to optimize acceptability to the students, as well as the program can be individualized to the student’s interests,
assessment procedures and study design. We also sought challenges, and goals. STEPS adopts a cognitive-behavio-
feedback on the program from parents and students with ral approach to helping students develop SD and SR skills
ASD, to gain additional insight that would inform refine- and make progress toward their transition goals. Comple-
ment of the curriculum. These end-users offered practi- tion takes 12–16 weeks, or the length of a typical academic
cal suggestions, such as helping students in secondary semester.
school consider the possible benefits of a 2-year college
prior to attending university away from home, address- Step 1
ing fears related to talking to people in authority in order
to encourage self-advocacy, and openness to receiving The curriculum of STEP 1 involves active collaboration
technological support (e.g., apps) to improve skills. They across stakeholders (i.e., students, parents, school person-
also provided valuable insight into non-specific factors nel) throughout the program. The parent and student, upon
that can affect a student’s ability to feel empowered to entry into the program, identify a staff member at the stu-
self-advocate, such as ability to trust others’ intentions dent’s school who can assist the student (e.g., encourage
and limited experience in identifying supportive people participation in planning meetings at school) throughout
(allies) in a new environment. STEPS. This is often a special education teacher, a general
Step 2
Facilitate transion
Social integraon
Life skills coaching
Idenfying and securing
appropriate services, accommodaons
Step 1
Readiness assessment
Psychoeducaon
Idenfy deficits for remediaon
Family-centered decision-making
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J Autism Dev Disord
Table 1 Content by modality Counseling sessions Corresponding online content School personnel in-services (2)
across Step 1 and Step 2
Step 1
Planning and goal setting; Identifying services ASD overview
determine readiness for college Promoting independence Addressing social difficulties
transition School-family communication Common challenges of students
Learn about college expectations, Self-advocating with ASD
supports, services Tools for success Easing transition
Identify areas to work on, chal- Transition involvement Post-secondary options
lenges related to transition Transition planning Preparing students
Identify strategies to improve Promoting student involvement
deficit areas in transition planning
Practice self-advocacy and inde- Understanding postsecondary
pendent decision-making resources
Student rights and responsibilities
*Immersion experience
Step 2
Planning and goal setting College tools for success N/A
Goals and challenges clarification Identifying services
Acceptance and change Involvement in college
Independent adulthood Promoting independence
Problem-solving I School-family communication
Problem-solving II Self-advocacy
Meeting new people
Increasing cognitive flexibility
Healthy stress management
Emotion regulation I
Emotion regulation II
Planning ahead
education teacher, or a case manager. All three stakeholders campus, linking to STEPS content, at spaced intervals
play critical and interdependent roles as part of the STEPS throughout the day. During the immersion experience, the
program. Developed for students who are at least 16 years counselor coaches the student on skills related to behavio-
of age, most Step 1 participants are in their last 2 years of ral and emotion regulation (e.g., reviewing a class syllabus
secondary school. and discussing time management relative to the demands)
There are six counseling sessions, which are held and self-advocacy (e.g., asking questions during meetings
approximately every other week. Stakeholder participation with instructors and disability staff).
in meetings is based on session content, with varying group Prior to assisting a student, school personnel attend two
composition (i.e., student only, student-parent, or student, half-day training sessions (in-services) on supporting stu-
parent, and school personnel) throughout the six sessions. dents with ASD during transition. These sessions are pri-
The student is assigned activities (homework) to complete marily didactic in nature, but offer ample time for question
related to transition goals and, in between sessions, the and discussion. In addition to the content, case examples
counselor has regular check-ins to monitor progress toward and small group activities are used to encourage dialogue
goals and completion of practice assignments. In addition and active learning.
to the six sessions in the clinic or at their current school,
students take part in an immersion experience at either a Step 2
2- or 4-year postsecondary institution, depending on where
they plan to matriculate post-graduation. During this Students in Step 2 receive one-on-one counseling (12–13
immersion experience, which is coordinated and led by the sessions), community-based outings (practices), and online
counselor, students and their parents first tour campus, and content over a 12 to 16-week period. The counselor acts
then the student (usually without the parent but with the aid as a ‘coach’ throughout the program, having regular con-
of the counselor, to promote independence) meets with the tact via calls, texts, or emails outside of sessions with the
college’s disability support office, attends a college class, student to try to ensure continued work toward the identi-
and eats lunch in a campus dining facility. Counselors fied goals (e.g., ensuring student is studying for upcoming
also present specific didactics relating to life on a college exam). The student’s parent/caregiver and school personnel,
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Compliance with Ethical Standards Field, S., & Hoffman, A. (1994). Development of a model for self-
determination. Career Development for Exceptional Individuals,
17, 159–169.
Conflict of interest The authors report no potential conflicts of in-
Hewitt, L. E. (2011). Perspectives on support needs of individu-
terest.
als with autism spectrum disorders: Transition to college. Top-
ics in Language Disorders, 31(3), 273–285. doi:10.1097/
Ethical Approval All procedures performed in studies involving
TLD.0b013e318227fd19.
human participants were in accordance with the ethical standards of
Hitchings, W. E., Lusso, D. A., Ristow, R., Horvath, M., Retish, P.,
the institutional and/or national research committee and with the 1964
& Tanners, A. (2001). The career development needs of college
Helsinki declaration and its later amendments or comparable ethical
students with learning disabilities: In their own words. Learning
standards.
Disabilities Research and Practice, 16, 8–17.
Hudson, R. L. (2013). The effect of disability disclosure on the gradu-
Informed Consent Informed consent was obtained prior to data col- ation rates of college students with disabilities. Unpublished
lection. doctoral dissertation. Virginia Tech, Virginia.
Individuals with Disabilities Education Improvement Act of 2004,
P.L. 108–446, 20 U.S.C. $ 1400 et seq.
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