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HCN00 – HOSPICE NURSING LECTURE ➢ An approach that improves the quality of life of

patients (adults and children) and their families who


HOSPICE CARE NURSING are facing problems associated with life-threatening
illness.
Introduction to Hospice and Palliative care ➢ This type of care is focused on providing relief from
the symptoms and stress of the illness.
Hospice ➢ The goal is to improve quality of life for both the
➢ Medieval Latin hospitium patient and the family.
➢ “Hospitality, lodgings, monastic guesthouse, shelter ➢ Palliative care is provided by a specially-trained team
maintained by a religious order for the poor and of doctors, nurses, and other specialists who work
infirm.” together with a patient's other doctors to provide an
➢ Latin word “hospit, hospes” means guest extra layer of support.
➢ + “ium” means function or occupation ➢ Palliative care is based on the needs of the patient, not
➢ A program designed to provide palliative care and on the patient's prognosis. It is appropriate at any age
emotional support to the terminally ill in a home or and any stage in a serious illness, and it can be
homelike setting so that quality of life is maintained provided along with curative treatment
and family members may be active participants in care
(Webster), Difference between Hospice and Palliative Care
➢ Specialized type of care is given to people who are ➢ HOSPICE CARE
terminally ill. • for terminally ill and dying patients
➢ It focuses on providing compassionate care while • bereavement services are provided up to 1 year
maximizing a person's quality of life. after death
➢ Hospice care can be initiated when an individual has a • care is primarily delivered at patient's home
diagnosis of a life-limiting or terminal illness with a • patient chooses to forgo curative treatment
prognosis of 6 months or less. • covered by Hospice Medicare Benefit
➢ The patient must no longer be seeking curative • life expectancy is 6 months or less
treatment. ➢ PALLIATIVE CARE
➢ Two physicians certify the patient's prognosis. • aimed promoting comfort for seriously ill whether
➢ Hospice care involves holistic care, which requires terminal or not
focusing on not just the physical aspects of comfort, • bereavement services are not always provided
but also the psychological, psychosocial, and spiritual
• care maybe in acute care, long-term care, homes
aspects of care and comfort for the patient and family
or other settings provided either curative or end-
➢ Compassionate comfort care (as opposed to curative of-life treatments
care) for people facing a terminal illness with a
• may or may not be covered by Medicare or other
prognosis of six months or less, based on their
health insurance life expectancy is not a factor.
physician's estimate if the disease runs its course as
expected.
History of Hospice Care
➢ An interdisciplinary group of team members
➢ 1989
physicians, nurses, aides, social workers, counselors,
• Concept of Hospice and Palliative Care was
chaplains, volunteers, therapists, and pharmacists.
integrated into the Family
➢ For the next year following the patient's death,
• Health Care Program of the Department of Family
bereavement counselors and volunteers work with
and Community Medicine (DFCM) of the
family members of all ages to provide support and
University of the Philippines -Philippine General
comfort, especially during many of the important
Hospital (UP- PGH).
"firsts," such as the deceased patient's birthday,
wedding anniversary, holidays, and so on. • The focus of service then was Home Care.
➢ 1991
Palliative • First Hospice Home Care Program was established
➢ Compassionate comfort care that provides relief from by the Philippine Cancer Society (PCS) - Mamita
the symptoms and physical and mental stress of a Pardo de Tavera (President and DSwd secretary)
serious or life- limiting illness. and Dr. Catherine L. Krings as Program Director
➢ Palliative care can be pursued at diagnosis, during who eventually became the Coordinator for the
curative treatment and follow-up, and at the end of Hospice Care Program of DFCM in UP-PGH.
life. ➢ 1994 to Early 2000s
➢ It prevents and relieves suffering through the early • Dr. Josefina Magno - a Filipino Oncologist who
identification, correct assessment, and treatment of was one of the pioneers of the Hospice Movement
pain and other problems, whether physical, in the US, and one of the founders of the American
psychosocial, or spiritual. Academy of Hospice and Palliative Medicine.
• He strengthens the national hospice care • Convention, held in Manila and Davao
movement and the establishment of Hospital- respectively.
Based Hospice Care Programs such as Makati • It was during the year 2019 when two substantial
Medical Center (1994) and the University of Santo Bills were enacted into Law the first of which is
Tomas Hospice Program (1997). Republic Act 11215 the National
➢ Community Based Hospices including Foundations • Integrated Cancer Control Act (NICCA), and
and Disease-Specific Programs incorporating the Republic Act 11223 - Universal Health Care Law.
model of Hospice and Palliative Care also commenced • The combined efforts of the Philippine Cancer
during this period: Society and the Philippine Society of Hospice and
• Madre de Amor Hospice in Laguna Palliative Medicine were instrumental in including
• Ayala Alabang Hospice in Muntinlupa the provision of Hospice and Palliative Care
• Kythe Foundation (East Avenue Medical Center) Services in the Universal Health Care.
• Canossian Sisters of Charity in Bukidnon & • The society participated in various stakeholder
Cagayan de Oro meetings, Implementing Rules and Regulations, on
• Starfish Program in San Lazaro Medical Center these bills.
• PALCARE Volunteer Group ➢ 2020
• Center for Health Improvement and Life • With the current threat of the COVID-19
Improvement Development (Childhaus) Pandemic, the Society in partnership with Hospice
➢ 2002 Philippines, the Philippine Society of Public Health
• Establishment of the First Hospice and Palliative Physicians (PSPHP) and the Ruth Foundation
Medicine Program in UP-PGH. This was headed by released three Guidance Documents for Palliative
Dr. Catherine L. Krings. This was followed by Dr. Care.
Agnes Bausa-Claudio (2004-2006), Dr. Rachel • These guidance documents include
Rosario (2006-2009) and Dr. Manuel F. Medina o (1) Care for Palliative and Bedridden Patients
(2010 - 2019). 2004 in Communities on Enhanced Community
• The Phillippine Cancer Society convened and Quarantine
launched the National Hospice and Palliative Care o (2) Guidance for Palliative Hospice and
Council of the Philippines (Hospice Philippines). Bereavement Care for COVID-19 and other
➢ 2007 patients facing Life-Threatening Illnesses in
• The 7th Asia Pacific Hospice Conference was held Hospitals and
in the Philippines. This was sponsored by the o (3) Triage Decisions, Shared Decision Making
Phillippine Cancer and Advanced Care Planning for Covid-19
• Society and hosted by the National Hospice and Situation: A Guidance Document for Levels 2
Palliative Care Council of the Philippines. and 3 Health Care Facilities.
➢ 2012 • Department of Health (DOH) - Department Order
• Southern Philippines Medical Center in Davao 2020-1431 which aims for the development of the
offered the 2nd Sub-Specialty Fellowship Training Manual of Operations, Procedures and Standards
Program with Dr. Rojim Sorrosa as section head. and Training Modules with Phase One
➢ 2015 Implementation of the National Palliative and
• The Philippine Society of Hospice and Palliative Hospice Care Program due to the Republic Act
Medicine (PSHPM) was established and 11215 and Republic Act. 11223. Together with
recognized as a Sub-Specialty Society under the other stakeholders the Society is currently a
Philippine Academy of Family Physicians. member and plays one of the lead roles in the
• The founding President then was Dr. Josefina newly created Technical Advisory Group for this
Isidro-Lapena (2015-2017), followed by Dr. project. (PSHPM 2020.)
Rumalie Corvera (2017-2019).
• The Philippines Department of Health (DOH) Concepts, Principles, Theories in Hospice Care
ordered the National Policy on Palliative and ➢ Concepts
Hospice Care (AO 2015-0052) which aimed to sets • vehicles of thought that involve images. Are words
overall policy directions and identify the roles and that describe objects, properties, or events & are
functions of DOH and partner agencies in the basic components of theory.
provision and hospice care in hospitals, health • Types:
facilities and communities. o Empirical concepts
➢ 2018-2019 o Inferential concepts
• Initiated the Specialty Examination for the Board o Abstract concept
Certification of Palliative Specialists. ➢ Principles
• Organization of the 1st and 2nd Annual PSHPM
National
• 1. Care providers with different professional • A non-judgmental and ‘authentic’ presence, helps
backgrounds work as a team to address physical, the patient and the family to express their
social, emotional, and spiritual needs. thoughts and to become conscious of their
• 2. Focus on respecting the expressed wishes and experiences
goals of the individual and family. ➢ Caring
➢ Theory • Nurse accompany the patient and family through
• A theory: is a set of concepts and propositions that the ‘journey’ of illness with humility, love,
provide an orderly way to view phenomena. kindness, heart-centered authentic presence,
• It is a belief, policy, or procedure followed as the compassion, and appreciation for patterns
basis of action, (Webster new collegiate ➢ Transformation and transcendence
dictionary. • Nurse helps patients to transform their point 9&&
• Shared theory view on illness, ‘reframing’ patients’ hopes by
• Unitary caring model (Reed) identifying new wishes and goals
• Humanistic nursing theory • Transcendence is when time, space, and
• Peaceful end of life theory (Rulland and Moore). physicality pause in a caring moment called
• Comfort theory (Kolcaba) ‘sanctuary’
➢ Relationship
Shared theory • Represents a connection between people’s spirits
➢ Nurse's competence on providing quality palliative within a caring moment and manifests as
care continuous dialogue, negotiation, and meaning
➢ Bandura's social cognitive creation and sharing
➢ Orem's theory ➢ Meaning
• Nursing competence • Consists in the understanding of the illness and
o must have specialized training and clinical the dying experience that the patient gains
care experience, including knowledge of all through the caring of the nurse while improving
areas of social, interpersonal, professional- well-being.
technological, intellectual, and practical skills
• Nursing self-competence Humanistic Nursing Theory
o the capability to judge one's abilities in ➢ Paterson & Zderad, 1976
treating patient suffering. ➢ Nurse-patient relationship is characterized by
o nurses with high self-perceived competence interaction designed to promote well-being and
provide better quality care than nurses with existential growth in the context of the lived world.
low self-perceived competence. The nurse cares for the patient, and other nursing
• Nursing interventions actions or activities.
o Are tailored to patients' self-care deficits. ➢ Elements in HNT
o Partially compensatory systems are used with • Moreness-choice – each individual nurses’
palliative care patients working together to preferences (alleviate suffering, providing holistic
meet their self-care deficits and implement care) on how to respond to situations in the field
supportive-educative systems. • Call-response – the relationship between the
o Total compensatory systems are used with patient and nurse in the context of the patient
dying patients. seeking for care.
It is a very specific situation because (1) the
Unitary Care model patient is experiencing a form of discomfort or
➢ Pattern pain, (2) the patient is actively asking for
• Person’s unique story and experience treatment to alleviate said symptoms and (3) the
• The non-judgmental approach of nurses focuses nurse reacts in a context-specific manner by
on the patient’s personal experience of health, providing quality care to the best of their efforts.
illness, death, and dying
➢ Wholeness Middle range theory: Peaceful end of life
• Each person is greater than and different from the ➢ Developed by Cornelia M. Ruland and Shirley M.
sum of his/her parts Moore
• Intervention in different areas of suffering
• Considering and appreciating the entireness of the
ill person along with their family and community
➢ Consciousness
• Cognition of the continuous transformation and
personal growth that occur for the patient, family,
and nurse during their relationship
Peaceful End-Of-Life Theory Comfort theory
➢ the structure-setting is the family system (terminally ➢ Kolcaba describes comfort as a relief, ease and
ill patient and all significant others) transcendence and comfort can occur in the following
➢ positive outcomes of the following: contexts: Physical, psychospiritual, environment, and
• (1) being free from pain sociocultural Current nursing.2011)
• (2) experiencing comfort ➢ Human being
• (3) experiencing dignity and respect • Comfort is achieved when the patient's pain needs
• (4) being at peace are met
• (5) experiencing a closeness to significant others • For example, in regard to pain medication
and those who care. Incorporating patient administration, when the patient receives pain
preferences into healthcare decisions medication, they feel a relief from the
medication's effect on their pain. Relief is
achieved.
• Ease comfort is focused on the psychological state
of the patient (Kolcaba, 2007).
• They become at ease because their pain is
subsiding
• Transcendence happens when the patient is able
to rise above their challenge of health problems
and pain (Kolcaba, 2007).
• Three human needs:
o RELIEF
o EASE
o TRANSCENDENCE
➢ Environment
➢ Ruland and Moore's (1998) theory • A calm and comforting environment will allow the
• 1. The occurrences and feelings at the end-of-life patient's anxiety level to decrease. The patient's
experience are personal and individualized. anxiety level will be reduced and thus resulting in
• 2. Nursing care is crucial for creating a peaceful the patient becoming relaxed and comfortable.
end-of-life experience. • A quiet and relaxed surrounding can be enhanced
➢ Two additional assumptions are implicit: by the caring nurse and the patient's loved ones
• 1. Family and all significant others are an being near
important part of end-of-life care. ➢ Health
• 2. The goal in end-of-life care is to maximize • After anxiety and pain are addressed, the patient
treatment so that the best possible care will be is able to deal with the care they need and the
provided through the judicious use of technology recovery process. According to Kolcaba, health is
and comfort measures, to enhance quality of life considered to be optimal functioning, as defined
and achieve a peaceful death. by the patient, group. family, or community
➢ Six explicit relational statements were identified (Koicaba, 2011).
(Ruland and Moore, 1998) as theoretical assertions for ➢ Nursing
the theory, as follows: • The nurse addresses the patient's comfort needs
• Providing emotional support, monitoring and and creates a careplan. As the patient's comfort
meeting the patent's expressed needs for and needs change, the nurse interventions are
anxiety medications, inspiring trust, providing the updated.
patient and significant others with guidance in • If the patient feels that they are being cared for
practical issues, and providing physical presence properly, they will be emotionally and mentally
of another caring person f desired contribute to better, which will aid in their recovery (Kolcaba,
the patient's experience of being at peace. 2011).
• Facilitating participation of significant others in
patient care; attending to significant others' grief, Hospice Interdisciplinary Team
worries, and questions: and facilitating ➢ Core Hospice Interdisciplinary Team Members
opportunities for family closeness contribute to • Hospice Physician
the patient's experience of closeness to significant • Hospice Nurse
others or persons who care. • Hospice Social Worker
• The patient's experiences of not being in pain, • Hospice Chaplain
comfort, dignity, and respect being at peace, and ➢ Non-Core Hospice Interdisciplinary Team
closeness to significant others or persons who Members
care contribute to the peaceful end of life. • Hospice Physical therapists
• Hospice Occupational therapists • available to ease the burden on family caregivers
• Hospice Speech-language Pathologists by participating in activities such as light
• Hospice/ Home health aides housekeeping.
• Bereavement Specialist • Home health aides - assist the patients with
• Volunteers personal care and visit patients two to three times
a week to ensure that they are safe and
➢ Hospice Nurse comfortable.
• skilled in assessing and managing a patient's pain ➢ Bereavement Specialist
and symptoms. • addresses both anticipatory grief and loss after
• trained caregivers who provide hands-on patient death.
care. • hospice families receive bereavement support up
• skilled listeners, hospice nurses comfort the to 13 months after a death, including consistent
family while also teaching them how to take the contact, support groups, grief education, and one-
best care of their loved one. on-one visits.
• hospice patients receive two or three visits a week • always available to those who've experienced the
from their dedicated case manager nurse death of a loved one.
• an on-call nurse is available 24 hours a day, seven ➢ Volunteer
days a week, to provide medical assistance to • specially trained in hospice and end-of-life issues
hospice patients and their families. to provide compassionate companionship for
➢ Hospice Social Worker patients and families or to facilitate their care.
• provide emotional and psychosocial support to • Volunteer's duties can range from visiting patients
the patient and family. to crafting patient items to documenting patients'
• coordinate the logistics of the patient's care, work life stories to helping in the office.
with insurance companies or the Veterans • provide support to patients on a wide variety of
Administration, and help with finances, funeral levels, including comfort, preparing meals and
planning, or other tasks. running errands.
• always available to lend a friendly and listening
ear.
• assist patients with their emotional and social
needs.
➢ Hospice Chaplain
• Regardless of a person's beliefs or religious
traditions, hospice chaplains are available to
address the spiritual issues that often arise as a
patient nears death.
• Available for the patient and the family, honoring
and supporting the cultural traditions and values
they hold dear.
• When requested, the hospice chaplain works with
the patient's specified clergy.
• The role is to serve as a source of spiritual
guidance as well as to relieve some of the burdens
that families are facing during their grieving
process.
➢ Hospice Physical Therapists
• develop a treatment plan to enable a patient to be
able to move freely as well as to reduce pain,
restore function, and avoid further disability.
➢ Hospice Occupational Therapists
• identify life roles and activities that are
meaningful to them
• help them to overcome the obstacles hindering
the performance of these activities.
➢ Hospice Aide
• certified nursing assistants who provide personal
care to the patient, such as bathing, dressing, or
mouth care.
LEVELS OF CARE ➢ Upon receiving a referral, a hospice nurse and a
➢ The level of hospice care will be determined by hospice social worker conduct an initial assessment.
interdisciplinary team in collaboration with the ➢ information regarding hospice transition includes:
patient and family • 1. patient and family goals, (comfort and
➢ hospice nurses assess prospective patients’ eligibility treatment)
for hospice services • 2. hospice philosophy and revocation options
➢ Philosophy remains the same: to offer expert medical • 3. services provided by hospice and those that are
care and emotional support that respects the unique not provided
wishes of the patient. • 4. availability of inpatient and respite services
➢ Level of care: • 5. fees or co-pays (if applicable)
• 1. Routine home care • 6. process of discharge and/or revocation
• 2. Continuous home care ➢ To initiate hospice services:
• 3. General inpatient care ➢ The patient must sign a Notice of Election ( Medicare -
• 4. Respite care 5 days)
➢ Notice of Election includes:
1. Routine home care • 1. Name of the hospice that will provide care to
➢ Pain management, symptom management, emotional the patient.
and spiritual counseling for patient and family, • 2. the patient’s or patient representative’s
assistance with daily tasks, nutritional and therapeutic acknowledgment of understanding of hospice
services. Intermittent care based on patient’s needs. services and waiver of certain Medicare benefits.
➢ team ensures comfort and dignity. Diagnosis-specific • 3. the date of election of hospice care, must be the
equipment, supplies and medication are provided at 1st day of the
no cost. • hospice care or later, but not earlier.
• 4. the name of the physician, nurse practitioner, or
2. Continuous home care physician assistant who will serve as the attending
➢ “crisis care”, experiencing a medical crisis, when physician as well as the provider’s contact
symptoms require more intensive management. information and National Provider Identifier NPI
nursing or extended periods of support. • 5. acknowledgment that the provider serving as
➢ Intensive Comfort Care 24/7. manage acute symptoms the attending physician is the choice of the patient.
and avoid hospitalization (Centers for Medicare and Medicaid Services,
2018)
3. General inpatient care
➢ maybe necessary if a patient’s symptoms can no ORIENTATING PATIENTS AND FAMILIES TO HOSPICE
longer be managed at home. Goal: for the control of SERVICES
severe pain and stabilize symptoms so he can return ➢ At the initial hospice visit, the nurse and SW should
home if possible. Some prefer to spend their final days establish rapport with the patient and family.
in an inpatient center as a neutral, safe space with ➢ If admitted the family should be oriented to the types
loved ones. of services that will be provided such as:
➢ cozy inpatient offers the support of an acute-care
• 1. durable medical equipment
facility with homelike amenities.
• 2. medication related to terminal illness
• 3. 24-hour availability of hospice staff and
4. Respite care
• 4. care from the IDT team
➢ Much-needed break for loved ones providing care at
➢ Families should also be aware that hospice care does
home while allowing patients to receive appropriate
not encompass:
RTC symptom management.
➢ patients spend a short time in a Medicare-certified • 1. curative treatment of the terminal illness
inpatient hospice setting so their primary caregivers • 2. emergency services
can take a break. To avoid burnout and provide care • 3. live-in caretakers
more efficiently. • 4. long-term inpatient services or
• 5. ongoing individual counseling
HOSPICE ADMISSION AND LEVELS OF CARE
HOSPICE ADMISSION CERTIFICATION AND RECERTIFICATION OF
➢ Use the hospice eligibility criteria REQUIREMENTS
➢ Determine the Level of hospice care ➢ Patients admitted to hospice provided the eligibility
➢ Information shared at the initial meeting with the requirements
patient and family should be accurate and clear to the ➢ The initial hospice certification period is six months,
patient and family. which
➢ Medicare defines as two 90-day certification periods.
➢ Following the first 90-day period, the hospice medical ➢ 5. Does the patient already reside in a long-term care
director certifies the patient’s terminality facility? Is the staff able to co-manage e-o-l concerns
➢ Following the 2nd 90-day certification period, with the hospice team?
recertification of the terminal illness is required every ➢ 6. Can the patient’s symptoms be managed in the
60 days for as long as the patient receives hospice home with continuous care from the hospice staff?
services.
➢ Patients who continue to meet eligibility requirements After completing the assessment, and in consultation with
can continue to receive hospice services for an the patient and family, the hospice team may recommend
unlimited number of 60-day periods. one of the following hospice level:
➢ A physician provides a face-to-face visit with the ➢ 1. Routine home care: care in the home with regularly
patient during the 3rd and subsequent benefit periods scheduled visits from the hospice team
➢ 2. Continuous home care: continuous care is provided
FACE-TO-FACE ENCOUNTERS in the home, predominantly by nurses, but can be
➢ As a result of the Patient Protection and Affordable supplemented with hospice aides. This type of care is
Care Act of 2010, intended to support patients and families through
➢ The patient must be seen by a physician before the 3 rd crises on a short-term basis to allow the patient to stay
benefit( after the first 180 days of service). at home.
➢ If the physician conducts the face to face visit, he/she ➢ 3. Inpatient Respite Care: care is provided within an
must be an employee of the hospice organization. approved facility for a short period of time to allow
➢ The purpose of the encounter is to verify continued respite for the caregiver.
eligibility for hospice services. ➢ 4. General Inpatient Care GIP: care is provided in an
➢ Following the encounter, the provider must document inpatient facility to achieve pain control or symptom
the clinical findings that rationalize a 6-month life management that cannot be accomplished at home.
expectancy.
➢ Documentation is provided to determine whether Last 7 days: this service intensity add-on provides
hospice services and LEVEL OF HOSPICE CARE are additional reimbursement for the care of a patient during
attained the last week of life, which is intense and costly. To receive
reimbursement in addition to the per diem routine rate,
LEVELS OF HOSPICE CARE following criteria must be met:
➢ Hospice nurses determine which level of care is most ➢ 1. The patient’s level of care is “routine home care”
appropriate for the patient. ➢ 2. the date of care is within the last 7 days of the
➢ For some, home care is the most appropriate level of patient’s life
care. There is a caregiver present and the patient ➢ 3. Direct patient care is provided by a registered nurse
prefers to stay at home rather than transfer to an or licensed social worker.
inpatient facility.
➢ In other cases, inpatient care may be most appropriate ➢ With the appropriate level of care determined, the
due to the lack of a caregiver or it is in line with the nurse coordinates the plan of care for the patient with
patient's preferences. the IDT.
➢ Decision-making involves a series of questions and ➢ The IDT may update the plan of care as often as
decisions to determine the level of hospice care necessary, but no less frequently than every 15 days.

ASSESSING THE PATIENT’S GOALS ➢ A documentation checklist may be useful for the
➢ 1. What is the most important to the patient right hospice IDG in ensuring that all documentation is
now? complete.
➢ 2. If the patient’s condition were to change, would they ➢ Sample documentation checklist is available at
want to stay at home or go to an inpatient setting? https:www.
➢ 3. What symptoms or conditions would make the cgsmedicare.com/hhh/education/materials/pdf/j15_
patient or family consider a hospital admission? hospice_doc_checlistre.pdf/
➢ 4. Does the patient have a Living Will? Is an order ➢ The hospice nurse’s role in determining the
written and accessible? appropriate level of care for a patient and coordinating
care with the IDT during transitions was reviewed.
ASSESSING CARE NEEDS
➢ 1. Is there a reliable caregiver at home? EVALUATION
➢ 2. Is the home environment safe? ➢ Conduct a hospice admission
➢ 3. Can the patient’s symptoms be managed at home by ➢ Orient a patient and family to hospice services
the caregiver with the support of the hospice team? ➢ Assess ongoing eligibility for hospice care
➢ 4. Is the patient experiencing acute symptoms? Can the ➢ Identify the levels of hospice care.
symptoms be managed most effectively in an inpatient
hospice setting?
HOSPICE DISCHARGE END-OF-LIFE SYMPTOMS
➢ Hospice services are reserved for those facing
terminal conditions. PAIN MANAGEMENT
➢ However, prognostication is an inexact science with ➢ PAIN ASSESSMENT
some hospice patients living well beyond the ➢ PHARMACOLOGICAL AND
anticipated 6-month estimate. ➢ NON-PHARMACOLOGICAL MANAGEMENT
➢ Although the number of very lengthy hospice stays has ➢ PAIN PROBLEMS AND TREATMENT CHALLENGES
decreased in recent years, the number of live
discharges has steadily increased. (MedPac, 2016; SYMPTOMS MANAGEMENT
Russel et al, 2017) ➢ PRINCIPLES OF SYMPTOM MANAGEMENT
➢ Patients maybe discharge due to revocation of hospice
benefit, change of hospice provider, improvement in
medical status, for cause or through death.
➢ Patient may revoke the hospice benefit any time
➢ She/he must sign a revocation form the specifies the
date of termination for hospice services.
➢ It should not be back dated.
➢ Once signed, patient’s care is no longer covered under
the
➢ Medicare hospice benefit and Medicare coverage that
was previously waived may resume.
➢ Private insurance coverage varies and individuals
should be counseled regarding their benefits.
➢ Most commonly patient revoke care to seek disease
modifying treatments.
➢ Roughly 7% of all hospice discharges are due to
revocation.
➢ Patients who choose to withdraw actually have a
higher 6-month mortality rate than those who are
discharge for other reasons.
➢ Therefore, the hospice IDG should carefully counsel
patients and families who revoke hospice benefits in
favor of aggressive treatment regarding their rights to
reenroll in hospice any time.
➢ Currently, only about 1 quarter of those who disenroll
from hospice reenroll prior to death. (LeSage & Rhee
2015, Russel et al 2017)

CHANGE IN HOSPICE PROVIDER


➢ A patient may choose to change hospice agencies once
in each hospice benefit period.
➢ The patient is not required to revoke benefits, rather
the change is considered a transfer of services.
➢ The hospice from which the patient transfers must
discharge the patient into the care of the newly
designated hospice.
➢ Discharging hospice agency must obtain a signed
statement from the patient indicating the effective
date of transfer.
➢ Names of both discharging and receiving hospice must
be included
➢ Receiving hospice must file a new NOE but the benefits
remained unchanged.
➢ If the transfer takes place in the 3rd benefit period or
later, a f2f encounter is required unless the
discharging hospice agency provides verification that
one has taken place.

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