1

Learning Disability Update

September 2014.

Winterbourne View & Transforming Care
Data
Latest NHS England quarterly data published 30
th
June 2014 period
Headline slide pack - http://www.england.nhs.uk/wp-content/uploads/2014/08/wv-as-data-slides.pdf
Full data - http://www.england.nhs.uk/ourwork/qual-clin-lead/wint-view-impr-prog/
Headlines
Of 2,601 patients 577 have a transfer date (increase from 257 at March 14)
1614 patients do not have a planned transfer date due to a clinical decision
preventing it
524 patients are in high or medium secure services and most (332) are
subject to Ministry of Justice order.
The JIP programme
The programme has continued with main strands of work
- In depth support to 35 areas
- Seminars, workshops or other regional support mechanisms including
Learning sets for practitioners & Regional housing workshops
- Improving Lives Team reviews reviews with people who lived at
Winterbourne View & other people of concern
- Commissioning Together programme in partnership with ADASS
Since the resignation of Bill Mumford as Director in July the future leadership &
governance has been reviewed by DH & partners. Announcements on the plan
should be made in September. We understand there will be a Transforming Care
Quality Assurance Board to oversee all the concordat delivery that will be Co-Chair
by the Minister, Norman Lamb & a self-advocate, Gavin Harding.
The programme has developed a series of web pages to share
Useful resources & information
Local Approaches including an example from Yorkshire & Humber
You sign up to the Winterbourne JIP regular bulletin or get more information from
http://www.local.gov.uk/place-i-call-home

2

National Audit Office
The NAO are conducting a review to ascertain if
- key Winterbourne Concordat commitments are being achieved
- stakeholders are working effectively to build community based care, and
- Examine arrangements for monitoring the quality of care for adults with
learning disabilities.
It is scheduled to report early 2015
NHS England
NHS England has developed an implementation plan including:
operational delivery to support Clinical Commissioning Groups and Area
Teams to ensure we get the basis right
Care and treatment reviews so all inpatients get a person-centred, externally
led review of their care at an agreed point in time.
data and information so we can demonstrate progress and highlight areas of
concern
planning and contracts to ensure NHS England systems support this work
new funding models, using the skills of the community and voluntary sector
to lever in new resources
new care pathways, developing a new commissioning framework
stakeholder engagement
There is a regional (northern) NHS England Learning Disabilities Board that is
mostly attended by Directors or deputy Directors of Nursing. We are planning for
social care / ADASS reps to meet with them in November.
NHS England have asked Stephen Bubb (CEO of ACEVO) to chair a steering
group to develop recommendations for the development of a national framework
for local commissioning of community based support for people with learning
disabilities.
Plan, steering group Terms of reference & minutes at
http://www.england.nhs.uk/2014/08/01/community-support/
Winterbourne Medicines Programme
Led by NHS IQ the programme aims to improve the quality of care for children &
adults with learning Disabilities by ensuring medicines are used in a safe,
appropriate and proportionate way and their use is optimised to achieve improved
outcomes.
3

The programme scope includes four medication groups: antipsychotics,
antidepressants, mood stabilisers and benzodiazepines and will be in the
following areas:
Hospital
At home
Supported housing
Treatment centres
Secure settings
Private care homes
Prisons
Custody
Schools

See more at: http://www.nhsiq.nhs.uk/improvement-programmes/patient-safety/winterbourne-medicines-
programme.aspx#sthash.EuTHmpoP.dpuf
Six partner organisations are part of the programme none in Yorkshire & Humber
currently
Autism
The Autism Programme Board are recruiting for 4 new self-advocate & family
members
https://www.gov.uk/government/organisations/department-of-health/about/recruitment
The 3
rd
Autism self-assessment is expected to be launched in November 2014
Joint Health & Social Care Learning Disability Self-Assessment

The Self-Assessment process & measures have been reviewed on behalf of NHS
England & ADASS based on feedback received nationally.
The format for the questions are largely unchanged but tightened up & clarified for
several measures. There will be fewer questions for Partnership Boards to answer
as PHE have arranged to source much of the data from national sources.
The reviewed measures, guidance & governance framework are expected to be
published in early September requesting submissions be returned by end January
2015.
NHS England & ADASS are collaborating in designing the Yorkshire & Humber
governance process.

The analysis for the 2013 2014 returns has been published here











4

Yorkshire and Humber Leadership Group
The last meeting focused on employment including sharing information & learning on
co working, supported employment, families guide to employment & helping a
family member get a job & social enterprise employing disabled people.
Notes at
http://inclusionnorth.org/projects/what-we-are-doing-now/yorkshire-humber-leadership-group/

The Leadership group seeks to bring people to inform, share & challenge on issues
important to the whole system.
The next meeting will include a focus on quality checking led by people & families.
It is on 22
nd
October. Contact marie@inclusionnorth.org for more information.


NHS accessible info standard consultation
NHS England is developing a standard for accessible information. They are
consulting on that draft standard until 9
th
November

The consultation, background information & scope of the work at
http://www.england.nhs.uk/ourwork/patients/accessibleinfo-2/

Publications, research & resources

Friends & family test for people with Learning Disabilities

NHS England have published accessible resources to support the inclusion of
people with Learning Disabilities in the Friends and Families Test
http://www.england.nhs.uk/ourwork/pe/fft/fft-inclusive/


DWP Employing disabled people
The Department for Work and Pensions (DWP) have updated their guidance for
employers on employing disabled people.

As part of the Disability Confident campaign, DWP has launched a portal to help
employers and employees on their way to being Disability Confident.
The Employers' Portal improves access to information for employers on the benefits
of employing disabled people.
You can read more here:
https://www.gov.uk/government/publications/employing-disabled-people-and-people-with-health-conditions/employing-disabled-
people-and-people-with-health-conditions
https://www.gov.uk/government/publications/employing-disabled-people-and-people-with-health-conditions/employing-disabled-
people-and-people-with-health-conditions

Staying safe resources

The Foundation for people with Learning Disabilities have published 2 Easy Read
guides
Staying Safe out & about

Staying safe on line