Professional Documents
Culture Documents
and how? How often are approaches to behav- A person-centered approach, using Rogerian
ior change even positive approaches truly philosophical principles, would be far more con-
based on consumer self-direction? sonant with the disability rights model of sup-
The values of self-determination are often re- port. However, a major reason that Rogers per-
ferred to as person-centered approaches. This son-centered therapy and other humanistic ap-
revivifies ideas that were widely supported in proaches have not, historically, been used with
humanistic psychology during the mid-twentieth people with developmental disabilities is because
century - such as Carl Rogerss person-centered of the perceived reliance within these therapeu-
therapy (Rogers, 1961), Maslows theory of self- tic models on insight based on the subjects
actualization (Maslow, 1968) and other like- ability to use symbols and abstract concepts. Be-
minded orientations. There is a well-recognized cause challenges with abstract concepts and logi-
theoretical discordance between person-centered cal thinking have always been a definitive char-
approaches such as these and the fields histori- acteristic of the developmental disability rubric,
cal reliance on the operant orientation of applied the insight approach has been considered inap-
behavior analysis (ABA). My contention is that propriate for this group of people.
there is a similar discordance or tension between Another problem has been that these thera-
the self-determination paradigm and our general peutic models have not, traditionally, provided
approach to using behavioral analysis to inter- a strong evidentiary basis. The premium on
vene with challenging behavior. The very notion evaluating behavior change interventions in a
of operant action is the practice of manipulating systematic observable and measurable fash-
environmental variables. Traditional behavioral ion is the greatest contribution that behavior-
interventions tend to be based on the assumption ism has provided the developmental disability
that settings and responses should be analyzed field. Operational accountability has been an
by an outside agent the professional who incontrovertible boon for the quality of services
manipulates environmental contingencies based provided to people with severe developmental
on the subjects responses and the achievement differences. Yet, data-based program design
of target behaviors determined as desirable. need not, necessarily, be inconsistent with self-
This is an inherently authoritarian model that, determination and person-centered approaches.
through externalization of the locus of control, The critical tenet of positive behavior support
subtly undermines and calls into question the that problem behaviors should be replaced with
persons capacity for choice. behavior that is more adaptive, functional, and
With the advent of positive behavior support individually meaningful must remain para-
(PBS), many behavioral practitioners have tried mount. Therefore, to reconcile the differences
to reconcile this contradiction by relying solely between the authoritarian aspect of behavioral
on positive reinforcement technology to address approaches and more person-centered ways of
problem behavior. This movement has suggested supporting positive behavior, we need a theo-
that the function or the purposeful meaning of retical model that includes that core demon-
problem behaviors must be considered, so that strated strength of applied behavior analysis
practitioners can understand the communicative an operational foundation for service design,
intent of a clients behavior. However, for many evaluation, and modification but that is guid-
people with disabilities, who have little functional ed by the choices and personal interests of the
input into the planning process, positive behav- individual. A new model of addressing problem
ior support is still overly reliant on professionals behavior should provide an observable, measur-
and support personnel to interpret behavior and able basis for intervention while finding a way
direct the learning process. This approach begs to rely on the individual as the locus of control
the question: how much of the time do profes- insofar as concerns the direction and nature of
sionals guide the individual toward choices that the learning process. Ideally, that model would
are perceived as desirable by support personnel harness the power of emotionally-invested or
but not, necessarily, by the individual? Often, self-determined learning in assisting individu-
the subjects expression of desirability may be als with severe delays to overcome the barriers
difficult to discern, but it is nonetheless critically presented by problem behavior. Reinforcing
important in any self-determination-based mod- events, the timing and nature of which are con-
el. Positive behavior support offers another way trolled by professionals, are, currently, the cen-
of describing the process of using reinforcement tral tool used to establish motivation for positive
technology as a mechanism for managing socially behavior with adults with severe developmental
difficult behavior. differences. Primary reliance on artificial rein-
forcement, however, leaves the manipulation functional capacities that are the basis for es-
of environmental variables to the professionals tablishing meaningful relationships and self-de-
and support personnel. This inherently takes termined forms of environmental control. This
control away from the individual. An approach individual processing profile also provides criti-
is needed that allows the individual to lead cal clues as to how to best work with the person
throughout the intervention process in order using emotionally satisfying play to bring out
to not only maximize self-direction but also to an individuals best capacities. Intensive work
build increased relatedness, self-direction, and both with Floortime and with related therapies
competence in daily decision-making. such as speech, occupational, and physical ther-
The Developmental, Individual-Differences, apy is necessary for each child or seriously
Relationship-Based (DIR) model, developed challenged adult to reach her optimum level of
by Greenspan and Wieder, may provide such personal development.
an approach. Through their work with chil- In traditional DIR therapy, an individually
dren affected by all kinds of regulatory, devel- attuned picture of the child helps to truly individ-
opmental, and learning differences, including ualize the nature and direction of a childs inter-
autistic-spectrum disabilities, Greenspan and active learning. This constitutes the DIR recog-
Wieder have offered a road map for develop- nition of Individual-Differences (I) in sensory
ment which helps us use Floortime, and other reactivity, sensory processing, and motor plan-
relevant therapies, in a way that encourages in- ning. This evolving picture of each childs sen-
dividual self-direction and relational autonomy. sory profile helps guide teaching and therapy.
Grounded in the study of infant mental health, My own clinical experience suggests a compre-
Greenspan and Wieder describe a functional- hensive understanding of individual differences
emotional developmental progression that is just as critically important in working with
tracks the childs healthy emotional develop- and addressing problem behaviors for adults and
ment from the initial capacity for self-regulation adolescents with severe delays.
into the love relationship between the baby and The DIR model rests on the recognition that all
her caregivers and on through the growth of critical early learning occurs through, and is me-
emotional reciprocity, empathy, symbol forma- diated by, the nature of primary relationships.
tion, and the ability to use ideas and the full Emotional interplay drives the dynamic process
range of human emotion, freely and flexibly. of active, engaging relationship that teaches us
This is the developmental contribution of the to hone our interpersonal sophistication, our sen-
model or the D in DIR. This developmen- sitivity to others, and to learn more flexible us-
tal trajectory, described through the emergence age of ideas and symbols. Relationship is the
of six core functional/emotional levels, is con- R in DIR. Critical learning is best embedded
sistent with the most current neurobiological through the medium of modulated, but invested,
knowledge of child development. The Greenspan interpersonal emotional experiences. That kind
Social Emotional Growth Chart, based on these of emotion is elicited and regulated through sup-
functional emotional levels, has been tested portive relationships. These supportive relation-
with over a thousand infants and children and ships begin with an attitude on the part of the
found to be a highly reliable screening tools for teacher, or caregiver, which effectively parallels
developmental problems in young children. what Carl Rogers described as the fundamental
The developmental trajectory described by therapeutic orientation toward the client: un-
DIR is only a part of the models potential ap- conditional positive regard. Affirming the indi-
plicability. As part of the DIR assessment and vidual, without conditions, is the basis for Floor-
intervention process, specific strengths of each time interactions. It establishes the conditions
individual are identified through the develop- for the mutual engagement that is the doorway
ment of an individualized processing profile to developmental growth.
that addresses sensory processing (including The usage of Floortime or developmentally
auditory and visual-spatial processing, tactile appropriate spontaneous interaction is the prac-
reactivity, proprioceptive and kinesthetic func- tice of following the childs lead and interests and
tioning) as well as motor planning. This pro- letting the child become the director of the in-
file, a description of an individuals dynamic teractive play while the support therapist is the
and ever-changing biological, personal, and assistant director. As a result, the process be-
developmental characteristics, can profoundly comes person-centered because the interaction is
contribute to an evolving understanding of the directed and controlled by the subject. Similarly,
persons development within each of the core the DIR method and Floortime allow us to follow
the interests and directions of adults with severe the reinforcing power negative or positive of
delays. Some recent research (Surfas, 2004), sug- affecting the environment and, especially, in-
gests that this interactive process can support fluencing the behavior of others cannot be un-
adults and adolescents in developing additional derestimated. As a result, it may be posited that
communicative skills. My own clinical experience many forms of problem behavior are simply the
strongly suggests that this process, and the com- effect of being stuck with limited ability to con-
municative behavior that it engenders, very often tinue to develop further sophistication and speci-
seems to replace problem behaviors with more ficity in two-way communication. My experience
functional affective communication. Because is that adults who gradually move away from
Floortime was developed for children who can of- problem behavior are those who have also devel-
ten be limited in their ability to use language and oped more finely attuned and functional ways
abstract concepts, it can also be used with adults of affect-signaling interaction. In other words,
who face limitations with symbols and language. these adults develop more specific and precise
The insight and reflective capacities that have ways of expressing their needs, wants, desires,
seemed to be unreachable for many people with and emotions rather than being trapped with
severe cognitive challenges can be replaced by a more diffuse and global increase in excitation
using preverbal interaction, or affective signal- and activation that can neither be adequately ex-
ing, as a basis for what Siegal calls shared sub- pressed nor discharged.
jectivity (Siegel, 2001). Lying and stealing are two other examples
The six core functional-emotional capacities of problem behavior. Wieder and Greenspan
can, in my experience, be used to guide develop- teach us that, during the early development of
mentally-appropriate spontaneous interaction proficiency in representational capacity and
with people of all ages and degrees of disabling elaboration, the child can often misinterpret
conditions. These interactions, on an intense cause and effect in the world of abstract thought.
and regular basis, appear able to engender During the development of this capacity, chil-
news ways of replacing problem behavior. Self- dren may think that taking something makes it
regulation, engagement, the need for two-way belong to them or that saying something is true
communication, and long flowing chains of prob- makes it become true. How many adults with se-
lem-solving interactions are part the preverbal vere challenges, whose behavior is called steal-
communication that are tracked by Greenspan ing or lying, are really in a state of having a
and Wieders developmental road map to the very primitive capacity for representational elab-
first four of their identified six core functional oration? How many are simply at the early level
emotional capacities. They are critical to under- of elaboration in their thinking and believe that
standing some of the issues in communicative wishful changes can be made real simply by say-
development that give rise to what are called ing or acting as if they are?
problem behaviors. These are just a few examples of how an un-
One example has to do with the capacity for derstanding of the development of functional-
two-way communication the third level in the emotional capacities can enhance our ability to
DIR developmental progression of functional interpret and understand challenging behavior.
emotional development. Greenspan posits that Functional behavioral assessment is a process
this capacity comes in as the developing infant through which professionals try to determine
begins to recognize that she can influence the whether a given behavior is maintained through
behavior of others with her behavior. As a re- either a positive reinforcement paradigm (get-
sult, the child continues to use affect-signaling ting a particular kind of event) or a negative
behaviors as a way of getting significant others reinforcement paradigm (escaping a particular
in her life to respond. Over time, for the typical- kind of event). Also, functional assessment can
ly-developing child, these behaviors grow more sometimes identify the key environmental barri-
sophisticated and specific to particular needs, ers that may predict the function of a behavior in
wants, situations, and people. The child contin- various different settings. From these elements,
ues to use and develop these affect-signaling be- the clinical practitioner must generate predic-
haviors because of their effectiveness. However, tions about when the targeted behavior is most
adults with severe delays can often show dis- likely to occur and when it is least likely to occur.
ruptive, rigid responses that, typically, serve as These hypotheses guide the initial development
blunt mechanisms for environmental change and of a plan for supporting positive behavior. In typ-
rough two-way communication. For adults who ical practice, the foundation for both hypotheses
have a drastically limited behavioral repertoire, about a behaviors function(s) and predictions for
Floortime rests on the recognition that all person. Focus on securing as many plea-
critical functional emotional communicative surable circles of communication (back
learning occurs through the medium of primary and forth exchanges) as possible. Try
relationships. The use of relationship-based ap- to find out how to approach the person
proaches with adults and adolescents recognizes and what kinds of interaction the person
the continuing power of primary relationships likes.
across the life span to affect and influence in- 2. Spend 5-20 minutes with the person.
dividual growth. The position described in this Focus on doing what they do. Take an
paper asserts that DIR provides a mechanism interest in their interest. Try to get the
through which we can not only positively affect dialogue going back and forth. This can
what have been called problem behaviors, but be through asking questions or slapping
that DIR also effectively embodies the principles hands. It can be through mirroring what
of person-centered approaches in the positive the person does. It can be through mak-
behavior support process. Unconditional posi- ing vocalizations that the person makes.
tive regard and other affectively supportive re- The goal is to actively go into the persons
sponses are expressed through facial expression, world and enjoy their experience while
body language and voice tones as well as the pro- getting the person to share, even a little,
cess of following the persons lead and tuning with you. Try to embrace what is in the
in to that individuals pace and emotional set. persons mind.
This reciprocal and mutually influenced inter- 3. Try to get a back and forth exchange go-
personal exchange is, fundamentally, a coregu- ing. You open a circle of communication
latory process. Coregulation implies that the by putting yourself into what the person
communicative partner assumes responsibility is doing. They close that circle and open
for the nature of the helping interaction but also a new circle by any action that responds
plays the supportive role of following the sub- to your action. Your responsibility is to
ject individuals lead in interaction. It implies insert yourself into back and forth inter-
a nurturant commingling of shared regulation action by always finding a way of closing
through sharing attention with the individual. the persons circle of communication and
The reliance on spontaneous, developmentally opening yet another circle.
appropriate interaction embodies the belief that 4. Enjoy the process. Take pleasure in your
human beings, even those who have been highly interaction with the other person and try
stigmatized and devalued, have the propensity to convey that sense of pleasure. Be fun-
to continue their communicative development ny. Laugh. Experiment with being dra-
in positive, healthy ways if there is adequate matic and overblown in your responses
relationship-based support. or being quiet, slow and warm. Encour-
Greenspans notion of playful obstruction can age a response. Keep it all in the spirit
be taught in a way that is intended to reduce dys- of genuinely liking each other and your
regulation and frustration. Staff training for DIR time together.
intervention with adults is geared to providing 5. Try to keep the rhythm going. Wait for
staff with a conversational understanding of the persons response. Always respond,
the individual in the following areas: yourself, even if its a silly response. Keep
1. The persons sensory processing profile: the flow going.
the subjective experience of having sen- 6. Work in challenges to make the interac-
sory integration, auditory and visual spa- tion longer and more complicated but
tial processing, and motor planning chal- keep up the connection and keep it enjoy-
lenges; and able for you both.
2. The persons current capacities in each of 7. Do this five or more times during the
the six core functional emotional capaci- time while youre with the person when
ties through teaching examples of the you feel the person might like playful in-
persons behavior in specific situations. teraction. Try to get the time longer dur-
Adapted Floortime, relabeled as Coregulation ing each interaction session. Your goal is
or Intentional Interaction for adults, is taught to have sessions that go continuously for
using the following general approach: 15-30 minutes.
Directions for Coregulation 8. Do as many sessions as possible for as
1. Experiment with interaction with the long as possible. Look for natural oppor-
tunities to harness a persons interests ings. During this period it was hypothesized that
and wants in order to extend circles of Henry was hyperreactive to many auditory tones,
communication. especially in the higher frequencies, as well as
During their sessions with individuals, staff visually hyperreactive, especially to movement.
persons are encouraged to focus on flowing inter- He also seemed very tactilely defensive. Also,
action and shared enjoyment of the experiences. Henry appeared hyporeactive in proprioception
They are also encouraged to continue interaction and balance. In terms of his functional-emotional
as long as possible while the person appears to capacities, Henry had distinct challenges in self-
be enjoying the interaction. They are told to quit regulation but a relative strength in his capac-
interacting if the person appears to be becoming ity for engagement. Henry had developed some
dysregulated or signals, in any way, an overall two-way communication and he, reportedly, had
dislike of the experience. Role-playing is often a a history of using some 20 signs as well as an un-
critical part of the process of teaching these in- specified number of picture cards to identify his
teraction techniques to staff. wants to others. Yet, his capacity for a sustained,
What follows are two brief case descriptions of continuous flow of interaction through shared
individuals with severe developmental delays. preverbal, problem-solving was quite constrict-
Again, there have been numerous occasions in ed. Henrys ability to connect ideas also seemed
which I have seen this adapted Floortime or co- quite under-developed.
regulation have a dramatic effect on extreme During the second four week period, staff were
behavior. Although these two examples involve taught through informal lecture and discussion
addressing physical aggression toward other peo- the principles of Floortime including follow-
ple, I have seen similar efficacy in working with ing the persons lead, tuning in to the persons
a broad range of problem behaviors including
pace and emotional set, ensuring reciprocity in
self-abusive behavior, food-stealing, and inap-
interaction, extending circles of communication
propriate clothing removal. Both of the interven-
and playful obstruction. A major teaching tool
tions described below were implemented by staff
in each of these sessions was the use of role-play-
who worked with the person in community resi-
ing. One staff person would role-play Henry or a
dential settings. Data were taken from the be-
housemate while the other staff tried to build on
havioral recording systems used by the persons
the persons typical behavior to create sustained,
supporting agency.
flowing interaction. Other staff would observe,
comment, and make suggestions. After the com-
Case I: Henry
Henry had a history of aggressive and destruc- pletion of the second set of sessions, staff were
tive behavior that had resulted in the dissolu- encouraged to begin adapted Floortime with
tion of several living situations since he was first Henry as much of the time as possible.
placed out-of-home at about age eighteen. He had
a history of attacking other people caregivers Outcomes
as well as companions and breaking items such During the month prior to intervention there
as furniture and windows. Prior to intervention, were 13 episodes of aggression coupled with
agency data showed an average of 9 episodes per property destruction. However, during the
month that tended to last between 20 minutes month immediately after intervention, there
and an hour and included both attacks on other were only three episodes of aggressive or de-
people and significant property damage. structive behavior. An increase to 8 incidents
occurred during the second month after inter-
Intervention Process vention, then the frequency of these episodes
During an eight-week period prior to adapted dropped steadily to zero per month over the next
Floortime intervention, Henrys core team met consecutive three-month period. The frequency
with me once each week for a two-hour period. of aggressive behavior remained below two per
During this time, I also observed and interacted month for the last nine months of the data peri-
with Henry in his home setting. A DIR assess- od. Overall, the monthly frequency of incidents
ment seeking to identify Henrys strengths and dropped from an average of 9 per month to an
weaknesses in terms of his individual differences average of 2.2 incidents per month after the in-
as well as each of the core functional emotional tervention across the 14 months that Henry was
capacities was developed as part of group train- followed. (See figure 1.) The following graph il-
ing and discussion during the first four meet- lustrates this timeline.
,
/ D
If an infant can focus on the caregiver, that month. During the first 11 days of Septem-
a two-way infatuation or love experience ber, Minerva attacked others on 6 out of the 11
usually automatically develops. Out of days prior to her being institutionalized for re-
that experience grows the desire for the spite care. She returned home on October 10th at
presence of the other and the learning which time intervention was begun. During the
that we can affect the behavior of the following 21 days in October, Minerva only at-
other person. This naturally grows into tacked others on four days or for an approxi-
that complex, rich inventory of back and mate 19% of the days of that month. The follow-
forth dialogue experiences that we char- ing graph shows the frequency of Minervas ag-
acterize as relationship. gression over the next five months. (Figure 2.)
My hypothesis is that Minerva is so
challenged by her sensory and processing Minerva Aggression* Toward Others
system that she was never able to fully (*Hitting, biting, kicking, scratching and pushing)
negotiate the first capacity for extended
periods of time being calm while sus-
taining engagement with the world. As a
result, even though she bonded as well as
she could with caregivers, she was never
able to sustain the focus and engagement
to overcome severe restrictions in the fol-
lowing capacities (that build upon self-
regulation) engagement, two-way com-
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pacity and potential in these areas will Figure 2. Minerva Aggression Toward Others
require more extended interaction and
observation. Minerva also enjoyed a range of food prefer-
Finally, as part of the two-hour initial training, ences that staff would help her prepare. As with
staff did some role-playing on ways of extending Henry, violating expectations and appearing not
and building more complex interaction with Mi- to remember how to do something was used to
nerva. assist Minerva in doing more of the food prepa-
Prior to Minervas return home, an interac- ration and to increase her intentionality. Also,
tion kit was created that included edible lotions, Minerva loved tossing balls, beanbags, or other
various kinds of tactile balls for playing catch, small items. Staff used this as a way of beginning
and several different kinds of sewing material, interaction then experimented with tossing the
reflecting a broad range of different kinds of ball in various places and using Minervas habit
touch sensation. Staff used this kit as a basis for of throwing the ball in a direction away from her
attempting to create interaction with Minerva as partner to elicit choices such as should I go get
often as their duties would allow. For the next five it or should you? This also served as a way of
months, her three core staff two of whom spent eliciting a yes/no choice from Minerva. Despite
40 hours a week with Minerva received consul- the diagnosis of severe autism and no history of
tation and coaching on interactive techniques at having followed or used finger-pointing, Minerva
least monthly. During this time frame, one staff began to spontaneously point at the ball on the
person estimated that his intentional interaction floor in an imperious gesture, telling the staff
with Minerva occurred at least 6 times per day person to get the ball.
for periods ranging between 10 and 30 minutes.
Implications and Conclusions
Outcomes Both of these individuals seemed to show sig-
During the month of August, 2002, Minerva at- nificant improvement in their production of tar-
tacked other people on 9 out of 31 days in the geted problem behaviors as the result of adapted
month or for approximately 29% of the days in Floortime interventions. In the case of Minerva,
it is difficult to sort out the impact of medica- indeed warranted. Such research should include
tion changes that were made during her brief better controls of significant life variables, such
institutionalization from the impact of adapted as medication, and more careful tracking of the
Floortime. Variables of this kind are difficult to amount of time spent in intentional interaction
control in community services. However, it is cer- as well as better tracking of the relative skills
tain that pronounced improvements in both the in adult Floortime used by the particular staff
frequency and severity of aggression did occur. conducting the intervention.
Two factors suggest that the intentional interac-
tion may have been a significant contributor to References
the reduction in problem behaviors. One factor is Greenspan, S.I. (1992). Infancy and early child-
the steady decline in aggression that continued hood: The practice of clinical assessment and
after Minervas return home. Despite the medi- intervention with emotional developmental
cation changes, Minerva returned home with a challenges. Madison, CT: International Uni-
continuing habit of attacking others. The second versities Press, Inc.
factor that suggests a strong impact from the in- Greenspan, S.I., DeGangi, G. & Wieder, S. (2000).
teraction was the fact that Minervas main staff The functional emotional assessment scale
person who did a significant part of the co-reg- for infancy and early childhood. Bethesda,
ulatory interaction with her had to leave em- MD: Interdisciplinary Council on Disorders
ployment during March of 2002. In April, her ag- of Relating and Communicating.
gression increased to the same level it had been Greenspan, S.I. & Mann H. (2001) Adults and
in October1, the first month of intervention, and adolescents with special needs: The devel-
only began to decrease again as the replacement opmental, individual-differences, relation-
staff was also trained in the adapted Floortime ship-based approach to intervention. In
interaction. (This is a naturalistic equivalent of The clinical practice guidelines (pp. 639-
an A-B-A research design, where the treatment 658). Bethesda, MD: The Interdisciplinary
(A) occurs, is removed (B) and is reinstated (A). Council on Developmental and Learning
When the target behavior is reduced under treat- Disorders.
ment conditions, and recurs when the treatment Greenspan, S.I. & Wieder, S. (1998). The child with
is stopped (B), more confidence can be given to special needs: Encouraging intellectual and
the treatments efficacy.) emotional growth. Cambridge, MA: Perseus
The picture is less equivocal in the case of Publishing.
Henry. He maintained at least two core staff Maslow, A. (1968). Toward a psychology of being.
over the next fourteen months and, although New York: Van Nostrand Reinhold
the staff person to whom he was closest left just Rogers, C. (1961). On becoming a person. Boston:
five months after intervention began, Henrys Houghton Mifflin Company.
aggression remained low as the two remaining Siegel, D. (2001). Toward an interpersonal neu-
core staff continued the interaction on a regular robiology of the developing mind: Attach-
basis. During the follow-up period, Henrys ag- ment, relationships, mindsight and neural
gression remained under control despite a range development. Infant Mental Health Journal
of dysregulating factors. After about a year, he 22 (1-2) 67-94.
moved with all of his staff and housemates. An Surfas, Sean (2004). The use of developmental,
additional roommate moved into the home and individual difference, relationship-based
there was turnover in virtually all staff except for DIR therapy with older students with
the core two who were already mentioned. The severe developmental disabilities including
consistent element was ongoing training in the autism. The Journal of Developmental and
adapted Floortime techniques. Learning Disorders, 8, 65-76.
These data, as well as my clinical experience
with a range of other people and other problem For further information, please contact
behaviors, suggest that adapted Floortime in- Gene Christian, M.S., C.R.C.
teraction, maintained in a sufficient dosage over 707 W. Seventh Ave., Suite 220
time, may be a promising intervention for reduc- Spokane, Washington 99204
ing aggressive behavior in adults with severe and e-mail: genechristian@icehouse.net
profound cognitive delays. Further research is
1
Minerva was aggressive on 6 out of 30 days in
April (20%)
Neuroscience Reviews
Is There More Bipolar Disorder Than Meets
the Eye
Jarrett Barnhill, M.D., DFAPA, FAACAP
Bipolar Disorder. (2009). In J.I. Hunt & D.P. a high degree of certainty. For most, the forces
Dickstein (Eds). Child and Adolescent Psy- leading to BD are in play long before its clini-
chiatric Clinics of North America, 18(2). cal onset. In this sense the emergence of BD is
one stage in a developmental process that is con-
This volume updates our understanding of the stantly modified by life events, social experienc-
genetics and bio-psycho-sociology of Prepubertal es, and various modes of treatment.
Bipolar Disorder (PBD). This developmental ap- So let us begin with these basic findings:
proach to BD can also enhance our understand- *HQHWLFV%'GLVSOD\VDFRPSOH[SDWWHUQRILQ
ing of BD in individuals with IDD. The next sev- KHULWDQFH&XUUHQWUHVHDUFKVXJJHVWVWKDWUDWKHU
eral articles will take up this challenge. WKDQ VLPSOH 0HQGHOLDQ JHQHWLFV %' LQYROYHV
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(Diagnostic Manual- Intellectual Disability) that J VLQJOH QXFOHRWLGH SRO\PRUSKLVPV RU 613V
is based on adapted DSM-IV-TR criteria. This VSUHDGDFURVVVHYHUHJHQHJURXSLQJV<HWWKHVH
approach minimizes etiology and unfortunately SRO\JHQHWLF LQIOXHQFHV GR QRW FDXVH %' ,Q
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The United States v the State of Georgia
2010 Olmstead Settlement Agreement: U.S.
Public Policy Implications
Joan B. Beasley, Ph.D., Associate Research Professor, University of New Hampshire,
Institute on Disability, UCED
In 1999, the United States Supreme Court to prevent institutional care. It clearly states
ruled that the Americans with Disabilities Act that the responsibility of the states to provide
requires people with disabilities receive care in for adequate community infrastructure is part of
the most integrated setting possible. This led to the mandate for equal protection under the law.
the consideration of a major change in the prac- The Georgia decision indicates that the state is
tices of the State of Georgia, where what is now clearly responsible for quality of services offered
called the Olmstead decision was made. The to prevent the need for congregate care or the
precedent-setting decision affected policies and use of congregate care due to inadequate alterna-
practices throughout the United States. Unfortu- tives. Money is not a reasonable excuse for this to
nately, progress in Georgia was found to be lag- not be in place.
ging at best. In September of 2010, after many The decision states that The expansion of com-
months of investigation and deliberation, the munity opportunities is critical to protecting the
most recent Olmstead settlement agreement was civil rights of individuals under Olmstead. The
signed by the Federal Government and the State findings indicated that the lack of community re-
of Georgia to comply with the Americans with sources undermined Georgias ability to comply
Disabilities Act. with Olmstead.
This Public Policy Update will highlight some Following are some points to consider based on
of the most significant elements in the decision this landmark settlement.
for people with intellectual disabilities and men- (DFK6WDWHPXVWEHDFFRXQWDEOHWRLQVXUHTXDO
tal health needs. However it is recommended LW\PDQDJHPHQWRIDOOVHUYLFHVQHHGVWRUHYLHZ
that stakeholders study the details, due to the GDWDDVVHVVVHUYLFHVDQGHQIRUFHVWDQGDUGV
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was on active treatment in the institution and LQWKHFRPPXQLW\IRU630,$&7&63&67
discharge planning, and this is still required, the FDVHPDQDJHPHQWHWFDQGLQIUDVWUXFWXUHWKDW
most recent interpretation broadened the focus LV VXSSRUWHG E\ PRGHOV OLNH 67$57 $G
Psychotherapy thorities in the field of providing psychotherapy treatment for persons with ID and all
Psychotherapy for Individuals with Intellectual Disability
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Edited by Robert J. Fletcher, DSW, ACSW
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Direct Support Professionals working with items, provide them with a safe place to
individuals with a dual diagnosis often support store items.
people with schizophrenia. The symptoms of Encourage the individual to sit where he or
schizophrenia may vary from day-to-day or from she can hear others.
month-to-month. Treatment decisions are made Simplify the environment.
by the individual and their team and may include Individuals with schizophrenia may be more
medications, environmental support, and other sensitive to visual and auditory stimuli. Re-
therapies. Although each individual is different, duce these as possible.
the following practical suggestions for day-to-day Minimize clutter to minimize distractions.
interaction have been effective in helping the in- Avoid shiny surfaces to minimize visual hal-
dividual make sense of the environment and to lucinations.
sort out reality from psychosis. Provide good lighting.
When the individual talks about hallucina- When hallucinations, delusions, or disorga-
tions (hearing, seeing, smelling, tasting or feel- nized thinking limit the ability to focus on a con-
ing things that are not there) or delusions (firmly versation or activity:
held false beliefs): Keep conversation or directions simple and fo-
Be neutral and non-judgmental. Never make cused.
fun of hallucinations or delusions. Get the individuals attention before speaking.
If the individual is frightened or concerned Speak in a soft, calm, reassuring voice.
about a hallucination respond calmly and Be simple and truthful.
truthfully. To I see rats in the shower you Present information in small bits. Be brief.
might respond by saying I know you think Repeat as necessary.
you see rats, but I dont see any. Your brain is Allow time for the person to comprehend and
playing tricks on you. respond to what you are saying.
Encourage the individual to talk privately, Ask questions to gauge comprehension and
rather than publicly, about delusions or hal- thought processes.
lucinations. Only one person should speak at a time.
Stay calm. To remain focused and get things done at work
Do not give undo attention for talking about or home:
hallucinations or delusions. You may uninten- Assign meaningful tasks.
tionally reinforce such talk. If possible, ignore Establish a set routine to help the person un-
statements about hallucinations or delusions. derstand what is going on.
Do not try to convince the individual that hal- Assign repetitive work tasks. They may be
lucinations or delusions are unreal. Arguing easier than those requiring continual change.
will do no good. Break tasks into small components.
If asked if you experience these same halluci- Give directions simply, giving one step at a
nations or delusions be truthful and say no. time.
Minimize the impact of delusions by encour- Be consistent in training.
aging the individual to control the environment. Provide visual and verbal prompts.
This will vary for individuals. Some examples Use graphic charts as reminders.
are: Provide frequent prompts and reinforcement.
If they believe food is poisoned, encour- Minimize clutter.
age them to prepare own food. Have person think aloud to monitor thought
If they believe people are looking in the processes.
windows, remove curtains. Narrow down choices when the individual has
If they believe others are talking about difficulty in making decisions.
them, involve them in conversation. Have individual write concerns in a journal
If they believe others are stealing for discussion as appropriate.
Stress and tension make symptoms worse, Talk in terms of behaviors, not personality.
thus minimize stress or teach coping strategies: Say, You are upset. Lets talk about it, not
Establish a predictable way to handle reoccur- Youre acting like a child.
ring concerns. Allow personal space.
Help individual learn alternatives when over Avoid continuous eye contact.
stimulated. Dont challenge the individual into acting out.
Allow person to withdraw and be alone when Other:
he or she is overwhelmed by stimuli or upset. Encourage the individual to take medications
Reinforce positive performance and behaviors. regularly.
Teach skills to handle situations in a socially Meet with the psychiatrist to discuss alterna-
appropriate manner. tives when noncompliance with medication is
Teach person to plan ahead. related to side effects.
Make expectations clear. Assure that expecta- Minimize consumption of alcohol and avoid
tions are realistic.
use of illicit drugs.
Set limits on how much abnormal behavior is Minimize cigarette use (or at least make use
acceptable.
consistent).
In a crisis:
Remain calm. Encourage sound and regular eating habits
Decrease distractions (e.g., turn off TV, CD and exercise.
player). Build a support network.
Talk in turns, one at a time. For further information, contact Dr. Olson at
Speak in a slow, clear, normal voice. Dont kolson@ku.edu.
shout.
Repeat questions or statements. Avoid re-
phrasing them. DSP Interests and Concerns is an ongoing col-
Decrease number of people present (while as- umn in The NADD Bulletin. We welcome your
suring safety). comments, suggestions, and submissions for this
Dont argue with others who are present. column. To learn more or to contribute to this col-
Try saying Lets sit down and talk or Lets umn, you may contact Kathleen Olson, Editor of
sit and be quiet. DSP Interests and Concerns, at kolson@ku.edu.