Professional Documents
Culture Documents
1177/0898010102250274
JOURNAL
Schaefer / AN
OF HOLISTIC
ANALYSISNURSING
OF CARING
/March
BEHAVIORS
2003
The purpose of this project was to provide advanced practice nursing (APN) students
with the opportunity to enrich their aesthetic knowing and acquire the meaning of
caring in their practice by reflecting on their caring narratives. Students were asked
to write about a caring encounter they experienced in their practice. The instructor
analyzed and organized that data from each narrative. The instructor shared the data
with the students for reflection and discussion. This report focuses on the caring prac-
tices of the APN students. Nine themes that embraced physical care, communication,
comfort, presence, knowing, acceptance, touch, collaboration, and encouragement
were identified. The APN students demonstrated aesthetic knowing as well as other
ways of knowing in their caring narratives. Through reflection on the caring experi-
ences and discussion in class, students were able to identify the meaning of caring in
their practice.
AUTHOR’S NOTE: The author acknowledges Vanessa Jury Harris, B.A., B.S.N., who
was a senior nursing student at Temple University while working on this project, for
her assistance in the coding and validation of the caring themes identified in the
advanced practice nursing students’ narratives of caring. The author also thanks the
Temple University Department of Nursing Research Committee for providing the
funds to analyze and validate the data.
JOURNAL OF HOLISTIC NURSING, Vol. 21 No. 1, March 2003 36-51
DOI: 10.1177/0898010102250274
© 2003 American Holistic Nurses’ Association
36
BACKGROUND
PROCESS
FINDINGS
TABLE 1
Caring Themes
creamed her body with lotion brought from home . . . The outcome was
shared support and hope for recovery between the parents and myself.
Physical care in this case served as a means of caring for the patient
and the family and of creating a sense of physical normalcy for the
student.
In many cases, APN students provided physical care to assess
patients’ responses to illness. For example, changes in vital signs sug-
gested that death was near for a young woman with AIDS and that a
child needed relief from discomfort.
I spoke with him as if he could understand me; I spoke with him as if his
cognitive ability was the same as mine. I told him about my frustration
with his case. I asked him, as I always had, if there was anything he
needed or anything he could tell me to help him and [I would] try my
best to make him comfortable. After no response, I began to [explain
that] when he was able, he could have out-patient treatment. His eyes
widened immediately, and I will never forget the instant that I saw life
in him again. He began to ask many questions. Then he finally stated,
“I’m not hopeless.”
The patient explained that when he had heard the word cancer in
another hospital, he gave up. The current staff members incorrectly
assumed that he was told about his treatment options at the other
hospital.
The APN students heard stories about patients and families and
about family members’ sorrows and thoughts about their ill relatives.
One APN student provided care for a patient with adult respiratory
distress syndrome who was separated from his wife for the first time
in 60 years. The student wrote that she “listened as they verbalized
their wishes for the patient. By the end of the week, a ‘terminal wean’
was in progress and comfort measures only were instituted.” In this
case, listening helped the family make decisions through validation
and acceptance by the APN student.
Providing comfort and support creates a sense of calm. One APN stu-
dent caring for a 7-year-old with brain tumors talked about cuddling
the child and telling him that it was okay to be scared. “He responded
by giving me the biggest and best hug I have ever received.” The
young boy relaxed, was able to breathe with greater ease, and blew a
kiss to her as she left his home.
Another APN student was somewhat annoyed about the call she
received at work from a former patient whom she did not know. She
felt relief when she returned the call and there was no answer. “At
least I tried to call.” For some reason, she was not satisfied with her ef-
forts and called again. She learned that the man needed help with his
wife who had diabetes because she was recovering poorly after a re-
cent stroke. She explained that she could not help him, and then she
Although struggling with what she needed to do, this APN student
fulfilled her desire to give to others, an altruistic virtue of caring, and
honored her intuitive sense that she needed to reach out to another.
Being present provides time for the caring process to unfold. Presence
may be interpreted by some as being an antecedent or being necessary
for care to occur. Whether presence is physical presence or spiritual
presence is not clear. In this project, presence was identified as an
intervention and involved a temporal component in that it required
real or delayed time. Real time is the time measured by a clock while
with clients. Delayed time is the promise to come back to patients. As
a promise, it is ethical to help patients, as did the APN student who
initially decided not to return a call to a man she did not know.
While one APN student spent time with the family of a dying
patient from Syria, she said that she “could feel a caring presence
enveloping us. I know that presence . . . allowed them to grieve in a
way that was consistent with their culture, not some ‘Americanized’
standard of not allowing emotion to get out of control.”
A second APN student cared for an older woman who was dying
as a result of a massive stroke. The family requested a Do Not Resusci-
tate order. She said,
Very late into the night, it became obvious that this lady was going to
die. I remained at her bedside, speaking softly and holding her hand
until death. During this time, at least two other nurses came in and
This APN student stayed with the patient because of her commitment
to providing care through the dying process. She provided presence
without harm and was able to give the family some true comfort.
On the other hand, one APN noted that because she did not take
the time to be present, she was unable to get to know the patient. She
could not care for the patient because she was not “fully present.”
hug and said goodbye to me. Those were the last words this woman
said to me. She survived the weekend. When I saw her on Monday, I
could not believe she was still alive. I could not obtain a blood pressure,
her heart rate was in the 40-50s, and respirations were 8-10. I stayed
with the family for a period of time. They showed me old photos of her.
Finally, on Tuesday, she died.
I was surprised at the end of the visit; [he] said to me, ‘Thank you for
helping me. You’re the first medical person who hasn’t treated me like
dirt because I am an addict. You’ve given me hope. Maybe I can change
after all.
Providing encouragement helps patients and families to deal with the rav-
ages of suffering. One APN student spent a great deal of time working
with a mother to help her understand the situation her new infant
faced. Although the baby was compromised at birth, the mother was
very excited about the birth of her fourth daughter and talked about
the baby’s personal characteristics. The baby progressed poorly, did
not cry, and had very little movement. The APN student said,
As I observed mom and baby, I felt torn between allowing mom to enjoy
her infant and hope for the best and presenting mom with an honest
outlook. I described the infant from head to toe, pointing out to mom
characteristics that were normal and characteristics, such as the baby’s
[muscle] tone, that were of concern to me. . . . I remember saying to the
mother that developmentally, we were not concerned about when the
baby would learn to suck, swallow, or crawl but if she would ever reach
developmental milestones. . . .We allowed mom to make the decision of
whether or not to resuscitate the baby. [She] said she understood what
we said but would provide whatever care her infant needed for how-
ever long she needed it.
Without providing false hope, the APN student helped the mother to
see the challenges her infant faced and was willing to provide support
for whatever decision the mother made. Ultimately, she made an in-
formed choice about her daughter’s care.
REFLECTION
Eriksson, 2002; Smith, 1999; Sumner, 2001; Swanson, 1999). The find-
ings also suggest that caring is present in the art (creative use of sci-
ence) and the science (knowledge) of nursing (Leight, 2002). In addi-
tion, the APN students speak to the ethics (obligations) and values
(respect and unconditional acceptance) of caring.
The art of nursing comes alive when students are invited to write
narratives of their caring encounters. The art is evident when APN
students provide personal care to patients that physically makes them
resemble the people they were before their illnesses. The changes in
physical appearance were deliberate transformations to what the
patients would be if they could care for themselves. The art of nursing
represents aesthetic knowing in practice (Leight, 2002).
The science of nursing is evident when the APN student interprets
the meaning of signs and symptoms. One student used this informa-
tion to prepare families for the finality of death, which provided com-
fort to patients and families.
The art and the science of nursing come together when the APN
student combines medical care with knowing the importance of meet-
ing the unique needs of suffering clients. The APN student knows
that preserving human dignity and providing comfort result in a
sense of calm and peace. Caring for others improves patients’ experi-
ences of living and dying.
A purposeful interaction between nurses and patients is necessary
for caring to occur (Sumner, 2001). As the APN students in this study
learned, these relationships require that they know themselves. The
one caring seeks to understand the self to understand others. This
self-devotion enhances mutuality in a caring interaction (Gastmans,
de Casterle, & Schotsmans, 1998), and caring ultimately becomes part
of the relationship. The process of reflecting on caring narratives
helped students to learn more about their styles of caring and, hence,
more about themselves and their patients.
As a result of nurses connecting with patients and families, healing
for patients and families can occur. These connections help to uncover
behaviors, thoughts, and feelings that facilitate understanding of
experiences and promote the development of new nursing knowl-
edge (Schon, 1987). Working with others maximizes the caring experi-
ence and the achievement of mutual respect and provides hope when
all else seems futile and empowerment and understanding in those
who are partners in care.
Vivid presence recognizes reciprocal relationships between unique
individuals. Personal presence assures others of another’s concern for
IMPLICATIONS
CONCLUSION
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Karen Moore Schaefer, R.N., D.N.Sc., is an assistant professor for the Department
of Nursing in the College of Allied Health Professionals at Temple University in Phil-
adelphia, Pennsylvania. Her educational research interests include developing criti-
cal thinking skills and reflective practice. Her research program focuses on women
with chronic illnesses, with a particular emphasis on women with fibromyalgia.