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Psychosocial Impact of Assistive devices Scale (PIADS)

Article  in  Technology and Disability · January 2002


DOI: 10.1037/t45599-000

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Technology and Disability 14 (2002) 107–111 107
IOS Press

Psychosocial Impact of Assistive Devices


Scale (PIADS)
Jeffrey Jutaia,∗ and Hy Dayb
a
University of Western Ontario, London, Canada
b
York University, Toronto, Canada

Abstract. The Psychosocial Impact of Assistive Devices Scales (PIADS) is a 26-item, self-report questionnaire designed to assess
the effects of an assistive device on functional independence, well-being, and quality of life. The PIADS was researched and
developed to fill the need for a reliable, valid, and economical measure that is generically applicable across all major categories
of assistive technology. Research has established that the instrument has good internal consistency, test-retest reliability, and
construct validity. It is a responsive measure and sensitive to important variables such as the user’s clinical condition, device
stigma, and functional features of the device. It has been shown to accurately reflect the self-described experiences of people
who use assistive devices. Preliminary investigations suggest that the PIADS has good validity for predicting device use and
discontinuance, can be used reliably by caregivers to give proxy ratings of device impact, and produces valid results when
translated into languages other than English. The PIADS has excellent potential for testing and building theories about the
psychosocial factors associated with the use of assistive technology.

1. Purpose of the instrument sures that can be comfortably included in a comprehen-


sive outcome assessment of AT [6].
Assistive technology (AT) is designed to provide im- By ‘psychosocial’ we refer to both factors within the
portant functional benefits and improve the quality of person and factors attributable to the environment that
life for people who use it. However, research has shown affect the psychological adjustment of individuals who
that people will sometimes reject or abandon what seem have a disability. We are concerned with the challenges
to be well-designed and functional devices [1–4]. The faced by these individuals in relation to the social envi-
possible consequences of non-use of prescribed tech- ronment [23]. This includes measuring how they per-
ceive their assistive devices to act as environmental fa-
nologies can be very serious. They include the loss of
cilitators, whose goal is to enhance unrestricted or fa-
functional abilities of the user, increases in attendant
cilitated participation in major areas of human life [24].
and other care costs, and ineffective use of funds from
Internal factors are the core dimensions of psycholog-
provider organizations. Assistive technology might be
ical well-being, which include independence, personal
threatening to some people and produce feelings of
control, self-efficacy, and self-acceptance [25]. In our
helplessness, frustration, and loss of control [5]. For experience, they are essential components of how AT
these reasons, designers and providers need to better users define the impact of their devices on their quality
understand the psychosocial factors that might deter- of life [9].
mine device adoption, retention and abandonment (or Investigating the psychosocial impact of an AT on its
discontinuance). Moreover, the field of AT needs mea- user may shed some light on the reasons for its use and
abandonment. It may also make it possible to address
∗ Address
the problematic areas of an AT. However, the psychoso-
for correspondence: Jeffrey Jutai, Ph.D, C. Psych, Uni-
versity of Western Ontario, School of Occupational Therapy, Elborn
cial constructs that may be crucial to the satisfaction of
College, 1201 Western Road, London, Ontario, Canada N6G 1H1. the user have not yet been operationalized or assessed.
E-mail: jjutai@uwo.ca. Assistive device designers and service providers need

ISSN 1055-4181/02/$8.00  2002 – IOS Press. All rights reserved


108 J. Jutai and H. Day / Psychosocial Impact of Assistive Devices Scale (PIADS)

to better understand the psychosocial factors that might son’s interaction with his/her environment. It is expe-
determine device adoption and retention and discontin- rienced differently from person to person, but has the
uance outcomes. same components for everyone. The most important
Why not use a so-called health-related quality of life perspective on how an AT affects quality of life is the
(QOL) measure? A number of published generic and perspective of the device user. We defined quality of
disease-specific “quality of life” measurement scales life impact following Renwick et al. [11] as the effect
might be considered for use in assessing AT impact. of the device on, “the degree to which a person enjoys
They have two primary limitations. First, they are too the important possibilities of his/her life” (p. 35). An
medically oriented. Most assistive devices are not in- assistive device should promote good quality of life for
tended to promote health and healing, but rather to im- the user to the extent to which it makes the user feel
prove or restore functional capabilities. Second, they competent, confident, and inclined (or motivated) to
are designed to assess health status or change in health exploit life’s possibilities. These three key dimensions
status, and not the impact attributable to any particular have been determined empirically to underlie how users
form of intervention [7]. They are either not sensitive perceive the psychosocial impact of an AT.
enough to detect functional or psychosocial changes
specific to an AT intervention, or cannot be used with
some clients because their functional limitations, al- 3. Description of the instrument
though accommodated through AT, are too severe to
permit reliable assessment using the instrument. In any The PIADS is a 26-item, self-report questionnaire
event, AT is meant to achieve different quality of life to assess the effects of an assistive device on func-
outcomes than surgery, physical therapy, and pharma- tional independence, well-being, and quality of life.
ceutical treatments. The three subscales of the PIADS are based on a factor
The Psychosocial Impact of Assistive Devices Scale analysis of the responses combined from several stud-
(PIADS) [8] was researched and developed to fill the ies [8]. The first one, Competence, measures feelings
need for a reliable, valid, and economical measure that of competence and efficacy. It is sensitive to the per-
is generically applicable across all major categories of ceived impacts of assistive technology on performance
assistive technology. and productivity. The Competence subscale (12 items)
includes questions on topics such as competence, pro-
ductivity, usefulness, performance, and independence.
2. Conceptual basis for the instrument The second subscale, Adaptability (6 items), indicates
a willingness to try out new things and to take risks. It is
PIADS items were created from 3 principal sources: sensitive to the enabling and liberating aspects of assis-
(1) empirical explorations with the Pleasure-Arousal- tive technology that might be expected if ATs enhanced
Dominance scale; (2) qualitative research (focus “participation” as described in the WHO (ICIDH-2)
groups) wherein AT users were asked to describe how framework [12]. The Adaptability subscale includes
they expected devices to impact their quality of life; (3) questions on topics such as ability to participate, will-
the literature on personality research which suggested ingness to take chances, eagerness to try new things,
that the PIADS include items that are associated with and the ability to take advantage of opportunities. The
constructs such as perceived self-efficacy and personal third subscale, Self-esteem (8 items), indicates feel-
control [8]. The priority was to create a scale that would ings of emotional health and happiness. It is sensi-
reliably measure perceived device impact and discrim- tive to the perceived impact of assistive technology on
inate among device categories and user conditions in self-confidence and emotional well-being. The Self-
a clinically sensible way. The authors were less con- esteem subscale includes questions on topics such as
cerned originally about developing a measure that was self-esteem, security, sense of power and control, and
consistent with any single theoretical perspective. self-confidence. Scores can range from −3 (maximum
Nonetheless, the PIADS embodies assumptions negative impact) through zero (no perceived impact) to
about QOL that are consistent with emerging, influ- +3 (maximum positive impact).
ential frameworks in disability and rehabilitation re- Under normal circumstances, the PIADS can be
search [9]. Principally, QOL is a complex and mul- completed in 5–10 minutes. The PIADS comes with a
tidimensional construct. It is dynamic, changing over manual that presents the conceptual basis and intended
time and over a person’s life [10]. It arises from a per- applications for the instrument, summarizes its mea-
J. Jutai and H. Day / Psychosocial Impact of Assistive Devices Scale (PIADS) 109

surement properties and validation research to date, (.75 to .94). Concurrent validity with the source (orig-
and describes administration and scoring procedures in inal, English) PIADS also produced acceptable coef-
detail with examples. A glossary is also included to ficients (.77 to .83). Comparisons between PIADS
aid users in the interpretation of PIADS items where scores and qualitative data obtained through interviews
needed. The PIADS may also be used to assess a re- with device users indicate a high degree of reflection
spondent’s expectations of device impact (i.e., antic- of user concerns and issues in the PIADS [16]. User
ipated impact, prior to using the device). In this in- expectations of psychosocial impact from device use
stance, there is a modified set of instructions that can accurately predict their experiences following device
be given. adoption [21].

4. Measurement properties of the instrument 5. Results of application in outcome studies

The psychometric qualities of the PIADS have been The studies summarized in Table 1 have demon-
described in a number of publications as being good to strated that the PIADS is a reliable, valid, and respon-
excellent. The results are summarized in Table 1. sive measure, with good clinical utility. The PIADS is
Day and Jutai [8] described the basic psychometric a sensitive measure of the impact of a wide range of
properties of the PIADS, based on a sample of eye- ATs, in populations of adults who have various forms
wear devices users (n = 307). Internal consistency of disability and medical condition. Highlights from
was assessed using Cronbach’s alpha. Values were .95 the research findings to date include:
for the PIADS total score and .92, .88, and .87 for the
Competence, Adaptability, and Self-esteem subscales, – The psychosocial impact of assistive devices can
respectively. Sixty respondents completed the PIADS be reliably assessed in a standardized way across
twice, about a month apart. None of the t tests com- diverse populations of device users [9].
paring the two assessments reached significant differ- – The PIADS is capable of predicting device reten-
ences (p values ranging from .77 to .85), indicating the tion and abandonment[22].
stability of the scale. Construct validity was examined – Patterns of psychosocial impact vary across popu-
using a Principal Component Analysis of the data from lations of device users [9].
307 subjects. The results yielded three distinct sub- – Devices associated with stigma produce pre-
scales, accounting for 61.1% of the total variance. This dictable patterns of psychosocial response [9,13,
3-dimensional structure was confirmed in replication 15,20].
studies involving 150 eyewear device users [8] and 92 – The psychosocial impact of assistive devices is
wheelchair users [9]. Construct validity was further dissociable from the effects of illness and disabling
demonstrated in an examination of the association of condition [9,13,18].
the PIADS with a measure believed to tap environmen- – The overall agreement between user self-report
tal impact on emotional responses: the Pleasure, Dom- and caregiver report of device impact on the user
inance and Arousal (PAD) scale [8,18]. The Pearson is surprisingly good [15].
correlation coefficients (rp) were significant at the 0.05 – The PIADS is sensitive to clinically and function-
level between the PIADS subscales and the Pleasure ally important variables associated with the user’s
(rp .46 to .59) and Dominance subscales (rp .21 to .34) condition and device capabilities [9,16,18,21].
but not with the Arousal subscale (rp .06 to .17). The
results were interpreted as supporting the discriminant
validity of the PIADS. 6. Discussion
Validity was further supported by a study of the
scale’s ability to distinguish the responses from eye- Other projects are currently underway to: (1) develop
glass wearers and contact lens wearers, in which group versions of the PIADS suitable for young children and
patterns of response were consistent with predictions for adults who have cognitive difficulties; (2) examine
from the literature [8]. Demers and colleagues [19] the validity of translations of the PIADS into languages
found that both the three subscales and total scale of the other than English; (3) investigate psychosocial factors
French translation of the PIADS had good test-retest in long-term device use and discontinuance for various
reliability (ICC of .77 to .90) and internal consistency populations of device users.
110 J. Jutai and H. Day / Psychosocial Impact of Assistive Devices Scale (PIADS)

Table 1
Psychometric properties of the PIADS
Reference Internal Test- Stability Reliability of Sensitivity to user Responsive-ness Validity
consistency retest caregiver condition and to device
reliability proxy device features intervention
√ √ √ √
8, 18 √ √ √
9, 13 √ √ √
14 √
15 √ √
16, 20 √
17 √ √ √
19 √ √ √
21

The ability of the PIADS to predict abandonment [2] J. Murphy, I. Markova, S. Collins and E. Moodie, AAC Sys-
and retention has prompted examination of how the PI- tems: Obstacles to Effective Use, European Journal of Disor-
ders of Communication 31 (1996), 31–44.
ADS can best be used to advance the knowledge base in
[3] B. Phillips and H. Zhao, Predictors of Assistive Technology
this area [18]. The theories thus far considered include Abandonment, Assistive Technology 5 (1993), 35–45.
personal control and self-efficacy. They are possibly [4] M.J. Scherer, Outcomes of Assistive Technology Use on Qual-
the most promising psychological conceptualizations ity of Life, Disability & Rehabilitation 18 (1996), 439–448.
for developing a user-focused, environmentally sensi- [5] A.J. Kerrigan, The Psychosocial Impact of Rehabilitation
Technology, Physical Medicine & Rehabilitation: State of the
tive understanding of AT adoption and retention. When Art Reviews 11 (1997), 239–252.
AT is successful in helping people maintain or regain [6] J. Jutai, N. Ladak, R. Schuller, Naumann and V. Wright, Out-
control, important results are increased self-efficacy comes Measurement of Assistive Technologies: An Institu-
and decreased negative emotional reactions to disabil- tional Case Study, Assistive Technology 8 (1996), 110–120.
[7] M. Powell Lawton Measure of Quality of Life and Subjective
ity. These effects in turn are hypothesized to enhance Well-being, Generations 21 (1993), 45–48.
subjective well-being. They are forms of psychosocial [8] H. Day and J. Jutai, Measuring the Psychosocial Impact of
impact that are measured in the PIADS. Assistive Devices: The PIADS, Canadian Journal of Reha-
The PIADS is a reliable and valid tool that appears bilitation 9 (1996), 159–168.
to have significant power to predict important AT out- [9] J. Jutai, Quality of Life Impact of Assistive Technology. Re-
habilitation Engineering 14 (1999), 2–7.
comes. It can and should be used both deductively and [10] H. Day and S.G. Jankey, Lessons from the Literature: To-
inductively to build and test theory about the psychoso- wards a Holistic Model of Quality of Life, in: Quality of
cial impact of assistive technology. Further investiga- Life in Health Promotion and Rehabilitation: Conceptual Ap-
tion is needed into the relationships among the PIADS proaches, Issues and Applications, R. Renwick, I. Brown and
M. Nagler, eds, ISBN: 0 8039 5913 3, Sage Publications,
and other validated outcome measures. Thousand Oaks, California, 1996, pp. 39–50.
[11] R. Renwick, I. Brown, D. Raphael, Quality of Life: Link-
ing a Conceptual Approach to Service Provision, Journal of
Acknowledgements Developmental Disabilities 3 (1994), 32–44.
[12] World Health Organization, International Classification of
The funding for this research was from the Ontario Functioning, Disability and Health (ICIDH-2: Final Draft),
Ministry of Health and Long-Term Care (through the WHO, Geneva, Switzerland, 2001.
[13] J. Jutai and P. Gryfe, Impacts of Assistive Technology on
Ontario Rehabilitation Technology Consortium). The Clients with ALS, Proceedings of RESNA 1998 (1998), 54–65.
authors gratefully acknowledge the collaborative con- [14] T. Inoue, N. Nagumo, H. Ishihama, K. Yokota, J. Jutai and H.
tributions to the PIADS research program to the fol- Day, Development of Psychosocial Impact of Assistive Device
lowing individuals: Kent Campbell, Louise Demers, Scale in Japanese, Paper presented at RESJA, Tokushima,
Japan, August 25th–27th, 2000.
Pearl Gryfe, Mark Hartley, Take Inoue, Patty Rigby,
[15] J. Jutai, W. Woolrich, K. Campbell, P. Gryfe and H. Day,
Shone Stickel Joos, Steve Ryan, Gabrielle Saunders, User-caregiver Agreement on Perceived Psychosocial Impact
and Graham Strong. of Assistive Devices, Proceedings of RESNA 2000 (2000),
328–330.
[16] P. Rigby, A.M. Renzoni, S. Ryan, J. Jutai and S. Stickel, Ex-
References ploring the Impact of Electronic Aids for Daily Living upon
Persons with Neuromuscular Conditions, Paper presented at
[1] L.A. Cushman and M.J. Scherer, Measuring the Relationship the Tri-Joint Congress 2000, (The Canadian Association of
of Assistive Technology Use, Functional Status over Time, and Speech-Language Pathologists and Audiologists, The Cana-
Consumer-Therapist Perceptions of ATs, Assistive Technology dian Association of Occupational Therapists, The Canadian
8 (1996), 103–109.
J. Jutai and H. Day / Psychosocial Impact of Assistive Devices Scale (PIADS) 111

Physiotherapy Association), Toronto, Ontario, May 24–27, [21] J. Jutai, P. Rigby, S. Ryan and S. Stickel, Psychosocial Impact
2000. of Electronic Aids to Daily Living. Assistive Technology 12
[17] H. Day, J. Jutai, W. Woolrich and G. Strong, 2001. The Stabil- (2000), 123–131.
ity of Impact of Assistive Devices, Disability & Rehabilitation [22] J. Jutai, H. Day, W. Woolrich and G. Strong, The Prediction of
23 (2001), 400–404. Retention and Abandonment of Assistive Devices, Manuscript
[18] H. Day, J. Jutai and K.A. Campbell, Development of a Scale submitted for publication, 2002.
to Measure the Psychosocial Impact of Assistive Devices: [23] B. Wright, Physical Disability – A Psychosocial Approach.
Lessons Learned and the Road Ahead, Disability & Rehabili- (Second edition). ISBN: 0-06-047241-3. Harper Collins Pub-
tation 24 (2002), 31–37. lishers, New York, NY, 1983, pp. x-xix.
[19] L. Demers, M. Monette, M. Descent, J. Jutai and C. Wolf- [24] J. Bickenbach, ICIDH-2 and the Role of Environmental Fac-
son, The Psychosocial Impact of Assistive Devices Scale (PI- tors in the Creation of Disability, in: Assistive Technology
ADS): Translation and Preliminary Psychometric Evaluation on the Threshold of the New Millennium, C. Buhler and H.
of a Canadian French Version, Quality of Life Research 11 Knops, eds, ISBN: 1-58603-001-9, IOS Press, Amsterdam,
(2002), 583–592. The Netherlands, 1999, pp. 7–12.
[20] J.W. Jutai and G.H. Saunders, Psychosocial Impact of Hearing [25] C. Ryff and B. Singer, The Contours of Positive Human Health,
Aids with a Generic Scale, Paper presented at the American Psychological Inquiry 9 (1998), 1–28.
Academy of Audiology, San Diego, CA, April 19–22, 2001.

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