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Journal of Anxiety Disorders 69 (2020) 102150

Contents lists available at ScienceDirect

Journal of Anxiety Disorders


journal homepage: www.elsevier.com/locate/janxdis

The impact of internet-delivered cognitive behavioural therapy for health T


anxiety on cyberchondria
Jill M. Newbya,b,*, Eoin McElroyc
a
School of Psychology, UNSW Sydney, 1302 Mathews Building, Randwick, NSW, 2052, Australia
b
Clinical Research Unit for Anxiety and Depression (CRUfAD), School of Psychiatry, UNSW Sydney at St Vincent’s Hospital, 390 Victoria Street Darlinghurst, NSW,
Sydney, 2010, Australia
c
Department of Neuroscience, Psychology and Behaviour, University of Leicester, University Road, Leicester, LE1 7RH, UK

A R T I C LE I N FO A B S T R A C T

Keywords: Cyberchondria refers to an emotional-behavioural pattern whereby excessive online searches lead to increased
Cyberchondria anxiety about one’s own health status. It has been shown to be associated with health anxiety, however it is
Health anxiety unknown whether existing cognitive behavioural therapy (CBT) interventions targeting health anxiety also
Illness anxiety disorder improve cyberchondria. This study aimed to determine whether internet-delivered cognitive behavioural
Online health information searching
therapy (iCBT) for severe health anxiety led to improvements in self-reported cyberchondria and whether im-
Somatic symptom disorder
provements in cyberchondria were associated with improvements in health anxiety observed during treatment.
Methods: We analysed secondary data from a randomised controlled trial (RCT) comparing an iCBT group
(n = 41) to an active control group who underwent psychoeducation, monitoring and clinical support (n = 41)
in health anxious patients with a DSM-5 diagnosis of Illness Anxiety Disorder and/or Somatic Symptom Disorder.
The iCBT group showed a significantly greater reduction in cyberchondria compared to the control group, with
large differences at post-treatment on the Cyberchondria Severity Scale Total scale (CSS; Hedges g = 1.09), and
the Compulsion, Distress, Excessiveness subscales of the CSS (g’s: 0.8–1.13). Mediation analyses showed im-
provements in health anxiety in the iCBT group were mediated by improvements in all of the CSS subscales,
except for the Mistrust subscale. Conclusions: Internet CBT for health anxiety improves cyberchondria.

1. Introduction reassurance-seeking from loved ones and health professionals about


their health concerns, which may temporarily allay their fears, but
Experiencing some anxiety about one’s health can be normal and maintain preoccupation with illness over the long term (Warwick &
adaptive, but when health anxiety becomes persistent, excessive and Salkovskis, 1990). With free, private, and easily accessible health in-
preoccupying, it can have a negative impact on the individual, their formation available online, it is not surprising that people with health
loved ones and health professionals (Tyrer, Eilenberg, Fink, Hedman, & anxiety frequently report searching the internet to seek reassurance
Tyrer, 2016), and society (Bobevski, Clarke, & Meadows, 2016; Tyrer, about their symptoms and health concerns (Muse, McManus, Leung,
2018). Health anxiety is thought to be dimensional in nature, ranging Meghreblian, & Williams, 2012).
from normal, transient health worries to severe, and disabling health Exposure to information during online searches, especially
anxiety. In the DSM-5 it is categorised as Illness Anxiety Disorder (IAD) alarming, inaccurate and misleading information about life-threatening
or Somatic Symptom Disorder (SSD) depending on the severity of the illnesses (White & Horvitz, 2009) can exacerbate existing worries about
individual’s somatic symptoms (American Psychiatric Association, illnesses, and lead to new anxieties, causing an escalating pattern of
2013). Severe and functionally impairing health anxiety affects be- distress and further excessive and repeated online searches for health
tween 3–5% of the population (Creed & Barsky, 2004; Sunderland, information in a pattern labelled ‘cyberchondria’ (Starcevic and Berle,
Newby, & Andrews, 2012). 2013). This phenomenon may be heightened by technical features of
People with health anxiety are afraid that they either have, or will online search engines. The algorithms that determine search results are
develop serious, often life-threatening illnesses. As a result of these driven largely by the popularity of the available information, so that
fears, they often engage in a range of behaviours such as excessive frequently accessed web pages are given priority in search results. Thus,


Corresponding author at: School of Psychology, 1302 Mathews Building, UNSW Australia, Kensington, NSW, 2052, Australia.
E-mail address: j.newby@unsw.edu.au (J.M. Newby).

https://doi.org/10.1016/j.janxdis.2019.102150
Received 24 May 2019; Received in revised form 10 September 2019; Accepted 9 October 2019
Available online 31 October 2019
0887-6185/ © 2019 Elsevier Ltd. All rights reserved.
J.M. Newby and E. McElroy Journal of Anxiety Disorders 69 (2020) 102150

searches of relatively benign symptoms may be biased to produce in- health anxiety was outlined (the ‘Health Anxiety Program’) (Newby
formation about alarming, rare, life-threatening conditions. For in- et al., 2016). The iCBT program included psychoeducation about health
stance, White and Horvitz (White & Horvitz, 2009) found that the most anxiety, and taught CBT skills to target the cognitive and behavioural
common result from a search of the term ‘muscle twitch’ was amyo- processes that are proposed to maintain health anxiety (Warwick &
trophic lateral sclerosis, despite the fact that it has an annual incidence Salkovskis, 1990), including cognitive therapy components to change
rate of 1 in every 55,000 persons. maladaptive interpretations of bodily symptoms and beliefs about
The way that cyberchondria has been defined and conceptualised health and illness, and behavioural strategies to reduce excessive
has varied widely across studies. For the purposes of this study, we checking, reassurance-seeking and avoidance of situations that trigger
conceptualise cyberchondria as having both a behavioural and emo- illness fears (e.g., hospitals, conversations about illness). In addition to
tional component. The behavioural aspect of cyberchondria involves these strategies, the program educated participants about the role of
excessive, and repeated online searches for health information that may online health information searching (‘Googling behaviours’) in ex-
function similar to reassurance-seeking behaviour, where the individual acerbating health anxiety and preoccupation with illness. It also taught
seeks reassurance online as opposed to in-person. The individual may participants to become more aware of, self-monitor, and reduce ex-
search online initially in an attempt to reduce distress, or to alleviate cessive online health information searching through behavioural ex-
their fears of illness or uncertainty about unexplained physical sensa- periments, activity scheduling, and other strategies to delay and pre-
tions. Some searches may temporarily alleviate the individual’s anxiety, vent unhelpful online searching about symptoms and illness.
but serve to maintain anxiety long-term through maintaining the in- We expected the iCBT program to be helpful at reducing the beha-
dividual’s preoccupation with health concerns and difficulty tolerating vioural and emotional components of cyberchondria via several ave-
uncertainty about unexplained sensations. Individuals may search on- nues. For example, this intervention aimed to increase awareness of the
line, but not feel reassured by the searches and instead experience frequency of online searching and the unhelpful personal costs of online
heightened distress and anxiety. That is, the searching causes escalating searching, and taught practical strategies to prevent, delay and stop
distress, and prompts further online searching, which further escalates online searching behaviour once it started. We expected these strategies
distress and future searches. The emotional component of cyberchon- to help health anxious participants to reduce the frequency and dura-
dria is the distress, or anxiety caused by the searching, or the inability tion of online health information searching, and in turn also prevent
to control the searching behaviour. escalations in distress that can occur through excessive and repeated
There is an ongoing debate as to whether cyberchondria is a core searching. In addition, the iCBT program taught participants how to
feature of health anxiety (Starcevic & Berle, 2013), or whether it con- relate to symptoms and health information in a different way. For ex-
stitutes a distinct concept in its own right (Fergus & Russell, 2016; ample, they developed new ways of thinking about unexplained bodily
Mathes, Norr, Allan, Albanese, & Schmidt, 2018). Cross-sectional stu- sensations and health information, as opposed to relying on cata-
dies have shown a strong association between cyberchondria and health strophic ‘worst case scenario’ thinking patterns and assumptions. Once
anxiety (2014, Fergus, 2013; Mathes et al., 2018; Norr, Albanese, an individual can develop their own less threatening interpretations of
Oglesby, Allan, & Schmidt, 2015; Norr, Allan, Boffa, Raines, & Schmidt, bodily sensations, and improve their ability to tolerate uncertainty
2015; Norr, Oglesby et al., 2015). A recent meta-analysis of 20 studies, about these sensations, we expected them to rely less on internet
including 7373 participants showing a positive correlation between searches to alleviate anxiety. In addition, by learning how to regulate
health anxiety and cyberchondria (r = 0.62) (McMullan, Berle, Arnaez, negative emotions including anxiety, coupled with the ability to think
& Starcevic, 2019). However, psychometric analyses have supported more clearly, rationally, and in less negatively biased interpretation
meaningful a distinction between cyberchondria and health anxiety style, we expected that they should be able to both prevent anxiety from
(Fergus & Russell, 2016). Furthermore, the direction of causality be- escalating, and alleviate the anxiety more quickly after online searches.
tween online health searches and health anxiety may also vary between Through facilitating these changes, we expected health anxiety to re-
individuals, meaning the behavioural cycle of cyberchondria cannot be duce. We therefore expected reductions in cyberchondria would be
considered, in all cases, purely the result of pre-existing health anxiety. associated with improvements in health anxiety symptoms.
Although people with elevated health anxiety report a greater fre- In a randomised controlled trial (Newby et al., 2018), we showed
quency of online health information searches, along with greater re- that iCBT for health anxiety had large and superior effects in reducing
sultant anxiety (Doherty-Torstrick, Walton, & Fallon, 2016; Muse et al., health anxiety compared to an active control group who received online
2012; Singh & Brown, 2016), it is has been demonstrated that in- anxiety psychoeducation, support and monitoring from a clinician. As
dividuals without an existing tendency towards health worries can ex- part of that RCT, we also aimed to examine the impact of the iCBT
perience elevated levels of distress/anxiety as a result of searching program on cyberchondria, and administered the self-report Cyberch-
behaviour (te Poel, Baumgartner, Hartmann, & Tanis, 2016). Such ondria Severity Scale (CSS) before and after a 12-week treatment period
searches may be prompted by curiosity or the sudden emergence of an to achieve this aim. The CSS contains five subscales that assess the
unexplained symptom (Starcevic, 2017). Together, these findings sug- multidimensional construct of cyberchondria. These include the Com-
gest that cyberchondria can be conceptualised as a unique pattern of pulsion (the degree to which online health information interrupts daily
behaviours and emotions that undoubtedly plays an important role in activities), Distress (emotional distress associated with online health
health anxiety, and therefore needs to be targeted in treatment. information searching), Excessiveness (seeking out repeated, and fre-
To our knowledge, there is no research on the treatment of cy- quent sources of information), Reassurance (anxiety leading from on-
berchondria, either alone or in the context of health anxiety (McMullan line searches to seeking opinions from other experts of health profes-
et al., 2019; Starcevic & Berle, 2013). The current study sought to ad- sionals) and Mistrust of Health Professionals subscales (whether online
dress this gap by examining, for the first time, whether clinician-guided information is trusted more than health professionals) subscales. Our
internet-delivered CBT for health anxiety improves cyberchondria, in a primary aim in the current study was to explore whether iCBT for
sample of participants who met criteria for DSM-5 diagnoses of IAD health anxiety improves cyberchondria (and specific subscale ratings)
and/or SSD. Clinician-guided iCBT has previously been shown to be relative to the control group. Our second aim was to explore whether
effective at improving health anxiety (Hedman et al., 2011, 2014; improvements in cyberchondria were associated with improvements in
Hedman, Axelsson, Andersson, Lekander, & Ljótsson, 2016; Newby health anxiety using mediation analyses. We hypothesised that iCBT
et al., 2016), mirroring the success of face-to-face CBT protocols (see would outperform the control group in improving cyberchondria, and
Cooper, Gregory, Walker, Lambe, & Salkovskis, 2017; Thomson & Page, that improvements would be associated with changes in symptoms of
2007 for reviews on CBT). health anxiety.
In a previous paper, the development of a new iCBT program for

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J.M. Newby and E. McElroy Journal of Anxiety Disorders 69 (2020) 102150

2. Methods but that this relief is often short-lived. It also taught how googling can
lead to unintended negative effects, such as exacerbating existing fears,
2.1. Participants maintaining focus and preoccupation with anxieties, lead to new fears
of illness, and lead to incorrect self-diagnoses. They were also taught
Participants who met criteria for a diagnosis of DSM-5 IAD or SSD about the variable quality of online health information, and how more
(participants with SSD must endorse criterion B2 for SSD ‘persistently highly ranked websites in search engines are ranked by popularity not
high level of anxiety about health or symptoms’) who were on a stable necessarily their accuracy, and that ‘alarming and threatening, worst
dose of psychological and/or pharmacotherapy for the two months case scenario’ information, stories of suffering and mistaken diagnoses
prior to intake assessment were eligible to participate. Applicants were are often higher in the search results, rather than factual or benign
not eligible to participate if they had a self-reported diagnosis of psy- information. Finally, the module tips to become an ‘expert searcher’.
chosis or bipolar disorder, currently used antipsychotic or regular Tips included keeping track of, and learning to identify triggers for
benzodiazepine medications, or had severe depression (defined as internet searching, and replacing triggers with alternative activities
scoring > 24 on the Patient Health Questionnaire 9-item [PHQ-9]). using Activity Planning; checking only credible websites, such as health
These exclusion criteria were set due to safety reasons, to maintain experts, and government websites; avoiding searching for vague
consistency with our previous trial protocols, and to minimise the symptoms; and stopping searching when it exacerbates anxiety. Finally,
possibility of concurrent pharmacotherapies interfering with the effi- they were encouraged to conduct a behavioural experiment to compare
cacy of the CBT techniques (e.g., exposure components). anxiety levels, and health preoccupation when they avoid searching
versus when they search the internet.
2.2. Trial design It also included a ‘checking prevention plan’ to develop strategies to
prevent the participant from googling excessively including using be-
Eligible participants were randomised to either iCBT or the control havioural activation and other distracting strategies, as well as beha-
group (n = 45 for iCBT, and n = 41 for control group), and completed vioural experiments to test cognitions about googling about symptoms.
assessments at pre-, mid-, post-treatment and 3-month follow-up (iCBT Participants were encouraged to read the online module, and complete
group only, as the control group was crossed over to iCBT after post- key skills practice exercises between the lessons. Participants in this
treatment assessment). The CSS was only administered at pre and post- group received email and/or phone contact with the clinician (JN, a
treatment. The SHAI was administered at each lesson to track changes PhD-level Clinical Psychologist) after lessons 1 and 2 to encourage
in symptoms. The previous manuscript reporting the main RCT findings progress, and after subsequent lessons clinician contact was made upon
(Newby et al., 2018) reported the results for the iCBT and control patient request or if the patient reported significant deterioration (in-
groups on self-reported health anxiety severity, and a range of other creased distress) or suicidal ideation. If participants stopped logging in,
outcomes, including generalised anxiety, depression, distress, body they were sent up to two automated emails to remind them to complete
hypervigilance, and maladaptive cognitions. The CSS results have not their next lesson. In addition, the clinician attempted to contact the
been reported previously. participant via email or phone if the participant did not respond to the
automated emails, or login after they were prompted. The clinician
2.3. Ethics approval and informed consent spent on average 43.11 min per participant on email and telephone
contact in the iCBT group (SD = 25.75, range = 13–116 minutes).
All participants provided electronic informed consent to participate
in the study. The study involving the clinical sample was approved by St 2.4.2. Control group
Vincent’s Hospital Human Research Ethics Committee (HREC/14/SVH/ Fact sheets (2–4 pages) were delivered online each fortnight on
294) and registered with the Australian and New Zealand Clinical Trials topics related to anxiety (e.g., The fight-or-flight response, Causes of
Registry (ACTRN12615000887572). anxiety, How to Manage Stress). Participants were offered clinician
contact via email or phone. Phone contact was made if the participant
2.4. Interventions reported significant deterioration in distress or depression symptoms, or
suicidal ideation. The clinician spent an average of 23.20 min
2.4.1. Internet CBT (SD = 13.74, range = 8–61) minutes per participant in the control
The Health Anxiety Course is a 6-lesson illustrated comic-style online group.
program delivered via the Virtual Clinic website (www.virtualclinic.
org.au)1 over 12 weeks. After a participant completed a lesson, they 2.5. Diagnostic interview
were required to wait a minimum 5 days until the next lesson was re-
leased. Participants were encouraged to complete one lesson per week Participants were administered an abbreviated telephone-adminis-
to fortnight, however, they were able to complete the program at their tered Anxiety Disorders Interview Schedule for DSM-5 (ADIS-5) (Brown
own pace, with a maximum of 12 weeks to complete the 6 lessons. The & Barlow, 2014) prior to being included in the study to confirm whe-
program delivered psychoeducation, and CBT skills including detecting ther they met criteria for an IAD, or SSD diagnosis or comorbid IAD and
and challenging negative thinking patterns about bodily symptoms and SSD (Brown & Barlow, 2014).
health, exposure to feared situations and sensations, behavioural stra-
tegies to reduce checking, reassurance-seeking and googling about 2.6. Clinical outcomes
symptoms, and relapse prevention.
Importantly, strategies to reduce unhelpful and excessive googling The primary outcome was health anxiety according to the 18-item
of symptoms were included in Lesson 2. In this lesson, excessive goo- Short Health Anxiety Inventory (SHAI) (Salkovskis, Rimes, Warwick, &
gling was conceptualised as a form of unhelpful checking behaviour. Clark, 2002). Cyberchondria was assessed using the 33-item Cyberch-
Participants read psychoeducation about the unhelpful role of googling, ondria Severity Scale (McElroy & Shevlin, 2014).
and how it can exacerbate health anxiety, maintain preoccupation with
illness fears, and trigger new fears. First, the lesson explained how 2.6.1. The Short Health Anxiety Inventory (SHAI) (Salkovskis et al., 2002)
googling may have lead to immediate, temporary relief from anxiety, The SHAI is a validated 18-item self-report measure of the severity
of health anxiety symptoms over the past week. The measure has good
psychometric properties including good internal consistency, test-retest
1
For a free demonstration of the course, contact the first author. reliability and construct validity, and is sensitive to treatment

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J.M. Newby and E. McElroy Journal of Anxiety Disorders 69 (2020) 102150

(Abramowitz, Deacon, & Valentiner, 2007; Alberts, Hadjistavropoulos, cyberchondria (either the total scale score, or the separate subscale
Jones, & Sharpe, 2013). Participants are asked to rate each item with scores) as the mediator variable (M) using PROCESS (Hayes, 2013).
four response options to examine cognitive and behavioural features of This enabled us to test the indirect effects of treatment (where 0 =
health anxiety. Items are rated on a four point scale, ranging from 0 to 3 control, and 1= iCBT) on post-treatment health anxiety severity (SHAI
(for example, the first item is: 0 = I do not worry about my health, scores) via changes in cyberchondria. Baseline SHAI scores were en-
1 = I occasionally worry about my health, 2 = I spend much of my time tered as a covariate in all analyses. A positive change score between pre
worrying about my health, and 3 = I spend most of my time worrying and post-treatment evidenced an improvement in ratings. All 95% bias-
about my health). corrected bootstrapped confidence intervals for the indirect effects are
presented in brackets.
2.6.2. Cyberchondria Severity Scale (CSS) (McElroy & Shevlin, 2014)
The CSS is a validated 33 item self-report measure of cyberchondria. 3. Results
Items (e.g., “If I notice an unexplained bodily sensation I will search for
it on the internet”) are rated on a 5-point scale, ranging from 1-5. The 3.1. Participants
CSS has a total score, as well as five subscales: Compulsion scale,
Distress subscale, Excessiveness subscale, Reassurance subscale, and a Forty-five iCBT participants, and 41 participants in the control
Mistrust of Medical Professionals subscale. The scale has been validated group completed baseline questionnaires; of these data were collected
in undergraduate and community samples (Norr, Albanese et al., 2015; from 37/45 participants at post-treatment in the iCBT group and 32/41
Norr, Allan et al., 2015; Norr, Oglesby et al., 2015) and shown to have participants in the control group.
high internal consistency, and good convergent and divergent validity,
as demonstrated by higher correlations with measures of health anxiety 3.1.1. Demographic and sample characteristics
(r = 0. 54 – 0.59; Fergus, 2014; Norr, Oglesby et al., 2015) compared Participants were 30 years on average (SD = 12 years,
with other forms of anxiety, e.g. OCD (r = 0.34 – 0.45; Norr, Oglesby range = 18–65), the majority were female (87.2 %, n = 75), and half
et al., 2015) and generalised anxiety (r = 0.39; McElroy & Shevlin, were either married or living in a de facto relationship (n = 43, 50 %).
2014). Chronbach’s alpha’s in the current sample were 0.96 for the Most were either in part-time or full time paid work (n = 61, 70.9 %),
Total scale, 0.96 for the Compulsion scale, 0.81 on the Mistrust scale, spoke English as their main language (94.2 %, n = 81), and were well
0.85 for the Reassurance, 0.91 for the Excessiveness subscale, 0.95 for educated having completed year 12 or equivalent (n = 19, 22.1 %), or a
the Distress subscale. tertiary degree (n = 37, 43 %).
The mean score on the SHAI was 35.77 (SD = 7.21,
2.7. Statistical analyses range = 16–49), and the average age of onset of health anxiety was 21
years (SD = 9, range: 8–55). For further details of the sample, see
Treatment efficacy was evaluated using repeated measures analyses Newby et al. (2018). In terms of DSM-5 diagnoses, there was an even
of variance (ANOVAs). Because the CSS was only measured at pre- and split of IAD (n = 39, 45.3 %) and SSD (n = 39, 45.3 %), and 8 had
post-treatment in the two treatment groups, linear mixed models were comorbid IAD and SSD (17 %). On average, participants met criteria for
judged not to be appropriate, given they would not have added addi- 3.2 diagnoses (SD = 1.7). The most common comorbidity was gen-
tional value. Within- and between-groups effect sizes (Hedges g) were eralised anxiety disorder (GAD) (n = 43, 50 %), then panic disorder
calculated and interpreted using standard guidelines: 0.2 = small ef- (39.5%), agoraphobia (n = 31, 36.0 %), and major depressive disorder
fect, 0.5 = medium effect, 0.8 = large effect (Cohen 1988). Due to (MDD) (n = 31, 36 %). Fifteen participants were receiving concurrent
recent evidence showing that the cyberchondria Mistrust subscale does counselling (17.4 %) with 3 (3.5%) receiving current CBT that had
not load on the same factors as the other subscales of the CSS (Fergus, started at least 2 months prior to initial assessment, and 16 were on
2014), we chose to analyse the subscales separately, as well as the CSS antidepressant medications (18.6 %). There were no significant differ-
Total score results. The analyses of the health anxiety outcomes have ences between the two groups on any baseline characteristics or
been reported previously in the original paper (Newby et al., 2018), and treatment expectancy.
have also been included in the current paper for clarity of interpreting
the results. The CSS results have not been reported previously. The CSS 3.1.2. Primary outcomes: impact of internet CBT on health anxiety, and
results were not included in the previous report because it was only cyberchondria
administered at two time points, whereas the remaining measures were The time by group interactions were statistically significant for the
administered at multiple time points. SHAI, Total scores on the CSS as well as the Compulsion, Distress,
Reassurance, and Excessiveness subscales (all p’s < .001, except for the
2.7.1. Mediation analyses Reassurance subscale where p < .05). The between-group differences
Tests of the indirect effects (mediation) were conducted using on the SHAI, and CSS Compulsion, Distress and Excessiveness subscales
PROCESS (Hayes, 2013). Estimates of indirect effects were generated were large ranging from 0.8 (Distress) to 1.15 (Compulsion). There
using bootstrapping analysis (see Preacher & Hayes, 2004; Preacher, were only moderate between-group differences on the Reassurance
Rucker, & Hayes, 2007). Bootstrapping is a nonparametric resampling subscale favouring the iCBT group (g = 0.56). In contrast, the time by
method that generates an estimate of the indirect effect, and does not group interactions for the Mistrust subscale was not statistically sig-
require assumptions about the shape of the sampling distribution that nificant (p > .05), and there were small non-significant differences fa-
underlie the Sobel test. In bootstrapping analysis, the most stringent vouring the control group (g=-0.1) on the Mistrust subscale. See
test of an indirect effect (mediation) is if the 95% bias corrected and Table 1 for results.
accelerated confidence intervals for the indirect effect do not include
the value of 0. When zero is outside of the 95% confidence interval 3.1.3. Mediation analyses
estimate, the indirect effect is declared statistically different from zero Results of the mediation analysis indicated that the total effect of
at p < .05 (two-tailed), indicating that the effect of the independent treatment on post-treatment SHAI scores was significant (B=-11.44,
variable on the dependent variable is contingent upon the effect of the t=-6.13, SE = 1.86, p < .001). The indirect effect of treatment on
proposed mediator (Preacher & Hayes, 2004). In the current study, we post-treatment health anxiety via reductions in cyberchondria (CSS
estimated 5000 bias-corrected bootstrap 95% confidence intervals Total) scores between pre- and post-treatment was supported, as the
using PROCESS for SPSS (Hayes, 2012). indirect effect was statistically different from zero (95%CI: -8.18 to
We estimated several separate mediation models, with changes in -2.60). In addition, the indirect effect of treatment on post-treatment

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J.M. Newby and E. McElroy Journal of Anxiety Disorders 69 (2020) 102150

Table 1
Observed means and standard deviations of the online cognitive behavioural therapy program and control group on health anxiety and cyberchondria severity scale
subscales.
Measure Baseline Post Within Between-group post-treatment F (time by group)
Mean ES ES (Hedge’s g)
(95%CI) (95%CI)
Baseline to Post Post-treatment
M SD M SD

iCBT SHAI 35.11 7.18 19.81 7.87 2.15 (1.58–2.72) 1.36 (0.83-1.88) F(1,67) = 29.88, p < .001
Control SHAI 35.81 7.73 31.63 9.41 0.50 (0.00–1.00)
iCBT CSS Total 102.16 21.41 70.78 22.60 1.41 (0.90–1.92) 1.09 (0.58-1.59) F(1,67) = 22.64, p < .001
Control CSS Total 104.50 22.68 96.22 24.17 0.23 (–0.26–0.72)
iCBT CSS Compulsion 21.27 7.72 12.97 6.21 1.27 (0.77–1.77) 1.15 (0.64-1.66) F(1,67) = 16.73, p < .001
Control CSS Compulsion 22.56 7.45 20.94 7.51 0.16 (−0.33–0.66)
iCBT CSS Distress 28.68 6.60 19.05 8.31 1.30 (0.38–1.81) 0.80 (0.31-1.30) F(1,67) = 17.56, p < .001
Control CSS Distress 28.81 7.42 26.03 7.95 0.23 (−0.26–0.73)
iCBT CSS Reassurance 16.38 4.57 12.41 4.92 0.66 (0.19–1.13) 0.56 (0.08-1.05) F(1,67) = 6.68, p < .05
Control CSS Reassurance 16.47 5.46 15.38 5.51 0.13 (−0.3–0.62)
iCBT CSS Excessiveness 27.89 7.29 18.62 6.52 1.85 (1.31–2.40) 1.13 (0.62-1.63) F(1,67) = 25.07, p < .001
Control CSS Excessiveness 28.75 6.67 26.44 7.24 0.21 (−0.28–0.70)
iCBT CSS Mistrust 7.95 2.44 7.73 3.10 0.11 (−0.35–0.56) −0.10 (-0.58-0.36) F(1,67) = 0.12, p = 0.73
Control CSS Mistrust 7.91 2.41 7.44 2.26 0.15 (−0.34–0.64)
iCBT CSS Total (without mistrust subscale) 94.22 20.07 63.05 22.34 1.57 (1.05–2.09) 1.11 (0.60-1.61) F(1,67) = 25.41, p < .001
Control CSS Total (without mistrust subscale) 96.59 22.27 88.78 23.71 0.36 (−0.13–0.86)

Note. iCBT, n = 37, control: n = 32. CSS = Cyberchondria Severity Scale.

health anxiety via reductions in CSS Compulsion subscale scores (B: Shevlin (2014) originally developed this subscale based on the results of
-3.72; 95%CI: -7.13 to -1.65), Distress subscale scores (B: -3.35; 95%CI: exploratory factor analysis, which revealed a five factor model (see
-5.92 to -1.60), Excessiveness subscale scores (B: -4.24; 95%CI: -7.44 to Selvi, Turan, Sayin, Boysan, & Kandeger, 2018 for a replication of the
-1.91), and Reassurance subscale scores (B: -2.29; 95%CI: -4.55 to five factor model). However, more recently, other researchers have
-0.61) were all significant. However, the indirect effects via reductions questioned the utility of the Mistrust subscale (Fergus, 2014; Norr,
in the Mistrust subscale scores was not significant (B: -.01; 95%CI: -.32 Allan et al., 2015), in part because items on this scale (e.g., ‘I trust my
to 0.56). Together these results suggest that reductions in health an- GP/medical professional’s diagnosis over my online self-diagnosis’) are
xiety were partly mediated by reductions in cyberchondria severity, reverse scored, unlike the other subscales, and in part because the
except for Mistrust scores. Mistrust subscale does not correlate as well with other cyberchondria
subscales, or health anxiety (Barke, Bleichhardt, Rief, & Doering, 2016;
Selvi et al., 2018). In addition, recent factor analytic studies found that
4. Discussion the mistrust factor may be a separate and distinct factor to the other
factors (Fergus, 2014; Norr, Allan et al., 2015), suggesting that the
People who experience health anxiety often report excessive, and mistrust factor may not be central to cyberchondria (Norr, Allan et al.,
distressing online searches for health information, in a pattern called 2015). These findings again call into question the utility of the Mistrust
‘cyberchondria’. This study is the first to our knolwedge to examine the subscale, consistent with Fergus (2014) who suggested ‘the Mistrust
impact of CBT for health anxiety in any modality (e.g., in-person, in- subscale should not be used when creating a CSS total score’ (p509,
ternet) on cyberchondria. In a clinical treatment-seeking sample of Fergus, 2014). However, Fergus (2014) found that this subscale ex-
health anxious participants with DSM-5 Illness Anxiety Disorder and/or plained unique variance in health anxiety scores in a community
Somatic Symptom Disorder, we found that the clinician-guided iCBT sample, beyond the other CSS subscales, suggesting it may be an im-
group experienced large improvements in cyberchondria from pre- to portant construct to assess, and may tap into a separate dysfunctional
post-treatment. The iCBT group also reported significantly lower cy- belief that is associated with health anxiety. In addition, although the
berchondria severity at post-treatment relative to the control group scores were elevated on this scale (baseline mean of 7.9 on the Mistrust
who received online anxiety psychoeducation, clinical support and subscale out of a total possible score of 15), it is possible that the scores
monitoring (Newby et al., 2018). These findings add to a growing body were not elevated enough to improve substantially from baseline to
of literature supporting the positive effects of iCBT on health anxiety post-treatment. Nonetheless, iCBT did not appear to change scores on
(Hedman et al., 2011, 2014; Hedman et al., 2016; Newby et al., 2016). these items.
We found a different pattern of results across the five subscales of Due to the length of the CSS (33 items) we only administered it at
the Cyberchondria Severity Scale (CSS) (McElroy & Shevlin, 2014), baseline and post-treatment, to minimise assessment burden on parti-
with large improvements observed in the iCBT group on the Distress, cipants. Therefore, the findings of the mediation analysis need to be
Excessiveness and Compulsion subscales, and moderate improvements interpreted with caution because we cannot establish a causal re-
on the Reassurance subscale. It is possible that these findings were due lationship between the proposed mediator (cyberchondria) and the
to positive response bias, or demand characteristics. However, these outcome (health anxiety) (Thoemmes, 2015). However, our pre-
results suggest that iCBT may help health anxious individuals to reduce liminary results suggest that improvements in health anxiety in the
the excessive nature of online health information searches, the distress iCBT group may be mediated by improvements in cyberchondria se-
caused, and reduce the impact of online searching on daily activities. verity ratings, on all subscales except for the Mistrust subscale. Further
iCBT may also have a positive impact on the degree to which online research is required to test the causal relationship(s) between these two
searches motivate further reassurance-seeking from experts or health constructs during and after treatment. For instance, the integration of
professionals (the Reassurance subscale), but this effect appears smaller mediation analyses into experimental or quasi-experimental designs
than the other dimensions of cyberchondria. (i.e. the collection of data pre-trial, post-trial and at a later follow-up)
In contrast to these results, we failed to find any changes on the would help determine whether reductions in cyberchondria lead to
Mistrust of Medical Professionals subscale, in either group. McElroy and

5
J.M. Newby and E. McElroy Journal of Anxiety Disorders 69 (2020) 102150

subsequent reductions in health anxiety, or vice versa (Jose, 2016). participant searches the internet for health information, to add further
Furthermore, the use of experience sampling methodologies (ESM) in context to the meaning of the CSS scores.
the context of clinical trials may shed light on momentary processes. In addition, there are some other limitations of the CSS that are
For instance, in future trials we could include regular measures of both important to highlight. Scores on this scale are moderately correlated
cyberchondria and health anxiety immediately prior to each lesson to with health anxiety; therefore the positive changes we observed on this
explore the time course of changes in these processes, and the causal scale in the iCBT group may have been reflective of general improve-
role of changes in cyberchondria on health anxiety. Such research may ments in health anxiety, rather than a unique or distinct process. This
help further our understanding of the degree to which cyberchondria measure confounds the presence of unexplained bodily sensations and
and health anxiety are intertwined. Although brief versions of the CSS medical illnesses, with the behavioural (e.g., frequency of searching)
(12-item English version; McElroy et al., 2019) and a 15-item German and emotional (e.g., distress associated with searching) components of
version (Barke et al., 2016) have been developed in order to minimise cyberchondria. It is not known whether the gains for cyberchondria are
participant burden, further refinement or new measurement ap- maintained long-term, although the improvements in self-reported
proaches may be required in order to adequately capture cyberchondria health anxiety severity were maintained in the iCBT group at 3-month
in an ESM design. follow-up (Newby et al., 2018). Replication by independent research
teams with a larger sample, weekly self-report and objective measures
4.1. Clinical implications of online searching behaviour, and a longer-term follow-up assessment
is needed.
Our findings have important implications for assessment, and
treatment of cyberchondria. First, they suggest that CBT for health 4.3. Conclusions
anxiety, which include components that directly target excessive online
health information searching, can successfully improve cyberchondria This is the first study to show that clinician-guided internet CBT
severity, in treatment-seeking individuals with DSM-5 IAD and/or SSD reduces cyberchondria in a sample of patients with DSM-5 diagnoses of
diagnoses. It is not yet clear whether multicomponent CBT for health Illness Anxiety Disorder and Somatic Symptom Disorder. Our findings
anxiety, or cyberchondria-specific interventions achieve better results. provide support for the use of CBT to reduce cyberchondria in health
We also do not know which components of our existing program are anxious samples.
most effective for reducing cyberchondria. We included component to
reduce and target excessive googling behaviour in the second module of Declaration of Competing Interest
the program, which specifically educated participants about the po-
tential role of online health information searching (‘Googling’) in None.
worsening symptoms of health anxiety and attentional hypervigilance
toward bodily symptoms and threatening sensations. However, the Acknowledgements
program also incorporated a range of other cognitive and behavioural
therapy techniques which may have had an indirect, positive impact on Funding: This work was supported by the Australian National
online searching behaviour. For example, participants were taught to Health and Medical Research Council (NHMRC) Early Career
develop alternative (neutral) explanations for their symptoms to reduce Fellowship (grant number: 1037787) and Medical Research Future
catastrophic thinking, and strategies to reduce excessive body hy- Fund Career Development Fellowship (grant number 1145382)
pervigilance and body checking. These strategies may have reduced awarded to Dr Jill Newby, and a St Vincent’s Clinic Foundation grant
anxiety and fears of illness, in turn reducing the urge to search online awarded to Dr Jill Newby.
about symptoms and feared illnesses. Future research could incorporate
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