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Willingness to join a research study[edit]

Most of the coordinators and researchers actually showed some hesitation when they were asked if
they would enroll as a subject in a clinical trial, not necessarily their own, but any study. When asked
to elaborate on their hesitation, many said that they would be “concerned about the motivations
behind the study, its purpose, its funding, as well as expectations of what participation might
entail.”[16] Ultimately, only 24% of the respondents said they would be willing to participate with
majority of them stating they would need full transparency and an indication that there would be
some personal benefit in order for them to even consider participating. Some even had a list of
criteria that had to be met. Eleven percent indicated that they would not at all be willing to enroll in a
research study. One respondent commented “If it involved taking a medication, no. Never. I would
be in a clinical trial if there was something, like...track [your] mammogram…[something] I am already
subjecting myself to.”[16] Cook and Hoas stated that these answers were “particularly puzzling”
because “these respondents still reported that their patient/participants received ‘optimal care’” from
clinical trials.

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