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research-article2014
AUT0010.1177/1362361313517367AutismBölte

Editorial
Autism

The power of words: Is qualitative 2014, Vol. 18(2) 67­–68


© The Author(s) 2014
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DOI: 10.1177/1362361313517367

research in the study of autism? aut.sagepub.com

Honestly, who among us was properly academically rationale, clarity, documentation, replicability, and sound-
trained to conduct qualitative research? Who can sponta- ness of conclusions. I also have observed that in some
neously cite a qualitative study of autism, or would say his qualitative studies, quantitative methods in general or
or her favorite study of autism is a qualitative one? Who results from quantitative studies are disparaged, which
thinks qualitative research is as valuable as quantitative demonstrates that inadequate arrogance exists on both
research? Without either qualitative or quantitative evi- sides of the debate.
dence for it, only an n = 1 personal experience, I would Quantitative and qualitative approaches each serve
assume with good confidence: not many of you, correct? certain aspects of research; they have specific strengths
The number of original studies that use qualitative meth- and weaknesses, and in the best cases are complemen-
ods in respected peer-reviewed journals is negligible com- tary (Brown and Lloyd, 2001; Razafsha et al., 2012).
pared to quantitative ones. Why is that so? Knowledge is derived from both sources, and mixed
In this editorial, I will first explain why I think there models are becoming more accepted. Qualitative
still is an implicit attitude among many of my esteemed research helps to ask the right questions, derive hypoth-
peers that the results of qualitative research cannot be eses, and can enable a deeper understanding of certain
taken seriously, and then argue that disrespect for qualita- processes in humans. Quantitative research should test
tive research is a well-cultivated myth, and that rigorous hypotheses, and enable the generalizability of findings
qualitative research is as necessary as quantitative research. to larger populations. For both, standards must be high
A note of caution for readers: I feel somewhat appointed to for reliability and validity. In qualitative research, rigor
write about these issues, as I have gone through a recent is achieved by the concepts of triangulation, trustworthi-
transition from rather hostile to rather enthusiastic about ness, saturation, flexibility, and applicability (Kisely and
qualitative research, which I will describe later. Kendall, 2011).
So, why is there relatively little qualitative research in We at Autism receive an increasing number of submis-
autism, and why are related methods not well accepted by sions using qualitative methods, although the percentage
the scientific community? First, I assume, few are well that we publish is still below the proportion of what we
trained in qualitative research. For most, it is something publish of quantitative submissions. Autism is as open to
that others do, and is viewed as bad (or at best, incomplete) publishing qualitative research as quantitative research if
science. Second, there is perhaps a perceived lack of need; it applies the same high standard of rigor that we expect
the main objective of qualitative research is to gain deeper from quantitative studies. During 2014, Autism will pub-
understanding of human behavior and experiences based lish a special issue on autism and society, covering topics
on (a series of) cases. Data from qualitative studies can be from dissemination, knowledge translation, and responsi-
used to generate good hypotheses, for which quantitative ble communication, via public engagement and awareness
support can be sought, as well to illuminate quantitative as well as stigmatization and societal integration to
findings. However, many autism researchers are clini- empowerment, autism culture, and advocacy organiza-
cians, too. Therefore, they may encounter enough informa- tions. We have received some promising submissions
tive cases in naturalistic settings and gain sufficient insight using qualitative designs, and look forward to publishing
into their behavior (“clinical experience”) from which to some of them.
derive concrete hypotheses, and to interpret quantitative Even though the present issue does not include a quali-
data in an insightful fashion. Third, the scientific quality of tative study, Autism has published some fine examples of
many qualitative studies in the autism field is indeed often qualitative research that have improved our understanding
low, which further discredits qualitative research as a legit- of autism. For instance, Fleischmann (2005) investigating
imate form of empirical research. Much published qualita- how parents of children use the Internet. Calder et al.
tive research is too exploratory, with weaknesses in (2013) examined the nature of children with autism’s
68 Autism 18(2)

perspective on friendships using a mixed qualitative/ Acknowledgements


quantitative model. Additional favorites published in Special thanks to my dear editorial colleagues David S Mandell
other journals are Smith and Sharp (2013) on the impact and Aubyn C Stahmer, for excellent comments and helping a
of sensory experiences on adults with high-functioning non-native English speaker to put things stylistically correctly in
autism spectrum disorder, and Chen et al. (2013) and Gray this editorial.
(2006) on parents’ attitudes and experiences regarding
genetic testing, and coping with autism over time, respec- References
tively. Such studies give important information to teach- Bölte S and Choque-Olsson N (2011) KONTAKT [Swedish version
ers and service providers, new leads for quantitative of Herbrecht E, Bölte S and Poustka F (2008) KONTAKT:
studies, new perspectives on ethical implications, and per- Frankfurter Kommunikations- und soziales Interaktions-
haps enhanced societal awareness. Gruppentraining bei Autismus-Spektrum- Störungen].
Before I conclude, I still owe you my little personal Stockholm; Göttingen: Hogrefe Psykologiförlaget.
aha! experience concerning the value of qualitative Brown C and Lloyd K (2001) Qualitative methods in psychiatric
research, which caused me to reorient and reorganize research. Advances in Psychiatric Treatment 7: 350–356.
some of my clinical research toward favoring more mixed Calder L, Hill V and Pellicano E (2013) “Sometimes I want to
play by myself”: understanding what friendship means to
models of designs. I have been working quite a bit with
children with autism in mainstream primary schools. Autism
manualized group-based social skills training for chil- 17: 296–316.
dren and adolescents with high-functioning autism spec- Chen LS, Xu L, Huang TY, et al. (2013) Autism genetic testing:
trum disorder (Bölte and Choque-Olsson, 2011; Herbrecht a qualitative study of awareness, attitudes, and experiences
et al., 2009). Particularly, when we piloted a training pro- among parents of children with autism spectrum disorders.
gram in a Swedish clinical setting for a now ongoing Genetics in Medicine 15: 274–281.
large randomized clinical trial (RCT) multicenter study Fleischmann A (2005) The hero’s story and autism: grounded
(NCT01854346), unstructured post-training interviews theory study of websites for parents of children with autism.
with children, parents, and teachers revealed a multitude Autism 9: 299–316.
of positive consequences participating individuals asso- Gray DE (2006) Coping over time: the parents of children with
ciated with the intervention, which were obviously not autism. Journal of Intellectual Disability Research 50:
970–976.
captured sufficiently by our quantitative measures. These
Herbrecht E, Poustka F, Birnkammer S, et al. (2009) Pilot evalu-
included a diversity of prosocial incidents such as joining ation of the Frankfurt Social Skills Training for children and
activities at school, approaching peers and relatives, adolescents with autism spectrum disorder. European Child
increased family communication and decreased family & Adolescent Psychiatry 18: 327–335.
conflicts, better handling of conflicts and crises but also Kisely S and Kendall E (2011) Critically appraising qualitative
reduced feelings of loneliness and hopelessness, and research: a guide for clinicians more familiar with quantita-
changed attitudes toward clinical services. These qualita- tive techniques. Australasian Psychiatry 19: 364–367.
tive results changed the choice of outcome measures for Razafsha M, Behforuzi H, Azari H, et al. (2012) Qualitative ver-
the full trial, and focused interviews were added to the sus quantitative methods in psychiatric research. Methods in
final design. Molecular Biology 829: 49–62.
To sum up, I hope to convince you that qualitative Smith RS and Sharp J (2013) Fascination and isolation: a
grounded theory exploration of unusual sensory experiences
research is important, and, provided that scientific rigor
in adults with Asperger syndrome. Journal of Autism and
is applied, as important as quantitative research. There Developmental Disorders 43: 891–910.
are some good examples of studies that have signifi-
cantly improved our understanding of autism, and I am Editor
sure there is a lot more to come, not least of all in this Sven Bölte
journal.

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