Professional Documents
Culture Documents
com/dre
ISSN 0963-8288 print/ISSN 1464-5165 online
RESEARCH PAPER
of Social and Cultural Anthropology, Faculty of Social Sciences, VU University Amsterdam, Amsterdam, UK, and 5Department of Rehabilitation
Medicine, VU University Medical Centre, EMGO Institute, Amsterdam, The Netherlands
Abstract Keywords
Aim: The aim of this study was to explore which factors are associated with a successful Communication, interaction, learning process,
treatment outcome in chronic pain patients and professionals participating in a multidiscip- pain
linary rehabilitation program, with a specific focus on the patient–professional interaction.
Methods: Patients (n ¼ 16) and professionals (n ¼ 10) were interviewed and/or observed. History
The transcribed interviews and observations were analyzed and themes were described. Results:
Patients with a positive treatment outcome came to a shared understanding of their pain with Received 21 May 2013
their professional, demonstrated new learned behavior and were able to continue their Revised 22 December 2013
For personal use only.
learning process at home. Patients with a negative treatment outcome did not reach a shared Accepted 6 January 2014
understanding of their pain with their professional, were not able to change their behavior and Published online 27 January 2014
wanted more help to achieve this. Both patient groups experienced organizational barriers
within the treatment process. Factors associated with a high quality of patient–professional
interaction included the patient experience of being taken seriously, the involvement of the
professional with the patient, a clear explanation of the pain, and an open interaction between
patient and professional. Conclusion: This study provides insight into factors which were related
to a positively or negatively experienced outcome of pain rehabilitation. A good match within
the patient–professional interaction seems essential.
ä Implications of Rehabilitation
Within chronic pain rehabilitation good didactic skills and a client-centered attitude of the
professional may be helpful in order to make the patient feel being taken seriously.
An assessment of the patient’s learning style might lead to a better fit of the patient
education and training according to an individual’s learning style.
Relapse might be prevented by paying special attention to the integration of new behavior
within important life areas as work and sports.
Introduction models are used within the interaction with the patient to provide
explanation about various factors that may have led to his1 current
Chronic pain is a complex problem with physical, psychological
health situation. The purpose of pain rehabilitation is to enable the
and social components which can lead to reduced social activities,
patient to think differently about his pain in order to be able to
decreased independence, anxiety and depression [1]. Recent
deal with it better. The expectation is that this will lead
studies show that 1 out of 5 people in Europe have chronic pain
to decreased disability and increased quality of life [3]. Pain
[2]. Pain rehabilitation in the Netherlands is often based on a
rehabilitation is delivered by a variety of healthcare professionals
cognitive-behavioral model. The starting point of this model is
such as Physiotherapists, Occupational Therapists, Psychologists,
that the pain is maintained by certain emotions, thoughts and
Social Workers and Sports Professionals. They work together
behavior instead of (mainly) a physical problem. Explanation
in an interdisciplinary team which is led by a rehabilitation
physician.
Research and clinical practice show that chronic pain
patients are not always satisfied with pain rehabilitation [4,5].
According to professionals, a positive treatment outcome within interaction during treatment. Interviews with patients and profes-
pain rehabilitation is frequently lacking. Differing expectations sionals were held and observations of therapy sessions were
of patient and professional seems to be the reason for this [4]. performed.
There is often a discrepancy between the explanation model of
the professional and the patient’s beliefs, which often focus Participants
on an underlying organic cause of the pain and a solution for
Participants consisted of 16 patients with chronic pain and
this. Patients expect a clear diagnosis regarding the cause of the
10 healthcare professionals. All participants were native Dutch
pain, information in order to better understand their pain and
speakers. All professionals had several years of working experi-
the acknowledgment that their pain is real [4,6–8]. Another reason
ence with chronic pain patients and received additional education
for a negative treatment outcome seems to be the presence of
in the field of pain rehabilitation.
a poor interaction between patient and professional [4]. Parsons
Inclusion criteria:
et al. [8], in a systematic review of qualitative studies, concluded
The patient was diagnosed as having chronic pain, which
that patients and physicians experienced conflicts in their
meant that he/she had pain for more than 3 months. The pain
interaction, even though they strived for clear interaction and
could be either specific or non-specific in nature. In both
mutual respect.
cases, a behavioral treatment program was indicated because
Current research on chronic pain mainly focuses on determin-
of the absence of possible medical solutions.
ing the right interventions for the right patient [9,10]. Research
The professional had one of the following occupations:
also shows that the interaction between patient and professional
rehabilitation physician, social worker, psychologist, physio-
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Professional relationship
No. Profession with patient number Sex Years of experience Treatment outcome Interaction
RP1 Occupational therapist P10 F 14 + +
RP2 Rehabilitation physician P5 M 5 NA +
RP3 Physiotherapist P4 M 20 NA +
RP4 Occupational therapist P3 F 14 +/ +
RP5 Psychologist P7 F 7 + +/
RP6 Physiotherapist P7 F 4 NA NA
For personal use only.
RP7 Psychologist P5 F 12 NA NA
RP8 Physiotherapist P5 M 26 NA NA
RP9 Occupational therapist P9 M 9 NA NA
RP10 Social worker P11 F 6 NA NA
RP ¼ Rehabilitation Professional; NA ¼ Not applicable (reasons: start treatment, professional stopped before end treatment or only an observation took
place).
interaction with the professionals, treatment outcome and learning The Medical Ethical Review Committee of the VU University
process. An observation scheme with questions was used for the Medical Centre approved the study.
observations to evaluate the verbal and non-verbal interaction
between the patient and the professional. Results
Experiences concerning the treatment outcome
Data analysis
Patients who were satisfied with the treatment outcome are more
Interviews and observations were recorded and literally tran-
capable in performing their daily activities because they know
scribed. The hermeneutic circle was used for the data analysis [8].
how to influence their complaints. Patients who were dissatisfied
The purpose of this method is to gain understanding by going back
with the treatment outcome are still not able to perform their daily
and forth between parts of the text and the whole text. The
activities because they do not know how they can influence
transcribed interviews and observations were labeled by using a
their complaints. In some cases, the professional was more
coded scheme, via the software program Atlasti (Cleverbridge AG
positive about the treatment outcome than the patient.
Customer Center, http://www.atlasti.com). Categories were devel-
The following themes were important for the accomplishment
oped by grouping codes. Categories were compared to each other
of a positive or negative treatment outcome.
and analyzed in relation to the whole text [9]. This led to the
creation of themes. The observations were analyzed in combination
Shared understanding of the pain
with the interviews, which were held after the observation.
Various methods were used to enhance the credibility of the Patients who were satisfied with the treatment outcome developed
study. Several methods of data-collection were used: observations, a shared explanation with their professional of the causal and
individual interviews and a group interview. A member-check was maintaining factors regarding their pain. They realized that they
done after each interview, and after each observation the patient themselves have an important role in solving their disabilities.
was interviewed in order to check the obtained information.
Peer debriefing within the research group was used to affirm Patient 10: ‘I did things in a different way, because I had back
emerging interpretations. Data saturation occurred with the pain. They taught me that I could do all the things I used to do;
patients’ data. During the group interview, which was held in a it won’t worsen or damage my back. They convinced me within
later stage of data collection, no new information was reported. a short period of time’.
A saturation point in the professionals’ data was not achieved Patient 6: ‘I was searching for a simple trick to solve my
due to time limitations. pain. While talking with you (the researcher) I’m becoming
1906 B. Oosterhof et al. Disabil Rehabil, 2014; 36(22): 1903–1910
aware of the fact that they conveyed a trick but it isn’t an were not aware of the fact that patients still had questions about
easy trick. The trick is to slow down and stand up for myself. their diagnostics.
I’m learning to do that’.
Learning new behavior
Patients who were dissatisfied with the treatment outcome had
Patients mentioned that it takes effort to unlearn old habits and
difficulties with understanding the professionals’ explanation of
thoughts, learn new habits and thoughts and regain confidence in
their pain or had a different explanation than their professional.
their own body.
Some patients agreed that psychosocial factors influenced
Patients who were satisfied with their treatment outcome
their pain but they did not expect those factors to be the cause
managed to stay motivated by experiencing improvements in their
of their pain.
functioning and by the confidence and reinforcement given by the
professionals. Patients learned new behavior by practicing it
Patient 7: ‘They say: it’s the muscles that won’t relax. I don’t
within the rehabilitation center, receiving feedback from the
know why they won’t relax, it seems that the reason is in my
professional, practicing it at home and evaluating their experi-
head’. ‘When you feel pain in your back, you don’t think about
ences with the professional.
(it being in) your brain’.
Patient 11: ‘Of course I understand that your pain can get
Patient 9: ‘You agreed to do things again despite your pain so
worse if you don’t feel comfortable or if you have a fight
then you need to stick to this agreement’. ‘At a certain moment
with someone’. ‘But I will not accept the explanation that my
you notice that moving becomes more flexible, which provides
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Patient 16: ‘Advice regarding sport came at the last moment. According to this professional, this patient could have
It would have been nicer if they had discussed it earlier. misunderstood his message because of her former experiences
This would have given me the opportunity to consider how with health care, negative thoughts and different expectations
I would continue playing sport after discharge’. regarding rehabilitation.
Patient 2: ‘They make it very clear that there’s something not come to a shared understanding of their pain with their
wrong in your body by showing you scans and by saying: professional, were not able to change their behavior and wanted
‘you are missing 6 intervertebral discs, that’s not ok’. The more help to achieve this. Both patient groups experienced
continuous confirmation that something is wrong is stored in organizational barriers within the treatment process.
your head. I recognized myself in the story of a person who One of the factors which play an important role in achieving
at first overburdens herself, and then starts to avoid things a positive treatment outcome was the presence of a shared
because of the constant message that movements can do harm’. understanding of the pain. This was also mentioned in a review by
Verbeek [4]. This study provides insight in factors that influence
The explanation about the role of the brain in producing pain is the establishment of a shared understanding, in a positive or
difficult to understand for some patients. Patients tend to interpret negative way.
this explanation as the pain being imaginary. Patients, in our study, who shared an understanding of their
pain with their professional became aware of having an active role
Patient 3: ‘They explain that your body gives a signal which in dealing with their pain. This is supported by the conclusions
is stronger than it actually is. My understanding of this of other studies [5,12]. The patients of the current study felt
explanation is that the pain shouldn’t even be there and it’s me that their professional took their pain seriously. They received
imagining that I have pain’. an explanation that coincided with their own experiences and
conceptual framework [12,13].
Also, the professionals mentioned that the explanation about Patients who did not share their professional’s understanding
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the functioning of the pain system was difficult to understand for of pain did not feel understood in their physical pain experience.
some patients. According to them, this was due to either a limited A possible reason for this could be the professional’s emphasis on
level of education or a practical leaning style of the patient. the psychosocial factors maintaining their pain. This focus could
They tried to clarify the explanation model by having the same have suggested to the patients that they imagine their pain, which
story told by several professionals, using metaphors or by would obviously be a very sensitive issue. The neurophysiological
practicing instead of talking. Professionals also mentioned that explanation about the role of the brain in producing pain is
they were insufficiently skilled in pain education and in defining complex [14]. The explanation can easily be misunderstood and
and using one clear explanation model. interpreted as ‘‘the pain is in my head so therefore it is not real’’.
According to previous research, education [15] and verbal skills
Professional 4: ‘Even for me it’s difficult to understand [9] are not predictors of treatment outcome. According to
and explain it. It’s only recently that we started to work like Siemonsma, ‘‘a rational problem-solving style is identified as a
this’. ‘Next to that, it was also a person with a limited level significant predictor of the effectiveness of cognitive treatment
For personal use only.
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For personal use only.