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Disabil Rehabil, 2014; 36(22): 1903–1910


! 2014 Informa UK Ltd. DOI: 10.3109/09638288.2014.881566

RESEARCH PAPER

Success or failure of chronic pain rehabilitation: the importance of good


interaction – a qualitative study under patients and professionals
B. Oosterhof1, J. H. M. Dekker2, M. Sloots3, E. A. C. Bartels4, and J. Dekker5
1
Department of Occupational Therapy and 2Department of Rehabilitation Medicine, Rehabilitation Center Heliomare, Wijk aan Zee, The
Netherlands, 3Department of Occupational Therapy, Amsterdam Rehabilitation Research Center Reade, Amsterdam, The Netherlands, 4Department
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of Social and Cultural Anthropology, Faculty of Social Sciences, VU University Amsterdam, Amsterdam, UK, and 5Department of Rehabilitation
Medicine, VU University Medical Centre, EMGO Institute, Amsterdam, The Netherlands

Abstract Keywords
Aim: The aim of this study was to explore which factors are associated with a successful Communication, interaction, learning process,
treatment outcome in chronic pain patients and professionals participating in a multidiscip- pain
linary rehabilitation program, with a specific focus on the patient–professional interaction.
Methods: Patients (n ¼ 16) and professionals (n ¼ 10) were interviewed and/or observed. History
The transcribed interviews and observations were analyzed and themes were described. Results:
Patients with a positive treatment outcome came to a shared understanding of their pain with Received 21 May 2013
their professional, demonstrated new learned behavior and were able to continue their Revised 22 December 2013
For personal use only.

learning process at home. Patients with a negative treatment outcome did not reach a shared Accepted 6 January 2014
understanding of their pain with their professional, were not able to change their behavior and Published online 27 January 2014
wanted more help to achieve this. Both patient groups experienced organizational barriers
within the treatment process. Factors associated with a high quality of patient–professional
interaction included the patient experience of being taken seriously, the involvement of the
professional with the patient, a clear explanation of the pain, and an open interaction between
patient and professional. Conclusion: This study provides insight into factors which were related
to a positively or negatively experienced outcome of pain rehabilitation. A good match within
the patient–professional interaction seems essential.

ä Implications of Rehabilitation
 Within chronic pain rehabilitation good didactic skills and a client-centered attitude of the
professional may be helpful in order to make the patient feel being taken seriously.
 An assessment of the patient’s learning style might lead to a better fit of the patient
education and training according to an individual’s learning style.
 Relapse might be prevented by paying special attention to the integration of new behavior
within important life areas as work and sports.

Introduction models are used within the interaction with the patient to provide
explanation about various factors that may have led to his1 current
Chronic pain is a complex problem with physical, psychological
health situation. The purpose of pain rehabilitation is to enable the
and social components which can lead to reduced social activities,
patient to think differently about his pain in order to be able to
decreased independence, anxiety and depression [1]. Recent
deal with it better. The expectation is that this will lead
studies show that 1 out of 5 people in Europe have chronic pain
to decreased disability and increased quality of life [3]. Pain
[2]. Pain rehabilitation in the Netherlands is often based on a
rehabilitation is delivered by a variety of healthcare professionals
cognitive-behavioral model. The starting point of this model is
such as Physiotherapists, Occupational Therapists, Psychologists,
that the pain is maintained by certain emotions, thoughts and
Social Workers and Sports Professionals. They work together
behavior instead of (mainly) a physical problem. Explanation
in an interdisciplinary team which is led by a rehabilitation
physician.
Research and clinical practice show that chronic pain
patients are not always satisfied with pain rehabilitation [4,5].

Address for correspondence: Barbara Oosterhof, Department of


1
Occupational Therapy, Rehabilitation Center Heliomare, Relweg 51, Throughout this publication where he or him is used, this can be
Wijk aan Zee 1949 EC, The Netherlands. E-mail: b.oosterhof@ substituted with she or her. We chose not to use both forms in order to
heliomare.nl improve readability.
1904 B. Oosterhof et al. Disabil Rehabil, 2014; 36(22): 1903–1910

According to professionals, a positive treatment outcome within interaction during treatment. Interviews with patients and profes-
pain rehabilitation is frequently lacking. Differing expectations sionals were held and observations of therapy sessions were
of patient and professional seems to be the reason for this [4]. performed.
There is often a discrepancy between the explanation model of
the professional and the patient’s beliefs, which often focus Participants
on an underlying organic cause of the pain and a solution for
Participants consisted of 16 patients with chronic pain and
this. Patients expect a clear diagnosis regarding the cause of the
10 healthcare professionals. All participants were native Dutch
pain, information in order to better understand their pain and
speakers. All professionals had several years of working experi-
the acknowledgment that their pain is real [4,6–8]. Another reason
ence with chronic pain patients and received additional education
for a negative treatment outcome seems to be the presence of
in the field of pain rehabilitation.
a poor interaction between patient and professional [4]. Parsons
Inclusion criteria:
et al. [8], in a systematic review of qualitative studies, concluded
 The patient was diagnosed as having chronic pain, which
that patients and physicians experienced conflicts in their
meant that he/she had pain for more than 3 months. The pain
interaction, even though they strived for clear interaction and
could be either specific or non-specific in nature. In both
mutual respect.
cases, a behavioral treatment program was indicated because
Current research on chronic pain mainly focuses on determin-
of the absence of possible medical solutions.
ing the right interventions for the right patient [9,10]. Research
 The professional had one of the following occupations:
also shows that the interaction between patient and professional
rehabilitation physician, social worker, psychologist, physio-
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seems to play an important role for the treatment outcome [4].


therapist or occupational therapist. These professions have
Figure 1 shows the result of the interaction between patient and
a major role within chronic pain rehabilitation.
professional. The expectation is that the interaction between
Exclusion criteria:
patient and professional influences: (1) the creation of a shared
 The patient followed a group program for the treatment
understanding of the pain; and (2) the initiation of the patient’s
of chronic pain. Group dynamics lead to substantially
learning process required for behavior change. This study
different patient experiences in group programs than indi-
contributes to the existing knowledge by exploring the connection
vidual programs.
between the factors mentioned in Figure 1 and their relation to the
 The patient was diagnosed with a hyperextension injury of
treatment outcome.
the neck. These patients have different impairments than
The aim of this study was to explore which factors are
patients with other types of chronic pain.
associated with a successful treatment outcome in chronic pain
A group of participants was selected consisting of patients with
patients and professionals participating in a multidisciplinary
For personal use only.

positive experiences and patients with negative experiences. First


rehabilitation program, with a specific focus on the patient–
purposeful sampling with the multidisciplinary team was done
professional interaction.
in order to be able to identify patients from both groups. Patients
The questions for this study were:
were informed about the study by an information letter and a
– What are the experiences of chronic pain patients and their
phone call in which they were asked to participate. Professionals
professionals regarding treatment outcome? What are the
were selected after data was gathered from an individual interview
facilitators and barriers in the learning process of the patient?
with their patient or an observation of their therapy session.
– What are the experiences of chronic pain patients and their
Professionals with different occupations were interviewed in order
professionals concerning their interaction within the treat-
to create a representative group. All participants gave their verbal
ment process? How is this related to the experienced
and written consent.
treatment outcome?
The patient’s characteristics and their experiences with the
treatment outcome and interaction are presented in Table 1.
Methodology
The patient population consisted of four men and 12 women with
Design an average age of 48. The patient population was representative
for the population of people with chronic pain [2,11].
A qualitative research method was used to explore: (1) the experi-
The professional’s characteristics and their experiences with the
ences of patients with chronic pain and professionals concerning
treatment outcome and interaction are presented in Table 2.
the rehabilitation program; and (2) the patient–professional
Data collection
Interviews with patients (N ¼ 16) and professionals (N ¼ 10) were
held and observations of therapy sessions were performed.
Observations of four different therapy sessions were under-
taken. Within these observations, seven professionals were
involved.
Patients and professionals were interviewed individually:
 Seven patients were interviewed at home, after discharge.
 Four patients were interviewed after the observation of a
therapy session with their professional.
 Five professionals were interviewed, three after discharge
of the patient and two after the observation of a therapy
session with their patient.
One group interview with five patients and an independent
moderator was also held.
An interview guide with open-ended questions about the
following topics was used for the individual interviews and the
Figure 1. The result of the interaction between patient and professional. group interview: expectations about the treatment program,
DOI: 10.3109/09638288.2014.881566 Success or failure of chronic pain rehabilitation 1905
Table 1. Participants: patients.

No. Sex Age Diagnosis Work status Treatment outcome Interaction


P1 F 64 Chronic back pain Teacher + +
P2 F 45 Chronic back pain Disablement insurance act + +
P3 M 36 Low back pain Alternative work for unit fitter  +
P4 F 51 Chronic back pain Optician +/ +/
P5 F 37 Chronic back pain Sick-leave (manager groceries) Not applicable (start treatment) +/
P6 F 46 Low back pain Self-employed (cosmetics) +/ +/
P7 M 51 Chronic back pain Sick leave (plumber)  +/
P8 F 52 Chronic neck pain syndrome Disablement insurance act +/ +/
P9 F 33 Pain syndrome Sick-leave (bathroom specialist) +/ +/
P10 F 48 Low back pain Project manager + +
P11 F 64 Chronic back and leg pain Disablement insurance act +/ +/
P12 M 43 Chronic back and knee pain Sick leave (truck driver) + +/
P13 M 57 Musculoskeletal problems Bailee + +
P14 F 50 Pain syndrome Disablement insurance act +/ +/
P15 F 31 Low back and leg pain Self employed +/ 
P16 F 54 Pain left hip & leg Sports teacher +/ +/

P ¼ patient, P12–P16 ¼ group interview.


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Table 2. Participants: rehabilitation professionals.

Professional relationship
No. Profession with patient number Sex Years of experience Treatment outcome Interaction
RP1 Occupational therapist P10 F 14 + +
RP2 Rehabilitation physician P5 M 5 NA +
RP3 Physiotherapist P4 M 20 NA +
RP4 Occupational therapist P3 F 14 +/ +
RP5 Psychologist P7 F 7 + +/
RP6 Physiotherapist P7 F 4 NA NA
For personal use only.

RP7 Psychologist P5 F 12 NA NA
RP8 Physiotherapist P5 M 26 NA NA
RP9 Occupational therapist P9 M 9 NA NA
RP10 Social worker P11 F 6 NA NA

RP ¼ Rehabilitation Professional; NA ¼ Not applicable (reasons: start treatment, professional stopped before end treatment or only an observation took
place).

interaction with the professionals, treatment outcome and learning The Medical Ethical Review Committee of the VU University
process. An observation scheme with questions was used for the Medical Centre approved the study.
observations to evaluate the verbal and non-verbal interaction
between the patient and the professional. Results
Experiences concerning the treatment outcome
Data analysis
Patients who were satisfied with the treatment outcome are more
Interviews and observations were recorded and literally tran-
capable in performing their daily activities because they know
scribed. The hermeneutic circle was used for the data analysis [8].
how to influence their complaints. Patients who were dissatisfied
The purpose of this method is to gain understanding by going back
with the treatment outcome are still not able to perform their daily
and forth between parts of the text and the whole text. The
activities because they do not know how they can influence
transcribed interviews and observations were labeled by using a
their complaints. In some cases, the professional was more
coded scheme, via the software program Atlasti (Cleverbridge AG
positive about the treatment outcome than the patient.
Customer Center, http://www.atlasti.com). Categories were devel-
The following themes were important for the accomplishment
oped by grouping codes. Categories were compared to each other
of a positive or negative treatment outcome.
and analyzed in relation to the whole text [9]. This led to the
creation of themes. The observations were analyzed in combination
Shared understanding of the pain
with the interviews, which were held after the observation.
Various methods were used to enhance the credibility of the Patients who were satisfied with the treatment outcome developed
study. Several methods of data-collection were used: observations, a shared explanation with their professional of the causal and
individual interviews and a group interview. A member-check was maintaining factors regarding their pain. They realized that they
done after each interview, and after each observation the patient themselves have an important role in solving their disabilities.
was interviewed in order to check the obtained information.
Peer debriefing within the research group was used to affirm Patient 10: ‘I did things in a different way, because I had back
emerging interpretations. Data saturation occurred with the pain. They taught me that I could do all the things I used to do;
patients’ data. During the group interview, which was held in a it won’t worsen or damage my back. They convinced me within
later stage of data collection, no new information was reported. a short period of time’.
A saturation point in the professionals’ data was not achieved Patient 6: ‘I was searching for a simple trick to solve my
due to time limitations. pain. While talking with you (the researcher) I’m becoming
1906 B. Oosterhof et al. Disabil Rehabil, 2014; 36(22): 1903–1910

aware of the fact that they conveyed a trick but it isn’t an were not aware of the fact that patients still had questions about
easy trick. The trick is to slow down and stand up for myself. their diagnostics.
I’m learning to do that’.
Learning new behavior
Patients who were dissatisfied with the treatment outcome had
Patients mentioned that it takes effort to unlearn old habits and
difficulties with understanding the professionals’ explanation of
thoughts, learn new habits and thoughts and regain confidence in
their pain or had a different explanation than their professional.
their own body.
Some patients agreed that psychosocial factors influenced
Patients who were satisfied with their treatment outcome
their pain but they did not expect those factors to be the cause
managed to stay motivated by experiencing improvements in their
of their pain.
functioning and by the confidence and reinforcement given by the
professionals. Patients learned new behavior by practicing it
Patient 7: ‘They say: it’s the muscles that won’t relax. I don’t
within the rehabilitation center, receiving feedback from the
know why they won’t relax, it seems that the reason is in my
professional, practicing it at home and evaluating their experi-
head’. ‘When you feel pain in your back, you don’t think about
ences with the professional.
(it being in) your brain’.
Patient 11: ‘Of course I understand that your pain can get
Patient 9: ‘You agreed to do things again despite your pain so
worse if you don’t feel comfortable or if you have a fight
then you need to stick to this agreement’. ‘At a certain moment
with someone’. ‘But I will not accept the explanation that my
you notice that moving becomes more flexible, which provides
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pain is mainly psychological’. ‘It suggests that I’m crazy.


a stimulus to continue training’.
In my opinion, the pain in my leg is neuralgia’.
Patient 6: ‘I had to stand in a different way, that was very
obvious, and that is something which I can do myself. I could
According to the professionals, some patients kept thinking
train my back by doing thousands of exercises but the problem
that their pain had a physical cause. They did not succeed
will still exist if I don’t change my standing posture. I had to
in helping the patient understand or experience their pain in a
make a connection with my daily life’.
different way.
Many patients who were not satisfied with the treatment
Professional 4: ‘We kept having a difference of opinion: we
outcome could not change their behavior because they experi-
think that your back isn’t damaged; we think the pain is caused
enced the content and/or intensity of the practical training as
by a false danger message from your brain while there is no
being insufficient. Several patients mentioned that the emphasis
tissue damage in your body. He said: I can’t understand that,
For personal use only.

of the treatment was on talking about new behavior instead of


I think it’s because I’m in a poor physical condition’.
learning new behavior. Some patients had a poor future perspec-
tive. They did not have a sufficient stimulant enabling them to
Acknowledgment for the physical part or the pain keep up the effort to change their behavior.
Some patients who developed a shared explanation with their
Patient 16: ‘You move in a certain way, I have always gone
professional thought it was important that (diagnostic) tests were
over my limits’. ‘I have only found out recently that I have to
done to substantiate the explanation model. They mentioned that
do it in a different way’. ‘The part of actually learning to move
it was important that test results were viewed and discussed
differently is far too short’.
together with the professional. For those patients, the test results
confirmed that their pain experience could not be explained (only)
Professionals also mentioned that behavior change takes a lot
by physical factors.
of effort, and requires a combination of explanation and practice.
Professionals helped their patients further within their learning
Patient 1: ‘They also did tests to confirm their explanation of
process by providing insight into their behavior and acknowl-
the cause of the pain’. ‘They ask you to feel whether a certain
edging them in their progress. They did this by asking questions
movement worsens the pain and this isn’t always the case’.
and prompting. According to some professionals, their patients
‘It makes you understand that in fact it’s in your head that it’s
managed to learn new behavior and implement it within their
painful, because the pain is always present’.
daily life because they have always been active or because of their
good body awareness or physical preference.
According to some patients, who had difficulties with the
According to one professional, her patient did not manage to
explanation model of the professionals, the pain is merely viewed
change his behavior because he could not keep up the effort due
as being psychological. In their experience, the treatment
to personal problems and poor social support.
consisted of only talking, instead of also being physical. In their
opinion, insufficient diagnostics had been done or the test results
Professional 5: ‘Not only the explanation, but this coupled with
remained rather vague. Those patients kept on questioning what
a strong positive experience will overrule the old negative
was wrong with their body.
experience (that movement is painful and means that my body
is damaged). That enables a person to change his behavior’.
Patient 15: ‘If they just would have said: we will try to see
Professional 1: ‘Sometimes you have to do a task 10 times
what happens when we trigger the pain, but their idea was
to find out that it goes better in a different way and that the
more: ‘we can’t find a physical reason so the pain must be in
whole activity goes better by doing the task in a different way.
your head’. ‘There was no ‘‘in-between’’’. ‘They have never
Normally you’re not aware of that. It’s not easy to change your
made a scan of my foot’. ‘Nobody can tell me what the cause
habits, your way of living’.
of my pain was and if it will come back’. ‘I still have nothing’.
Maintaining new behavior
Professionals considered sufficient diagnostics of importance
in order to be able to reach a shared understanding with the Patients who were satisfied with the treatment outcome men-
patient about the cause of their pain. In some cases though, they tioned that the learning process continues after rehabilitation.
DOI: 10.3109/09638288.2014.881566 Success or failure of chronic pain rehabilitation 1907
They created the necessary conditions for proceeding with their Patient 5: ‘he thought that I was crazy instead of having a
learning process. One patient had the need for a follow-up period physical problem. I would have solved it if that had been the
to evaluate her progress. She experienced this follow-up as case. In contrast, I’m a person who does not give up; I never
valuable. let frustrations get the upper hand. That has also never been
mentioned before. It’s already been 1.5 years that I’ve been
Patient 6: ‘I learned to understand the cause of my problems trying to recover’.
and what I can do about it. The next step is to learn to live like
that, that’s a different story. I understand that I have to do that The professional involved with Patient 5 argued that he just
on my own’. tried to formulate his psychosocial explanation in such a way that
Patient 6: ‘You have to give it a chance to learn to slow the patient would feel being taken seriously.
down. When life starts to get busy again it’s easy to lapse into
your old pattern: this has always been your way to survive’. Professional 2: ‘I’ve tried to only mention the behavioral
aspects of the story. In my opinion it’s important that
Many patients who were not satisfied with the treatment people think about their problems in a nuanced manner.
outcome still expressed the need for help in order to gain control They shouldn’t get the hope, perhaps false hope, that we can
over their complaints or improve their functioning. Some patients fix the problem easily with an injection. I try to avoid the
mentioned that they had little guidance in their return to work and message, ‘it’s in your head’, because people don’t accept such
sport. a message’.
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Patient 16: ‘Advice regarding sport came at the last moment. According to this professional, this patient could have
It would have been nicer if they had discussed it earlier. misunderstood his message because of her former experiences
This would have given me the opportunity to consider how with health care, negative thoughts and different expectations
I would continue playing sport after discharge’. regarding rehabilitation.

One professional thought a follow-up appointment was essen- Being involved


tial for her patient:
Patients who were satisfied with the interaction experienced the
professional as having a tranquil, personal manner and as being
Professional 4: ‘He has learned the skills but I think it will take
able to listen well. Also, they perceived these professionals as
much more time for him to implement those skills into his
being involved in trying to find solutions, giving them a different
daily life’. ‘I would love to see him again for a treatment period
For personal use only.

perspective on their situation and guiding them within their


to be able to evaluate what he learned initially, what his current
learning process.
ideas are and if the skills are useful for him’.
Patient 4: ‘Our contact was very pleasant. She addressed my
Organizational problems questions by asking further: ‘how would you do this, how
Satisfied patients as well as dissatisfied patients mentioned would you do that? She was very active by suggesting other
organizational problems, which hindered their learning process: things. She really listened to me and came up with solutions,
cancelled appointments, professionals coming late for appoint- well; actually, she guided me to a solution’.
ments and changes within the rehabilitation program which were
not communicated or implemented. These kinds of organizational Patients who were not satisfied with the interaction experi-
problems were more prominent within the stories of the enced that the professional did not listen well, was not involved
dissatisfied patients. with them or was not concerned with their learning process.
These organizational problems were not mentioned by the
professionals. Patient 14: ‘I didn’t get the impression that they knew me.
The last time I mentioned that I was disappointed about the
Experiences concerning the interaction guidance, they said: ‘you were doing fine in sports’. I said:
‘I would have appreciated it if you had told me so because
In general, patients who were satisfied with the treatment outcome I felt differently about it or perhaps insecure’.
were also satisfied with their interaction with the professionals.
However, some of the patients with a dissatisfying treatment One professional argued that some patients did not want
outcome were satisfied with the interaction, even though most of to hear an honest explanation about the pain, which then makes
those patients experienced problems in the interaction with one the professional unpopular. In his opinion, this honest explanation
or more professionals. In some cases, the professionals evaluated is necessary in order to really help the patient.
the interaction as being more positive than the patients did.
The following themes were important concerning the inter- Professional 3: ‘Recently, I received a bottle of wine from a
action between patient and professional. patient. Surely it had to do with her previous therapist who
taught her about her pain. She was angry as her previous
Being taken seriously therapist thought that the pain was in her head. I hadn’t
provided her with an explanation as yet. To be honest,
Patients who felt that they were being taken seriously experienced
I think the other therapist should get the bottle of wine. It’s
that the professional showed understanding for their situation.
our task to help the patient to think in a different way about
their pain’.
Patient 2 about her fear of movement: ‘they took it seriously
by saying: it isn’t strange at all that you start to panic’.
Giving a clear explanation
Some patients felt that the professional did not take their pain A clear, recognizable explanation enabled some patients to be
seriously enough nor acknowledged their efforts to solve the pain. able to understand their pain and explain it to other people.
1908 B. Oosterhof et al. Disabil Rehabil, 2014; 36(22): 1903–1910

Patient 2: ‘They make it very clear that there’s something not come to a shared understanding of their pain with their
wrong in your body by showing you scans and by saying: professional, were not able to change their behavior and wanted
‘you are missing 6 intervertebral discs, that’s not ok’. The more help to achieve this. Both patient groups experienced
continuous confirmation that something is wrong is stored in organizational barriers within the treatment process.
your head. I recognized myself in the story of a person who One of the factors which play an important role in achieving
at first overburdens herself, and then starts to avoid things a positive treatment outcome was the presence of a shared
because of the constant message that movements can do harm’. understanding of the pain. This was also mentioned in a review by
Verbeek [4]. This study provides insight in factors that influence
The explanation about the role of the brain in producing pain is the establishment of a shared understanding, in a positive or
difficult to understand for some patients. Patients tend to interpret negative way.
this explanation as the pain being imaginary. Patients, in our study, who shared an understanding of their
pain with their professional became aware of having an active role
Patient 3: ‘They explain that your body gives a signal which in dealing with their pain. This is supported by the conclusions
is stronger than it actually is. My understanding of this of other studies [5,12]. The patients of the current study felt
explanation is that the pain shouldn’t even be there and it’s me that their professional took their pain seriously. They received
imagining that I have pain’. an explanation that coincided with their own experiences and
conceptual framework [12,13].
Also, the professionals mentioned that the explanation about Patients who did not share their professional’s understanding
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the functioning of the pain system was difficult to understand for of pain did not feel understood in their physical pain experience.
some patients. According to them, this was due to either a limited A possible reason for this could be the professional’s emphasis on
level of education or a practical leaning style of the patient. the psychosocial factors maintaining their pain. This focus could
They tried to clarify the explanation model by having the same have suggested to the patients that they imagine their pain, which
story told by several professionals, using metaphors or by would obviously be a very sensitive issue. The neurophysiological
practicing instead of talking. Professionals also mentioned that explanation about the role of the brain in producing pain is
they were insufficiently skilled in pain education and in defining complex [14]. The explanation can easily be misunderstood and
and using one clear explanation model. interpreted as ‘‘the pain is in my head so therefore it is not real’’.
According to previous research, education [15] and verbal skills
Professional 4: ‘Even for me it’s difficult to understand [9] are not predictors of treatment outcome. According to
and explain it. It’s only recently that we started to work like Siemonsma, ‘‘a rational problem-solving style is identified as a
this’. ‘Next to that, it was also a person with a limited level significant predictor of the effectiveness of cognitive treatment
For personal use only.

of education’. of illness perceptions’’ [9]. Further research is needed in order to


determine whether pain education in the current form is suitable
Being open for every patient.
An unambiguous explanation about pain from the multidis-
Some patients mentioned that the treatment plan was made in
ciplinary team in simple words, eventually with the use of
agreement with them, while for other patients the purpose of
metaphors, is very important. It increases the chance that the
treatment was not always clear. Some patients discussed it openly
patient will better understand the explanation model [12,16].
when they disagreed with the professional or when the therapy did
A solid exploration of the patient’s beliefs is needed in order to be
not fit their expectations. This resulted in a different explanation
able to fit the explanation model to those beliefs. A Socratic-style
by the professional or a change of approach. Other patients found
dialogue is a useful conversation method which stimulates the
it difficult to discuss their criticism because they did not want to
patient to think actively about his own situation [9].
hurt the feelings of the professional.
It could be of importance to substantiate the explanation model
with (diagnostic) tests. The dissatisfaction of some patients with
Patient 9: ‘I never heard: ‘‘this is the plan’’, and, ‘‘it takes so
respect to diagnostics was confirmed by Verbeek [4]. Laerum and
many weeks’’. I never recognized a direction in that respect’.
Rhodes [17,18] advise the professionals to go through test results
together with patients. This enables them to conclude for
Professionals experienced having a good or bad interaction
themselves what is the cause of the pain and which potential
with the patient dependent upon the patient being or being not
solutions are available. According to different researchers, the
open about his ideas and questions. One professional reflected
focus should be on a good patient–professional interaction
that he did not check the patient’s ideas enough.
regarding the cause of pain [4,12]. The female patients in
Steihaug’s [19] study were less focused on receiving a diagnosis
Professional 3: ‘It surprised me that she didn’t get the point.
when their pain was acknowledged, and when they realized that
She was very friendly and she didn’t say in a direct manner:
their pain was logical. Therefore, it is of importance that the
‘‘manipulate my back, that’s what you’re here for’’. Maybe her
patients receive the confirmation that their pain is real [4,6–8].
‘‘yes, but’’ questions were ‘‘I don’t agree’’ questions, and
Patients want understanding regarding attempts to solve the pain,
I didn’t notice this. Maybe I should have checked more often
even if those attempts are not effective.
by asking: ‘‘do you really understand it?’’’.
This study has found that learning and maintaining new
behavior is an intensive process. Patients with a positive treatment
Discussion
outcome became more and more aware of the relationship
This study provides insight into factors which were related to between their pain and their behavior, which is in accordance with
a positively or negatively experienced treatment outcome and the findings of Liddle’s and Steihaug’s study [5,12]. Due to
patient–professional interaction. changes in their perception, the participants of Liddle’s and
Patients with a positive treatment outcome came to a shared Steihaug’s study became more confident about their possibilities
understanding of their pain with their professional, demonstrated to prevent or stabilize their symptoms. The patients from
new learned behavior and were able to continue their learning this study managed to change their behavior by practicing
process at home. Patients with a negative treatment outcome did and reflecting upon the new behavior. Kolb [20] argues that
DOI: 10.3109/09638288.2014.881566 Success or failure of chronic pain rehabilitation 1909
‘‘learning behavior is the result of an integration of the four gathered. A weak point of this study is that data saturation did not
learning stages of concrete experience, reflective observation, occur for the professional’s data collection. The diversity of the
abstract concept formation and active experimentation’’. professional’s group could be a reason for this. A group interview
Some patients of this study were not able to experience the with professionals could have provided a more representative
connection between their behavior and their pain. A cause of this view of their ideas and experiences. Due to organizational
could be the lack of an underlying acceptable, understandable reasons, however, this was not possible.
explanation model. Siemonsma [9] argues that next to mental This study provides insight into the factors which were related
experimentation, physical experimentation can contribute to a to a positively or negatively experienced outcome of pain
change in perceptions about pain. In her opinion, mental rehabilitation. This study provides professionals with insight
experimentation is the most important part of treatment. This into some do’s and don’ts within the rehabilitation of chronic pain
current study suggests that it was more likely the learning style patients. A good match within the patient–professional interaction
of the patient that determines whether mental experimentation seems to be essential.
or physical experimentation is most important.
One finding of this study is that patients were dissatisfied
Acknowledgements
about the planning and organization of treatment. Possibly, this
affected the learning process negatively. A research report The authors would like to thank the patients and professionals
from Revalidatie Nederland (the Dutch branch organization for who were willing to share their experiences with the first-named
rehabilitation) [21] shows that patient satisfaction scores con- author.
Disabil Rehabil Downloaded from informahealthcare.com by University of Pittsburgh on 03/12/15

cerning the planning of rehabilitation treatment are low, and that


this phenomenon is widespread. Rehabilitation centers should pay Declaration of interest
attention to this if they want to show their patients that they are
being taken seriously. This current study found that some patients The authors report no conflicts of interest. The authors alone are
expressed the need for follow-up support while others did not responsible for the content and writing of the paper. This study
express this need. Turk and Burkwinkle [22] argue that follow-up was financed by Rehabilitation center Heliomare.
interventions are essential in order to enable patients to change
their behavior after living with chronic pain for several years. References
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