Further Reading - Securing your Data

European Commission (EC). (2014). Protection of databases. Last updated 01 June 2018. 

Retrieved from https://ec.europa.eu/digital-single-market/en/protection-databases [Accessed on
16/3/2020]

General Medical Council (GMC). (2014). GMC Confidentiality guidance.

From https://gmc-uk.org/ethical-guidance/ethical-guidance-for-doctors [Accessed on 16/3/2020]

Information Commissioner's Office (ICO). (2012). Anonymisation: managing data protection risk,

code of practice. From ico.org.uk/media/for-organisations/documents/1061/anonymisation-
code.pdf [Accessed on 16/3/2020]

NHS Health Research Authority. Participant information sheets and informed consent. Last update 04
September 2019. From www.hra.nhs.uk/research-community/before-you-apply/participant-
information-sheets-and-informed-consent/ [Accessed on 16/3/2020]

McGeever, M. (October 2007). IPR in Databases [Legal Watch Papers]. Digital Curation Centre. 

From www.dcc.ac.uk/resources/briefing-papers/legal-watch-papers/ipr-databases [Accessed on
16/3/2020]

Pinsent Masons LLP. (2008). Database rights: the basics. Last updated 24 December 2019. 
Retrieved from www.out-law.com/en/topics/branding-and-intellectual-
property/copyright/database-rights-the-basics [Accessed on 16/3/2020]

Rusbridge, C. and Charlesworth, A. (2010). Freedom of Information and Research Data: Questions

and Answers, JISC. From www.lancaster.ac.uk/users/research/documents/foiresearchdata.pdf

The Scottish Information Commissioner. (November 2011). Exemption Briefing Series: Information

intended for future publication. From www.itspublicknowledge.info/nmsruntime/saveasdialog.aspx?
lID=2650&sID=111 [Accessed on 16/3/2020]

UK Data Archive (UKDA). Create and manage data: consent & ethics. From www.data-

archive.ac.uk/create-manage/consent-ethics [Accessed on 16/3/2020]

UK Research Integrity Office (UKRIO). (September 2009). Code of Practice for Research.

Retrieved from ukrio.org/wp-content/uploads/UKRIO-Code-of-Practice-for-Research.pdf [Accessed
on 16/3/2020]

UK Intellectual Property Office. (2016). Examination Guidelines for Patent Applications relating to

Biotechnological Inventions in the Intellectual Property Office.
From www.gov.uk/government/uploads/system/uploads/attachment_data/file/512614/Guidelines-
for-Patent-Applications-Biotech.pdf [Accessed on 16/3/2020]

Van Noorden, R. (1 September 2014). "US agency updates rules on sharing genomic data." Nature
News. From www.nature.com/news/us-agency-updates-rules-on-sharing-genomic-data-1.15800
[Accessed on 16/3/2020]
King’s College London (2017) Business Assurance. From
https://internal.kcl.ac.uk/about/secretariat/business-assurance/index.aspx [Accessed on 16/3/2020]
King’s College London. (2017) IT Security. From https://internal.kcl.ac.uk/it/security/index.aspx
[Accessed on 16/3/2020]

Medical Research Council (MRC). (n.d.). Data and Tissues Toolkit. [online] From http://www.dt-
toolkit.ac.uk/e-learning.cfm [Accessed on 16/3/2020]

Medical Research Council (MRC). (n.d.). e-Learning. [online] From https://byglearning.co.uk/mrcrsc-

lms/course/ [Accessed on 16/3/2020]

Medical Research Council (MRC). (n.d.). Experimental Medicine Toolkit. [online] From
http://www.em-toolkit.ac.uk/home.cfm [Accessed on 16/3/2020]

NHS Digital (n.d.) What are the Calidicott Principles? [online] From
https://www.igt.hscic.gov.uk/Caldicott2Principles.aspx [Accessed on 16/3/2020]

Understanding Patient Data (2017) What does anonymised mean? From

https://understandingpatientdata.org.uk/what-does-anonymised-mean [Accessed on 16/3/2020]

Wellcome Trust (August 2015) Ensuring the Effective Use of Patient Data. [online] From
https://wellcome.ac.uk/sites/default/files/ensuring-the-effective-use-of-patient-data-briefing-
aug15.pdf [Accessed on 16/3/2020]

Wellcome Trust (June 2009) Towards Consensus of Best Practice: Use of Patient Data from General
Practice for Research. [online] From https://wellcome.ac.uk/sites/default/files/wtx055661_0.pdf
[Accessed on 16/3/2020]