^ WORLD HEALTH ORGANIZATION EB47/NGO/7

m ORGANISATION MONDIALE DE LA SANTÉ 9 October 1970

^^^Si^ iNDLX

С
EXECUTIVE BOARD

Forty-seventh Session

Q U E S T I O N N A I R E ON N O N - G O V E R N M E N T A L O R G A N I Z A T1 I O N S
REQUESTING OFFICIAL RELATIONS WITH W H O
J/BR'

1• N a m e of o r g a n i z a t i o n

International League against Epilepsy (ILAE)

L i g u e i n t e r n a t i o n a l e c o n t r e 1 ' E p i l e p s i e (LICE)

2. A d d r e s s of h e a d q u a r t e r s

S e c r e t a r y - G e n e r a l of the I n t e r n a t i o n a l L e a g u e a g a i n s t E p i l e p s y
St U r s u l a K l i n i e k
Wassenaar

Netherlands
3.
A d d r e s s e s of all b r a n c h headquarters

A s listed under p a r a g r a p h 4 (c) b e l o w .

4.
Membership

(a) T o t a l n u m b e r of p e r s o n s : a p p r o x i m a t e l y 2000
(b) Do these p e r s o n s pay d i r e c t l y or are the s u b s c r i p t i o n s p a i d by a f f i l i a t e d
organizations?

S u b s c r i p t i o n s are p a i d by the N a t i o n a l B r a n c h e s . In c o u n t r i e s in w h i c h there i s n o t

yet a b r a n c h , i n d i v i d u a l s m a y b e c o m e a m e m b e r of the L e a g u e .

(c) L i s t a f f i l i a t e d o r g a n i z a t i o n s , g i v i n g ;heir c o u n t r y , and the total n u m b e r of p e r s o n s

b e l o n g i n g to e a c h .

Countries Affiliated organization N u m b e r of

Address
persons
Argentina L i g a A r g e n t i n a C o n t r a la Dr A . M o s o v i c h , M . D . 47
Epilepsia A r e n a l e s 2189
Buenos Aires

Austria Ôsterreichische Liga P r o f e s s o r Dr H . A s p e r g e r

gegen Epilepsie L a z a r e t t g a s s e 14
W i e n IX

Bolivia Liga Boliviana contra Dr M a r i o B a r r a g a n V a r g a s 50

la E p i l e p s i a Casilla 3370
La P a z , B o l i v i a

A s submitted by the a p p l i c a n t on 20 August 1970.

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Number of
Countries Affiliated organization Address
persons
Brazi 1 L i g a Brasileira сantra Dr A . A k e r m a n , M . D . 75
a Epilepsia Rua Senador V e r g u e i r o 66
14e Andar
Rio de Janeiro

Bulgaria Bulgarian A c a d e m y of Professor G . U s u n o f f 10

Sciences Chapter Vice-President
Epilepsy R e s e a r c h Group Dr E . A t z e v , Secretary
G . Sofiisky s t . 1
Sofia

Chile L i g a C h i l e n a contra Dr N . C h i o f a l o 60
la E p i l e p s i a Chapter Vice-President
Casilla 7 0 - D
Santiago

Cuba L i g a Cubana contra la Dr Carlos M . de R o j a s

Epilepsia Secretary
Once 4 6 2 , Vedado
Havana

France L i g u1 e F r a n ç a i s e contre Professor H . G a s t a u t 206

1 Epilepsie Chapter Vice-President
Dr J . M i r i b e l , Secretary
L e plovier
26-Saint M a r c e l les Valence

F e d e r a l Republic Deutsche Sektion der Professor Dr E . Bay 172

of G e r m a n y Internationalen L i g a Chapter Vice-President
gegen Epilepsie Dr F . R a b e , Secretary
Neurologi sche Universitatsklinik
Dusseldorf

U n i t e d Kingdom of British Branch of ILAE Dr G . Pampiglione 192

G r e a t Britain and Chapter Vice-President
N o r t h e r n Ireland Dr W . A . L i s h m a n , Secretary
Maudsley Hospital
Denmark Hill
L o n d o n , S.E.5

Israel Israeli Branch of Dr I. A l f a n d a r y , Secretary 54

International League 7 3 , Hanassi Avenue
against Epilepsy H a i f a , Mt Carmel

Italy Italian Branch of

International League
against Epilepsy

Japan Japanese Branch of Professor Kazutoyo Inanaga 100

International League Chapter Vice-President
against Epilepsy Kurume Medical College
Kurume C i t y
F u k u o k a Prefecture
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N u m b e r of
Countries Affiliated organization Address
persons
Netherlands F e d e r a t i e voor E p i l e p s i e Dr J . H . Bruens 194 professional
bestrijding Chapter Vice-President members
L . M . K . S t o e k , Secretary 16 institutions
Meer en Bosch 229 lay m e m b e r s
Heemstede

Peru Liga Peruana contra la Dr A . Pflucker Bartra

Epilepsia Chapter Vice-President
Manuel A l m e n a r a 361
Urb. Aurora. Miraflores
Lima

Poland P o l i s h Branch of Inter- Dr J . Majkowski 20

national League against Chapter Vice-President
Epilepsy Clinical and Experimental
EEG Laboratory
Warsaw, ul. Lindleya 4

Spain La Ligue
1
Espagnole contre Dr A . Subirana
1 Epilepsie Chapter Vice-President
Dr L . Oller-Daurella
Secretary
Calle Escuelas Pias 89
Barcelona

Sweden Swedish Epilepsy Associa- Dr К. A . Melin

tion Stora Skondal
Farsta

Switzerland Schweizeriche L i g a gegen Dr M . Tchicaloff 110

Epilepsie Chapter Vice-President
1171 Lavigny/VD
Dr M . M e y e r , Secretary
Beustweg 7
Zurich

U n i t e d States A m e r i c a n Epilepsy Society 692

of A m e r i c a

Uruguay L i g af Internationale contra Professor J . B . Gomensoro

1 Epilepsie Chapter Vice-President
Dr A . Bianchi Saus
Hôpital de Clínicas
Piso 2 , M o n t e v i d e o

4. Membership (continued)

(d) N o t e various types of m e m b e r s h i p , such as associate m e m b e r s , w i t h numbers and

pertinent f a c t s .

The type of m e m b e r s h i p varies in different c o u n t r i e s . In some countries (e.g. the

U n i t e d States of A m e r i c a ) the Branch of the League consists only of professional m e m b e r s .
In other countries the branch m a y have professional m e m b e r s and lay m e m b e r s . The former
are usually ordinary m e m b e r s , the latter m a y be associate m e m b e r s .
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5. G e n e r a l purposes of the organization

T h e general purposes of the League are the promotion of all activities w h i c h m a y improve
p r e v e n t i o n treatment and care of epileptic patients throughout the w o r l d .

The m a i n m e t h o d s of w o r k i n g are laid down in A r t i c l e V of the Constitution:

(1) The e s t a b l i s h m e n t , in all c o u n t r i e s , of branches of the L e a g u e .

(2) The establishment and m a i n t e n a n c e of an efficient co-operation w i t h international

i n s t i t u t i o n s active in the field of public health and social c a r e .

(3) The publication and distribution of a journal called " E p i l e p s i a " .

(4) The m a i n t e n a n c e of a s e c r e t a r i a t - g e n e r a l , to w h i c h all national branches shall

contribute.

(5) T h e organization of International m e e t i n g s on e p i l e p s y . A n International

scientific m e e t i n g and a m e e t i n g of the General Assembly are held at least once every
four y e a r s at the time and place of the International Neurological C o n g r e s s .

(6) A n y other m e t h o d s consistent w i t h the objectives of the L e a g u e .

6. (a) W h a t is the primary function of the organization?

T h e p r i m a r y function of the organization is to promote prevention and m e t h o d s of cure of

the various forms of the E p i l e p s i e s > to promote research concerning the causes and manifesta-
t i o n s of the E p i l e p s i e s , to help epileptic patients to live as normal a life as possible and
to improve attitudes of the general public towards patients suffering from e p i l e p s y .

(b) Secondary functions

S e c o n d a r y functions are derived from the primary function. T h e y vary according to the
time and the regional s i t u a t i o n .

7. (a) Does the organization advocate any special health measures or procedures? If so,
w h a t are these?

The organization advocates that adequate m e d i c a l treatment and special care be m a d e

available on as large a scale as p o s s i b l e .

(b) H a s the organization any special reservations as to treatment or health procedures?

If s o , w h a t are these?

The organization h a s no special reservations as to treatment or health p r o c e d u r e s . The

only reservation is that treatment and health m e a s u r e s should be in agreement w i t h the current
standards of medical science in the field of the E p i l e p s i e s ,

8. Can officially-designated representatives speak authoritatively for the m e m b e r s h i p on

m a t t e r s concerned w i t h the stated purposes of the organization?

O f f i c i a l l y - d e s i g n a t e d representatives can speak authoritatively for the m e m b e r s h i p on

all m a t t e r s concerned w i t h the purposes of the L e a g u e .

9# Specific interest w i t h reference to the w o r k of the W o r l d Health Organization

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(a) In the past there h a s been collaboration between W H O and ILAE particularly in the
F i e l d of C l a s s i f i c a t i o n of S e i z u r e s , C l a s s i f i c a t i o n of the E p i l e p s i e s and the Inter-
national Glossary of the E p i l e p s i e s . In accordance w i t h its stated purposes the ILAE
is now concentrating particularly on the fight against the E p i l e p s i e s in developing
countries. For this purpose the League is organizing an International m e e t i n g on the
E p i l e p s i e s in conjunction w i t h the Third Pan-American N e u r o l o g i c a l C o n g r e s s on 8 and
9 October 1971 in Sao P a u l o . A w o r k s h o p on Epilepsy will be held in June 1971 in
Kampala (Uganda) in collaboration w i t h the International Bureau for Epilepsy in L o n d o n .

It is particularly in this field that the ILAE considers that collaboration w i t h

W H O is e s s e n t i a l . A s approximately 0.5 per c e n t , of all persons in the w o r l d suffer
from epilepsy and only a small m i n o r i t y of the epileptic patients in developing countries
can have the benefit of adequate treatment the epilepsies constitute one of the major
disease problems in these c o u n t r i e s . Only by collaboration by International O r g a n i z a t i o n s
concerned w i t h the promotion of m e d i c a l care throughout the w o r l d can w e hope to m a k e
progress in this f i e l d .

(b) Another area of collaboration could be within the field of clinical evaluation of
anti-epileptic d r u g s . The ILAE h a s set up an International Pharmacological A d v i s o r y
Committee on the subject w i t h Dr D . Daly ( D a l l a s , T e x a s ) as chairman and Dr Kiffin Penry
(Bethesda, M a r y l a n d ) , Secretary and Dr Janz (Heidelberg), Dr Meinardi (Heemstede,
H o l l a n d ) and Dr Tassinari (Marseille) as m e m b e r s .

10. Officers

President : Treasurer :
H . Gastaut D . D . Daly
8 7 , Boulevard P é r i e r , Marseille Department of N e u r o l o g y
S . W . Medical School
Past-President : 5323 Harry H i n e s B l v d .
J . К. M e r l i s , Baltimore D a l l a s , Texas 75235

Vice-Presidents : Managing Editor of Epilepsia:

К-A. M e l i n , Stockholm M . L e n n o x - B u c h t h a l , Copenhagen
L . O l l e r - D a u r e l l a , Barcelona

Secretary-General :
0• M a g n u s
St U r s u l a kliniek
W a s s e n a a r , The N e t h e r l a n d s

There is n o paid officer personnel w i t h the ILAE.

11• Structure

The Executive Committee is the policy-making b o d y . It held its last m e e t i n g at

H e l s i n g o r , Denmark on 21 June 1 9 7 0 .

The Executive Committee m e e t s once a year to determine general policy for the coming
year. A l l current m a t t e r s are dealt w i t h by the President and the Secretary-General after
regular postal consultation w i t h the other m e m b e r s of the Executive C o m m i t t e e .

The General A s s e m b l y m e e t s once every four years at the time and place of the Inter-
n a t i o n a l Congress of the League in conjunction w i t h the International Congress of N e u r o l o g y .
The last C o n g r e s s and General Assembly were held in New York in September 1 9 6 9 .
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Voting procedure :

Voting is by m a j o r i t y of votes cast by the N a t i o n a l branches through their Chapter Vice-

P r e s i d e n t s (delegates)• The number of votes w h i c h each N a t i o n a l branch m a y cast depends on
the n u m b e r of m e m b e r s in good standing of its organization； one vote for every 100 m e m b e r s
or fraction t h e r e o f , w i t h a maximum of four (Article VI of the C o n s t i t u t i o n ) .

A f f i l i a t i o n w i t h other organizations

There is co-ordination w i t h other international organizations in the field of the neuro-

sciences such as the W o r l d F e d e r a t i o n of N e u r o l o g y and the International Federation of
S o c i e t i e s for Electro-encephalography and C l i n i c a l N e u r o p h y s i o l o g y , but the ILAE has so far
n o a f f i l i a t i o n w i t h other International O r g a n i z a t i o n s . The ILAE collaborates with the
International Bureau for Epilepsy (IBE) in L o n d o n , w h i c h is an International lay organization
m a i n l y c o n c e r n e d w i t h social aspects of e p i l e p s y . The Executive Committee of the ILAE acts
as advisory m e d i c a l council to the IBE and the President and Secretary-General of the ILAE
are e x - o f f i c i o m e m b e r s of the Council of the I B E .

12. Finances

The sources of income have so far been very l i m i t e d . They derive practically exclusively
from the contributions from the b r a n c h e s , w h i c h have not been paid regularly by all b r a n c h e s .
It is h o p e d and expected that better and m o r e regular communication w i t h the branches will
also improve their m o t i v a t i o n for regular payment of their d u e s . H o w e v e r , a considerable
number of the branches have very little resources and moreover there are considerable
d i f f i c u l t i e s in transferring contributions to the treasurer for some b r a n c h e s .

13. History

T h e ILAE w a s founded on M o n d a y , 30 A u g u s t 1909 in "Buda-Pesth". Founding members came

from A l g e r i a , A u s t r i a , F r a n c e , G e r m a n y , G r e a t B r i t a i n , N e t h e r l a n d s , R u s s i a and the United
S t a t e s of A m e r i c a . The journal "Epilepsia" w a s then already in existence and became the
official scientific journal of the L e a g u e .

T h e present Constitution w a s approved by the General Assembly in 1953 in Li sbon. At

that time there w e r e branches in A r g e n t i n a , B r a z i l , C h i l e , F r a n c e , Great B r i t a i n , the
N e t h e r l a n d s , J a p a n , P e r u , S c a n d i n a v i a , the U n i t e d States of American and C a n a d a . In 1954
the total number of m e m b e r s w a s approximately 1 2 5 0 .

14. Activities

M o s t activities have already been m e n t i o n e d under previous h e a d i n g s . N o m e n t i o n can

be m a d e in this connexion of the large amount of important activities in the field of the
E p i l e p s i e s which have been m a d e by various branches of the League and w h i c h have led to a
considerable change in the fate of the epileptic patients in m a n y c o u n t r i e s .

15. Publications

The International League against Epilepsy has assumed responsibility for editorial policy
and for the appointment of the editors of the International Journal of the L e a g u e "Epilepsia"•
A s r e g a r d s the present state of E p i l e p s i a , reference is m a d e to the last report of the previous
m a n a g i n g editor of Epilepsia published in the proceedings of the General A s s e m b l y at New Y o r k .
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1
16. Documentation

Three copies of the Constitution

Three copies of the last Quadrennial R e p o r t of the Treasurer
March 1970 Issue of the Journal of the I L A E .

1
Held by the S e c r e t a r i a t .