Professional Documents
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To cite this article: Anne Dodd, Suzanne Guerin, Susan Delaney & Philip Dodd (2021)
Complicated Grief: How is it Conceptualized by Professionals?, Journal of Loss and Trauma, 26:1,
35-47, DOI: 10.1080/15325024.2020.1722460
Introduction
The International Classification of Diseases (ICD-11, World Health
Organization, 2018) includes for the first time a diagnosis of prolonged
grief disorder (PGD). Grief that does not follow the usual trajectory has
been variously labeled by researchers: absent (Deutsch & Jackson, 1937);
delayed, morbid, distorted (Lindemann, 1944); atypical (Hammett, Cavenar,
Maltbie, & Sullivan, 1979); dysfunctional (Rancour, 1998); abnormal
(Pasnau, Fawzy, & Fawzy, 1987); chronic (Lasker & Toedter, 1991); patho-
logical (Horowitz, Bonanno, & Holen, 1993; Middleton, Raphael, Martinek,
& Misso, 1993); traumatic (Jacobs, Mazure, & Prigerson, 2000); complicated
(Shear, Frank, Houck, & Reynolds, 2005); maladaptive (de Groot et al.,
2007); prolonged grief disorder (Prigerson et al., 2009); complex (Boelen,
2016); unresolved (Bylund-Grenklo, F€ urst, Nyberg, Steineck, & Kreicbergs,
2016). It was included in the Diagnostic and Statistical Manual of Mental
Disorders (DSM-5, American Psychiatric Association, 2013) as a condition
for which further study is recommended and named persistent complex
bereavement disorder (PCBD).
CONTACT Suzanne Guerin suzanne.guerin@ucd.ie UCD School of Psychology, University College Dublin,
Newman Building, Belfield, University College Dublin, Dublin 4, Ireland.
ß 2020 Taylor & Francis Group, LLC
36 A. DODD ET AL.
Methods
Study design
Mindful of the extensive nomenclature associated with what constitutes
complicated grief and recognizing that an understanding of this concept
may vary across professions, a sample of mental health professionals, par-
ticipating in a wider survey, were invited to share their own understanding
of complicated grief in a free–text box. The invitation was prefaced with
the following text:
Complicated grief is an umbrella term used to encompass various presentations of
grief suggesting excessive distress, beyond what would be considered usual for most
people. Other terms associated with complicated grief include Traumatic Grief,
Prolonged Grief Disorder, Persistent Complex Bereavement Disorder among others.
It may be described differently by different groups of mental health professionals.
provided on the factors that might trigger the excessive distress referred to,
in order to minimize any potential bias this description might generate.
Study population
Participants were recruited through the publicly available databases of their
professional bodies. Of the 185 professionals (71.8% female; mean age
51.9 years (SD ¼ 8.9)) who participated in the overall survey, a total of 168,
comprising 35 psychiatrists, 93 counselors/psychotherapists and 40 psychol-
ogists, chose to provide a definition. A further two psychiatrists simply
stated, “as above,” indicating agreement with the umbrella definition given
in the questionnaire.
Data analysis
The professionals’ understanding of the concept was analyzed using a
three-pronged approach. Firstly, in order to focus the process, a Wordle of
the data was created using http://www.wordle.net/. A Wordle is a represen-
tation of text which gives greater prominence to the words that appear
more frequently in the source text. It is a useful means of quickly gaining a
visually rich overview of patterns in the data (McNaught & Lam, 2010).
Using the Wordle system, common English words were removed, all words
were made lower case, and words were left as spelled in the text.
Having obtained an overall visual sense of the conceptualizations pro-
vided, the second prong in the analysis of these perspectives was to carry
out a total word frequency, the assumption being that the words which
appear most frequently, reflect the most important concerns of the text
(Stemler, 2001). Additionally, the table of frequencies is useful in identify-
ing those words which lack numerical support, so that any unexpected
ideas might be picked up. These words were initially produced from great-
est to lowest frequency but were then alphabetized, so that words repre-
senting similar ideas such as suicide, suicidality, and suicidal, for example,
would be side-by-side, and therefore easier to aggregate.
However, in both the Wordle and the word frequencies table, the words
are de-contextualized and as Feinberg (2010), the creator of the Wordle
points out, word counts alone do not allow for any meaningful comparison
of concepts. The first two steps in the analysis of the conceptualizations
provided by the professionals, the Wordle and the word frequencies were
conducive to the researcher’s total immersion in the data and facilitated the
execution of the third prong, the thematic analysis (Braun & Clarke, 2006)
at the semantic level. Line-by-line coding was carried out across the entire
data set and then data relevant to each code were collated. Similar codes
38 A. DODD ET AL.
Results
The resulting visual image is presented in Figure 1. Unsurprisingly, grief,
complicated, loss, and person are prominent words in professionals’ con-
ceptualizations of complicated grief, but these add no new perspective on
the nature of complicated grief. Some relevant words that appear to be
prominent are normal, process, symptoms, stuck, feelings, distress, relation-
ship, circumstances, reaction, significant, words relating to functioning, and
words relating to duration such as prolonged, persistent, time, and period.
Since words with a similar root were seen as individual words for the
Wordle, certain concepts may have appeared to have less prominence than
was actually the case. An example of this is function and functioning,
which are displayed separately on the Wordle, while essentially referring to
the same aspect of complicated grief.
The results of the total word frequency for phrases in the participants’
responses are shown in Table 1.
JOURNAL OF LOSS AND TRAUMA 39
It must be noted that the frequencies refer to the words and not to
the number of professionals who used these words in their conceptuali-
zations of the concept. This caveat notwithstanding, in total, there were
121 mentions of words that pertained to duration (prolonged, persist,
elongates, timely, unrelenting, etc.), which gives an indication of the
importance of this particular concept in the perspectives proffered.
Similarly, there were 39 examples of words which referred directly to
the death occurring in some type of traumatic circumstances. Words
lacking numerical support also add to the pattern of the data. For
example, it is worth noting that pining, yearning, and rumination each
received only a single mention.
The themes considered markers of complicated grief by the professionals
arising from this third prong are shown in Table 2. The sample codes give
some indication of the manner in which the information was grouped, and
typical quotes are given for illustrative purposes.
As can be seen from Table 2, the marker of complicated grief most fre-
quently mentioned by professionals was the extended duration of the
40 A. DODD ET AL.
TABLE 2 Themes arising from professionals’ definitions of complicated grief with illustra-
tive quotes.
No of
professionals
[n ¼ 185 (%)];
(Missing
Theme Sample codes Sample quote values n ¼ 17)
Extended duration Chronic; unusually Complicated grief is a non-self-limiting 91 (54.2)
long; prolonged process.
extended; Grief that is prolonged. Grief that has no
persistent ending and is unrelenting.
Level of distress Severity; intensity Grief that is incredibly overwhelming and 44 (26.2)
crippling even after time has elapsed.
Grief where the distress is severe/extreme.
Impairment of Unable to cop; Grief that makes it difficult for the person 44 (26.2)
functioning to carry on with day-to-day life.
Inability to cope with daily life and to
engage in a meaningful way of life
without the person who has died.
Being stuck Stuck; unable to Someone becomes so lost in their grief 33 (19.6)
move on that their whole life is paralyzed.
It typically presents as an inability to move
on or move forward with their lives.
Traumatic or other Suicide; death of a Complicated grief arises out of a 32 (19.1)
circumstances child; multiple traumatic death.
losses at once It usually happens when a person
experiences two or more losses in
close temporal proximity.
Concept distinct from Beyond normal; It requires treatment whereas normal 31 (18.5)
normal grief beyond what grief does not.
would Grief in excess of what is considered the
be expected normal grieving process.
Co-morbidity (such as Depression; They have prolonged feelings of low self- 25 (14.9)
depression anxiety; worth, depression, disturbed sleep.
and anxiety) anhedonia Grief complicated by significant co-
morbid mental illness.
Theoretical reference Stages; Failure to progress through the expected 18 (10.7)
phases; stages of grief following a bereavement.
attachment Complicated grief carries at least some
degree of attachment wounding.
Relationship with Difficult; It can occur if the person has had a 14 (8.3)
the deceased ambivalent; difficult relationship with the person
unresolved who has died.
grieving period. An actual length of time, after which complicated grief was
indicated, was mentioned by 17 people (54.2%), with the time post-loss
ranging from 3 months to 2 years. The level of distress and impairment of
functioning being experienced by the grieving person were referred to with
equal frequency in the conceptualizations shared, being mentioned by
26.2% of the professionals. An inability to move on with one’s life or of
being stuck in one’s grief was a theme mentioned by almost 20% of the
respondents. Traumatic or other circumstances surrounding the death were
deemed to contribute to the development of complicated grief by 19.1% of
professionals. In some cases, the nature of the circumstances was not
detailed but violent death, death by suicide, sudden death and the death of
a child were given as examples of circumstances likely to contribute to the
development of complicated grief.
JOURNAL OF LOSS AND TRAUMA 41
Discussion
The reflections on the nature of complicated grief proffered by the profes-
sionals give some idea of how the term is conceptualized by the three pro-
fessional groupings. Some referred to complicated grief as a concept
distinct from normal grief, but, while there were some commonalities,
belief as to what constitutes a grief process requiring intervention varied
with the profession. The literature recognizes that professionals’ personal
feelings about death and dying may impact their ability to engage with
patients or clients experiencing difficulty following bereavement (Pasnau
et al., 1987).
One of the most telling features of the perspectives shared by participants
was the reliance on the extended duration of grief as a marker of complica-
tion, especially among psychiatrists and psychologists. Though as noted
above, if the concept of being stuck is also taken to reflect duration rather
than perhaps an inability to move on, then this is an even more prevalent
conceptualization across groups. Another important dimension was the
emphasis placed by counselors/psychotherapists on the circumstances of
the death. It is undoubtedly the case that traumatic deaths pose particular
difficulties for the griever (Raphael, Martinek, & Wooding, 2004) and lead
to a higher incidence of complicated grief. It must be noted, however, that
complications can also arise following seemingly timely death (Kersting,
Br€ahler, Glaesmer, & Wagner, 2011; Wiles, Jarrett, Payne, & Field, 2002).
As McDaniel and Clark (2009) point out the death of the last surviving
parent can have a profound effect on survivors, whom they term “adult
orphans” (p. 44), leaving them at risk of developing complicated grief. If a
professional regards complicated grief as that which arises primarily as a
result of traumatic circumstances, this may affect the support received by
these adult orphans. It must be noted, however, that there are also
JOURNAL OF LOSS AND TRAUMA 43
Ethical approval
The research was approved by the UCD Human Research Ethics Committee:
Humanities Committee.
Author contributions
All authors made substantial contributions to the development and design of the research.
The first author led on the analysis and interpretation, supported by the other authors.
JOURNAL OF LOSS AND TRAUMA 45
All authors contributed to the drafting of this article and have approved it for publication.
All authors are accountable for the work.
Disclosure statement
No financial interest or benefit has arisen from the application of the research.
Funding
This work was supported by the Irish Hospice Foundation, under the Therese Brady
Scholarship.
Notes on contributors
Anne Dodd is a psychotherapist in private practice and completed her PhD, as the Irish
Hospice Foundation Therese Brady Scholar, at the UCD School of Psychology under the
supervision of Dr Suzanne Guerin.
Suzanne Guerin is an Associate Professor in Research Design and Analysis with the UCD
School of Psychology, with an interest in health service research.
Susan Delaney is a clinical psychologist and was based at the Irish Hospice Foundation for
the duration of the research, where she was the Director of the Complicated
Grief Program.
Philip Dodd is the Head of the Department of Psychiatry with St Michael’s House
Disability Services and serves as Clinical Advisor to the Irish National Office for
Suicide Prevention.
ORCID
Suzanne Guerin http://orcid.org/0000-0002-6744-7590
References
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disor-
ders (DSM-5) (5th Ed.). Washington, DC: American Psychiatric Publishing.
Arney, F., & Scott, D. (Eds.). (2013). Working with vulnerable families: A partnership
approach. Cambridge, UK: Cambridge University Press.
Boelen, P. A. (2016). Improving the understanding and treatment of complex grief: An
important issue for psychotraumatology. European Journal of Psychotraumatology, 7(1),
32609. doi:10.3402/ejpt.v7.32609
Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research
in Psychology, 3(2), 77–101. doi:10.1191/1478088706qp063oa
Bylund-Grenklo, T., F€ urst, C. J., Nyberg, T., Steineck, G., & Kreicbergs, U. (2016).
Unresolved grief and its consequences. A nationwide follow-up of teenage loss of a par-
ent to cancer 6-9 years earlier. Supportive Care in Cancer: Official Journal of the
Multinational Association of Supportive Care in Cancer, 24(7), 3095–3103. doi:10.1007/
s00520-016-3118-1
46 A. DODD ET AL.
Deutsch, H., & Jackson, E. (1937). Absence of grief. The Psychoanalytic Quarterly, 6(1),
12–22. doi:10.1080/21674086.1937.11925307
Dodd, A., Guerin, S., Delaney, S., & Dodd, P. (2017). Complicated grief: Knowledge, atti-
tudes, skills and training of mental health professionals: A systematic review. Patient
Education and Counseling, 100(8), 1447–1458. doi:10.1016/j.pec.2017.03.010
Feinberg, J. (2010). Wordle. In J. Steele & N. Iliinsky (Eds.), Beautiful visualization:
Looking at data through the eyes of experts. Sebastopol, CA: O’Reilly Media, Inc
de Groot, M., de Keijser, J., Neeleman, J., Kerkhof, A., Nolen, W., & Burger, H. (2007).
Cognitive behaviour therapy to prevent complicated grief among relatives and spouses
bereaved by suicide: Cluster randomised controlled trial. British Medical Journal,
334(7601), 994–999.
Hall, C. (2014). Bereavement theory: Recent developments in our understanding of grief
and bereavement. Bereavement Care, 33(1), 7–12. doi:10.1080/02682621.2014.902610
Hammett, E. B., Cavenar, J. O., Jr, Maltbie, A. A., & Sullivan, J. L. (1979). Atypical grief:
Anniversary reactions. Military Medicine, 144(5), 320–321. doi:10.1093/milmed/144.5.320
Horowitz, M., Bonanno, G., & Holen, A. (1993). Pathological grief: Diagnosis and explan-
ation. Psychosomatic Medicine, 55(3), 260–273.
Jacobs, S., Mazure, C., & Prigerson, H. (2000). Diagnostic criteria for traumatic grief. Death
Studies, 24(3), 185–199. doi:10.1080/074811800200531
Kersting, A., Br€ahler, E., Glaesmer, H., & Wagner, B. (2011). Prevalence of complicated
grief in a representative population-based sample. Journal of Affective Disorders,
131(1–3), 339–343. doi:10.1016/j.jad.2010.11.032
Lasker, J. N., & Toedter, L. J. (1991). Acute versus chronic grief: The case of pregnancy
loss. American Journal of Orthopsychiatry, 61(4), 510–522. doi:10.1037/h0079288
Lindemann, E. (1944). Symptomatology and management of acute grief. American Journal
of Psychiatry, 101(2), 141–148. doi:10.1176/ajp.101.2.141
Mash, H. B. H., Fullerton, C. S., Shear, M. K., & Ursano, R. J. (2014). Complicated grief
and depression in young adults: Personality and relationship quality. The Journal of
Nervous and Mental Disease, 202(7), 539–543. doi:10.1097/NMD.0000000000000155
McDaniel, J. G., & Clark, P. G. (2009). The new adult orphan: Issues and considerations
for health care professionals. Journal of Gerontological Nursing, 35(12), 44–49. doi:10.
3928/00989134-20090930-02
McNaught, C., & Lam, P. (2010). Using Wordle as a supplementary research tool. The
Qualitative Report, 15(3), 630–643. Retrieved from http://nsuworks.nova.edu/tqr/vol15/
iss3/8/
Middleton, W., Raphael, B., Martinek, N., & Misso, V. (1993). Pathological grief reactions.
In M. Stroebe, W. Stroebe, & R. O. Hansson (Eds.), Handbook of bereavement: Theory,
research and intervention (pp. 44–61). New York, NY: Cambridge University Press.
Pasnau, R. O., Fawzy, F. I., & Fawzy, N. (1987). Role of the physician in bereavement. The
Psychiatric Clinics of North America, 10(1), 109–120.
Piper, W. E., Ogrodniczuk, J. S., Joyce, A. S., Mccallum, M., Weideman, R., & Azim, H. F.
(2001). Ambivalence and other relationship predictors of grief in psychiatric outpatients.
The Journal of Nervous and Mental Disease, 189(11), 781–787. doi:10.1097/00005053-
200111000-00008
Prigerson, H. G., Horowitz, M. J., Jacobs, S. C., Parkes, C. M., Aslan, M., Goodkin, K., …
Maciejewski, P. K. (2009). Prolonged grief disorder: Psychometric validation of criteria
proposed for DSM-V and ICD-11. PLoS Medicine, 6(8), e1000121. doi:10.1371/journal.
pmed.1000121
JOURNAL OF LOSS AND TRAUMA 47