Professional Documents
Culture Documents
A Report
Mohan J. Dutta, Desiree Soh, Munirah Bashir and Afreen Azim
ABSTRACT
This report presents an overview of the community-based healthcare
innovation programme: a culturally-centered community based approach
(Health Innovation Project) including its methodology and findings from
participant observations, in-depth interviews (community members, and
health care providers and social workers), three community advisory board
meetings, and a community-wide survey with 700 participants.
Health Innovation Project report
Table of Contents
Summary ............................................................................................................................. 3
Introduction
Chapter 1
Chapter 2
Community Perceptions
In depth interviews............................................................................................................ 17
Findings ............................................................................................................................. 19
Chapter 3
Key informants and health care providers and social workers .........................................
Methodology...................................................................................................................... 28
In depth interviews............................................................................................................ 30
Chapter 4
Summary
The Health Innovation Project has as its main premise the fact that communities are
in the best position to identify the problems that face them and delineate the solutions
to these problems. The project takes a multi stakeholder approach to connect the
community to the key informants and health care providers to facilitate a dialogue
between them such that practicable and workable solutions can be identified and
implemented.
Three advisory board sessions which comprised of members selected from among the
interviewees highlighted issues of mobility, communication, coordination of care, long
waiting time and costs of care. Solutions proposed included setting clear expectations
for patients about costs, clear instructions at different stages of the treatment, access
to medical records, and follow up in between appointments, among others.
The project was wrapped up with a community-wide stratified random survey (n = 700)
in the proposed catchment area based on the key themes, issues, and quality
characteristics of an ideal hospitals that emerged in the culture-centered processes of
ethnography and advisory group meetings. The survey findings converge with the
findings in the participant observations and in-depth interviews. Community members
note costs, lack of coordination, waiting time between appointments, and lack of
communication as key challenges to healthcare. They identify an ideal hospital as one
that would clearly communicate costs, minimize waiting time between appointments,
and simplify the communication barriers to care seeking.
Introduction
The culture centered approach is founded on the principles of listening to the voices
of the marginalised that have hitherto been unheard in policy making spaces.1,2 These
erasures are communicative in nature and are further entrenched through top-down
programs that are often out of touch with the lived experiences of the marginalized.
Consequently, essential to addressing health disparities through the CCA framework,
is the foregrounding of community voices through the processes of dialogue and
listening at the sites of knowledge production and implementation.3
1 Dutta, M. J. (2008). Communicating health: A culture-centered approach. London, England: Polity Press.
2 Dutta, M., & Thaker, J. J. (2016). Culture-Centered Method: The nuts and bolts of co-creating communication
infrastructures of listening in communities
Agency
Culture Structure
Participant observations, in-depth interviews, and advisory boards form the basis of
the collaborative processes in the CCA. The participant observation shapes and
guides the in depth interviews while this ethnographic work done in a community in
turn corresponds with the formation of an advisory board comprising of community
members. The methodological framework of the CCA committed to listening is
expressed in the community advisory boards, community-wide meetings, and
community-based workshops. Through the selection of members who are in touch
with the community, its health needs and have an interest in developing partnerships
to address these needs, the advisory boards become collaborative space and a locus
of decision making.
The survey instrument introduced as a build-up to the etnography and advisory group
meetings validates and complements the narratives that emerge in the qualitative
research. The elements of structure, culture, and agency map out the community
resources, the structural challenges, and the design solutions based on community
participation.
Chapter 1
The management of the operations of Alexandra Hospital (AH) was passed into the
hands of NUHS and will complement existing NUHS services in western Singapore.5
NUHS is tasked with re-imaging health care for the future with AH or the nascent
Alexandra Campus serving as a test bed for innovative models of care.6 This research
applies the culture-centred approach (CCA) to understand the health care needs and
health seeking experiences of the community members in the vicinity of Alexandra
Hospital in order to make healthcare services at AH more accessible to community
members. Through its key ideas of listening, participation and partnership, the CCA
provides a space for the voices of the community members to emerge and
incorporate their opinions in creating a hospital that is responsive to their needs.
The purpose of this research is also to investigate how community members access
existing health services and how the health care system can be improved in order to
make it accessible for people of all ages and especially those from the lower income
group and the elderly who are residents in the nearby estates. Data was gathered
through participant observation, one-on-one in-depth interviews with community
members, and key informants and healthcare providers and social workers and,
advisory board meetings.
The first phase of the project involved participant observation and short informal
interviews with community members. The participant observation allowed the
researcher to embed herself in the community and closely understand it. This process
included understanding the location and the services available as well as
understanding community members themselves. Walk-abouts were undertaken in and
around Alexandra Hospital and locations where community members were likely to
congregate such as food courts, void decks and HDB blocks around Bukit Merah and
Queenstown. Field notes were compiled on the types of services available to the
community. Short interviews involving open ended questions were conducted and,
following an iterative process, aimed at informing the interview protocol for in-depth
community interviews which were conducted at a later stage.
5Lai, L. (2017, April 14). Alexandra Hospital to pass into NUHS hands. The Straits Times. Retrieved June 20,
2017, from http://www.straitstimes.com/singapore/alexandra-hospital-to-pass-into-nuhs-hands
6Yong, G. K. Speech by Minister for Health, Mr Gan Kim Yong, at the MOH Committee of Supply Debate 2017.
Speech presented in Singapore Parliament, Singapore. Retrieved June 27, 2017, from
https://www.moh.gov.sg/content/moh_web/home/pressRoom/speeches_d/2017/speech-by-minister-for-health--
mr-gan-kim-yong--at-the-moh-commi.html
Participant observation and short interviews were followed by 131 in-depth interviews
with community members of 60-90 minutes in length. Interviewees were paid an
honorarium of fifty dollars for their time. Interviewees were recruited through door
knocking and were screened for their experiences with chronic illnesses. These
experiences related to managing their health and to their own or a loved one’s illness
within an institutional setting or outside of it. The questions for these interviews were
developed in line with the overarching framework of theoretical sampling. The
concepts that were revealed through the analysis of the data gathered from the short
informal interviews and participant observation allowed the researcher to further
formulate specific questions for the in-depth interviews, based on these concepts. The
interview protocol thus developed, served as a guide for in-depth interviews. Following
a cyclical process, it was further amended as the in-depth interviews progressed, to
reflect the richness and diversity of the concepts revealed through the interviews.
In a similar vein, 20 interviews with Key informants and Health care providers and
social workers representing all levels of care and specialities were conducted to gather
detailed knowledge of how the system for prevention and treatment works in practice
especially in the neighbourhoods surrounding Alexandra. These interviews attempted
to bridge the gap between those on the ground- the community members- and those
in the medical profession. These interviews therefore complemented the in depth
interviews with community members. Representatives of the health care system were
invited to participate in this research and offer their ideas and professional opinions on
these institutions. Each interview last for about 60-90 minutes. Interviewees were
recruited through references from stakeholders, once again following the framework
of theoretical sampling.
Three advisory board sessions have been conducted. The advisory board members
were selected from among the community member interviewees. Selection to the
advisory board was grounded in the idea of erasure- asking the question, “What are
the voices that are missing from the discussion on health and health care?” The
composition of the advisory board was guided by an active engagement with this
question. Further, the inclusion criteria for the AB were 1) knowledge of community
health needs, 2) self-identify as or be perceived as opinion leaders in their
communities with influence with respect to issues of relevance to the community and
academic partners, and 3) keen interest in developing community partnerships with
the aim of eliminating health disparities. Each advisory board lasts up to two hours.
The advisory board meetings were primarily meant to gather the members’ views on
the challenges they face in accessing healthcare and then brainstorm over workable
solutions for these challenges. All interviewees and advisory board members are
reimbursed for their participation.
Finally, a survey was conducted with community members in the catchment area (n =
700) to identify the key challenges to health care, the characteristics of an ideal
hospital, and ranking of the key characteristics of an ideal hospital.
Chapter 2
Community Perceptions
Method
Participant Observation
The participant observation involved over two hundred hours expended in walk-abouts
to observe and map out the health services and amenities in the area. The
researchers looked for the presence and availability of community and health
resources such as community centers, senior activity centers, chronic disease
centres, nursing homes, polyclinics, dialysis centers etc. (which were mapped out in a
resource map appended to this report as Appendix A), GPs, fitness corners, their use
or under-utilisation by community members, their accessibility to them, the layout of
the hospital, and the physical layout of the neighbourhoods including presence of
barrier free access, void decks etc. Researchers went into the field with the goal of
observing community members in their natural setting, going about their day-to-day
activities. The researchers’ detailed field notes and photographs on the location were
used to inform the interview protocols. A visual health services map representing the
community health resources was drawn up based on the field tracing of the distribution
of health resources in the community.
Community members, both young and old, were largely interested in knowing
about their health
Taking care of their health meant taking their medication regularly and
abstaining from unhealthy food
Majority of the interviewees did not use alternative medicine
Visiting a ‘hospital’ meant going for appointments every 3 months or
hospitalization or for rehabilitation
Most undertook walking and housework as exercise
They felt that looking after health was a personal responsibility
Some reported a sense of loneliness with old age and were living alone
For others, poor mobility leading to a sense of ‘uselessness’ and dependency
on children for daily needs.
Older population
Younger population
Awareness of AH
Sampling frame
Demographic and health indicators data on Bukit Merah, Queenstown, and all of
Singapore was gathered to guide the sampling strategy. Where data for the specific
subzones was not available, it was extrapolated from the national level data. This was
incorporated in to a sampling frame comprising of gender, race, age, highest education
level, monthly household income groups for Bukit Merah and Queenstown. These
indicators along with mobility and living arrangements were also taken into account
and incorporated in to a participant information sheet that aimed at gathering the
interviewee’s information on these indicators. The following subzones in Bukit Merah
and Queenstown were selected for in-depth community interviews, based on the data
from data.gov.sg and their proximity to Alexandra Hospital by 3-7 bus stops.
Bukit Merah:
o Alexandra Hill
o Depot Road
o Telok Blangah Drive
o Bukit Merah
o Redhill and
o Parts of Henderson Hill and Tiong Bahru
Queenstown:
o Mei Chin
o Margaret Drive
o Tanglin Halt
o Commonwealth
o Holland Drive
I. Bukit Merah
a. By age
20-24 3,459 7% 4
25-29 4,364 8% 5
40-44 4,950 9% 6
45-49 4,893 9% 6
50-54 4,890 9% 6
55-59 4,616 9% 5
60-64 4,554 9% 5
b. By ethnicity
c. By sex
d. By education
Primary 10,278 8% 5
II. Queenstown
a. By age
b. By sex
c. By ethnicity
Indian 5,790 9% 5
Others 2,450 4% 2
e. By education
Primary 5,277 7% 4
Polytechnic 5,436 7% 4
Professional 4,067 5% 3
Qualification and Other
Diploma
Total 74,445 100% 60
In-depth interviews
An interview protocol was developed for 60-90 minute long in-depth interviews with
community members. Following the tenets of theoretical sampling, the protocol was
based on the concepts and themes identified from the data in the participant
observation which shaped more specific questions in the interview protocol for in-
depth interviews. The protocol was a dynamic document that was responsive to the
articulation by community members of the problems faced by them. The themes which
emerged from these interviews built on and added more depth to the themes identified
in the participant observation.
Drawing upon the central principles of culture, structure and agency of the CCA, these
community level interviews were intended to identify the culturally specific meanings
of health in the community, the barriers to health encountered and the use of agency
to surmount these barriers. These interviews contributed to an understanding and
identification of the needs of the local communities and their communication
requirements, among others, for the development of implementable community-driven
solutions.
The participants were required to sign an information sheet and the interviews were
audio recorded upon consent. All identifiable information is and will be kept confidential
and all data anonymized.
Questions in the interview protocol were open ended and covered the following
themes:
Recruitment process
Community members representative of the target sample were recruited through door
knocking. The HDB and other housing estates from low, middle and high income
groups relevant to the study’s sample were identified using the Urban Redevelopment
Authority data. These estates were mapped out for the researchers’ easy reference
using the easymapmaker service online. So far 131 community member interviews
have been conducted and about 95% have been transcribed.
Data Analysis
Analysis began with open coding with an attempt to open up and examine all the
possibilities within the data whereupon the data was labelled with interpretative
conceptual labels. These labels narrowed down the data which was followed by axial
coding showing the relationships within and among the analytical categories. In- depth
interviews were continued throughout and the field notes taken added to the richness
of the analysis. The emergent theoretical concepts were tied together using selective
coding to achieve theoretical integration.
i. Fragmentation of care:
The issue of traveling to the hospital every few weeks and to multiple departments for
multiple ailments came up with interviewees. Caregivers and patients alike reported
the exhausting process of keeping up with appointments, attesting to the idea of
treating distinct organs instead of the individual as a whole.
Aside from the common issue of long waiting time at the polyclinics and public
hospitals as compared to the actual appointment time, some have experienced being
given higher dosage and a lot more medication when they see different doctors each
time.
a. Social Isolation:
Participants reported social isolation and the need for discussing their health
experiences with others while some recounted difficulty in transitioning from being a
working adult to an inactive ‘elderly’. Some go to their church to exercise and mingle
with other community members and, from experience, have suggested that hospitals
tie up with community infrastructure such as religious establishments and reach out to
low income families.
Many elderly members who are in better health currently volunteer with the intention
of helping those who are less advantaged than they are. They pick communities and
organisations that they have experience in possibly due to being a caregiver to a
spouse who went through the same experience. Many of them are now health
ambassadors in their respective areas either alone or through an organisation. Others
express interest in volunteering once they retire and have more free time, as a way of
combating isolation and also to contribute to their communities.
Few of the elderly who are interested in volunteering are unaware of whom to
approach if they wanted to volunteer as most would disregard the community centres
and are most likely to ask around through word of mouth.
Many interviewees pointed out that community members only go to the CCs or RCs
when they need to inquire about some kind of paperwork. They opined that this could
be because the CC and RCs are not fully integrated into the neighbourhood and the
staff seem cut off from the larger community.
c. Caregiving challenges:
Caregiver stress was reported among some interviewees. Some attributed their poor
emotional and physical health to the complete modification of their routine and lack of
social life as a result of caregiving duties. Further, Interviewees report having elderly
parents or grandparents who are dependent on adult children to bring them to their
doctors’ appointments, often at different departments spread over various
clinics/institutions. This creates a strain on the adult children and also entails frequent
leave from work which is not always forthcoming. Creating provisions for applying for
such medical leaves was suggested.
In addition to stress from caregiving duties, caregiver interviewees also had their own
medical issues. In terms of long term care, for elderly parents as well as those growing
older and in their late 40s to 50s, there was a ‘We’ll think about it when we get there’
approach. This was also the case of self-care for middle aged working adults
accompanied by incomplete information or lack of awareness of what is needed for
self or preventive care at present. Many were willing to step up and financially support
their elderly parents if/when they would be in need of care.
Many were unfamiliar with the term ‘AIC’ and its website for ILTC services.
Interviewees also expressed the interest in joining support groups and training for
caregiving.
Where the caregiver was a foreign domestic worker and didn’t speak English, inability
to receive clear instructions from the doctor, when accompanying the patient, was
reported. Interviewees mentioned that their elderly parents may be averse to have an
FDW care for them as FDWs are perceived by them as ‘strangers.’
Some interviewees were open to receiving caregiver training for their loved ones (‘help
us to help our elderly at home’). Interviewees stated that they prefer to be the primary
caretaker for their elderly parent/s because of a sense of duty to their parents.
Domestic help in such cases would serve to provide additional support in the day-to-
day routines. Further, as elderly parents have rigid routines and need care at home in
a familiar environment and with a sense of autonomy, ‘outsiders’ in this case, whether
nurses or FDWs, should ideally assist the elderly with their activities at home with
minimum interference. In some cases where the cost of a nursing home was too high
for interviewees, they opted for an FDW to care for their family members.
d. General practitioners:
Among younger, upper income interviewees a reason for not sticking to one GP is
because when their company changes the insurer the identified panel clinics where
the subsidised rates are applicable also changes. It was easier for the elderly to stick
to one doctor whereas younger or middle aged adults moved or changed their place
of residence often.
Many preferred having a family doctor or seeing one doctor instead of seeing a
different one each time. Those who see the same specialist over a long period
attributed sticking to the same doctor to the fact that they are more familiar with their
health history and have developed a good relationship with them.
Despite wanting to stick to one doctor, interviewees cite higher cost as an inhibiting
factor. They pointed out that longer session with a GP would entail higher fees.
iii. Cost:
For some interviewees, costs are still astronomical despite partaking of the CHAS.
Many cite that the subsidies that they got from the Pioneer and CHAS card to be
significant for elderly interviewees who qualify for the schemes. Further subsidies
would lift their financial burden and help them. Shifting from one institution to another
has also been cited as being an expensive process. Hospitalisation fees for those in
the lower to middle income with financial difficulties, were cited to be the biggest
burden as they had to pay the fees in cash due to the limit they could deduct from
the Medisave account.
A number of elderly interviewees do not have much remaining in their CPF accounts
because their salaries were low in the past or they did odd jobs with no CPF
contributions. There is a fear that the money in their CPF/Medisave accounts may run
out and they will not be able to fork out the money in cash. For those who have
prolonged multiple health issues, their CPF accounts have been drained. This financial
burden is passed to their adult children. It is common among several interviewees to
contribute a share of their incomes to the care or upkeep of other family members,
mostly elderly parents, which impacts their own savings.
On the other end of elderly individuals with strong family support who may or may not
be living with their children, they do not bring up financial issues as a concern as they
currently are able to pay for their healthcare or have adult children who pay for all of
their healthcare needs.
Subsidies:
In some cases, interviewees who had consistently been interfacing with the same
officer at ComCare had suddenly found their officers changed. They then had to
repeat their case history, justification for the expenses and amounts demanded, which
was also a source of shame and stigma. Owing to this or after poor cooperation from
their new officer and decreased disbursement amounts some stopped applying for
subsidies altogether.
Some interviewees talked about being unable to qualify for subsidies because they
are said to have adult children to support them financially. Despite this, the money that
their children give to them every month is inadequate or is just enough to get by if they
reduce their spending by the dollar.
cases, interviewees did not engage in much preventive care and did not for
screenings. Many who did not report any chronic illnesses did not feel the need to go
for regular health check-ups as they perceive themselves to be healthy in that they do
not feel any sort of pain or discomfort.
Where screening had been done and interviewees showed awareness of the
conditions and illnesses they had, they reported an inability to adequately manage
their health. They explained that they did not have time to exercise and were not
motivated enough to follow up with hospital appointments. Their work or taking their
parents for hospital appointments also inhibits them from properly managing their
health.
Mental Health:
One interviewee experienced anger issues and depression owing to newly diagnosed
Parkinson’s disease and expressed the need for some kind of counselling to help
adapt and adjust to life with Parkinson’s in conjunction with activities to keep physically
active.
Several interviewees also experienced stress owing to health problems, family conflict,
financial issues and caregiver stress. One interviewee who had vestigial mobility
issues from an accident and was dependent on her ex-husband for applying
for/renewing subsidies, now struggled to keep up with the paperwork and reported
seeing a counsellor at IMH.
Another interviewee, a student with a mental illness, reported poor coordination with
his case manager at IMH. He was expelled from his polytechnic as his case manager
at IMH was out of touch and could not submit medical leave on time. He is currently
awaiting transfer to NUH and is self-managing his symptoms in the absence of any
medication. Other interviewees who had overcome depression cited understanding
and non-judgemental counsellors as reasons for their better treatment outcomes. One
interviewee mentioned that the family service centres under the block and also regular
advice given by her family doctor who was concerned about her wellbeing, was more
helpful than going to the hospital for regular appointments with the psychologists.
Some elderly who were isolated, were afraid of falling while outside on their own either
because they have fallen before or were advised by their doctors to be careful about
falls while others had experienced dizziness spells. As a result, many of them resorted
to isolating themselves at home and experienced a poorer quality of life. They brought
up feelings of loneliness and a sense of uselessness with little to no social interaction
with others.
Cultural issues:
Many older interviewees have expressed reluctance seek help from their children as
they ‘do not want to be a burden’ and wish to age at home without the help of strangers
as well.
Caregivers and those likely to become future caregivers of their parents also
expressed notions of filial piety and a desire to take care of their elderly at home as
sending them to a center or ‘old folks home’ would be looked down upon in their
community.
Health Information
Television and newspapers were the main sources for information on chronic illnesses
like breast cancer and colon cancer. Many pointed out how elderly individuals are not
able to read English or are illiterate. A lot of the elderly preferred information through
word of mouth rather than traditional media. Another major source of health
information was personal networks such as friends or neighbours in the community.
For example, they find out about subsidies from their friends through word of mouth
or seek out friends or family members who know or are health professionals for their
second opinion on caregiving and treatments.
Health screening
Some interviewees report not having gone for screenings in several years, some even
over ten, while others report that the screening provided by their companies is
inadequate or very basic and not thorough.
Among the lower income families, emphasis is placed on simply trying to not fall ill
(‘’just don’t fall sick”) and going to the doctor only when ‘things get out of control’.
Several of the interviewees were also divorced and single mothers and a few had
never married. Among this group screenings for health were lowest owing to time
constraints- they juggle care of the household, children or elderly parents or
both. Some also reported that constantly applying to ComCare for subsidies every
few months takes up a lot of time in addition to say, divorce proceedings, paying bills,
taking care of their children and elderly parent/s, such that health takes a back seat.
Several of these suggestions were further explored again, in-depth during the Advisory
Board meetings as set out hereinafter.
This was articulated as a place for recovery post-surgery, less expensive than a
general hospital and less crowded. Some interviewees suggested that it could be a
place where patients go for follow-up appointments or to collect medication instead of
going to the general hospital where it is more crowded. The waiting time would be
much reduced compared to the usual 4 to 5 hours that they have
experienced. Further, it could ideally have different exercise facilities for both, the
young and the old; some kind of play or care area that could serve as a drop off center
for children while their parents get check-ups and, medical facilities for children. It was
suggested that the ambience at AH should be similar to a community centre where
people feel welcomed to visit and join health maintaining and health building activities.
Several stated that they liked the garden which surrounds AH and suggested that
activities could be held in the garden for patients who are not bedridden. For those
bedridden or using wheelchairs, they suggested volunteers or befrienders assist them
around the garden or have the befrienders interact with these patients to prevent them
from being idle.
Identifying and appointing ‘ambassadors’ who are community leaders, active and
embedded in the community to act as conduits of health information. These could also
connect the community to the CC programs and vice versa. Links between the
community and CCs/RCs could also be forged by AH for outreach purposes. Nurses
could be appointed at the CCs or RCs to conduct tests that would not require the
presence of a doctor so that healthcare is easily accessible.
Respite services could not be utilised by some caregivers owing to the timings of these
centres. For others, their parents or grandparents were averse to day care centers
owing to its environment or being lumped together with patients there who were far
more ill than they were. A better environment for elderly patients at day care was
mentioned as a possible respite but where the elderly are not grouped together
irrespective of the extent of the mental deterioration as this makes the healthier
patients feel uncomfortable and degraded.
In order to keep working age adults updated with the medication and
recommendations that are given to their elderly parents at their doctors’ visits, it was
suggested that the medical records of their parents could be made accessible via
websites or apps to their immediate family members. This would also counteract the
fear that their elderly parents may forget to take their medication or misplace it.
v. Means testing:
Means testing could consider familial relations as there are instances where children
may not be consistently supporting their elderly parents financially on a consistent
basis.
Some suggestions for making health screening more accessible included utilising the
neighbourhood CCs and some places of worship frequented by community members
to bring health screening to the people. Another alternative was to have medical
students conduct home visits and check-ups on the elderly in poorer households to
prevent exacerbation of medical issues, similar to the home visits befriending services
provided for elderlies at risk for social isolation.
Some interviewees from the upper income bracket who go for regular health
screenings expressed dissatisfaction at the post-screening consultation which they felt
did not adequately equip them with information to manage certain conditions (such as
high cholesterol) nor were the causes of their conditions explained clearly. They
suggested that employers and companies could provide and also encourage full and
compulsory health screenings such that screenings become a ‘norm’.
Working age adults could be reached through targeted ads on social media
(Facebook, YouTube videos, and search engines on health related queries). The
social aspect of exercising could work to motivate them to lead healthier
lifestyles. They can be encouraged to exercise through sporting events such as
marathons or triathlons and by making it more convenient for them to post a listing on
an app or website looking for company to join them for dual or team sports as and
when they are available. It was also suggested that GPs could play the role of ‘health
mentors’ to instil values of health and healthiness, reinforce them and appreciate
patient's’ efforts at maintaining health to incentivise health habits.
Chapter 3
Methodology:
A sample frame of the key stakeholders and health care providers was developed.
The goal of these interviews was to glean a range of opinions from across the health
care landscape in Singapore. To ensure that all the stakeholders crucial to the
healthcare delivery process were included, the NUHS team was consulted. These are
the stakeholders NUHS currently partners with or would, in the future, partner with,
making their opinions on gaps and suggestions to surmount these gaps valuable. The
data from these interviews was analysed and the key emergent themes were shared
with the NUHS team. Following the iterative process of the CCA framework, the team
gave the research team their inputs on what areas or concepts they would like the
research team to probe further.
The NUHS team included personnel from various departments at NUHS such as
interim and long term care, operations and administration lead, corporate
infrastructure office, communications, strategic planning office, regional health system
planning office, all of which are relevant to the study and who shared inputs with us.
In total, 8 Key Informants and 12 Health care providers and social workers were
interviewed.
Key Informants
Interview
Key Informants s done
NUHS Alexandra Team 5
NUHS Leadership 0
MOH Leadership (APO, PCC) 0
Alexandra Community Leadership
(grassroots associations- PA, CC,
MPs, Regional Health System etc.) 0
AIC 2
Architectural/Design Team 1
Total 8
Healthcare
Providers and
Social Workers Interviews done
Polyclinic (Case
managers, family
physicians,
psychologists,
social workers) 0
Private GP 3
Chronic
Care Centre
(Centre
managers). 1
AH Social Workers 0
Hospital Staff 5
Voluntary Welfare
Organizations
(CDCs,
SACs, Lions
Befrienders, ILTC,
Home Nursing
Foundation/HNF) 3
TCM 0
Total 12
In depth interviews
An interview protocol for stakeholder interviews was developed for 60-90 minute long
interviews. This was used, with necessary modifications, to seek the stakeholders’
opinions on how the system of care works in practise, their vision for the Alexandra
Campus, the challenges they see in accomplishing it with the broader themes of the
questions being as under:
Ideal hospital
Links with the community- how AH plans to be seen as part of community; how
they intend to engage the community members
Relationship with other organisations-(RHS, community organisations and
grassroots, VWOs and chronic care centres)
Accessibility of various health care services
Doctor-patient relationship
Hospital staff
Recruitment process
While some of these professionals were contacted by NUHS and referred to the PI
through the Alexandra Campus Project Development team at NUHS others who are
familiar with the health care system were also approached in person through door
knocking and appointments. The healthcare professionals/policymakers were
approached by the PI and co-investigators for a request for interviews via email or in
person and are briefed about the interview process.
Data Analysis
Similar to the community interviews, analysis once again began with open coding and
was labelled with interpretative conceptual labels, narrowing down the data and
followed by axial coding. The relationships within and among the analytical categories
were thus established while in- depth interviews continued. These interviews and the
field notes taken added depth to the analysis. The emergent theoretical concepts were
tied together using selective coding to achieve theoretical integration.
Key Informants
One of the challenges is posed by the tendency of health care organizations planning
in silos. An example of the gap between the hospital and primary care providers was
given. Further, providers tend to plan for illness rather than for health, being reactive
rather than preventive or proactive. It was hoped that this would change with
Singapore being organized into three clusters where each cluster has an entire set of
health facilities from acute hospitals to primary care and polyclinics.
Family medicine clinics or FMCs working with restructured hospitals was given as an
example where care can be better coordinated and integrated. A seamless two-way
direction of patients is established where the GPs can tap on the hospital specialists'
advice, and the specialists in turn can discharge patients to them. Another example
cited was that of the GPs signing on to a primary care network or PCN where the GPs
receive nurses’ assistance from the hospital. This would obviate the need for patients
to make multiple GP or hospital visits.
Sustainability was also an issue in terms of a lot of waste in healthcare with a lot of
patients with multiple illnesses seeing multiple specialists. Furthermore, the funding
mechanism, it was pointed out, also seems to favour ‘quantity rather than quality’ as it
is based on the number of patients seen in a hospital. In the context of the inpatient
setting, making the transition between acute care and community care more seamless
was a challenge. Administrative and funding roadblocks currently result in the patient
overstaying in an acute hospital by over several days than necessary, often waiting
for a bed at a community hospital. Conversely, wastage also manifests itself as ‘double
handling’ of patients and fragmentation between the community hospital and the acute
hospital where patients are discharged earlier and then re-admitted to the community
hospital.
Additionally, in terms of subsidies, the different subsidy systems for acute and
community hospitals, with the former based on personal income and the latter based
on household incomes, mean that patients see a drop in their subsidies.
Lack of manpower, providing care for the ageing and the chronically ill while keeping
costs low against the backdrop of a sub-par economy was mentioned as a challenge.
It was suggested that staff such as nurses can be freed up by levelling them up.
However as this would, paradoxically, create a manpower shortage at the bottom level.
It was suggested than an attempt should be made to draw upon volunteers-
housewives or retirees- to fill this gap.
An attempt is also underway to train ‘lay providers’ as part of a community cradle who
then go to people's houses to help them. This help comes in the form of delivering
food, feeding patients through the tube, etc. The other group of lay providers that can
be tapped on is the family members who can also be trained to look after their loved
ones.
Some stakeholders felt that the health sector and the social
sector ‘have a very different lingo’ and tend to focus on different aspects of care.
There is a need for the hospitals and the social partners to have a common platform
to start a conversation and discuss the patient’s health
Another suggestion was to blur the gap between the ‘health and the social (sectors)’.
It was mentioned that agencies such as the Senior Activity Centers or SACs tend to
see themselves as social agencies and direct patients to a Polyclinic or to a hospital
in the event of a medical issue. However, a nurse placed nearby or into the SAC can
potentially help look after many of the vulnerable people within an area or up to a
certain number of blocks.
Key challenges revolved around time, cost and a better mechanism for sharing patient
records. Interviewees believed that there is a need for the primary care sector to play
a bigger role especially in the area of chronic disease management and against the
backdrop of overcrowding in Polyclinics. However, it was also pointed out that the
current GP model of providing care is a ‘business model’ which entails seeing as many
patients as possible and precludes longer consultation time with the patient with each
patient getting approximately 15-20 minutes with the GP. The director of a chain of
family medicine clinics mentioned how the number of patients they saw was declining
which made it a challenge to bear the financial load of running the clinic. This is
because GPs need to defray costs of medicines and tests, overhead costs, and,
the cost of upkeep of their practice such as rent, staff salaries, book-keeping,
accounting and other paperwork.
It was mentioned that time is a barrier to building stronger relationships with the
patients even though GPs would like to engage in more holistic care. One of the GPs
interviewed characterised herself as an ‘Enhanced Care Practitioner’ said holistic care
and providing patients motivation for behavioural modification was among the main
reasons why her patients regularly followed up with her instead of going to the
hospital where her patients find the care to be ‘transactional and not relational.’ The
GP was also already managing patients from NUH and some from IMH. She was
asked to take on more patients from SGH but cited time constraints. In the context of
the NEHR and handling of medical records it was also mentioned that patients should
be empowered to be in control their own records through a ‘patient notebook’
containing information on, inter alia, the medication they take. On the question about
patients seeing multiple GPs it was mentioned that patients usually have a ‘touch &
go’ experience, i.e. they see multiple doctors as they are unaware about which doctors
specifically treat chronic diseases and there is a need for a register of such doctors for
patients’ awareness.
o Dealing with patients with complex conditions which fall outside the category
of common chronic illnesses (e.g. rheumatoid arthritis);
o Right-siting of patients who are already stable and need to monitor certain
chronic illness indicators (LDL, HbA1c etc.). These patients need only some
supervision but return to the hospital instead of visiting the local GPs thereby
‘clogging up’ appointments
o Inadequacy of the NEHR and the need for a better records sharing mechanism
which can make immense difference
o GP training to treat chronic illnesses as some may be ‘rusty’; simplified and
adaptable protocols which can ‘empower’ GPs
o Example of Frontier FMC not taking a cut from sale of medicines, flags the
challenges of making GP practice sustainable with different avenues for
generating revenue; need for financial assistance from the State
o Up-skilling nurses so that they can effectively assist GPs
o Better mechanism for processing payments and a better IT system
o Engaging the community- the question of how to make community members
appreciate the benefits of visiting one GP for their needs instead of multiple
doctors was raised
Community care for mental health patients was brought up. Since IMH began to bring
GPs on board nearly 10 years ago the number of doctors has doubled from 30 to
nearly 70, which, in the estimation of the GP interviewed is still quite low. It was
surmised that this is because GPs want their practice to be ‘clean’ and that there is
stigma attached to GPs treating mental health patients lest it turns other community
members away. Time is also a barrier as such patients go to a GP for personal touch
and take more time in contrast to IMH where the doctors may not spend as much time
on each patient owning to the large number of patients handled there.
Patients who visited this GP also came from locations such as Tampines, Simei- partly
because of the GP’s reputation of charging less (she said she saw her work as ‘social
service’ and charged patients S$15) and because of word-of-mouth publicity by her
patients. Some of the patients also work nearby and it was acknowledged that this
‘fluidity’ and free mobility of patients could be a problem and that MOH could consider
NHS style 'zones' where GPs take care of a particular area and patients are not
allowed to have a certain number of GPs. Another GP highlighted varying patient
density as an issue with this type of care model.
FSCs and the case managers in the neighbourhood did not generally work with the
GP in respect of patient care and this was brought up as a possible area of intervention
especially in the area of patients’ records and eldercare. This could be in the form of,
for example, FSC personnel accompanying patients to see the GP where the patients
have nobody to accompany them or where the adult children cannot get leave from
work.
The need for a direct line of communication between the GP and the hospital for
sharing patient information was brought up both by the GPs as well as the healthcare
providers in the hospital. One of the GPs who was interviewed was wary of ‘tiring’
doctors with requests for information and suggested that it would be good for patients
and their families to be empowered in respect of patient information and carry their
own records (in the form of patient notebooks for example) as mentioned above. Better
handshake between Polyclinics and GPs was emphasised whereas the handshake
between hospitals and GPs did not seem to be an issue. Another GP spoke about the
ease of referring a patient to hospital specialists through a letter, but did not appear to
follow up afterwards about whether the patient approached the relevant specialist.
Although referrals to hospitals were present, the reverse was not - there had been no
cases where the specialist the GP referred the patient to referred the patient back to
his care after the patient’s condition stabilised. It was suggested that the handshake
could also possibly manifest itself in the form of cost reduction for patients where GP-
prescribed medication can be collected from the Polyclinic for those who find it
expensive.
A befriending service that runs island-wide and caters to those at risk of social isolation
pointed out that communication linkage between them and the hospital can be
improved. The example given was that of their clients who are hospitalised and then
are discharged, without the volunteers being kept in the information loop. This results
in an information gap where the befriending service, often in charge of clients who are
elderly and have poor family and wider social networks, do not know which institution
their clients have been admitted or transferred to and therefore cannot check on them.
Although it was acknowledged that confidentiality could be an issue, it was suggested
that a communication point or helpline for such information exchange between the
hospital and VWOs would be ideal. Coordination can also be improved between the
client’s medical social worker and the befriender service as the latter can help its
clients better understand and navigate the range of services recommended to the
client by the MSW.
Another barrier to care for patients, particularly in the context of home nursing is the
communication between hospital and the community care providers. This was brought
up by a home nursing service where lack of information or clarity over the community
care plan for the patient was a challenge.
The service had tried to establish a single point of contact with the hospital so that in
the event of any queries pertaining to the patient’s care plans or patient’s condition,
they can directly contact the hospital. Another challenge in this context was the
withdrawal or rejection rates owing to the patient being re-admitted to the hospital.
Further, if the patient desired to go back to the hospital, they had to choose between
either going back to the A&E, where they get the subsidy or seeing the doctor at the
SOC. The home nursing organisation had not been able to establish a direct point of
contact with the hospital where the hospital could be informed about the patient’s
worsening condition and then re-admitted by the organisation directly. This is a
challenge when the patient is not known to the transitional care team at the hospital.
Communication, in terms of the seamless direct care between the doctors in the
community and the hospital could be improved. The referrals are usually done by
doctors, who are on rotation every 6 months and may not know the patient’s case.
They therefore may not be able to answer queries relating to, for example, the patient’s
medication.
Costs for community service providers, which are mainly non-profit organisations,
were an issue. The money received through government intervention was inadequate
and did not offset operating cost thereby compelling such organisations to fundraise.
They then face the situation of having to cover their operating costs while at the same
time, provide for the needy patients.
In terms of costs for the patients, the financial framework although becoming
increasingly more adequate still has some room for improvement. The withdrawal limit
for Eldershield set at 400 dollars are inadequate in terms of the community services
that are used to help care for the patients in the community as the patients cannot
utilize the CHAS or the PG card for community or home care services.
Curating and disseminating health information particularly for the most vulnerable was
cited as a challenge. Presently, the CDC interviewed relies on volunteers to distil
health information and make it accessible to the community. However partnering with
experts to co-curate information would be ideal along with a coherent plan for health
information to cover each demographic across all the constituencies. Such information
could be tailored to residents’ needs, be either preventive or reactive, based on
residents’ age and other demographic information. Similar to the challenge of
customising information was the challenge of adapting existing national level,
‘universal’ health policies to the residents in a specific, local area. Attention would have
to be paid to the language and phrasing of health communication messages as
different partners on the ground may not always use the same phrases and terms,
which could be a source of confusion for the layman. Question of who would guide
such an undertaking was raised with the CDC possibly being the chief coordinator to
synergize the efforts of all the partners working on the ground.
Health screenings could also be more customised and specialised- an example given
was of a particular area under the CDC’s ambit requiring more dental screenings as
the issue of dental health and its effect on the quality of living of the residents was
flagged by the CDC’s team on the ground. This also was a segue to flag an issue of
information mainly being available by ‘proxy’, that is, through volunteers and on the
ground staff. This is because multistakeholder information exchange is not always
possible, owing to the PDPA.
A wish list cited included more resources, training of volunteers to sustain progress,
engaging frequent admitters, a community network for seniors, and health
interventions in the style of the Wellness Kampungs in Nee Soon.
v. Community Pharmacy
The idea of upscaling nurses to take up some of the tasks that doctors are usually in
charge of and in turn, freeing doctors up to concentrate on other duties also applied in
the field of pharmacy. Moreover, there is a need to move services out into the
community, with community pharmacies following up on the social aspect of care.
In the context of integrated beds, similar to what was discussed by the NUHS
Alexandra Campus Project Development team, it was mentioned that there is a move
to integrate beds for the Alexandra Campus as well. This will obviate the need for
moving patients to a separate community hospital. Time and resources would be
saved with processing of discharge, appointments, prescriptions, and transport
minimised.
For the elderly who need or are undergoing physiotherapy, convincing patients to
follow up on exercise and practise at home and changing their perception were cited
as a challenge. These patients may be depressed and unmotivated to exercise. One
way to encourage them was through referrals to day care centers instead of following
up at hospitals. The day care centres have more intensive equipment and tend to be
more crowded but are generally preferred by patients as they involve more social
interaction. However, this would entail the need to close missing links in the care of
patients. For example, day care centres may not be aware of or have the full medical
history of a patient who then has to be sent back to the GP/ Polyclinic in case of a
medical complication. Whereas the day care centres may need to rely on their own
judgment in such cases, this is in contrast with the ease of communication and
coordination in a hospital where the physio department can send the patient back to
the relevant doctor.
II. Need of focusing on patients who neglect health or ‘fall through the cracks’:
Patients that are completely out of touch with the healthcare system and come to the
hospital or other care providers only when things get worse was the demographic
that was flagged as a cause for concern. A ‘carrot and stick’ approach was suggested
where healthy behaviour could be rewarded via vouchers where, for example patient
compliance is good. Access to affordable and nutritious food was brought up and it
was pointed out that low income individuals tend to have a diet high in carbohydrates.
It was suggested that healthier options such as brown rice be made more affordable.
This would prevent people from defaulting to the unhealthier and cheapest food
options such as white rice.
Reaching out to the patients who are left outside of the healthcare system was cited
as a challenge in the case of physiotherapy as well, as those who come to the hospital
already have a care coordinator tagged to them and their treatment in the community
can be followed up. The need for more preventive care by way of fall prevention
awareness for the elderly was also highlighted. This could be done by way of the
media in all languages including dialects and also through talks in the community.
Discussion about the lack of patient ownership of their health was also key due to
their dependence on the hospital. To make sure technology was more effective in the
context of patient ownership of health, consultation with patients to gather information
about their needs and their feedback was suggested. A community care provider at
the stroke support station mentioned that the introduction of technology was a good
thing but raised concerns about it replacing the 'human touch'.
Some stakeholders mentioned the challenge of upskilling and levelling up nurses. This
is however accompanied by the paradoxical manpower challenge of filling out the
bottom layer of care providers. With regard to APNs, it was mentioned that people may
not be amenable to being treated for certain ailments or diagnosis/ prescription etc.as
there would still be a cultural barrier of not trusting nurses and perceiving surgeons
as the experts .
The nurses interviewed stated the need for surgeons and nurses to be able to better
communicate and for the latter to be more civil and respectful toward nurses. In this
context, the occasional meetings for nurses and surgeons presently being conducted
was welcomed but change was slow. High attrition rate among nurses was mentioned
as a problem. This was attributed to work pressure, long working hours/shifts and
incommensurable pay, better prospects elsewhere in terms of work load and welfare
in other countries. Although the large presence of foreign staff brought with
it language barriers and cultural differences, it was not a significant issue but seen as
the corollary to the attrition problem. Sense of isolation among the foreign staff nurses
owing to distance from family, staff shortage, stress and the absence of a buffer staff
were highlighted. Lack of respect for nurses, whether those in the lower or higher
ranks such as the APN was mentioned as an area to work upon.
In terms of intra departmental cohesiveness, it would help to have events for all
departments in the hospital as a whole to increase communication across all
departments as well.
Chapter 4
Advisory Boards
The advisory board members were selected from among the community member
interviewees. This follows from the fact community participation and partnership are
the key ideas underpinning the formation, agenda and direction of the advisory boards.
Selection was grounded in the idea of erasure- asking the question, “What are the
voices that are missing from the discussion on health and health care?” The
composition of the advisory board was guided by an active engagement with this
question. Further, the inclusion criteria for the AB were 1) knowledge of community
health needs, 2) influence with respect to issues of relevance to the community and
academic partners, and 3) keen interest in developing community partnerships with
the aim of eliminating health disparities. These advisory board sessions were
therefore one of the ways in which the local voices expressed ideas specific to their
culture and community. As a collaborative space, the community, in this case, was the
locus of decision making, identifying problems and the concomitant solutions. The
advisory group discussions typically last for approximately 120 minutes and contained
10 to 15 participants, representing the local community. All interviewees were
reimbursed for their participation. Location for the sessions was the Bukit Merah
Community Center owing to its convenience and accessibility for community
members.
Later versions of the advisory board might also include local leadership, health
promotion professionals, doctors, nurse practitioners, civil society representatives,
state actors, and policy makers in the communities. The advisory group may also
select from among them some members to serve the role of peer leaders in the
community who then act as co-researchers. This entails participating closely in the
research design and implementation processes, in recruiting community members for
in-depth interviews, focus groups, and workshops that follow. Peer leaders also play
key roles in the evaluation and implementation phases of the project. Owing to the
brevity of the project such peer leaders have not been selected at this early stage in
the project. Three advisory board meetings have been conducted so far.
The members were asked to sign consent forms before proceeding to introduce
themselves. One by one, they shared their experience with the health care system.
These members, as indicated by their profiles above, were either patients themselves
or caregivers to loved ones undergoing treatment for chronic and other illnesses. This
was followed by a briefing about the project and the purpose of the Advisory Board
which was meant to gather their view on the challenges they faced in accessing care
and workable solutions for these challenges. The themes revealed in these meetings
also overlap with the themes identified earlier in the community and stakeholder
interviews.
At the outset, with a goal of eliciting a range of points, as broad as possible, members
were first asked to articulate challenges to health care. These were all jotted down on
a white board. The members were then asked to form groups and jot down the barriers
they faced which substantially narrowed down the initial points identified. These issues
were later further streamlined based on the members’ discussion and consensus.
A&E
Long waiting time and delay in help compounded by lack of assurance from the
staff on patient condition in the interim
Patients’ lack of awareness on handling emergency cases; lack of training on
distinguishing between emergency and non-emergency cases
Short consultation time with doctor before taking over of nurses makes it seem
that anyone could have done the consultation and cut short the waiting time
Lack of patient & caregiver awareness on alternatives to A&E such as 24 hr
clinics
Ambulances
Have to send patients to the nearest hospital even though it may be over-
crowded; this does not offer the alternative of sending the patient to a less
crowded hospital that is also nearby. This was perceived to be the result of poor
coordination between hospitals for transport. Consequently, treatment is
delayed when patient has to be transported to another hospital that is able to
take the patient in after arrival
Unable to send patient to hospital of their choice that has their medical records
unless informed early until they are sent to the nearest hospital first; time is
delayed in the later transfer to hospital of their choice
High cost for private ambulance to transport/ transfer patients to another
hospital & hospital that has patients’ medical records
Support for elderly and those who lack caregiver/ family member to take them
for appointments
Elderly who live alone and have to wait for the availability of children to take
them for appointments
Seniors who are not technologically savvy
Fragmented reach by VWOs - some people are outside the reach of social
services and VWOs
Some elderly experience difficulties navigating the hospital and do not know
where to go
Lack of information on existing transport services; need to better promote these
services
Special arrangements for wheel chair users
Low frequency of shuttle services which means that elderly have to wait too
long while there are few or no places to sit while waiting
Pick up points are too small
Lack of awareness on timings for special shuttle bus service for wheelchair
users (SGH)
5. Communication and information gaps at different stages- challenges came all the
way from the diagnosis stage and there seemed to be miscommunication at
discharge, post discharge and then patients being at a loss in the community.
7. Coordination of care
Shuttle bus
Expand pick-up points with more sitting area + pick up for wheelchair users;
bigger shuttle buses for wheelchair users
Increase the frequency of shuttle buses
Disseminate more information on transport services
Hospital visits
Streamline hospital visits/ appointments
Home visits/ mobile clinics for follow ups. These can be conducted at the
CC/RC.
Usher at hospital taxi-stand/drop off point to guide elderly patients to respective
departments
A&E
Empower patients about which cases is A&E suitable for and impart basic
training and information to patients for dealing with some emergency cases
which may not require A&E visits.
Talks on emergency response (i.e. how to help yourself during a medical
emergency) could be conducted where residents gather
Medical equipment and medicine recycling –especially for those patients who
expend substantial amounts on buying medicines in bulk and have no use for
them after they have recovered.
Streamlining the criteria for subsidies and a better framework for costs and
subsidies
Setting expectations for costs by way of financial counseling, especially for
family members
Clear instructions at discharge and also on the cause and effects of the
illnesses for patient and caregiver
At discharge, clear instructions for the caregiver on follow-ups. Provision for an
online system for patient’s medical records with instructions easily accessible
to the patients and their caregivers
Follow up between appointments especially when there are long intervals in
between appointments.
Method
The survey complemented the emergent data that was gleaned from the participant
observations, community-wide in-depth interviews, in-depth interviews with providers,
in-depth interviews with key stakeholders, and advisory group meetings.
The survey sought to understand the health seeking behaviours, including health
information needs, unmet health needs, experience in accessing health care services,
and media usage habits of residents in the catchment area of the Alexandra hospital.
700 Singaporean or Permanent Resident members of the public who live in Bukit
Merah and Queenstown (collectively 80%), and Clementi and Bukit Panjang
(collectively 20%) were surveyed. Each survey took approximately 60 minutes to
complete. In the following section, the demographic composition of the sample is
offered, followed by a presentation of the key challenges to healthcare and the quality-
based indicators of an “ideal hospital.” Finally, the quality indicators are presented in
five categories and participants are asked to rank them from 1 to 5.
The survey items were developed through the in-depth interviews with community
members, health care providers, and key stakeholders. Using the three data points
contributed to the development of items that converged on key constructs regarding
the challenges to and quality of health care. The items were further validated through
the advisory group meetings, where initial constructs were discussed, items reflecting
these constructs were worked through, and constructs were re-worked through several
iterations. The final items included in the survey reflected the convergence between
the community members, health care providers, and key stakeholders.
The Tables presented below present the demographic characteristics of the sample.
The sample is predominantly female, predominantly older (with 17% of the sample in
the 56-65 age range, and 28% of the sample in the age range of 66 and above). While
37% of the sample is employed, 22% of the sample comprises of homemakers, and
21.7% is retired. 64% of the sample is married. Also, 61.6% of the sample has an
educational level that is secondary education or below, and 34.7% of the sample is at
an education level that is primary education or below.
Table 1: Gender
Gender
Frequenc Valid Cumulative
y Percent Percent Percent
Valid Female 442 63.1 63.1 63.1
Male 258 36.9 36.9 100.0
Total 700 100.0 100.0
Table 2: Age
Age
Frequenc Valid Cumulative
y Percent Percent Percent
Valid 18-25 44 6.3 6.3 6.3
26-35 93 13.3 13.3 19.6
36-45 111 15.9 15.9 35.4
46-55 137 19.6 19.6 55.0
56-65 119 17.0 17.0 72.0
66 and 196 28.0 28.0 100.0
above
Total 700 100.0 100.0
Most respondents live in households with 2 or more members. Also, 34.6% of the
households have one elderly in the household, and 9.7% of the households have two
elderly in the household.
Beyond the demographic questions, respondents were asked about the challenges
they experienced in seeking healthcare in Singapore. They responded on a 1 to 7
scale, with 1 reflecting “strongly disagree” and 7 reflecting “strongly agree.”
Table 8 offers the list of challenges in a descending order, with the highest scored
items being listed first.
As evident in the table cost of healthcare is shared as the most significant challenge
to healthcare, followed by the waiting time at the clinic as well as to seek an
appointment. Participants also observed the necessity of needing to make multiple
appointments to see different specialists as a key problem. Communication
challenges such as difficulty in getting in touch with the provider between
appointments and lack of culturally appropriate health care were identified as
important challenges. Participants also noted the lack of coordination between
specialists as an important challenge.
Based on the challenges the participants shared in accessing healthcare, they were
offered the traits of an ideal hospital. Table 9 lists the traits of an ideal hospital,
presented in a descending order. According to the participants, both cost-related and
waiting time related items were highly rated. In their views, an ideal hospital would
minimize the waiting time between appointments as well as minimize the waiting
time at the point of healthcare delivery. Besides reducing the cost of healthcare, an
ideal hospital would educate patients about costs, and make sure patients have
access to subsidies. Communication also emerged as a key characteristic of an ideal
hospital such that an ideal hospital would make it easier for the patient or caregiver
to clarify information regarding follow-up after discharge, make it easy for the patient
to seek information from the hospital after discharge, and make sure communication
about follow-up treatment is clear at discharge.
APPENDIX A
APPENDIX B
I don't know, there could be [an RC manager], but I don't know. But I don't see him,
you know. Cause the door is always like closed, I always see children inside,
kindergarten la.
I think [outreach for the RC downstairs] very poor, very poor. Because I like to sit at
the void deck, I can observe all this. After work and all that, sometimes morning ah...
Hardly any movement or anything.
Yeah. They built a white elephant there, I don't know for what. The lift is good, but that
shade they built... nobody uses it.
Yeah... Nobody uses it. Nobody, not for wedding, not for birthday. I haven't seen it
used for anything.
Even for Chinese New Year it was really quiet. Very quiet. We had a community those
days we had kampong spirit, ok. Everyone will go out and visit everybody. Now
nobody. It's dead, silence.
Yeah. Nobody goes. There was one event, wait ah... Organised by RC, National Day
event I think. Hardly anybody there. You know why? They don't announce it.
- Harjit, 57 years old Indian man living with his elderly mother in a 3-room flat
with monthly income of $1,000-1,999
Because I understand that the community centres or RCs, they're not really one to
one. Personal or one to one. Because if they are more personal or one-to-one, I think
the reach would be better. What I mean is like, for example we are saying a guy who
comes in a wheelchair, with his legs cut off, amputated. I also understand the same -
a person in the same place would be much easier to relate to. Why did your leg get
amputated, what actually happened, all those things? From there this is when he can
say a CC can help you, come to his house for visitation, offer him some this and that,
and introduce him to healthcare. It'll be a more one-to-one approach.
I think RC they, RC or CC, they will organise a big event. But how sure are we that all
of them will come to the event? Cos there are many who are introvert, and many who
have closed doors.
- Harry, 31 year old Indian man living with wife and child in rental flat with $1.3-
1.5k income
The other way would be ah... To have talks, not at community centres. HDB void
decks, RCs and all this right, that's very good. Then you can invite, put the posters
one two months in advance, that we gonna have this here, this here... Any concerns,
whatever it is, the officers will be here, please come.
Nurses, maybe you can have your medical social workers, you can have your
educational... Can be whatever, whatever, you know. Financially, you are down, you
know, you need financial help, you know, but don't have to be cash. Never give cash,
never give cash because I believe... You give cash those who drink and smoke and
all that will go and do that. So always give in the form of vouchers. NTUC vouchers,
food vouchers whatever. So yeah, let them apply, sit down, check with them, and then
ok, fine.
- Harjit, 57 years old Indian man living with his elderly mother in a 3-room with
monthly income of $1,000-1,999
Caregiving:
I also go for dementia class. Dementia lecture talk. At Queenstown CC. Because,
dementia you can look after the elderly you see. Then from there we learn whether
this old man or old lady ah, is it beginning stage or all this. From there we learn. Yeah,
because of my mum. My mum already started dementia. Eighty-two. Just starting to
have dementia. Yeah. So, from there, from there I know how to take care then I will
teach my maid how to take care of my mum.
- Gina, 53 year old Chinese woman living in 3-room flat with $2,000-2,999
household income
Personal responsibility:
No la like I said I have to take personal responsibility la. Because, I appreciate what
the, our government said. We must take ownership la ah. We must take ownership of
our health, and [pause] ya. So uh ya, what I mean is that I take it that you know, after
I got discharged ah from the army hospital and so on, I wasn't.. I become slack la you
know. Because I'm also over 50 then I don't really have so much drive and motivation
anymore really. I don't have. Because I've done, I've done quite a number of jobs, and
I mean I have enough for my livelihood la but I realize, that's it la. I can't and...and you
know our society has changed so much. Of course now we're much more open but
the expectation is higher la don't you agree?
Kim- single Chinese male, 50 yrs. Heavy smoker and was formerly a caregiver
to his mother who passed away from a heart ailment a few years ago.
Cost of care:
I would like to try it (referring to a treatment for asthma patients), if I got the extra
financial, or is extra cash. I would, ah, if we do have any extra financial help or extra
cash right? All of us would... not even me, all of us would want to take care of our
health, you know go to whichever doctor and surgeon and err, the person who can
help us cure our illness. Ya, but for me, currently I'm, I'm... not a rich person and I'm
surviving with my two children right now. Ya, so I cannot do anything at all.
Fragmentation of care:
This doctor was running around. I went to SGH. I queue up like polyclinic, I tried to go
SGH since I'm staying at Kim Seng, but I went and queued and got the appointment
then they tell me say this doctor, the date you can queue until December. I said I'm in
a lot of pain you want me to queue until December?
..I will not be able to get back my doctor. It'll just be any doctor - if you are on subsidies,
you don't get your doctor you know.. Which I don't think I like to share too much things
with doctors here and there. I'm very tired to talk, repeating everything. So I see one
already, he has everything written there already, so I don't want to jump around mixing
up my doctors. I like to stay….Sometimes you feel that the problem I am going through
is not a pleasant one, not a happy one that I enjoy talking to people about. I don't like.
Because I feel ashamed about it.
Ally- 60yrs, Chinese female, divorced. Has had multiple operations for her spine;
diagnosed with depression and sees multiple doctors. Caregiver to her mother
who has dementia