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In Review

Rehabilitation in the United Kingdom: Research, Policy, and


Practice
Frank Holloway, MA, MB, FRCPsych1, Jerome Carson, BSc, MSc2, Sarah Davis, DipOT3

Objective: To review research, policy, and practice in psychiatric rehabilitation in the UK.
Method: We undertook a literature review and review of government policy documents.
Findings: Most individuals with severe, disabling mental illnesses are cared for by generic
community mental health services under the Care Programme Approach (CPA). Current gov-
ernment policy requires the introduction of assertive outreach and early psychosis services and
is highly consistent with the adoption of the recovery paradigm within UK mental health serv-
ices. Research and development activities have demonstrated the success of the UK hospital-
closure program and have contributed to the worldwide resurgence of interest in psychosocial
interventions in psychosis.
Conclusions: A need remains to focus research and practice on those who are most disabled
by their illnesses and to improve the skills of the workforce in psychosocial interventions.
(Can J Psychiatry 2002;47:628–634)
See page 634 for author affiliations.

Clinical Implications
· Mental hospital closure can be carried out with good outcomes for long-stay patients.
· The Care Programme Approach (CPA) requires community follow-up of people with severe
mental illness.
· Effective psychosocial interventions for schizophrenia have been developed.

Limitations
· The configuration of UK rehabilitation services is ill-defined.
· Little evidence exists with respect to the outcomes of rehabilitation services.
· Evidence for the implementation of psychosocial interventions in routine clinical practice is
limited.

Key Words: rehabilitation, recovery, Care Programme Approach, psychosocial interven-


tions
his paper reviews the current status of psychiatric reha- full-time in rehabilitation in England in 2000 (that is, less than
T bilitation in the UK. The term is not fashionable; in fact,
the word “rehabilitation” rarely appears in UK mental health
one per million population). This current low profile reflects
the history of rehabilitation services (which flourished in the
policy documents. The first and last major UK textbook on the traditional mental hospital), shows the continuing ambiguities
topic was published almost 2 decades ago (1). Despite a long- over the meaning of the term, and reveals a long-standing dif-
standing policy focus on severe mental illness and the large ficulty in acknowledging the realities of continuing disability
proportion of mental health spending allocated to long-term in an era of community mental health care.
care, few UK mental health professionals specialize in reha- Bennett (2) provided an overview of the development of psy-
bilitation. A survey undertaken by the Royal College of Psy- chiatric rehabilitation services in the UK. Historically, these
chiatrists identified only 46 consultant psychiatrists working services were based in the mental hospital. Rehabilitation

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Rehabilitation in the United Kingdom: Research, Policy, and Practice

aimed to enable individuals to move out of hospital, either The UK rehabilitation tradition tends to concentrate on the
back to their home or to a supported care setting. Long-stay provision of a caring and supportive environment that maxi-
patients moved down and then up a ladder, from the acute mizes the individual’s capacity to live as ordinary a life as pos-
ward to the back ward, on to the rehabilitation unit, and even- sible, despite any residual disability (5). This is in contrast
tually out of hospital. with the US focus on rehabilitation readiness and the achieve-
ment of behavioural change, which would enable the person
The second half of the 20th century saw a dramatic decline in to live without support (7). UK practitioners have always been
psychiatric bed numbers in England, from a peak of over skeptical of the value of behaviourally based social skills
150 000 in 1954 to 38 000 in 2000 (from 330 per 100 000 training for patients with schizophrenia (8), despite the opti-
population to 70 per 100 000). However, it was only in the late mistic claims in the US literature (9). Even so, the UK tradi-
1980s that the mental hospitals began to close. Rehabilitation tion has sought to improve patients’ functional abilities
as a process of resettlement proved spectacularly successful: through occupational therapy and behaviour-oriented nursing
approximately 100 of the 130 large English and Welsh mental inputs, to the extent that they could live in the least restrictive
hospitals have closed in the past 15 years. Much of the repro- possible environment.
vision within the hospital closure program was based on
Recently, the rhetoric of recovery has begun to influence the
Wolfensberger’s normalization or social role valorization the-
UK discourse on rehabilitation (5), partly in response to intel-
ory (3), an ideology that can be interpreted as denying the real-
lectual trends emanating from the US and partly influenced by
ity of the severe psychiatric disabilities experienced by former
the burgeoning indigenous UK user or survivor movement.
mental hospital patients. Denial of disability has been a recur-
This paper describes recent trends in health and social care
rent theme in the era of community mental health care (4). The
policy. Further, it reviews research and practice relevant to the
hospital closure and reprovision programs that took place in
treatment and support of people who are categorized into the
England during the late 1980s and 1990s were carefully evalu-
definition provided by Wykes and Holloway (5), most of
ated. However, less is known about the fate of the many thou-
whom will fall outside any formal rehabilitation service.
sands who left the declining hospitals in the decades before
the closure program—anecdotally, often with only the price
Health and Social Care in the UK
of a railway ticket and the address of a boarding home in a sea-
The UK is a federation; health and social policy is in the hands
side town.
of its constituent Departments of Health. The same broad
service principles apply throughout the UK, although health
Psychiatric rehabilitation, frequently defined as a set of spe-
spending is significantly higher in Scotland, and the move to-
cialist services, could be defined as an area that considers the
ward community mental health care has been slower in Wales,
needs or characteristics of people who would benefit from re-
Scotland, and Northern Ireland. Total UK health spending,
habilitation inputs. Wykes and Holloway defined the potential
which is largely public rather than private (84% public), is
client group as “people with severe and long-term mental ill-
lower than in other advanced industrial nations (per capita
nesses who have both active symptomatology and impaired
US$1418, compared with, for example, US$2102 in France
social functioning as a consequence of their mental illness”
and US$3950 in the US) (10). A lesser proportion of gross do-
(5). The development of specialist rehabilitation services is
mestic product is spent on health in the UK (6.7%, 9.4%, and
very patchy and, following the hospital closure program,
13.0%, respectively, for the 3 countries).
there is also a much larger de facto system of continuing care
within generic mental health and social care services. Each lo- Health care is free at the point of delivery, funded from taxa-
cality has a substantial population of severely mentally ill peo- tion, provided by the National Health Service (NHS), and, in
ple receiving supportive care in what might be termed a principle, comprehensive. Access to specialist services, in-
“virtual mental hospital.” This largely comprises an uncoordi- cluding psychiatric care, is traditionally from general practi-
nated network of private and voluntary sector residential pro- tioner referral. Individuals with a severe mental illness,
vision, family care, and support from the generic community however, commonly enter specialist mental health services,
mental health teams (CMHTs). These and their associated having bypassed the primary care filter (11). Health service
acute inpatient units form the backbone of UK mental health providers (“trusts”) have clear-cut geographical responsibili-
services. Services for forensic (offender) patients are pro- ties that are defined in contracts with their commissioners.
vided at a regional level (medium-secure units) and within 4 The precise organizational structure regularly changes, but
high-secure hospitals. Some localities can arrange for special- commissioners are essentially agents of the Department of
ist forensic community supervision and, in recognition of the Health (DoH). Providers are currently agglomerating; in fact,
long-term nature of some patients’ needs, there is an emergent a number of mental health trusts are responsible for a catch-
specialty of forensic rehabilitation (6). ment area of 1 million people.

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The Canadian Journal of Psychiatry—In Review

Access to social supports such as residential, day, and domi- information on services and treatments, including the Co-
ciliary care is means-tested and provided through local chrane Collaboration Database, through several portals that
authority social services departments. These departments include a Centre for Evidence-Based Mental Health
contract out many services to a mixed economy of voluntary (www.cebmh.com). The aim is to enhance evidence-based
and private sector providers. Local government receives health and social care practice. This sits within a broader strat-
block grants from central government, with a local political egy for clinical governance that places quality at the heart of
process that decides on spending. In addition, the Department services (15).
for Work and Pensions (DWP) disburses welfare benefits.
Newly formed, the DWP is responsible for programs that Service-specific national service frameworks (NSFs) and the
bring people back into the workforce. National Institute for Clinical Excellence (NICE) set stan-
dards for health service providers. NICE has produced guid-
Approximately 11% of health spending is allotted to desig- ance on the use of antipsychotics, legitimating the use of
nated mental health services for all age groups, while 5% of atypicals in first-onset patients and those with significant ex-
social service spending goes toward mental health. Although trapyramidal side effects (16). The Commission for Health
health and social care policy for England is set and monitored Improvement scrutinizes provider clinical governance ar-
by the DoH, actions by the Treasury, the Home Office (re- rangements and pays particularly close attention to the user
sponsible for the criminal justice system), the DWP, local and caregiver experience and to the integration of user and
politicians, and local commissioners have a profound impact caregiver views into service planning and provision (17). So-
on the welfare of people with severe mental illness. For exam- cial care and independent sector health care providers are
ple, a lack of funding from DWP for employment programs, monitored through the independent National Care Standards
combined with the regressive policies toward income from Commission (visit www.carestandards.org.uk for a descrip-
employment by people with disabilities, makes reintegration tion of the NCSC). NHS commissioners and providers are
of individuals with severe and recurrent mental illness into the monitored through a National Performance Framework. Pro-
workforce particularly difficult. This is despite a strong policy viders are rewarded (in terms of increased autonomy and fi-
emphasis on social inclusion. nancing) and punished, depending on their performance.
There is a long-term continuity in the UK’s mental health pol-
icy that takes away from the institution and toward commu-
Modernizing Mental Health Services
nity care. Nevertheless, since the early 1990s, a moral panic
over community care has resulted in policy being dominated Modernizing Mental Health Services: Safe, Sound and Sup-
by concern over the risks people with mental illness present to portive (18) provided a strategy for reform and change. It in-
themselves and others (12). This has led to increasing empha- cluded a commitment to reform mental health legislation. The
sis on monitoring and coercing patients into treatment adher- planned new Mental Health Act, jointly sponsored by the
ence and over the past decade has been associated with a DoH and the Home Office (19), is part of a wider public pro-
marked trend toward more compulsory inpatient admissions. tection strategy. It ensures that individuals with a mental dis-
order can be treated compulsorily in the community, it
Modernization achieves compliance with the Human Rights Act (which in-
Since the election of the UK Labour Government in 1997, corporates the European Convention on Human Rights into
health and social care has been near the top of the list of politi- UK law), and it allows preventative detention of people with
cal priorities and, consequently, has been the focus of inten- dangerous severe personality disorder.
sive policy development. The modernization agenda is set out The NSF for Mental Health articulated broad service princi-
in a 10-year NHS Plan (13). This demands service reform in ples and standards for services (20). The standards cover
return for promised investment that will bring UK health health promotion, primary mental health care, services to
spending up to the European Union average. One crucial ele- caregivers, steps to reduce suicide, and standards specifically
ment of modernization is a new flexibility for local health and focused on the needs of people with severe mental illness. A
social services to form integrated provider organizations that Care Programme Approach (CPA), first introduced in 1991,
are jointly commissioned by the NHS and the Local Author- was relaunched in 1999 (21). A care plan that considers the
ity. Increasingly, mental health providers have health and so- views of users and their caregivers must be in place for all peo-
cial work staff working under joint management. ple in contact with specialist mental health services, and risk
There is an ambitious health informatics strategy that envis- assessments must be undertaken. People placed on enhanced
ages developing an electronic patient record as well as the rou- CPA, who have complex needs, are subject to regular multi-
tine use of clinical outcome measures within mental health disciplinary review and must be followed up, whatever their
(14). Practitioners are also encouraged to access good quality wishes.

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Rehabilitation in the United Kingdom: Research, Policy, and Practice

The National Confidential Inquiry into suicides and homi- responsible for putting the NSF and the mental health compo-
cides by individuals with mental illness has produced 2 re- nents of the NHS Plan into practice. In 2002, LITs reported to
ports that contain numerous recommendations aimed at their performance managers the key items that were relevant
reducing suicide and homicide in the UK (22). Key recom- to people with a severe mental illness and consequent social
mendations, which include rapid follow-up of all patients disability, such as progress in developing the PIG functional
leaving a psychiatric hospital and regular risk assessment teams and availability of secure hospital services. Joint pri-
training for all staff, have become part of the performance mary and secondary care registers of individuals with a severe
management framework for mental health services (23). De- mental illness are mandatory. The CPA documentation must
spite the moral panic that has driven this policy focus, homi- record the employment, occupational, and financial needs of
cides carried out by individuals with a severe mental illness users on “enhanced” CPA, and services should be available to
have steadily declined as a proportion of total homicides in the meet these needs. Strategies for the management of people
UK during the era of community care (24). with a dual diagnosis (that is, mental illness and substance
misuse) and for meeting the needs of caregivers are required.
Policy Implementation Guide Until very recently, UK research into employment and dual
The NHS Plan made specific commitments with respect to diagnosis issues has not gone beyond mapping out the size of
change in mental health services. These were elaborated in a the problem, and thus policymakers have been forced to look
Policy Implementation Guide (PIG) (25) and are based on the to models derived from US literature.
functionally differentiated service model developed in North- The DoH has funded an ambitious service-mapping exercise
ern Birmingham. This sharply contrasts with the standard UK for England. The 2001 report is available on the Internet at
model, based on a generic CMHT. “Health economies” (the (http://www.dur.ac.uk/service.mapping). The data are incom-
jargon term for stakeholders in health and social care within a plete but do demonstrate striking variability in both acute and
local area led by the commissioners) must develop 3 specialist long-term care provision—including designated rehabilita-
teams to complement the CMHT and any existing local spe- tion teams, rehabilitation beds, and work provision—across
cialist and rehabilitation provision. These teams include a cri- the country that cannot be explained by local demand. Over
sis resolution and home-treatment team (to decrease time, these variances are likely to diminish.
admissions), an early-onset psychosis service (to manage new
presentations of psychotic illness in individuals aged 14 to 35 Research and Severe Mental Illness
years), and an assertive outreach team (to provide treatment
and care for difficult-to-engage service users with a severe Hospital Closure
mental illness). One of the recent triumphs of mental health services research
The potential value of assertive outreach had previously been in the UK has been to document the process of closure of large
identified in Keys to Engagement, a report from the Sainsbury mental hospitals. The Team for the Assessment of Psychiatric
Centre for Mental Health (26). This influential nongovern- Services (TAPS) study into the closure of 2 London mental
mental organization promoted assertive outreach—a concept hospitals (29,30), along with other more modest research pro-
derived from the pioneering work of Stein and Test (27)—as a grams carried out in the late 1980s and early 1990s, provided
solution to concerns that some individuals with severe mental reassuring evidence of the outcome of well-conducted mental
illnesses were falling through the cracks of the mental health hospital closures. The uniform findings were that moving out
system, despite the CPA. These services should be distin- of the mental hospital into well-resourced nonhospital provi-
guished from existing rehabilitation outreach teams, which sion improved the life circumstances and social functioning of
tend to cater to an older, more functionally impaired client the residual long-stay patients, most of whom had spent dec-
group. Policy interest in first-onset services reflects, in part, ades within the hospital and had failed within traditional reha-
the influence of the pioneering early intervention service in bilitation services. However, and perhaps not surprisingly, the
Northern Birmingham (28), while the crisis resolution strand resettlement process had little impact on psychiatric
reflects concern to minimize use of psychiatric beds. symptomatology.

The PIG has subsequently been updated with further guidance The New Long Stay
on other service areas, including the management of comorbid Less well-developed than the hospital-closure literature are
substance misuse, psychiatric intensive care and low secure studies on the needs of people accumulating in psychiatric in-
services, and acute inpatient services. Like all Department of patient beds in the era of determined community care, the so-
Health papers, the PIG is available on the DoH Web site called “new long stay.” This is partly because, following the
(www.doh.gov.uk). In 1999, health economies were required demise of the UK psychiatric case registers in the late 1980s,
to set up local implementation teams (LITs). LITs are sampling frames to address service issues from an

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The Canadian Journal of Psychiatry—In Review

epidemiological basis became difficult to establish. Despite literature, put forward an alternative argument (46). They con-
this, both national surveys (31) and more detailed local studies cluded that what works in one culture and health care system
(32), have identified a diagnostically heterogeneous group at one time may be inapplicable elsewhere and at a later date,
with highly complex needs, characterized by behavioural dis- when the services providing the control condition have moved
turbances. As a result, this group is unacceptable to private on.
and voluntary nonhospital service providers. Behaviours that
predict continuing hospital care for new long-stay patients in- Psychological Treatments for Psychosis
clude absconding, noncompliance with treatment, bizarre be- A rich research tradition into psychological treatments for
haviour, disturbance at night, and violence (32). psychosis exists in the UK. It dates back to the pioneering
work of Brown and Rutter, who introduced the concept of ex-
Even within highly deinstitutionalized services, a small but pressed emotion in families of people with schizophrenia
significant group of individuals have been identified as those (47). This work has led to important and positive studies into
requiring extensive periods of hospital-based care, often in family interventions using the expressed emotion paradigm
conditions of some security (32). Secure beds form the one (48,49). Tarrier and colleagues found that a behavioural fam-
sector of psychiatric inpatient provision that has grown in the ily intervention was superior in terms of relapse in the short
past decade in England, with a burgeoning network of private term to a family-meeting condition and treatment as usual,
sector hospitals taking in patients for whom local services both in the short and long term (50). However, in common
cannot manage. with findings worldwide (51), family interventions in psycho-
We have learned what makes for good and bad institutional sis are not part of mainstream services.
care (33,34). However, little empirical research has been done Several research teams in the UK have pioneered the use of
in the past 2 decades about effective treatment practices cognitive-behaviour therapy (CBT) in schizophrenia. Studies
within long-stay hospital settings and their high-support com- have investigated the application of CBT to medication-
munity analogues. In addition, little research exists with re- resistant outpatients (52–54) and to inpatients with acute psy-
spect to the nursing and occupational therapy interventions chosis to as an adjunct to antipsychotic treatment (55). A tar-
that constitute a major part of rehabilitation practice (35). The geted intervention based on motivational interviewing
TAPS study found that difficult-to-place patients who were techniques to enhance the compliance or adherence of patients
leaving Friern and Claybury Hospitals and who were younger with psychosis to medication has been evaluated (56).
and had a shorter mean length of stay than did the bulk of the
An important conceptual and practical development, based on
long-stay population could be successfully cared for within
pioneering work by Birchwood and others (57), is the identifi-
the well-staffed and highly structured community units in
cation of individualized “relapse signatures,” encouraging the
which they were placed. There was significant reduction in
patient and caregivers to monitor early signs of psychosis and
aggressive behaviours over time (36).
to develop a relapse plan (58). Relapse planning is incorpo-
There is some evidence for the value of the hospital hostel or rated into CPA guidance and routinely forms part of care plan-
ward-in-a-house approach (37,38), although the prototypes, ning under the CPA (21).
which were run on behavioural lines in London and Manches-
Wykes and others developed a promising additional psycho-
ter, have long since closed. Their successors offer 24-hour
logical technique that targets the basic neurocognitive deficits
nursing care in nurse-led community units, often run by the in-
associated with schizophrenia (59). Their study compared
dependent sector working in partnership with NHS providers.
cognitive remediation therapy with an equally intensive con-
Further, these units can offer an undoubted improvement on
trol condition based on occupational therapy interventions
the traditional mental hospital (39).
and subsequently found significant improvement on cognitive
Community Support measures. In general, the treatment programs that UK reha-
The pioneering work of Stein and Test (27) into Assertive bilitation services offer take into account few of the cognitive
Community Treatment (ACT) stimulated a worldwide re- deficits of service users (5). Clinical psychology is a scarce re-
search effort into the provision of intensive community sup- source, and cognitive assessment is not standard practice in
port for individuals with severe mental illness. The Maudsley the UK.
Hospital in London undertook one of the early and successful Barrowclough and others reported positive findings from a
replications— the Daily Living Programme (DLP) (40). Sub- study of the value of a comprehensive package of psychoso-
sequent UK studies that have tried to put ACT principles into cial interventions (combining family work, individual CBT,
practice have been less positive (41–43). Critics have asserted and motivational interviewing) in the care of individuals with
that these studies were inadequate replications of ACT comorbid substance misuse and schizophrenia (60). Few con-
(44,45). Burns and others, who reviewed the European temporary services in the UK would be in a position to provide

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Résumé : Réadaptation au Royaume-Uni : recherche, politiques et pratiques


Objectif : Examiner la recherche, les politiques et les pratiques en matière de réadaptation psychiatri-
que au Royaume-Uni.
Méthode : Une revue de la documentation ainsi qu’une revue des documents politiques du gouverne-
ment ont été entreprises.
Résultats : La plupart des personnes qui souffrent de maladies mentales graves et invalidantes sont
sous les soins de services de santé mentale communautaires génériques en vertu du Care Programme
Approach (CPA). La politique en vigueur du gouvernement exige que soient instaurés des services de
suivi intensif dans la communauté et de traitement précoce de la psychose. Cela correspond tout à fait
à l’adoption d’un paradigme de rétablissement au sein des services de santé mentale britanniques. Les
activités de recherche et développement ont démontré le succès du programme britannique de ferme-
ture des hôpitaux et ont contribué au renouveau d’intérêt mondial pour les interventions psychosocia-
les sur la psychose.
Conclusions : Il faut encore axer davantage la recherche sur les personnes qui sont le plus frappées
d’incapacité par leur maladie, et améliorer les compétences de la main-d’oeuvre des interventions
psychosociales.

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W Can J Psychiatry, Vol 47, No 7, September 2002

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