Professional Documents
Culture Documents
of Individualized Tools
lia M. D. Sales, Faculdade de Psicologia e de Ci^encias da Educacß~ao, Centro de Psicologia da
Ce
Universidade do Porto
Paula C. G. Alves, Instituto Universit
ario de Lisboa (ISCTE-IUL), Division of Health and Social
Care Research, School of Medicine, King’s College London
There has been an increasing interest in patient-cen- The relevance of patient-centered measurement is
tered assessment of psychological treatments. This being increasingly acknowledged, and there is a call for
article reviews the existing patient-generated measures personalized approaches that tailor assessment to the
(PGMs) that have been used by clinicians and psy- specific needs and views of patients (e.g., Crawford
chotherapy researchers to collect evaluation data from
et al., 2002; NICE, 2012; Norcross, 2011; Roberts &
Petersen, 2010; Sales & Alves, 2012; Taylor, 2013).
the patient perspective. A systematic review of litera-
This article aimed to guide practitioners and researchers
ture was performed to identify PGMs in empirical
by reviewing the individualized assessment tools for
studies between 1990 and 2014. Twenty tools were
current use in psychological therapy, their psychomet-
identified, of which three were designed to assess the
ric properties, and their clinical utility.
outcome and 17 to assess the process of therapy. The Measurement approaches in health can be classified
characteristics of each are described and discussed, on a continuum of patient involvement, ranging from
including psychometric data and evidence of clinical professional-based assessment with minimal patient
utility. This review helps professionals and researchers input (e.g., when evaluating the clinical condition only
to implement the recommendation of health policies through observation) to patient-based assessment where
that advocate the importance of patient-centered patients are directly asked their view (e.g., filling in a
care. questionnaire about their health). This last strategy
Key words: idiographic, individualized PROMs, out- makes use of patient-reported measures, that is, ques-
come and process assessment, patient experiences, pa- tionnaires with a series of questions that are adminis-
tient-centered assessment, patient-generated measures, tered through pen-and-paper forms, interviews, or
patient-reported measures, personalized assessment. electronic devices (Fitzpatrick, Davey, Buxton, &
[Clin Psychol Sci Prac 23: 265–283, 2016] Jones, 1998). The use of patient-reported measures has
become a priority in health care because this approach
to assessment shifts the balance of power away from
health professionals toward the patient, according to
patient-centered quality standards. Several bodies, such
Address correspondence to Celia M. D. Sales, Faculdade de as the American Psychological Association and the
Psicologia e de Ci^encias da Educacß~ao, Centro de Psicologia United Kingdom’s National Institute for Health and
da Universidade do Porto, Rua Alfredo Allen, 4200-135 Care Excellence, recommend that managed care sys-
Porto, Portugal. E-mail: celiasales@soutodacasa.org.
tems adopt patient-centered measurement that listens to
doi:10.1111/cpsp.12162 patients; enables patients to communicate their personal
© 2016 American Psychological Association. Published by Wiley Periodicals, Inc., on behalf of the American Psychological Association.
All rights reserved. For permissions, please email: permissions@wiley.com. 265
values, priorities, and expectations for health; and items to be measured are defined by the patient” (Ash-
involves the patients’ views in shared decision-making worth et al., 2004, p. 28). Outcome is assessed by
processes. change in self-completed scores on these patient-gener-
Traditionally, patient-reported measures follow a ated items. PGOMs are also known as IPROMs (indi-
nomothetic measurement approach. Items reflect vidualized patient-reported outcome measures). But
dimensions that are common to all people, in varying PGMs can also be used to assess therapy processes. In
degrees, and the role of the assessment is to locate the contrast with closed-ended questionnaires, in which the
patient on those universal dimensions by comparing his contents are defined by the researcher (e.g., Working
or her score with population norms. However, ques- Alliance Inventory; Horvath & Greenberg, 1989),
tions have arisen as to whether nomothetic patient- patient-generated process measures (PGPMs) use open-
reported tools are truly patient-centered and to what ended questions to elicit the patient experience while in
extent they truly represent what is relevant to patients treatment. The patient experience of treatment includes
(Carr & Higginson, 2001). Nomothetic patient- “sensations, perceptions, thoughts, and feelings during
reported tools limit patients’ opportunity to express and with reference to therapy sessions” (Elliott & James,
their personal views because they consist of lists of pre- 1989, p. 444). PGPMs hence assess the treatment vari-
defined items with predetermined response options. ables that are relevant from the point of view of
These measures may include items that are irrelevant patients. This article aims to make available an updated
for an individual patient, whereas relevant items that overview of the existing PGMs and how they are used
matter to people might be absent (Carr & Higginson, to personalize outcome and process assessment.
2001). Moreover, patients criticize the normative
nature of preset questionnaires because the same item METHODS
may have different individual meanings (Blount, Evans, A systematic search was conducted by the two authors.
Birch, Warren, & Norton, 2002). By asking every The search was performed between November 2011
patient the same questions, nomothetic tools fail to and December 2014. Three strategies were employed:
capture the individual nature of health status and treat- electronic searches in major international databases
ment experiences, and overlook the personal meaning using terms such as patients, perspectives, psychotherapy
of items. and its synonyms, and also qualitative research; hand
An alternative approach is the idiographic measure- searches in the specialist journal Psychotherapy Research
ment, which relies on the unique features and views of (from 1990 to 2014) and reference lists of relevant
the person. It makes use of individualized patient- papers; direct e-mail consultation with experts through
reported tools, also called patient-generated measures the mailing list of the Society for Psychotherapy
(PGMs). These are “instruments in which the respon- Research.
dent is allowed to select issues, domains, or aspects that The identified papers were screened for duplicates,
are of personal concern that are not predetermined by and both reviewers independently selected the papers
the investigator’s list of questionnaire items” (Fitzpatrick to be included in the review, according to eligibility
et al., 1998, p. 12). PGMs have a standardized structure criteria. The inclusion criteria were as follows: (a)
that defines the format of the instrument, but it is the empirical studies in psychotherapy that used PGMs; (b)
patient who defines the contents to be evaluated. That studies reporting the development of PGMs; and (c)
way, a PGM used to measure a specific outcome may English, Portuguese, French, or Spanish papers (peer
have a preset format of three items that the patient rates review, gray literature, conference proceedings)
for intensity on a 6-point Likert scale; however, the published between 1990 and 2014. Exclusion criteria
items are free-text propositions indicated by the patient included (a) print/downloadable form of the full-text
and correspond to his or her three main problems. version unavailable and (b) theoretical papers without
When PGMs are used for outcome assessment, they empirical data. Disagreements were discussed until con-
are called patient-generated outcome measures sensus was reached (see flowchart in Figure S1 available
(PGOMs) and consist of open-ended scales “where the online).
266 CLINICAL PSYCHOLOGY: SCIENCE AND PRACTICE V23 N3, SEPTEMBER 2016
RESULTS assessments, the authors found an overall weighted
The search strategy generated 72 empirical papers, from Pearson’s correlation of 0.56 (0.49, 0.63) between the
which 20 PGMs were identified. Of these, three were PQ and the other outcome measures used in the five
PGOMs and 17 PGPMs. We will start by presenting the samples.1 Concerning sensitivity to change, it was
PGOMs, including psychometric data and evidence of found that on a pre–post basis (for patients who
clinical utility, when available. We also include an exam- received more than three therapy sessions), the stan-
ple of a study that illustrates the use of each measure. dardized differences of the mean (Cohen’s d) reached
an overall value of 1.25 (n = 348; CI: 0.26–2.24); on a
Patient-Generated Outcome Measures session-to-session basis, these values ranged from 0.06
Simplified Personal Questionnaire (PQ). The PQ (Elliott, to 0.13 (see Elliott et al., 2015).
Mack, & Shapiro, 1999; Shapiro, 1961) is an outcome Clinical Utility. In a therapist survey, the PQ was con-
measure meant to assess changes in the problems that sidered to be useful for several clinical tasks, such as pre-
patients report when they seek treatment. The PQ treatment case analysis, as it provides relevant/useful
items are generated in a pretreatment semistructured additional clinical information that can be used for estab-
interview, where the patient reports a list of problems lishing treatment goals. In the specific context of family
that motivated him or her to seek therapy. This results therapy, the PQ helps one to get to know the specific
in a list of items in the patient’s own words (e.g., “My complaints of the family members and their individual
son does not talk to me anymore”) that are ranked and resources, as well as having a global perspective on the
rated for the degree of distress (7-point scale, from 1— family history, which helps in establishing a relational
not at all to 7—maximum possible) and for duration systemic diagnosis (pretreatment phase). Over the course
(from 1—less than a month to 7—more than 10 years). of treatment, the PQ is useful for monitoring change
The PQ can be administered in a pre- to post-therapy progress on a session-to-session basis, and it warns about
design, or on a session-to-session basis. Patients are free emerging problems. Hence, it supports ongoing clinical
to add or remove items on every application. The PQ decision making. Moreover, it allows saving time/num-
is available in Portuguese and Spanish and also in an ber of sessions, and it helps with writing clinical reports
outcome management software system (IPPS—Individ- for supervision and administrative purposes (Sales, Gon-
ualised Patient-Progress System; Sales & Alves, 2012, calves, Fragoeiro, Noronha, & Elliott, 2007). However,
2013; Sales, Alves, Evans, & Elliott, 2014). An example in this same survey, the PQ was also reported to be
of a study using the PQ is a clinical case described by time-consuming. In a study conducted by Lucas, Soares,
Carvalho, Faustino, Nascimento, and Sales (2008), Oliveira, Sales, and Alves (2012), therapists reported that
where session-to-session changes on the PQ were con- the PQ helps patients to think about their difficulties and
nected to the content of the session, in order to under- which ones they can deal with better.
stand whether therapy caused clinical changes. Comment. The PQ is an outcome measure of mental
Reliability and Validity. A recent meta-analysis of five health, with satisfactory psychometric properties, high
clinical samples collected in the United Kingdom, the acceptability, and some evidence of clinical usefulness.
United States, and Portugal presents the psychometric However, it presents feasibility constraints, mainly
properties of the PQ (Elliott et al., 2016). In this study, because of the time and resources required in the initial
the internal reliability between all patients in the five interview for item generation. Also, it is unclear how
samples was 0.80 (standard error 0.03). In four of these PQ data are analyzed when patients drop or add an
samples, test–retest reliability was calculated correlating item during therapy. Even though this instrument
the ratings provided at intake (pretreatment) and before allows adding or deleting items, only those that were
session 1, with an overall value of 0.57 (95% confi- elicited in the first assessment and remain until dis-
dence interval: 0.43–0.68). With respect to convergent charge can be used to evaluate pre–post change. On
validity, the PQ was correlated with several instru- the other hand, if an item is dropped, the reason for
ments, with the CORE-OM (Evans et al., 2000) being this is unknown (e.g., was the problem solved?), which
the most commonly used. In a sample of 971 hinders interpretation.
268 CLINICAL PSYCHOLOGY: SCIENCE AND PRACTICE V23 N3, SEPTEMBER 2016
the subsequent applications of the PSYCHLOPS. the GAS have correlated highly with clinician judg-
Instead, a generic score is obtained in the post-therapy ments (r = 0.81 in brain injury rehabilitation; Joyce
version of the PSYCHLOPS referring to the collective et al., 1994) and with other standardized PROMs
impact of any new items described during the course (r = 0.86 with the Barthel Index and r = 82 with the
of therapy. This generic score has not been indepen- Global Clinical Outcome Rating in geriatric care; Sto-
dently evaluated or studied in any trials. lee et al., 1992).
Clinical Utility. There is extensive evidence support-
Goal Attainment Scaling (GAS). The GAS (Kiresuk & ing the clinical utility of the GAS. For instance, it is
Sherman, 1968) is an interview-based procedure in valuable for establishing individual treatment goals by
which patients identify their main problems and estab- multidisciplinary intervention teams, such as in nursing
lish a set of priority goals, in collaboration with the homes (Gordon, Powell, & Rockwood, 1999) or reha-
therapist. After defining the goal, the idea is to set the bilitation settings (Malec, 1999). The GAS may include
“expected outcomes” for each of the goals, which cor- objectives in different areas of care, which can be eli-
respond to the “most probable result if the patient cited by the patient or his or her peers. The GAS thus
receives the expected treatment,” ranging from –2— allows monitoring of patient progress in different
much less than expected outcome to 2—much greater than domains and evaluation of the success of care according
expected outcome. As exemplified by Kiresuk and Sher- to the individual prognosis. Even though these features
man (1968), for the goal “Dependency on mother,” support the overall clinical utility of the GAS, there is
the least favorable outcome could be “Lives at home, scant information on its use as a PGOM in mental
does nothing without mother’s approval” ( 2 points); health. In a study with children with learning disabili-
and the most favorable outcome “Establishes own way ties, Young and Chesson (1997) reported that the ther-
of life, chooses when to consult mother” (+2 points); for apeutic goals elicited by patients on the GAS have “the
a practical guide on how to use GAS, see www.kcl.ac. potential to inform decision making regarding treat-
uk/lsm/research/divisions/cicelysaunders/attachments/ ment options” and is a “particularly appropriate evalua-
Tools-GAS-Practical-Guide.pdf). An example of the tive tool” (p. 111).
GAS used as a PGOM in mental health is Booth, Cush- Comment. The GAS requires several steps: identify-
way, and Newnes (1997), who used GAS as “a personal- ing problems, defining possible solutions/goals to
ized method for measuring outcome,” stating the scale attain, and rating goals. It involves a complex cognitive
was “suitable because outcome studies of counseling in process that may be too difficult for certain patients in
general practice have traditionally been based on mental health care. The application of the GAS com-
diagnostic measures of mental illness and such measures bining professional, family, and patient-established goals
are not necessarily the most appropriate for this context” might be considered. Unlike the PQ and PSY-
(p. 177). CHLOPS, the GAS provides a formula to compare
Reliability and Validity. The GAS has been mostly patients’ scorings. This is based on the weight assigned
used as a professional-based tool to help the clinical to each goal, the numerical value achieved by each
team to define and evaluate goals. In this format, the goal, and the expected correlation between the goal
patient is not actively enrolled in the generation of the scales (for an example of how this formula can be
items, and, consequently, data reporting the use of the applied, see Stolee et al., 1992). As psychometric prop-
GAS as a PGOM in mental health are scarce. How- erties of the GAS have been studied mostly in health
ever, the psychometric properties of the GAS have care with items generated by professionals rather than
been studied in numerous other care settings, revealing patients, it is necessary to further extend research to
excellent properties. Regarding inter-rater reliability, mental health settings.
for instance, the GAS has obtained values of 0.87 (geri-
atric care; Stolee, Rockwood, Fox, & Streiner, 1992) Patient-Generated Process Measures
or 0.92 (brain injury rehabilitation; Joyce, Rockwood, In addition to outcome measures, we also found
& Mate-Kole, 1994). Regarding validity, the scores of PGPMs that explore the process of therapy. Some of
270 CLINICAL PSYCHOLOGY: SCIENCE AND PRACTICE V23 N3, SEPTEMBER 2016
version, there is also a version of the PSQ for thera- treatment, including the whole treatment in retrospec-
pists. Helmeke and Sprenkle (2000) have used the PSQ tive.
in a qualitative study to explore the change process in Narrative Interviews. Narrative interviews are a set of
couples therapy. The goal was to build a grounded interview protocols that help patients telling the story
theory about pivotal moments and understand how the of their own treatment. An example of such protocols
events reported by the different spouses did or did not is the Therapy Story (McAdams, 1986, 2006), where
overlap. patients give a sequential description of treatment from
Helpful Aspects of Therapy Form (HAT). The HAT pretreatment to its ending, in order to identify the key
(Elliott, 1993b; Llewelyn, 1988) is a self-report ques- moments. Narratives should include the following
tionnaire about the significant events, including the scenes: the problem (a scene in which the presenting
most helpful and hindering events, of each therapy ses- problem was clear or vivid), the decision (a scene in
sion (Elliott & Shapiro, 1988). It includes questions which the patient decided to undertake therapy), most
such as “Of the events which occurred in this session, important session (a session the patient considers as piv-
which one do you feel was the most helpful or impor- otal), another important session (a session, different
tant for you personally? What made this event helpful/ from the first one, which was also significant), and
important and what you got out of it? Did anything ending (a scene that describes the period before, at, or
happen during the session which might have been hin- after the ending of treatment, in which the impact of
dering? Please describe this event briefly.” Patients are the therapy was clear or vivid). A sixth scene might
also asked to rate the helpfulness of the events identified also ask about other important information that was
(9-point scale, from 1—extremely hindering to 9—ex- not captured by the narrative. In 2011, Marcus and his
tremely helpful) to provide comparison between sessions. colleagues used this method to study experiences of
In a therapist survey, the HAT was found to be ade- patients receiving counseling for generalized anxiety
quate in terms of applicability and feasibility in routine reduction.
practice (Sales, Goncalves, Fragoeiro, et al., 2007). The Critical Incidents Technique. This technique (Flanagan,
HAT is available in Spanish and Portuguese in pen- 1954; Greenberg, James, & Conry, 1988) involves a
and-paper format and also in IPPS. As an example, a structured interview to “describe specific incidents in
clinician in the Psychological Association Practice therapy that stood out for them (patients) as helpful or
Research Network described the benefits of using the hindering’’ and also the process of change underlying
HAT: “She was most interested in learning from her such incidents (“how each incident was helpful or not
patients, after each session, what they found helpful, helpful,” “what changed for the person through the
as this might help her to be a better therapist” incident,” and “how this change occurred”). As an
(Castonguay, Boswell, et al., 2010, p. 339). Also in a example, Greenberg et al. (1988) relied on this tech-
survey, therapists stated the HAT was useful for session- nique to interview patients who received emotionally
to-session qualitative outcome monitoring and immedi- focused couples therapy over a period of eight sessions.
ate feedback about the session (Sales, Goncalves, Fra- Client Change Interview (CCI). The CCI (Elliott,
goeiro, et al., 2007; Sales, Goncalves, Silva, et al., Slatick, & Urman, 2001) aims to identify changes due
2007). As downsides, therapists mentioned that for to therapy. It includes questions such as “What
some patients, the completion of the HAT can be very changes, if any, have you noticed in yourself since
anxious, for they might fear what therapists are going to therapy started; Has anything changed for the worse
think about what they wrote and when a session is for you since therapy started; Is there anything that
emotionally intense; patients usually are too exhausted you wanted to change that hasn’t since therapy
to think and write something down at the end of ses- started.” Each of these changes is rated in terms of its
sion (Lucas, Soares, Oliveira, Sales, & Alves, 2012). level of expectancy, likelihood of occurrence without
PGPMs for Multisession Periods. We found 10 tools (in- therapy, and importance. After this, patients are queried
terviews and self-report questionnaires) to elicit the about attributions (i.e., what has caused such changes),
patient views and experiences about periods of the helpful aspects (i.e., what was helpful about therapy),
272 CLINICAL PSYCHOLOGY: SCIENCE AND PRACTICE V23 N3, SEPTEMBER 2016
on a 9-point Likert scale. Jones, Wynne, and Watson PSYCHLOPS takes a few minutes and can easily be
(1986) used the CPTQ to compare the experiences of filled out in the waiting room. Given that these tools
patients who received crisis intervention with patients provide clinical information that is useful for diagnos-
in long-term psychotherapy. ing and treatment planning, an alternative format of
Client Evaluation of Treatment Questionnaire (CETQ). administration in practice-based studies might be that
The CETQ (Swift & Callahan, 2009) starts with a the therapist himself or herself includes the items gen-
nomothetic section consisting of six preset items on eration process as part of the initial sessions. Also, the
three domains (therapeutic relationship, the patient’s PSYCHLOPS can be administered orally in the ther-
current coping ability, and effectiveness of treatment) apy session, although further research is needed to
that patients rate on a 9-point Likert scale. In the sec- ascertain the validity of adapted formats of administra-
ond part, patients are invited to indicate their two most tions of PGOMs. We recommend that therapist in-ses-
important problems and what has been most helpful in sion-administered PGOMs are used in association with
therapy. The nomothetic module of this questionnaire well-established nomothetic PROMs in order to check
was found to have an adequate level of reliability validity for outcome measurement purposes.
(Cronbach’s a = 0.84; Swift & Callahan, 2009). Swift Concerning process measures, although there are a
and Callahan (2009) used the CETQ to explore the large number of tools, most of them explore the same
preferences of patients regarding treatment and to central theme: the key aspects of therapy that promote
determine whether including these preferences had an change. The apparent diversity of PGPMs is due to the
impact on treatment outcome. different formats of administration (interview versus
self-report) or time units examined (i.e., patient views
DISCUSSION about a session versus multisession periods). The avail-
The aim of this review was to identify patient-gener- ability of diverse formats is an advantage because this
ated tools that maximize patient involvement in the facilitates the task of selecting the tool that is appropri-
assessment of outcome and process of psychotherapy. ate to specific settings. PGPMs that focus on a single
Altogether, we found 20 PGMs that have been used session are indicated for prospective session-to-session
with a wide range of psychotherapeutic models, data collection designs, whereas tools that focus on
in both Europe and the United States. We start by multisession time periods can be used in retrospective
providing general recommendations for the selection of studies, as they inquire about past experiences. This
the tools. We then discuss PGM advantages compared provides a resource for naturalistic research conducted
to nomothetic measures, as well as their limits and by clinicians, meaning that studies can be planned a
issues that require future research. posteriori after the treatment has begun or even after
treatment completion (e.g., Marcus, Westra, Angus, &
Selecting PGMs Kertes, 2011).
Figure 1 shows a diagram that can support the selection
of PGMs. Concerning outcome assessment, a crucial Strengths and Potentialities
aspect to consider is to what extent the patient is able A major strength of PGMs is proximity to the clinical
to generate and write the items. The PQ and GAS are reality. Although an outcome measure is inevitably
interview-based, which might be more appropriate reductionist, it is important that it captures the com-
than the PSYCHLOPS when cognitive functioning is plex nature of psychotherapy. Standardized PROMs
compromised, in cases of extreme anxiety, or with have been the preferred method for measuring out-
poor literacy. However, the choice must consider the come because of the evidence of their psychometric
practical requirements of conducting interviews, espe- properties and because they easily allow comparison of
cially if data collection takes place in clinical settings on the individual patient with a normative sample, as well
a routine basis. Building the PQ requires one session, as the aggregation of data and comparison of programs,
and the establishment of change goals on the GAS therapists, and services (Overington & Ionita, 2012).
might take several encounters. In contrast, the However, standardized PROMs have been criticized
Goal
Single session Multisession Target Complaint
Attainment
Feedback letter
Corrective
experiences GAS PSYCHLOPS PQ
Cross-contextual quest.
qualitative diary Interpersonal Role Narrative
Significant process recall analysis interview
events form method* Evaluation of Critical
Important therapy form* incidents
events quest. Brief Client
structured technique
Postsession assessment of
quest. recall change** Client change
Helpful aspects procedure** Client post- interview*
of therapy* therapy quest.**
Client evaluation
of treatment
quest.**
Figure 1. General guidelines for choosing PGMS. *Tools that include ratings of patient-generated data; **tools that include preset nomothetic items.
PGM = patient-generated measures; SR = self-report.
for their limits in capturing change in psychotherapy, to clinical reality is an advantage that overcomes some
and this is one reason for the reluctance of professionals of limitations of nomothetic tools in measuring change
to use this approach in clinical routine (e.g., Gilbody, in psychotherapy. The ability of outcome measures to
House, & Sheldon, 2002; Hatfield & Ogles, 2004). capture clinical reality is a critical aspect in managed
Moreover, patients note several problems in well-estab- care, where routine outcomes of all patients are used as
lished, standardized PROMs, such as vague items and service quality indicators. Outcome assessment has
language, cultural assumptions and slang, inappropriate ceased to be a matter limited to the therapist–patient
length, state bias, and response set (Crawford et al., interaction, or to research, and serves to evaluate the
2011). On the other hand, PGMs follow processes that services and to inform decisions at the health system
resemble the clinical assessment carried out by practi- level, in order to balance costs and quality of care (Val-
tioners: They encourage patients to expose their views, deras et al., 2008). Following a logic of transparency,
similarly to patient–therapist communication; the outcomes are aggregated and feedback is provided to
patient is directly involved in the establishment of the managers, politicians, and the general public. Often,
evaluation criteria of his or her own treatment; and the financing of services depends on this assessment
assessment is tailored to the relevant and meaningful (Mellor-Clark, Twigg, Farrell, & Kinder, 2012). Under
aspects of each individual. Such resemblance of PGMs these circumstances, the method used to assess
274 CLINICAL PSYCHOLOGY: SCIENCE AND PRACTICE V23 N3, SEPTEMBER 2016
outcomes regains importance. What is a therapy with Should all patient-generated items be included in out-
success? Success of a therapy represents optimization of come assessment, and if not, how should different
mental health, well-being, and quality of life within scorings of PGOMs be computed? Elliott (2012)
the limits of the prognosis and the aims of the patient proposed a quality item rating system for the PQ. An
(Blount et al., 2002). PGOMs allow patients to include item is classified as well formed if it is a specific prob-
their voices in the formal outcome assessment. By their lem, a personal difficulty that is reasonably a focus for
proximity to the case-tailored nature of psychotherapy, psychotherapy; it is considered a low-quality item if it
PGOMs are an option in managed care. describes vague personal difficulties (e.g., relationships), if
PGMs can also play a relevant role in evidence- it is formulated as a goal instead of a problem (e.g.,
based research. Empirically supported treatments (inter- get along better with people), or if it addresses general
ventions that have produced therapeutic change in societal problems (e.g., general economic situation). The
controlled trials) have limited value as prescriptive system allows that other item quality issues are identified
guides for treatment selection or for the designing of and described. Although it is unclear what constitutes a
health care and reimbursement systems (e.g., Kazdin, quality item for PGOMs and how it can be evaluated
2008). In real care situations, the choice of an inter- across individuals, we recommend that all studies using
vention and its effect depend on context variables and PGOMs include the analysis of the quality of items.
need to be informed by evidence derived from practice Uncertainty exists concerning the process of build-
(Smith & Pell, 2003). Evidence-based practice2 needs ing PGOMs. In a systematic review on the influence
rigorous research carried out in routine clinical settings of the mode of questionnaire administration in data
from the point of view of patients. This review showed quality (Bowling, 2005), it was found that it is easier to
that PGPMs are valuable tools to identify what aspects establish rapport during the course of interviews, result-
make interventions more useful for people under speci- ing in higher motivation for study participation and less
fic care contexts. Likewise, the inclusion of PGMs in missing data, relative to self-report measures. Con-
controlled studies facilitates the understanding of the versely, in an interview there is a greater likelihood of
mechanisms by which interventions produce change socially desirable answers, whereas self-report question-
(via PGPMs) and allow the determination of treatment naires might encourage participants to disclose sensitive
effects on those aspects that are relevant for the patient. information. To what extent do different modes of
Finally, PGMs are a valuable resource in the thera- item generation (interview versus self-report) lead to
peutic relationship. PGOMs provide therapists with different patient-generated items? Further research is
patient inputs for treatment planning, and PGPMs give needed on the reliability of PGOMs according to
therapists clinically relevant feedback on the patient administration modes, for instance, by comparing the
experiences, which is useful for ongoing case manage- PQ (interview-based) and the PSYCHLOPS (self-
ment. PGM acceptability among therapists and patients report). Likewise, it is not clear whether PGMs are
eases its incorporation in practice. adequate to different clinical populations, or sensitive
to mood fluctuations that favor or hinder self-disclo-
Limits and Issues to Be Addressed in Future Research sure.
Despite their advantages, there are several concerns Concerning the methods of analysis of PGMs, several
about PGMs that should be addressed by research. A challenges remain. As contents are determined by
first issue is the quality of the items. As patients are free patients, psychometric analyses that involve score com-
to indicate items, PGOMs may include nonpsychologi- parison with nomothetic tools cannot be made at the
cal or nonsymptomatic variables, such as “money wor- level of the dimensions but only at the total score level.
ries” or “work-related problems” (e.g., Ashworth It is not clear whether and how the contents of PGMs
et al., 2007). These items are of interest to practice, as should be used to ascertain PGM psychometric proper-
they inform about issues that affect the patient’s quality ties. Also in PGOM, the analysis of change is computed
of life. However, doubts exist as to whether they by the pre–post score difference, not considering items
should be used for measuring therapeutic change. either added or dropped as therapy progresses. This
characteristics make it difficult to compare across The authors of this article would like to thank Dr. Mark
patients because it requires the comparison of the Ashworth and Miss Diana Elliott for their comments, sugges-
tions, and assistance in revising the English version of the
items’ content, the comparison of the ratings, and also
manuscript. This study was funded by two research fellow-
the comparison of the number of items indicated by
ships, one of them awarded to CS by the Center for Psychol-
the different patients. To overcome this difficulty, a ogy at the University of Porto, Portuguese Science
method has been proposed for comparing patients Foundation (FCT UID/PSI/00050/2013) and EU FEDER
based on their PQ (metric-frequency similarity [MF]; and COMPETE programs (POCI-01-0145-FEDER-007
Sales & Wakker, 2009) (free MF Calculator available at 294); and the second awarded to PA by the Portuguese
http://mfcalculator.celiasales.org/; Sales, Wakker, Science Foundation (FCT SFRH/BD/87308/2012).
Alves, & Faısca, 2015). However, more data-analytic
techniques are needed. NOTES
In the face of the issues discussed, we recommend 1. In this meta-analysis, the measures correlated with the
that PGMs are used in association with well-established PQ were as follows: GAF Therapist Rating, CORE-OM,
nomothetic scales (Sales & Alves, 2012). A personalized SCL-90, GSI, NEO Neuroticism, PHQ-9, BDI, Social Pho-
assessment in health that combines in the same protocol bia Inventory, Rosenberg Self-Esteem, Harter Self-Concept,
individualized and standardized measures has been pro- Self-Relationship Scale Self-Affiliation and Self-Attack, Social
Adjustment Scale, Inventory of Interpersonal Problems, and
posed as a solution for balancing the gains and pitfalls
Strathclyde Inventory.
of idiographic and nomothetic measurement. It is espe-
2. Evidence-based practice is the “clinical practice that is
cially relevant in practice-based studies conducted in
informed by evidence about interventions, clinical expertise,
routine settings. The aforementioned outcome manage- and patient needs, values, and preferences and their integra-
ment software IPPS follows this personalized approach tion in decision making about individual care” (Kazdin,
by combining the PQ and the HAT with the CORE 2008, p. 147).
System (Barkham et al., 2015).
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Received October 18, 2015; revised January 22, 2016; Figure S1. Flowchart illustrating the search strategy
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