Professional Documents
Culture Documents
Rafaely 2017
Rafaely 2017
To cite this article: Liran Rafaely, Sara Carmel & Yaacov G. Bachner (2018) Subjective well-being
of visually impaired older adults living in the community, Aging & Mental Health, 22:9, 1229-1236,
DOI: 10.1080/13607863.2017.1341469
Severe vision impairment, possibly terminating in total blind- active involvement in society, it is considered a substantial
ness, is among the most common sensory disabilities in mod- component of quality of life (QOL) in later life (Diener &
ern Western society (Brown & Barrett, 2011; Heyl & Wahl, Diener, 2002; Sarvimaki & Stenbok-Halt, 2000).
2014; Wahl, 2013). According to an American Foundation for A high positive self-evaluation of well-being is important
the Blind (2013) report, by 2030, the number of older adults in during old age with regard to disease prevention, construc-
Western countries will reach twice its 1950s value, entailing a tive approaches to chronic illness and disabilities, acceleration
similar increase in the percentage of vision-impaired persons. of rehabilitative processes, and for the promotion of positive
The range of diseases causing severe vision impairment health (Ryff, Singer, & Love, 2004). Studies point to the signifi-
crosses geographic, ethnic, gender, class and sociodemo- cant association between decline in vision ability and poor
graphic boundaries (Bazargan, Baker, & Bazargan, 2001; Ram- SWB among older adults (Bazargan et al., 2001; Zhang et al.,
rattan et al., 2001; Verdugo, Prieto, Caballo, & Pelaez, 2005; 2009). A review of the literature indicates that four key dimen-
Williams, Brody, Thomas, Kaplan, & Brown, 1998; Zhang et al., sions of life are correlated with SWB among older adults (func-
2009) and consequently demands worldwide attention. Loss tional/physical, social, psychological, environmental).
of normal vision engenders complex realities with which Therefore we constructed an integrative model using well-
those affected must cope as their living environment changes established variables for each of the four dimensions (see
constantly (Cimarolli, Boerner, Brennan-ing, Reinhardt, & Hor- Figure 1).
owitz, 2012). The likelihood of vision impairment rises with Functional–physical. The functional/physical dimension
age (Ramrattan et al., 2001), tends to threaten everyday func- addresses physical health and extent of functional indepen-
tional competence (Wahl et al., 2013), tends to be associated dence (or the level of disability). Numerous studies report
with depression symptoms and lower level of life satisfaction high SWB among older adults who are in good physical health
(Brown & Barrett, 2011) and consequently affects people’s and function well independently (Bowling, Banister, Sutton,
subjective well-being (SWB) (Heyl & Wahl, 2014). This concept Evans, & Windsor, 2002; Hilleras, Jorm, Herlitz, & Winblad,
reflects one’s personal evaluation and feelings concerning 2001), while those who have lost their sight may experience a
life, manifested at the cognitive-intellectual level – at which decline in everyday functionality (Brown & Barrett, 2011; Heyl
people judge their lives in general and at the emotional level, & Wahl, 2012) and may suffer from increased risk of falling
wherein they report of the relative prominence of positive (Ramrattan et al., 2001). These may negatively affect SWB.
affects over negative ones in the present or the recent past Thus, for old persons who suffer from severe vision
(Diener et al, 1999). SWB is characterized by over-all content- impairment, overall state of health and functioning are of par-
ment, as contrasted with feelings of sadness and despair. An amount importance for maintaining SWB (Wahl et al., 2013).
older adult’s SWB is of major significance regarding adapta- The ability to handle with one’s environment and function
tion and functional skills within one’s environment, including safely therein is adversely affected by severe sensory
ensure they are cognitively normal); living in the community; Sociodemographic and medical characteristics of the study
ability to understand the questionnaire and having been diag- participants are described in Table 1. The sample (like the
nosed with severe vision impairment at least a year before total elderly population of Israel) has a higher percentage of
participation in the study. Individuals who report severe hear- women than men; the average age of participants was
ing loss were excluded from the study because previous stud- 77.4 years (range 60–95); most were born in Israel, Europe, or
ies report that older adults with dual sensory impairment the Americas and are non-religious and married with two or
(hearing and vision loss) are particularly disadvantaged with more children; a minority had academic education; their aver-
regard to well-being outcomes. age subjectively perceived financial and health status was sat-
The response rate was 67% (121 out of 180). Most refusals isfactory. Finally, about half had been diagnosed with severe
were due to skepticism about the study’s contribution to vision impairment for 11 or more years, and the leading cause
improving the situation of the overall vision-impaired popula- of the vision impairment was the age-related macular degen-
tion. No significant differences were found between partici- eration (AMD), resulting in blurred vision – or none at all – in
pants and those who declined to participate in regard to age the center of the visual field.
and gender.
Measures
Procedure Subjective well-being
After obtaining all necessary permits from the multiservice World Health Organization (WHO) Well-Being Index
center directors, research assistants attended the centers and This index, developed by the WHO and validated for the older
introduced the purpose of the study to potential participants. adults population by Bonsignore, Barkow, Jessen, and Heun
Personal face-to-face interviews were conducted with those (2001), evaluates participants’ over-all sense of well-being.
who agreed to participate by a sole-experienced interviewer The index comprises five statements addressing three aspects
specializing in gerontology. At the beginning of the interview, of the participant’s feelings over the previous two weeks:
candidates were informed that they are not obligated to par- Mood (‘I felt cheerful and in good spirits’), vitality (‘I felt active
ticipate in the study and are free to stop the interview at any and vigorous’), and interest in everyday matters (‘My daily life
time, for any reason whatsoever. Interviews ranged between was filled with things that interest me’). Responses range over
60 and 90 min. The study was approved by the ethics commit- a 6-point Likert scale from 0 (at no time) to 5 (all the time).
tee of the Faculty of Health Sciences at Ben-Gurion University The higher the score, the greater the SWB (a = 0.82).
of the Negev.
Table 2. Descriptive statistics of all studies variables and the associations Table 3. Model’s variables and sociodemographic characteristics as predictors
between independent variables and the subjective well-being (n = 121). of subjective well-being among visually impaired older adults (n = 121).
Association with B SE b t
No. of subjective Functional Independence # ¡0.30 0.97 ¡0.23 ¡3.12 **
Variables Items Range M SD well-being Social support 0.01 0.07 0.01 0.03
Subjective well-being 5 0–5 3.01 1.18 – Mastery 0.42 0.15 0.18 2.70 *
Sociodemographic and medical variables Optimism 0.16 0.23 0.05 0.72
Age 1 60–95 77.41 7.60 r = ¡0.26** Meaning in life 0.55 0.17 0.24 3.22 **
Gender 1 Physical home environment 0.02 0.04 0.05 0.65
Female 2.90 1.22 t = ¡1.03 Self-rated health 0.37 0.11 0.26 3.27 **
Male 3.12 1.14 Age ¡0.02 0.01 ¡0.16 ¡2.51 *
Country of birth 1 Economic status 0.10 0.09 0.08 1.20
Israel 3.10 0.99 F = 0.53 *p < 0.05 **p < 0.01 R2 = 0.610.
Asia–Africa 3.08 1.05 # Functional independence was measured by the level of participant’s dis-
Europe–America 2.93 0.97 ability in daily activities.
Marital status 1 That is to say that high score indicates high disability, namely low level of
Married 3.16 1.13 t = ¡1.66 functional independence.
Single/divorced/ 2.80 1.23
widowed
Number of children 1 1–3 rho = ¡0.07
Religiosity 1 Discussion
Secular 3.06 1.13 t = 0.69
Traditionalist- 2.91 1.25 Severe vision impairment poses a complex coping challenge
orthodox that covers all aspects of life and demands extensive changes
Education level 1
Elementary school 3.46 1.03 F = 3.01 in one’s personal world and living environment, in which nor-
High school 3.28 1.07 mative social behavior is determined by normally sighted
Academic 3.09 1.14 people. This difficulty is likely to intensify in old age – a period
Economic status 1 1–6 3.78 0.92 r = 0.37**
Self-rated health 2 1–6 3.64 0.85 r = 0.62** characterized by losses in key spheres of life. This study exam-
Years with vision 1 1–3 rho = ¡0.08 ined the correlations between SWB and four dimensions of
impairment life among older adults with severe vision impairment. The
Number of diseases 1 0–8 2.03 1.69 r = ¡0.42**
Vision ability 1 moderately high level of overall SWB found in this study is
Complete loss of 3.85 0.51 Z# = 1.15 similar to an earlier study conducted among the general
vision ability elderly population in Israel (Zeltzer-Zubida & Salpeter, 2008).
Poor vision ability 3.48 1.09
Variables of the four dimensions of life This finding can be discussed in the context of the ‘stability
Functional 8 1–5 2.41 0.95 r = ¡0.59** despite loss paradox’, which refers to the relative stability of
Independence # SWB (mainly in the domain of negative effects, but may also
Social support 24 0–48 20.49 9.61 r = 0.23*
Giving support 12 0–24 10.99 5.48 r = 0.28** comprise positive effects and life satisfaction) despite health-
Receiving support 12 0–24 10.42 5.31 r = 0.17* related loss among older adults (Kunzmann, Little, & Smith,
Social involvement 10 1–5 2.69 0.58 r = 0.25** 2000 ). Moreover, this high level of SWB may be related to the
Mastery 7 1–5 3.10 0.50 r = 0.40**
Meaning in life 20 1–7 4.52 0.52 r = 0.54** lack of differences in regards to SWB-related indicators found
Optimism 12 1–5 3.23 0.36 r = 0.22* between sensory-impaired and sensory-unimpaired older
Physical home 11 0–22 19.42 2.25 r = 0.33** adults (Wahl et al., 2013). Yet, this moderately high level of
environment
SWB found in our study is encouraging, as one might still
*p < 0.05; **p < 0.01; #Mann–Whitney U test.
# Functional independence was measured by the level of participant’s dis- have expected rather low SWB among severely vision-
ability in daily activities. That is to say that high score indicates high dis- impaired older adults whose complex lives pose extended
ability, namely low level of functional independence. coping challenges, similar to old people with other chronic ill-
nesses (Ben-Yaakov & Amir, 2001; Williams et al., 1998). There-
noted that most of the correlations were found to be lower fore, this finding might suggest that vision-impaired older
than r = 0.30. These results imply that the variables are rela- adults do benefit from a sound overall perception of well-
tively independent and represent different constructs. being despite their daily need to cope with complex chal-
To determine the unique relative contribution of the inde- lenges and difficulties originating in impaired vision and
pendent variables in explaining participants’ variability in advancing age.
SWB, we conducted a multivariate linear regression analysis. No significant differences in SWB level were found among
To the regression equations were added only those variables the four key sociodemographic characteristics (gender, religi-
that were found to be significant in the bivariate analyses. osity, marital status, and country of origin). These findings
The variable ‘number of diseases’ that was found to be signifi- contrast with those of studies examining the elderly popula-
cantly correlated with SWB was not included in this final anal- tion as a whole with regard to marital status (Larson, 1978)
ysis because of its strong correlation with self-rated health (r and religiosity (Levin & Chatters, 1998), apparently hinting at
= 0.62, p < 0.01). Table 3. structural variance in the components of this feeling among
Table 3 indicates that the model variables and sociodemo- people who experience loss of vision during their advanced
graphic characteristics account for much of the explained var- years. The lack of difference in SWB level with respect to the
iance (61%) of SWB. The following five variables, listed in marital status (married vs. single/divorced/widowed) is sur-
descending order, were found to be significant in explaining prising, as people who lose their sight in old age – in parallel
variability in SWB: self-rated health, meaning in life, functional to depletion of other physical, functional and at times even
independence, mastery, and age. That is, a positive estimation social resources – tend to display a marked increase in depen-
of one’s health status, a strong sense of meaning in life, ability dence on the external support of a significant other. One pos-
to function independently, perceived control of one’s life, and sible explanation is apprehension over increasing
a relatively younger age all explained high level of SWB. dependence and loss of autonomy, which tends to intensify
1234 L. RAFAELY ET AL.
in old age as physical systems experience a natural decline in phenomenon of objectively disabled people who do not nec-
biological functioning (Baltes, 1995), threatening functional essarily feel disabled or ill can be explained in the context of
autonomy, and even mental independence. Older adults who the ‘disability paradox’ (Albrecht & Devlieger, 1999). The mod-
are losing their vision may thus seek to preserve whatever erately high level of SWB found in our study joins the findings
autonomy and control they still possess and avoid constant of previous studies that report good or excellent QOL among
dependence on others. This personal psychological effort, to physically disabled people (see Ubel, Loewenstein, Schwarz, &
the extent that it is manifested, may weaken the positive Smith, 2005). Because coping strategies and defense mecha-
effect of couplehood on the older adult’s SWB. An additional nism were not among the constructs examined in this study,
explanation is that of social support (which has positive corre- all of the explanations above need to be assessed in future
lation with SWB) that may also be provided by people other studies preferably with longitudinal data and representative
than partners, such as neighbors, friends or relatives, and samples. Also of note, the associations of the four dimensions
especially for unmarried visually impaired older adults. with SWB may be more complex, with some dimensions
Indeed, in our study social support given/received by/to mediating or moderating the associations of others. Future
friends had the strongest correlation with SWB among all studies in this direction are also recommended.
three sources of support.
The functional–physical and psychological dimensions
were found to be more strongly correlated with SWB com-
Study limitations
pared to the social and environmental spheres. These findings
are also reflected in the summative regression analysis, in This study has several possible limitations that should be
which four of the five variables (self-rated health, meaning in acknowledged when assessing its findings and deriving gen-
life, functional independence, and mastery) contributing to eralizations from them. First, although the sample comprises
the explained variation of SWB belong to these two key a relatively large number of participants (121), it is still rela-
dimensions of life. Age was the fifth contributing variable, tively small – especially with respect to the large number of
and it contributed least to the explained variation of SWB variables examined – and may thus engender some distor-
among all five variables. The weak association of sociodemo- tion. Second, the study is cross-sectional in nature, delineating
graphic variables with SWB among older adults is in line with correlations among research variables without necessarily
prior findings in the Western world (Diener, 2009; Smith, determining causality. For example, we cannot determine
2001). Previous studies note that a positive subjective assess- whether study participants who reported high SWB felt that
ment of one’s self-rated health is a strong predictor of high way because of their high positive self-rated health or
survivability (Carmel, Baron-Epel, & Shemy, 2007; Schnittker & because ranking their health high improves their general
Bacak, 2014) and of reinforced positive feelings about vitality sense of well-being. Also of note, research questions dealing
and well-being during the latter stages of the life cycle (Burns, with socially and emotionally delicate/sensitive issues may
Sargent-Cox, Mitchell, & Anstey, 2014). Its status as the leading lead participants to respond in a manner they believe is
explanatory variable for SWB in this study may also result expected of them according to conventional social norms.
from the ‘healthy’ population’s overall control and leadership Such social placation may even be intensified by the personal
of society (Deshen, 1996). In this context, a ‘healthy’ popula- interviews conducted with each participant. Finally, we used a
tion is one that is not stricken by severe physical disability unidimensional measure of overall SWB. However, there are a
such as vision impairment, deafness, and the like and is con- range of validated measures which operationalized SWB in
sequently considered healthy according to objective indica- various ways (Diener, 2009; Ryff & Keyes, 1995). Future
tors in a limited conceptual world. The personality-conceptual research should replicate our findings using other or prefera-
characteristic of the functional/psychological variable group bly multiple measures of well-being.
in explaining SWB may well reflect the supreme importance
of inner resources available to older adults for positive coping
with and adjustment to the harsh reality of major loss, such as
Practical implications
severe vision impairment. This feature is also discussed in
other studies that consider such components significant in All five variables found to explain SWB may assist locate older
the development of constructive coping strategies among adults most likely to experience low levels of SWB. Visual
people who experience loss, such as the death of a life partner therapists, social, and healthcare professionals should con-
during old age ( Malikson & Witztum, 2003). A positive con- sider these variables when evaluating coping skills, adjust-
ceptual ethos of overall good health, as well as a sense of con- ment, and rehabilitation as well as the extent of mental and
trol and significance in life, apparently attest to an physical vulnerability to the realities of life among the severe
accommodative means of coping, expressed in the institution visually impaired older adults. Programs and intervention
of inner changes regarding objectives, priorities and self-con- strategies should be tailored specifically for this population,
ceptions so that they conform with the disabilities and func- aimed at reinforcing their SWB. These programs should focus
tional setbacks experienced in their environment on strengthening the sense of mastery (control) and expand
(Brandtst€adter & Renner, 1990). Apparently, such adaptation the older adults’ variety to provide social support and assis-
is feasible for severe vision-impaired older adults who possess tance to others thus providing them with significant activity
mature defense mechanisms that help them improve given and reinforcement. Finally, it is also important to develop
situations in their everyday lives instead of expanding prob- informative programs for the public, focusing on the realities
lems out of proportion to the realities in which they occur of life and everyday needs of severe visually impaired older
(Vaillant, 2002). Unique and valued mechanisms of this nature adults living in the community. All of these implications
may keep people with objective disabilities – such as severe should be considered as tentative due to the cross-sectional
vision impairment – from feeling subjectively disabled. This design of this study.
AGING & MENTAL HEALTH 1235
functioning – the Rotterdam study. Archives of Ophthalmology, 119, Vaillant, G. E. (2002). Aging well. New York, NY: Little, Brown and Company.
1788–1794. Valentijn, S. A. M., Van Boxtel, M. P. J., Van Hooren, S. A. H., Bosma, H.,
Reyes-Ortiz, C. A., Kuo, Y.-F., DiNuzzo, A. R., Ray, L. A., Raji, M. A., & Markides, Beckers, H. J. M., Ponds, R. W. H. M., & Jolles, J. (2005). Change in sen-
K. S. (2005). Near vision impairment predicts cognitive decline: Data sory functioning predicts change in cognitive functioning: Results
from the Hispanic established populations for epidemiologic studies of from a 6-Year Follow-Up in the Maastricht aging study. Journal of the
the elderly. Journal of the American Geriatrics Society, 53(4), 681–686. American Geriatrics Society, 53(3), 374–380.
Ryff, C. D., & Keyes, C. L. M. (1995). The structure of psychological well- Verdugo, M. A., Prieto, G., Caballo, C., & Pelaez, A. (2005). Factorial struc-
being revisited. Journal of Personality and Social Psychology, 69(4), 719. ture of the quality of life questionnaire in a Spanish sample of visually
Ryff, C. D., Singer, B. H., & Love, G. D. (2004). Positive health: Connecting disabled adult. European Journal of Psychological Assessment, 21(1),
well-being with biology. Philosophical Transactions of the Royal Society 44–55.
B: Biological Sciences, 359, 1383–1394. Verstraten, P. F. J., Brinkmann, W. L. J. H., Stevens, N. L., & Schouten, J. S. A.
Sarvimaki, A., & Stenbok-Halt, B. (2000). Quality of life in old age described G. (2005, September). Loneliness, adaptation to vision impairment,
as a sense of well-being, meaning and value. Journal of Advanced social support and depression among visually impaired elderly. In
Nursing, 32(4), 1025–1033. International congress series (Vol. 1282, pp. 317–321). Elsevier.
Scheier, M. F., & Carver, C. S. (1985). Optimism, coping, and health: Assess- Wahl, H. W. (2013). The psychological challenge of late-life vision
ment and implications of generalized outcome expectancies. Health impairment: Concepts, findings, and practical implic ations. Journal of
Psychology, 4(3), 219–247. Ophthalmology, 2013, 1–11.
Schnittker, J., & Bacak, V. (2014). The increasing predictive validity of self- Wahl, H. W., Heyl, V., Drapaniotis, P. M., Hormann, K., Jonas, J. B., Plinkert, P.
rated health. PLOS One, 9(1), E84933. K., & Rohrschneider, K. (2013). Severe vision and hearing impairment
Smith, A., Young, A., & Lee, C. (2004). Optimism, health-related hardiness and successful aging: A multidimensional view. The Gerontologist, 53
and well-being among older Australian women. Journal of Health Psy- (6), 950–962.
chology, 9, 741–752. Williams, R. A., Brody, B. L., Thomas, R. G., Kaplan, R. M., & Brown, S. I.
Smith, J. (2001). Well-being and health from age 70–100: Findings from (1998). The psychosocial impact of macular degeneration. Archives of
the Berlin aging study. European Review, 9(4), 461–477. doi:10.1017/ Ophthalmology, 116, 514–520.
S1062798701000424 Zeltzer-Zubida, A., & Salpeter, T. (2008). Subjective well-being among peo-
The WHOQOL Group. (1998). Development of the World Health Organiza- ple aged 50 and up in Israel. Bitahon Sociali (Social Security), 76, 269–
tion WHOQOL-BREF quality of life assessment. Psychological Medicine, 290. [Hebrew]
28, 551–558. Zhang, X. L., Du, S. L., Ge, J., Chen, W. R., Fan, Q., Peng, S. X., … Liu, X.
Thomas, P.A. (2010). Is it better to give or to receive? Social support and (2009). Quality of life in patients with primary congenital glaucoma fol-
the well-being of older adults. The Journals of Gerontology Series B: Psy- lowing antiglaucoma surgical management. Chinese Journal of Oph-
chological Sciences and Social Sciences, 65B(3), 351–357. thalmology, 45(6), 514–521.
Ubel, P. A., Loewenstein, G., Schwarz, N., & Smith, D. (2005). Misimagining Zilberman, N. (2002). Psychological aspects and rehabilitation processes
the unimaginable: The disability paradox and health care decision for visually impaired elderly persons. In S. Kutner (Ed.), Sensory correla-
making. Health Psychology, 24(Suppl. 4), S57–S62. tion – sensory cessation (pp. 127–134). Jerusalem: Eshel. [Hebrew]