CLINICAL

DATA
REPOSITORIES
 Clinical Data Repositoíy Oveíview
https://www.youtube.com/watch?v=RxdSQKnqb5Q
CLINICAL D A ľA
REPOSIľORIES
 A Clinical Data Repository (CDR) is a systematically
structured and gathered “storehouse” of patient -specific
data, which is usually mirrored from a clinical
application, or supplemented with data from other
systems.
 Common kinds of available information in the CDR
are patient demographics, patient’s primary health
provider, medication list, allergies, hospital in-patient visits,
emergency department encounters, outpatient practice
visits, immunizations, diagnoses, procedures, laboratory
results, social history, and vitals.
CDR INľEGRAľION WIľH
HIS

 There are different levels of integration in the

CDR depending on the locations, indices,
catalogues, semantic translations or
equivalences, syntactic structures, and links to
external information.
 The integration structure from the CDR to the
information system in the laboratory may vary,
for example, may be different for radiology
and pharmacy department.
 TYPES OF CLINICAL DATA
REPOSITORIES
REPOSITORY TYPE DEFINITION

Study A database that collects observations for a specific clinical research study.

Electronic
Health A database of observations made as a result of direct health care.

Record
Observations collected and organized for the purpose of studying or guiding particular
Registry outcomes on a defined population. Associated studies are either multiple or long-term and
evolving over time.
A repository that adds levels of integration and quality to the primary (research or clinical)
Warehouse data of a single institution, to support flexible queries for multiple uses. Is broader
in
application than a registry.
A library of heterogeneous data sets from more organizations than a warehouse or more
Collection sources than a registry. Organized to help users find a particular data set, but not to query for
data combined across data sets.
A repository distributed across multiple locations, where each location retains control over
Federation access to its own data, and is responsible for making the data comparable with the data
Primary benefit of CDR - consolidating patient
information
Emil Gatus
Student
Number Name
of School
Disadvantage - CDRs are only integrated with clinical
Lesson 1
1.1 Definition of

data. Laboratory
Vision, Mission, Goals
and Objectives results, diagnoses, and
1.2 Comparison of
demographics might be available in one platform,
Vision and Mission
1.3 Purpose and
Inclusion of Vision
but overall patient satisfaction, the amount of time a
and Mission

patient had to wait before being treated, and other

Lesson 2
Lesson 3
Lesson 4

information not directly related to his care might be

Lesson 5
Lesson 6
Lesson 7
unavailable.
Lesson 8
Lesson 9
Lesson 10
Lesson 11
Lesson 12
Lesson 13
Multiple Views for Patient Medical Record
The structure of clinical data repositories
allows data to be extracted along dimensions
such as time (by year, month, week, or day),
location, or diagnosis among many others.
 Ball and Douglas (2013) enumerates the
following advantages of CDR:
Emil Gatus
Student
1. CDR
Number Name
of School provides longitudinal views of
patient information.
Lesson 1
1.1 Definition of
Vision, Mission, Goals
2. Capability to provide access to information when
and Objectives
1.2 Comparison of

needed.
Vision and Mission
1.3 Purpose and
Inclusion of Vision

3. Provides a cross-continuum view of information.

and Mission

Lesson 2
Lesson 3
Lesson 4
Lesson 5
Lesson 6
Lesson 7
Lesson 8
Lesson 9
Lesson 10
Lesson 11
Lesson 12
Lesson 13
DATA VISUALIZATION OF LABORATORY
RESULTS AND VITALS
Data visualization helps in simplifying a
wide array of information, and it allows
decision- makers to derive analytical results
from information presented visually.
Figure 13.1 Sample Blood Sugar Level Chart