SISTEM REGISTRASI KANKER DI

INDONESIA
(SRIKANDI)
dr. EVLINA SUZANNA, SpPA
KEPALA UNIT PELAKSANA FUNGSIONAL
DATA BEBAN KANKER NASIONAL
RS KANKER DHARMAIS
LATAR BELAKANG
JUMLAH POPULASI DAN PROPINSI DI INDONESIA (SENSUS 2005)

33 Provinces
218.086.288 Population
M : 109.613.519
F : 108.472.769
LAPORAN DATA KANKER DUNIA
 Section
Cancer
Surveillance
(CSU)
Dr. F. Bray

Section of Cancer Surveillance (CSU)

Support improved coverage and quality of cancer
registration, particularly in LMIC
Improve and expand reporting of
descriptive cancer statistics
Improve classifications to inform
cancer registration, research and
treatment

Support
Training Registry
Networking support and
Advocacy collaboration
Standards

Descriptive Dissemination
epidemiologic of global
research indicators

Person Place Time

Innovation




Collection
Analysis
Dissemination
Interpretation

GLOBOCAN 2008
Estimated age-standardized incidence and mortality rates
Men Women
Estimated age-standardized incidence and mortality rates
Men Women
INDONESIA, JAKARTA 2005-2007
INTERNATIONAL COMPARISON AND M/I RATIOS CI5 VOLUME X
(EDITORIAL TABLE 4)
GLOBOCAN 2012
 DEFINISI REGISTRASI KANKER MENURUT IARC-WHO :
THE MAIN OBJECTIVE OF THE CANCER REGISTRY
to collect and classify information on all cancer cases in order to
produce statistics on the occurrence of cancer in a defined
population
(mengumpulkan dan mengklasifikasi informasi dari semua jenis kanker agar
dapat menghasilkan statistik situasi kanker pada populasi yang ditentukan)

to provide a framework for assessing and controlling the impact of

cancer on the community.
 DEFINISI
Cancer registration :
Kegiatan pengumpulan, penyimpanan, pengolahan dan analisa
informasi tentang kasus kanker dalam suatu populasi/rumah sakit
untuk menghasilkan statistik keadaan kanker di suatu
populasi/rumah sakit serta menghasilkan kerangka kerja bagi
penanggulangan kanker. Registrasi kanker sebagai proses

Cancer registry :
Kantor atau institusi tempat dilaksanakannya kegiatan registrasi
kanker.
JENIS KEGIATAN REGISTRASI KANKER
Basis Defenisi Kekuatan Fungsi
Mencatat seluruh
Dapat dipakai untuk Fungsi terkait Manajeman:
1. Rumah Sakit kasus kanker yang
meningkatkan Sistem -Pelayanan kesehatan
HBCR berkunjung ke
Manajemen Rumah Sakit. -Administrasi
Rumah Sakit.

Data dasar dalam

Mencatat seluruh Fungsi terkait Kes Masy :
2. Populasi Perencanaan Pengendalian
kasus kanker yang - Survailens kanker
PBCR Kanker Kab/Kota, Provinsi,
berada di populasi - Pengendalian kanker
Nasional.

3. Registrasi Kanker Berbasis Organ Tertentu

4. Registrasi Kanker Berbasis Patologi
Mengapa harus
Registrasi Kanker
berbasis populasi?

Data kanker harus sesuai

standard Internasional
(WHO - IARC - IACR)
 KEGIATAN PENANGGULANGAN
KANKER
Visi & Misi Menurunkan angka
Kemkes/Dinkes kesakitan dan
Prov/ Dinkes kematian akibat
Kab-Kota kanker

Baseline / Angka dasar?

REGISTRASI KANKER VS LAPORAN RUTIN KANKER
Dilakukan rutin, dilaporkan periodik Dilakukan rutin bulanan/
(tahunan, 3-5 tahunan). Laporan triwulan, dilaporkan tahunan
berjenjang hingga Kemkes dan oleh instansi hingga Kemkes
WHO-IARC
1 kasus kanker mungkin
1 kasus kanker dicatat 1 kali dicatat oleh beberapa
sepanjang masa dilaporkan sarana kesehatan dan dalam
setelah tatalaksana selesai tahun berjalan
(timelines)
Tidak dapat distandarisasi dan
Data registrasi kanker berbasis dibandingkan dengan
populasi dapat distandarisasi dan negara/daerah lain
dibandingkan dengan
negara/daerah lain
1. Jensen O.M., Storm H.H.: Repoting of Results on Cancer Registration: Principle & Methods, IARC, 1991
STRUKTUR ORGANISASI KPKN
PERIODE 2015-2019.MENKES NO HK 02.02/MENKES/389.2
 PETA STRATEGI
PENANGGULANGAN KANKER NASIONAL
 PENGEMBANGAN REGISTRASI KANKER DI
INDONESIA
SK Menkes No HK.02.02/MENKES/410/2016 tentang RS Pelaksana Registrasi
Kanker dan RS Pusat Pengendali Data Beban Kanker Nasional

Pengumpulan Data Di 26 Kab/Kota Dengan 14 Rs Rujukan Nasional Sebagai Pusat Pengendali Data di Masing-
masing Regional
SITUATIONS OF INDONESIAN NATIONAL CANCER REGISTRY SYSTEM
REFERRAL HOSPITAL DECREE OF GOVERNOR OR DECREE IN HOSPITAL
No PROVINCE AS REGIONAL CANCER PROVINCE HEALTH ONCOLOGY REGISTRY
REGISTRY DEPARTEMENT TEAM TEAM
RSUP ADAM MALIK
1 NORTH SUMATERA - v v
MEDAN
RSUP. DR. M . DJAMIL
2 WEST SUMATERA - v v
PADANG
RSUP. Dr. MOH. HOESIN HEALTH 445/201/SK/
3 SOUTH SUMATERA v v
PALEMBANG DEPT Kes/V/2016
HEALTH
4 JAKARTA RSCM 82 tahun 2017 v dalam Tim Onko
DEPT
5 WEST JAVA RSUP. Dr. HASAN SADIKIN - v v
6 CENTRAL JAVA RSUP. Dr. KARIADI - v proses
HEALTH 440/2143/KPTS/10
7 EAST JAVA RSUD. Dr. SOETOMO v v
DEPT 1.4/2016
HEALTH
8 JOGJAKARTA RSUP. Dr. SARDJITO v v
DEPT
2004/03-
9 BALI RSUP. SANGLAH GOV v v
B/HK/2016
10 WEST KALIMANTAN RSUD. Dr. SOEDARSO - v v
11 EAST KALIMANTAN RSUD. AW SYAHRANI - v v
RSUP. PROF. DR. R. D
12 NORTH SULAWESI - v dalam Tim Onko
KANDOU
RSUP. DR. WAHIDIN
13 SOUTH SULAWESI - v v
SOEDIRO HUSODO

14 PAPUA RSUD DOK II JAYAPURA - - v

INDONESIAN CANCER INCIDENCE DATA 2008-2012
(PER 31 JULI 2017)

Incidens by Crude Rate for cases that diagnosed at 2008-2012

CHILDHOOD INDONESIAN CANCER CASES
(PER 31 JULI 2017)

Jumlah Kasus Tahun 2008-2012

JAKARTA BARAT CANCER INCIDENCE DATA 2008-2012
(PER 31 JULI 2017)

Incidens by Crude Rate per year for cases that diagnosed at 2008-2012
SUMMARY OF APPLIED INCLUSION CRITERIA FOR COMPARABILITY AND QUALITY OF DATA IN
VOLUME IX
Group A Group B Group C Group D
Complete Coverage No Access to Death Certificates No ad hoc study of Data with < 2 years
Completeness
Death reporting meets WHO Official Mortality data not available by cause, No Death Clearance as source DCO > 20 %
recommendation or poor quality of cause of case finding % Unk > 20 %
Ill-defined site > 20 %
Overall MV % < 75 %
% Unk < 10 % 10 % < % Unk < 20 % MV % too high (99-100%)
DCO < 10 % 10 % < DCO < 20 % No Officially Mortality Data MV% low for selected site
Ill-defined site < 10 % 10 % < Ill-defined < 20% M/I threshold by site
MV % > 80 % 10 % < Age Unk < 20 %
DCO 0,0 % (no DCOs)* 75 % < MV % < 80 %
No abrupt trends, cases MV % but C22** Implausible incidence rates;
Denominator OK MV % but C91-95** Specialized registries, e.g. childhood,
mesothelioma

DCO : Death Certificate Only Unk : Unknown MV : Morphologically Verified

* No DCO cases due to complete trace back for the DCN cases; ** C22 : liver cancer; C91-95 : leukemia

Data quality of Jakarta Cancer Incidence

PSU : 2.58% Group B or C
DCO : 2.39% No official
Ill-defined site : 0.72% Mortality data
Age unknown : 0.27%
MV : 76%
MEMBANGUN REGISTRASI KANKER

1. ASPEK HUKUM
2. ASPEK MANAJERIAL
3. ASPEK TEKNIS (DALAM MATERI LAIN)
ASPEK HUKUM
REGISTRASI KANKER
 2008
Decree of Minister of Health
Under 2 DGs:
Number 1068 / Menkes / SK / XI / 2008
- DG of Health Effort Care (HEC)
- Directorate Referral HEC
ESTABLISHING OF NATIONAL CANCER REGISTRY
- DG of Disease Control and Environmental
JAKARTA AS PILOTING and DHARMAIS NCC as a
Health
NATIONAL CANCER DATA CENTER - Directorate NCD

2014
Result: Decree of Minister of Health
Submit to CI5 Vol X : quality below standard Number HK 02.02/MENKES/389/2014
Globocan 2012 : data kualitas F (frekuensi)
NATIONAL CANCER CONTROL COMMITTEE
Visi 2019: Komite Penanggulangan
Menurunnya Angka Kesakitan dan Angka Kematian Akibat Kanker Nasional (KPKN)
Kanker di Indonesia

Tersedianya sistem IT dan registrasi kanker

 List of areas who represent Indonesia for National Cancer Data

There are 14 National Referral Hospital in 14 Provinces in Indonesia -> represent 14% of total population
Kepmen No. HK.02.02/Menkes/390/2014 Defined Population of PBCR
WILAYAH PENGEMBANGAN REGISTRASI
KANKER NASIONAL
 Sistem Jejaring pada Registrasi Kanker Nasional
Di 14 Rumah Sakit Rujukan Nasional di 14 Provinsi
Sebagai Model Daerah Urban dan Rural di Indonesia
ASPEK MANAJEMEN
REGISTRASI KANKER
 LATAR BELAKANG
Prinsip Sistem Registrasi Kanker:
Ada kantor : cancer registry
Ada proses : cancer registration
Berkesinambungan

Prinsip data beban kanker nasional : mempunyai kualitas data sesuai

standard WHO-IARC-IACR
Prinsip PBCR : ada populasi tertentu (defined population)
FUNGSI MANAJEMEN

1. Fungsi Perencanaan
2. Fungsi Pengorganisasian
3. Fungsi Pengarahan dan Implementasi
4. Fungsi Pengawasan dan Pengendalian

Koordinasi KPKN-Kemkes (PPTM-Yankes)-RSK

Dharmais dan RS Rujukan Nasional

POAC menurut George R. Terry

9.2. PELAPORAN DATA REGISTRASI KANKER DI REGIONAL/WILAYAH KERJA
ORGANISASI TERKAIT REGISTRASI KANKER
NASIONAL DAN INTERNASIONAL
WHO IARC IACR UICC-IAEA-APCC

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