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Health Psychology

An Interpretative Phenomenological Analysis of Participation in a Pro-anorexia


Internet Site and Its Relationship with Disordered Eating
Ruaidhri Mulveen and Julie Hepworth
J Health Psychol 2006 11: 283
DOI: 10.1177/1359105306061187

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An Interpretative
Phenomenological
Analysis of Journal of Health Psychology
Copyright © 2006 SAGE Publications
Participation in a London, Thousand Oaks and New Delhi,
www.sagepublications.com
Pro-anorexia Vol 11(2) 283–296
DOI: 10.1177/1359105306061187

Internet Site and Its


Relationship with
Disordered Eating
Abstract
Pro-anorexia Internet sites aim to
promote, support and discuss
RUAIDHRI MULVEEN anorexia nervosa. Media coverage
Queen Margaret University College, UK has raised concerns that sites may
increase the level of eating
JULIE HEPWORTH disorders. This research examines
Argosy University, USA the meaning of participation in a
pro-anorexia Internet site and its
relationship with disordered eating
by using an interpretative
phenomenological analysis of
fifteen separate message ‘threads’
followed over a six-week period.
Four themes were identified:
(1) tips and techniques; (2) ‘ana’ v.
anorexia nervosa; (3) social
support; and (4) need for anorexia.
Findings suggest participation was
multi-purpose, providing a coping
function in relation to weight loss,
and the contribution of sites to
AC K N OW L E D G E M E N T S . This article is based, in part, on earlier
increased levels of eating disorders
graduate research conducted by Ruaidhri Mulveen and supervised by is not inevitable.
Julie Hepworth at Queen Margaret University College, Edinburgh.
The authors thank the pro-anorexia Internet site community in this
study, and particularly the participants who gave their consent for
extracts to be quoted, for their co-operation. Thanks also to the
anonymous reviewers for their comments. Queen Margaret University
College, Edinburgh is gratefully acknowledged for providing ethical
approval for the research.

COMPETING INTERESTS: None declared.


Keywords
■ computer mediated conversation
ADDRESS. Correspondence should be directed to:
J U L I E H E P W O RT H , Department of Psychology, Argosy University,
■ eating disorders
SFBA, 999-A Canal Boulevard, Point Richmond, California, 94804, ■ Internet
USA. [email: jhepworth@argosyu.edu] ■ pro-anorexia
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JOURNAL OF HEALTH PSYCHOLOGY 11(2)

IN RECENT years the Internet has emerged members evade detection by clinicians. Motiva-
from obscurity to become interwoven with the tional images, ‘creeds and commandments’
fabric of people’s social life. Internet mediated known collectively as ‘thinspiration’, encourage
communication has become more popular due continued weight loss. ‘Support groups’ and
to the increasing ease of use, decreasing cost and online discussion boards foster competitions
the ability of Internet mediated communication and act as a forum for people to reinforce and
to cross large distances (Joinson, 2003). The use encourage weight loss (Chesley, Alberts, Klein,
of the Internet as a social support and interper- & Kreipe, 2003). Recent negative media cover-
sonal tool has arisen for several reasons. Online age of these sites has increased (see Reaves,
support seeking is associated with the social 2001), but, in spite of this, research and anec-
burden of a disease, and the anonymity provided dotal evidence from owners of pro-anorexia
by the Internet is one reason for seeking support sites report that negative press coverage actu-
online (Davidson, Pennebaker, & Dickerson, ally increases site activity suggesting that the
2000). In contrast to face-to-face support this curiosity value of ‘deviant’ sites may drive up
anonymity offers users of legitimate sites dedi- site traffic and consequently expose greater
cated to health problems that have a social numbers of people to unhealthy weight-control
stigma a place to explore their experiences, behaviours (Moore, 2001).
concerns and questions with a sense of personal The ability to seek social support on the Inter-
safety. A second benefit is finding others in a net can provide an invaluable buffer to stresses
similar condition; ‘feeling I am not alone’ is a faced in everyday life. However, Internet
significant benefit of online support groups communities can also lead to the demarginal-
(Joinson, 2003). Third, there may be physical and ization of identities online (McKenna & Bargh,
mental health benefits to disclosing emotional 1998), whereby participation in online
problems online (Stone & Pennebaker, 2002). communities leads to users feeling less
Finally, online support groups act as a means of estranged from society. If the identity in ques-
providing information and generating varied and tion is potentially dangerous then the experi-
numerous solutions to problems (Joinson, 2003). ence of support online may lead to the
The increased use of the Internet as a medium demarginalization and legitimization of nega-
for support groups combined with the somewhat tive, harmful behaviours. Previous research has
anarchic freedom inherent to the Internet allows explained some of the interactive processes
for the creation and growth of online pro- between the Internet and members in relation
anorexia Internet sites. to theories of group dynamics. An Internet
Pro-anorexia Internet sites are a genre of setting is most likely to cause a strong tendency
website which aspire to promote, support and towards group polarization when the members
discuss anorexia nervosa (Dias, 2003). Common of the group feel some sense of group identity
features include bulletin boards and chat as group polarization relies on group influences
rooms, diaries, tips and tricks, trigger pictures, and the tendency to conform and compare one’s
‘thinspirations’ and links to other pro-anorexia own views to those of others around you
sites in the form of web rings (Dias, 2003). It is (Spears, Russell, & Lee, 1990). Wallace summar-
routine for sites to proclaim ‘Anorexia is a izes this effect:
lifestyle, not a disease’, and have developed
their own terminology. For example, anorexia is Interacting with a small subset of like-minded
spoken of as ‘ana’ (often described as others our framework for social comparison
metaphors such as ‘Friend’, ‘Enemy’, ‘Saint’ or could become rather warped. We could
‘Goddess’) and bulimia is written in shorthand quickly acquire an exaggerated perception of
as ‘mia’ (Dias, 2003). Owners describe their the rightness of our views because we found
sites and community members as being ‘pro- others who not only agree with us but who are
ana’, with the most common aspect of pro-ana even further out on the attitudinal limb. Inch
sites being the provision of specific instructions by inch we would move out on the limb
for initiating and maintaining anorexia nervosa. ourselves—towards the polarized extreme—
Clinical definitions of anorexia nervosa and with the support of like-minded others.
other eating disorders are detailed to help Goodbye moderate voice. (1999, p. 79)
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However, these approaches do not take into social acceptance, dietary restriction for weight
account that receivers of information are not loss is often considered ‘normal eating’ (Hagan,
necessarily passive recipients that are simply Tomaka, & Moss, 2000). Hagan et al. report that
‘influenced’ by media and/or group dynamics. ‘normal’ dietary restraint shares symptoms of
Rather, participants in websites are also actively deterioration with eating conditions modelled
creating, changing and making sense of their after famine and wartime prison camps. Exces-
social worlds. sive dieting and unhealthy weight-control
Another concern is that adolescents increas- behaviours such as meal skipping, laxative use
ingly use the Internet as a primary source of and self-induced vomiting were reported by 57.5
health information (Chesley et al., 2003). In a per cent of adolescent girls and 32.8 per cent of
comparison of site contents and demographics adolescent boys in a representative sample of
of pro-anorexia Internet sites and pro-recovery 4746 adolescents from urban and suburban
sites Chesley et al. found that pro-ana sites are areas (Neumark-Sztainer, Wall, Story, & Perry,
better organized, comprehensive, visited more 2003). Such unhealthy weight-control behav-
often and more numerous than sites based on iours particularly put youth at risk for
recovery or professional services. Pro-ana sites nutritional, physical and psychosocial difficulties
had a mean of counted visits of 34,988 whereas and may be precursors to clinical eating
pro-recovery sites had a mean count of visits of disorders. College women who believe that
27,878. Where age information was available other women are smaller in terms of body mass
the average age of visitors to pro-ana sites was index than they actually are and have a thinner
16.7 years. Given that the typical age for the ideal body shape than they actually do demon-
onset of eating disorders is between 14–18 strate more symptoms of anorexia (Mutterperl
years (American Psychiatric Association, 2000) & Sanderson, 2002). Thus, if an individual
there is cause for some concern if adolescents perceives that they have a larger body weight
begin to use these sites as their primary source than their family and peer group, and if it is the
of health information with regard to weight- norm in their peer group to undertake
control. However, research on pro-anorexia unhealthy weight-control measures, then they
is scarce with only rare accounts, such as work are more likely to perform these unhealthy
by Dias (2003), of the nature and content of weight-control behaviours. It is possible that by
pro-anorexia websites, making it difficult to participating in a pro-anorexia Internet setting
state the effects that taking part in such sites where these behaviours are discussed and
has on the onset and progression of eating encouraged as the norm such sites could
disorders. contribute to increased levels of disordered
eating.
While the examination of media representa-
‘Normal’ dieting versus
tions of health and illness is valuable for health
eating disorders
psychology (Lyons, 2000), there is scarce
A number of theories and approaches to eating research on pro-anorexia sites or site partici-
disorders exist, as well as conflicting perspec- pation, particularly from a qualitative perspec-
tives on the aetiology and treatment of anorexia tive. Rather, the relationship between media
nervosa, particularly between feminist and and eating disorders has largely been examined
medical literature (Hepworth, 1999; Hepworth using quantitative studies that demonstrate
& Griffin, 1995). Most relevant to this study is correlations between exposure to thin-ideal
research that focuses on dietary restriction and media, greater body dissatisfaction and eating
its relationship with anorexia nervosa and the disorder symptomatology (see Harrison, 2000;
phenomenon of pro-anorexia. A recent study Lokken, Worthy, & Trautmann, 2004), or
reinforces the notion that eating disorders exist through feminist theorizations of the media and
along a spectrum and that many people present sociocultural constructions of subjectivity
with sub-clinical symptoms of eating disorders around the body (see Bordo, 1993; Hepworth,
but that this distinction is not captured by the 1999). It is both the concern that the pro-
criteria used to classify anorexia nervosa (Korn- anorexia Internet setting could contribute to
dorfer et al., 2003). Due to its prevalence and increased disordered eating and the need for
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JOURNAL OF HEALTH PSYCHOLOGY 11(2)

greater understanding about the phenomenon Structure of the Internet site


of pro-anorexia sites more generally that under- The discussion board under study consisted of
lies this research study. Given the dearth of 16 separate forums, each dealing with a differ-
research in this area the present study aimed to ent facet of pro-anorexia. These included an
explore the meaning of participation in a pro- introduction, a ‘tips ’n’ tricks’ section for advice
anorexia site and its relationship with dis- on how to lose weight, an articles section where
ordered eating. members post weight loss and eating disorder
related newspaper/magazine articles and a
forum where members post diary-like reports
Methods
and are encouraged to ‘use this section to
Interpretative phenomenological analysis record your own personal progress with your
(hereafter IPA) was employed to explore indi- ana’. The latter was the most popular section of
viduals’ experiences of participating in a pro- the site with the largest amount of messages
anorexia Internet site. In contrast to many posted.
other qualitative approaches, such as discourse
analysis (see Potter & Wetherell, 1987) or Sampling
grounded theory (Glaser & Strauss, 1967), In general, data collection and sampling in IPA
which only implicitly theorizes the role of is based on purposive sampling, where partici-
cognition, IPA centres on the links between pants’ accounts are selected with the criteria of
participants’ talk, cognition and behaviour relevance to the research question (Willig,
(Smith, 1996). Although, IPA does share with 2001). Data collection and analysis occur
discourse analysis a focus on texts, and as Smith concurrently, and the eventual sample size is
(1996) argues, is able to mediate between the determined by the quality of the data collected.
opposed positions of quantitative social cogni- The present sample was based on the pragmatic
tion and qualitative discourse analysis (Smith, principle of attempting to gain as rich an under-
1996). Further, IPA lends itself well to applied standing of a pro-anorexia Internet site with a
psychological research because it shares with degree of internal coherency within a practical
the social cognitive paradigm; ‘a belief in, and time limit because the study was conducted as
concern with, the chain of connection between part of a graduate research programme. There-
verbal report, cognition, and physical state’ fore, this study consisted of the analysis of
(Smith, Jarman, & Osborn, 1999, p. 219). Where several information-rich postings to a web-
the role of cognition is important to this based pro-anorexia Internet message board
research is in relation to; ‘IPA’s commitment to made by a selection of different authors. When
the exploration of meaning and sense-making’ sampling began, the site had a total of 15,519
(Smith & Osborn, 2003), whereby a greater messages and 1060 registered users. Due to this
emphasis is placed on the structuring of experi- large potential data pool the present study
ence. Finally, while there are few examples of utilized an emergent opportunity sampling tech-
the use of IPA in researching Internet data, it is nique, which allows flexibility to take advantage
now emerging (see, for example, Murray, 2005) of new opportunities as they arose during data
against a backdrop of the main form of data collection (Patton, 2002). The underlying prin-
collection for IPA studies being semi-structured ciple of this sampling technique is to select
interviews (Smith, 1996; Smith et al., 1999). IPA information-rich cases, i.e. ‘cases from which one
was chosen as it works with any texts generated can learn a great deal about matters of import-
by participants such as diaries or other personal ance and therefore worthy of in-depth study’
accounts (Willig, 2001). Internet mediated (Patton, 2002, p. 242). This resulted in the collec-
communication, as a hybrid cross between tion of 15 separate message ‘threads’ collected
written and spoken communication (Mann & over a 6-week period from the various subsec-
Stewart, 2000), and particularly Internet tions of the Internet site. Message threads
discussion/message forums which contain consist of an original topic posted to the
diary-like postings, are essentially texts gener- message board underneath which there are
ated by people in a naturalistic environment other members’ replies to the first message.
and are amenable to analysis via IPA. Each of the message threads collected ranged in
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size from 9–32 pages when entered into a word anonymity as Internet search engines may be
processor document. able to retrieve the original message, including
the email address of the sender (Eysenbach &
Ethical considerations Wyatt, 2002). Due to these factors, it was
The ethics of research on the Internet raises a decided to keep the Internet community under
variety of questions, due in part to the relative analysis anonymous. Informed consent was
novelty of the medium (Mann & Stewart, 2000). sought from all participants directly quoted in
The present research considered seven different this study. In order to ensure that the anonymity
factors in relation to ethical online qualitative of those quoted could be preserved the ability
research as proposed by Eysenbach and Till of two popular Internet search engines to
(2001). These include intrusiveness of research, retrieve entire messages from the website based
i.e. is the research passive or does it involve an on a quotation was checked. Before data were
element of participant-observer; perceived collected, random phrases taken from messages
privacy of the site, i.e. is access to the site depen- posted to the site under study were entered into
dent on membership or password; vulnerability the search engines and checked to see if this
of the group; potential harm any research may allowed anyone to back trace the quotations to
cause; informed consent; confidentiality; and the website and thus lead to potential breaches
intellectual property rights. of confidentiality. For example, a phrase was
The non-reactive study of public message taken from a message on the website such as, ‘I
boards contained on pro-anorexia websites can exercised for two hours today and then went
be compared to naturalistic observation of a into town’, was entered into the search engine
public space. In the context of Internet-based and the results checked to see if the original
research, the expectation of the individual about source message returned as one of the results.
whether she or he can reasonably expect that no Results of these searches did not include the
observation is taking place is crucial (Eysenbach original source message or website. Thus, the
& Wyatt, 2002). As public message boards are anonymity of members who gave permission to
open to anyone with Internet access, the study be quoted in the study and of the particular site
of this Internet medium does not raise concerns cannot be breached by attempts to back trace
of invading privacy, which the study of more the quotations to the original messages using
private forms of Internet communication such Internet search engines. Members were
as email, might. In practice, obtaining informed informed of this safeguard to protect their
consent is difficult as any announcement to a anonymity if they took part in the study, in
group of that group being analysed may influ- addition to the fact that the name of the website
ence or spoil the results and the mere posting of or any member’s name, pseudonym or real,
such a request, which may disrupt or disperse would not be reported in the study. Taking into
the community, could be considered to be account these ethical considerations the
unethical (King, 1996). However, it was decided research obtained institutional ethical approval.
that, on balance, notifying the group and site
owner by sending a message detailing the exact Analysis
nature of the study was preferable in order to The aim of IPA is to explore the participants’
avoid any possible perceptions on the part of view of the world and to adapt as far as possible,
this web community that they had been an insider’s perspective (Smith, 1996), recog-
observed for research purposes covertly. This nizing that the research exercise is a dynamic
message also informed all new site users of the process (Smith et al., 1999). Access to the partici-
ongoing study. pants’ subjective world view depends on and is
Problems of maintaining individuals’ complicated by the researcher’s own concep-
anonymity can arise from just citing the name of tions which are required in order to make sense
the online community, in addition to potentially of others’ personal worlds through a process of
damaging the online community as a whole interpretative activity (Smith, 1996). IPA there-
(Eysenbach & Wyatt, 2002; King, 1996). The fore requires the qualitative inquirer to be atten-
process of quoting the exact words of a partici- tive to and conscious of the cultural, political,
pant in an Internet community may endanger social, linguistic and ideological origins of one’s
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JOURNAL OF HEALTH PSYCHOLOGY 11(2)

own perspective and voice as well of as the their permission for their extracts to be quoted.
perspective and voice of participants (Patton, The analysis itself is based on a substantial
2002). IPA can be evaluated with regard to how number of messages posted by a larger number
it addresses the interpretative nature of the of individuals. The following extracts are illus-
analysis, such as recognizing that the researcher’s trative of the themes that were identified from
perspective and position have shaped the data that were both more extensive and richer
research, and by assessing how successfully in detail. To protect the anonymity of the partici-
grounded the researcher’s observations are in pants quoted they are referred to by a single
the contexts that have generated them (Willig, identifying letter which has no connection to
2001). Consequently, reliability and validity are any name or pseudonym used online. The four
intrinsically linked with the broader epistem- major themes that emerged were: (1) tips and
ology of this form of qualitative research. The techniques; (2) the distinction between ‘ana’ and
framework for reliability and validity was based anorexia nervosa; (3) social support; and (4) the
on work by Silverman (2000) whereby the need for anorexia. These four themes provided
reliability of this research was strengthened by the framework for the site under analysis and
documenting the stages of analysis, agreement the outline of the analysis section.
between two researchers about data interpret-
ation that had been previously analysed inde-
Theme 1: tips and techniques
pendently and deviant-case analysis to
contribute to the validity of the findings. Pro-anorexia site participants routinely
The analysis was based on the recommen- reported their attempts to lose weight in diary-
dations of Smith et al. (1999), who suggest two like entries. Dietary restriction and special fasts
methods of analysis in IPA. The first option is to were primary weight loss methods that partici-
generate a list of master themes from the first pants discussed on the board. Participants L and
case, and then to supplement this master list M illustrate fruit-based diets:
with further themes as the analysis is continued
with other cases. The second option is to gener- I’ll be drinking water, taking occasional diet
ate a new master list of themes for each indi- pills, and drinking some licorice or mint tea,
vidual case. The latter approach was used, as it and when I’m finished fasting I’ll subsist on
was felt that it would allow for greater flexibility 1
⁄2 a watermelon without eating the seeds, and
for themes to emerge from the data and be then gradually work up to a higher water-
understood. The data were read twice initially to melon intake, or possibly eat some other raw,
find themes expressed by members of the pro- fresh foods if my body wants me to, but
anorexia community. Themes were listed and nothing over 1050 calories unless its pure
connections between themes were searched for, watermelon. (Participant L)
with frequent checks to the data transcripts to
ensure the connections remained close to the Today and tomorrow I am fasting. Monday I
primary source materials. A master list of start the grape diet, and I’m thinking of doing
themes was produced for each individual case it 2468. (Participant M)
and themes for which there was little evidence
were dropped from the analysis. Analysis in IPA Here 2468 refers to calorie intake per day, i.e.
is a dynamic and cyclical process (Smith et al., 200 calories the first day, 400 the second day, 600
1999) so each stage involves checking and re- the next and 800 the last day. Calorie counting
checking earlier transcripts for evidence of was an intrinsic element of messages related to
themes found in later transcripts and to ensure food and fasting. Discussion also centred on the
that as many themes that there were evidence use of diet pills, herbal remedies and caffeine
for were identified. Text extracts that examined use as methods to increase potential weight loss.
these themes were re-examined to ensure they Reports of exercise behaviours were also
best represented the theme in question. discussed. The following two extracts from
The following extracts come from six differ- participant E illustrate how both completed
ent members, five female and one male, of the exercise activities and an inability to exercise
pro-anorexia Internet site under study who gave were discussed:
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Well, I didn’t work out today, which wasn’t to have become ‘85 or the fast continues’.
entirely my fault because I was busy running (Participant M)
around doing errands all day. Besides, I was
wicked sore from yesterday at the gym. However, the emphasis on a decreasing weight
goal did not appear to be as a result of prompt-
Burnt about 600+ calories today. Spent 1.5 ing or pressure for increased weight loss from
hours at the gym: 40 minutes EFX—resist- other members of the community. On the
ance pumped up to 8; jogged 30 minutes; did contrary, posting to the site functioned as an
weights focusing on triceps today. Also attempt openly to confront and stop the behav-
stretched. When I got home I did tons of abs iour from getting out of control. Participant M
stuff and general be-bopping around my continues:
room. I had an over-abundance of energy. It
was great! Today I am VERY SORE from my That part, I think, is why I’m having to get
workout—a very good kind of sore, the kind honest with myself about the goal sliding
that tells me that I actually DID something! down. Like I said, I’m recognising that
(Participant E) compromise is necessary—80 to 90 pounds
may be very feasible for me at 5ft 4 but
The members of this online community the longed-for 50–60 probably isn’t. (Partici-
shared the aims of having a weight goal, an ideal pant M)
weight and body appearance. As well as being
included within the content of discussions, The passing on of ‘tips and techniques’ created
members displayed their weight goals at the end discussions in which members participated in
of each of the messages, and often combined both the provision of information and
with their current weights, highest weights, emotional expression of the use of weight loss
lowest weights and heights. An individual’s goal and exercise practices. Participant M describes
could be stated in a number of different ways, her special ‘grape diet’ and plans for its imple-
from an ‘objective’ weight, to a clothes size, a mentation, that together with later extracts
more abstract ambition such as ‘perfection’, or about weight goals, illustrate the depth of
to feel less anxious about their body image as in emotional struggle living through intense
the goal of participant E: ‘To be able to look in relationships with food, weight and exercise. The
the mirror and not cry any more—to look and management of emotions included descriptive
feel proud.’ elements that told other members what activi-
Weight goals did not remain static, and could ties were useful to weight loss as well as the
continually decrease as illustrated in the extract written expression of internal dialogues that
by participant M: participants, such as M, held with themselves to
make sense of feelings about the extent to which
I feel compelled to add this post-scriptum for they were in ‘control’ and being ‘honest’ with
the sake of honesty. After all, I am claiming to themselves. Clearly, what are described as
be in control of this thing and that is the basis ‘honest’ and unguarded discussions reflect the
on which I’m gearing up to fight if need be. I website as a safe place to express openly
have to point out to myself in this open space relationships with food, bodies and weight loss,
that when I left the treatment center my goal without fear of recrimination and stigma that
weight was 90. It went down to 70 and then I could be invoked in more public spaces.
recognised that that didn’t stand a chance. So
then I tried to tell myself that less than 90
Theme 2: ‘ana’ vs anorexia
wasn’t reasonable. Now I notice that my goal
nervosa
for my birthday has become 85 and my
bottom limit 80. I just have to notice that. I Members of the pro-anorexia community under
know that the 85 is in order to have a bit of a study distinguished between two different types
‘cushion’ in case I gain a bit when I try to start of anorexia nervosa. The first, commonly called
maintaining. But it’s interesting that rather anorexia nervosa, refers to the psychiatric diag-
than the goal being ‘90 maximum, preferably nosis of anorexia nervosa as a mental illness. The
85 to be on the safe side’, in my head it seems second type, referred to as ‘ana’, represents
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JOURNAL OF HEALTH PSYCHOLOGY 11(2)

anorexia as a lifestyle choice; an extreme I didn’t choose to be like this, I know plenty of
method of weight loss that deliberately uses others who also didn’t choose. (Participant K)
similar techniques as those used by individuals
This distinction between the two types of
with anorexia nervosa. Participant E writes
anorexia, and particularly the promotion of the
about choosing ‘ana’:
‘anorexia as a volitional lifestyle choice’ was
So, I’m at around 170 lbs and I have a BMI of often backed up with challenges to medical and
31.5. As I’m sure all of you know, that’s clini- health authorities, and comparison with the
cally OBESE . . . So why am I here? Because earlier psychiatric discourse that defined homo-
I REALLY REALLY REALLY want to be sexuality as a mental illness:
. . . So basically I’m choosing Ana over death. . . . doctors/food authorities/etc. that tell us we
(Strange, huh?) But I honestly KNOW in my need to eat so much of this and so much of
soul that I will kill myself someday if I don’t that turn around ten, twenty, thirty years later
start making steps to become thin. This is and tell us that we need to ‘lose a few pounds’
NOT a diet to me, but a way of life. In my and ‘take these pills’ for the rest of our lives!!
world, I have no control over anything in my It’s a money-making scheme so I’m NOT
life—not my friends, not my boyfriend, not inclined to believe all of the so-called ‘health’
the clothes I wear (cuz you can be damned advice that’s printed by the medical or food
sure I don’t CHOOSE to be a size 14), and authorities. (Participant A)
definitely not food. I WANT CONTROL. I
will LEARN to have control. I will BE in Once upon a time homosexuality was
control. I will never feel lost or in a frenzy considered a mental illness or aberration.
ever again. (Participant E) There was even a set diagnostic criteria for it
in the DSM manual. Then gays and lesbians
The ‘two types’ were distinguished by the began to fight for their civil rights and to
perceived degree of control and choice indi- educate society that theirs was a lifestyle
viduals had over eating patterns. ‘Ana’ was choice and ought to be accepted as such.
presented as being in control and aware. For (Participant O)
participant E because ‘ana’ is a choice it is also
For members with clinically diagnosed eating
self-empowering and psychologically healthy,
disordered anorexia nervosa the community
whereas anorexia nervosa was described as a
served as a means of avoiding recovery while
mental illness. Participant O, the founder of the
managing their low body weight. Participant M
site, writes about how ‘ana’ represents free will,
writes how the site is used by individuals with an
and the ability to choose a course of action that
eating disorder: ‘The reality is that on this board
is independent of others. The significance of
there will be a lot of people who have EDs and
choice in ‘ana’ is also emphasized by participant
want to manage them sensibly or at least get
T, contrasting with participant K, who has
some understanding/support/reality checks
anorexia nervosa:
from trustworthy sources.’ Alternatively, those
To me self-direction implies health. Not stub- who identified as being ‘ana’ used the
bornness or willfulness, mind you—anyone community as a resource for a severe dieting
disordered (obsessed) can appear very strong lifestyle: ‘Coming here and learning how to
in will as a result when it is mere stubbornness “extreme diet” safely I consider ana, not
born from obsession and fear—but the ability anorexia’ (Participant K).
to examine something from all angles (or as However, for some members no matter how
many angles available to one’s mind are out their experiences and actions in relation to their
there to be examined) and consciously choose bodies, food and weight loss were labelled, their
one’s own course. Self-direction and self- ultimate reason for use of pro-ana sites reflected
government are markers of independence an inner emotional turmoil. As one male
and psychological health. (Participant O) member of the pro-ana community, participant
L explained: ‘While I can fully justify fasting for
But it is a choice! It is our choice. Ana is our health reasons at this point, I know that there
lives, our lifestyle. (Participant T) exist within me plenty of somewhat flawed,
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purely emotional and psychological reasons for Theme 3: social support


doing this.’ This distrust of medical authority
Members of this online community frequently
was often combined with a sense of disgust at
wrote about the emotional support that they
the levels of overweight and obesity and eating
experienced by being part of the group. Support
patterns commonly encountered in western
was both requested and provided in various
society:
ways focused on weight loss, exercise and food.
Americans (in particular) are soooo fat Having the freedom to talk about eating
because of our SAD [Standard American disorders was seen as an advantage of pro-
Diet] eating habits. (Participant A) anorexia sites due to the stigma associated with
eating disorders in ‘real life’:
The ‘normal’ eating patterns, as well as the
‘normal’ weight (and patterns of thought and I’m starting a new ‘regimen’ today and will
logic, really) in western society are quite feel good to witter about it in a safe place.
flawed. (Participant L) Sure as hell can’t tell anyone in ‘real life’.
(Participant M)
The challenges to and distrust of medical
authority and nutrition advice and disgust with For me it represents a secret society which I
western levels of obesity drew on powerful ways am so glad to be a part of. (Participant K)
to justify extreme dieting practices. To some The personal freedom experienced by partici-
extent, by challenging dominant institutions and pants when talking about eating disorders is
culture participants normalized their own reinforced by the website itself being under-
understandings and explanations of their prac- stood by participants as a ‘safe place’ or ‘secret
tices even though simultaneously they remain society’. The site enabled participants, such as
the socially marginalized group. M, to disclose issues related to her eating dis-
The division of anorexia nervosa into ‘ana’ as order that she felt could not be disclosed in any
a lifestyle choice and a mental illness was other setting. This sense of safety and freedom
actively created by participants as a major struc- in relation to pro-anorexia sites is further
turing of the site for users to identify with as emphasized by participants’ views of the site as
being ‘ana by choice’ or ‘eating disordered being a private, exclusive group.
anorexic’, or existing somewhere along a spec- Support was directly provided for weight loss
trum between the two types. The notion of practices in this pro-anorexia community and
choice was pivotal to this identification and could be categorized in two distinct and contra-
functioned together with a rejection of anorexia dictory ways: support for eating disordered
as a mental illness as empowering strategies weight loss and support for healthy
with which to define experiences of weight loss eating/recovery from eating disorders. For
and the body. Finally, these extracts also demon- example, in this post participant L provides
strate how members were drawn to and partici- encouragement in a reply to another member
pated in the pro-anorexia site in different ways. who had just started a grape-only fast: ‘Good
For participant O the site was used as a place luck! One day at a time, plenty of affirmations
where the reasoning behind ‘ana’ is created and . . . A bit of herbal tea occasionally . . . Thanks
described. The expression of the nature of the for stopping by my musings and for the grape
emotional experience of extreme weight loss as info’ (Participant L).
something to either get under ‘control’ (partici- Support and encouragement for a move to
pant E) or ‘flawed’ (participant L) was also a recovery occurred when dangerous low weights
common use of the site by some participants. were reached or in response to members’
These examples show how the use of the site was expressions of slipping into more extreme
not particularly related to members’ self- eating disordered behaviour patterns:
identification of being either ‘ana by choice’ or
‘eating disordered anorexic’. Yet, in the next Being open and honest with yourself is the
theme, social support, this distinction was rele- first step to recovery. If you want to escape
vant in terms of the form of support that was this, you are making the right progress, and I
sought and experienced. am so very proud of you. Acknowledging that
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JOURNAL OF HEALTH PSYCHOLOGY 11(2)

your goal is slowly slipping downwards means or fear of being judged. In these ways the
you have identified your behaviour. (Partici- participants both appear to express more fully
pant M) their experiences of weight and food-related
issues and gain support for healthier eating
The underlying supportive approach of this site practices at times when members’ weight loss
was continued through into rejecting notions of was particularly low.
competitions to lose weight, which are present
on some pro-anorexia Internet sites. While
members would attempt to join in on diets, or Theme 4: need for anorexia
take inspiration from one person’s account of a A frequent response for pleas for healthier
fasting/diet plan, this was never in a competitive eating and recovery was for participants to
way. For example, participant T, in a reply to an proclaim a need for anorexia. For these indi-
original message entitled; ‘Can I lose 10 pounds viduals, anorexia seemed to function as a coping
in 17 days?’ writes: mechanism to deal with emotional pressures
I am going to try to match that starting with and stress. Participant M responds to a message
my weigh-in tomorrow. We are the same that prompted her to consider moving towards
height, but you have far more restricting mojo recovery: ‘I most certainly _don’t_ want to
than I. I was 106.6 this morning. Share every- “recover”—the only thing that brought me out
thing you do with me!!! . . . Don’t worry, this of a totally suicidal state was realising that I can
is not a ‘challenge’. (Participant T) carry on doing this’ (Participant M). While,
anorexia here means being able to cope, there
Individuals with eating disorders appear to use were also ambivalent discussions of anorexia
pro-anorexia sites as an exclusive place where that emphasized both positive and negative
they can experience tremendous personal aspects, and participants who experienced either
freedom to be themselves and not have to hide positive or negative aspects:
their eating disorder from others, such as from But at some points I enjoy being ana. Other
friends, colleagues and professionals in ‘real life’ times I don’t. But most of the time I’m ok with
(participant M). While support for continued having this so called disease. (Participant T)
weight loss was generally offered in response to
a request for information on weight loss or as a [It is] hard to focus on things and felt a bit
congratulatory response to a post related to stupid and fumbly. Not too many days like that
someone achieving or nearing their goal weight and I’ll be dysfunctional . . . (Participant M)
(participant L), support was also given for . . . wonderful feeling of etherealness—
weight loss achieved through eating disorders. Trippy. (Participant M)
In this way, those who provided support did not
While the negative consequences of dietary
discriminate between how the weight loss had
restriction were noticed, perceived positive
occurred. Thus, support functioned as being
aspects of fasting were more often reported
simultaneously inclusive of its members and,
ranging from achieving or nearing weight loss
yet, was a highly exclusive and private space set
goals, or to more abstract themes of purification.
apart from the mainstream. However, while
Anorexia was perceived as a purifying way of
individuals clearly experienced a high degree of
life, in terms of both physical purification, with
acceptance through site participation, when
many reporting on their ‘detox’ or ‘cleansing’
extreme weight loss was talked about others
their bodies, and in terms of spiritual/mental
members expressed a sense of responsibility
purification.
through reflecting back to the person the degree
Additionally the cultural acceptance and
to which their ‘goal is slipping downward’
desirability of a thin figure and undesirability of
(participant M) and the encouragement of
having an overweight figure is also seen as a
healthier eating. For those who find the concept
motivating factor or to use the language of the
of ‘recovery’ too difficult to contemplate at a
pro-ana sites a ‘thinspiration’:
particular time, the use of pro-anorexia sites
represented a space where participants felt free Being overweight for a few years of my life
to discuss their eating disorder without stigma made me realize what a living nightmare it
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must be to grow up and live as an overweight recovery but who recognize the possibility of
person. And it’s got to be an even worse night- future recovery placing site members in a pre-
mare to think you’re stuck in the body you’re contemplation or contemplation stage, accord-
in. (Participant K) ing to the transtheoretical model.
The organization of participants’ creation of
Whereas ‘ana by choice’ members used the site new meanings about weight loss, anorexia and
to explore methods of extreme dieting, those their practices around the distinction between
with an eating disorder used the site as a means ‘ana’ and anorexia directly challenged dominant
of holding on to and attempting to manage their biomedical perspectives of eating disorders. The
disorder. For participants such as M having distinction between anorexia as ‘ana’, a lifestyle
anorexia meant that she was ‘out of a totally choice, and anorexia nervosa as a psychiatric
suicidal state’, but could also resist recovery. The disorder represented an attempt to justify the
ambivalence experienced by some participants extreme methods of weight loss utilized and
is another illustration of the emotional load of shared with one another. This atypical definition
their weight and food relationships that became of an eating disorder was backed up by refer-
articulated through engagement with the site ences as to what defines other mental illness. For
and other participants. The ‘need’ that many felt example one user claimed the distinction
for anorexia became translated into metaphors between ‘ana by choice’ and anorexia nervosa as
for anorexia such as ‘Goddess’, ‘Saint’, ‘best being analogous with someone who is fastidious
friend’ and ‘enemy’. The same person could with cleaning and someone who has obsessive-
invoke anorexia as both friend and enemy compulsive disorder. Chesley et al. (2003)
suggesting that no matter how strong the appar- report that pro-anorexia sites outnumber sites
ent need for anorexia, having anorexia was that are resources for recovery. The way in
never experienced as being completely positive. which the site attracted both individuals with an
Those with eating disorders talked of attempt- eating disorder who felt unready for recovery at
ing to ‘manage sensibly’ their disorder and for the present time and those without an eating
this group using the site was a means of doing disorder who wished to explore extreme
this while gaining support. methods of weight loss may account for the
popularity of pro-ana sites over pro-recovery
sites. The nature of Internet discussion boards
Discussion and support groups often allows for greater
The analysis of messages posted to this online freedom to discuss emotional topics and themes
community reveals that the meaning of partici- (Joinson, 2003; Mann & Stewart, 2000) and indi-
pation in a pro-anorexia Internet site is clearly viduals with eating disorders often feel more
related to at least the following: the experience free to disclose issues relating to their disorder
of a supportive, anonymous place for personal online than in the context of a therapeutic
expression; the structuring of specific definitions environment (Davies & Lipsey, 2003).
and understandings of weight loss practices that A spiritual theme ran through the postings
counter and reject dominant medical definitions whereby both ‘types’ of anorexia were
of anorexia nervosa; and the opportunity to perceived as being purifying. Dietary restraint
make sense out of the struggles that participants was seen as providing a sense of the spiritual
experience in relation to the emotional burden continuing through to religious themes in rela-
of extreme weight loss practices. The perception tion to weight loss e.g. a discussion of how
of the pro-anorexia site as an anonymous, fasting during the Christian religious period of
supportive place is consistent with research Lent was a useful adjunct and justification for
carried out by Davidson et al. (2000) and dietary restraint. This appears to be a modern
Joinson (2003) respectively. The site as a ‘safe day manifestation of the relationship between
place’ also supports Dias’ (2003) conclusions self-starvation and religiosity. Women who
that pro-anorexia sites function as a sanctuary starved themselves during the 12th and 13th
for those with eating disorders. As Dias centuries were highly esteemed and often
contends, individuals who frequent such sites perceived of as saints (Hepworth, 1999). The
represent a group who are not yet ready for fasting of mediaeval women saints closely
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JOURNAL OF HEALTH PSYCHOLOGY 11(2)

approximates the fasting in modern day Eating disorders did not emerge as a widely
anorexia nervosa. The manifestation of spiritual known problem until the late 1970s and little is
themes appeared in a variety of ways on the pro- known of the interaction of aetiological factors
anorexia Internet site. The participants’ quest to that result in the diagnosis of an eating disorder
purify themselves is consistent with the perfec- (Polivy & Herman, 2002). Further study into the
tionist aims of anorexia nervosa, although relatively new medium of pro-anorexia Internet
becoming ‘purified’ always remained secondary sites may assist in understanding how social and
to the main goal of obtaining and keeping a low cultural factors interact with psychological
body weight. processes in the development of eating
The analysis also takes into account that disorders (Dias, 2003). Pro-anorexia Internet
participants felt they were engaged with a sites therefore represent a potentially rich
unique, healthier, site compared with other pro- resource to understand further and strengthen
anorexia sites because they perceived this site to both theory and practice in the field of eating
provide healthier advice, and less extreme disorders. Additionally, as many who visit the
methods of weight loss. Hiding eating disorder sites do not present themselves as having an
practices from health professionals was never eating disorder but use the sites to gain support
advised, and many responded to requests for in researching stricter and more extreme
tips on how to avoid recovery by questioning methods of weight loss, pro-anorexia sites are of
attempts to leave treatment. Thus, the personal interest in relation to health behaviours more
experiences of these members and the themes generally and practices around weight loss,
that emerged cannot be generalized to all pro- dieting and body image.
anorexia Internet sites. Second, the phenom-
enological foundation of the present research Conclusion
means that generating explanations with regard
to the use of pro-anorexia Internet sites is It was both the reported concerns that the pro-
beyond the capacity of the present study. As anorexia Internet setting could contribute to
Willig (2001) argues, phenomenological increased disordered eating and the need for
research can richly describe and document the greater understanding about the phenomenon
experiences of individuals but does not attempt of pro-anorexia sites more generally that
to explain it. This study has explored some of the formed the basis for this research. While it was
perceptions that participants in one pro- not an aim of this study to determine if partici-
anorexia Internet community hold, and offers pation in a pro-anorexia Internet setting where
some insight into the meaning of participation extreme weight loss practices are discussed and
and disordered eating. Finally, due both to the encouraged as the norm contributed to
global unstructured nature of the Internet and increased levels of disordered eating, the
the qualitative design of the study, the precise meaning of participation in a pro-anorexia site
demographics of the community under analysis and its relationship to disordered eating were
remain unknown. Most participants in the site explored. The findings suggest that participation
under study presented themselves as female, was multi-purpose, commonly providing a
with an age range of approximately 16–35 years, coping function in relation to extreme weight
and living in either North America or Western loss, and a place to manage the related
Europe. This appears to mirror both the emotional burden. The research also suggests
predominance of the Internet in English-speak- that given the breadth of support provided
ing industrialized nations (Joinson, 2003; through this Internet media its contribution to
Wallace, 1999), and the predominance of an increase in levels of eating disorders cannot
females with eating disorders (Polivy & be treated as inevitable or unproblematic.
Herman, 2002). While there are some study
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Author biographies
is a graduate researcher
RUA I D H R I M U LV E E N is an Associate Professor
J U L I E H E P W O RT H
at Queen Margaret University College, at Argosy University, California. She is a health
Edinburgh. His research interests include psychologist with particular interests in
qualitative research, eating disorders and qualitative research, gender and health and
health psychology. public health theories and methods.

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