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JAGXXX10.1177/0733464819873504Journal of Applied GerontologyChui et al.
Article
Journal of Applied Gerontology
Framework
Abstract
Hong Kong is experiencing significant demographic changes as a result of rapid population aging and immigration. Anecdotal
evidence suggests that ethnic minorities, in particular aged members of South Asian ethnic minorities, face significant and
diverse obstacles in accessing services important to their general welfare. This study is the first systematic attempt to
explore the long-term care needs of Nepalese older adults in Hong Kong and the barriers they face in accessing long-
term care services. Data were obtained through semi-structured interviews with 30 Nepalese older adults. We found that
Nepalese older adults have similar physical and psychosocial needs as those of their local Chinese counterparts. However,
participants face a range of structural, knowledge, and attitudinal barriers that together deter them from accessing long-term
care services, despite their right to do so. Policy recommendations to mitigate these barriers are given, with reference to
the World Health Organization’s Age-Friendly Cities Framework.
Keywords
diversity and ethnicity, long-term services and support, policy, minority, qualitative methods, social inclusion, age-friendly city
Introduction Thus far, studies have documented the way in which eth-
nic minority older adults exhibit poorer outcomes compared
Population aging occurs in many in high-income societies with the majority population, including but not limited to
(World Health Organization, 2007). This is primarily due to poorer quality of life and mental health outcomes, and higher
declining fertility and rising life expectancies, as well as levels of loneliness, depression, and physical frailty (Kuo,
parental life choices and government-instituted policies Chong, & Joseph, 2008; Lin, Bryant, Boldero, & Dow, 2016;
related to the number of children in a family (World Health Ng et al., 2014). To account for the disparities in psychosocial
Organization, 2007). Hong Kong is not an exception to this outcomes, international studies have identified three types of
trend. It is projected that the number of older adults aged 65 barriers that ethnic minority older adults encounter in access-
and above in Hong Kong will increase from 1.16 million ing long-term and other care services: structural barriers,
(16.6% of the total population) in 2016, to approximately knowledge barriers, and attitudinal barriers (Doblyte &
2.37 million (31.1%) by 2036 (Census and Statistics Jiménez-Mejías, 2017; Oleski, Mota, Cox, & Sareen, 2010;
Department, 2017). At the same time, Hong Kong is rela- Sareen et al., 2007). Structural barriers refer to factors outside
tively homogeneous in terms of the ethnicity of its residents of a person’s control, such as cost of treatment, inadequate
(92% are ethnic Chinese; 8% are non-Chinese ethnic). The
focus of our study is on non-Chinese, ethnic minority older Manuscript received: May 7, 2019; final revision received: August 1,
adults in Hong Kong, a group that has thus far been neglected 2019; accepted: August 7, 2019.
in both academic and public policy discourses. Rapid popu- 1
The University of Hong Kong, Hong Kong
lation aging can also be observed among Hong Kong’s South 2
Hong Kong Christian Service, Hong Kong
Asian minority population, such that the proportion of those
aged 65 or above increased from 966 in 2006 to 2,858 in Corresponding Author:
Paul Wai Ching Wong, Department of Social Work and Social
2016 for Indians, from 529 in 2006 to 633 in 2016 for Administration, The University of Hong Kong, 5/F, Jockey Club Tower,
Pakistanis, and from 327 in 2006 to 713 in 2016 for Nepalese The Centennial Campus, Pokfulam Road, Hong Kong.
older adults (Census and Statistics Department, 2016). Email: paulw@hku.hk
464 Journal of Applied Gerontology 39(5)
government (policy) support, and lack of transportation Nepalese older adults were chosen for this study because
(Morgan & Sampsel, 1994; Oleski et al., 2010; Zhang, Zakus, they constitute one of the most rapidly aging ethnic minor-
& Gao, 2016). Knowledge barriers may refer to a person’s ity groups in Hong Kong. Furthermore, limited but emerg-
lack of understanding about the nature and severity of an ill- ing evidence suggests that the Nepalese population appears
ness or a general dearth of knowledge with respect to existing to reside in more segregated neighborhoods and have
services (Jimenez, Cook, Bartels, & Alegría, 2013; Patel, weaker ties within the wider Hong Kong society, compared
2016), whereas attitudinal barriers can be understood in terms with other South Asian groups such as Indians, who may
of a person’s perception of illness(es) (e.g., stigma-related have a longer historical presence in Hong Kong (Ale, 2013;
concerns and fears or embarrassment about revealing per- Erni & Leung, 2014). Although some studies have been
sonal details; Conner et al., 2010; Patel, 2016; Zhu, Tse, Tang, conducted focusing on the Nepalese community specifi-
& Wong, 2016). cally (Ale, 2013), none to our knowledge have examined
Although these studies are illuminating, they are primar- the needs of Nepalese older adults per se.
ily situated in the West, where racial and minority issues In light of existing research gaps, drawing from the per-
have received considerable attention. Comparatively, few spectives of Nepalese older adults in Hong Kong, this study
studies have examined how ethnic minority older adults fare examines the following research questions: (a) What are the
in East Asia. LTC needs of Nepalese older adults in Hong Kong, a city that
has been relatively ethnically homogeneous until more
Long-Term Care Needs of Nepalese recently? (b) What are the barriers that Nepalese older adults
Older Adults: Hong Kong as a Case face in accessing these LTC needs?
Example
Method
Demographic changes carry direct implications for the
demands of long-term care (LTC) services (Chui et al., This study adopted a qualitative explorative method of
2019). In Hong Kong, LTC services comprise a wide spec- inquiry, in the form of semi-structured, in-depth interviews.
trum of subsidized community care services (CCS) and resi- This was carried out in collaboration with a local neighbor-
dential care services (RCS). Older adults who want to receive hood elderly center (NEC), which specializes in providing
LTC services are assessed by government-accredited asses- services to ethnic minorities under the project Support to
sors using a standardized assessment protocol. Both CCS Ethnic Elderly (Project SEE). Project SEE recruits South
and RCS are provided by professionals, including nurses, Asian ethnic minority older adults aged 60 and above via
social workers, doctors, and care workers, through govern- outreaching within the defined service boundary of Kowloon
ment-contracted, nongovernmental organizations (NGOs). West district in Hong Kong. The project provides a range of
LTC services provided by NGOs are typically financed by services including consultation service, need assessment and
the government. referral service, and mutual support groups, among others.
To date, extensive research has been conducted in rela- At the time of the study, as of March 2018, 182 South Asian
tion to the provision of long-term social and health care older adults were receiving services from Project SEE.
for older, ethnic Chinese residents in Hong Kong (Chen Among these 182 South Asian older adults, purposive
et al., 2016; Cheng, Lum, Lam, & Fung, 2013; Fu, Chui, sampling via direct telephone contact was used to recruit eli-
Kan, & Ko, 2018; Lum, 2012; Lum et al., 2016). Studies gible participants to the study. The inclusion criteria were
have thus far identified a range of deficits regarding the threefold: (a) aged 60 or above, (b) Nepalese, and (c) perma-
city’s LTC system, including but not limited to manpower nent Hong Kong residents.1 Of the 182 South Asian older
shortages in residential care homes (Chui, 2011; Wong & adults, 68 met the inclusion criteria, of whom 30 agreed to
Lum, 2015), an abnormally high institutionalization rate participate in the research. The recruitment process took 3
(6.8%) among Hong Kong older adults compared with months to complete.
other East Asian societies, and disengagement between After obtaining informed consent from participants, they
the city’s health care and social service systems (Fang, were asked to complete a brief questionnaire with respect to
Lou, & Kong, 2016). their demographic background and current health status. One
However, there has been a paucity of studies on such care Nepalese research assistant fluent in Nepalese, English, and
for ethnic minority older adults. Our concern is that ethnic Chinese then proceeded to conduct the interviews in Nepalese
minority older adults do not enjoy the same level and ease of alongside a member of the research team. During the inter-
access to social and health services as their ethnic majority views, participants were asked to express their opinions on
counterparts. When disparities in access to health support the LTC system in Hong Kong, their own health and social
exist, older adults experience a worse quality of life, more care needs, and the difficulties and barriers they faced, if any,
physical ailments, and higher levels of loneliness and depres- in accessing social and health care services provided by the
sion, compared with the ethnic majority population (Kuo LTC system. All interviews were conducted between
et al., 2008; Lin et al., 2016; Ng et al., 2014). December 2017 and April 2018 and were audiotaped. This
Chui et al. 465
study was approved by the Human Research Ethics Committee Table 1. Sociodemographic Characteristics of Nepalese Older
of The University of Hong Kong. Adults (N = 30).
All audiotaped interviews were transcribed verbatim, Total (N = 30),
translated into English, and analyzed using thematic analysis Characteristics n (%)
(Braun & Clarke, 2006) appropriate to qualitative explor-
ative studies. Specifically, several analytical steps were Age group (years)
35-39 —
taken, including familiarizing ourselves with the data, fol-
40-44 —
lowed by the generation of initial codes that were relevant to 60-64 2 (7)
our research question, using an inductive approach. Relevant 65-69 5 (16)
quotations were highlighted and subsequently classified into 70-74 17 (57)
different categories. These categories were further refined to 75-79 4 (13)
allow for our research team to recognize and identify emer- 80 or above 2 (7)
gent themes. A continuous iterative and flexible process typi- Gender
cal of explorative studies was adopted throughout the data Female 18 (60)
analysis process (Singh, 2007). Male 12 (40)
To enhance data reliability, three researchers coded tran- Marital status
Married 20 (67)
scripts independently. Where there were discrepancies, con-
Widowed 9 (30)
sensus was achieved through discussions on the part of the Separated 1 (3)
research team. Specifically, some disagreements regarding Education level
the categorization of codes arose, but these were minimal. Never received formal education 23 (77)
For example, one researcher coded unpleasant exchanges Primary level 6 (20)
with health care professionals as a structural deficit, whereas Secondary level —
the two remaining coders argued that this was an attitudinal Tertiary: diploma 1 (3)
barrier. We resolved such issues by returning to the partici- Occupation
pants’ quotations and by eliciting the input from our com- Retired 28 (94)
munity partner to reach a consensus. In addition, we Employed 1 (3)
Others 1 (3)
supplemented in-depth interviews with nonparticipant obser-
Years of residence in Hong Konga
vations and informal exchanges with representatives of our
Less than 10 2(7)
community partner. Several safeguards were also taken to 10-20 7 (23)
account for personal biases. For instance, during the inter- 21-30 1 (3)
view process, we asked the participants to clarify their mean- >30 18 (60)
ing, if these were not presented clearly. The research team Type of housing
also triangulated the data with the input of our community Subdivided rental housing 22 (74)
partner, who has firsthand frontline experience providing Private housing (rental) 4 (13)
services for Nepalese older adults. The emergent themes Owner 4 (13)
were shared among the research team and were agreed upon Household size
prior to our finalization of these themes. One person (live alone) 2 (7)
Two persons 6 (20)
Three persons 4 (13)
Results Four persons 5 (17)
Five persons 7 (23)
As illustrated in Table 1, most participants were female Six persons 4 (13)
(60%), married (67%), had lived in Hong Kong for more Seven persons or above 2 (7)
than 30 years (60%), had never received any formal educa-
a
Two missing for older adults.
tion (77%), were retired (93%), and lived in subdivided
rental flats (74%). Most participants were in the age ranges
of 70 to 74 years (48%) and 65 to 69 years (26%). return to their “home countries” to retire), almost all partici-
We present our results in two sections: (a) LTC needs and pants indicated that they would prefer to age in Hong Kong,
(b) the barriers that participants faced in accessing relevant in their current residential communities. Participants saw
services in light of these needs. Illustrative quotes from par- residential care as a last resort.
ticipants are presented to substantiate the emergent themes. The preference to age in place is in alignment with the
Hong Kong government’s LTC policy imperatives and is
consistent with the expressed wishes of Chinese older adults.
LTC Needs of Nepalese Older Adults Participants indicated that admission to RCS was perceived
In contrast to the public perception that South Asian ethnic by the Nepalese community as shameful to older adults,
minorities are transient (Kapai, 2015) (e.g., planning to likely because it is a sign of fragility and inability to care for
466 Journal of Applied Gerontology 39(5)
Table 2. Types of chronic diseases among Nepalese study participants (N=30).
themselves, as well as an inability on the part of their chil- (70%) and diabetes (57%) being the two most common
dren, who have failed to take care of their parents. Participants health conditions. This is comparable to the overall rates of
expected members of younger generations to care for them chronic disease found among the general older adult popula-
as they aged: tion (e.g., hypertension as 62.5%) in Hong Kong (Census
and Statistics Department, 2009).
If you leave your parents in nursing homes, the community sees
you in a negative light immediately. (P21, F, age 65-69)
Psychological and Cognitive Health Needs
Interviewer: Just now you said that you would prefer not to stay
in homes for [older adults], but under what circumstances would Some participants indicated that they experience bouts of
you consider it appropriate to live in these homes? loneliness due to weakening family and cultural ties. This
makes them susceptible to depression. The interviews further
Participant: For those who are treated badly by their families. revealed that some participants may be showing early signs of
(P13, F, age 75-79) cognitive impairment. As illustrated by one of the quotations
below, one participant struggled to return to her house. This
Nursing homes aren’t seen as a good practice in Nepalese culture suggests that there is a need to make provisions for early
. . . [Children] would not want to leave the care of their parents screening services for cognitive impairment and to imple-
in the hands of another. (P22, M, age 70-74) ment programs designed to slow down the progress of such
impairments:
If you are incapacitated, then you have to stay [in a nursing
home]. But when you are able, [nursing homes] are not a Sometimes, I can’t even go back to my own house . . . I have to
nice place. To walk around, to go here and there, to stay at ask others to take me or I have to wait for my memories to come
home is better . . . Nursing homes are not right. (P25, F, age back and then return by myself. (P10, F, age 70-74)
65-69)
Yes, it is very difficult to pass a day . . . I don’t meet my old
Physical Health Needs friends much either these days. Some went to the UK, others
returned to Nepal. In the past, there were more older people who
All participants indicated that they were living with some would hang out together. Now, some have gone to Nepal, some
forms of chronic illness, highlighting the importance of have gone to work, some have gone to the UK. Now, I barely
accessing health and social care services that cater toward meet anyone. (P23, M, age 70-74)
their physical health needs. Table 2 illustrates the type(s) of
chronic illness found among participants, with hypertension I need a friend . . . It’s hard to be on my own. (P29, F, age 60-64)
Chui et al. 467
Service mainstreaming Further public education and inter-cultural Breakdown knowledge barriers
Explicit and effective guideline for exchange Additional public education among
professional and frontline staff in Cultural exchange with Nepali the Nepali community and larger
all governmental departments between the wider ethnic minority society
community and local Chinese
Cultural inclusion checklist society Empirical-driven knowledge
Transdisciplinary participation
Empirical-driven knowledge Qualitative and quantitative
Systematic data collection on research studies
service usage
Knowledge dissemination
Traditional media (e.g.,
newspapers, radio/TV channels)
New media (e.g., websites, apps)
Figure 1. Key recommendations for promoting a culturally inclusive age-friendly city.
In a society that espouses equality and inclusiveness, the in accessing LTC services. It would be equally valuable to
ethnic Chinese majority has a responsibility to support mem- identify the protective and supportive factors of ethnic minor-
bers of ethnic minorities who wish to access social services. ity older adult population groups, to both achieve a balanced
The Chinese ethnic majority, through additional public and point of view and develop strategies to maximize the effec-
educational campaigns, can become more knowledgeable tiveness of these protective factors.
about the social service needs of ethnic minority older adults
and the means through which they can help them to more
easily negotiate their way through the city’s LTC system.
Conclusion
Advocates of intergroup contact theory (Walch et al., 2012) To conclude, the aging of Hong Kong’s population will con-
contend that the promotion of social interactions between tinue unabated, in the cases of both the ethnic Chinese
ethnic minorities and local Chinese residents will help reduce majority and the city’s ethnic minorities. This poses very
ethnic minorities’ susceptibility to social isolation and loneli- real and relatively new challenges to those responsible for
ness, and, at the same time, serve as a source of affirmation the planning and delivery of health care and other social ser-
for ethnic majority citizens who seek to provide practical and vices, to ensure that the city’s resources are allocated appro-
moral support for ethnic minority citizens. priately and equitably. Although a large body of literature
Our study has some limitations. First, although we gained examining the LTC needs of older adults exists, none of
an in-depth understanding of the LTC needs of Nepalese older these studies focuses on ethnic minority older adults. Our
adults, our findings may not be directly transferable to other explorative study marks the first attempt to do so and high-
older adults of the same or different ethnicities. For instance, it lights the range of structural, knowledge, and attitudinal
may be that Nepalese with cognitive and/or physical impair- barriers that Nepalese older adults encounter in accessing
ments may encounter a different set of challenges as they navi- LTC services. To promote a culturally inclusive AFC, it is
gate the city’s health and social care systems. Future studies evident that policies and procedures need to be developed
into the needs of this group of Nepalese older adults may be and implemented to ensure equitable access for ethnic
insightful. Furthermore, our findings may not be directly minority older adults. This would ensure that the issue of an
transferable to other South Asian ethnic minority groups such aging population, which is currently a concern, does not
as Pakistani and Indian older adults in Hong Kong. Although exacerbate and become a crisis.
it is probable that they face similar difficulties (e.g., language
barriers), the distinct characteristics of each ethnic group may Authors’ Note
also generate different results. The cultural nuances that exist This study was approved by the Human Research Ethics
among various ethnic minority groups and corresponding LTC Committee (HREC) of the University of Hong Kong (HREC No.
needs warrant further systematic examination. Finally, this EA1710005). Gizem Arat is now affiliated with Lingnan
study primarily focuses on identifying barriers and problems University, Hong Kong.
470 Journal of Applied Gerontology 39(5)
Declaration of Conflicting Interests in Hong Kong. The Gerontologist, 59, 549-558. doi:10.1093/
geront/gny052
The author(s) declared no potential conflicts of interest with respect
Chui, E. (2011). Long-term care policy in Hong Kong: Challenges
to the research, authorship, and/or publication of this article.
and future directions. Home Health Care Services Quarterly,
30, 119-132. doi:10.1080/01621424.2011.592413
Funding Conner, K. O., Copeland, V. C., Grote, N. K., Koeske, G., Rosen,
The author(s) disclosed receipt of the following financial support D., Reynolds, C. F., & Brown, C. (2010). Mental health
for the research, authorship, and/or publication of this article: This treatment seeking among older adults with depression: The
research was funded by the Hong Kong Equal Opportunities impact of stigma and race. The American Journal of Geriatric
Commission. Psychiatry, 18, 531-543. doi:10.1097/JGP.0b013e3181cc0366
Doblyte, S., & Jiménez-Mejías, E. (2017). Understanding help-
seeking behavior in depression: A qualitative synthesis of
ORCID iD
patients’ experiences. Qualitative Health Research, 27, 100-
Cheryl Hiu-kwan Chui https://orcid.org/0000-0002-3284-5724 113. doi:10.1177/1049732316681282
Erni, J., & Leung, Y. (2014). Understanding South Asian minorities
Note in Hong Kong. Hong Kong: Hong Kong University Press.
Fang, M. S., Lou, W. V., & Kong, S. T. (2016). Empowering resi-
1. Permanent residents are defined as those who have the right of
dential homes for the elderly (RCHEs) as a key strategy for
abode in Hong Kong. The Immigration Department specified six
delivering quality end-of-life care in Hong Kong (Policy No.
categories of people who are eligible to the right of abode (e.g.,
2). Hong Kong: Faculty of Social Sciences & Sau Po Centre on
permanent residential status) in Hong Kong. For non-Chinese
Ageing, University of Hong Kong.
citizens, right of abode may be granted when the person con-
Fu, Y. Y., Chui, E. W. T., Kan, W. S., & Ko, L. (2018). Improving
cerned has entered Hong Kong with a valid travel document and
primary level home and community care services for older
has ordinarily resided in Hong Kong for a continuous period of
people: The case of Hong Kong. International Journal of
not less than 7 years.
Social Welfare, 27, 52-61. doi:10.1111/ijsw.12271
Jimenez, D. E., Cook, B., Bartels, S. J., & Alegría, M. (2013).
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