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PRELIMINARY

Chapter 43 DRAFT
NOT FOR DISTRIBUTION

Health System Responsiveness: Concepts,


Domains and Operationalization

Nicole B. Valentine, Amala de Silva, Kei Kawabata, Charles Darby,


Christopher J.L. Murray, David B. Evans

Background also been recognized, since it provides a direct link


to actions to improve quality. By 1997, for example,
On the creation of WHO in 1948, its constitution
the Agency for Health Research and Quality (AHRQ)
defined health as “a state of complete physical, mental
in the USA had developed and funded the Consumer
and social well-being and not merely the absence of
Assessment of Health Plans survey and reporting kit
disease or infirmity.” It was recognized that the health
system must address the medical needs of individuals, (CAHPS) (6) to capture patient experiences through
but that it must also focus on other factors affecting patient reports rather than their satisfaction with these
their well-being, a tradition which has continued since experiences. In 2000, WHO refined and broadened the
that time. Decades later, Donabedian’s (1) pioneering concept of patient experience to cover not only the
work on the quality of medical care reflected the interpersonal process between practitioner and patient
sentiment of the WHO constitution by defining quality or client, but also the interaction between the health
as much broader than simply the ability to enhance system and the population it serves. This concept was
health. He named three components: technical called responsiveness (7;8).
quality (the ability to improve health outcomes), Although most surveys exploring patient experience
process quality (the management of the interpersonal have taken place in the high-income countries in North
process), and structure quality (related to the quality America and Western Europe, there is a growing
of amenities). Client satisfaction was of fundamental interest in evaluating the population’s experience with
importance to the management of the interpersonal health services in other regions, including low-income
process because it gave information on the provider’s countries. Haddad et al. identified 16 such studies in
success at meeting the client’s values and expectations. 1998 and we have been able to identify another 12
These values encompassed health outcomes, the nature (9–21). The present chapter builds on that body of
of the intervention provided (at home, at the hospital), work.
and an array of factors deemed essential for health
Section two defines the concept of responsiveness,
care provision, including being served in due time and
and describes in more detail its evolution and how it
having access to care when needed. In addition, patient
relates to and differs from the concepts of patient satis-
satisfaction was important because it was linked to
faction and quality of care. The third section describes
health outcomes—a dissatisfied patient may fail to
follow provider recommendations on treatment or to several domains which together capture the notion of
seek care in the event of future illness. the responsiveness of the health system. The related
Since the 1980s, the interest in patient satisfaction areas of human and patient rights are the focus of
as a separate outcome measure has grown and there section four, while a description of the operationaliza-
is now an extensive history of attempts to measure it tion process for the measurement of responsiveness is
using questionnaires, particularly in the United States presented in the fifth section. The chapter concludes
(2–5). With increasing knowledge, however, the need with a discussion on some of the continued challenges
to capture the actual patient experience, in addition to capturing and measuring responsiveness and the
to patient satisfaction with the care received, has possible strategies for its further development.
574 Health Systems Performance Assessment

The Evolution of the Concept of level and distribution of responsiveness, and fairness
Responsiveness in household financial contribution.
The conceptual independence of responsiveness
Defining Responsiveness from the health-enhancing aspects of people’s
encounters with the health system in no way suggests
When individuals interact with the health system it that responsiveness does not impinge on health.
influences their well-being. One pathway to achieve Individuals who are treated with concern and cared
well-being is through improvements in health, but for in pleasant surroundings are likely to respond
well-being is also influenced by other aspects of better to the counsel offered by health providers in
people’s personal interactions with the health system. the course of diagnosis and treatment. This could
We define aspects related to the way individuals are improve treatment outcomes. A responsive health
treated and the environment in which they are treated system, therefore, contributes to health enhancement
as responsiveness. Multiple domains characterize both by being more conducive for individuals to seek care
health and responsiveness. The operationalization of earlier, to be more open in their interactions with
health involves selecting a common set of domains health care providers, and to better assimilate health
including, for example, mobility and pain. Similarly, information (23). It can also contribute to increased
for responsiveness, a common set of domains can be utilization in settings where people might choose
identified for measurement purposes. not to use available services because of their low
By convention, only certain levels of functioning responsiveness (9).
in the health domains define whether an individual is
considered healthy or unhealthy. There is a threshold Responsiveness and Quality of Care
above which further increments in functioning are
viewed as talent rather than health improvements (22). Responsiveness draws on the quality of care
For example, someone who can run 10 kilometres is literature, but is distinct from it in many ways. The
regarded as healthier than someone who cannot walk quality of care literature is diffuse and a number of
100 meters. However, someone who can run a mara- different frameworks for assessing quality have been
thon is not regarded as healthier than the person who proposed. Many draw on the Donabedian framework
can run 10 kilometres. Similarly, only certain levels on of technical, process, and structural quality (24).
each responsiveness domain define whether the system Technical quality has been defined as including
is responsive or not responsive. Above these thresh- dimensions such as appropriateness, effectiveness,
olds, further improvements are defined as luxury, or and technical competence. Process quality involves
the equivalent of talent in health. Improvements in dimensions such as courtesy, information provision
cleanliness and basic ventilation in facilities increase or communication, respect, choice, and autonomy
the level of responsiveness, whereas adding luxury (25). It has also been called service quality (26) or the
items to waiting rooms or hospital wards would not interpersonal component of quality (27). Structural
be regarded as part of the responsiveness expected of quality has included dimensions such as continuity of
a health system. The measurement of responsiveness care, affordability, accommodation, and accessibility.
focuses on improvements up to a commonly defined A feature common to the majority of quality of care
domain threshold. conceptual frameworks is the rather loose relationship
The well-being of individuals is influenced by their between the concept and its measurement, including
interaction with the health system through its impact the elaboration of an anchored and calibrated scoring
on their health and through its responsiveness. The system.
WHO framework for assessing the performance of By its construct, responsiveness is related more to
health systems includes both health and responsive- some of the interpersonal dimensions of quality of care
ness as key outcomes on which health systems should rather than to technical quality. To the extent that
be judged, along with the fairness in the way the technical quality improves health, it is captured in the
health system is financed (7). Societies are concerned WHO performance assessment framework through
with the average levels of health and responsiveness, impact on health outcomes. Financial affordability,
as well as with the distribution, or inequalities in, sometimes considered part of structural quality, is
health and responsiveness across the population. included in the WHO framework partly in the fairness
Accordingly, five outcome indicators were defined in in financial contribution goal and partly through its
the framework: the level and distribution of health, the impact on health outcomes (28). It does not form
Health System Responsiveness: Concepts, Domains and Operationalization 575

part of responsiveness. Some of the interpersonal ences. WHO’s approach to responsiveness builds on
dimensions of quality of care have, therefore, been this idea, the need to capture people’s actual experi-
useful in defining the dimensions of responsiveness, ences with the health system.
but no single quality of care framework incorporates Two additional differences between the concepts
all the domains that are considered important to of responsiveness and patient satisfaction can be
responsiveness, nor do any clearly distinguish between highlighted:
health enhancement domains and those that enhance
 The type of interaction (e.g. at a health service,
well-being through other mechanisms (24).
health insurance, public health campaign): patient
satisfaction focuses on interactions in medical facili-
Responsiveness and Patient Satisfaction
ties, whereas responsiveness includes the scope to
Patient satisfaction tries to capture consumer percep- evaluate the health system as a whole by concen-
tions of the quality of services delivered by a health trating on the different types of interactions people
provider or the system as a whole (5;6;25;29–39). It have with the system.
is a complex concept that is influenced by a mixture
 Components of the interaction: patient satisfac-
of perceived need, individual expectations, and the
tion generally covers both clinical and non-clinical
experience of care (40). Patient satisfaction surveys
components of an interaction, while responsiveness
have sometimes been used as one component in judg-
focuses only on the latter. Responsiveness does not
ing the quality of care (25).
seek to determine whether health is improved by an
With growing experience in its use, some difficul-
encounter with the health system; this is captured
ties have emerged (41). First, the concept becomes
in the WHO framework on health systems perfor-
ambiguous if it refers to multiple health care events
mance assessment by measuring health.
and multiple interactions over long periods. Patient
ratings may capture general attitudes or satisfaction
rather than recall actual events. Second, respondents Responsiveness Domains
may not think along a continuum of dissatisfaction
The development of the domains of responsiveness
to satisfaction, even if provided with these anchors,
and the methodology for their measurement drew on
making calibration of satisfaction responses difficult.
a broad literature review of the areas of quality of care
Third, expectations strongly influence satisfaction rat-
and patient satisfaction. This included the examination
ings and paradoxical results may arise. A downturn
of different survey instruments. Details of the studies
in the economy, for example, might lower people’s
reviewed are presented in de Silva (47).
expectations of what the system can provide so that
they report higher levels of satisfaction. At the same
Framework for Development of Domains
time, system quality might not have improved or might
and Items
even have fallen. Accordingly, patient satisfaction sur-
veys may not capture what actually happens when Although responsiveness is characterized by multiple
people come in contact with the health system, and the domains, its operationalization for comparative pur-
responses are strongly influenced by prior expectations poses across countries requires the selection of a com-
of what will or should happen (42). mon set of domains that are applicable to all health
In addition, satisfaction has been shown to vary systems. An extensive literature review was undertaken
with selected socio-demographic characteristics, to answer the question of what, apart from improv-
including income, possibly due to differences in ing health, was valued by people in their interactions
expectations (43;44). The WHO Multi-country Sur- with health systems. The review focused on research
vey Study on Health and Responsiveness 2000–2001 from the disciplines of sociology, anthropology, health
confirmed on a global scale the results of earlier studies economics, health services and management, ethics,
that expectations do vary across individuals and popu- human rights, and patient rights. The precise mean-
lations both between and within countries (45;46). ing of the terms developed to describe the domains
Partly for these reasons, CAHPS, intended to cap- was tested in a number of pilot surveys. From this
ture the responsiveness of managed care compared to process, a common set of eight domains that most
other forms of service provision, has moved from rely- comprehensively captured responsiveness was identi-
ing on patient satisfaction surveys to developing means fied. They comprise autonomy, choice, communica-
of allowing patients to report on their actual experi- tion, confidentiality, dignity, prompt attention, quality
576 Health Systems Performance Assessment

of basic amenities, and support (access to family and that included two expert meetings and three meetings
community support). of a Scientific Peer Review Group (48;49). An instru-
Table 43.1 shows the elements of the proposed ment was developed and tested in a 35-country key
WHO measure of responsiveness cross-tabulated with informant survey. This was followed by the develop-
well-known patient satisfaction surveys and studies. ment of a household survey instrument tested in a
As suggested above, none of the existing instruments 12-country pilot survey, with cognitive testing in seven
capture all of the dimensions considered to form part countries.1 The full instrument was then fielded in 71
of responsiveness. countries as part of the WHO Multi-country Survey
Study on Health and Responsiveness 2000–2001 (50).
Criteria for Selecting Domains Further cognitive testing was carried out as well as an
The criteria applied in the selection of domains was extensive analysis on the validity and reliability of the
that the list be exhaustive and widely accepted as an data using psychometric testing. With each step of this
appropriate way to characterize the qualities sought process, WHO has refined its concepts, methodology,
in a responsive health system by the individuals it and instruments for measurement. As a culmination of
serves. Although domains may overlap, this should these efforts, the World Health Survey, with a revised
be avoided as far as possible. The following guiding instrument for responsiveness, is being implemented
principals were applied. Domains must be: in 73 countries in 2002–2003 (51). The next sections
describe each of the domains in alphabetical order.
 validated in related fields as important attributes
that individuals seek in their interaction with the Autonomy
health system, in addition to the goal of improving
health; Autonomy is derived from the Greek words autos (self)
and nomos (law). It has two components: decision-
 amenable to self report; making (autos or self-directing) and the value system
 comprehensive enough, when taken together, to by which decisions are made (nomos or natural law).
capture all important aspects of responsiveness It is also defined as “the freedom of the will” (52). In
which people value; philosophy, this concept relates to being self-deter-
mined instead of being determined from outside. In
 able to be measured in a way that is comparable
ethics, autonomy is the notion that ethical rules must
within and across populations.
be linked to reason, rather than imposed on someone
(53). Autonomy in a medical context demands “physi-
The Common Set of Domains
cians having a standing duty to respect and at times,
In addition to the literature review, WHO undertook an obligation to help promote the free choice of com-
an extensive consultative process from 1999 to 2002 petent patients” (54).

Table 43.1 Existing questionnaires that incorporate domains of responsiveness


Quote-
Rheumatic-
Comm. Evaluation Picker Patient Patients
Patient Survey Adult Core Tracking 20 Item Ranking Experience Instrument
Responsiveness dimensions Quest (5) Quest (30) Study (31) Scale (9) Scale (32) Quest. (33;34) (25)
Respect for autonomy X X X
Choice of care provider X X X X X
Respect for confidentiality X X
Communication X X X X X X X
Respect for dignity X X X X X X X
Access to prompt attention X X X X X X
Quality of basic amenities X X X
Access to family and X X
community support
Health System Responsiveness: Concepts, Domains and Operationalization 577

In this context, competency implies being an adult made for the individual. In the case of minors or those
of sound mind, possessing the cognitive and emotional who are mentally unstable, patient autonomy would
capability of exercising deliberate and meaningful automatically devolve to the family.
choices consistent with an individual’s values (54). This can be further complicated in some cultures
Autonomy involves the right to receive medical infor- where adverse diagnoses, such as cancer, are not tra-
mation, the right of patients to make informed choices, ditionally shared with the patient. Anecdotal evidence
and the right to refuse medical treatment (55). for this can be found from countries such as Japan, Sri
The principle of autonomy implies that providers Lanka, and India. The family would make all the deci-
must treat people in ways that respect the patients’ sions in this case, under the conviction that the patient
views of what is appropriate (25;54). This means that is best left unaware of the actual diagnosis of terminal
the rights of patients who wish to have less autonomy illness. Health personnel aware of such traditions leave
are also respected. The right to autonomy does not the decision of breaking the news of the diagnosis to
force patients to be autonomous. the family. In this case, the definition of autonomy
Autonomy incorporates the concept of empower-
includes interaction between providers and the fam-
ment. Judges in some settings have characterized the
ily, as well as the patient. This concept is increasingly
right to refuse medical treatment as a necessary ele-
being challenged even in these countries, as family
ment of an individual’s right to self-determination and,
wishes may conflict with those of the patient.
in some instances, they have also recognized a right
The definition of autonomy provided by respon-
to privacy as a basis for treatment refusal (56). The
right of refusal is not absolute and must be considered dents in the WHO cognitive testing described earlier
alongside other factors such as public well-being and converged particularly on the desire of patients to be
the competence of a patient to make the decision. given a choice with regard to treatment. This implies
Charles, Gafni and Whelan identify four models that a system would be judged as more responsive if
of autonomy (57). The first is the paternalistic model providers discussed with patients all relevant treatment
where the provider makes all decisions on behalf protocols with an explanation of their relative merits,
of the patient because the provider is considered to than if they simply recommended the provider’s pre-
be better informed. The second model, termed the ferred option. This would give patients the opportu-
informed decision-making model, imposes the need nity to make any necessary trade-offs if they wished to
for information dissemination on the provider and the do so. Taking this into account, as well as the exten-
responsibility for decision-making on the patient. The sive literature on the topic, autonomy is defined here
professional agent model, the third, has the patient to focus on four issues:
willingly forego the right to decision-making by volun-
 the need to provide information to individuals (and
tarily and explicitly transferring the decision-making
their families where appropriate) about their health
task to the provider. The final model, shared deci-
status and risks, and about alternative treatment
sion-making, focuses on the sharing of both informa-
options;
tion and decision-making between the patient and the
provider. While these models are clearly demarcated  the need to involve the individuals (and their fami-
in theory, in reality many provider-patient relation- lies where appropriate) in the decision-making pro-
ships are a combination of these different approaches, cess to the extent that they wish this to occur;
varying by disease, patient profile, and interpersonal
dynamics.  the need to obtain informed consent in the context
In certain cultures, family opinions must also be of testing and treatment; and
added to the equation and there are various roles that  the right of patients of sound mind to refuse treat-
family or friends may play during the decision-making ment for themselves.
process: information gatherer, recorder or interpreter;
coaching the patient to ask certain questions; adviser; Choice
or negotiator on the patient’s behalf regarding timing,
place or treatment option (57). Where an individual The domain of choice relates to health care institutions
voluntarily rescinds a right to sole determination of and health providers. Choice is defined as the power
their own health care, health providers would be or opportunity to select, which requires more than one
expected to consult with family members either in the option (52). Choice also incorporates the ability of an
presence or absence of the patient, the choice being individual to gain a second opinion (possibly limited
578 Health Systems Performance Assessment

to cases of severe or chronic illness or surgery) and up-to-date with the latest practices. The debate rests
access to specialist care when needed (25). more on how the burden of the demand for choice
Debate with regard to this domain has centred on imposes on resource-constrained health systems. This
the burden imposed on health systems with shortages question can be answered empirically by determining
of human or financial resources. Providing the the relative weight people give to choice compared
population with choice could lead to limited resources to the other responsiveness domains, and the relative
that could otherwise have been used to improve health weight to responsiveness compared to health, in dif-
and other dimensions of responsiveness. Geographical ferent settings.
barriers might also make it very difficult for poor
countries to ensure that all people have similar levels Clarity of Communication
of choice.
In many societies, however, the barriers can be Clarity of communication is defined as the clarity in
procedural. They include lack of flexibility in refer- conveying information and evoking understanding
ral practices and insurance procedures or legislative (52). As a domain of responsiveness, it includes the
obstacles to the setting up of health care units. Choice notion that providers explain clearly to the patient
of personal primary health care provider was the most and family the nature of the illness, and details of the
important predictor of high consumer satisfaction in required treatment and options (62). It also includes
an evaluation of the impact of the Slovenian health providing time for patients to understand their symp-
reform (58). In the US, where choice is almost infinite, toms and to ask questions.
patient satisfaction surveys have become an important Individuals in the WHO cognitive testing
planning tool for ensuring the retention of “clients.” exercise interpreted the question on communication
A survey comparing health maintenance organizations consistently, referring both to receiving information in
(HMO) and preferred provider organizations (PPO) simple, non-technical terms and to having the provider
found lower scores in HMOs because of perceived lack listen to their problems and answer their questions.
of choice and need for referral approval. Subsequently, There was some overlap with dignity, in that they
HMOs found that the costs of reviewing and approv- would like a provider to treat them with respect and
ing (or, in some cases, denying) referrals exceeded to talk to them in a pleasant and attentive manner.
the savings resulting from the few denials, so it was This is consistent with the results of the EUROPEP
decided to eliminate referral review (59). study where patients valued being well-informed about
Individuals often seek to consult the same health their illness and feeling free to talk about it with their
provider on subsequent occasions, particularly if they providers (63).
are returning for the same complaint. In societies where Clarity of communication implies that the provider
there is a tradition of confidence and trust in health listens carefully to the concerns of the patient, and
providers, the option to consult the same person each explains about the symptoms and any related illness,
time is very important and can be a source of comfort its treatment, and implications. This should be done
even for minor ailments (60). Choice of care provider, in a manner that is understandable and permits the
therefore, includes the choice of consulting the same patient to ask follow-up questions (25).2 Maintaining
provider if desired as much as consulting a different such a dialogue is a demonstration of the respect a
doctor in the event of dissatisfaction with previous provider is showing the patient, but remains impor-
encounters. Patient preferences, however, can differ. tant in its own right. This combination of attributes
A study in Sweden found that older patients appreci- of communication and partnership has also been iden-
ated retaining the same family physician compared tified as an important aspect contributing to patient
to younger, more educated patients who appreciated satisfaction (64;65).
more the availability of free choice of physicians (61). Different types of communication can occur
There might also be gender differences in these prefer- between health providers and patients: social, non-
ences (43). In all of these cases, the ability to consult a problem focused talk; positive/partnership talk that
specific provider inspires confidence, and the ability to involves partnership statements, reiteration, approval
consult someone else if desired increases well-being. and agreement; psychosocial problem talk involving
Choice of health care provider can also improve concern, reassurance, psychosocial questions and
quality and health outcomes indirectly. Providers who counselling; disagreements; and medical questions
know that patients have an option are more likely to and medical information (43). It may be that all types
treat them with respect and to ensure that they are are important. For example, Gross et al. concluded
Health System Responsiveness: Concepts, Domains and Operationalization 579

that there was a positive relationship between longer defined in the U.S. National Information Infrastructure
visits and patient satisfaction (66), suggesting that Task Force in 1995 as “an individual’s claim to control
casual conversation creates a warmer atmosphere the terms under which personal information—infor-
for a clearer exchange of medical information sub- mation identifiable to an individual—is acquired, dis-
sequently. closed, and used” (70).
Communication involves allowing the time and As a domain of responsiveness, it is related to three
opportunity for the patient to ask questions and specific areas:
providing answers to them. Fostering a continuing
 the privacy of the environment in which consulta-
dialogue can help overcome social, psychological,
tions are conducted by health providers,
and structural impediments to communication (67).
A survey undertaken in the USA identified that 45%  the concept of “privileged communication,”
of the respondents felt that providers did not commu-  the confidentiality of medical records and informa-
nicate adequately (34). Communication was particu- tion about individuals.
larly of concern for inpatients at the discharge stage,
in terms of providing advice on follow-up and care The WHO cognitive testing results revealed that
requirements (34). Another survey of care provided there was consistency in the interpretation of the term.
by general practitioners in one city in each of four The respondents identified confidentiality as requir-
different high-income countries found that a common ing health personnel to keep the nature of their illness
source of dissatisfaction was that the practitioner did “secret” from others who are not concerned with
not communicate enough information (68). its treatment. The notion of not allowing others to
Factors that can improve communication include overhear conversations during consultations was also
the use of non-technical language, the frequency of mentioned, as was the concern that medical records
smiles and nods, the degree of eye contact, and voice be kept confidential.
quality. The use of a person’s mother tongue in the dis- An eight European country study conducted by the
semination of health information is also important in European Task Force on Patient Evaluations of Gen-
facilitating better patient-provider relationships. This eral Practice (EUROPEP) also showed that confiden-
need, however, imposes a burden on the health system tiality of patient information was among the aspects
in multi-ethnic societies and may necessitate the use most valued by patients (63). Although this type of
of interpreters in contexts where multilingual health confidentiality is a well-established principle in medi-
care providers are not available. It has also been sug- cal practice, its importance is sometimes under-appre-
gested that, in addition to being bilingual, there is a ciated by medical personnel (71).
need for providers to be bicultural in order to facilitate Privileged communication relates to the fact that
the provider-patient communication in multi-ethnic individuals are able to divulge information about
societies (69). themselves to health personnel with the conviction
The communication domain applies to all types that this information will be kept confidential. The
of contacts between the population and the health confidentiality of medical records is dependent on
system, not just to the clinical interactions between proper guidelines and training of health personnel,
a patient and a provider. For example, people need regardless of whether the records are kept electroni-
to understand what type of services they can obtain, cally or in paper form. It also requires that members
and where, as well as how to complete any paperwork of the health personnel do not discuss cases in a way
required for health insurance reimbursements (49). that permits confidential information to be transmit-
ted to the wider community. An important corollary
As with the other domains, communication can
of this aspect is that individuals may also require
improve health outcomes as people are more likely to
access to their own records. Rules for data security
absorb information if the system communicates well.
have been developed and found to be feasible, at least
However, good communication is also valued for its
in countries where the health system is well funded
own sake and it is for that reason that communication
(72;73). Training of health personnel and the existence
is included as a domain of responsiveness.
of physical infrastructure that protects privacy during
consultations are prerequisites for the safeguarding of
Confidentiality of Personal Information
confidentiality (63;71).
Confidentiality is defined as being entrusted with Health professionals sometimes face a dilemma
secrets (52). It is equated with privacy, which was between safeguarding patient confidentiality and the
580 Health Systems Performance Assessment

need to inform other people, particularly in trans- centres could find themselves too demoralized to treat
missible conditions where it is important to trace the their patients humanely (77)
source of infection and treat others who might require There is a close relationship between dignity and
it, as well as to protect other people from becoming the domains of communication, prompt attention,
infected (73). In the latter case, the emphasis has been and confidentiality. The way the health provider
on educating individuals of the risks involved in par- communicates with an individual, attends to his/her
ticular types of interactions, and on encouraging them needs promptly, and maintains the confidentiality of
to share the information voluntarily with others at any resulting medical information supports individual
risk. The onus of disclosure in such cases would be dignity. Conversely, lack of respect is associated with
on the patient, but health care providers could play a being shouted at or scolded, being ordered around,
role in inspiring such moves. In cases where ensuring and made to wait unreasonably. Morris, in her study
individual autonomy endangers others (such as in the on respectful treatment of patients in the US, under-
case of major public health threats), there is recourse lines the critical importance of this domain to patient
to established principles developed in international satisfaction (78). Her definition includes the notions
human rights law for deciding about the disclosure of of short waiting times at the facility and convenience,
personal information. These principles are examined both of which are parts of the domain of prompt atten-
in more detail in section four of the present chapter. tion in the categorization proposed here.
Dignity in the area of public health is as relevant
Dignity as in curative interactions between a patient and a
provider. There is growing evidence on the posi-
Dignity is derived from the Latin word dignus, mean-
tive health impact of negative imagery (79). How-
ing worthy, defined as the “state of being worthy of
ever, public campaigns, for example those aimed at
honour or respect”(52). The domain of dignity refers
preventing unsafe sex and HIV/AIDS, could, while
to receiving care in a respectful, caring, non-discrimi-
achieving positive health impact on those who do
natory setting (47).
not have HIV/AIDS, further stigmatize those with it
The cognitive testing at the seven sites referred
by using insensitive wording. Health care providers
to above revealed that “respect” was the term that
are responsible for treating individuals with dignity,
best defined dignity. The respondents were further
while at the system level, appropriate legislation helps
probed with another open-ended question requesting
to enforce this type of treatment. In addition to laws,
asking them to provide the meaning of respect. There
patient charters and guidelines developed in consul-
was a strong degree of consistency in the individual
tation with health providers help to ensure that all
responses, and the terms politeness, greeting, atten-
individuals are treated with dignity in their health
tion, listening, care, and not being scolded or shouted
encounters. The health educational system can play a
at, recurred frequently.
major role in training both the provider in the way he/
Hall and Dornan’s review of studies on patient
she should treat patients and the consumer regarding
priorities for general practice care finds that many
his/her rights. Positive incentives also have an impact
priority lists contain the desire for “‘humaneness”’ in
on provider behaviour towards patients.
health sector interactions (74). Privacy during medi-
cal examinations has been found to be important in
Prompt Attention
encouraging individuals to utilize health services.
The right to privacy in situations such as childbirth Prompt attention is defined as care provided readily
is stressed in Gilson, Alilio and Heggenhougen (75). or as soon as necessary (52). This domain includes
Privacy of the body, defined as preventing undue expo- people’s knowledge that they can have access to
sure of the body, is listed as a characteristic of dignity rapid care in emergencies, short waiting periods for
by both the nurses and patients surveyed by Walsh treatment and surgery even in the case of non-emer-
and Kowanko. Nurses also relate privacy to the space gencies, convenient times and modes for accessing
provided for patients to express emotions and to share curative and public health interventions, services
their feelings with family members (76). within easy travelling distance, and follow-up ser-
Dignity as a notion of respect for persons does not vices (5;25;29;68;77).
necessarily correlate with the amount of resources Responses during the cognitive testing covered the
spent on health. However, under-paid and over- range of situations described above, but all included
worked nurses in under-equipped primary health care the notion of being treated in a timely manner. In addi-
Health System Responsiveness: Concepts, Domains and Operationalization 581

tion to this idea of being treated quickly during an 2001, where the proportion of the population waiting
emergency, they included the ability to reach a facil- four months or more for elective surgery was 38%
ity, to make an appointment, to be attended once at compared to 5% in the USA (84).
a facility, to obtain medication to alleviate pain, and Achievement of prompt attention can be con-
to receive test results and diagnosis without delay. strained by at least two factors: a shortage of resources
Respondents from Nigeria and Slovakia also included such as personnel, and the lack of an efficient mecha-
the concept of respect in prompt attention, i.e. receiv- nism to smooth work flows over time. Geographical
ing answers to questions promptly, having their arrival accessibility is important, as is the knowledge that it is
at a facility acknowledged, and being attended in order
possible to access health care quickly in case of emer-
of arrival or appointment time. Respondents in Slo-
gencies (5). The use of mobile clinics to provide health
vakia indicated that the latter is not respected due to
services could be a way to give more prompt attention
bribes, a custom that favours the wealthy.
This dimension is not limited only to personal medi- for more remote rural communities (85;86).
cal services. The lack of prompt attention in terms of
the administrative process surrounding an encounter Quality of Basic Amenities
can also affect people’s well-being. For example, The domain of quality of basic amenities is related
delays in settling insurance claims or in issuing birth to the extent to which the physical infrastructure of
and death certificates can be a source of anxiety a health facility is welcoming and pleasant (52). It
(59). It is important in the context of non-personal includes clean surroundings, regular maintenance, ade-
services as well. Public health issues need to be com- quate furniture, sufficient ventilation, enough space in
municated in a prompt manner, particularly in areas
waiting rooms, and clean water, toilets and linen at the
such as outbreaks of diseases (80). Information on
institutional level (9;29;32;87). These are sometimes
preventive measures that can be taken to avoid disease
termed “hotel facilities” (88). Drugs, testing facili-
should be accessible and within convenient distance of
households. Health education messages should also be ties, and medical equipment are amenities included in
provided in a timely manner (81). the quality of care literature and are essential to the
These results are consistent with a number of outcomes of medical care. They are captured in the
strands of work in the existing literature. For example, health part of the WHO performance framework, and
in the context of emergency care, patient satisfaction therefore are not included in responsiveness (89). The
studies have focused on the knowledge of easy access quality of basic amenities domain is linked to health
to care if an emergency arises. Such knowledge creates facilities, whether they be inpatient or outpatient, and
a sense of well-being in addition to the benefit gained whether they provide services relating to promotion,
by actually obtaining the care (63). Although concep- prevention, treatment, or rehabilitation.
tually this aspect of prompt attention is important, Respondents at the cognitive testing in all the coun-
its operationalization is difficult because it relies on tries considered cleanliness and comfort as essential
an impression rather than the reporting of a person’s elements of this domain. Cleanliness included clean
actual experience. waiting rooms, wards, equipment, toilet facilities, and
In preparing his Patient Satisfaction Question- beds. Comfort included good ventilation, heating in
naire (PSQ), Ware identified seven dimensions of cold climates, roominess, and good quality water.
satisfaction that had been included most frequently The question of what level represents “talent” in
in previous patient satisfaction studies (5;82). Two
the sense discussed earlier, and what level is a legiti-
were related to our concept of prompt attention—
mate part of responsiveness, is particularly difficult to
accessibility/convenience and availability of services.
establish with this domain. Although the responses to
In Singapore, a review of complaint cases lodged with
the Family Health Service over a two-year period iden- the cognitive testing focused on cleanliness and space,
tified excessive waiting time among the top five com- individuals may associate more amenities as being
plaint areas. The study suggested that although this better, regardless of the current level. A patient sat-
was related to inadequate staff, waiting times could be isfaction survey in Bangkok, for example, found that
reduced by improving work flows (83). Similar results private, for-profit hospitals received lower ratings than
have been found in other settings (17). The percep- either public or non-profit hospitals, except in certain
tion of unreasonable waiting lists for non-emergency dimensions of amenities where they provided more
operations became a major political issue in the UK in than the other hospitals (90).
582 Health Systems Performance Assessment

Access to Family and Community Support tice alternative therapies (such as traditional medi-
cine) which are not contrary to the hospital health
Patient welfare is best served if individuals have
care regime. At a broader system level, this domain
access to their families and other community support
also captures whether family members of someone
networks during care (91).3 People who support the
who is ill received support and were kept informed
patient will help carry some of the weight of illness and
by medical personnel (33).
its consequences, and give strength to and encourage
Access to NGOs and community-based organi-
the patient (92;93). This domain is currently opera-
zations has helped resource constrained systems to
tionalized in the context of inpatient care only. It
improve responsiveness, particularly where patients
builds on the work of authors such as Friedland et
have no family networks to sustain them. In some
al. who argued that social support helps people cope
cases, such organizations interact with health care
better with the stress of illness and its consequences
facilities to improve the well-being of patients at the
(94). Changes in roles and relationships in a family,
income, and employment status due to illness add to institution, whereas in other instances, they focus on
this stress. They defined “social support” as the feeling providing company and comfort to patients in their
of being cared for and loved, valued, esteemed, and home environments (95). Health system responsive-
able to count on others should the need arise. This type ness is not determined solely by public sector health
of support can reduce stress, and health systems that providers. It is also influenced by providers in the pri-
facilitate this support will improve well-being indepen- vate and non-government sectors (96). Responsibil-
dently of any subsequent health improvement. ity for ensuring the entire system is responsive does,
This being said, the domain is not entirely sepa- however, lie with the government, which needs to be
rable from health improvements. Freidland et al. also able to encourage and influence the non-government
argued that the reduction of stress in this way is cor- sector to be responsive as well (7).
related with improved health outcomes, and Fadiman
claimed that allowing the family access to the patient Responsiveness and Related
influenced compliance among the Hmong communi-
ties found in Thailand and Laos (69).
Spheres
While health systems cannot be held responsible Responsiveness and Human Rights
for the types of bonds that exist between family mem-
bers and the extent of support patients receive from Human rights are guaranteed by international agree-
the people close to them, health systems can ensure ments and a “rights-based approach” to health heeds
that they provide an encouraging environment within the content of these agreements when implementing
which these beneficial interactions may occur. health policies. The major international treaties docu-
Responses for this domain in the cognitive testing menting human rights are the International Covenant
exercises indicated that the possibility of having regular on Economic, Social and Cultural Rights (ICESCR,
visits by relatives and friends was the most important 1966) and the International Covenant on Civil and
issue. Similar sentiments were expressed in a survey of Political Rights (ICCPR, 1966). In the human rights
Czech hospital patients using open-ended questions, approach, limiting the exercise or enjoyment of a
where the possibility of having visitors by the bedside right in the name of public health is a last resort and
was identified as one of the positive changes in the is considered legitimate only if each of the provisions
health system since the transition from a communist reflected in the Siracusa principles is met. 4 In the
state (21). In two countries during the cognitive test- responsiveness space, this means that some ways of
ing, the ability of family and friends to provide food improving health at the expense of reduced responsive-
to inpatients was also considered important. ness are not legitimate. A concern with responsiveness,
For all these reasons, the domain of access to family therefore, is consistent with a concern about human
and community support has been defined to include rights in health.
visiting rights of family and friends to inpatients, as Being treated with dignity whether one is suffer-
well as the right to receive food and other consumables ing from HIV/AIDS, leprosy, or mental illness, is
from family members if desired. It also comprises the an important element of human rights. Likewise,
opportunity to carry out religious and cultural prac- discriminating against the physically, mentally, edu-
tices that are not contrary to the sensitivities of other cationally, socially, economically, and politically dis-
patients or health care providers, and the right to prac- advantaged, in their encounters with the health system,
Health System Responsiveness: Concepts, Domains and Operationalization 583

is considered a violation of the human rights of these governmental and consumer organizations advocating
individuals. for patient or consumer rights.5
In practice, human rights in the health area are The responsiveness domains map well into patient
often concerned with the times where responsiveness rights laws and charters, as is the case with human
and health might work in opposite directions. For rights. The right to self-determination about care con-
example, compulsory testing for HIV/AIDS, incar- nects with autonomy; the right to information about
cerating individuals with certain communicable dis- the patient’s health status and treatment options is
eases, and enforced sterilization are possible ways of similar to communication; the rights to confidential-
improving population health, but they would reduce ity and being treated with dignity are both domains of
system responsiveness on the domains of dignity and responsiveness; the right of a patient to enjoy family
autonomy. Such actions are also widely considered as and spiritual support corresponds to the domain of
violations of human rights. The domains of respon- access to family and community support; and the right
siveness map well with the principles of a rights-based to humane terminal care is part of dignity.
approach to health (97). For example, autonomy
and communication involve seeking, receiving and Operationalization of the
imparting information, and correspond to freedom
of association in human rights. Likewise, confidenti-
Measurement of Responsiveness
ality involves privacy, and autonomy reflects people’s Once the common set of domains of responsiveness has
right to participate in decisions affecting their health been selected, there are challenges for measurement.
and well-being. The key issue of discrimination in Two are discussed in this section. The first concerns
the human rights field is reflected in a concern with how to define population responsiveness formally tak-
inequalities in responsiveness as described in the health ing into account the experiences of individuals across
systems performance framework (7). varying numbers of contacts with different parts of
the health system. The second is how to the measure
Responsiveness and Patient Rights population responsiveness based on this construct, in
a reliable, valid, and comparable manner. The section
Concern with patient rights has gained prominence concludes by discussing the challenges for the future
over the past few decades (35;36;55). In particular, development of measurement strategies.
obtaining patient consent for any invasive procedure It would theoretically be possible to observe peo-
has assumed additional importance because law courts ple’s interactions with a health system in some way,
have increasingly awarded damages for actions taken perhaps with direct observation or with cameras. This
without the patient’s permission. In 2000, an inter- is not practical and, in any case, someone would need
nal WHO review of legal and regulatory support for to decide whether the system was responsive to the
patient rights showed that there were entitlements to individual during that encounter. A further problem
patient rights under various laws in a diverse range is that while most domains of responsiveness can be
of countries including Algeria, Argentina, Australia, observed, dignity is more related to individual per-
Belgium, Bulgaria, Canada, China, Costa Rica, Den- ception. This mirrors the domains of health where
mark, Dominican Republic, Finland, France, Geor- some domains can be observed, e.g. mobility, and
gia, Greece, Hungary, Iceland, Israel, Kyrgyzstan, some cannot, e.g. pain. Accordingly, a more appro-
Lithuania, Luxembourg, Netherlands, New Zealand, priate approach to measuring responsiveness is to ask
Norway, Peru, Russia, San Marino, Spain, Sweden, individuals to report on their experiences using some
Switzerland, Turkey, UK, Uruguay, USA, Venezuela, form of questionnaire, including more than one ques-
and Viet Nam. tion (item) on each domain, each of which permits an
In some of these countries, the UK for example, answer (response) with an unequivocal interpretation
patient charters have been developed. The adoption of (increasing or decreasing responsiveness).
patient rights in legislation by no means guarantees its Overall responsiveness is then a multidimensional
effectiveness in delivering responsive health services, construct measured at the level of the individual,
but it is an indicator of the official acceptance of the where scores on each domain are retrieved from indi-
patient’s perspective as an important component of viduals and combined into a composite number. This
the quality of health systems. At the same time, there assumes there is some continuum of combined scores
has been recent growth in the development of non- which has directionality—the higher the combined
584 Health Systems Performance Assessment

score, the higher (or lower) the responsiveness, where use health services because of their poor responsive-
“higher” or “lower” refer to a technical choice of ness. This would require the ability to separate the dif-
the anchors at either side of the scale. This approach ferent causes of non-use in people requiring care and is
builds on a long tradition of “latent constructs” in the the subject of continuing work, but at this stage, zero
social sciences (98–100). is used as the responsiveness score for these people on
each domain. Methods for estimating the coverage of
Formalizing the Measurement of Respon- care in the counterfactual case of people not being
siveness excluded for reasons of cost, distance, or cultural
acceptability, are discussed in Shengelia et al. (101).
In any time period, people can be classified as hav-
ing the following types of experiences with the health The Level of Health System Responsiveness
system which serves them:
Responsiveness to an Individual
 inpatient care (hospitals and other long-term care
institutions); Having defined the different groups of people whose
experiences should be represented in any measure of
 outpatient or ambulatory care; population responsiveness, the first step to measur-
 interactions with the system that do not involve ing responsiveness encompasses the aggregation of
delivery of personal care, such as public health responses to question items on a particular domain
interventions, health insurance claims, etc.; for a given interaction or contact c:

 some combination of these experiences; dicj = f (xicj1 , xicj2, … , xicjn ) , [1]

 none of the above. where xicjk refers to respondent i’s response to encoun-
ter c, on the jth domain and for the kth item (where
An important question is how to treat people there are n items). Hence dicj is the domain result for
who have no interactions with the health system in individual i for encounter c on domain j. The f func-
a given time period. These people can be classified as tion includes a process of adjustment for the differ-
those who needed care but did not receive it for some ential use of cut-points or response options, within
reason, and those who did not need care in the time and across countries, described subsequently. On this
period. Expert meetings on the concept of responsive- basis, dicj is interval-scaled. Next, the responsiveness
ness concluded that non-users of the health system score for individual i during interaction c – ric can be
who should have received care should be included, expressed as:
on the grounds that their omission would produce
an overall responsiveness index without face validity ric = g(dic1 , dic2, … , dicm) [2]
(49). It would allow, for example, the average respon- where g is an aggregation function of domain scores 1
siveness of a system that excludes a large proportion to m. This function could be a global, country-specific,
of its population from obtaining care, but which is or individual-specific aggregation function, or it could
very responsive to the minority of the population who be specific to a particular type of encounter, e.g. the
receives care, to be higher than that of a system which relative weights of the various domains might differ
does not exclude anyone, but which is not able to be for outpatient and inpatient encounters. However, for
as responsive to each person. the purposes of exposition, we retain a single aggre-
This implies that health system responsiveness is gation function g. Conventionally the g function
defined for the counterfactual scenario in which all comprises some weighted or unweighted summation
people who needed to interact with the system in any procedure, but it may also include some transforma-
time period did so. People who needed care, but did tion function of item scores, or of the resulting domain
not receive it—here called “denied users”—would be scores (e.g. normalizing). We argue that the weights
included in the analysis. This requires some way of should be determined by the preferences expressed by
measuring a responsiveness score for them. the population, and a description of how this has been
One possibility is to rate responsiveness on each operationalized using nationally representative sample
domain as zero for these people. Another is to try to surveys is found in Valentine and Salomon (102).
determine the level of responsiveness considered so The experience of each individual across q different
bad that people would prefer to avoid seeking care, encounters (c) , or the individual’s overall responsive-
and to use this as the score for patients who did not ness score, ri , can be denoted as:
Health System Responsiveness: Concepts, Domains and Operationalization 585

ri = h(ri1 , ri2, … , riq) [3] scores for the p individuals in the system and can be
expressed as:
where h is the aggregation function across all the
individual’s contacts during a given time period. R = y (r1 , r2 , … , rp) [4]
There are many possible ways to aggregate where y is an aggregation function.
responses over these contacts described in function h. If the system responsiveness to all individuals
The guiding principles are: counted equally, the aggregation would be:
 that weights used in the aggregation process should p
be a function of the importance of each event to the R= Σ r /p
i
i
[5]
individuals;
where p is the number of people with at least one con-
 the importance of each contact or interaction (as tact with the system during the period, plus the denied
opposed to domain importance described by func- users. As shown earlier, this would give equal weight
tion g in equation [2]) is some monotonic function to the system’s responsiveness to someone who had
of the duration of the contact with the system—the used the system for five minutes during period t, and to
longer the interaction, the greater the weight given someone who was hospitalized for a large part of the
to the responsiveness score for that interaction. time. On the other hand, a purely time-based weight-
Importance might also be influenced by factors such ing system, analogous to that described for function h
as perceived severity or the nature of the event. in equation [3], could be defined. The weight attached
to each individual’s responsiveness score ri would be
One strategy would be to treat all contacts or inter- the proportion of total population contact time con-
actions equally, but this would give equal weight to tributed by that individual during period t. (Popula-
encounters lasting five minutes and those lasting five tion contact time would include the contact time that
days. It would also give equal weight to an inpatient should have been attributed to denied users.)
stay of 30 days and an application for health insur- The disadvantage of this approach when aggregat-
ance lasting 20 minutes. It would violate the principles ing across individuals is that the length of a particular
described above. An alternative would be to base the interaction in some countries is correlated with insur-
aggregation function on the time spent in each encoun- ance status, income, or social standing, independent
ter. In that case, ric would be multiplied by the propor- of severity. It would mean that system responsiveness
tion of the individual’s total contact time in period t to the insured or the rich, for example, would count
contributed by contact c. more in the overall responsiveness index than that
Yet another approach would be to base weights on of the poor, whose interactions for identical condi-
expressed preferences of the population as suggested tions have shorter duration. A modified time-based
for weighting function g in equation [2]. This might approach in which the weights were based on the
involve asking individuals to weight the importance time for each encounter under the counterfactual
of their different interactions with the health system that all people receive standard, good quality atten-
in any given period. tion for that encounter would overcome this problem.
The responsiveness scores would be zero for the Ways of applying this approach to aggregation func-
group of individuals who needed to interact with the tions h (equation [3]) and y (equation [4]) are being
system but were not able to do so. However, some peo- explored.
ple might have received some care, but been “denied” In addition to being defined at the population level
other types of interactions, raising the question of how (equation [4]), responsiveness can be defined for each
to develop time-based weights for the different types individual (equation [3]). It could also be defined for
of interactions in those cases. For the denied interac- a particular type of institution (e.g. hospitals) by lim-
tions, the average time per encounter for that type of iting the analysis of equation [3] to people who had
interaction in the population who received it, could contact with that institution. Or it could be analysed
for particular types of contacts with the system, e.g.
be used as the weight.
outpatient contacts, or contacts with the administra-
tive system, by restricting the focus of c in the equa-
Health System Responsiveness
tions to those contacts. This gives responsiveness
The population responsiveness score, R, would be major practical value in the eyes of policy-makers at
the combination of the individual responsiveness all levels of the system.
586 Health Systems Performance Assessment

Inequality in Responsiveness assumes that there is a true or latent scale for each
domain. The measurement and analytical approach for
The WHO performance assessment framework
transforming the categorical responses to a continuous
focuses attention not only on the average level, but
scale are discussed in detail elsewhere (104).
also on inequalities in health system responsiveness.
Validity can only be established in an indirect way.
Inequalities can be assessed by considering the distri-
In the context of measurement of a latent variable
bution of responsiveness scores across individuals (ri ).
at the individual level, specific questions have been
Total inequalities in responsiveness can be measured shown to ensure greater validity than general ones
using one of the available summary measures of the (55). For example, in the question on choice, the
dispersion of the distribution, such as the coefficient general version of the question would be to ask if
of variation (103). In addition, the characteristics of the respondent feels free to choose his/her provider,
the individuals in the lower tail can help to identify whereas the specific form is to ask whether the respon-
vulnerable or marginalized groups, as well as allow the dent was free to choose the desired health provider
analysis of responsiveness to particular groups, such the last time he/she sought care. The specific form of
as the poor, women, or ethnic minorities. asking about the most recent encounter has been used
in the instruments developed by WHO to measure
Practical Limitations and Solutions responsiveness. In addition, observation studies are
For the World Health Survey, it was not possible to currently being conducted using the facility surveys
ask respondents about all their interactions with the described in Annex 43.2. These studies have been
health system in the past year. Neither has a method designed to test for validity.
been devised to examine the responsiveness of non-per- The measurement approach used in the two recent
sonal interactions, such as public health interventions WHO population survey studies (WHO Multi-country
delivered through the media. Attention was focused Survey Study on Health and Responsiveness 2000–
on inpatient and outpatient encounters. Respondents 2001 and the World Health Survey) requires respon-
were asked if they 1) had inpatient care in the previous dents to rate their interaction with the system into
five years, and 2) had ambulatory care in the the previ- different categories. Other questions called “vignettes”
ous year. Respondents reporting care in both settings also make respondents characterize a standard set of
were asked to report on inpatient care only. hypothetical stories into categories. These two pieces
All respondents reporting encounters were asked of information help to determine the individual’s cut-
about the most recent experience. The assumption is points. A cut-point is a technical term describing the
that the responsiveness derived for each individual quality of the experience that causes a respondent to
and for each encounter represents the responsiveness change his/her evaluation of the experience from one
to that person for all similar encounters during the category to another. The implicit cut-points used by
time period. The survey contains information on effec- people in their responses might differ; i.e. for the same
tive coverage and whether respondents were not able experience of being greeted with respect, one respon-
to access services for some reason. The responses to dent might rate the experience “good,” while another
those questions will be used to assess if it is possible to rates it “very good” on a five category scale (“very
identify denied users. With this information, the final good,” “good,” “moderate,” “bad,” “very bad”). It
weighting function for the three types of experiences is necessary to take this variability into account when
will be decided, taking into account the utilization aggregating responsiveness across individuals, and
patterns in the different settings. comparing it across populations and systems.
Expectations have been defined as an individual’s
beliefs regarding desired outcomes, which are related
Measurement Validity, Comparability and
to a spectrum of personal experiences (89). While for
Reliability
some people a wait of six months for non-emergency
Household surveys are the most feasible means of col- surgery is normal, for others, waiting one month
lecting information on patient experiences. In order to would be unacceptable. WHO has introduced the use
do this, each domain of responsiveness needs to be a of vignettes that describe the hypothetical encounter
sufficiently coherent construct that can be measured of an individual with the health system, to deter-
using a cardinal or ordinal scale. The questionnaire mine if groups of individuals (for example living in
approach in which respondents are asked to catego- different countries, or those with different levels of
rize their experiences into specific response categories, education) systematically rate the same scenario dif-
Health System Responsiveness: Concepts, Domains and Operationalization 587

ferently (104). This technique has been also applied an unequivocal interpretation across cultures is a par-
by Campbell to identify whether a patient’s perception ticular challenge.
of medical urgency was influenced by his/her socio- A full description of the domain items and a com-
economic condition (105). A systematic difference in parison with the Multi-country Survey Study and the
the use of cut-points across individuals or groups can World Health Survey is contained in Annex 43.1.
be captured and used to adjust the responses on the Materials related to the World Health Survey are also
individual’s own experience to make them comparable available (51). Domain validity checks inserted in the
with the responses of others. These vignettes also assist responsiveness module are available for the domains
in identifying cultural differences in how people rate of choice, dignity, prompt attention, and quality of
experiences using categorical scales, and ensure that basic amenities (see Annex 43.1 for details). Further
the final measure of responsiveness can be compared studies of validity also form part of the facility survey
across populations. exercise described in Annex 43.2.
Reliability has several faces: the repeatability of A final question relates to how system responsive-
scores for the same individual at different points in ness to children should be evaluated. On the basis of
time, between the individual and an observer, and expert advice (108), it was considered acceptable to
between two ways of data collection for the same allow parents to respond for the experience of their
individual. The stability of the concept or its compo- children up to the age of 12 years. Accordingly, in the
nents can also give clues to reliability: for example, do WHO survey instruments, the parent who was pres-
the responses to all questions relating to one domain ent at a child’s last encounter with a health provider
show the same pattern? is asked to report on the child’s experience. These
In order to maximize reliability, an extensive pro- responses might be biased if the adult reports on his/
cess of instrument development was undertaken, her own experiences rather than the ones of the child,
involving field-testing as well as consultations with but as yet no better way of understanding the system’s
experts (106). Item selection took place over a period responsiveness to children is available.
of three years and included testing in more than 60
countries as part of the WHO Multi-country Survey Future Developments in Measuring
Study on Health and Responsiveness. The psycho- Responsiveness
metric properties of the responsiveness items used in Responsiveness is a new concept. Although it builds on
that study (107) were evaluated with additional help the work of the patient satisfaction and quality of care
from outside experts. Ten of the fifteen items used in literature, its measurement within and across countries
the Multi-country Survey Study were found to need is in its infancy. Work is continuing, for example, to
only minor changes in wording. Five new items were determine how best to measure responsiveness for
added and a revised responsiveness module incorpo- individuals who have had multiple contacts with the
rating them was tested in a six-country pilot study. health system in a given time period, and for denied
The module was then finalized using a combination of users. Some additional questions and qualifications
information on psychometric properties and qualita- are also important.
tive information from cognitive interviews in the six First, individuals can have a limited vision of
countries. The wording of some items was changed domain performance for some domains so their self-
slightly based on an assessment of face validity of reports might not fully reflect system responsiveness.
the responses, and some of the items that duplicated For example, on the domain of confidentiality, patients
common themes but used different response options might know that their conversations with a provider
were dropped (a list of the Multi-country Survey Study took place in private, but are less likely to know who
questions is given in Annex 43.1). Table 43.2 shows has access to their medical records.
the items covered in the World Health Survey. Second, limited interactions with the system that
There are other challenges in designing any ques- did not require an inpatient or outpatient visit have
tionnaire, particularly one that will be used in differ- not been included in the analysis of responsiveness
ent cultural settings. For example, it is important to in the two WHO survey studies. Work is continu-
establish partially overlapping questions (items) for ing to determine how to evaluate interactions such
any domain which permit an answer (response) with as applications or claims for health insurance, and
an unequivocal interpretation (increasing or decreas- population responses to public health interventions
ing responsiveness). To do this in a way that will have such as a media campaign to reduce tobacco con-
588 Health Systems Performance Assessment

Table 43.2 Operationalization of the domains in the World Health Survey 2002
Responsiveness domains World Health Survey 2002 *
Domain label Short description Items for patients and close others (as parents)
Autonomy Involvement in decisions * How would you rate your experience of being involved in making decisions
about your health care or treatment
How would you rate your experience of getting information about other types of
treatments or tests 1

Choice Choice of health care How would you rate the freedom you had to choose the health care providers
provider that attended to you

Communication Clarity of communication * How would you rate the experience of how clearly health care providers
explained things to you
* How would you rate your experience of getting enough time to ask questions
about your health problem or treatment 1

Confidentiality Confidentiality of personal * How would you rate the way the health services ensured you could talk privately
information to health care providers
* How would you rate the way your personal information was kept confidential 1

Dignity Respectful treatment and * How would you rate your experience of being greeted and talked to respectfully
communication * How would you rate the way your privacy was respected during physical
examinations and treatments 1

Quality of basic Surroundings * How would you rate the cleanliness of the rooms inside the facility, including
amenities toilets
* How would you rate the amount of space you had 1

Prompt attention Convenient travel and short How would you rate the travelling time to the hospital
waiting times How would you rate the amount of time you waited before being attended to 1

Access to family and Contact with outside world How would you rate the ease of having family and friends visit you
community support and maintenance of regular * How would rate your [child's] experience of staying in contact with the outside
activities world when you [your child] were in hospital 1

* Similar items appear in the Multi-country Survey Study.


1 Item dropped for the short version of the World Health Survey.

sumption or spraying of mosquitoes in city streets or Policy Uses and Challenges


swamps. Finally, responsiveness is valued for its own
sake as one of the three intrinsic social goals to which This section is concerned with how information on
health systems contribute. This section has described responsiveness can be used to improve health systems.
a method of measuring this key outcome of health sys- The first part focuses on the use of the nationally rep-
tems. Responsiveness is, however, also instrumental to resentative information that is currently being col-
the achievement of the health goal—people are more lected through the World Health Survey. The second
likely to seek care and to follow instructions of health considers the trade-off between undertaking nationally
providers in a responsive system. The dimensions of representative population surveys and obtaining infor-
mation at the facility level. The third outlines several
prompt attention, dignity and communication may be
remaining policy challenges.
particularly important in this respect, and interestingly,
the respondents to the Multi-country Survey Study
Uses of National Responsiveness Infor-
questions on the relative importance of responsiveness
mation
domains consistently rated these as the most important
domains (102). Further work is continuing to explore The first use for this type of information is at the
if it can be demonstrated that more responsive systems political level. The Multi-country Survey Study asked
result in higher levels of population health, holding respondents in 61 countries to rate the relative impor-
other determinants constant. tance of responsiveness, health, and the fairness in
Health System Responsiveness: Concepts, Domains and Operationalization 589

household financial contribution. Responsiveness was experiences with the health system and the introduc-
rated as being only slightly less important than health tion of policies to improve responsiveness. Questions
and more important than fairness in financial contri- relating to measurement were discussed earlier.
bution (108). Intermittent surveys provide people with On the policy side, improving responsiveness will
the opportunity to outline their experiences with the require understanding the linkages between training,
system, and policy-makers and politicians are then in provider payment incentives, and working environ-
a position to improve health systems performance. The ments. The role of incentives versus more coercive
surveys would show which domains were most criti- arrangements to improve responsiveness, such as
cal to improve, allowing policy to be developed that legislation and professional guidelines, also requires
is specific to a particular country, region, or popula- exploration. One option might be the establishment of
tion group. a responsiveness Ombudsperson to compile informa-
Second, information on inequalities in responsive- tion on the state of health system responsiveness and
ness can be used to direct system resources to worse- to receive and investigate complaints. The Ombud-
served populations. Because responsiveness may be sperson could make national, subnational, or even dis-
instrumental to health, this would improve not only ease-specific information available to decision-makers
responsiveness, but also health. and to the general population.
WHO has recently embarked on a project to
Source of Information: National develop analytical guidelines for empowering gov-
Population Surveys versus Facility Level ernments to undertake independent policy-relevant
Surveys analyses of the responsiveness of their health sys-
tems. Other approaches for institutionalizing the
These two sources of information are not mutually
measurement and use of responsiveness information,
exclusive, having different uses, costs, and implica-
and translating them into actions to improve health
tions for ensuring validity. Household surveys have
systems performance, will emerge as research in this
three main advantages over facility surveys. First,
field deepens.
confidentiality of information can be more difficult
to assure in facility-based surveys because facility users
might be hesitant to describe their true experiences for Acknowledgements
fear of being recognized with adverse consequences.
The authors would like to acknowledge the contri-
Second, facility surveys cannot provide information
butions of Gouke J. Bonsel, Juan Pablo Ortiz, René
on non-users and reasons for non-use. Finally, they
Lavallée, Ritu Sadana, Geneviève Pinet, Richard Poe,
do not allow interactions between the population and
Helena Nygren-Krug, and Daniel Wikler (Harvard
aspects of the health system which are not based at
School of Public Health), and the panel of ethicists
curative facilities to be explored, such as public health
he assembled to discuss the ethics perspective on the
interventions.
domains.
On the other hand, a facility survey allows a more
in-depth exploration of interactions between patients
and provider, and can be less expensive. There can also Notes
be a much closer link between the measurement of per-
1 An important step to refining the choice and meaning of
formance and changing the behaviour of providers in
domains was the use of cognitive testing at survey sites
a way that will improve responsiveness. Because of the in seven countries in July–August 2000, as a follow-up
usefulness of both approaches, WHO has developed to pilot household surveys undertaken in these countries.
two types of instruments: a household survey module They included a total of 171 respondents from China,
and a facility survey module. The latter is still in the Egypt, Georgia, India, Indonesia, Nigeria, and Slovakia.
early testing phases. More details on both types of Individuals were asked open-ended questions to give their
survey instruments, as well as on the key informant definition of the domains used in the survey.
survey instrument are found in Annex 43.2. 2 The original selection of responsiveness domains based
on the review of literature and questionnaires (47) did
not include communication as a separate domain, but
Challenges
included elements of communication under both the
In spite of the vast body of literature on patient satis- domains of dignity and autonomy. The expert meeting
faction and quality of care, there remain a number of in December 1999 recommended that it be considered
challenges for the quantification of the population’s as a separate domain and after further review, this was
590 Health Systems Performance Assessment

done in mid-2000 and incorporated into the WHO Multi- (9) Haddad S, Fournier P, Potvin P. Measuring lay percep-
country Survey Study questionnaire. tions of the quality of primary health care services in
developing countries. Validation of a 20 item scale. In-
3 This domain was previously titled “access to social sup-
ternational Journal for Quality in Health Care, 1998,
port networks.”
10:93–104.
4 The Siracusa principles on the limitation and derogation (10) Applied Research Corporation. Patient feedback survey
provisions in the international covenant on civil and
(executive summary) prepared for Casemix task force,
political rights comprise: (Reference: UN Doc. E/CN.4/
Ministry of Health, Singapore & Health Corporation
1985/4)
of Singapore. Applied Research Corporation, 1999.
 The restriction is provided for and carried out in accor-
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 The restriction is in the interest of a legitimate objec- 39(9):390–395.
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(12) Palmer N et al. A new face for private providers in de-
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 The restriction is provided for and carried out in accor-
and act on client satisfaction data in Niger. Operations
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Research Results 1(1). Published for the U.S. Agency
 The restriction is not drafted or imposed arbitrarily, for International Development (USAID) by the Quality
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Annex 43.1
Comparison of Responsiveness Domain Questions to
Respondents about Their Own Experiences in the MCSS
and the WHS
Responsiveness domains World Health Survey 2002* Multi-country Survey Study
Short Items for patients and Items used for
Domain label description close others (as parents) internal validity checks Items for patients
Autonomy Involvement *How would you rate your How would you rate the way How often did doctors, nurses or
in decisions experience of being involved health care in your country other health care providers involve you
in making decisions about involves you in deciding what in deciding about the care, treatment
your health care or treat- services it provides and or tests?
ment? where it provides them? How often did doctors, nurses or
How would you rate your other health care providers ask your
experience of getting informa- permission before starting the treat-
tion about other types of ment or tests?
treatments or tests? Rate your experience of getting in-
volved in making decisions about your
care or treatment.
Choice Choice of How would you rate the Thinking of the last time you Health care providers available to you,
health care freedom you had to choose needed to see a health care how big a problem, if any, was it to get
provider the health care providers that provider who could treat a health care provider you were happy
attended to you? your condition, how many with?
were there around who you How big a problem, if any, was it to get
could chose from? to use other health services other than
the one you usually went to?
How would you rate your experience
of being able to use a health care pro-
vider or service of your choice?
Communication Clarity of *How would you rate the ex- How often did doctors, nurses or
communica- perience of how clearly health other health care providers listen care-
tion care providers explained fully to you?
things to you? *How often did doctors, nurses or
*How would you rate your other health care providers, explain
experience of getting enough things in a way you could understand?
time to ask questions about *How often did doctors, nurses or
your health problem or other health care providers give you
treatment? time to ask questions about your
health problem or treatment?
Rate your experience of how well
health care providers communicated
with you in the last 12 months.
Confidentiality Confidentiali- *How would you rate the way How often were talks with your
ty of personal the health services ensured doctor, nurse or other health care pro-
information you could talk privately to vider done privately so other people
health care providers? who you did not want to hear could
*How would you rate the way not overhear what was said?
your personal information How often did your doctor, nurse or
was kept confidential? other health care provider keep your
personal information confidential?
This means that anyone whom you did
not want informed could not find out
about your medical conditions.
Health System Responsiveness: Concepts, Domains and Operationalization 595

Responsiveness domains World Health Survey 2002* Multi-country Survey Study


Short Items for patients and Items used for
Domain label description close others (as parents) internal validity checks Items for patients
Dignity Respectful *How would you rate your Discrimination (were you How often did doctors, nurses or
treatment and experience of being greeted treated worse because other health care providers treat you
communica- and talked to respectfully? of....sex, religion, etc.?) with respect?
tion *How would you rate the way How often did the office staff, such as
your privacy was respected receptionists or clerks there, treat you
during physical examinations with respect?
and treatments? How often were your physical exami-
nations and treatments done in a way
that your privacy was respected?
How would you rate your experience
of being treated with dignity?
Quality of basic Surroundings *How would you rate the How many people slept in the How would you rate the basic quality
amenities cleanliness of the rooms same room as you (inpatient of the waiting room, for example,
inside the facility, including only)? space, seating and fresh air?
toilets? How would you rate the cleanliness of
*How would you rate the the place?
amount of space you had? How would you rate the quality of
the surroundings, for example, space,
seating, fresh air and cleanliness of the
health services?
Prompt Convenient How would you rate the Did you not seek health care How often did you get care as soon as
attention travel and travelling time? because... you were denied you wanted?
short waiting How would you rate the health care?.. How would you rate your experience
times amount of time you waited How long did it take you to of getting prompt attention at the
before being attended to? get there (in minutes)? health services?
How did you get there?..
Access to family Contact How would you rate the ease How big a problem, if any, was it to get
and community with outside of having family and friends the hospital to allow your family and
support world and visit you? friends to take care of your personal
maintenance *How would you rate your needs, such as bringing you your favou-
of regular [child’s] experience of staying rite food, soap etc..?
activities in contact with the outside How big a problem, if any, was it to
world when you [your child] have the hospital allow you to practice
were in hospital? religious or traditional observances if
you wanted to?
How would you rate your experi-
ence of how the hospital allowed you
to interact with family, friends and to
continue your social and/or religious
customs?
* Similar items to those in the Multi-country Survey Study
Annex 43.2
Data Collection Modes Developed by WHO

There are four main types of surveys currently being based surveys that have been used in the Multi-country
used or tested by WHO to measure responsiveness. Survey Study (50). Like postal surveys, this type of
They are: administration is not an option in many middle- and
low-income countries where the poorer segments of
 facility surveys,
society do not live in locations with fixed addresses
 population-based surveys, and postal service remains very unreliable. In some
countries (middle and high-income countries) tele-
 interviewer-administered (face-to-face or by tele-
phone surveys are more efficient.
phone) questionnaires,
 postal/self-administered questionnaires, and Postal/Self-Administered
 key informant surveys. The postal survey is also designed with the goal of
selecting a representative population sample. The main
difference between interviewer-administered and self
Facility Surveys (respondent)-administered surveys is the need to cre-
The main purpose of the responsiveness facility survey ate a visually striking instrument in order to make
instrument currently being tested is to compare the people answer and hence increase the response rate.
respondent’s report of care with what is observed or This instrument is not an option in many middle- and
reported on at the facility itself. A secondary purpose low-income countries where the poorer segments of
of the facility surveys is to assess the correlation of society do not live in locations with fixed addresses
certain aspects of the functions (e.g. stewardship) with and postal service remains very unreliable.
responsiveness.
The facility survey consists of four components:
Key Informant Surveys
 interview with management,
“Key informant” surveys represent a low-cost means
 interview with staff, of obtaining information on responsiveness. While this
information only reflects “expert opinion,” work is
 observation and collection of documentation on
currently under way to assess the extent to which this
patient complaints, and
opinion may provide a useful prior on health system
 exit interviews with patients. responsiveness. In addition, key informants may pro-
vide information on aspects of responsiveness that are
more difficult for the general population to evaluate
Population -based Household (e.g. confidentiality of medical records—knowledge of
Surveys this would require knowledge of the laws of a country
and the workings of the health system, information
Interviewer-Administered
few ordinary citizens have).
As responsiveness is best measured by the reporting Key informant survey respondents can be sampled
by individuals of the well-being gained from an inter- in a variety of ways (e.g. snowballing, a process
action with the health system, the household survey whereby the key informant contacted generates a list
instrument is the best mode of capturing this experi- of other key informants; an air pollution specialist
ence. Household surveys usually sample respondents would then give names of other air pollution special-
in a probabilistic manner and are nationally repre- ists), but it usually involves non-probabilistic sampling
sentative. methods. This makes it difficult to analyse with the
Telephone surveys are also a form of population- usual statistical tests for significance.
PRELIMINARY

Chapter 44
DRAFT
NOT FOR DISTRIBUTION

Classical Psychometric Assessment of the


Responsiveness Instrument in the WHO
Multi-country Survey Study on Health and
Responsiveness 2000–2001
Nicole B. Valentine, René Lavallée, Bao Liu, Gouke J. Bonsel,
Christopher J.L. Murray

Introduction The Framework for Instrument


The purpose of this chapter is to present the psycho- Development
metric properties of the responsiveness module used The various issues, criteria, and approaches to con-
in the WHO Multi-country Survey Study 2000–2001. structing such an instrument, in particular in the
The responsiveness module measured the quality of case of health measures, have been well documented
aspects of the interaction between individuals and the (6;7). These issues are presented in Table 44.1. The key
health system that have the potential to improve well- assumption of the concept of responsiveness is that the
being, focusing on those aspects which are additional same domains are relevant to everyone, regardless of
to the improvement in health. The concept was devel- nation, culture, and stage of economic development.
oped out of a review of the previous work relating to Beyond this assumption, operationalization meets
quality of care, quality of life, and patient satisfaction the traditional difficulties associated with transla-
(1–3). Eight domains of responsiveness were identified, tion of value-laden and context-dependent words or
and a questionnaire was developed to explore people’s language.
interactions with the health system on these domains: The first part of instrument development involves
dignity, autonomy, confidentiality of information, the description and theoretical foundation of the con-
communication (of information), prompt attention, cept, and the item selection for the questionnaire. The
quality of basic amenities, access to family and com- theoretical development of the responsiveness concept
is described elsewhere and not repeated here (4). To
munity support,1 and choice (of health care provider).
operationalize the concept in a questionnaire, it is nec-
A full description of the domains is found in de Silva
essary to select items and appropriate response cat-
A et al. (4).
egories. Starting with a pilot set of items and a global
Between 2000 and 2001, the responsiveness module
structure of the questionnaire, the instrument’s feasibil-
(or instrument or questionnaire; these terms are used
ity, reliability, and validity are established, whereupon
interchangeably in this chapter) was implemented in a the questionnaire may be further improved. This pro-
comprehensive household survey in 60 countries (70 cedure is reiterated until quality is thought to be suffi-
surveys2). Data collection involved face-to-face and cient. Finally, distributional characteristics of response
telephone interviews, as well as self-administered inter- patterns are established. In questionnaires pertaining
views. This chapter starts with a brief introduction to health and health care with intended multinational
to the framework adopted to develop the responsive- or cross-cultural use, particular attention should be
ness instrument. The rest of it focuses on the psycho- paid to general applicability and transferability. The
metrics of the questionnaire from the perspective of word “psychometrics” is used to describe the ultimate
operational contents (items) and countries, refraining quality of the instrument.
at this stage from an analysis from the perspective of The second phase relates to feasibility—the ease
characteristics of individuals (1;5). of administering the instrument in the field and the
598 Health Systems Performance Assessment

Table 44.1 Criteria and approaches for constructing an instrument


Issue Discriminative criteria Approaches
Item and response 1. Tap important components of each domain of 1. Theoretical basis/philosophy, literature review, focus
scale selection responsiveness group technique
2. Selection of operationalization theory 2. Check context
3. Universal applicability to respondents; includes 3. Specific translation and transcultural comparison
transferability/translatability protocol
4. Initial measurement level; absolute versus relative 4. Qualitative scale, semi-quantitative scale (grading),
response mode (e.g. trade-off) numerical scales
5. Source of information 5. Population (sample), representatives, direct observation
Feasibility 1. Technical performance 1. Technical analysis
– Time to respond
– Missings, skip patterns
2. Flexibility 2. Suitable for different types of response modes,
dependence on external support
Reliability Stable results across time (“test-retest”), observers, and All types of analysis of variance, of which standard test-
mode of asking, etc. retest kappa metrics are one
Validity Note: depends on operationalization theory Two approaches are prevailing, depending on the degree
to which the concept is thought to be unidimensional and
ranked [classical psychometric analysis vs. item response
theory (IRT)]
1. Construct validity (parallel measures, [dis]similarity 1.,2. Testing differences in measures among groups
in known groups) expected to differ, based on hypotheses; this includes
2. Criterion (predictive) validity convergent and discriminant validity; relevance of size
3. Sensitivity of measure (in psychometrical terms we 3. Self-reported with other measures/indicators of health
use this word to avoid any confusion with the term when available
“responsiveness” normally used in psychometric
literature) to allow interpretation of scale for
improvement
Adapted from Sadana et al. (2000), Table 1.

instrument's flexibility. Instrument flexibility refers po − pe


k k k k

to its suitability to different types of response modes, K=


1 − pe
, where po = ∑∑ i =1 j =1
∑ ∑ w p .p.
wij pij , K pe =
i =1 j =1
ij i j

and the extent to which administering the instrument


and pi . = ∑ p ,K p. = ∑ p
ij j ij
depends on external features. Using health instruments j j
as an example, the measurement of vision using Snel-
len-E chart would be affected by the size of the room where i is the rating by the first rater and j is the rat-
in which the respondent is interviewed, and these ing by the second rater, po the observed proportion of
difficulties cannot always be avoided by standard- agreement, pe the expected proportion of agreement,
izing procedures. For example, the distance between and k is the number of response categories.
the respondent and the chart might be too short in 2
 (i − j) 
some settings where rooms are small. Techniques w = 1−  
such as analyses of missing rates, time to administer  (k − 1) 
the questionnaire, and skip patterns, are examples of is the weight associated with the degree of deviation
approaches for assessing technical performance. from a perfect repetition of the rating.
The third phase relates to reliability. It is desirable Another type of reliability, also related to con-
for there to be stable and minimal variation in the struct validity, is the homogeneity of items within the
responses across time and interviewers. Between indi- assumed construct or domain. Correlations of scores
viduals and between raters, measurement correlation for items within a domain and between domains pro-
can be estimated using Kappa reliability statistics, K, vide some information on the extent to which items
calculated as: form part of the same construct. These results should
Classical Psychometric Assessment of the Responsiveness Instrument 599

be reviewed in conjunction with other information improvements and further psychometric testing that
from qualitative tests including item-concept mapping would be useful.
and cognitive interviews.
The fourth phase relates to validity. Several features
of validity can be defined. Construct validity refers to Module: Content, Items,
the validity of the measure with respect to the origi- and Structure
nal construct. Is the instrument measuring what it is
intended to measure? Testing theories of association Content
between the measurement and other known variables The responsiveness module contained questions on
can assess this. For example, measured tests of wait- the eight domains of responsiveness. The questions
ing times and distances travelled can be contrasted focused on people’s encounters with health providers
with reports on prompt attention. Confirmatory on two levels: encounters with providers occurring at
factor analysis can also be used to verify whether outpatient health services (broadly defined to include
assumed item-construct models are valid in different any place outside the home where people sought
populations. Criterion validity refers to the ability of information, advice, or interventions with respect
establishing a causal linkage between the measured to improving their health), encounters with health
construct and other variables as hypothesized. As an providers at home, and encounters with inpatient
example, in a laboratory style case-control study, one services (broadly defined to include all places where
group of patients could be assigned to health care pro- the respondent stayed overnight for health care).
viders who do not greet them. The differences in the Table 44.2 documents how the domains were opera-
patient’s response to questions on how well they were tionalized in the self-report sections of the responsive-
greeted should be causally related to whether or not ness instrument.
they were greeted. The final area of validity assessment Non-personal health actions, such as health pro-
is the instrument sensitivity (traditionally referred to motion campaigns (e.g. anti-smoking or HIV aware-
as “responsiveness” in classical psychometrics) and ness campaigns), were not evaluated. Other aspects of
linkages of the measure to actions for its improvement. health system activities excluded for practical reasons
The generic approach to conceptualizing, developing, include specific questions on health in the work place,
and applying a measurement instrument is discussed environmental health, the general health administra-
here with respect to the responsiveness instrument. tion system, and information about how to access the
This chapter mainly draws on a conventional health system.
approach in matters of feasibility and reliability, and
on classical test theory as a general validity approach Items
(6). In the next section, the development of the module
contents is briefly summarized. Then the question of The items in the module were developed using two
feasibility is addressed. In assessing feasibility, crite- main sources: reviews of existing instruments and
ria established prior to review of the data are tested. field tests of new and adapted items. Part of the work
Items where the average rate of missing responses preceding the development of the module used in the
across countries exceeded 20%, and countries where WHO Multi-country Survey Study is described else-
the average rate of missing responses across all items where (3;5;8).
exceeded 20% (taking care of the difference between The Agency for Health Research and Quality
real missing data and blanks due to incorrectly applied (AHRQ), a United States Government policy research
skip patterns), were identified as having problems of agency, provided expert advice on item development.
feasibility. As a result, the WHO instrument built on work that
Reliability is addressed with a straightforward had been undertaken by AHRQ since 1995, in col-
Kappa analysis of test-retest data. Kappa statistics laboration with researchers from the Harvard Medical
for eight household surveys3 were summarized and School, the Research Triangle Institute, and RAND,
reviewed on an item-by-item basis. This detailed to develop questionnaires for reporting consumer’s
analysis is particularly important and relevant to assessments of health plans. The instrument they
the process of questionnaire revision. For validity, developed became known as the Consumer Assess-
we reviewed internal domain-item consistency using ment of Health PlanS (CAHPS) survey. WHO used and
confirmatory factor analysis. The final section of this adapted a number of items relevant to the domains
paper draws preliminary conclusions and recommends of responsiveness that had been identified as reliable
600 Health Systems Performance Assessment

Table 44.2 The operationalization of responsiveness domains in the WHO Multi-country Survey Study
Domain label Domain operationalization: description of items for measurement of responsiveness at the individual level
Dignity being shown respect
having physical examinations conducted in privacy

Autonomy being involved in deciding on your care or treatment if you want to


having providers ask your permission before starting treatment or tests

Confidentiality having your medical history kept confidential


having conversations with health care providers where other people cannot overhear

Communication having health care providers listen to you carefully


having health care providers explain things so you can understand
giving patients and family time to ask health care providers questions

Prompt attention having short waiting times for consultations, appointments, and hospital admissions
having nurses available when needed during hospital stay
having short waiting times for having tests done

Support being able to have family and friends bring personally preferred foods, soaps and other things to the hospital
during the patient’s hospital stay
being able to observe religious practices during hospital stay
interacting with family and friends during hospital stay

Quality of basic amenities having enough space, seating and fresh air in the waiting room or wards
having a clean facility

Choice being able to get to see a health care provider you are happy with
being able to choose the institution to provide your health care

and valid in the development of the CAHPS survey administered. Items in the postal survey were format-
(Annex 44.1). ted to be attractive and easy for respondents to read
Table 44.3 summarizes the sections in the respon- and answer. Some other factors, like instructions to
siveness module according to their main purpose and interviewers and respondents, were also different.
to whom they were addressed. The wording of the The items in the home care and outpatient sections
individual items is contained in Annex 44.3 and Annex were identical, except domain items for quality of
44.4. The largest section of the module was on the basic amenities were excluded from the former due to
level of responsiveness reported by respondents using non-relevance. If respondents had experiences of care
outpatient/ambulatory medical services (30% in the at home and outpatient care, answers were elicited
short form of the module and 21% in the extended only on the outpatient section.
form). Table 44.3 also shows the difference in items Vignettes are short descriptions of people’s
between the short form (SF) and the extended form experiences with health systems as they relate to the
(EF) of the responsiveness module. There were dif- different domains of responsiveness. The respondent
ferences in the number of items on the utilization of was asked to report the level of dignity, for example,
services but the items on the domains of responsive- with which the person in the vignette is being treated,
ness were the same. Utilization questions comprised answering on a scale of “very good,” “good,”
14% of all items in the short version and 20% in the “moderate,” “bad,” “very bad.” This information
extended one. The extra utilization questions covered provides a record of differences in the way people use
the main reason for the most recent visit to a health verbal categories to evaluate a common stimulus. For
provider (needed a check-up for an ongoing chronic example, one person might categorize the scenario
problem, not sick, went for a general examination or described in the vignette as “good,” while another
preventive care, etc.), and the service received (exam- might consider that the same scenario is “very good.”
ined, received tests, etc.). In the analysis of the results, responses to vignettes
The layout of the questionnaire used in the postal can be used to adjust all respondents’ responses onto
survey was different to the other modes, as it was self- a common scale. Full details on this method can be
Classical Psychometric Assessment of the Responsiveness Instrument 601

Table 44.3 The number of items in the responsiveness module of the Multi-country Survey Study with a short
description of the sections and the targeted respondents
Items in short form Extra Items in extended
of instrument (brief, items form of instrument
postal and telephone) in EF (long)
Description of all sections in the
responsiveness module Targeted respondents number % number number %
User filter/skips and name of facility All respondents for the first question,
8 9 8 6
last used then filtering respondents
Outpatient domains (7 domains— Respondents who had used
excludes support) outpatient/ambulatory services in the 26 30 26 21
previous 12 months
Inpatient domains (8 domains) Respondents who had used inpatient/
hospital services in the previous 12 12 14 12 10
months
Discrimination for reasons of race, One question with 12 multiple
sex, etc. causes of discrimination asked to
12 14 1 13 10
users; another question asked only to
women in the extended form
Utilization of different types of Three questions with multiple types
providers of providers, reasons for visit and 12 14 13 25 20
services provided — users only
Financial barriers to care One question users only, one
1 1 1 2 2
question all respondents
Section for people receiving care in Users only
0 23 23 18
their homes
Importance All respondents 2 2 1 3 2
Vignettes (56 vignettes in total rotated All respondents
14 16 14 11
through 4 sets)
Total 87 1000 39 1260 1000

found in Tandon et al. (9). Due to the length of these was limited by the extent of these contacts over the
descriptions and the number needed for each domain recall period (12 months). This approach to the mea-
(there were seven per domain), it was necessary to surement of responsiveness differs from many of the
divide them between respondents to minimize the population satisfaction or public/patient opinion sur-
module length. Four rotations of vignette sets were veys which ask about the respondent’s satisfaction
used. Each set covered two domains (for wording see with the system in general, whether or not they were
Annex 44.4). in contact with it recently, and without referring to
specific experiences (10). In contrast, in the responsive-
Structure ness questionnaire, all respondents were asked a series
of questions about the relative importance of different
It is useful to describe the structure of the responsive-
domains regardless of their use of the system.
ness module in detail. The focus of responsiveness
measurement is to ask people questions about their
Implementation
actual experiences. In the case of health, everyone can
be asked questions on their health as everyone experi- In 2000, the WHO Multi-country Survey Study started
ences some departure from complete health at some with a household survey instrument containing the
point in time. In responsiveness, not everyone has extended responsiveness module in nine countries. The
experiences of outpatient and inpatient interactions Study was expanded in 2000–2001 with the launch of a
with the health system in a defined period of time. As further 61 surveys in different modes: long face-to-face
these personal interactions were used as the basis for (extended form), brief face-to-face (short form), postal
reporting on the health system’s responsiveness, the (short form), and telephone surveys (short form). The
sample of respondents to questions on experiences short form had 87 items and the expanded form (EF)
602 Health Systems Performance Assessment

had 126. By 2002, all surveys were concluded. A total Feasibility: Missing Rate Analysis
of 70 surveys containing the responsiveness module
The item missing rate is defined as the percentage of
were completed, with data available for 65 for this
non-responses to an item, with refusals to answer
analysis.
and responses of “not applicable” and “don’t know”
included as missing values. In several items in the long
Response Rates and Missing and the brief face-to-face surveys, respondents were
Analysis given these response options, whereas these options
did not exist in the self-administered surveys. As a
Response According to Utilization Profile form of sensitivity analysis, missing rates were calcu-
(Inpatient, Outpatient, and No Use) lated with and without this recoding, and the rates did
not differ substantively. Country missing rates are the
Data were provided by 119 991 respondents in the average of their item missing rates, excluding those
65 surveys at hand, of which 2 442 (2.1%) were con- items which already appeared problematic in the item
sidered incomplete, leaving a total of 117 549 com- missing analysis (item missing rates greater than 20%
pleted responses. For a questionnaire to be regarded as across all countries).
complete, at least one of the following questions had Table 44.4 shows the item missing rates averaged
to be answered: sex, age, health status, or one of the across sections of the questionnaire and across coun-
filter questions (q6000, q6001, q6300). Figure 44.1 tries (equal weight for each country). Table 44.4 is a
shows the breakdown of completed responses by use compressed version of the full table in Annex 44.5,
of services in the previous 12 months: 49.1% had not which shows the average rates, by item, for all items.
used any type of service, 41.1% reported using only Three questions had missing rates over 20%. The first
outpatient services,4 8.6% had used both inpatient concerned the number of times the respondents used
and outpatient services, and only 1.1% reported using different types of providers in the last 30 days (general
only inpatient services. Non-users did not complete the practitioner, specialist, etc.). This question and its cor-
questions on the domains of responsiveness, but did responding items had an average missing rate of 29%.
respond to the sections on the importance of domains The second, asked to women, was whether they felt
and vignettes. The numbers of respondents per country they were treated badly by the health service because
are shown in Annex 44.2. of their sex (“yes” or “no”), which had a missing rate

Figure 44.1 Grouping of respondents (completed questionnaires) to responsiveness module


Classical Psychometric Assessment of the Responsiveness Instrument 603

of 41%. Finally, the questions on the services given by Table 44.4 Average item missing rates for the respon-
the health care provider had an average missing rate of siveness module across 65 surveys
22%. Excluding these items, the average unweighted Section Item Missing Rate (%)
missing rate across the others was 4%.
Filter 6
The first two problematic questions seemed to have
failed for technical reasons. In the case of the utiliza- Outpatient care 3
tion question, if respondents had not visited any of the Prompt attention 3
listed health care providers, there was no clear instruc- Dignity 1
tion that they should mark zero. This problem is ame- Communication 1
Autonomy 3
nable to technical improvements. In the second case,
Confidentiality 7
one problem was that the question had been completed
Choice 9
by men as well as women, despite the objective to seek
Quality of basic amenities 1
responses from women only. Although the insertion
of instructions into the questionnaire and procedural Home care 6
checks might cure this problem, it is not clear why Prompt attention 5
Dignity 6
there was such a high missingness for that question.
Communication 6
The third problematic question was only asked in the
Autonomy 5
long version of the questionnaire (10 countries). For
Confidentiality 7
two thirds of the missings, the respondents answered Choice 5
“not applicable” even if they had used the services. In
subsequent analyses of country missing rates, these Inpatient care 5
Prompt attention 3
items are not included.
Dignity 3
In the vignette section, the missing rates were sur-
Communication 3
prisingly low. It was anticipated that respondents
Autonomy 4
would have difficulty listening to the stories and drop Confidentiality 9
out, but the missing rate was lower than average at Choice 8
only 3%, with similar performance across domains. Quality of basic amenities 4
This is a promising indication of the feasibility of using Support 8
vignettes in household surveys, even when question-
Discrimination 5
naires are self-administered, or when they are adminis-
tered to people with different cultural and educational Non-utilization 5
backgrounds. Importance (most and least items) 12
Table 44.5 shows the ranked average item missing
Vignettes 3
rates per country. No country exceeded the arbitrary
Set A
cut-off that was pre-established at the level of 20%. Dignity 3
Three countries had missing rates of more than 10%: Communication 3
Turkey postal (19%), Switzerland postal (18%), and Set B
Trinidad and Tobago postal (18%). Confidentiality 3
A number of general lessons about the feasibility of Quality of basic amenities 3
the responsiveness module emerges from this analysis Set C
of missing rates. First, all but three questions meet the Support 4
pre-set criteria for feasibility, of less than 20% miss- Choice 4
ingness. None of these items was crucial to the mea- Set D
surement of system responsiveness, being included for Autonomy 3
broader cross-checks on the questionnaire or to enable Prompt attention 3
different types of analysis subsequently. Second, the Total 4
responsiveness module is a feasible instrument to be
used in a variety of settings. None of the 65 country with postal surveys is illustrated by the fact that three
surveys had missing rates higher than the 20% crite- of them, compared to zero face-to-face surveys, had
rion. Third, the face-to-face surveys had lower missing average missing rates greater than 10%. Fourth, the
rates (3%) on average than the postal surveys (6%). items focusing on responsiveness domains were mostly
Another indicator of the relative difficulty associated unproblematic.
604 Health Systems Performance Assessment

Table 44.5 Average item missing rates by survey for 65 surveys


Average item Average item
Survey Survey
missing rates (%) missing rates (%)
Turkey—postal 19 Chile—postal 4
Switzerland—postal 18 Russia—brief 3
Trinidad and Tobago—postal 18 Sweden—brief 3
Kyrgyzstan—postal 10 Hungary—postal 3
USA—postal 8 Croatia—brief 3
Bulgaria—brief 8 Ireland—brief 3
Finland—postal 8 Iran—long 3
Austria—postal 7 Belgium—brief 3
Great Britain—postal 7 Italy—brief 3
Iceland—brief 7 Jordan—brief 3
Denmark—postal 6 United Arab Emirates—brief 3
Ukraine—postal 6 Oman—brief 3
Greece—postal 6 Spain—brief 2
Mexico—long 6 Indonesia—postal 2
Estonia—brief 6 Luxembourg—telephone 2
Czech Republic—postal 6 France—brief 2
Netherlands—postal 5 Syria—long 2
Thailand—postal 5 Latvia—brief 2
Egypt—long 5 Egypt—postal 2
Romania—brief 5 China—postal 2
Turkey—long 5 Argentina—brief 2
Colombia—long 5 Canada—postal 2
Slovakia—long 5 Nigeria—long 1
Lebanon—postal 4 India (Andhra Pradesh)—long 1
New Zealand—postal 4 Indonesia—long 1
Cyprus—brief 4 Venezuela—postal 1
Portugal—brief 4 Canada—telephone 1
Australia—postal 4 Republic of Korea—postal 1
Poland—brief 4 Malta—brief 1
France—postal 4 China—long 1
Czech Republic—brief 4 Bahrain—brief 1
Finland—brief 4 Costa Rica—brief 1
Netherlands—brief 4 Georgia—long 1
Germany—postal 4 Morocco—brief 1
Lithuania—postal 4 Average 4

Reliability The focus of this chapter, however, is on test-retest


reliability of items with the analysis undertaken for
General each country separately. No attempt was made to
The concept of reliability refers to the amount of identify which individuals were more likely to pro-
error, both random and systematic, inherent in any vide more stable answers on remeasurement. Follow-
measurement. One form of reliability, called “test- ing convention, the accordance between the responses
retest” reliability, estimates the error component in to the original and readministered questions is mea-
case of repetition of a measurement keeping every- sured with the weighted Kappa statistics (12). A score
thing else the same. Many other types of reliability of one indicates perfect concordance between the two
are also relevant to questionnaires, such as the source sets of responses, and zero indicates that the observed
of information (person or interviewer) and mode of concordance was not better than expected by chance.
administration of the questionnaire. Such a multi- A negative score suggests that responses are correlated
dimensional approach to reliability requires a more less highly than would be expected by chance. For
complex analysis (11). questions on fact (e.g. “Did you visit the doctor?”),
Classical Psychometric Assessment of the Responsiveness Instrument 605

Table 44.6 Size of samples for retests in eight countries


Number of respondents in retest interviews for different sections
Not requiring use
of health services in Users of outpatient Users of care Users of inpatient/
Survey site previous 12 months health services at home hospital services
China 858 412 65 64
Colombia 606 412 0 50
Egypt 452 268 14 32
Georgia 940 254 56 46
India 437 288 9 36
Nigeria 353 58 3 12
Slovakia 96 74 2 16
Turkey 195 127 0 6
Total 3 937 1 893 149 262

Kappas are expected to be higher than for reports on Item Perspective


experiences (13). It should be kept in mind that a very
As it would be expected of filter questions given their
low prevalence of any item substantially lowers even factual nature, average Kappas are very high (0.83)
chance-corrected Kappas. Generally, comparisons for these items. All other items have good or excel-
within individuals are expected to show higher reli- lent reproducibility. Discrimination items perform the
ability than comparisons across groups, which is the worst, which can partially be explained by the very
focus of these surveys (14). skewed distribution of responses that is known to
In order to establish the test-retest reliability of the reduce the Kappa (rare affirmative responses).5
responsiveness module, the extended version was read-
Country Perspective
ministered in its entirety. This is likely to have resulted
in a lower estimate of the reliability of the question- A strong country effect is visible. Reproducibility
naire than if only parts of the module had been read- was excellent on average in China, Egypt, Slovakia
ministered to different respondents, because length and Turkey, and good in India. It was low in Geor-
may affect reliability. Respondents in eight countries gia, Colombia, and Nigeria. The reasons are unclear.
Given the consistency of Kappa rates across items
were selected randomly and approached within one
within the same country, it is likely that the low rates
month after the first questionnaire had been admin- reflect more on the systematic implementation of the
istered. A total of 3 937 retests were collected. In survey, or problems with translation into the local
the retest data 1 893 individuals reported outpatient language, rather than on the understandability of the
or ambulatory care experiences in the previous 12 items themselves.
months; 149 respondents had received home care; 262
had received inpatient or hospital care; and 1 633 indi- Internal Consistency Method
viduals had received no care. Table 44.6 presents the The analysis in Table 44.8 shows the item-test correla-
sample size of the retest sampling. Data of resamples tion coefficients (the correlation of the item score with
with n < 30 were omitted from the analysis. the average of items within a domain), the item-rest
Table 44.7 shows the weighted Kappas for the correlation coefficients (the correlation of the item
eight countries separately, with results aggregated for score with the domain average that excludes the item
the various sections of the questionnaire described in in question), the inter-item correlation coefficients
(correlation between items), and the alpha coefficients
Table 44.4. The following guidelines are provided to
for all countries listed in Table 44.4. The alpha coef-
help interpret the table—Kappa or κ > 0.75 denotes
ficient is formulated as follows:
excellent reproducibility, 0.4 ≤ κ ≤ 0.75 denotes good
reproducibility, and 0 ≤ κ ≤ 0.4 denotes marginal kr
a=
reproducibility (13). 1 + (k − 1)r
606 Health Systems Performance Assessment

Table 44.7 Kappa rates for sections of the responsiveness module, calculated from retests in eight countries

Section China Colombia Egypt Georgia India Nigeria Slovakia Turkey Average
Filter 0.87 0.41 0.78 0.64 0.80 0.36 0.92 0.89 0.83

Outpatients 0.72
Prompt attention 0.82 0.43 0.89 0.50 0.71 0.51 0.87 0.87 0.76
Dignity 0.74 0.36 0.84 0.33 0.60 0.43 0.82 0.73 0.70
Communication 0.74 0.34 0.81 0.41 0.60 –0.030 0.82 0.80 0.72
Autonomy 0.81 0.38 0.79 0.43 0.66 0.38 0.90 0.88 0.72
Confidentiality 0.80 0.28 0.79 0.41 0.69 0.04 0.91 0.83 0.75
Choice 0.81 0.27 0.81 0.42 0.68 0.37 0.91 0.87 0.67
Quality of basic amenities 0.79 0.38 0.91 0.45 0.63 0.39 0.88 0.83 0.73

Home care 0.74


Prompt attention 0.86 0.42 0.78
Dignity 0.72 0.11 0.64
Communication 0.80 0.09 0.71
Autonomy 0.83 0.32 0.75
Confidentiality 0.91 0.35 0.80
Choice 0.83 0.46 0.77

Inpatients 0.72
Prompt attention 0.78 0.64 0.87 0.65 0.69 0.76
Dignity 0.77 0.52 0.96 0.56 0.81 0.74
Communication 0.79 0.34 0.76 0.70 0.65 0.71
Autonomy 0.79 0.47 0.86 0.43 0.65 0.71
Confidentiality 0.76 0.45 0.87 0.45 0.69 0.69
Choice 0.80 0.26 0.97 0.56 0.66 0.66
Quality of basic amenities 0.86 0.60 0.91 0.68 0.75 0.77

Support 0.84 0.37 0.90 0.41 0.66 0.68

Discrimination 0.72 0.41 0.58 0.57 0.87 0.36 0.66 0.69 0.52

Reasons and service 0.79 0.25 0.67 0.53 0.66 0.34 0.67 0.66 0.71

Reasons for non-use 0.78 0.39 0.77 0.52 0.76 0.19 0.65 0.65 0.72

Importance 0.79 0.25 0.84 0.34 0.59 0.25 0.71 0.55 0.61

Vignettes 0.56
Dignity 0.64 0.22 0.90 0.36 0.60 0.12 0.78 0.91 0.57
Autonomy 0.65 0.23 0.89 0.35 0.58 0.11 0.76 0.92 0.56
Confidentiality 0.66 0.21 0.90 0.36 0.61 0.10 0.78 0.91 0.57
Communication 0.66 0.21 0.89 0.36 0.59 0.10 0.77 0.91 0.56
Prompt attention 0.65 0.22 0.90 0.36 0.60 0.11 0.78 0.91 0.57
Support 0.65 0.22 0.90 0.36 0.60 0.11 0.77 0.91 0.56
Quality of basic amenities 0.65 0.22 0.90 0.36 0.60 0.11 0.77 0.91 0.56
Choice 0.65 0.22 0.90 0.36 0.60 0.11 0.77 0.91 0.56
Average Kappa’s by country 0.80 0.37 0.79 0.45 0.68 0.31 0.81 0.76 0.62
Blanks mean too few observations to calculate Kappas

where –r is the average inter-item correlation coeffi- Bernstien (15) suggest that modest values of 0.70 are
cient, and k is the number of items. acceptable in the earlier stages of research. However,
The alpha coefficient ranges from 0 (lowest reli- where measurements on individuals are of interest (e.g.
ability) to 1 (highest reliability). The coefficient is posi- the results of the test determine whether the individual
tively related to the number of items in the scale and is at risk for a particular condition), alpha’s higher
the inter-item correlation coefficients. Nunnally and than 0.95 are a desirable standard.
Classical Psychometric Assessment of the Responsiveness Instrument 607

Table 44.8 Item correlations and alpha coefficients for domain questions on the level of responsiveness
Item-test Item-rest Inter-item
Item Sign corr. corr. corr. Alpha Short item description
Prompt attention
q6101 + 0.808 0.456 0.264 0.418 how often did you get care as soon as you wanted
q6103 + 0.633 0.226 0.512 0.677 how long did you have to wait for laboratory tests or examinations
q6104 + 0.834 0.506 0.127 0.226 rate prompt attention
Test scale 0.346 0.614 mean(standardized items)
Dignity
q6110 + 0.871 0.755 0.560 0.793 how often did health care providers treat you with respect
q6111 + 0.855 0.730 0.577 0.804 how often did office staff treat you with respect
q6112 + 0.797 0.633 0.643 0.844 privacy was respected
q6113 + 0.825 0.678 0.612 0.826 rate dignity
Test scale 0.598 0.856 mean(standardized items)
Communication
q6120 + 0.859 0.742 0.661 0.854 how often did health care providers listen carefully to you
q6121 + 0.878 0.773 0.639 0.842 explain things in a way you could understand
q6122 + 0.873 0.766 0.644 0.845 give you time to ask questions
q6123 + 0.839 0.709 0.684 0.867 rate communication
Test scale 0.657 0.885 mean(standardized items)
Autonomy
q6131 + 0.861 0.669 0.587 0.740 did health providers involve you in deciding about the care
q6132 + 0.861 0.629 0.614 0.761 ask your permission
q6133 + 0.868 0.642 0.589 0.741 rate getting involved in making decisions
Test scale 0.596 0.816 mean(standardized items)
Confidentiality
q6140 + 0.849 0.620 0.614 0.761 how often were talks done privately
q6141 + 0.885 0.718 0.507 0.672 how often did your doctor keep your personal information confidential
q6142 + 0.837 0.603 0.637 0.779 rate confidentiality
Test scale 0.585 0.809 mean(standardized items)
Choice
q6150 + 0.874 0.672 0.547 0.707 how big a problem to get to a health care provider you were happy with
q6151 + 0.861 0.674 0.569 0.725 to get to use other health services
q6152 + 0.838 0.604 0.652 0.789 rate health care provider or service of your choice
Test scale 0.589 0.811 mean(standardized items)
Quality of basic
amenities
q6160 + 0.916 0.809 0.816 0.898 basic quality of the waiting room
q6161 + 0.922 0.823 0.798 0.887 cleanliness of the place
q6162 + 0.941 0.863 0.746 0.854 rate space, seating, fresh air and cleanliness
Test scale 0.786 0.917 mean(standardized items)
Support
q6311 + 0.795 0.503 0.489 0.656 get the hospital to allow your family to take care of your personal needs
q6312 + 0.805 0.536 0.445 0.616 have the hospital allow you to practice religious observances
q6313 + 0.814 0.547 0.431 0.602 rate how the hospital allowed you to interact with family, friends
Test scale 0.454 0.714 mean(standardized items)

Overall, the results in Table 44.8 are in the desirable ing domains are greater than 0.8. Within the domain
range given that the aim of these surveys is to establish of prompt attention, the item on how long the person
a population estimate. Prompt attention (α = 0.614) waited to have tests or examinations undertaken per-
and support (α = 0.714) are the worse performing formed the worst (item-rest correlation of 0.226). Per-
domains, while the alpha coefficients of the remain- haps this question leads people to consider the overall
608 Health Systems Performance Assessment

situation in their country rather than to report on their From the 65 surveys, the number of respondents
actual experience. The high alpha coefficient for qual- for outpatients and inpatients was 58 505 and 11 434
ity of basic amenities might indicate that the items are respectively. Data from different countries were pooled
too similar and are not measuring different aspects of and each domain was treated in a separate model. The
the domain—reviewing the wording of the items, two results generally confirmed the assumed structure of
of the four questions refer to cleanliness. the responsiveness domains. Two items, however, did
not perform well: the item on the time elapsing from
wanting care to receiving care, and the one on the
Construct Validity length of time waited for tests and examinations. In
Construct validity refers to the validity of the measure some ways, these are items to be used to test the valid-
with respect to the original construct. For establish- ity of responses to questions dealing with the prompt-
ing the validity of the relevant sections of the ques- ness of attention, rather than items linked directly to
tionnaire, the classical psychometric approach was the domains. They seek numerical rather than categor-
adopted because of the lack of any external refer- ical responses. Accordingly, they might indicate that
ence for responsiveness or other similar instruments there is relatively low correlation between people’s cat-
to make a more direct comparison with “truth.” egorical responses on the promptness of attention and
Thus, the focus here is on the internal structure of the times they actually waited for care. In addition,
the questionnaire, in particular the dimensionality question q6100 included travel time to the health care
facility, which might not be what respondents were
and the homogeneity of items (questions) thought to
thinking about when asked about prompt attention.
represent one domain. As the factor structure of the
instrument had already been established, confirmatory
factor analysis of the seven outpatient domains and Conclusions and Recommendations
two inpatient domains was used (other domains were
This chapter has reported on the feasibility, reli-
represented by only one item in the inpatient section
ability, and validity of the instrument used to assess
of the module, so factor analysis at the item-to-domain
responsiveness in the Multi-country Survey Study of
level was not possible).
2000–2001. The analyses conducted for this chapter
Factor analysis is a statistical technique that can be
have provided certain insights into the reliability of
used to uncover and establish common dimensional-
specific items in the instrument and the validity of the
ity between different observed variables. Exploratory
responsiveness construct. The following key conclu-
factor analysis is used when the researcher has no a
sions emerge.
priori assumption about the underlying dimension- The low country missing rates indicated that it is
ality of the construct. Confirmatory factor analysis feasible to apply this instrument in different country
is used when the researcher has a hypothesis about settings. All but three items met the pre-established
the underlying dimensionality of the construct, and 20% threshold of acceptability for missingness. In par-
wishes to confirm or refute this hypothesis. The latter ticular, the responsiveness domain items and vignettes,
type is more restrictive (less arbitrary). The program together forming the core of the module, had missing
M-Plus was used because it has a number of technical rates of 9% or less. The Kappa rates varied substan-
advantages over other programs, including the ability tially between different survey sites. Given the consis-
to have polytomous ordinal categorical variables and tency across items within a particular country, it seems
continuous variables in the same model (16). reasonable to recommend closer quality controls in
Tables 44.9 and 44.10 present the results of the future surveys. These practices would reduce site vari-
factor analysis on the responses of outpatients and ability in Kappas.
inpatients from the survey countries. The numbers A number of lessons were learned about particular
are the factor loadings on the latent variables. The items, some of which have already been incorporated
factor loadings range from –1 to +1 and represent the into the World Health Survey, the successor to the
amount of variance that responses to an item have in WHO Multi-country Survey Study. For example, on
common with the underlaying latent variable. While certain occasions the pattern of missings suggested
there is no strict cut-off to describe strong and weak that either the item or the offered response categories
associations of variance, the closer to +1 or –1, the could be adjusted (e.g. by adding “not applicable” to
stronger the unidimensionality of the construct. the response categories) to accommodate an apparent
Classical Psychometric Assessment of the Responsiveness Instrument 609

reluctance to respond. The reliability and internal con- and friends, the ability to observe religion practices
sistency of some items was also lower than others, and during inpatient stays, and contact with family mem-
particular attention focused on the domains of prompt bers and friends during inpatient stays. Other aspects
attention and support. Some of these problems could relating to home care in particular have to be explored,
be solved by technical changes to wording, but the including the extent to which family life is affected
domain of support would benefit from an increased by the need to care for sick family members in the
conceptual development. It currently refers only to household. Clearly, any valid measure of health sys-
inpatient services relating to the provision of personal tem responsiveness should also include non-personal
comforts (e.g. soap, special food) by family members health actions, such as health promotion campaigns

Table 44.9 Confirmatory factor analysis standardized coefficients—outpatients


Quality
Prompt Commu- Confiden- of basic
Variable description attention Dignity nication Autonomy tiality Choice amenities
In the last 12 months, how long did you usually have
to wait from the time that you wanted care to the
time that you received care? 0.302
In the last 12 months, when you wanted care, how
often did you get care as soon as you wanted? 0.636
Generally, how long did you have to wait before
you could get the laboratory tests or examinations
done? 0.336
Now, overall, how would you rate your experience
of getting prompt attention at the health services in
the last 12 months? 0.922
In the last 12 months, when you sought care, how
often did doctors, nurses or other health care
providers treat you with respect? 0.922
In the last 12 months, when you sought care, how
often did the office staff, such as receptionists or
clerks there, treat you with respect? 0.884
In the last 12 months, how often were your physical
examinations and treatments done in a way that
your privacy was respected? 0.786
Now, overall, how would you rate your experience
of getting treated with dignity at the health services
in the last 12 months? 0.814
In the last 12 months, how often did doctors, nurses
or other health care providers listen carefully to you? 0.869
In the last 12 months, how often did doctors, nurses
or other health care providers there, explain things
in a way you could understand? 0.903
In the last 6 months, how often did doctors, nurses
or other health care providers give you time to ask
questions about your health problem or treatment? 0.891
Now, overall, how would you rate your experience
of how well health care providers communicated
with you in the last 12 months? 0.828
In the last 12 months, how often did doctors, nurses
or other health care providers there involve you
as much as you wanted to be in deciding about the
care, treatment or tests? 0.841
continued
610 Health Systems Performance Assessment

Table 44.9 Confirmatory factor analysis standardized coefficients—outpatients (continued)


Quality
Prompt Commu- Confiden- of basic
Variable description attention Dignity nication Autonomy tiality Choice amenities
In the last 12 months, how often did doctors, nurses
or other health care providers there ask your per-
mission before starting tests or treatment? 0.825
Now, overall, how would you rate your experience
of getting involved in making decisions about your
care or treatment as much as you wanted in the last
12 months? 0.842
In the last 12 months, how often were talks with
your doctor, nurse or other health care provider
done privately so other people who you did not
want to hear could not overhear what was said? 0.806
In the last 12 months, how often did your doctor,
nurse or other health care provider keep your
personal information confidential? This means that
anyone whom you did not want informed could not
find out about your medical conditions. 0.954
Now, overall, how would you rate your experience
of the way the health services kept information
about you confidential in the last 12 months? 0.786
In the last 12 months, with the doctors, nurses and
other health care providers available to you, how
big a problem, if any, was it to get to a health care
provider you were happy with? 0.895
Over the last 12 months, how big a problem, if
any, was it to get to use other health care services
other than the one you usually went to? 0.866
Now, overall, how would you rate your experience
of being able to use a health care provider or ser-
vice of your choice over the last 12 months? 0.753
Thinking about the places you visited for health care
in the last 12 months, how would you rate the basic
quality of the waiting room, for example, space,
seating and fresh air? 0.905
Thinking about the places you visited for health care
over the last 12 months, how would you rate the
cleanliness of the place? 0.908
Now, overall, how would you rate the overall quality
of the surroundings, for example, space, seating,
fresh air, and cleanliness of the health services you
visited in the last 12 months? 0.943

(e.g. anti-smoking or HIV awareness campaigns), and would be useful if additional items linked to variables
other aspects of the health system such as the respon- associated with better responsiveness could be added
siveness of administrative structures. These issues were to the survey in future iterations to facilitate more
not evaluated in the Multi-country Survey Study but analysis of validity. On balance, however, the Survey
attempts have been made to include several of them Study suggests that it is feasible to ask questions on
in the World Health Survey. responsiveness with their associated vignettes in differ-
For the analyses in this chapter, validity investiga- ent cultural settings. The items proved generally to be
tions could be carried out only to a limited degree. It reliable and valid, and to elicit consistent responses.
Classical Psychometric Assessment of the Responsiveness Instrument 611

Table 44.10 Confirmatory factor analysis standardized 5 Rare positive response implies an unfavourable balance
coefficients—inpatients of error to valid information, which in turn lowers Kappa
statistics that account for chance agreement assuming
Prompt true response only.
Variable description attention Support
Did you get your hospital care as soon as 0.745
you wanted? References
When you were in the hospital, how often 0.892
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hospital, how big a problem, if any, was it to
get the hospital to allow your family and (3) de Silva A. A framework for measuring responsiveness.
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soap, etc.? discussion_papers/discussion_papers.cfm#
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a problem, if any, was it to have the
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hospital allow you to practice religious or
traditional observances if you wanted to? Evans DB, eds. Health systems performance assessment:
debates, methods and empiricism. Geneva, World Health
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experience of how the hospital allowed
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to continue your social and or religious Concepts and Methods for Measuring the Responsiveness
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12 months?
systems performance assessment: debates, methods and
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Acknowledgements (6) Sadana R et al. Comparative analyses of more than 50
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1 This label of “access to social support networks” was
World health Organization, 2003.
applied to this domain during the WHO Multi-country
Survey Study. For discussion of subsequent change to the (8) World Health Organization. The World Health Report
domain label, please refer to the responsiveness concepts 2000. Health Systems: Improving Performance. Geneva,
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chapter in this book (3).
(9) Tandon A et al. Statistical models for enhancing cross-
2 This chapter presents analyses from 65 of the 70 surveys population comparability. In: Murray CJL, Evans DB,
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tative and quantitative approaches, 2nd ed. Thousand
covered here included long face-to-face surveys in 10
Oaks, Sage Publications, 1995.
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4 Outpatient services statistics include services received at project approach. Journal of Clinical Epidemiology,
home. 1998, 51:953–959.
612 Health Systems Performance Assessment

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Annex 44.1
Items from the Consumer Assessment of Health Plans
(CAHPS), a USA-based Survey, Included in the Responsiveness
Module with Little or No Change
Domain Question Response scale
Prompt attention 1 In the last 12 months, when you wanted care, how often did you always(1), usually(2), sometimes(3), never(4)
get care as soon as you wanted?
2 In the last 12 months, how long did you usually have to wait from units of time
the time that you wanted care to the time you received care?
Dignity 3 In the last 12 months, when you sought care, how often did always(1), usually(2), sometimes(3), never(4)
doctors, nurses or other health care providers treat you with
respect?
4 In the last 12 months, when you sought care, how often did the always(1), usually(2), sometimes(3), never(4)
office staff, such as receptionists or clerks there, treat you with
respect?
Communication 5 In the last 12 months, how often did doctors, nurses or other always(1), usually(2), sometimes(3), never(4)
health care providers listen carefully to you?
6 In the last 12 months, how often did doctors, nurses or other always(1), usually(2), sometimes(3), never(4)
health care providers there, explain things in a way you could
understand?
7 In the last 6 months, how often did doctors, nurses or other always(1), usually(2), sometimes(3), never(4)
health care providers give you time to ask questions about your
health problem or treatment?
Autonomy 8 In the last 12 months, how often did doctors, nurses or other always(1), usually(2), sometimes(3), never(4)
health care providers there involve you as much as you wanted to
be in deciding about the care, treatment or tests?
Choice 9 In the last 12 months, with the doctors, nurses and other health no problem(1), mild problem(2),
care providers available to you, how big a problem, if any, was it to moderate problem(3), severe problem(4),
get to a health care provider you were happy with? extreme problem(5)
Annex 44.2
Survey Countries and Number of Completed Responses from
Respondents Who Used Hospital Services, Outpatient or
Ambulatory Services, or Neither (Non -users) in the Last
12 Months

Total ques- Question-


Survey Inpatient Outpatient tionnaires naires not
Country typea only only Both Neither completed completed Total
Extended form (long face-to-face)
1 China 1 124 3 782 659 4 877 9 442 44 9 486
2 Colombia 1 14 3 322 518 2 165 6 019 2139 8 158
3 Egypt 1 37 2 399 211 1 839 4 486 4 4 490
4 Georgia 1 85 1 900 272 7 590 9 847 0 9 847
5 India 1 108 2 846 326 1 916 5 196 0 5 196
6 Indonesia 1 85 3 743 228 5 896 9 952 42 9 994
7 Mexico 1 46 1 547 286 2 933 4 812 1 4 813
8 Nigeria 1 44 879 126 3 998 5 047 61 5 108
9 Slovakia 1 3 659 137 384 1 183 0 1 183
10 Turkey 1 28 1 279 102 3 788 5 197 10 5 207
Short form (postal)
11 Austria 2 8 581 216 241 1 046 0 1 046
12 Canada 2 2 209 41 155 407 0 407
13 Chile 2 18 322 100 606 1 046 0 1 046
14 China 2 13 350 45 698 1 106 0 1 106
15 Cyprus 2 11 337 121 183 652 0 652
16 Czech Republic 2 4 712 177 128 1 021 0 1 021
17 Denmark 2 11 851 159 490 1 511 0 1 511
18 Egypt 2 12 345 256 770 1 383 0 1 383
19 Finland 2 16 850 204 287 1 357 0 1 357
20 France 2 5 489 181 258 933 0 933
21 Great Britain 2 4 586 123 305 1 018 0 1 018
22 Greece 2 8 439 196 266 909 17 926
23 Hungary 2 35 476 226 763 1 500 0 1 500
24 Indonesia 2 46 956 318 1 150 2 470 1 2 471
25 Kyrgyzstan 2 14 377 180 509 1 080 1 1 081
26 Lebanon 2 30 93 93 896 1 112 0 1 112
27 Lithuania 2 22 796 392 536 1 746 0 1 746
28 New Zealand 2 7 1 198 254 342 1 801 1 1 802
29 Poland 2 3 539 192 148 882 0 882
30 Republic of Korea 2 2 212 51 83 348 0 348
31 Switzerland 2 9 234 58 520 821 2 823
32 Thailand 2 38 484 139 525 1 186 1 1 187
33 The Netherlands 2 5 324 51 230 610 2 612
34 Trinidad and Tobago 2 23 399 174 649 1 245 5 1 250
35 Turkey 2 24 793 528 1 024 2 369 111 2 480
36 Ukraine 2 8 386 203 191 788 0 788
37 USA 2 10 375 71 132 588 0 588
Classical Psychometric Assessment of the Responsiveness Instrument 615

Total ques- Question-


Survey Inpatient Outpatient tionnaires naires not
Country typea only only Both Neither completed completed Total
Short form (brief face-to-face)
38 Argentina 3 3 394 84 300 781 0 781
39 Bahrain 3 9 320 73 407 809 0 809
40 Belgium 3 18 502 116 464 1 100 0 1 100
41 Costa Rica 3 1 421 77 257 756 0 756
42 Croatia 3 10 694 151 645 1 500 0 1 500
43 Czech Republic 3 9 578 139 346 1 072 0 1 072
44 Estonia 3 8 581 144 267 1 000 0 1 000
45 Finland 3 8 576 146 291 1 021 0 1 021
46 France 3 5 526 126 346 1 003 0 1 003
47 Germany 3 4 606 92 421 1 123 0 1 123
48 Iceland 3 6 266 36 181 489 0 489
49 Ireland 3 2 250 87 372 711 0 711
50 Italy 3 12 394 57 539 1 002 0 1 002
51 Jordan 3 28 304 69 402 803 0 803
52 Latvia 3 16 342 103 291 752 0 752
53 Malta 3 2 273 49 176 500 0 500
54 Morocco 3 2 381 53 318 754 0 754
55 Oman 3 8 441 78 308 835 0 835
56 Portugal 3 95 534 372 1 001 0 1 001
57 Romania 3 9 377 161 504 1 051 0 1 051
58 Russian Federation 3 14 753 194 640 1 601 0 1 601
59 Spain 3 534 85 381 1 000 0 1 000
60 Sweden 3 14 471 93 422 1 000 0 1 000
61 Netherlands 3 1 603 83 398 1 085 0 1 085
62 United Arab Emirates 3 15 393 72 338 818 0 818
63 Venezuela 3 11 219 45 479 754 0 754
Short form (telephone)
64 Canada 4 10 135 29 219 393 0 393
65 Luxembourg 4 13 429 83 194 719 0 719
Total 1 295 48 366 10 139 57 749 117 549 2 442 119 991
Percentage 1.1% 41.1% 8.6% 49.1% 100%
Annex 44.3
Item Wording of the Responsiveness Module

Item variable Item wording in extended form of questionnaire


name (A stroke before the item variable name indicates the item branched off from a main item)
Q6000 Have you received any health care in the last 12 months?
(1) yes, (5) no
Q6001 In the last 12 months, did you get any health care at an outpatient health facility or did a health care provider visit you at
home? (An outpatient health facility is a doctor’s consulting room, a clinic or a hospital outpatient unit—any place outside
your home where you did not stay overnight).
(1) yes, (5) no
Q6002 In the last 12 months, did you get most of your health care at a health facility or most of it from a health provider who
visited you in your home?
mostly at a health facility (1), mostly from a health provider in my home (2), equally from both (3)
Q6003 When was your last visit to a health facility or provider? Was it:
last 30 days (1), last 3 months (2), last 6 months (3), between 6 and 12 months (4), don`t remember (5)
Q6004 What was the name of the health care facility? (Please fill in the name of facility, e.g., Oxford Clinic. Only fill in the name of
the provider if the facility does not have another name.)
enter facility name
Q6005 Was (name of provider) your usual place of care?
(1) yes, (5) no
Q6100 In the last 12 months, how long did you usually have to wait from the time that you wanted care to the time that you re-
ceived care?
enter time
minutes
hours
days
weeks
months
Q6101 In the last 12 months, when you wanted care, how often did you get care as soon as you wanted?
always (1), usually (2), sometimes (3), never (4)
Q6102 In the last 12 months, have you needed any laboratory tests or examinations? Some examples of tests or special examina-
tions are blood tests, scans or X-rays.
(1) yes, (5) no
Q6103 Generally, how long did you have to wait before you could get the laboratory tests or examinations done?
same day (1), 1–2days (2), 3–5days (3), 6–10days (4),
specify time if greater than ten days
Q6104 Now, overall, how would you rate your experience of getting prompt attention at the health services in the last 12 months?
Prompt attention means…**
very good (1), good (2), moderate (3), bad (4), very bad (5)
Q6110 In the last 12 months, when you sought care, how often did doctors, nurses or other health care providers treat you with
respect?
always (1), usually (2), sometimes (3), never (4)
Q6111 In the last 12 months, when you sought care, how often did the office staff, such as receptionists or clerks there, treat you
with respect?
always (1), usually (2), sometimes (3), never (4)

continued
Classical Psychometric Assessment of the Responsiveness Instrument 617

Item variable Item wording in extended form of questionnaire


name (A stroke before the item variable name indicates the item branched off from a main item)

Q6112 In the last 12 months, how often were your physical examinations and treatments done in a way that your privacy was
respected?
always (1), usually (2), sometimes (3), never (4)
Q6113 Now, overall, how would you rate your experience of getting treated with dignity at the health services in the last 12
months? Dignity means…**
very good (1), good (2), moderate (3), bad (4), very bad (5)
Q6120 In the last 12 months, how often did doctors, nurses or other health care providers listen carefully to you?
always (1), usually (2), sometimes (3), never (4)
Q6121 In the last 12 months, how often did doctors, nurses or other health care providers there, explain things in a way you could
understand?
always (1), usually (2), sometimes (3), never (4)
Q6122 In the last 6 months, how often did doctors, nurses or other health care providers give you time to ask questions about your
health problem or treatment?
always (1), usually (2), sometimes (3), never (4)
Q6123 Now, overall, how would you rate your experience of how well health care providers communicated with you in the last 12
months? Communication means…**
very good (1), good (2), moderate (3), bad (4), very bad (5)
Q6130 In the last 12 months, when you went for care, were any decisions made about your care, treatment (drugs for example) or
tests?
(1) yes, (5) no
Q6131 In the last 12 months, how often did doctors, nurses or other health care providers there involve you as much as you wanted
to be in deciding about the care, treatment or tests?
always (1), usually (2), sometimes (3), never (4)
Q6132 In the last 12 months, how often did doctors, nurses or other health care porviders there ask your permission before start-
ing tests or treatment?
always (1), usually (2), sometimes (3), never (4)
Q6133 Now, overall, how would you rate your experience of getting involved in making decisions about your care or treatment as
much as you wanted in the last 12 months? Being involved in decision-making means…**
very good (1), good (2), moderate (3), bad (4), very bad (5)
Q6140 In the last 12 months, how often were talks with your doctor, nurse or other health care provider done privately so other
people who you did not want to hear could not overhear what was said?
always (1), usually (2), sometimes (3), never (4)
Q6141 In the last 12 months, how often did your doctor, nurse or other health care provider keep your personal information confi-
dential? This means that anyone whom you did not want informed could not find out about your medical conditions.
always (1), usually (2), sometimes (3), never (4)
Q6142 Now, overall, how would you rate your experience of the way the health services kept information about you confidential in
the last 12 months? Confidentiality means…**
very good (1), good (2), moderate (3), bad (4), very bad (5)
Q6150 In the last 12 months, with the doctors, nurses and other health care providers available to you how big a problem, if any, was
it to get to a health care provider you were happy with?
no problem (1), mild problem (2), moderate problem (3), severe problem (4), extreme problem (5)
Q6151 Over the last 12 months, how big a problem if any was it to get to use other health care services other than the one you
usually went to.
no problem (1), mild problem (2), moderate problem (3), severe problem (4), extreme problem (5), never tried (6)
Q6152 Now, overall, how would you rate your experience of being able to use a health care provider or service of your choice over
the last 12 months? Choice means…**
very good (1), good (2), moderate (3), bad (4), very bad (5)
Q6160 Thinking about the places you visited for health care in the last 12 months, how would you rate the basic quality of the wait-
ing room, for example, space, seating and fresh air?
very good (1), good (2), moderate (3), bad (4), very bad (5)
continued
618 Health Systems Performance Assessment

Item variable Item wording in extended form of questionnaire


name (A stroke before the item variable name indicates the item branched off from a main item)

Q6161 Thinking about the places you visited for health care over the last 12 months, how would you rate the cleanliness of the
place?
very good (1), good (2), moderate (3), bad (4), very bad (5)
Q6162 Now, overall, how would you rate the overall quality of the surroundings, for example, space, seating, fresh air and cleanliness
of the health services you visited in the last 12 months? Quality of surroundings means…**
very good (1), good (2), moderate (3), bad (4), very bad (5)
Q6300 Have you stayed overnight in a hospital in last 12 months?
(1) yes, (5) no
Q6301 What was the name of the hospital you stayed in most recently?
enter facility name
Q6302 Did you get your hospital care as soon as you wanted?
(1) yes, (5) no
Q6303 When you were in the hospital, how often did you get attention from doctors and nurses as quickly as you wanted?
always (1), usually (2), sometimes (3), never (4)
Q6304 Now, overall, how would you rate your experience of getting prompt attention at the hospital in the last 12 months? Prompt
attention means…**
very good (1), good (2), moderate (3), bad (4), very bad (5)
Q6305 Overall, how would you rate your experience of getting treated with dignity at the hospital in the last 12 months? Dignity
means…
very good (1), good (2), moderate (3), bad (4), very bad (5)
Q6306 Overall, how would you rate your experience of how well health care providers communicated with you during your stay in
the hospital in the last 12 months? Communication means…**
very good (1), good (2), moderate (3), bad (4), very bad (5)
Q6307 Overall, how would you rate your experience of getting involved in making decisions about your care or treatment as much
as you wanted when you were in hospital in the last 12 months? Being involved in decision-making means…**
very good (1), good (2), moderate (3), bad (4), very bad (5)
Q6308 Overall, how would you rate your experience of the way the hospital kept personal information about you confidential in the
last 12 months? Confidentiality means…**
very good (1), good (2), moderate (3), bad (4), very bad (5)
Q6309 Overall, how would you rate your experience of being able to use a hopsital of your choice over the last 12 months? Choice
means…
very good (1), good (2), moderate (3), bad (4), very bad (5)
Q6310 Overall, how would you rate the overall quality of the surroundings, for example, space, seating, fresh air, and cleanliness of
the health services you visited in the last 12 months? Quality of surroundings means…**
very good (1), good (2), moderate (3), bad (4), very bad (5)
Q6311 In the last 12 months, when you stayed in hospital, how big a problem, if any, was it to get the hospital to allow your family
and friends to take care of your personal needs, such as bringing you your favourite food, soap etc.?
no problem (1), mild problem (2), moderate problem (3), severe problem (4), extreme problem (5)
Q6312 During your stay in hospital, how big a problem, if any, was it to have the hospital allow you to practice religious or traditional
observances if you wanted to? Would you say it was..
no problem (1), mild problem (2), moderate problem (3), severe problem (4), extreme problem (5)
Q6313 Now, overall, how would you rate your experience of how the hospital allowed you to interact with family, friends and to
continue your social and or religious customs during your stay over the last 12 months. Social support means…**
very good (1), good (2), moderate (3), bad (4), very bad (5)
Q6400 In the last 12 months, were you treated badly by the health system or services in your country because of your…?
(1) yes, (5) no, (7) refuse
/Q64001 nationality
/Q64002 social class
/Q64003 lack of private insurance
continued
Classical Psychometric Assessment of the Responsiveness Instrument 619

Item variable Item wording in extended form of questionnaire


name (A stroke before the item variable name indicates the item branched off from a main item)

/Q64004 ethnicity
/Q64005 colour
/Q64006 sex
/Q64007 language
/Q64008 religion
/Q64009 political/other beliefs
/Q640010 health status
/Q640011 lack of wealth
/Q640012 other
/Q6400113 specify
Q6401* In the last 12 months, when you used health services in this country, did you feel that you were treated worse because you
were a woman?
(1) yes, (5) no, (7) refuse
Q6500 I will read you a list of different types of places you can get health services. Please can you indicate the number of times you
went to each of them in the last 30 days.
/Q6500 general practicioners
/Q6501 dentists
/Q6502 specialists
/Q6503 chiropractors
/Q6504 traditional healers
/Q6505 clinics
/Q6506 hospital outpatient unit
/Q6507 hospital inpatient unit
/Q6508 pharmacy
/Q6509 home health care services
/Q6510 other
/Q6510S specify
Q6511* What was the main reason that you went to the health care provider for your most recent visit? Please indicate all that apply.
yes (1), no (5), DK (8), NA (9)
/Q65111 you needed a check up for a chronic, ongoing problem
/Q65112 you needed care because your chronic, ongoing problem flared up
/Q65113 you needed care because of an injury or illness that had just happened
/Q65114 you needed to follow up with the provider after having an operation or treatment for an injury
/Q65115 you were not sick, you went for a general exam or preventive care
/Q65116 other
/Q65116S other, specify
Q6512* What services were provided at your most recent visit? Again, I will read through a list. Please indicate all that apply
yes (1), no (5), DK (8), NA (9)
/Q65121 you were examined
/Q65122 you received tests
/Q65123 the health care provider gave you treatment
/Q65124 the health care provider talked with you about your health problem
/Q65125 the health care provider talked to you about your health in general
/Q65126 you picked up medicine or a prescription
/Q65127 other
/Q65127S other, specify
Q6600* In the last 12 months, were you ever refused health care because you could not afford it?
(1) yes, (5) no
Q6601 In the last 12 months, did you not seek health care because you could not afford it?
(1) yes, (5) no
continued
620 Health Systems Performance Assessment

Item variable Item wording in extended form of questionnaire


name (A stroke before the item variable name indicates the item branched off from a main item)

Preamble: Ask the respondent to read the cards below or read the cards to the respondent if he/she would prefer. These
are descriptions of some different ways the health care services in your country show respect for people and make them the
centre of care. Please write the code in the space provided.
Q6602 Most important
(1) most important: dignity (DIG), confidentiality of information (CI), choice (CH), prompt attention (PA), autonomy (AUT),
surroundings or environment (ENV), social support (SS), communication (COM)
Q6603 Least important
(8) least important: dignity (DIG), confidentiality of information (CI), choice (CH), prompt attention (PA), autonomy (AUT),
surroundings or environment (ENV), social support (SS), communication (COM)
Q6604 Did the respondent read the cards him/herself?
(1) yes, (5) no
Q6701–6714 Vignettes
very good (1), good (2), moderate (3), bad (4), very bad (5)
See Annex 44.4 for wording of vignettes
* Only included in the extended form of the responsiveness module.
** These introductory phrases were used to remind interviewers to describe the domains to the respondents,
using the “cards” from Q6602 and Q6603 of the questionnaire.
Annex 44.4
Wording of Responsiveness Vignettes

Note that the response categories for all vignettes are “very good,” “good,” “moderate,” “bad,” “very bad.”
SET A
6701.Vignette 1
[Rose] is an elderly woman who is illiterate. Lately, she has been feeling dizzy and has problems sleeping. The doctor did not seem very inter-
ested in what she was telling him. He told her it was nothing and wrote something on a piece of paper, telling her to get the medication at the
pharmacy.
How would you rate Rose’s experience of how well health care providers communicated with her?
6702.Vignette 2
[Conrad] is suffering from AIDS. When he enters the health care unit the doctor shakes his hand. He asks him to sit down and inquires what his
problems are. The nurses are concerned about Conrad. They give him advice about improving his health.
How would you rate Conrad’s experience of getting treated with dignity?
6703.Vignette 3
[Anya] took her three-month old infant for her vaccination. The nurse asked her why she had not been to the clinic before, and was sympathetic
to hear that Anya had a problem finding transport. She advised her about the importance of regularly monitoring the growth of her baby.
How would you rate Anya’s experience of getting treated with dignity?
6704.Vignette 4
[Carmen] has gone for a blood test and the doctor has told her that she has diabetes mellitus and that her pancreatic activity is faulty. He has
also told her she needs insulin injections three times a day and that she should watch for hypoglycemia. If she does not control her blood sugar
she may also go blind. Carmen feels very bad because she does not understand what the doctor is talking about, but she has to leave because he
has already called the next patient.
How would you rate Carmen’s experience of how well health care providers communicated with her?
6705.Vignette 5
[Julia] visits the health care centre for treatment at a time when the centre is very crowded. The patients are all impatient to get their treatment
and are reluctant to queue and wait for their turn. The nurses are very patient most of the time about asking patients to wait their turn, but oc-
casionally they get angry and shout at her for breaking the queue.
How would you rate Julia’s experience of getting treated with dignity?
6706.Vignette 6
[Deborah] is a young woman who has been brought to the clinic by her family because she feels very anxious and distressed. She is also afraid
that she may die although she is in good health. The doctor has taken time to listen and reassure her and has invited Deborah to come to the
clinic whenever she needs to.
How would you rate Deborah’s experience of how well health care providers communicated with her?
6707.Vignette 7
[Patricia] goes to a health care unit close to her home regularly. The nurses there are very busy, but they always speak pleasantly to her. The
receptionist however is often in a bad mood, and when she is in a bad mood she shouts at Patricia, and at other patients. All appointments to
meet doctors and nurses have to be made through this receptionist so the patients put up with her rudeness.
How would you rate Patricia’s experience of getting treated with dignity?
6708.Vignette 8
[Sonia] has arrived at the clinic with her three-month-old baby girl. The mother says that the baby has lost a lot of weight, has had fever for two
days and will not take her milk. The nurse has listened to the mother without interrupting. She has asked her for additional information and has
encouraged the mother to ask her questions if she did not understand.
How would you rate Sonia’s experience of how well health care providers communicated with her?
6709.Vignette 9
[Kim] took her six month old infant to the health centre for her regular check-up. The nurse was very annoyed when she found that Kim had

continued
622 Health Systems Performance Assessment

forgotten to bring the baby’s growth chart with her. She scolded her loudly in the hearing of all the other mothers who had come to the clinic,
and kept grumbling about inconsiderate forgetful mothers who caused extra work as she weighed the baby.
How would you rate Kim’s experience of getting treated with dignity?
6710.Vignette 10
[Mario] has been told that he has epilepsy and needs to take medication. The doctor has very briefly explained what the condition is. He is very
busy and there is a queue of patients waiting to see him. Mario would like to know more about what he has, but feels that there is no time to
ask questions and that the doctor will not be very helpful.
How would you rate Mario’s experience of how well health care providers communicated with him?
6711.Vignette 11
[Said] has AIDS. When he goes to his health centre he feels that all the doctors and nurses are unfriendly towards him. They do not talk to him
freely. Often they deliberately ignore him. He often has to beg them to answer his questions.
How would you rate Said’s experience of getting treated with dignity?
6712.Vignette 12
[Florence] goes to the hospital as she has a pain in her stomach. The nurse shouts at her for not bringing her health card. Two other nurses
who are standing by make rude comments about Florence’s family and those from her village. Though Florence is in pain and moaning she is not
asked to sit down while her personal details are entered in the register.
How would you rate Florence’s experience of getting treated with dignity?
6713.Vignette 13
[Thomas] has been told that he has cataracts and that he needs an operation. He has never had his eyes checked and does not understand why
he cannot see well. The doctor has explained to Thomas what he has, but he has not understood a word and is afraid to ask again. The doctor
has not checked whether or not he has understood.
How would you rate Thomas’s experience of how well health care providers communicated with him?
6714.Vignette 14
[Jiang] has been having pain in his chest for a while. Whenever he coughs or exercises his chest is painful. He has been smoking for 30 years.
After examining him, the doctor has told him that he will get cancer if he does not stop smoking. The doctor is not very sympathetic and has
not even suggested what Jiang could do to give up smoking.
How would you rate Jiang’s experience of how well health care providers communicated with him?

SET B
6701.Vignette 1
Dr Johnson is treating [Mark]. Mark seems to be suffering from a rare disease. The press is pressurising Dr Johnson to divulge information
regarding this patient. Dr Johnson however is adamant that he will not reveal the personal details regarding his patient.
How would you rate Mark’s experience of how well the health services kept information about him confidential?
6702.Vignette 2
[Shedra] had to be hospitalised last year for a hip operation. The hospital had a separate room for her with an attached bathroom. The room
was cleaned twice a day by the hospital staff and the sheets changed daily. The bed was comfortable. She could move around in the gardens of
the hospital.
How would you rate Shedra’s experience of the overall quality of the surroundings, for example space, seating, fresh air and cleanliness, of the
health services?
6703.Vignette 3
[Alioune] went to hospital to consult the doctor about some worrying symptoms he was having. He was worried because he had recently vis-
ited a commercial sex worker. The waiting room was very crowded. Alioune met some of his friends there. The doctor’s consultation room was
a little way away from the waiting room. One had to go down the corridor to this room when it was one’s turn to consult the doctor. Alioune
went in and spoke to the doctor who ordered some tests and advised him about safe sex.
How would you rate Alioune’s experience of how well the health services kept information about him confidential?
6704.Vignette 4
[José] was admitted to a local hospital for a week as he developed high fever. The room was clean but small and the toilet was a few metres
away down the corridor. It was summer and he felt hot and had to get a table fan from home.
How would you rate José’s experience of the overall quality of the surroundings, for example space, seating, fresh air and cleanliness, of the
health services?
continued
Classical Psychometric Assessment of the Responsiveness Instrument 623

6705.Vignette 5
[Hans] had an eye operation in a local polyclinic last month. He was in a room that he had to share with four others with no partitions between
beds. He had a small locker to keep his things and shared a toilet which was cleaned only every other day.
How would you rate Hans’s experience of the overall quality of the surroundings, for example space, seating, fresh air and cleanliness, of the
health services?
6706.Vignette 6
As [Ben] has high fever over a long period, his doctor orders a number of tests. The test reports are sent over to the ward from the laboratory.
The nurse who is busy attending to some other patients leaves these reports on the counter where they are seen by Ben’s neighbour.
How would you rate Ben’s experience of how well the health services kept information about him confidential?
6707.Vignette 7
[Albert] sees his general practitioner in his office every month for his diabetes. The office has comfortable chairs in the waiting room and clean
toilets. It is well lit and there are magazines and booklets to read while waiting.
How would you rate Albert’s experience of the overall quality of the surroundings, for example space, seating, fresh air and cleanliness, of the
health services?
6708.Vignette 8
[Simon] went to the hospital to consult the doctor about some worrying symptoms he was having. He wondered if they were connected with
his recent heavy drinking. The waiting room was very crowded. Simon met a friend and a couple of his neighbours there. The doctor was sitting
in a curtained off area at the end of the waiting room. Due to the noise in the room, the doctor and Simon had to speak very loudly to hear
each other. The doctor ordered some tests and advised Simon to reduce his drinking.
How would you rate Simon’s experience of how well the health services kept information about him confidential?
6709.Vignette 9
[Paul] goes to visit Dr Jonathan because he is worried about his drinking problem and the effect it is having on his health. Dr Jonathan finds that
Paul is suffering from severe stress. Dr Jonathan mentions Paul’s visit to a mutual friend Robert, and asks him to advise Paul as well.
How would you rate Paul’s experience of how well the health services kept information about him confidential?
6710.Vignette 10
[Fouad] goes to the local public hospital whenever he needs to. The hospital is large but crowded. The waiting rooms are noisy and poorly venti-
lated. The hospital is generally kept clean though the toilets in the outpatient department tend to smell by the end of the day.
How would you rate Fouad’s experience of the overall quality of the surroundings, for example space, seating, fresh air and cleanliness, of the
health services?
6711.Vignette 11
[Roger] is suffering from AIDS. He is being treated on a general medical ward. The nurse who knows Roger’s HIV status and is worried about
her colleagues accidentally becoming infected tells the other nurses in the ward, as well as the orderlies but tells them they must keep this
information confidential.
How would you rate Roger’s experience of how well the health services kept information about him confidential?
6712.Vignette 12
[Malika] is not keeping in good health and has to go to the dispensary regularly. The place is very crowded, there are not enough chairs for
people to sit on as they wait for the doctor. The place is not cleaned regularly and tends to be littered. The corridors are dark and the lights and
fans often do not work.
How would you rate Malika’s experience of the overall quality of the surroundings, for example space, seating, fresh air and cleanliness, of the
health services?
6713.Vignette 13
[Kamal] has a nervous breakdown and had to spend 3 months in the past year in the local hospital. He had to sleep on an uncomfortable mat-
tress with no sheets. There were 30 other patients in the same dormitory style ward and the toilets would smell as they were not cleaned. He
came back with a skin infection as he couldn’t wash regularly and there were bugs in the bed.
How would you rate Kamal’s experience of the overall quality of the surroundings, for example space, seating, fresh air and cleanliness, of the
health services?
6714.Vignette 14
[Alma] goes to the hospital to take an HIV test. Though only a number is used to identify the sample, one of the lab technicians recognizes Alma.
The test turns out to be positive. The lab technician begins to tell everyone in the village about Alma being HIV positive.
How would you rate Alma’s experience of how well the health services kept information about her confidential?
continued
624 Health Systems Performance Assessment

SET C
6701.Vignette 1
[Carol] had to be in hospital over a long period, as her illness was difficult to diagnose. The hospital staff was very considerate in allowing her
family to see her and be with her as much as possible. Whenever Carol wanted to contact her family they would allow her to use the phone.
Knowing that Carol was worried, the hospital staff arranged for her to visit regularly a place of worship.
How would you rate Carol’s experience of how the hospital allowed her to interact with family and friends and to continue social and/or
religious customs during her stay?
6702.Vignette 2
[Polly] had to be in hospital for a long time after being involved in a car accident. The hospital staff encouraged her family to visit her daily at any
time they could. Her mother often brought her sweets and cakes. Her family would take her to visit a place of worship once a week and spend
time praying together.
How would you rate Polly’s experience of how the hospital allowed her to interact with family and friends and to continue social and/or
religious customs during her stay?
6703.Vignette 3
[Simon] has joint pains and breathlessness. He sees two specialists for these problems once every 2 months. Recently as his breathlessness was
worsening, he asked to see a heart specialist and his medicines were adjusted. He sees his general physician regularly to get his prescriptions.
How would you rate Simon’s experience of being able to use a health care provider or service of his choice?
6704.Vignette 4
[Alfredo] has a family physician who he consults regularly. Recently friends advised him to consult an alternative medicine provider [substitute ap-
propriate name] for a skin problem. When he asked for a referral, his doctor told him this was not possible and sent him to a skin specialist instead.
How would you rate Alfredo’s experience of being able to use a health care provider or service of his choice?
6705.Vignette 5
[Tamara] had to recuperate in hospital for two weeks after a bad fall. Her family visited her regularly during the visiting hours, but she was bored
during the rest of the day. The hospital had no common room and patients were not encouraged to go to each other’s rooms to chat. There was,
however, a little library in the hospital which she visited and the nurses sometimes brought her the daily newspaper.
How would you rate Tamara’s experience of how the hospital allowed her to interact with family and friends and to continue social and/or
religious customs during her stay?
6706.Vignette 6
[Nathan] has been having headaches for the past year. Initially his general practitioner gave medicines but that did not help. He asked to be
referred to a specialist. He has been investigated and detected to have a brain tumour that will require surgery. He knows a famous surgeon and
has been able to fix up a date for the surgery by him this month.
How would you rate Nathan’s experience of being able to use a health care provider or service of his choice?
6707.Vignette 7
[Dora] had to stay in hospital for two weeks when she broke her leg. Her husband and children were all working far from the hospital and they
found it difficult to come and visit her, particularly as the visiting time allowed was very short. Her mother could not visit her at all as the visiting
hours did not suit her.
How would you rate Dora’s experience of how the hospital allowed her to interact with family and friends and to continue social and/or
religious customs during her stay?
6708.Vignette 8
[Ibrahim] has stomach problems for several years. He has been referred to many doctors but has only had to follow the suggestions made by his
family doctor. His requests to see a particularly well-known stomach specialist have been turned down by his insurance system.
How would you rate Ibrahim’s experience of being able to use a health care provider or service of his choice?
6709.Vignette 9
[Asefa] had to be in hospital for a long time undergoing tests in preparation for his by-pass surgery. His family came to see him during the visit-
ing hours but for the rest of the day he only saw the hospital staff when they came to attend to him. He was told not to listen to his little radio
even though he was not disturbing anybody, and his request to have the local spiritual leader visit him was also discouraged on the grounds that
other patients would be disturbed.
How would you rate Asefa’s experience of how the hospital allowed him to interact with family and friends and to continue social and/or
religious customs during his stay?
6710.Vignette 10
[Penelope] had to stay in hospital for two weeks after undergoing surgery. Her family hated coming to see her, because even during visiting
time the hospital staff made them feel very unwelcome. Whenever her family brought her some sweets or cakes from home, the nurses would
continued
Classical Psychometric Assessment of the Responsiveness Instrument 625

grumble saying that Penelope was being fussy about the hospital food. Penelope would have liked to have to her closest friends visit her but the
nurses did not encourage this.
How would you rate Penelope’s experience of how the hospital allowed her to interact with family and friends and to continue social and/or
religious customs during her stay?
6711.Vignette 11
[Pascal] needs to go to the local hospital for his blood pressure. Each time that he goes, he is seen by a different doctor. When he asked to see
his previous doctor, he was told that it was not possible. Once when he was very sick and had been feeling dizzy he asked to see another doctor
or specialist but was told that he could not decide who he should see.
How would you rate Pascal’s experience of being able to use a health care provider or service of his choice?
6712.Vignette 12
[Mamadou] goes to the community health centre for his epilepsy. He has to go on a certain day of the week as the unit/team that sees him is
available only on those days. Of the four members in the team, though he sees a neurologist each time, he cannot decide who he will see as he
gets sent to whoever is free at the time.
How would you rate Mamadou’s experience of being able to use a health care provider or service of his choice?
6713.Vignette 13
[Joseph] had to stay in hospital for ten days after a road traffic accident. The nurses asked his family not to visit him as the hospital was crowded
with patients, and visitors, they said, added to our workload. Though regular meals were provided in the hospital, Joseph’s family thought they
would treat him to some of his favourite dishes. Both Joseph and his brother were soundly scolded that day and told to mind the rules of the
hospital. When Joseph asked if he could visit a place of worship the nurse in charge said that he could not leave the hospital.
How would you rate Joseph’s experience of how the hospital allowed her to interact with family and friends and to continue social and/or
religious customs during her stay?
6714.Vignette 14
[Andhaka] goes to the local general hospital. The hospital is large and has several specialities. Depending on his complaints he can decide which
department to go to. Once he is registered in a department he must see only the person assigned to him that day.
How would you rate Andhaka’s experience of being able to use a health care provider or service of his choice?

SET D
6701.Vignette 1
[Mary] has a serious health problem and knows that she will soon die. Every time she visits her doctor she asks him about her treatment and
how much her condition is deteriorating. She wants to be able to plan for the future and make arrangements for her family once she dies. The
doctor always tells her not to worry, that things are under control, and that he knows what he is doing.
How would you rate Mary’s experience of getting involved in making decisions about her care or treatment as much as she wanted?
6702.Vignette 2
[Xavier] has a stomach ulcer and was advised surgery. His doctor told him it could be arranged only after 3 months as there were other patients in the
queue. He now sees the doctor only when he has some discomfort and needs to arrange about 2 weeks in advance a time to meet him.
How would you rate Xavier’s experience of getting prompt attention?
6703.Vignette 3
[Romero] has tuberculosis and needs to see his doctor in the primary care centre every month for renewing his prescription. He lives in a vil-
lage 5 miles (8 km) away and must walk each time to see the doctor. Some days when he gets to the hospital he learns that the doctor is away
on leave and must come back without medicines and make the trip again the next day. Once when he coughed blood at night and became very
breathless, his relatives had to borrow a neighbour’s cart to take him to the hospital.
How would you rate Romero’s experience of getting prompt attention?
6704.Vignette 4
[Sarah] visits her doctor regularly because of back pain. She has discussed alternative treatment with her doctor such as special back exercises,
acupuncture, yoga, and change in lifestyle, but he only believes in medication. Whenever the pain has got worse, he has adjusted the medication
by prescribing higher doses. Despite the side effects that Sue is having, drowsiness, nausea and migraines, he will not consider other options.
How would you rate Sarah’s experience of getting involved in making decisions about her care or treatment as much as she wanted?
6705.Vignette 5
[Henry] has recently been diagnosed as having diabetes. The first time he went to the clinic he had to have blood tests, eye check ups and other
routine tests. The nurse explained every procedure in detail and asked him for his consent before doing any tests.
How would you rate Henry’s experience of getting involved in making decisions about his care or treatment as much as he wanted?

continued
626 Health Systems Performance Assessment

6706.Vignette 6
[Bob] broke his arm a few months ago and had to have a series of X-rays. Initially, the doctors told him about his fractures and explained what
they were going to do. After that, they sent him for some other tests all over the hospital without explaining why. Although Bob asked what was
happening, the doctors ignored him saying they were busy.
How would you rate Bob’s experience of getting involved in making decisions about his care or treatment as much as he wanted?
6707.Vignette 7
[Kofi] has had a heart operation last year. He is now doing well and is on regular medication. He lives outside the city and has to drive once
every 3 months to see his doctor. One night he had chest pain and called an ambulance and managed to get to the hospital in 30 minutes.
How would you rate Kofi’s experience of getting prompt attention?
6708.Vignette 8
[Dilek] suffers from difficulty breathing and has wheezing attacks almost every week. She lives across the street from the city hospital and can
get to the emergency room within 5 minutes of an attack. Within 10 minutes of getting to the emergency room she is given an injection that
relieves her distress.
How would you rate Dilek’s experience of getting prompt attention?
6709.Vignette 9
[John] has been diagnosed as having HIV. The doctor has been very supportive at the health centre he usually goes to. He has spent time discuss-
ing the different drug therapies, the psychological support that is available, and the medical care that he may need. Although he has advised John
to start taking medication, he has asked John to decide what he wants to do.
How would you rate John’s experience of getting involved in making decisions about his care or treatment as much as he wanted?
6710.Vignette 10
[Gabriel] has a history of chest pain. He usually goes to the local public hospital for his check-ups. One day he had severe pain in his chest and
had to have emergency care. As soon as he got there, the doctors had to quickly run tests and take a blood sample. They did not ask for his
permission as there was no time and they were concerned about his condition.
How would you rate Gabriel’s experience of getting involved in making decisions about his care or treatment as much as he wanted?
6711.Vignette 11
[Aitor] has had backache for several years. The local hospital is always busy and he has to wait about 3 hours each time he has to see a doctor.
At times he has to come away without seeing the doctor. He has been advised a special test and will have to wait for 6 weeks before he can get
it done as the machine in the hospital is booked.
How would you rate Aitor’s experience of getting prompt attention?
6712.Vignette 12
[Stan] fell down from a ladder and broke his leg one evening. He had to be taken to the district hospital, about 10 miles away (15 km), in a private
car. He had to wait for an hour in the hospital for the surgeon to arrive and could be operated only the next day.
How would you rate Stan’s experience of getting prompt attention?
6713.Vignette 13
[Tara] is always tired and has no energy to do anything. She gave birth to a baby girl two months ago. The doctor has told her that she may be
suffering from post-natal depression. After discussing her condition with her, he has suggested that she could either try some anti-depressants or,
if she prefers, go to a counsellor.
How would you rate Tara’s experience of getting involved in making decisions about her care or treatment as much as she wanted.
6714.Vignette 14
[Niels] has a kidney disease and has to go to the hospital every month for a check up. He sees his regular physician at a pre-arranged time and
can reach the hospital on a local bus within 15 minutes. In the past six months he has had to phone his doctor twice for urgent advice about his
medication and has received the information he required right away.
How would you rate Niels’s experience of getting prompt attention?
Annex 44.5
Item Missing Rates for the Responsiveness Module

Item missing rates


Home care section in
Variables Brief Description of Item All Sections extended version only
Filter 5.7%
Q6000 Visit in last 12 months 1.5%
Q6001 Outpatient visit 1.8%
Q6002 At facility or at home 4.1%
Q6003 Time of last visit 2.6%
Q6004 Name of place 17.3%
Q6005 Was it your usual place 6.6%
Outpatient and home care 3.3% 5.6%
Q6100 How long waited to get care 5.2% 4.1%
Q6101 How often care as soon as wanted 1.4% 5.9%
Q6102 Laboratory tests or examinations 1.1% 5.7%
Q6103 How long did you wait to get results 5.0% 2.1%
Q6104 Overall rating of prompt attention 1.1% 6.1%
Q6110 How often did health providers treat you with respect 0.6% 5.9%
Q6111 How often did office staff treat you with respect 1.8% 6.2%
Q6112 How often was privacy respected in physical exams 2.0% 6.2%
Q6113 Overall rating of dignity 0.9%
Q6120 How often did providers listen carefully to you 2.3% 6.3%
Q6121 How often did providers explain things understandably 0.8% 6.2%
Q6122 How often did providers give you time to ask questions 1.1% 6.2%
Q6123 Overall rating of communication 0.9% 6.0%
Q6130 Were any decisions made about your care 1.9% 6.2%
Q6131 How often were you involved as much as you wanted 2.1% 2.0%
Q6132 How often did health providers ask your permission 4.5% 6.3%
Q6133 Overall rating of involvement in decision making as much as wanted 3.2% 6.1%
Q6140 How often were talks done privately 2.3% 6.5%
Q6141 How often did providers keep personal information confidential 12.2% 6.4%
Q6142 Overall rating of confidentiality 6.4% 7.1%
Q6150 How big a problem was it to get a provider of your choice 3.1% 6.5%
Q6151 How big a problem was it to use a health service other than the usual one 18.2% 3.1%
Q6152 Overall rating of choice 4.1% 6.7%
Q6160 How would you rate the quality of the waiting room 1.2%
Q6161 How would you rate the overall cleanliness 1.2%
Q6162 Overall rating of space, seating, fresh air and cleanliness 1.3%
continued
628 Health Systems Performance Assessment

Variables Brief Description of Item Item missings


Inpatient care 5.3%
Q6300 Have you stayed in hospital overnight in the last 12 months 1.9%*
Q6301 Name of hospital 17.4%*
Q6302 Did you get hospital care as soon as you wanted 3.3%
Q6303 In hospital, how often could you get a nurse or doctor’s attention as quickly as you wanted 3.0%
Q6304 Overall rating of prompt attention 2.9%
Q6305 Overall rating of dignity 2.8%
Q6306 Overall rating of communication 3.0%
Q6307 Overall rating of involvement in decision making as much as wanted 4.4%
Q6308 Overall rating of confidentiality 8.9%
Q6309 Overall rating of choice 7.7%
Q6310 Overall rating of space, seating, fresh air and cleanliness 3.7%
Q6311 How big a problem was it to have family and friends take care of personal needs 5.5%
Q6312 How big a problem was it to practice religious observances 13.6%
Q6313 Overall rating of how hospital allowed you to interact with family, friends and to continue social or 5.0%
religious customs
Discrimination
Were you treated badly by the health system because of your (nationality, social class, lack of private
insurance, ethnicity, colour, sex, language, religion, political/other beliefs, health status, lack of wealth,
other, specify)
Average 4.8%
Q64001 nationality 3.0%
Q64002 social class 3.9%
Q64003 lack of private insurance 4.0%
Q64004 ethnicity 6.1%
Q64005 colour 6.7%
Q64006 sex 4.8%
Q64007 language 3.9%
Q64008 religion 4.2%
Q64009 political/other beliefs 4.4%
Q640010 health status 6.9%
Q640011 lack of wealth 4.4%
Q6401 Did you feel you were treated worse because you were a woman 40.9%
Types of providers and services
All types of I will read you a list of different types of places you can get health services. Please can you indiciate 28.8%
providers the number of times you went to each of them in the last 30 days.
(average)
Q6500 general practitioners (doctors) 27.0%
Q6501 dentists 24.5%
Q6502 specialists 24.1%
Q6503 chiropracters 30.4%
Q6504 traditional healers 29.6%
Q6505 clinics (staffed mainly by nurses, run separately from hospitals) 27.9%
Q6506 hospital outpatient units 25.7%
Q6507 hospital inpatient units 29.0%
Q6508 pharmacy (where you talked to someone about your care and did not only purchase medicine) 22.4%
Q6509 home health care services 29.5%
Q6510 other, specify 46.7%
All reasons for What was the main reason you went for your most recent visit 18.6%
visit (average)

continued
Classical Psychometric Assessment of the Responsiveness Instrument 629

Variables Brief Description of Item Item missings


All reasons for What services were provided at your most recent visit 21.7%
visit (average)
Non-utilization 5.4%
Q6600 In the last 12 months, were you ever refused health care because you could not afford it 5.1%
Q6601 In the last 12 months, did you not seek health care because you could not afford it 5.7%
Importance 12.3%
Q6602 most important domain(s) 9.2%
Q6603 least important domain(s) 15.3%
* Not included in the calculation of the missing percentage of this section; included in the filter section of Table 44.4.

Variables Item missings Variables Item missings


Set A 3% Set B 3%
vdig1 5% vcon1 3%
vdig2 4% vcon2 3%
vdig3 3% vcon3 4%
vdig4 4% vcon4 3%
vdig5 4% vcon5 3%
vdig6 3% vcon6 4%
vdig7 4% vcon7 3%
vcom1 2% vqba1 3%
vcom2 3% vqba2 2%
vcom3 2% vqba3 3%
vcom4 2% vqba4 3%
vcom5 2% vqba5 3%
vcom6 2% vqba6 3%
vcom7 2% vqba7 2%
Set C 4% Set D 3%
vss1 4% vaut1 3%
vss2 4% vaut2 3%
vss3 4% vaut3 3%
vss4 4% vaut4 4%
vss5 4% vaut5 4%
vss6 4% vaut6 3%
vss7 3% vaut7 4%
vch1 4% vpa1 3%
vch2 4% vpa2 3%
vch3 4% vpa3 4%
vch4 5% vpa4 3%
vch5 5% vpa5 3%
vch6 4% vpa6 3%
vch7 4% vpa7 3%
PRELIMINARY

Chapter 45 DRAFT
NOT FOR DISTRIBUTION

Weights for Responsiveness Domains:


Analysis of Country Variation in 65
National Sample Surveys
Nicole B. Valentine, Joshua A. Salomon

Introduction of weights in all countries and subpopulations so that


interactions with the system characterized by identi-
Improving the responsiveness of health systems is an cal levels on all domains receive the same composite
intrinsic goal of health policy (1). Responsiveness responsiveness scores. In addition, within-country or
focuses on the interpersonal and contextual aspects of subnational differences in weights may be of interest
people’s interaction with the health system. For mea- for local analyses, so a better understanding of the
surement purposes, responsiveness has been defined extent of variation in these weights would be valu-
on eight domains: dignity, autonomy, confidential- able as well.
ity of information, communication (of information), This chapter presents an empirical analysis of the
prompt attention, quality of basic amenities, access country weights for the responsiveness domains based
to support, and choice (of health care provider). An on a multi-country sample survey study. The goals
overall individual-based measure of health system of the analysis were to estimate the relative country
responsiveness requires aggregation across different weights for eight different domains of responsiveness
interactions of the individual with the system and, using a simple survey instrument, and to examine
for any particular interaction, aggregation across cross-national variation in these weights.
the multiple domains of responsiveness. If a given
interaction is described in terms of levels on a set of
domains, a composite responsiveness score for this Methodology
interaction may be computed by applying weights to
each domain that reflect the relative importance of
Data
different components of responsiveness. The deriva- The analyses described in the present chapter are based
tion of these weights for the first published assessment on the responses to 65 household surveys conducted in
of the comparative performance of health systems by 56 different countries as part of the WHO Multi-coun-
the World Health Organization in 2000 has been the try Survey Study on Health and Responsiveness 2000-
subject of technical debate following the publication 2001 (5).1 Surveys in the Multi-country Study were
of The World Health Report 2000 (2). administered through four different modes and nine
One key issue that was raised is the possibility that countries included multiple surveys conducted using
responsiveness domains might be weighted differently various modes. The modes are specified in Table 45.1
in different countries due to a variety of factors (e.g. and are described in more detail elsewhere (5;6). In
culture, history, level of resources, political priorities) all of the surveys, respondents selected from the gen-
(3;4). Domain weights may also vary across different eral population were asked to read short descriptions
subgroups within a country defined by socio-demo- of the eight responsiveness domains and to indicate
graphic characteristics (e.g. the elderly compared with the most important and the least important of them.
the young, males versus females, the employed versus Respondents were allowed to include more than one
the unemployed, the sick versus the healthy). For pur- domain in each category. In face-to-face interviews,
poses of comparison, it is useful to apply a common set the interviewers read the domain descriptions to illit-
632 Health Systems Performance Assessment

Table 45.1 List of 65 surveys analysed, survey modes, and respondent numbers
Countries Mode Respondents Countries Mode Respondents
Argentina Brief face-to-face 781 Jordan Brief face-to-face 803
Austria Postal 1 046 Kyrgyzstan Postal 1 080
Bahrain Brief face-to-face 809 Latvia Brief face-to-face 752
Belgium Brief face-to-face 1 100 Lebanon Postal 1 112
Canada Postal 407 Lithuania Postal 1 746
Canada Telephone 393 Luxembourg Telephone 719
Chile Postal 1 046 Malta Brief face-to-face 500
China * Postal 1 106 Mexico Long face-to-face 4 812
China* Long face-to-face 9 442 Morocco Brief face-to-face 754
Colombia Long face-to-face 6 019 Netherlands Postal 610
Costa Rica Brief face-to-face 756 Netherlands Brief face-to-face 1 085
Croatia Brief face-to-face 1 500 New Zealand Postal 1 801
Cyprus Postal 652 Nigeria Long face-to-face 5 047
Czech Republic Postal 1 021 Oman Brief face-to-face 835
Czech Republic Brief face-to-face 1 072 Poland Postal 882
Denmark Postal 1 511 Portugal Brief face-to-face 1 001
Egypt Long face-to-face 4 486 Republic of Korea Postal 348
Egypt Postal 1 383 Romania Brief face-to-face 1 051
Estonia Brief face-to-face 1 000 Russian Federation Brief face-to-face 1 601
Finland Postal 1 357 Slovakia Long face-to-face 1 183
Finland Brief face-to-face 1 021 Spain Brief face-to-face 1 000
France Postal 933 Sweden Brief face-to-face 1 000
France Brief face-to-face 1 003 Switzerland Postal 821
Georgia Long face-to-face 9 847 Thailand Postal 1 186
Germany Brief face-to-face 1 123 Trinidad and Tobago Postal 1 245
Greece Postal 909 Turkey Long face-to-face 5 197
Hungary Postal 1 500 Turkey Postal 2 369
Iceland Brief face-to-face 489 Ukraine Postal 788
India* Long face-to-face 5 196 United Arab Emirates Brief face-to-face 818
Indonesia Long face-to-face 9 952 United Kingdom Postal 1 018
Indonesia Postal 2 470 USA Postal 588
Ireland Brief face-to-face 711 Venezuela Brief face-to-face 754
Italy Brief face-to-face 1 002 Total respondents All surveys 117 549
* The survey covered three provinces in China, Shandong, Henan and Gansu, and one state in India, Andhra Pradesh.

erate respondents. Previously, pilot studies conducted Analysis


in eight countries in 2000 had included a longer ques-
Ordered Probit Model
tion asking respondents to rank all the domains. This
single exercise took at least 15 minutes to perform in The statistical model used for the analysis of the data
several sites, so the question was revised to have the was the ordered probit model, a standard econometric
respondents simply indicate the most important and model for ordinal response data (7). Using individual
responses on the most important and least important
the least important domains (Figure 45.1). 117 549
domains, an artificial series of categorical ratings by
responses to the surveys were received in total. The
individuals for the full set of domains was generated
average missing rate across all surveys was 9.2% for on a three category scale, where 1 = least important,
the most important question and 15.3% for the least 2 = neither least important nor most important, and
important one. Missing rates were fairly constant 3 = most important. In cases where more than one
across surveys. Missing rates for these two questions domain was mentioned as being the least or most
were higher than the average missing rate of 4% for important, all were given values of 1 or 3, respectively.
all questions in all surveys (6). The data were reshaped to include eight observations
Weights for Responsiveness Domains: Analysis of Country Variation 633

Figure 45.1 Question on the importance of responsiveness domains asked to respondents in the responsiveness
module of the Multi-country Survey Study
Read the cards below. These provide descriptions of some different ways the health care services in your country show respect for people and
make them the centre of care. Thinking about what is on these cards and about the whole health system, which is the most important and the
least important to you?

DIGNITY AUTONOMY
 being shown respect  being involved in deciding on your care or treatment if you want
 having physical examinations conducted in privacy to
 having the provider ask your permission before starting treat-
ments or tests

CONFIDENTIALITY OF INFORMATION SURROUNDINGS OR ENVIRONMENT


 having your medical history kept confidential  having enough space, seating and fresh air in the waiting room
 having talks with health providers done so that other people who  having a clean facility (including clean toilets)
you don’t want to have hear you can’t overhear you  having healthy and edible food

CHOICE SUPPORT
 being able to choose your doctor or nurse or other person usu-  being allowed the provision of food and other gifts by relatives
ally providing your health care  being allowed freedom of religious practices
 being able to go to another place for health care if you want to

PROMPT ATTENTION COMMUNICATION


 having a reasonable distance and travel time from your home to  having the provider listen to you carefully
the health care provider  having the provider explain things so you can understand
 getting fast care in emergencies  having time to ask questions
 having short waiting times for appointments and consultations,
and getting tests done quickly
 having short waiting lists for non-emergency surgery

MOST IMPORTANT________________________

LEAST IMPORTANT________________________

per person, with each observation consisting of a vec- variables for the different domains, specific to each
tor of dummy variables (one for each country-domain country, so that the model coefficients represent the
combination) as the independent variables, and the average relative value on the latent scale associated
score for a particular domain as the dependent vari- with each domain in each country.
able. No individual explanatory variables were used as The observed responses yi,j are related to a series of
the analysis was undertaken at the country level. cut-points that represent thresholds on the latent vari-
The ordered probit model assumes that the cat- able at which individuals transition from one response
egorical response scores arise from an unobserved, category to another, so that:
continuous latent variable representing the level of
yi,j = 1 if –∞ ≤ Y*i,j < τ1
importance for a particular domain, normally dis-
tributed with variance 1: yi,j = 2 if τ1 ≤ Y*i,j < τ2
Y*i,j ~ N(μi,j ,1) yi,j = 3 if τ2 ≤ Y*i,j < +∞
where Y*i,j is the latent weight placed by person i on Estimation of the model is based on the probabili-
domain j. ties of answering in each category, given the distribu-
The expected value of the latent variable μi,j is tion of the latent variable for that country and domain,
expressed as a linear function of a series of indicator and the set of cut-points (τ1 and τ2).
634 Health Systems Performance Assessment

By convention, the model is identified by setting the 8


variance of the normal distribution to 1 and the inter- XD,C ∑w i,C − wD,C
cept term in the linear function (an arbitrary reference α= i =1
domain in one country) to 0, which produces a scale XD,C * 8 − 1
that is arbitrary but has interval properties. An inter- 8
val scale allows us to make meaningful comparisons
of the differences between any two domain values,
β= ∑w
i =1
i,C − α *8

but interpretation of the results in units correspond-


ing to weights (i.e. numbers that lie between 0 and 1 where the indices D and C indicate the reference
and sum to unity across the set of domains for a given domain and country, respectively, and XD,C therefore
unit of comparison) requires a rescaling of the results, represents the choice of value for the anchor weight.
as described below. The rescaling parameters are computed based
only on the reference country’s coefficients (i.e. in the
Transformation of Parameters to Weights equations above, only C appears out of all possible
values of j). Once they are applied to all of the regres-
The results of the ordered probit model reflect an sion coefficients, there will be some minor deviations
unknown positive affine transformation of the true from 1 in the sum of the weights in different countries,
scale of domain weights. This relationship can be for- since the regression coefficients are estimated without
malized as follows: constraint. The weights are therefore normalized to
sum to 1 in each country following the application of
wi,j = α + βXi,j
the transformation function.
where wi,j is the coefficient for domain i in country j Results that would be obtained using anchor val-
from the regression, Xi,j is the properly scaled domain ues between 0% and 10%, at 0.5% intervals were
weight for domain i in country j, and α and β are examined for this chapter. An anchor value of 0%
unknown parameters. results in the greatest amount of variation within and
In order to transform these results into weights (i.e. between countries, while an anchor weight of 10%
determine the values of α and β in order to rescale the produces near equality in all weights across domains
coefficients), two additional pieces of information are and countries.
used. The first is the requirement that the weights, by
definition, must sum to unity for any given unit of Results
observation (in this case, a country). The second piece Figure 45.2 shows the frequency with which domains
of information that is needed is one known weight that were categorized as most important, least important,
can serve to anchor the scale. The latter was obtained or neither most nor least important in each of the 65
by choosing a value for the lowest estimated weight surveys. Prompt attention (Figure 45.2f) was most
across all domains and countries, corresponding to the commonly rated as the most important domain, with
lowest coefficient in the ordered probit regression. dignity and communication the next domains most
Given the choice of the lowest weight across all likely to be considered most important (Figures 45.2c
domains and countries as the anchor point, there are & 45.2e). Access to family and community support
natural constraints on the possible values for this and quality of basic amenities were selected most
weight. At the low end, the weight must be greater often as the least important domains (Figures 45.2h &
than or equal to 0, since negative weights have no 45.2g). On average, across respondents from all coun-
meaning in this case. At the high end, the minimum tries, 42% of respondents selected prompt attention
weight must be less than or equal to 12.5%, as this as the most important domain, while 41% selected
represents the value obtained when all eight domains support as the least important one.
have equal weight (a weight higher than 12.5% would Table 45.2 provides the estimated coefficients from
imply that at least one other domain has a weight the probit regression. The base country and domain in
lower than 12.5%, which is not possible since the cho- the probit regression was the United Arab Emirates,
sen anchor has the lowest value across all domains). which was assigned a coefficient of 0. The country
For any given value of this anchor weight, the coef- was chosen for convenience as it fell in first position
ficients of the linear transformation function are fully in the alphabetical listing of countries when listed by
determined as follows: country label (ARE). Consistent with Figure 45.2,
Weights for Responsiveness Domains: Analysis of Country Variation 635

Figure 45.2 Frequency of respondents in a country rating a domain as least important or most important

a) Autonomy b) Choice
100% 100%
Most Important
80% 80% Neither
Least Important

60% 60%

40% 40%

20% 20%

0% 0%

c) Communication d) Confidentiality
100% 100%

80% 80%

60% 60%

40% 40%

20% 20%

0% 0%

e) Dignity f) Prompt attention


100% 100%

80% 80%

60% 60%

40% 40%

20% 20%

0% 0%

g) Quality of basic amenities h) Support


100% 100%

80% 80%

60% 60%

40% 40%

20% 20%

0% 0%

Domains not rated were assigned the label “neither least or most important.” The large area of grey shading in (h) shows that across countries, a large proportion of
respondents rated the access to family and community support domain as least important.

the coefficients on support are lowest in nearly every domains). Figure 45.3 provides results for a range of
survey relative to other domains. The negative sign different choices for this anchoring value. For the main
in front of many of the support domain coefficients results in this chapter, the base case has been defined
indicates that the support domain in that particular using an anchor weight of 2%. This choice reflects
country has a lower ranking relative to the base coun- the notion that the mean weight in any particular
try (United Arab Emirates). country is unlikely to be zero even for the domain
The regression coefficients were converted into with the lowest relative importance. However, a low
weights using the approach described above, which non-zero value has been chosen for the anchor because
depends on the choice of a particular anchoring lower values for the minimum imply greater variation
value (for the lowest weight across all countries and across domains and countries. Given the interest in
636 Health Systems Performance Assessment

Table 45.2 Domain coefficients from the ordered probit model for 65 surveysa
Quality
Communi- Confiden- Prompt of basic
Country Autonomy Choice cation tiality Dignity attention amenities Support
Argentina 0.749 1.153 1.201 0.867 1.677 2.398 0.807 –0.023
Austria 1.398 1.249 1.620 1.270 1.425 1.901 0.758 –0.471
Bahrain 0.727 0.736 1.440 1.150 1.967 1.799 0.717 0.039
Belgium 1.141 1.183 1.369 1.433 1.584 2.082 0.119 0.137
Canada* 1.171 1.148 1.586 0.982 1.312 2.511 0.673 –0.625
Canada 0.963 1.089 1.429 1.139 1.217 2.419 –0.096 0.634
Chile 1.107 1.146 1.187 0.998 2.176 1.997 0.925 –0.588
China (3 provinces)b 1.025 0.949 1.400 0.841 1.682 2.113 0.702 –0.036
China* (3 provinces)b 1.305 1.153 1.313 0.902 2.072 1.574 1.151 –0.440
Colombia 1.043 1.008 1.364 1.041 1.693 2.279 0.652 –0.372
Costa Rica 0.898 0.816 1.533 1.071 1.514 2.080 0.770 0.120
Croatia 0.893 1.125 1.370 0.839 1.540 2.446 0.534 –0.062
Cyprus 0.994 1.474 1.293 0.981 1.481 1.961 0.956 –0.270
Czech Republic 0.853 1.176 1.041 1.156 1.351 2.506 0.802 –0.125
Czech Republic* 1.016 1.408 1.741 1.017 1.354 2.055 0.925 –0.591
Denmark 1.230 0.942 1.590 1.101 1.709 2.432 0.746 –0.914
Egypt 0.800 1.002 1.113 1.199 2.394 1.449 0.614 –0.072
Egypt* 0.465 0.988 1.071 1.360 2.247 1.417 1.005 0.076
Estonia 0.779 1.768 1.041 1.080 1.427 2.191 0.555 0.036
Finland 1.080 1.012 1.192 1.291 1.548 2.624 0.549 –0.467
Finland* 1.107 0.919 1.678 1.322 1.305 2.340 0.547 –0.414
France 1.028 1.218 1.450 1.442 1.463 2.236 0.016 0.059
France* 1.097 1.191 1.643 1.051 1.346 2.134 0.704 –0.101
Georgia 0.594 1.294 1.609 0.666 1.750 1.631 0.957 0.156
Germany 1.137 1.371 1.136 1.555 1.320 2.028 0.589 –0.113
Greece 0.839 1.324 1.305 0.886 1.500 2.319 1.059 –0.377
Hungary 1.115 1.243 1.468 1.005 1.529 2.374 0.818 –0.598
Iceland 1.125 1.000 1.392 1.624 1.816 1.772 0.367 –0.100
India (1 province)b 0.782 0.464 1.699 0.871 1.238 2.499 0.914 0.032
Indonesia 0.785 0.703 1.387 0.681 1.510 2.716 0.851 –0.132
Indonesia* 0.693 0.592 1.799 1.012 1.173 2.117 1.148 0.340
Ireland 0.964 1.326 1.211 1.245 1.592 2.272 0.509 –0.107
Italy 0.896 1.186 1.142 1.003 1.286 2.759 0.589 –0.008
Jordan 0.887 0.838 1.171 1.087 2.042 2.006 0.833 –0.287
Kyrgyzstan 0.929 1.018 1.180 0.885 1.382 1.817 1.106 0.538
Latvia 0.623 1.535 1.305 0.890 1.613 2.091 0.361 0.380
Lebanon 0.907 0.953 1.520 0.975 2.328 1.538 0.813 –0.150
Lithuania 0.884 1.253 1.356 0.642 1.597 2.241 0.745 0.088
Luxembourg 1.090 1.309 1.439 1.427 1.439 1.732 0.097 0.326
Malta 1.229 1.120 1.530 1.477 1.378 2.095 0.696 –0.251
Mexico 0.875 0.744 1.379 1.147 1.690 2.244 0.572 0.007
Morocco 0.724 0.841 1.310 1.000 2.134 1.924 0.774 0.271
Netherlands 1.212 1.006 1.368 1.514 1.543 2.175 0.431 –0.105
Netherlands* 1.370 0.968 1.576 1.117 1.430 2.281 0.753 –0.569
New Zealand 1.225 0.992 1.570 1.067 1.429 2.504 0.659 –0.569
Nigeria 0.678 0.304 1.582 0.967 0.920 2.555 1.068 0.367
Oman 0.679 0.743 1.581 1.223 1.772 1.953 0.929 –0.170
Poland 1.042 1.374 1.145 1.013 1.343 2.452 0.870 –0.396
Portugal 0.853 1.157 0.865 1.040 1.272 2.592 0.577 0.500
continued
Weights for Responsiveness Domains: Analysis of Country Variation 637

Table 45.2 Domain coefficients from the ordered probit model for 65 surveys (continued)
Quality
Communi- Confiden- Prompt of basic
Country Autonomy Choice cation tiality Dignity attention amenities Support

Republic of Korea 1.183 1.231 2.069 1.021 1.293 1.778 1.082 –0.677
Romania 0.560 1.048 1.194 0.791 1.445 2.569 0.970 0.255
Russia 0.643 1.156 1.167 0.918 1.346 2.522 0.632 0.381
Slovakia 0.960 0.993 1.564 1.380 1.344 2.066 0.291 0.091
Spain 0.940 1.047 1.447 1.136 1.401 2.625 0.787 –0.368
Sweden 1.284 0.775 1.430 1.103 1.729 2.545 0.535 –0.543
Switzerland 1.346 1.233 1.425 1.117 1.318 1.535 0.830 0.077
Thailand 1.146 0.619 1.432 0.883 0.991 2.451 0.955 0.042
Trinidad and Tobago 0.964 0.760 1.259 1.117 1.262 1.919 1.055 0.320
Turkey 1.181 1.216 1.643 1.056 1.685 1.795 1.400 0.518
Turkey* 0.808 1.002 1.295 0.811 1.565 2.289 1.043 –0.140
Ukraine 1.216 1.787 1.954 1.569 2.136 2.758 1.693 0.792
United Arab Emirates 0.727 0.887 1.391 1.068 1.555 2.069 0.894 0.000
United Kingdom 1.042 0.849 1.323 1.095 1.342 2.579 0.662 –0.447
United States of America 1.131 1.872 1.588 0.936 1.284 1.817 0.697 –0.438
Venezuela 0.701 0.793 0.924 1.049 1.600 2.578 0.811 –0.011

a. The higher the coefficient, the greater the weight attributed to any particular domain with respect to the base country domain (United Arab Emirates, support domain)
b. The survey covered three provinces in China, Shandong, Henan and Gansu, and one state in India (Andhra Pradesh).
* Postal survey.

Figure 45.3 Domain weights under alternative anchor values

Lowest weight = 0% Lowest weight = 2%


0.25 0.25 dig dignity
aut autonomy
0.2 0.2 con confidentiality
0.15 0.15 com communication
pa prompt attention
0.1 0.1 qba quality of basic
0.05 0.05 amenities
ss social support
0 0 ch choice
aut ch com con dig pa qba ss aut ch com con dig pa qba ss

Lowest weight = 4% Lowest weight = 6%


0.25 0.25
0.2 0.2
0.15 0.15
0.1 0.1
0.05 0.05
0 0
aut ch com con dig pa qba ss aut ch com con dig pa qba ss

Lowest weight = 8% Lowest weight = 10%


0.25 0.25
0.2 0.2
0.15 0.15
0.1 0.1
0.05 0.05
0 0
aut ch com con dig pa qba ss aut ch com con dig pa qba ss

Each graph shows the range of weights (mean, minimum, and maximum) that are implied by choices for the lowest weight across all countries ranging from 0 to 10%,
shown at 2% increments.
638 Health Systems Performance Assessment

understanding variation in the weights that people (12.4%), choice (12.3%), autonomy (11.7%), quality of
from different countries and cultures place on differ- basic amenities (10.6%), and access to support (6.3%).
ent domains, this choice of a low value puts minimal Table 45.3 also shows the standard deviations of
constraint on the possibility of variation. the domain weights across countries. There is some,
The average domain weights by country are shown albeit limited, variation in the weights across coun-
tries. This suggests, not surprisingly, that there is
in Table 45.3 for the base case anchor value of 2%
some variation in the way people in different coun-
(Denmark), along with summary statistics for the dis-
tries view responsiveness, but that for the purposes of
tribution of these weights across countries. cross-country comparisons it would be reasonable to
On average, the highest weight was attached to the use a standard set of weights.
domain of prompt attention (mean = 18%), with aver- Figure 45.4 summarizes the country weights, with
age weights for the other domains as follows: dignity the survey results ordered from highest to lowest
(14.8 %), communication (14.0%), confidentiality for prompt attention. The (Pearson’s) correlations

Table 45.3 Domain weights for eight domains across 65 surveysa


Quality
Communi- Prompt of basic
Country Autonomy Choice cation Confidentiality Dignity attention amenities Support
Argentina 10.7 12.8 13.0 11.3 15.5 19.2 11.0 6.6
Austria 13.8 13.0 14.9 13.1 13.9 16.4 10.5 4.2
Bahrain 10.7 10.7 14.4 12.9 17.2 16.3 10.6 7.1
Belgium 12.6 12.8 13.7 14.1 14.8 17.4 7.3 7.4
Canada* 12.9 12.8 15.1 11.9 13.6 19.9 10.3 3.5
Canada 11.8 12.4 14.2 12.7 13.1 19.4 6.3 10.1
Chile 12.4 12.6 12.9 11.9 18.0 17.0 11.5 3.7
China (3 provinces)b 12.2 11.8 14.2 11.2 15.6 17.9 10.5 6.6
China (3 provinces)b* 13.4 12.6 13.4 11.3 17.4 14.8 12.6 4.4
Colombia 12.3 12.1 13.9 12.3 15.7 18.7 10.2 4.9
Costa Rica 11.4 11.0 14.8 12.3 14.7 17.6 10.8 7.4
Croatia 11.5 12.7 14.0 11.2 14.9 19.6 9.6 6.5
Cyprus 11.9 14.4 13.5 11.8 14.4 16.9 11.7 5.3
Czech Republic 11.2 12.9 12.2 12.8 13.8 19.9 11.0 6.1
Czech Republic* 12.0 14.0 15.7 12.0 13.7 17.4 11.5 3.7
Denmark 13.2 11.7 15.0 12.5 15.6 19.4 10.6 2.0
Egypt 11.1 12.2 12.8 13.2 19.6 14.5 10.1 6.5
Egypt* 9.3 12.0 12.5 14.0 18.6 14.3 12.1 7.2
Estonia 10.8 15.9 12.1 12.3 14.1 18.1 9.6 6.9
Finland 12.4 12.0 13.0 13.5 14.8 20.4 9.6 4.3
Finland* 12.5 11.6 15.5 13.7 13.6 19.0 9.6 4.6
France 12.1 13.0 14.2 14.2 14.3 18.3 6.8 7.0
France* 12.3 12.8 15.1 12.1 13.6 17.6 10.3 6.2
Georgia 9.9 13.6 15.3 10.3 16.0 15.4 11.8 7.6
Germany 12.5 13.8 12.5 14.7 13.5 17.1 9.7 6.1
Greece 11.1 13.6 13.5 11.4 14.5 18.8 12.2 4.8
Hungary 12.5 13.1 14.3 11.9 14.6 19.0 10.9 3.6
Iceland 12.5 11.9 13.9 15.1 16.1 15.8 8.6 6.2
India (1 province)b 11.0 9.3 15.9 11.5 13.4 20.1 11.7 7.0
Indonesia 11.0 10.6 14.2 10.5 14.9 21.3 11.4 6.2
Indonesia* 10.3 9.8 16.1 12.0 12.8 17.7 12.7 8.5
Ireland 11.7 13.5 12.9 13.1 14.9 18.4 9.3 6.1
Italy 11.4 12.9 12.7 12.0 13.4 21.1 9.8 6.7
Jordan 11.5 11.3 13.0 12.6 17.6 17.4 11.2 5.3
continued
Weights for Responsiveness Domains: Analysis of Country Variation 639

between the country-specific weights and the global The combined weights derived from these two sources
average weights are high, with an average correlation were 20% for prompt attention, 16.7% for dignity,
of 0.92. autonomy, and confidentiality respectively, 15% for
For The World Health Report 2000 (2), responsive- quality of basic amenities, 10% for access to support
ness was defined in terms of seven domains: dignity, networks, and 5% for choice.
autonomy, confidentiality, prompt attention, access The mean values from The World Health Report
to support, quality of basic amenities, and choice. 2000 key informant surveys and the mean values and
The weights on these domains were derived from two ranges from the WHO Multi-country Survey Study on
sources: an internet survey (n = 1 007), and a survey Health and Responsiveness 2000–2001 of households
of key health system actors in 35 countries (n = 1 791). are compared in Table 45.4. Communication was con-

Table 45.3 Domain weights for eight domains across 65 surveys (continued)
Quality
Communi- Prompt of basic
Country Autonomy Choice cation Confidentiality Dignity attention amenities Support
Kyrgyzstan 11.6 12.0 12.9 11.3 13.9 16.2 12.5 9.5
Latvia 10.0 14.8 13.6 11.4 15.2 17.7 8.6 8.7
Lebanon 11.4 11.7 14.6 11.8 18.8 14.7 11.0 6.0
Lithuania 11.4 13.3 13.8 10.1 15.1 18.4 10.6 7.2
Luxembourg 12.4 13.5 14.2 14.2 14.2 15.7 7.2 8.4
Malta 12.9 12.3 14.4 14.1 13.6 17.3 10.1 5.3
Mexico 11.4 10.7 14.1 12.8 15.7 18.6 9.8 6.9
Morocco 10.4 11.0 13.5 11.9 17.7 16.6 10.7 8.1
Netherlands 12.9 11.8 13.7 14.4 14.5 17.8 8.9 6.1
Netherlands* 13.8 11.7 14.9 12.5 14.1 18.5 10.6 3.8
New Zealand 13.1 11.9 14.9 12.3 14.2 19.7 10.2 3.8
Nigeria 10.5 8.5 15.3 12.0 11.8 20.5 12.6 8.8
Oman 10.4 10.7 15.1 13.2 16.1 17.0 11.7 5.9
Poland 12.2 13.9 12.7 12.0 13.7 19.5 11.3 4.7
Portugal 11.2 12.8 11.2 12.2 13.4 20.2 9.7 9.3
Republic of Korea 12.8 13.1 17.4 12.0 13.4 15.9 12.3 3.2
Romania 9.7 12.2 13.0 10.9 14.3 20.1 11.8 8.1
Russia 10.1 12.8 12.9 11.6 13.8 19.9 10.1 8.8
Slovakia 11.8 12.0 15.0 14.0 13.9 17.6 8.3 7.3
Spain 11.5 12.1 14.1 12.5 13.9 20.2 10.7 4.8
Sweden 13.4 10.8 14.2 12.5 15.7 20.0 9.5 3.9
Switzerland 13.7 13.1 14.1 12.5 13.6 14.7 11.0 7.1
Thailand 12.9 10.1 14.4 11.5 12.1 19.8 11.9 7.1
Trinidad and Tobago 11.9 10.8 13.4 12.7 13.4 16.9 12.4 8.5
Turkey 11.1 12.1 13.6 11.1 15.0 18.8 12.3 6.1
Turkey* 11.9 12.0 14.1 11.3 14.3 14.8 12.9 8.7
Ukraine 10.3 12.7 13.4 11.8 14.1 16.7 12.3 8.6
United Arab Emirates 10.7 11.5 14.2 12.5 15.0 17.7 11.6 6.8
United Kingdom 12.4 11.4 13.9 12.7 14.0 20.6 10.4 4.5
United States of America 12.6 16.4 15.0 11.6 13.4 16.2 10.4 4.5
Venezuela 10.6 11.1 11.8 12.5 15.4 20.6 11.2 6.8
Mean 11.7 12.3 14.0 12.4 14.8 18.0 10.6 6.3
Standard deviation 1.1 1.4 1.1 1.1 1.6 1.8 1.4 1.8
a. Weights were converted from the coefficients in Table 45.2 setting the lowest weight across domains and countries to 2%.
b. The survey covered three provinces in China, Shandong, Henan and Gansu, and one state in India, Andhra Pradesh.
* Postal survey.
640 Health Systems Performance Assessment

sidered a sub-component of dignity and autonomy in per capita (0.41) and health expenditure per capita
The World Health Report 2000, but has since been (0.39). The negative relationships observed for qual-
added as a separate domain based on the recommen- ity of basic amenities are in line with the hypothesis
dation of an expert consultation on responsiveness (4). that people in wealthier countries place less emphasis
For comparative purposes in Table 45.4, differences on the quality of basic amenities because good qual-
between the two sets of results have been computed ity facilities already exist in these countries. Similarly
by allocating a third of the weight for autonomy and with autonomy, it may be that individuals place more
a third of the weight for dignity in The World Health importance on autonomy where involvement in mak-
Report 2000 to communication. ing decisions is more feasible, for example, in better-
Four domains were allocated higher weights by key equipped health systems and in societies where higher
informants for The World Health Report 2000 than by levels of education prevail.
the respondents selected from the general population
in the Multi-country Study: in descending order, qual- Discussion
ity of basic amenities (–4.4%), confidentiality (–4.3%),
access to support (–3.7%), and prompt attention This analysis of the relative importance of eight
(–2%). Four domains were considered more impor- domains of responsiveness across 117 549 respon-
tant in the Multi-country Study. These were choice dents from 56 different countries has yielded a num-
(7.3%), communication (2.9%), dignity (3.7%), and ber of surprising results. At the country level, there is
autonomy (0.6%). Finally, the relatively high weight some evidence of similarities between average domain
(14%) attributed to communication supports the deci- weights, with the most important domain generally
sion to include it as a domain in its own right. being prompt attention (for 54 out of 65 surveys)
The results of a simple (Pearson’s) correlation of and the least important generally being access to
the domain weights with GDP per capita and health support (for 60 surveys). The low standard devia-
expenditure per capita are shown in Table 45.5. These tion across countries of most of the domain weights
variables were chosen to represent differences between provides some support for the use of a common set
countries with regards to socioeconomic levels and of global weights for comparative purposes, although
health system resources. further investigation of differences both within and
There is little association between the mean domain across countries will be made possible by evaluation
weights and the other variables, except in two cases. of variances at the individual level and by continuing
For quality of basic amenities, there is a strong nega- data collection efforts in the World Health Survey (8).
tive correlation with GDP per capita (–0.56) and
health expenditure per capita (–0.61). For autonomy, Table 45.4 Comparison of responsiveness domain
there is a moderate positive correlation with GDP weights from 65 national sample surveys
with the World Health Report 2000 key
Figure 45.4 Comparisons of eight domain weights informant survey results
across 65 surveys. Surveys in decending World Health
order based on prompt attention weights Report 2000
WHO Multi- key informant
100 country Study survey results:
Communication Results: mean* mean Difference
Support Prompt Attention 18.0 20.0 –2.0
80
Quality of basic amenities Dignity 14.8 11.1 3.7
Avergae domain (%)

Communication 14.0 11.1 2.9


Autonomy
60 Confidentiality 12.4 16.7 –4.3
Choice Choice 12.3 5.0 7.3
Autonomy 11.7 11.1 0.6
40 Confidentiality Quality of basic 10.6 15.0 –4.4
amenities
Dignity
Support 6.3 10.0 –3.7
20
Total 100.0 100.00
Prompt attention
* Weights are rounded to 1 decimal place. The summation based on the
0 rounded values is 100.1.
Weights for Responsiveness Domains: Analysis of Country Variation 641

As more data become available on country-specific vey 2002, asking respondents to rate the importance
domain weights, sensitivity analyses for responsive- of each domain on a five-point categorical response
ness assessments can be conducted to consider whether scale ranging from “extremely important” to “not
local variation in weights may affect policy conclu- at all important.” It may also be useful to examine
sions in important ways. other possible models for deriving weights, including
Conceptually there has been some disagreement the analysis of direct rankings using variants of the
about whether communication was a domain in its discrete choice models introduced by McFadden (9).
own right, or a means to achieving better dignity, Another important limitation to be emphasized is that
or better involvement in decision-making. The high inferences regarding weights on different domains,
weight assigned by individuals to communication given data only on the most important and the least
(14%) seems to indicate that it should be a separate important ones, require specification of at least one
domain (4). anchor weight in order to identify a unique scale. The
A comparison of the weights computed using the basis for assigning this anchor weight deserves fur-
data and methods described in this chapter with ther consideration. Finally, additional enhancements to
those derived previously, from key informant sur- the statistical model should be explored, for example
veys, revealed the largest discrepancy for the domain incorporation of other prior information about the
of choice. General population respondents in the weights in a Bayesian framework or combination of
WHO Multi-country Study gave this domain a much the two-step procedure of estimation and transforma-
higher weight than respondents in the earlier key tion into a single process.
informant survey. This might be explained by the fact Despite these limitations, the technique presented
that key informants are less sensitive to constraints here allows a considerable amount of information to
on choice of provider because they were themselves be extracted from a limited set of survey questions.
drawn largely from health services or provider groups, This general approach may be useful in a number of
while respondents from a more general population other applications in which ordinal data are available,
sample value choice more highly. Comparison of the but these data are assumed to reflect an underlying set
responses of people who work in the health system of weights.
with those who do not is one way of exploring this
question in more detail, an option pursued in the
World Health Survey. Acknowledgements
In interpreting the results, it is important to note The authors would like to acknowledge the special
several limitations. The study is based on artificially contribution of Charles Darby (Agency for Healthcare
generated categorical ratings from questions on the Research and Quality, USA) who was instrumental
most and the least important domains. A longer in developing the question on domain ranks in the
question for eliciting the relative importance of the responsiveness module of the Multi-country Survey
domains has been included in the World Health Sur- Study. They would also like to thank Christopher J.L.
Murray and David B. Evans of the World Health Orga-
Table 45.5 Correlation of responsiveness domain nization, and Gouke J. Bonsel (Amsterdam Medical
weights with GDP per capita and total Centre, Holland) for their comments on earlier drafts.
health expenditure per capita for 65
surveys
Notes
Total health
GDP per capita expenditure per 1 Responsiveness data from 65 out of 70 surveys containing
(US $) capita (US $)
the responsiveness module were available at the time of
Autonomy 0.410 0.393 analysis.
Choice –0.092 –0.026
Communication –0.011 0.055
Confidentiality 0.300 0.231 References
Dignity –0.029 –0.054
Prompt attention 0.233 0.281 (1) Murray CJL, Frenk J. A framework for assessing the
Quality of basic amenities –0.562 –0.614 performance of health systems. Bulletin of the World
Support –0.284 –0.318 Health Organization, 2000, 78(6):717–731.
642 Health Systems Performance Assessment

(2) World Health Organization. The World Health Report debates, methods and empiricism. Geneva, World Health
2000. Health Systems: Improving Performance. Geneva, Organization, 2003.
World Health Organization, 2000. (6) Valentine NB et al. Classical psychometric assessment
(3) Häkkinen U, Ollila E, eds. The World Health Report of the responsiveness instrument in the WHO Multi-
2000: what does it tell us about health systems? Analyses country Survey Study on Health and Responsiveness
by Finnish experts. Helsinki, National Research and 2000–2001. In: Murray CJL, Evans DB, eds. Health
Development Center for Welfare and Health (STAKES), systems performance assessment: debates, methods and
2000. empiricism. Geneva, World Health Organization, 2003.
(4) World Health Organization. Technical Consultation on (7) Long JS. Regression models for categorical and limited
Concepts and Methods for Measuring the Responsive- dependent variables. Thousand Oaks, Sage Publications,
ness of Health Systems. In: Murray CJL, Evans DB, 1997.
eds. Health systems performance assessment: debates, (8) World Health Organization. World Health Survey. Ge-
methods and empiricism. Geneva, World Health Or- neva, World Health Organization, 2003. URL: http://
ganization, 2003. www3.who.int/whs/
(5) Üstün TB et al. WHO Multi-country Survey Study on (9) McFadden D. Conditional logit analysis of qualitative
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Chapter 46

Patient Experiences with Health Services:


Population Surveys from 16 OECD Countries
Nicole B. Valentine, Juan Pablo Ortiz, Ajay Tandon, Kei Kawabata,
David B. Evans, Christopher J.L. Murray

Introduction Two key principles guide the strategy for measuring


responsiveness. First, it is measured from the perspec-
One of the characteristics of the health sector is that tive of the individual—how the individual describes
health professionals have traditionally made decisions the nature of his/her interaction with the health sys-
on what they think is in the best interest of the patient tem. It is not measured from the perspective of an
on the grounds that members of the general public expert’s evaluation of the technical quality of the inter-
lack the technical knowledge to make fully informed action. Second, it is important to ensure comparability
decisions themselves. Partly for this reason, attention of measurement across populations and over time if
has only recently focused on the perceptions of the responsiveness is to be used for bench-marking.
public of their health systems, with patient satisfaction The results presented here focus on health system
surveys and patient reports of their experiences with responsiveness in outpatient and inpatient service
health care becoming more widely used for bench- settings. Using a standardized questionnaire module
marking purposes (1–6). fielded in a sample survey in 16 OECD countries in
Estimates of patient satisfaction pose a number of 2001, aspects of individuals’ interactions with the sys-
problems for bench-marking. The most important is tem were measured on the following core domains:
that satisfaction measures the discrepancy between autonomy, choice of health care provider, communi-
expectations prior to an experience and the actual cation, confidentiality of information, dignity, prompt
experience (7). This contains two pieces of informa- attention, quality of basic amenities, and access to
tion: expectations and the quality of the experience, family and community support. This chapter reports
the main results and compares the resulting estimates
making it difficult to determine if low satisfaction is
of health system responsiveness with earlier estimates
due to high expectations or to interactions with the
of patient satisfaction in 15 of those countries.
system that are of low quality. Additional problems are
the lack of a comparable metric to measure satisfac-
tion across settings and over time, and the difficulty Methods
of determining the reliability and validity of instru-
Table 46.1 reports details of the survey study, includ-
ments due to the difficulty of establishing “truth.” ing the countries involved, the survey modes, response
Patient satisfaction surveys have also been criticized rates, final sample sizes, and the percentage of respon-
for providing little direction on how to improve ser- dents reporting an outpatient or inpatient experience
vice quality (1;5). in the previous 12 months.
For these reasons, increasing attention has focused All surveys used stratified, national sampling
on dimensions of people’s experiences with the health frames. Ten of the surveys involved face-to-face
system that can improve the well-being of the popu- interviews, one was a random-digit telephone dial-
lation independently of any resulting improvement in ing survey (Luxembourg), and the remaining five
health. These dimensions characterize what is referred were self-administered surveys posted to households.
to here as health system responsiveness (8). Surveys were conducted in the appropriate national
644 Health Systems Performance Assessment

Table 46.1 Descriptive statistics of the responsiveness module for 16 OECD countries: survey mode,
response rates, the number of respondents, and the percentage of respondents using health
services
Respondents with Respondents with
outpatient experi- inpatient experi-
Survey response Number of ence in the last ence in the last
rates respondents 12 months 12 months
Country Mode (%) (n) (%) (%)
Belgium Face-to-face 48 1 100 56.2 12.2
Canada Postal 55 407 61.4 10.6
Finland Face-to-face 52 1 021 70.7 15.1
France Face-to-face 77 1 003 65.0 13.1
Germany Face-to-face 80 1 123 62.2 8.5
Greece Postal 41 909 69.9 22.4
Ireland Face-to-face 39 711 47.4 12.5
Italy Face-to-face 61 1 002 45.0 6.9
Luxembourg Telephone 72 719 71.2 13.4
Netherlands Face-to-face 59 1 085 63.2 7.7
New Zealand Postal 65 1 801 80.6 14.5
Portugal Face-to-face 61 1 001 53.3 9.5
Spain Face-to-face 75 1 000 61.9 8.5
Sweden Face-to-face 53 1 000 56.4 10.7
United Kingdom Postal 43 1 018 69.6 12.5
United States Postal 36 588 75.9 13.8

language. Sampling frames excluded institutionalized demographic variables. These questions were asked to
populations. all respondents (12).
The survey instrument built on the approach used Enhancing the cross-population comparability
to assess patient experience in the Consumer Assess- of the instrument built on the work on “anchoring
ment of Health Plans Survey (CAHPS) in the United vignettes,” which required the inclusion in the ques-
States and in the surveys of the Picker Institute in tionnaire of a series of hypothetical stories or vignettes
the United States and Europe(1;3;9). Those surveys (13). Vignettes are short descriptions of people’s expe-
sought to ensure comparability by focusing on a riences with health systems as they relate to the dif-
specific, usually the most recent, visit and on clearly ferent domains of responsiveness. The respondent
defined aspects of the process or outcome. The ques- is asked to report the level of dignity, for example,
tions (items) included in the final instrument for our with which the person in the vignette is being treated,
answering on a scale of “very good,” “good,” “mod-
surveys were chosen after extensive field-testing and
erate,” “bad,” “very bad.” This information provides
psychometric evaluation (10–12).
a record of differences in the way people use verbal
The responsiveness module consisted of items cov-
categories to evaluate a common stimulus.
ering the domains of people’s interactions with health
For example, one person might categorize the
systems in outpatient and inpatient settings. The same
scenario described in the vignette as “good,” while
domains were covered in both settings, except quality another might consider the same scenario “very
of basic amenities in outpatient settings was replaced good.” In the analysis of the results, the different
by access to family and community support in inpa- response categories in the vignettes are used to adjust
tient settings. Table 46.2 shows the specific items, with each respondent’s description of his/her own experi-
domains ordered as they appeared in the instrument. ences onto a common response scale.
The instrument also contained questions on the Only the respondents who had used a health service
relative importance of the different responsiveness in the previous 12 months were requested to complete
domains as perceived by each respondent (neces- the responsiveness questions. If they had visited both
sary for weighting the domains in the calculation of outpatient and inpatient services, they answered both
the overall inpatient and outpatient responsiveness sections. The number of responses obtained was,
results), health care utilization patterns, and socio- therefore, a function of the overall response rate as
Patient Experiences with Health Services: Population Surveys from 16 OECD Countries 645

Table 46.2 Wording of responsiveness module items and response options for inpatient and outpatient services
in the Multi-country Survey Study for the domains of prompt attention, dignity, communication,
autonomy, confidentiality, choice, quality of basic amenities, and support
Section of
questionnaire Response categories
Prompt attention
In the last 12 months, how long did you usually have to wait from the time that you wanted care Outpatient time
to the time that you received care?
In the last 12 months, when you wanted care, how often did you get care as soon as you wanted? Outpatient never, sometimes,
usually, always
Generally, how long did you have to wait before you could get the laboratory tests or examina- Outpatient same day, 1–2 days, 3–5
tions done? days, 6–10 days, more
than 10 days (specify)
Did you get your hospital care as soon as you wanted? Inpatient yes, no
When you were in the hospital, how often did you get attention from doctors and nurses as Inpatient never, sometimes,
quickly as you wanted? usually, always
Now, overall, how would you rate your experience of getting prompt attention at the health Outpatient and very good, good,
services (hospital) in the last 12 months? Inpatient moderate, bad, very bad
Dignity
In the last 12 months, when you sought care, how often did doctors, nurses or other health care Outpatient never, sometimes,
providers treat you with respect? usually, always
In the last 12 months, when you sought care, how often did the office staff, such as receptionists Outpatient never, sometimes,
or clerks there, treat you with respect? usually, always
In the last 12 months, how often were your physical examinations and treatments done in a way Outpatient never, sometimes,
that your privacy was respected? usually, always
Now, overall, how would you rate your experience of getting treated with dignity at the health Outpatient and very good, good,
services in the last 12 months? Inpatient moderate, bad, very bad
Communication
In the last 12 months, how often did doctors, nurses or other health care providers listen care- Outpatient never, sometimes,
fully to you? usually, always
In the last 12 months, how often did doctors, nurses or other health care providers there, explain Outpatient never, sometimes,
things in a way you could understand? usually, always
In the last 12 months, how often did doctors, nurses or other health care providers give you time Outpatient never, sometimes,
to ask questions about your health problem or treatment? usually, always
Now, overall, how would you rate your experience of how well health care providers communi- Outpatient and very good, good,
cated with you in the last 12 months? Inpatient moderate, bad, very bad
Autonomy
In the last 12 months, how often did doctors, nurses or other health care providers there involve Outpatient never, sometimes,
you as much as you wanted to be in deciding about the care, treatment or tests? usually, always
In the last 12 months, how often did doctors, nurses or other health care providers there ask Outpatient never, sometimes,
your permission before starting tests or treatment? usually, always
Now, overall, how would you rate your experience of getting involved in making decisions about Outpatient and very good, good,
your care or treatment as much as you wanted in the last 12 months? Inpatient moderate, bad, very bad
Confidentiality
In the last 12 months, how often were talks with your doctor, nurse or other health care pro- Outpatient never, sometimes,
vider done privately so other people who you did not want to hear could not overhear what was usually, always
said?
In the last 12 months, how often did your doctor, nurse or other health care provider keep your Outpatient never, sometimes,
personal information confidential? This means that anyone whom you did not want informed usually, always
could not find out about your medical conditions.
Now, overall, how would you rate your experience of the way the health services kept informa- Outpatient and very good, good,
tion about you confidential in the last 12 months? Inpatient moderate, bad, very bad
continued
646 Health Systems Performance Assessment

Table 46.2 Wording of responsiveness module items and response options for inpatient and outpatient services
in the Multi-country Survey Study for the domains of prompt attention, dignity, communication,
autonomy, confidentiality, choice, quality of basic amenities, and support (continued)
Section of
questionnaire Response categories
Choice
In the last 12 months, with the doctors, nurses and other health care providers available to you Outpatient no problem, mild,
how big a problem, if any, was it to get to a health care provider you were happy with? moderate, severe,
extreme
Over the last 12 months, how big a problem if any was it to get to use other health care services Outpatient no problem, mild,
other than the one you usually went to? moderate, severe,
extreme
Now, overall, how would you rate your experience of being able to use a health care provider or Outpatient and very good, good,
service of your choice over the last 12 months? Inpatient moderate, bad, very bad
Quality of basic amenities
Thinking about the places you visited for health care in the last 12 months, how would you rate Outpatient very good, good,
the basic quality of the waiting room, for example, space, seating and fresh air? moderate, bad, very bad
Thinking about the places you visited for health care over the last 12 months, how would you Outpatient very good, good,
rate the cleanliness of the place? moderate, bad, very bad
Now, overall, how would you rate the overall quality of the surroundings, for example, space, Outpatient* very good, good,
seating, fresh air and cleanliness of the health services you visited in the last 12 months? moderate, bad, very bad
Support
In the last 12 months, when you stayed in hospital, how big a problem, if any, was it to get the Inpatient no problem, mild,
hospital to allow your family and friends to take care of your personal needs, such as bringing you moderate, severe,
your favourite food, soap etc.? extreme
During your stay in hospital, how big a problem, if any, was it to have the hospital allow you to Inpatient no problem, mild,
practice religious or traditional observances if you wanted to? moderate, severe,
extreme
Now, overall, how would you rate your experience of how the hospital allowed you to interact Inpatient very good, good,
with family, friends and to continue your social and or religious customs during your stay over the moderate, bad, very bad
last 12 months?
*For all surveys run by INRA.

well as the rate of service utilization in the previous Results


12 months.
Data analysis was undertaken using Stata 7.0. The A total of 27 521 (17 792 face-to-face and 9 729
patient responsiveness domains were analysed using postal) respondents were contacted in the 16 countries.
random-effects methods and a hierarchical ordered Table 46.1 shows several survey statistics. The aver-
probit model (13). The steps from processing the raw age response rate calculated on the basis of completed
data (responses) to the development of an average interviews as a percentage of effective contacts was
responsiveness score for the countries are described 57%: 48% in the postal surveys and 60% in the inter-
in Box 46.1. viewer administered surveys. The response rates are
Each domain mean score was age- and sex-stan- comparable to those observed for similar instruments
dardized. All age-sex groups were assigned equal in OECD countries (5). The average item missing rate
weights as each group’s experience of responsiveness was 4%, with a slightly higher average for the postal
was considered of equal importance. Overall inpatient surveys (5%). Both rates were generally considered
and outpatient responsiveness indices were calculated acceptable when compared with other studies (4). A
using weights obtained from the surveys for the differ- total of 15 488 responses were eligible for analysis.
ent domains (in order of importance: prompt attention The eligibility criterion was the completion of at least
0.180, dignity 0.148, communication 0.140, confiden- one of the questions on sex, age, health status, or one
tiality 0.124, choice 0.123, autonomy 0.117, quality of the questions asking about utilization. Across all
of basic amenities 0.106, support 0.063)(14). surveys, 10 088 respondents (65%) reported experi-
Patient Experiences with Health Services: Population Surveys from 16 OECD Countries 647

by country. For inpatient services, responsiveness


Box 46.1 Steps for estimating the mean popula-
was relatively high in Ireland (urban), Luxembourg,
tion level of responsiveness
Sweden, the United Kingdom, and the United States,
1 Run the compound hierarchical ordered probit model while Greece, Portugal, and Italy reported relatively
(CHOPIT) (13) to devise a common cross-country scale by low levels. For outpatient services, the highest levels
domain.
Model variables including age, sex, and education, interacted of overall responsiveness were reported in Ireland
with country-reported health on the day (on 5-point “very (urban), New Zealand, and the United States. Sub-
good” to “very bad” scale). stantially lower levels were observed again in Greece,
2 Run a fixed random-effect CHOPIT model that generates 25 Portugal, and Italy.
estimates per individual with Another way of looking at the responsiveness
2.1 Cut-points modelled using dependent variables: sex, years results is to compare the best and the worst perform-
of education, and reported health.
ing domains overall. Across inpatient domains, the
2.2 Responses on domain questions related to encounters
modelled using dependent variables: age, sex, years of
best performance was most often observed in support
education and reported health. (seven countries out of 16 achieved the highest level
3 Rescale domain results from 0 to 100 by setting the result cor- on this domain) and choice (six countries). The worst
responding to the coefficient of lowest vignette to 0, and the performance was observed in the autonomy domain
result corresponding to the highest vignette to 100. (10 countries). Across outpatient domains, the best
4 Set any results over 100 to the maximum of 100 (truncation). performance was observed for choice (12 countries)
Results above 100 imply that people had experiences that
were better than the best vignette. This was considered an
and the worst for basic amenities (11 countries), fol-
area of measurement akin to the measurement of “talent” in lowed by autonomy (five countries).
health (where a marathon runner is not considered “healthier” An interesting question to ask is whether countries
than someone who can run 5 kilometres) and therefore not are performing well on domains that are considered
of relevance for the study of the experiences of the general
population (11).
the most important. Table 46.5 shows the countries
5 Obtain survey means by taking an average of the mean 0 to 100
with the strongest and weakest performance in the
scores obtained for the following age and sex groups: two domains that were viewed as the most important:
Male (yrs) Female (yrs) prompt attention (18%) and dignity (14.8%). If Ger-
18–24 18–24 many is contrasted to the UK, outpatient confidenti-
25–34 25–34 ality is lower in Germany, but prompt attention—the
35–44 35–44
45–54 45–54
dimension that is most important to people—is rated
65+ 65+ at a much higher level. Partly as a result, Germany has
Equal weights were applied across all age and sex groups to a higher overall outpatient responsiveness score (89)
reflect the notion that responsive treatment was given equal than the UK (87).
value regardless of sex or age. The results within countries were also analysed
6 Repeat steps 3 to 5 on the 25 estimates obtained for each to see whether it was possible to detect systematic
survey respondent to obtain 25 survey means.
relationship between responsiveness and common
7 Obtain country means by taking an average of the 25 survey variables like sex, health status reported for the pre-
means.
vious 30 days, and education. One systematic finding
8 Obtain confidence intervals by taking one standard deviation of
the 25 survey means. emerged. Reported health was positively associated
with responsiveness in most countries across all out-
patient domains (on average 10 countries per domain,
ences with health services in the previous 12 months: with standard deviation of 1.4). The one exceptional
1 856 as inpatients and 9 885 as outpatients, with an domain was quality of basic amenities but this was
not unexpected. Perceptions of facility cleanliness, for
overlap of 1 653 answering both inpatient and outpa-
example, are unlikely to be affected by how a patient
tient sections of the questionnaire. The survey in Ire-
was feeling about their state of health, in contrast to
land coincided with the outbreak of foot-and-mouth perceptions of the promptness of attention.
disease when interviewers were not permitted to enter The relationship between country responsiveness
rural areas. The results for this country are applicable scores and total health expenditure per capita was
to urban areas only. also explored. Figure 46.1 shows the scatterplot of
Tables 46.3 and 46.4 display the mean level of total health expenditure per capita with inpatient and
inpatient and outpatient service responsiveness and outpatient responsiveness for the 16 countries in this
the associated confidence intervals by domain and study. Overall responsiveness increases with increases
648 Health Systems Performance Assessment

Table 46.3 Responsiveness domain and overall results for inpatient services in 16 OECD countries: means and
Autonomy Choice Communication Confidentiality Dignity
Lower Higher Lower Higher Lower Higher Lower Higher Lower Higher
Survey Mean bound bound Mean bound bound Mean bound bound Mean bound bound Mean bound bound
Belgium 75 73 77 97 96 98 87 86 88 79 77 80 88 87 90
Canada 78 74 81 94 92 95 84 81 87 91 88 93 93 91 95
Finland 76 75 77 60 58 62 86 85 87 83 82 84 85 83 87
France 71 69 73 96 95 97 88 86 89 83 82 84 91 89 92
Germany 74 72 75 85 83 86 74 73 76 83 81 84 85 83 86
Greece 44 43 46 71 69 73 49 48 51 79 77 81 61 60 62
Ireland 75 73 77 88 85 90 91 90 93 92 90 93 91 90 93
Italy 53 51 56 90 88 92 74 72 76 68 66 69 74 72 76
Luxembourg 83 81 84 88 86 90 90 88 91 83 82 85 92 91 93
Netherlands 72 70 74 88 86 90 82 81 84 75 74 76 87 85 88
New Zealand 87 86 88 95 94 95 88 87 89 86 85 87 91 90 92
Portugal 66 63 68 78 76 81 71 69 73 70 68 71 66 65 68
Spain 61 59 63 82 80 84 84 83 86 83 81 84 85 83 86
Sweden 81 79 82 87 85 89 89 88 91 88 86 90 97 96 98
United Kingdom 81 79 82 93 92 94 85 83 87 90 89 91 94 93 95
United States 84 82 87 94 93 95 87 84 89 84 82 87 95 94 96
Average 72 70 75 87 85 88 82 80 83 82 81 84 86 84 87

Table 46.4 Responsiveness domain and overall results for outpatient services in 16 OECD countries: means and
Autonomy Choice Communication Confidentiality Dignity
Lower Higher Lower Higher Lower Higher Lower Higher Lower Higher
Survey Mean bound bound Mean bound bound Mean bound bound Mean bound bound Mean bound bound
Belgium 79 78 79 1000 1000 1000 87 87 88 81 80 82 92 91 92
Canada 85 84 86 96 94 98 91 89 92 95 94 97 98 98 99
Finland 84 83 85 83 80 85 88 87 89 86 85 87 95 95 96
France 71 70 72 1000 1000 1000 89 88 90 85 84 86 95 94 95
Germany 84 83 85 98 98 99 85 84 85 87 87 88 90 90 91
Greece 48 47 49 72 70 74 53 52 54 81 80 82 63 62 64
Ireland 87 86 88 98 98 99 94 93 95 94 93 95 98 97 98
Italy 58 57 59 98 96 99 73 72 74 69 69 70 73 72 74
Luxembourg 83 82 84 98 97 99 81 80 82 82 82 83 91 91 92
Netherlands 80 79 81 97 96 98 85 84 86 77 76 78 94 94 94
New Zealand 91 91 92 1000 99 1000 91 91 92 92 92 93 95 95 96
Portugal 67 66 68 85 82 87 76 75 77 71 71 72 71 71 72
Spain 64 63 64 85 83 87 79 78 80 83 82 83 83 82 83
Sweden 83 82 84 94 93 96 88 88 89 86 85 87 95 95 96
United Kingdom 81 80 82 98 97 98 85 84 86 96 95 96 95 94 95
United States 87 86 88 99 99 1000 89 88 90 90 89 91 98 97 98
Average 77 76 78 94 93 95 83 83 84 85 84 86 89 89 90

in per capita health expenditure. This correlation Responsiveness versus Satisfaction


was significant for inpatient services (Spearman’s rho
The responsiveness results reported to this point reflect
= 0.51, p = 0.04), but not significant for outpatient people’s experiences with the health system. To illus-
services (rho = 0.46, p = 0.07). At lower levels of trate this, we compare the responsiveness results with
expenditure, there appears to be a stronger relation- results from recent representative surveys of patient
ship between health expenditure and responsiveness satisfaction, available for 15 of the OECD countries
than at higher levels of expenditure. in which the responsiveness surveys were undertaken
Patient Experiences with Health Services: Population Surveys from 16 OECD Countries 649

standard errors, standardized by country, age and sex Table 46.5 Countries with high and low performance
for two of the most important respon-
Prompt attention Support Overall inpatient
siveness domains: dignity and prompt
Lower Higher Lower Higher Lower Higher attention
Mean bound bound Mean bound bound Mean bound bound
73 72 74 91 90 93 83 83 84 Inpatient Outpatient
71 69 72 96 93 99 85 84 86 Prompt Prompt
81 80 81 87 85 88 79 79 80 Performance Dignity attention Dignity attention
72 71 73 90 89 92 83 83 84 High Sweden, UK, Germany, Canada, Germany,
85 84 86 89 88 91 82 81 82 USA Luxembourg, Ireland Ireland
61 61 62 78 77 79 62 62 63 Netherlands (urban), USA (urban), USA
82 81 83 90 89 92 87 86 87 Low Greece, Italy, Greece, Greece, Italy, Greece, Italy,
78 77 80 79 77 81 74 73 74 Portugal Canada, Portugal Portugal
83 81 84 94 93 96 87 86 88 Portugal
85 85 86 96 95 97 83 82 84
78 77 79 83 82 84 87 86 87 Figure 46.1 National health expenditure compared
71 70 73 74 72 76 71 70 71 with inpatient and outpatient responsive-
78 77 79 80 79 82 79 79 80 ness results for 16 OECD countries
74 73 75 95 94 96 86 86 87
82 81 83 95 93 96 88 87 88 Inpatient Outpatient

79 77 80 91 88 93 87 86 88 100

77 76 78 88 86 90 81 81 82
90

standard errors, standardized by country, age and sex


Responsiveness

80
Prompt attention Basic amenities Overall outpatient
Lower Higher Lower Higher Lower Higher
Mean bound bound Mean bound bound Mean bound bound 70

84 83 85 75 74 76 86 85 86
81 80 82 77 75 79 89 88 90 60
86 86 87 72 71 73 86 85 86
81 81 82 77 76 78 86 85 86
50
94 93 94 83 82 84 89 89 90
71 70 71 59 59 60 64 64 65 7.0 7.5 8.0 8.5
95 94 95 88 86 90 94 93 94 Log of total health expenditure per capita (US $)
75 74 75 61 60 62 73 72 73
82 81 83 74 73 75 85 84 85 Table 46.6). No significant correlations were observed
89 89 90 73 72 74 86 85 86 between satisfaction and the overall inpatient and out-
89 88 89 77 76 78 91 91 91
patient responsiveness indices. This suggests that sat-
76 75 77 65 64 66 73 73 74
isfaction might be determined more by the speed with
83 82 84 71 70 72 79 78 79
82 81 83 74 73 75 86 86 87
which patients anticipate they can obtain care when
81 80 81 77 76 78 87 87 88 they need it than by other facets of the interaction
90 90 91 81 80 83 91 90 92 between the population and its health services.
84 83 84 74 73 75 84 84 85
The difference between responsiveness and satisfac-
tion is further explored in Table 46.7 which groups
the responsiveness and satisfaction results into three
(15). Simple Spearman’s correlations were run between
categories: where the poor have higher satisfaction
the satisfaction scores and each domain of responsive-
or responsiveness than the rest of the population (or
ness, as well as with overall responsiveness scores. “wealthy”), where there is no statistically significant
There was a significant correlation between the difference, and where the wealthy have higher satisfac-
satisfaction measure and the inpatient domains of tion or responsiveness than the poor.
communication, prompt attention, and support, and The poor were defined as respondents in the lowest
with the outpatient domain of prompt attention (see two income quintiles for responsiveness (this was the
650 Health Systems Performance Assessment

Table 46.6 Correlation of the percentage of the Discussion


population “very satisfied or satisfied with
the way health care runs in their country” This is the first time that health system responsiveness
and responsiveness domain-specific and has been measured and reported in a comparative way
overall inpatient and outpatient results across countries from population surveys. It represents
the actual experiences of the members of the popula-
Domains and overall Spearman’s correla- tion when they come in contact with the health sys-
service levels tion coefficient* P-value
tem. Responsiveness differs from patient satisfaction, a
Autonomy –0.230 0.41 construct that reflects people’s expectations in addition
Choice 0.14 0.62
to their experiences. The fact that poor people were
Communication 0.58 0.02
shown in some countries to be more satisfied with
Confidentiality 0.14 0.62
their health systems than the rich is more likely to be
Dignity 0.31 0.27
Prompt attention 0.54 0.04
due to differences in expectations—perhaps linked to
Social support 0.52 0.05 what has been termed “happy slave” or “sour grapes”
attitudes (17)—than to any preferential treatment of
Overall inpatient services 0.36 0.18
the poor.
Autonomy 0.35 0.21
Across 16 relatively rich OECD countries, there
Choice 0.29 0.30
is substantial variation in the level of inpatient and
Communication 0.44 0.10
Confidentiality 0.13 0.65
outpatient responsiveness as reported by representa-
Dignity 0.40 0.14 tive samples of the population and the scores on each
Prompt attention 0.52 0.05 component domain. These variations are likely to have
Quality of basic amenities 0.33 0.24 been even greater if poorer countries were included in
Overall outpatient services 0.26 0.35
the analysis.
The countries with consistently lower results across
* Excludes New Zealand because New Zealand was not included in the satis-
faction data (15).
all domains were Greece, Italy, and Portugal. The
highest outpatient results were reported in Ireland,
only breakdown available from the survey responses) New Zealand, and the USA, although the results for
and as those with incomes in the lowest quartile for Ireland should not be considered as representative of
the satisfaction work (again, the only possible break- the country due to the urban bias described earlier.
down from the available surveys). The responsiveness Inpatient responsiveness was highest in Luxembourg,
measure is based on an aggregation of the defined New Zealand, Sweden, the UK, and the USA.
domains of people’s interactions with the outpatient This analysis is only the first step towards policy
and inpatient health services (Box 46.1). The satisfac- dialogue and development, which can take three
tion measure is the percentage of respondents who forms. First, the scores for the various domains
were very or fairly satisfied “with the way health care and their relative weights can be evaluated for each
runs in your country” (15). country to determine priority areas for actions to
In seven countries, the poor reported higher levels of improve responsiveness. For example, it was shown
satisfaction than the rest of the population (wealthy). that Portugal and Greece consistently perform badly
It is unlikely that these systems treat the poor better in several domains. If they wanted to improve their
than the rest of the population, and this result is prob- performance, however, they might consider focusing
ably related to the differential use of cut-points, lower on improvements in the domains of prompt attention
expectations in the poor, or the fact that the construct and dignity because these domains were valued more
includes many different, unspecified aspects of people’s highly by people.
interactions with their health systems (16). Some domain scores were relatively low in all coun-
A different pattern is observed with responsiveness tries. Autonomy is a case in point, for both inpatient
in Table 46.7, where the system is more responsive and outpatient care. This suggests consistent failings
to the wealthy than to the poor only for outpatient by OECD health systems to involve patients in deci-
responsiveness in Luxembourg. It must be remembered sion-making, a finding supported by previous research
when interpreting these results that the responsiveness (18;19).
surveys had smaller sample sizes in general than the Second, personal characteristics associated with
satisfaction surveys, so the power to identify signifi- variations in responsiveness across individuals within
cant differences was lower. a country can be explored. Few consistent patterns
Patient Experiences with Health Services: Population Surveys from 16 OECD Countries 651

Table 46.7 Responsiveness inpatient and outpatient results compared with satisfaction results for the poor and
wealthy in 16 OECD countriesa
Poor have higher Wealthy have higher
responsiveness/satisfaction Poor and wealthy have equal responsiveness/satisfaction
than wealthy b responsiveness/satisfaction b than poor b
Responsiveness Luxembourg (op) Belgium (ip, op) Germany (op)
(2001) Canada (ip, op) Greece (ip, op)
Canada (ip, op) Netherlands (op)
Finland (ip, op)
Germany (ip)
Italy (ip, op)
Ireland (ip, op)
Luxembourg (ip)
Netherlands (ip)
New Zealand (ip, op)
Portugal (ip, op)
Spain (ip, op)
Sweden (ip, op)
UK (ip, op)
USA (ip, op)

Satisfaction France Belgium


(1998, 2000c) Greece Canada
Ireland Finland
Italy Germany
New Zealand Luxembourg
Portugal Netherlands
Spain Sweden
UK
USA
a. ip=inpatient services, op=outpatient services
b. Tested at the 5% significance level.
c. Data from 2000 for Canada and the USA, and 1998 for the remaining countries (15).

emerged from this analysis, the exception being the Acknowledgements


link between respondent’s self-reported health sta-
tus and some of the outpatient domain scores. This The authors wish to extend special thanks to Charles
implies a need to identify people to whom the system Darby (Agency for Healthcare Research and Quality,
responds less effectively on a country-by-country basis. USA) for assisting in the development of the question-
This subject is discussed further elsewhere (20). naire, and to Amala de Silva (University of Colombo,
Sri Lanka) for conceptual guidance. The authors
Third, it is important to understand the factors
would also like to thank Lydia Bendib, Richard Poe,
responsible for variations in responsiveness across
and René Lavallée for their technical assistance and
countries and the extent to which they are amenable
comments.
to change. While this is beyond the scope of the pres-
ent chapter, a weak correlation between health expen-
diture and the responsiveness of inpatient services was References
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of human resources, and the nature of incentives in British Medical Journal, 2002, 324:648–651.
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PRELIMINARY

Chapter 47 DRAFT
NOT FOR DISTRIBUTION

Inequality in Responsiveness: Population


Surveys from 16 OECD Countries
Juan Pablo Ortiz, Nicole B. Valentine, Emmanuela Gakidou,
Ajay Tandon, Kei Kawabata, David B. Evans, Christopher J.L. Murray

Introduction way was based on key informant interviews (4). It was


criticized on a number of grounds, including the fact
The World Health Organization has recently argued
that the informants might not have been representa-
that responsiveness is one of the key goals to which
tive of the population as a whole (5–7). Accordingly,
health systems contribute in addition to improving
a responsiveness module was developed and included
population health (1). To facilitate its measurement
in 69 national sample surveys undertaken by 60 coun-
in a systematic way across countries, a common set
tries as part of the WHO Multi-country Survey Study
of domains was defined—autonomy, choice, commu-
on Health and Responsiveness 2000–2001 (8). Dur-
nication, confidentiality, dignity, prompt attention,
ing the preparation, several expert meetings and pilot
quality of basic amenities, and access to family and
studies were conducted to help refine the responsive-
community support (2).
ness methodology and concepts. One of the goals of
Estimates of the level of responsiveness of the health
this survey study was to develop a cross-culturally
systems in 16 OECD countries have been reported by
applicable instrument which could be used to mea-
Valentine et al. (3). This chapter focuses on the dis-
sure the various domains of responsiveness, to inves-
tribution of responsiveness across individuals within
tigate survey mode effects, and to test new strategies
countries, and develops indicators of inequality to
for enhancing the cross-population comparability of
describe this distribution. This is a critical step in
the results (9;10).
improving the performance of health systems. After
the inequality measure has been calculated, it is then
Selected Countries
possible to assess which of the various population
subgroups are disadvantaged and how inequality can Table 47.1 reports details of the representative surveys
be reduced. conducted in the 16 OECD countries, described in
The first part of the present chapter explains the more detail in Valentine et al. (11). Self-administered
data and methods used to calculate responsiveness and postal surveys were used in Canada, the United States,
its distribution for the 16 OECD countries. In the sec- the United Kingdom, Greece, and New Zealand, while
ond part, different types of inequality measures are face-to-face and telephone interviews were used in the
described and an inequality index for responsiveness remaining countries. Responsiveness was measured
is calculated for each country. The third section con- separately for inpatient and outpatient care.
siders possible determinants of the observed levels of
inequality and the implications of the results for policy Level of Responsiveness
and for further development of this work.
Respondents reporting an experience with either out-
patient or inpatient services in the previous 12 months
Data and Methods were asked a series of questions on their experiences,
the questions being divided into the different domains
Data Collection of responsiveness. Respondents were requested to rate
The first attempt to measure the responsiveness of their experiences in terms of one of five categorical
health systems in different settings in a comparable responses—for example “very good,” “good,” “mod-
654 Health Systems Performance Assessment

Table 47.1 Information on the countries analysed manner across the population according to a set of
personal characteristics (e.g. sex, education, and coun-
Experience in the last
12 months try of origin), and was used to adjust the responses to
Completed % % %
people’s own reported experiences in order to obtain
Country responses Outpatients Inpatients Male the final ratings of the system’s responsiveness in each
Belgium 1 100 56 12 48
domain.
Canada* 407 61 11 46 The compound hierarchical ordered probit (CHO-
Finland 1 021 71 15 44 PIT) model (9) was used to do this. This model gener-
France 1 003 65 13 48 ates levels of the latent variable, responsiveness, on an
Germany 1 123 62 9 48 unbounded scale, so the results were transformed to a
Greece* 909 70 22 60 scale of 0 to 100 for ease of interpretation. The value
Ireland 711 47 13 50 of the latent variable for the worst vignette was used
Italy 1 002 45 7 48 to set the scale at zero, while the highest vignette set
Luxembourg 719 71 13 44 it at 100. The average levels of responsiveness on each
Netherlands 1 085 63 8 45
domain were aggregated using weights also derived
New Zealand* 1 801 81 14 43
from questions in the surveys to obtain an aggregate
Portugal 1 001 53 9 44
Spain 1 000 62 9 49
responsiveness score, also from 0 to 100. This was
Sweden 1 000 56 11 46 done for inpatient and outpatient care separately, and
United 1 018 70 12 45 the results were combined to obtain an overall respon-
Kingdom* siveness score (50% outpatient and 50% inpatient).
United States 588 76 14 55 Overall responsiveness scores and their associated
of America* uncertainty intervals for the 16 countries are reported
* Postal in Table 47.2 (3). Responsiveness varied from a high
erate,” “poor,” “very poor.” They were also asked to of 90 for Ireland to a low of 63 for Greece.
rate the experiences of hypothetical people in vignettes
using the same categories. Different people rated any
Measures of Inequality
given vignette describing a particular experience into A variety of measures to summarize the inequality of
different categories. The differential use of categories any continuous distribution are available. They can
can be conceptualized as the differential use of cut- be divided into two main groups: those measuring
points between categories. This varied in a consistent interindividual and those measuring individual-mean

Table 47.2 Overall outpatient and inpatient level of responsiveness for 16 OECD countries
Mean level of responsiveness
Country Overall Uncertainty Outpatient Uncertainty Inpatient Uncertainty
Belgium 85 84–85 86 85–86 83 83–84
Canada* 87 86–88 89 88–90 85 84–86
Finland 83 82–83 86 85–86 79 79–80
France 85 84–85 86 85–86 83 83–84
Germany 85 85–86 89 89–90 82 81–82
Greece* 63 63–64 64 64–65 62 62–63
Ireland 90 90–91 94 93–94 87 86–87
Italy 73 73–74 73 72–73 74 73–74
Luxembourg 86 85–86 85 84–85 87 86–88
Netherlands 85 84–85 86 85–86 83 82–84
New Zealand* 89 89–89 91 91–91 87 86–87
Portugal 72 71–73 73 73–74 71 70–71
Spain 79 79–80 79 78–79 79 79–80
Sweden 86 86–87 86 86–87 86 86–87
United Kingdom* 88 87–88 87 87–88 88 87–88
United States of America* 89 88–90 91 90–92 87 86–88
* Postal
Inequality in Responsiveness: Population Surveys from 16 OECD Countries 655

differences (12;13). When applied to the distribution choices of: interindividual versus individual-mean
of responsiveness within a population, interindivid- comparisons; the value of β; and the value of α.
ual measures focus on differences in responsiveness A range of measures, including those used widely
between every pair of individuals in the population, in quantifying income inequality, could be used to
while individual-mean difference measures are con- describe the distribution of observed inequality, each
cerned about differences between individual levels and representing a different set of normative decisions.
the mean level observed in that population. The relative mean deviation (M) sums the abso-
The individual-mean difference measures take the lute differences between individual observations and
following general form: the mean, and divides the total by the total respon-
siveness in the population (equation [3]). A level of
n

∑X −X M = 0 implies perfect equality (14). This relative mea-


α
i
sure of inequality belongs to the IMD group where
IMD(α , β ) = i =1 , [1]
α = β = 1.
nX β
n
while the inter-individual difference measures can be
expressed as:
∑X −X
i =1
i
M(α , β ) = [3]
n n nX
∑∑ X − X
α
i j The variance (equation [4]), an absolute measure of
IID(α , β ) =
j =1 i =1
, [2] inequality, is also from the IMD class with α = 2 and
β β = 0. It can be expressed as:
2n 2 X


n
where Xi is the responsiveness level for individual i, (Xi − X )2
– i =1
n is the number of people in the population, and X is V (α , β ) = [4]
the average level of responsiveness in the population. n
The β coefficient determines the extent to which the The standard deviation (equation [5]) and the coef-
inequality measures are relative to the mean or abso- ficient of variation (CV) (equation [6]) can be thought
lute. If α = β = 1, the measure is strictly relative to the of as based on the variance with modifications. The
mean, concerned with percentage deviations from the standard deviation is equal to the square root of the
mean (IMD) or percentage differences between indi- variance, while the coefficient of variation is equivalent
viduals (IID). Such measures are invariant to propor- to the square root of the variance divided by the mean.
tionate changes in all observations. This property is The former, like the variance, is a strictly absolute
called scalar invariance, or mean-independence, under measure and the latter is a strictly relative measure.
which the inequality index remains unchanged if each In both cases, the smaller the estimate, the less is the
individual’s level of responsiveness is multiplied by inequality. Mathematically, the standard deviation can
the same positive scalar. In contrast, when β = 0, con- be expressed as:
cern lies exclusively with absolute deviations from the

n
mean (IMD) or absolute differences between individu- (Xi − X )2
i =1
als (IID). Such measures are invariant to the addition σ (α , β ) = [5]
n
of a positive constant to each individual’s observed
responsiveness (12;13). A value of β between zero and while the coefficient of variation is:
one reflects a mix of concern between relative and

n
absolute differences. (Xi − X )2
i =1
The choice of the parameter α is related to the
CV (α , β ) = n [6]
significance attached to differences in responsiveness
observed at the tails of the distribution, compared to X
those observed closer to the mean. The greater the con- If the observations at the lower end of the distribu-
cern with the tail, the higher is the resulting α. In the tion are important, then a logarithmic transformation
special case in which α = 2, IMD(2,β) = IID(2,β) for is useful, and the corresponding measure of dispersion
any. The choice of which measure to use to summarize is the standard deviation of logarithms (SDL) (equa-
inequality in responsiveness is determined, therefore, tion [7]). Another advantage of logarithms is that they
by three essentially normative considerations—the eliminate the arbitrariness of the units, in contrast to
656 Health Systems Performance Assessment

the variance and the standard deviation (14). This an absolute versus a relative measure of inequality.
measure is also from the IMD class (equation [7]). If the respondents express no preference for any of
them, they are concerned with how the population is

n
(log Xi − log X )2 distributed around the mean but not where the mean
SDL(α , β ) = i =1 [7] is, which can be translated into a value of β equal to
n zero. If respondents have a preference for one of the
Examples of interindividual measures are the Gini two populations, when they think about “inequal-
coefficient (G) (equation [8]) and Theil’s entropy index ity” they think not only about how individuals are
(T) (equation [9]). Both belong to the group of relative distributed around the mean, but also about where
inequality measures, most frequently used for meas- the mean is, implying a value of β greater than zero.
uring income inequalities so they are not sensitive to Table 47.3 shows that only a third of respondents
relative changes in the scale. The Gini coefficient is thought in terms of an absolute measure, so β should
sensitive to inequality around the median, while Theil’s not be set at zero.
index is more sensitive to inequality at the top part of In the second scenario (Figure 2 in Annex 47.1), the
the distribution (15). choice involves how much weight should be assigned
n n to the tails of the distribution, i.e. to outliers or sub-
∑∑ X − X i j
groups of the population that are far from the average
level. The change that happens in the two populations
G(α , β ) =
j =1 i =1 [8]
is the same in terms of absolute value, but it happens
2n 2 X
to individuals in different parts of the distribution. In
The Gini coefficient has α = β = 1. It is bounded by population A, the transfers are given to individuals
zero and one, with zero representing perfect equality at the tails of the distribution, while in population B,
and one, perfect inequality. the individuals receiving the transfers are closer to the
Theil’s entropy index can be expressed as: mean. A preference for the transfer in A versus B indi-
n cates a preference for a value of α greater than one.
   
( )∑  XXi  log XXi 
T = 1/ n [9] In the third scenario (Figure 3 in Annex 47.1), the
i =1 choice is between individual-mean and interindividual
It can have any non-negative value. It equals zero measures. The populations are at exactly the same
when there is no inequality and it increases with mean and the same transfer takes place in both of
more inequality. them. The only difference is how the rest of the indi-
viduals are distributed around the mean. Respondents
An Inequality Measure for Responsiveness who express no preference for the transfer in A versus
B, are in reality preferring an individual-mean mea-
To facilitate a decision about which measure of sure, since what they seem to consider important is the
inequality would be most appropriate for responsive- average value and the individuals affected by the trans-
ness, a series of key informant surveys was under- fer, but not the rest of the individuals in the popula-
taken in 2000–2001 (8). The results from the 37 tion. Respondents with a preference for A over B, or B
countries from which a minimum of 100 responses over A, are preferring interindividual measures as they
were received, were used to decide the appropriate are concerned not only with the individuals affected by
inequality measure.
To assist the respondents in choosing their prefer-
Table 47.3 Exercise based on key informants
ences for each of these three normative choices, hypo-
thetical populations were constructed (Annex 47.1). Which population, A or B
The choice for each respondent was between popula- Scenario 1 Scenario 2 Scenario 3
tion A and population B, where one of the three nor-
experiences
mative issues was addressed in each of three scenarios. has a greater a greater
The first scenario (Figure 1 in Annex 47.1) dealt with has more increase in increase in
the choice of the value of β. Populations A and B are Answers inequality inequality inequality
at different average levels of responsiveness, but the Population A 45% 35% 23%
distribution of individuals around these mean levels is Population B 17% 26% 38%
the same for the two populations. The preference for Both the same 38% 39% 39%
one of them reflects the respondents’ preference for
Inequality in Responsiveness: Population Surveys from 16 OECD Countries 657

the transfer, but also with all other individuals in the other countries for both inpatient and outpatient care.
population. Table 47.3 shows that a small majority of In all countries except Sweden, inequality is higher
people preferred the individual-mean option. for inpatient than for outpatient services. Although
On balance, the respondents did not support the this might reflect in part the smaller sample report-
option of β = 0, and they were evenly split on the ing on inpatient than outpatient experiences, coun-
choice of α and the choice of individual-mean versus tries like Sweden and the Netherlands show similar
interindividual measure. For this reason, the coefficient levels of inequality for both types of care, despite
of variation has been chosen as the preferred summary the differences in sample size. This suggests that the
measure. Because the preference between IMD and observed differences in inequality are not likely to be
IID measures was not very strong from the survey due solely to differences in sample sizes, but to reflect
responses, setting α = 2 was an attractive option—it a greater degree of inequality in responsiveness in
is the value of α at which IMD and IID measures are inpatient care.
equal. Combining the preference for α = 2 with the Figure 47.1 helps to identify why one country ranks
preference for a relative measure led to the choice of higher than others using the coefficient of variation as
the coefficient of variation, shown in equation [6]. the summary measure of inequality. Because the coef-
However, because the preferences for the different ficient of variation is of the IMD class, countries where
scenarios were relatively close, the results presented observations are widely dispersed but with a lower
below based on the coefficient of variation are also mean will have more inequality than those with the
compared with results based on other indicators of same dispersion and a higher mean. Obviously, for any
inequality. given mean, the greater the dispersion, the greater the
inequality. The mean level of responsiveness in Swe-
Results den, for example, is relatively high, but there is more
dispersion of the observations. This is why Sweden's
Inequality in Responsiveness coefficient of variation is higher than in other countries
with similar mean levels of responsiveness. Spain, on
The coefficient of variation for each of the 16 countries the other hand, has a lower mean responsiveness but
is reported in Table 47.4, for outpatient, inpatient, and a more compact distribution than Sweden, with the
overall responsiveness. Values for overall responsive- result of less measured inequality in overall respon-
ness range from a low (the most equal) of 0.061 in siveness using the coefficient of variation. In Greece,
Germany to 0.137 (the least equal) for Greece. Greece
the mean is low and the distribution of observations
has substantially higher levels of inequality than the
is widely dispersed, accounting for the high measured
inequality score.
Table 47.4 Overall, outpatient, and inpatient inequality
in responsiveness (coefficient of variation) Inequality by Domain
Country Overall Outpatient Inpatient Table 47.5 presents inequality results by domain. As
Belgium 0.070 0.068 0.099 with overall responsiveness, there is a general pattern
Canada* 0.072 0.068 0.117 of more inequality in inpatient than outpatient care on
Finland 0.079 0.070 0.138 all domains. Again, this might be due partly to smaller
France 0.068 0.067 0.106 sample sizes reporting on inpatient than outpatient
Germany 0.061 0.055 0.124
experiences, but this cannot be the entire explanation.
Greece* 0.137 0.128 0.204
For example, there is less inequality in communica-
Ireland 0.084 0.074 0.155
Italy 0.095 0.086 0.174
tion for inpatient than outpatient care in Portugal,
Luxembourg 0.089 0.086 0.117 Luxembourg, and France, despite the smaller sample
Netherlands 0.064 0.063 0.085 size for inpatient care.
New Zealand* 0.065 0.061 0.108 For outpatient care, the domains of choice and
Portugal 0.105 0.094 0.154 quality of basic amenities have less inequality than
Spain 0.080 0.079 0.119 the other domains, while for inpatient care the domain
Sweden 0.090 0.092 0.089 with the greatest equality is confidentiality. Autonomy
United Kingdom* 0.080 0.080 0.092 shows the most inequality for both inpatient and out-
United States of America* 0.068 0.064 0.120 patient services. The relatively high levels of inequality
* Postal for prompt attention were not expected, because the
658 Health Systems Performance Assessment

Figure 47.1 Distribution of responsiveness for 16 countries


.3 Belgium Mean = 85.9 .3 Canada Mean = 88.7 .3 Finland Mean = 85

.2 .2 .2
Fraction

Fraction

Fraction
.1 .1 .1

0 0 0
0 20 40 60 80 100 0 20 40 60 80 100 0 20 40 60 80 100
Level of responsiveness Level of responsiveness Level of responsiveness

.3 France Mean = 85.6


.3 Germany Mean = 89.2 .3 Greece Mean = 64.4

.2 .2 .2
Fraction

Fraction

Fraction
.1 .1 .1

0 0 0
0 20 40 60 80 100 0 20 40 60 80 100 0 20 40 60 80 100
Level of responsiveness Level of responsiveness Level of responsiveness

Ireland Mean = 93.1


.3 Italy Mean = 72.9
.3 Luxembourg Mean = 84.6

.3
.2 .2
Fraction

Fraction

Fraction
.2

.1 .1
.1

0 0 0
0 20 40 60 80 100 0 20 40 60 80 100 0 20 40 60 80 100
Level of responsiveness Level of responsiveness Level of responsiveness

.3 Netherlands Mean = 85.7 .3 New Zealand Mean = 91.4 .3 Portugal Mean = 73.2

.2 .2 .2
Fraction

Fraction

Fraction

.1 .1 .1

0 0 0
0 20 40 60 80 100 0 20 40 60 80 100 0 20 40 60 80 100
Level of responsiveness Level of responsiveness Level of responsiveness

.3 Spain Mean = 79 .3 Sweden Mean = 86.9 .3 Great Britain Mean = 88.4

.2 .2 .2
Fraction

Fraction

Fraction

.1 .1 .1

0 0 0
0 20 40 60 80 100 0 20 40 60 80 100 0 20 40 60 80 100
Level of responsiveness Level of responsiveness Level of responsiveness

.3 United States Mean = 91.6

.2
Fraction

.1

0
0 20 40 60 80 100
Level of responsiveness
Inequality in Responsiveness: Population Surveys from 16 OECD Countries 659

sample of countries included in this analysis

Overall
0.070
0.072
0.079
0.068
0.061
0.137
0.084
0.095
0.089
0.064
0.065
0.105
0.080
0.090
0.080
0.068
is limited to the high-income countries that
spend relatively high levels on health per
capita on a global basis. These countries were
Support

0.110
0.068
0.155
0.113
0.129
0.206
0.142
0.213
0.083
0.055
0.153
0.206
0.136
0.068
0.062
0.123
Inpa-
tient
expected to be able to provide relatively rapid
attention to most of their populations.
On a country basis, inequality is higher for
Prompt attention

0.182
0.220
0.189
0.171
0.125
0.262
0.231
0.228
0.203
0.121
0.189
0.241
0.231
0.187
0.145
0.182
Inpa-
tient

most domains in Greece and Portugal than


in the other countries, with some notable
exceptions. For example, Finland reports very
Outpa-

0.133
0.174
0.140
0.135
0.073
0.166
0.116
0.173
0.178
0.117
0.120
0.172
0.164
0.184
0.161
0.110
tient

high levels of inpatient inequality on choice,


while inequality in inpatient dignity is much
higher in Italy than in the other countries.
tient**
Inpa-
Quality of BA

This provides a possible entry point for a


















more detailed analysis of the reasons behind
unexpected patterns, and possible policy
Outpa-

0.020
0.041
0.036
0.029
0.030
0.043
0.054
0.025
0.035
0.024
0.036
0.014
0.035
0.056
0.061
0.053
tient

responses.

Different Inequality Measures


0.114
0.087
0.148
0.093
0.125
0.195
0.134
0.205
0.117
0.129
0.099
0.166
0.081
0.058
0.089
0.085
Inpa-
tient

Table 47.6 compares the coefficient of varia-


Dignity

tion with some other inequality measures


Outpa-

0.081
0.035
0.069
0.076
0.076
0.142
0.061
0.121
0.096
0.074
0.065
0.146
0.088
0.088
0.066
0.038

commonly used to summarize inequality in


tient

other spheres. These include the Gini coef-


ficient, the Theil index, the relative mean
0.100
0.116
0.085
0.090
0.120
0.142
0.112
0.135
0.085
0.071
0.108
0.108
0.112
0.104
0.069
0.150
Inpa-
tient

deviation, and the standard deviation of


Confidentiality

responsiveness (14;16). The different mea-


sures produce similar results—all show
Outpa-

0.083
0.066
0.073
0.092
0.074
0.133
0.078
0.125
0.100
0.071
0.085
0.124
0.102
0.090
0.063
0.095
tient

Greece to have the highest level of inequal-


* Postal; ** Quality of basic amenities inpatient is not available. Refer to chapter 46 of this volume (3).

ity in overall responsiveness and Germany to


have the lowest. This is confirmed in Table
0.119
0.168
0.142
0.145
0.162
0.291
0.199
0.258
0.156
0.149
0.135
0.209
0.119
0.124
0.147
0.171
Communication
Inpa-
tient

47.7 which shows that the rank order corre-


lation between the different measures is very
high. At least for this sample of countries, the
Outpa-

0.120
0.109
0.113
0.118
0.108
0.239
0.121
0.149
0.186
0.116
0.104
0.170
0.115
0.137
0.142
0.117
tient

assessment of inequality is not very sensitive


Table 47.5 Inequality in responsiveness by domain

to the choice of summary measure.


0.080
0.119
0.428
0.096
0.207
0.326
0.235
0.189
0.207
0.193
0.111
0.228
0.212
0.201
0.123
0.118
Inpa-
tient

Determinants of Inequality
Choice

There are two possible approaches to analys-


Outpa-

ing how best to reduce inequalities in respon-


0.001
0.073
0.113
0.003
0.036
0.140
0.055
0.020
0.044
0.042
0.010
0.077
0.025
0.068
0.045
0.028
tient

siveness. The first is to examine whether there


are any common characteristics of the people
0.216
0.205
0.226
0.260
0.241
0.316
0.301
0.328
0.228
0.180
0.149
0.232
0.277
0.186
0.174
0.198
Inpa-

to which each system responds less well. This


tient
Autonomy

requires analysis of the characteristics of the


people in the left-hand tail of the distribu-
Outpa-

0.163
0.145
0.162
0.161
0.125
0.285
0.182
0.211
0.158
0.140
0.111
0.171
0.221
0.175
0.176
0.145
tient

tions of Figure 47.1—for example, although


the mean level of responsiveness in the USA
is high at 91.6, responsiveness is lower than
United Kingdom*
United States of
New Zealand*

60 for some people. With sufficient informa-


Luxembourg
Netherlands

tion on the characteristics of the individual


America*
Germany
Canada*

Greece*

Portugal
Country
Belgium

Sweden
Finland

Ireland
France

respondents, people in the left-hand tail of


Spain
Italy

the distribution can be identified as a starting


660 Health Systems Performance Assessment

Table 47.6 A comparison of different inequality measures (coefficient of variation, relative mean deviation,
standard deviation of logs, Gini coefficient, Theil index, and mean)
Coefficient of Relative mean Standard devia- Theil index
Country variation deviation tion of logs Gini coefficient (GE(a), a = 1) Mean
Belgium 0.070 0.028 0.072 0.039 0.003 85.9
Canada* 0.072 0.028 0.075 0.039 0.003 88.7
Finland 0.079 0.030 0.086 0.042 0.003 85.0
France 0.069 0.027 0.071 0.038 0.002 85.6
Germany 0.062 0.023 0.064 0.034 0.002 89.2
Greece* 0.137 0.055 0.142 0.077 0.010 64.4
Ireland 0.084 0.029 0.100 0.039 0.004 93.1
Italy 0.095 0.035 0.101 0.051 0.005 72.9
Luxembourg 0.089 0.036 0.092 0.050 0.004 84.6
Netherlands 0.064 0.024 0.066 0.035 0.002 85.7
New Zealand* 0.065 0.026 0.068 0.035 0.002 91.4
Portugal 0.105 0.041 0.111 0.058 0.006 73.2
Spain 0.081 0.032 0.082 0.046 0.003 79.0
Sweden 0.090 0.036 0.095 0.050 0.004 86.9
United Kingdom* 0.080 0.032 0.084 0.044 0.003 88.4
United States of America* 0.068 0.026 0.073 0.036 0.002 91.6
* Postal

Table 47.7 Rank correlation between different inequality measures


Relative Standard
Coefficient mean deviation Gini
Measure of variation deviation of logs coefficient Theil index Mean
Coefficient of variation 1
Relative mean deviation 0.971 1
Standard deviation of logs 0.971 0.916 1
Gini coefficient 0.969 0.986 0.913 1
Theil index 0.967 0.921 0.952 0.923 1
Mean –0.6180 –0.6700 –0.5150 –0.7370 –0.5720 1

point for policy. The second approach is to determine embourg, and Canada, on the other hand, inequality
if there are any system characteristics typically associ- in responsiveness is greater for women than for men.
ated with high inequality in responsiveness, through A t-test on the pooled data found no consistent dif-
the use of multivariate analysis across countries. ference in inequality by sex across the 16 countries,
The first approach is illustrated here using sex dif- suggesting the need for a country-by-country analysis
ferences in responsiveness as an example. Figure 47.2 for policy purposes.1
shows the different distributions of responsiveness The second way of using the analysis for policy pur-
for males and females in Belgium, Portugal, and Fin- poses is to examine whether there are characteristics of
land. In Belgium, the distribution of responsiveness the health system that are consistently associated with
for males is generally to the left of that of females; in higher levels of inequality. For example, Figure 47.3
Portugal the distributions are very similar. In Finland shows a scatterplot with the coefficient of variation for
the system seems more responsive on average to men responsiveness on the vertical axis and the proportion
than women, but the left-hand tail of the distribution of GDP devoted to health (total health expenditure,
is apparently longer for men than women. It is clear denoted by THE, divided by GDP) (17) on the hori-
that in Belgium there are more men than women in zontal axis. There is an overall negative relationship,
the left-hand tail of the overall distribution. although Greece is a clear outlier. This relationship is
The coefficient of variation is reported for all confirmed in a multiple regression. Because there are
countries by sex in Table 47.8. For the three coun- only 16 countries in the sample used for this chapter,
tries described above, the inequality in responsiveness there is not a lot of power to identify system character-
for women is less than that for men. In Spain, Lux- istics in a cross-country regression, but the coefficient
Inequality in Responsiveness: Population Surveys from 16 OECD Countries 661

Figure 47.2 Distribution of responsiveness for Belgium, Table 47.8 Inequality of responsiveness by sex
Portugal, and Finland for males and females
Overall level

.10 Belgium Female Male


Females
Belgium 0.064 0.072
Males
.08 Canada* 0.072 0.071
Finland 0.071 0.087
Density of level

.06 France 0.069 0.067


Germany 0.059 0.064
Greece* 0.130 0.140
.04
Ireland 0.092 0.074
Italy 0.095 0.095
.02
Luxembourg 0.092 0.083
Netherlands 0.065 0.063
0 New Zealand* 0.064 0.064
40 60 80 100 Portugal 0.099 0.114
Level of responsiveness Spain 0.081 0.080
Sweden 0.092 0.087
United Kingdom* 0.079 0.080
.10 Portugal United States of America* 0.068 0.067
Females
Males * Postal
.08
Density of level

.06
Figure 47.3 Inequality in responsiveness vs. total
health expenditure as percentage of GDP
.04
.15
Greece
.02
Coefficient of variation

0 .10
Portugal
Italy
40 60 80 100 LuxembourgIreland Sweden
Finland Spain
Level of responsiveness United Kingdom
Canada
Belgium France United States
New Zealand
Netherlands Germany

.05
.10 Finland
Females
Males
.08
0
Density of level

.06 5 10 15
Total health expenditure as % of GDP
.04

.02 between inequalities in income (measured using the


Gini coefficient) and inequality in responsiveness. As
0 results become available from more countries, the
40 60 80 100 possibility to identify additional system characteris-
Level of responsiveness tics associated with higher inequality in responsiveness
will increase.

of THE/GDP is negative and statistically significant


(Figure 47.4). In addition, a World Bank indicator
Discussion and Conclusions
of government effectiveness (18;19) is inversely cor- Policy-makers are concerned not just with improving
related with inequality in responsiveness, while there average levels of population health and health system
is a positive but statistically insignificant correlation responsiveness, but also with reducing inequalities in
662 Health Systems Performance Assessment

Figure 47.4 Regression analysis using basic variables (inequality in responsiveness vs. Gini,
total health expenditure as percentage of GDP and government effectiveness)

Dependent variable: Coefficient of variation


Independent variable: Gini, THE/GDP 2000 and Government Effectiveness

Coefficient of variation Coef. Std. Err. t P>|t| [95% Conf. Interval]


Gini 0.142 0.0868 1.64 0.128 –0.04716 0.33116
THE/GDP 2000 –0.007 0.0023 –2.88 0.014 –0.01141 –0.00159
Government Effectiveness –0.033 0.0085 –3.89 0.002 –0.05169 –0.01457
_cons 0.137 0.0273 5.02 0.000 0.07756 0.19656

R-squared = 0.6119
Adj R-squared = 0.5149
Number of obs = 16

health and responsiveness. This requires the ability to in responsiveness, as well as information on which
measure inequality in responsiveness and to identify groups of people are faced with lower levels of respon-
the people to which the system is least responsive. siveness within a given system.
This chapter has reported inequalities in responsive-
ness for 16 OECD countries, based on representative
household surveys undertaken as part of the WHO
Notes
Multi-country Survey Study on Health and Respon- 1 Note that the coefficient of variation may be identical for
siveness 2000–2001. men and women, but one of the distributions could lie
Even for countries with relatively high levels of to the left of the other. This means that it is important
health expenditure, there is considerable variation in to determine who is in the left-hand tail of the overall
the extent of inequality in responsiveness. In terms of distribution as well as to consider the coefficient of varia-
health system characteristics, there is some evidence tion by different characteristics.
that higher levels of health expenditure as a proportion
of GDP are associated with lower inequality, as are References
higher levels of government effectiveness. Other health
system characteristics associated with lower or higher (1) Murray CJL, Frenk J. A framework for assessing the
levels of inequality may well emerge as the results from performance of health systems. Bulletin of the World
surveys in additional countries become available. Health Organization, 2000, 78(6):717–731.
Within individual countries, the measurement of (2) Valentine NB et al. Health system responsiveness: con-
responsiveness and its distribution across the popu- cepts, domains and operationalization. In: Murray CJL,
lation provides policy-makers with an entry point Evans DB, eds. Health systems performance assessment:
for developing strategies to reduce inequalities. This debates, methods and empiricism. Geneva, World Health
requires determining if there are common characteris- Organization, 2003.
tics of people to whom the system is least responsive. (3) Valentine NB et al. Patient experiences with health serv-
These characteristics may well differ across various ices: population surveys from 16 OECD countries. In:
settings, as illustrated by the fact that the system was Murray CJL, Evans DB, eds. Health systems performance
less responsive to men in Belgium and to women in assessment: debates, methods and empiricism. Geneva,
Finland. World Health Organization, 2003.
To increase the availability of key information on (4) de Silva A, Valentine NB. Measuring responsiveness:
responsiveness to decision-makers, WHO has revised results of a key informants survey in 35 countries. EIP
the responsiveness module of the 2000–2001 study Discussion Paper No. 21. Geneva, World Health Or-
for its incorporation in the World Health Survey. ganization, 2000. URL: http://www3.who.int/whosis/
This survey is currently in the field in over 70 coun- discussion_ papers/discussion_ papers.cfm#
tries and will provide important information on the (5) Almeida C et al. Methodological concerns and rec-
system characteristics associated with low inequality ommendations on policy consequences of the World
Inequality in Responsiveness: Population Surveys from 16 OECD Countries 663

Health Report 2000. The Lancet, 2001, 357(9269): (12) Gakidou E, Murray CJL, Frenk J. Defining and measuring
1692–1697. health inequality: an approach based on the distribu-
(6) Navarro V. Assessment of the World Health Report tion of health expectancy. Bulletin of the World Health
2000. The Lancet, 2001, 356(9241):1598–1601. Organization, 2000, 78(1):42–54.

(7) Blendon RJ, Kim M, Benson JM. The public versus (13) Xu K et al. Summary measures of the distribution of
the World Health Organization on health system per- household financial contributions to health. In: Mur-
formance. Who is better qualified to judge health care ray CJL, Evans DB, eds. Health systems performance
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the healthcare? Health Affairs, 2001, 20(3):10–20. World Health Organization, 2003.
(8) Üstün TB et al. WHO Multi-country Survey Study on (14) Sen AK. On economic inequality. Oxford, Oxford
Health and Responsiveness 2000–2001. In: Murray CJL, University Press, 1973.
Evans DB, eds. Health systems performance assessment: (15 Smeeding TM. Cross-national comparisons of inequal-
debates, methods and empiricism. Geneva, World Health ity and poverty position. In: Osberg L, ed. Economic
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of the responsiveness instrument in the WHO Multi-
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empiricism. Geneva, World Health Organization, 2003. No. 2196. Washington, DC, World Bank, 1999.
Annex 47.1
Scenarios Used to Develop the Inequality Measure

Figure 1 Inequality scenario 1

Population A has an average level of responsiveness of 4 out of 10.


Population B has an average level of responsiveness of 7 out of 10.
In both populations A and B individuals are distributed similarly around the mean.

Which population, A or B, do you think has more inequality in responsiveness?


Population A has more inequality in responsiveness.
Population B has more inequality in responsiveness.
Both have the same inequality in responsiveness.

Population A Population B
3 3
Number of people

Number of people
2 2

1 1

0 0
1 2 3 4 5 6 7 8 9 10 1 2 3 4 5 6 7 8 9 10
Level of responsiveness Level of responsiveness

Figure 2 Inequality scenario 2

Populations A and B have exactly the same inequality of responsiveness.


Populations A and B have the same average level of responsiveness.
In both populations two individuals experience a transfer of 2 units of responsiveness.
In Population A, one person with 2 units loses 1 unit of responsiveness and another
person with 8 units gains 1 unit of responsiveness.
In Population B, one person with 4 units loses 1 unit of responsiveness and another
person with 6 units gains 1 unit of responsiveness.

Which population has a greater increase in inequality of responsiveness?


Population A has a greater increase in inequality of responsiveness.
Population B has a greater increase in inequality of responsiveness.
The increase is the same for both populations.

Population A Population B
Number of people

Number of people

3 3

Before 2 2
transfer
1 1

0 0
1 2 3 4 5 6 7 8 9 10 1 2 3 4 5 6 7 8 9 10
Level of responsiveness Level of responsiveness

Population A Population B
Number of people

Number of people

3 3

2 2
After
transfer 1 1

0 0
1 2 3 4 5 6 7 8 9 10 1 2 3 4 5 6 7 8 9 10
Level of responsiveness Level of responsiveness
Inequality in Responsiveness: Population Surveys from 16 OECD Countries 665

Figure 3 Inequality scenario 3

Populations A and B have the same average level of responsiveness.


Populations A and B have different inequality in responsiveness.
In both populations, there is a transfer of 8 units of responsiveness; one person with
5 units loses 4 units and another person with 5 units gains 4 units.

Which population experiences a greater increase in inequality of responsiveness?


Population A has a greater increase in inequality of responsiveness.
Population B has a greater increase in inequality of responsiveness.
The increase is the same for both populations.

Population A Population B
Number of people

Number of people
3 3

Before 2 2
transfer
1 1

0 0
1 2 3 4 5 6 7 8 9 10 1 2 3 4 5 6 7 8 9 10
Level of responsiveness Level of responsiveness

Population A Population B
Number of people

Number of people

3 3

2 2
After
transfer 1 1

0 0
1 2 3 4 5 6 7 8 9 10 1 2 3 4 5 6 7 8 9 10
Level of responsiveness Level of responsiveness
PRELIMINARY

Chapter 48 DRAFT
NOT FOR DISTRIBUTION

Quality and Equity: Preferences for Health


System Outcomes
Emmanuela Gakidou, Christopher J.L. Murray, David B. Evans

Introduction partly by other aspects of their personal interactions


with the health system which is defined as respon-
Societies invest a large fraction of their available siveness. Responsiveness has two components,
resources in health systems; nearly 8% of the global respect for persons and client orientation. Respect
production of goods and services are spent on health for persons is meant to capture dimensions such as
(1). Not surprisingly, there is remarkable interest dignity, autonomy, and confidentiality. Client ori-
among policy-makers in having information on the entation includes promptness of attention, access
performance of their health systems. Performance mea- to social support networks, basic amenities, and
surement can help them monitor the progress of their choice of provider. Both the level and inequalities
own systems over time, and allows them to compare in responsiveness are measured (3).
their progress with that of other health systems. This
information has the secondary benefit of contributing  Fairness in financial contribution is the extent to
to the development of an evidence base on what works which the burden of paying for the health system is
to improve health systems performance, and what does fairly distributed across households. This captures
not. The lack of this type of information has been a three related concerns: first, when some households
major impediment to ensuring evidence-based policy are forced to pay a catastrophic share of their non-
development in the area of health system reform. subsistence income (defined as being greater than
Measures of the outcomes of health systems are 40%) to the health system; second, when house-
needed in order to allow comparisons across coun- holds in similar circumstances contribute very dif-
tries and populations in terms of overall goal attain- ferent shares of their non-subsistence income to the
ment and the efficiency of achieving these goals. This health system; finally, the extent to which the poor
means specifying the key social goals to which health contribute a larger share of their disposable income
systems contribute, country attainment on these goals, for health than the rich.
and their relative importance. The World Health Orga- Figure 48.1 shows the five outcomes relevant to
nization framework for assessing the performance of health systems in this framework. The level of health
health systems(1;2) defines three main goals: and responsiveness define the quality of the health sys-
 Improving the health of populations. Population
tem and the distributions of health, responsiveness,
and financial burden relate to its equity.
health should reflect the health of individuals
The appropriate weights attached to the five out-
throughout their life course and include both pre-
comes in constructing a composite measure are funda-
mature mortality and non-fatal health outcomes.
mentally a normative choice. For global comparative
Improving health entails raising its average level
purposes, a standard set of weights is needed, although
and reducing inequalities in it.
country-specific weights can be used for local policy
 Improving the responsiveness of the health system purposes. This standard set of weights should be the
to the population it serves. When individuals inter- product of a deliberative debate informed as much as
act with the health system it influences their well- possible by empirical information on the preferences
being, partly through improvements in health and of the populations of countries around the world (4).
668 Health Systems Performance Assessment

Figure 48.1 Health system goals as part of the perfor- preferences for health system goals. Information on
mance assessment framework the development of the content of the overall survey
instrument, translation protocols, the various survey
Level Distribution modes, selection of sites, sample frames, data collec-
tion and management, and quality of the data are
Health   detailed elsewhere1 (7).

Efficiency
The module on health system goals preferences
Responsiveness  
was included in 55 of the 71 population representa-
tive surveys, covering 51 countries and using 2 differ-
Fairness in financial 
ent modes—postal and brief face-to-face interviews.
contribution
These included 36 brief household surveys (in-person
interviews lasting approximately 35 minutes) and
Quality Equity
19 postal surveys. On average, response rates were
higher for the brief household surveys (64%) than for
The choice of weights is important not only to set the the postal surveys (46%). These response rates are
balance between health, responsiveness, and fairness in similar to the ones observed for comparable instru-
financial contribution, but also to establish the balance ments in OECD countries (8). Respondent missing
between quality and equity. The World Health Organi- data across all items were low, averaging 1.5% for
zation has, for example, been criticized for being too the brief household surveys and 6.8% for the postal
egalitarian in its approach to health systems perfor- surveys. More details on the quality of the surveys are
mance assessment on the one hand (5), while others provided elsewhere (7).
have argued that the approach represents US market Two different survey modes were used in four coun-
interests and does not adequately consider questions tries: the Czech Republic, Finland, France, and the
of equity (6). Empirical information on people’s prefer- Netherlands. Table 48.1 lists the country, survey mode,
ences for these outcomes in different societies can serve and sample size included in the subsequent analysis.
as a basis for a more informed and constructive global In general, the data for each country are nationally
debate on the importance of these outcomes. representative of the non-institutionalized population
As a first step in the development of a long-term over the age of 18 years.
agenda to measure preferences for health system out-
comes in various countries, preferences of informed Survey Instrument
individuals (rather than the general public) were used
to derive the weights to measure composite attainment To elicit relative weights on health systems perfor-
and efficiency by country, published in The World mance, the questionnaire included word and graphics
Health Report 2000 (1). WHO’s long-term goal is questions. In the textual question, respondents were
to measure the deliberative preferences of the general asked to rank the health systems goals in order of
public for these outcomes. As an intermediate step, importance. In the graphics question, respondents
preferences of the general public were measured using were shown seven pie charts with different values for
nationally representative samples from 51 countries. the health systems goals and were asked to select the
This chapter presents the methods used and the major pie chart that best matched their preferences. Respon-
findings on preferences for health system goals. dents also had the option to draw their own pie chart
if they preferred. Because the cognitive load of asking
participants to assign relative weights to five compo-
Methods nents was considered too large, three sets of pie charts
were used to elicit relative weights between 1) health,
Data
responsiveness, and fairness in financial contribution,
In 2000–2001, WHO conducted a Multi-country Sur- 2) average level of health and inequalities in health,
vey Study in conjunction with relevant Member States and 3) average level of responsiveness and inequalities
of the Organization, research institutions, and survey in responsiveness. The survey instruments are available
organizations. The study was comprised of 71 surveys on the internet at URL: http://www.who.int/evidence/
in 61 countries. It had a range of modules includ- hhsr-survey.
ing health status description, health state valuations, To arrive at the final weight for each component
responsiveness, adult mortality, health financing, and of health and responsiveness, the relative weight of
Quality and Equity: Preferences for Health System Outcomes 669

average level versus inequalities was multiplied by the Table 48.1 Sample size and characteristics of surveys
relative weight for the goal. The weight for fairness in used
financial contribution is taken from the pie chart of Country Mode Sample size
the three goals, without adjustment.
Argentina Brief face-to-face 761
Australia Postal 1 093
Model Austria Postal 898
Bahrain Brief face-to-face 577
A seemingly unrelated regression model was applied to
Belgium Brief face-to-face 1 042
check for systematic relationships between preferences Bulgaria Brief face-to-face 999
for the five health system outcomes and respondent Canada Brief face-to-face 770
characteristics. The reported weight for each outcome Chile Brief face-to-face 962
was regressed on the respondent’s personal charac- China Postal 1 358
Costa Rica Brief face-to-face 712
teristics, including age, sex, educational attainment,
Croatia Brief face-to-face 1 465
and self-rated health status, and a number of national Cyprus Postal 578
characteristics, including average income per capita, Czech Republic Brief face-to-face 1 072
average years of schooling, income inequality, and Czech Republic Postal 938
population density. The full set of variables included Denmark Postal 1 493
in the regression and the sources of data are found in Egypt Postal 1 349
Estonia Brief face-to-face 910
Table 48.4. Finland Brief face-to-face 966
Because the weights assigned to the five goals add Finland Postal 1 132
up to one, the error terms of the equations are likely France Brief face-to-face 983
correlated with each other. Therefore, it is inappropri- France Postal 511
ate to run five separate regressions on each of the goal Germany Brief face-to-face 1 031
Greece Postal 782
weights. In contrast, a seemingly unrelated regression Hungary Postal 1 433
allows the error terms of each equation to be cor- Iceland Brief face-to-face 469
related, and estimates the full variance-covariance Indonesia Brief face-to-face 2 373
matrix of the coefficients (9). Seemingly unrelated Ireland Brief face-to-face 624
regression can be applied using standard statistical Italy Brief face-to-face 989
Jordan Brief face-to-face 798
packages such as Stata. Korea, Republic of Brief face-to-face 344
Kyrgyzstan Postal 897
Latvia Brief face-to-face 753
Results Lithuania Postal 1 661
There were 53 024 respondents from the 51 countries. Luxembourg Brief face-to-face 635
Malta Brief face-to-face 500
Their responses provide answers to two important Morocco Brief face-to-face 721
questions. The first is the extent to which people assign Netherlands Brief face-to-face 1 068
greater weight to health, the defining goal of health Netherlands Postal 498
systems, over the other two goals. The second is the New Zealand Brief face-to-face 1 479
extent to which respondents focus on quality versus Oman Brief face-to-face 873
Poland Brief face-to-face 777
equity. The average levels of health and responsive-
Portugal Brief face-to-face 972
ness reflect system quality, while inequalities in health, Romania Brief face-to-face 1 045
responsiveness, and fairness in financial contribution Russian Federation Brief face-to-face 1 601
are indicators of system inequity. Spain Postal 1 000
Table 48.2 shows the relative weights assigned to Sweden Brief face-to-face 998
Switzerland Postal 381
each of the three main health system goals—health,
Thailand Brief face-to-face 1 186
responsiveness, and fairness in financial contribu- Trinidad and Tobago Brief face-to-face 771
tion—by country and survey mode, ordered in terms Turkey Postal 1 610
of the weight attributed to health, from largest to Ukraine Brief face-to-face 689
smallest. The table also presents the sample standard United Arab Emirates Brief face-to-face 860
United Kingdom Postal 852
deviations for each goal, which reflect the amount of
USA Postal 1 081
variation in preferences within each country. All coun- Venezuela Brief face-to-face 704
tries rated health as the most important of the three
Total 53 024
system goals, and all rated responsiveness as more
670 Health Systems Performance Assessment

Table 48.2 Relative weights assigned to the three main health system goals
Health Responsiveness Fairness in financial contribution
Sample stan- Sample stan- Sample stan-
Country Average level dard deviation Average level dard deviation Average level dard deviation
Costa Rica 53.3 15.1 24.5 9.7 22.2 8.1
Venezuela 51.1 13.9 24.2 7.5 24.7 7.6
Czech Republic (postal) 50.9 12.5 25.3 7.1 23.9 6.9
Argentina 50.4 15.8 25.6 10.2 24.0 9.4
Spain 50.0 13.4 26.0 8.0 24.0 7.9
Czech Republic (face-to-face) 49.8 12.9 25.9 8.5 24.2 8.1
Korea, Republic of 49.0 12.8 25.4 7.5 25.5 7.5
Estonia 49.0 13.9 25.6 8.1 25.4 7.6
Portugal 48.9 14.3 25.7 8.8 25.4 7.7
Ireland 48.7 13.9 25.7 9.0 25.6 8.7
Luxembourg 48.5 15.5 26.1 10.1 25.4 10.0
France (face-to-face) 48.4 13.2 26.4 8.0 25.2 7.9
Croatia 48.3 12.8 26.2 7.0 25.5 6.8
Belgium 48.2 14.2 26.6 8.9 25.2 9.0
Ukraine 48.2 14.0 25.7 8.6 26.1 8.8
Malta 48.1 13.1 27.4 9.1 24.5 8.4
United Kingdom 48.1 12.0 25.9 6.7 26.0 7.2
China 47.9 12.1 27.1 7.8 25.0 7.3
Cyprus 47.8 13.0 27.3 7.4 24.9 7.7
Indonesia 47.7 10.5 28.2 6.8 24.1 6.6
Egypt 47.7 11.3 26.4 5.9 25.9 6.2
Italy 47.7 13.7 27.3 9.6 25.0 9.0
Bulgaria 47.5 12.9 26.0 7.2 26.5 7.9
Kyrgyzstan 47.4 13.8 26.3 8.2 26.3 8.0
Lithuania 47.1 13.2 28.2 7.8 24.7 8.7
Turkey 47.0 13.1 26.2 7.3 26.8 8.2
Romania 46.9 14.0 26.6 8.0 26.5 8.2
Denmark 46.9 11.0 27.9 5.9 25.3 6.6
Finland (face-to-face) 46.8 12.4 26.5 7.2 26.7 7.2
Poland 46.7 11.9 26.7 7.1 26.6 8.0
Bahrain 46.6 10.0 26.8 6.2 26.6 6.3
Iceland 46.5 13.0 27.8 8.3 25.8 8.3
Greece 46.4 14.0 27.6 8.9 26.0 8.2
Trinidad and Tobago 46.3 12.7 27.2 7.5 26.5 7.1
Finland (postal) 46.3 11.9 26.8 6.5 26.9 7.9
New Zealand 45.8 11.6 28.2 7.0 26.0 6.8
France (postal) 45.6 11.1 27.8 6.7 26.6 6.6
Germany 45.5 13.0 26.7 8.6 27.8 9.2
USA 44.7 18.3 30.9 15.1 24.4 13.9
Jordan 44.6 16.7 28.0 10.7 27.4 10.4
Australia 44.5 12.0 28.0 7.2 27.5 6.9
Hungary 44.4 11.8 28.9 6.6 26.7 7.9
Sweden 43.3 12.3 28.8 8.1 27.9 8.6
Latvia 43.3 14.1 26.4 8.7 30.4 11.4
Switzerland 43.2 11.2 29.9 7.8 26.9 6.9
Oman 43.2 15.9 32.2 14.8 24.6 10.9
Austria 43.1 10.7 28.9 5.8 28.0 6.1
Russian Federation 42.2 13.2 28.8 8.9 29.1 9.0
Canada 41.9 9.7 29.5 5.5 28.6 5.7
Netherlands (face-to-face) 41.5 12.1 30.9 9.2 27.7 7.9
Netherlands (postal) 41.5 10.8 30.6 7.2 27.9 6.7
Chile 41.3 11.5 29.7 6.6 29.0 7.2
United Arab Emirates 40.2 16.6 31.9 14.4 27.9 12.0
Thailand 39.9 14.5 32.1 11.4 28.0 11.8
Morocco 37.3 17.4 33.3 15.5 29.4 14.0
Quality and Equity: Preferences for Health System Outcomes 671

important than fairness in financial contribution, inequality, and fairness in financial contribution. Table
although the difference between these two goals was 48.3 also shows the sample standard deviation for
small. Health received an average weight of 46%, a quality and equity within each country. All countries
proportion that varied across countries from a high of accord more importance to system equity than to sys-
53% in Costa Rica to a low of 37% in Morocco. The tem quality, with a great deal of consistency across
weights assigned to responsiveness varied less: from settings. For example, the overall weight attached to
24% in Costa Rica and Venezuela to 33% in Morocco, system quality averages just under 40%, and varies
while the weights for fairness in financial contribution between 36% and 44%.
ranged from 22% in Costa Rica to 30% in Latvia. The next step is to examine if there are characteris-
Figure 48.2 presents a stacked bar chart contain- tics of the countries that explain this variation. At the
ing the relative weights assigned to the five outcomes. same time, it is important to identify if different groups
Overall weights assigned to health and responsiveness of people in each country have different values. Table
are subdivided into the part attributed to level versus 48.4 reports the results of the seemingly unrelated
the part attributed to inequalities. The relative pref- regression analysis for each of the five outcomes.2
erences for the five outcomes are shown by country Some personal characteristics imply a preference
and survey mode with countries ordered by the rela- for health over non-health goals, while others are cor-
tive weight assigned to the level of health. The height related with a concern for system quality over system
of the bar equals 100% in all countries. While there equity. For example, individual education is negatively
are differences across countries in the relative weights correlated with a concern for health compared to non-
assigned to the five outcomes, this variation is not very health, while the higher the self-reported health status,
pronounced. the more responsiveness is valued compared to health.
The results can be used to explore variations in The concern with system equity compared to quality
the perceived importance of system quality compared increases with age. In particular, older people are more
to equity on a country basis. Table 48.3 contains concerned with health inequalities and less concerned
the summed weights assigned to the average levels with the level of responsiveness than younger people.
of health and responsiveness (system quality), and Males also seem to be more concerned with the quality
compares the result to system equity—the sum of of the system than with equity, in this case rating the
the weights for the components dealing with sys- level of health more highly and inequalities in respon-
tem equity, namely health inequality, responsiveness siveness less highly, than females.

Figure 48.2 Relative weights assigned to the five health system goals, by country and survey modea

100

80

60
%
40

20

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Fairness in financial contribution


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Responsiveness inequality
ch

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Health inequality
Health

a. Countries are ranked by the highest score on health and health inequalities combined.
672 Health Systems Performance Assessment

Table 48.3 Relative weights and sample standard deviations assigned to system quality vs. equity
Quality Equity
Sample standard Sample standard
Country Average level deviation Average level deviation
Oman 43.6 11.7 56.4 11.7
Bahrain 43.5 12.4 56.5 12.4
Netherlands (postal) 43.2 11.2 56.9 11.1
Czech Republic (postal) 42.7 11.8 57.3 11.8
Russian Federation 42.5 11.5 57.5 11.5
Jordan 42.2 11.5 57.8 11.5
Estonia 41.8 10.9 58.2 10.9
Venezuela 41.8 10.8 58.2 10.8
China 41.7 11.0 58.3 11.0
Korea, Republic of 41.5 10.0 58.5 10.0
Canada 41.5 7.6 58.5 7.6
Czech Republic (face-to-face) 41.4 10.1 58.6 10.1
Denmark 41.0 9.3 59.0 9.3
Indonesia 40.8 10.1 59.2 10.1
United Arab Emirates 40.7 12.3 59.3 12.3
Iceland 40.6 10.4 59.4 10.4
Finland (face-to-face) 40.2 9.8 59.8 9.8
Costa Rica 40.2 13.0 59.8 13.0
Egypt 40.0 10.5 60.0 10.5
Greece 39.8 10.4 60.3 10.5
Hungary 39.6 9.5 60.5 9.5
United Kingdom 39.5 9.4 60.5 9.4
Ukraine 39.4 10.0 60.6 10.0
Cyprus 39.3 10.1 60.7 10.1
Romania 39.3 11.7 60.7 11.7
Lithuania 39.2 9.8 60.9 9.9
Finland (postal) 39.0 10.2 61.0 10.2
New Zealand 39.0 9.5 61.0 9.5
France (postal) 38.9 8.8 61.2 9.0
USA 38.8 16.6 61.2 16.6
Spain 38.8 9.6 61.2 9.6
Bulgaria 38.6 10.2 61.4 10.2
Trinidad and Tobago 38.6 8.8 61.4 8.8
Latvia 38.5 12.3 61.5 12.3
Poland 38.5 9.4 61.5 9.4
Argentina 38.4 12.0 61.6 12.0
Malta 38.3 10.6 61.7 10.6
Luxembourg 38.2 12.8 61.8 12.8
Kyrgyzstan 38.2 9.9 61.8 10.0
Italy 38.2 10.0 61.8 10.0
Australia 37.9 9.0 62.1 9.0
Thailand 37.9 9.8 62.1 9.8
Sweden 37.8 9.9 62.2 9.9
Netherlands (face-to-face) 37.6 9.0 62.4 9.0
Austria 37.6 8.5 62.5 8.6
Croatia 37.5 9.7 62.5 9.7
Switzerland 37.2 8.7 62.8 8.7
France (face-to-face) 37.0 8.7 63.0 8.7
Turkey 36.9 10.2 63.0 10.3
Germany 36.9 10.0 63.1 10.0
Portugal 36.9 11.2 63.1 11.2
Belgium 36.6 10.7 63.4 10.7
Ireland 36.3 11.0 63.7 11.1
Morocco 35.9 14.2 65.0 14.0
Chile 35.6 7.5 64.5 7.6
Quality and Equity: Preferences for Health System Outcomes 673

Table 48.4 Results from the seemingly unrelated regression model


Responsiveness Fairness in financial
Health Health inequality Responsiveness inequality contribution
Age 0.0000 0.0001* 0.0001*** 0.0000 0.0000
(0.0000) (0.0000) (0.0000) (0.0000) (0.0000)
Sex 0.0019* 0.0009 0.0009 –0.0013* 0.0005
(0.0009) (0.0008) (0.0005) (0.0005) (0.0008)
Self-reported health status 0.0005 0.0030** 0.0016* 0.0013* 0.0004
(0.0010) (0.0009) (0.0006) (0.0006) (0.0008)
Education (individual) 0.0018 –0.0067*** 0.0021*** 0.0002 0.0027**
(0.0010) (0.0009) (0.0006) (0.0006) (0.0008)
Average years of schooling (national) 0.0031*** 0.0030*** 0.0014*** 0.0009*** 0.0007*
(0.0004) (0.0004) (0.0002) (0.0002) (0.0003)
Voice1 2 –0.0089** 0.0046*** 0.0017** 0.0045*** 0.0016
(0.0010) (0.0009) (0.0006) (0.0006) (0.0008)
% public health expenditure4 0.0241** 0.0403*** 0.0283*** 0.0308*** 0.0052
(0.0038) (0.0035) (0.0023) (0.0022) (0.0031)
Dependency ratio4 0.0472** 0.0085 0.0133** –0.0031 0.0490***
(0.0072) (0.0065) (0.0043) (0.0041) (0.0059)
Population density3 0.0021** 0.0040*** 0.0024*** 0.0002 0.0039***
(0.0004) (0.0004) (0.0003) (0.0003) (0.0004)
Gini coefficient –0.0291** 0.0362*** 0.0174*** 0.0184*** 0.0293***
(0.0082) (0.0075) (0.0049) (0.0047) (0.0067)
GDP per capita 0.0000 0.0000*** 0.0000*** 0.0000*** 0.0000
(0.0000) (0.0000) (0.0000) (0.0000) (0.0000)
Per capita out of pocket expenditure4 0.0000 0.0000*** 0.0000*** 0.0000 0.0000*
(0.0000) (0.0000) (0.0000) (0.0000) (0.0000)
Constant term 0.1873*** 0.2124*** 0.1544*** 0.1467*** 0.2992***
(0.0080) (0.0073) (0.0048) (0.0046) (0.0066)
* P < 0.05
** P < 0.01
*** P < 0.001
Sources of data:
1
Kaufman D, Kraay A, Zoido-Lobatón P. Aggregating governance indicators. World Bank Policy Research Working Paper No. 2195. 1999.
2
Kaufman D, Kraay A, Zoido-Lobatón P. Governance matters. World Bank Policy Research Working Paper No. 2196. 1999.
3
ESRI data and maps 1999. Redlands, CA, Environmental Systems Research Institute, 1999. URL: http://www.esri.com/
4
World Health Organization. The World Health Report 2000. Health Systems: Improving Performance. Geneva, World Health Organization, 2000.

Similar patterns can be found across all system able) feel that reducing inequities is more important
characteristics that were tested. Interestingly, both the than improving average levels.
average educational level of the adult population and Population density and the percent of health expen-
the dependency ratio are negatively correlated with a diture provided by the public sector are negatively
correlated with a preference for non-health goals
concern for system equity compared to quality. Coun-
compared to health. On the other hand, countries
tries in which each member of the working popula-
with higher levels of GDP per capita and those with
tion supports a larger number of dependents are more
more income inequality are more likely to give higher
concerned with improving the quality of the system, weights to non-health goals than to health.
than with reducing inequalities. In contrast, countries Even though the individual- and country-level char-
where the population is seen to have an effective role acteristics of the respondents are associated with the
in influencing government actions (the “voice” vari- weights assigned to the five outcomes of health sys-
674 Health Systems Performance Assessment

tems, the resulting effect on the relative weights of the the choice of set of weights for the five outcomes or
health system goals is not substantively significant in to using the weights that are the most favourable to
all cases. The coefficients on the variables in Table 48.4 each individual country (11).
are very small in magnitude so that, although the rela- One limitation of the method used in the house-
tionships are statistically significant, these variables hold surveys for this study is that time for delibera-
rarely change the weight assigned to a goal by more tion was not built into the instrument. Modifications
than a few percentage points. This was reflected in of the instrument might include the use of trade-off
Table 48.2 and Figure 48.2, where the range across questions favoured by economists (12–14), in which
countries in the weights is relatively small. respondents are explicitly asked to trade-off quantities
of two types of benefits (e.g. health or health inequal-
ity reduction) under a particular resource constraint.
Discussion On the other hand, this type of trade-off question
This chapter has presented results from the first tends to have poor psychometric properties in less
attempt to measure preferences of the general public educated respondents(12–14). Nonetheless, it would
on the relative importance of the goals of health sys- be very interesting to explore alternative methods of
tems. Data from 51 countries and more than 53 000 measuring preferences of health system goals and anal-
respondents were analysed for this study. yse whether responses differ depending on the survey
This supplements the information on preferences instrument employed.
obtained from informed respondents used in estimat- The results are striking for the substantial weight
ing the composite attainment of health systems in The attached to health system equity. Health inequality
World Health Report 2000 (10). In that internet sur- (21%), responsiveness inequality (13%), and fairness
in financial contribution (26%) combine to average
vey, the average weights from over 1 600 responses
60% of the total weight. This heavy emphasis on
were 24% health, 25% health inequality, 13% respon-
equity was present in all groups of respondents. This
siveness, 16% responsiveness inequality, and 22%
orientation to equity is now being reflected in many
fairness in financial contribution, very similar to the
countries by an increasing policy emphasis on reduc-
average of the respondents from the nationally repre-
ing health inequalities (15).
sentative surveys of the general public reported in this
Weights for the average level and distribution of
chapter (Table 48.2). Based on this evidence, informed
health account for 46% of the total weight, but the
respondents and the general public seem to differ very
goals of responsiveness and fairness in financial con-
little in their preferences for health system goals.
tribution together are considered more important.
Clearly, the preferences in the present analysis, This may be surprising to many health practitioners
derived from nationally representative samples, cap- who have traditionally focused only on health as the
ture local preferences in a way that is impossible for key goal of health systems. The importance given to
a convenience sample of informed respondents. The non-health goals is consistent across different types of
overall similarity of the responses and the relatively respondents and across all countries, and has signifi-
small variation across countries is striking, and cant implications not just for policy development, but
makes it more credible to use the average weights also for data collection and measurement. It is only if
from an informed respondent study in places where attainment on these goals is routinely measured and
it is not possible to conduct nationally representative monitored that the performance of health systems in
surveys. the areas that people value will improve.
For global comparative purposes of health system
attainment, a single set of weights might be desirable.
It would be most appropriate to use the average or Acknowledgements
median weights from household surveys from around The authors wish to thank Margaret C. Hogan for
the world, although for the purposes of local policy- research assistance, and Joshua A. Salomon and Ajay
making, a locally derived set of weights has to be Tandon for helpful input.
used. In either case, an analysis of how sensitive the
substantive conclusions are to the choice of weights
should be conducted. A preliminary analysis shows Notes
the encouraging result that substantive conclusions 1 The survey instruments are available on the internet at
on health system attainment are not very sensitive to URL: http://www.who.int/evidence/hhsr-survey/
Quality and Equity: Preferences for Health System Outcomes 675

2 The results are not substantively different using a wide (8) Jenkinson C, Coulter A, Bruster S. The Picker Patient
variety of other functional forms of the model and five Experience Questionnaire: development and validation
independent regression models. using data from in-patient surveys in five countries. In-
ternational Journal for Quality in Healthcare, 2002, 14:
353–358.
References (9) Greene WH. Econometric analysis, 4th ed. Upper Saddle
River, NJ, Prentice-Hall, 2000.
(1) World Health Organization. The World Health Report
(10) Gakidou E, Murray CJL, Frenk J. Measuring prefer-
2000. Health Systems: Improving Performance. Geneva,
ences for health systems performance assessment. EIP
World Health Organization, 2000.
Discussion Paper No. 20. Geneva, World Health Or-
(2) Murray CJL, Frenk J. A framework for assessing the ganization, 2000. URL: http://www3.who.int/whosis/
performance of health systems. Bulletin of the World discussion_papers/discussion_papers.cfm#
Health Organization, 2000, 78:717–731.
(11) Murray CJL et al. Overall health system achievement
(3) de Silva A. A framework for measuring responsiveness. for 191 countries. EIP Discussion Paper No. 28. Ge-
EIP Discussion Paper No. 32. Geneva, World Health neva, World Health Organization, 2000. URL: http:
Organization, 2000. URL: http://www3.who.int/whosis/ //www3.who.int/whosis/discussion_papers/discus-
discussion_papers/discussion_papers.cfm# sion_papers.cfm#
(4) Hausman DM. The limits to empirical ethics. In: Mur- (12) Froberg DG, Kane RL. Methodology for measuring
ray CJL et al., eds. Summary measures of population health state preference II: scaling methods. Journal of
health: concepts, ethics, measurement and applications. Clinical Epidemiology, 1989, 42:459–471.
Geneva, World Health Organization, 2002:641–646. (13) Nord E. Methods for quality adjustment of life years.
(5) Helms RB. Health care à la Karl Marx. The Wall Street Social Science & Medicine, 1992, 34:559–569.
Journal Europe, 29 June 2000. (14) Richardson J. Cost utility analysis: what should be mea-
(6) Navarro V. Assessment of the World Health Report sured? Social Science & Medicine, 2000, 39:7–21.
2000. The Lancet, 2000, 356:1598–1601. (15) Lauer JA, Evans DB, Murray CJL. Measuring health
(7) Üstün TB et al. WHO Multi-country Survey Study on system attainment: the impact of variability in the im-
Health and Responsiveness 2000–2001. In: Murray CJL, portance of social goals. In: Murray CJL, Evans DB,
Evans DB, eds. Health systems performance assessment: eds. Health systems performance assessment: debates,
debates, methods and empiricism. Geneva, World Health methods and empiricism. Geneva, World Health Orga-
Organization, 2003. nization, 2003.
PRELIMINARY

Chapter 49
DRAFT
NOT FOR DISTRIBUTION

Measuring Health System Attainment:


the Impact of Variability in the Importance
of Social Goals
Jeremy A. Lauer, David B. Evans, Christopher J.L. Murray

Introduction The publication of the report provoked consider-


able comments from governments, as well as debate
Health decision-makers continue to seek timely and in the academic press (3–9). One of the criticisms
reliable information on the performance of their health concerned the use of a uniform set of weights in the
systems and ways to improve performance. WHO construction of the overall attainment index. It was
recently defined a framework that can be used to mea- argued that people from different cultural and social
sure performance in a comparable way across systems settings would value the individual goals of the health
(1). The framework identified a parsimonious set of system in different ways (10). Our early results had
social goals to which health systems should contrib- showed that the overall attainment score was more
ute. They should contribute to improving population sensitive to uncertainty in measurement of individual
health, be responsive to the people they serve, and be attainment indicators than to reasonable variations
financed fairly. Five outcome indicators were defined in the weights used to aggregate the individual scores,
on this basis: the level of population health, inequali- and this chapter accordingly does not address the
ties in health, the level of responsiveness, inequalities question of how much it matters to be wrong about
in responsiveness, and fairness of financing. Estimates the (average) set of weights. Instead, it explores how
of attainment on these five indicators were made for much it matters if different countries are allowed to
the 191 countries which were Members of WHO at have different values for each of the components of
that time, and a composite (overall) attainment indi- health system attainment.
cator was constructed for each country as a weighted Whether values (as expressed in weights) do, in
average of attainment on the five indicators. Overall fact, differ substantively across countries is a testable
country attainment ranged from a minimum of 35.7 hypothesis, which has recently been investigated by
(Sierra Leone) to a maximum of 93.4 (Japan) on a means of a series of household surveys conducted in
scale from 1 to 100 (estimates for 1997). 50 countries (see Chapter 48 for fuller discussion).
The weights used in constructing the overall attain- Here, we explore whether the absolute and relative
ment indicator in The World Health Report 2000 were attainment of countries in terms of the overall indi-
based on the average results of a survey (2) in which cator would differ substantively if country-specific
participants were asked by means of an interactive pie weights had been used in constructing the composite
chart to assign weights to the individual goals of the measure.
health system. A total of 1 007 people completed the The above-mentioned surveys suggest a natural
survey, and small statistically significant differences strategy for estimating country-specific weights, i.e.
were found between respondents from developed to measure them in each individual country. However,
and developing countries in the weights assigned to here we adopt the device of using for each country the
health and inequality in responsiveness. These dif- weights that would maximize its score on the overall
ferences were on the order of two percentage points, attainment index. Such weights can be called “ben-
and sensitivity analysis showed that the overall attain- efit of the doubt” weights (11), in that they implicitly
ment scores were not sensitive to this magnitude of allow for the possibility that a country may be maxi-
variation. mizing its individual social preference function by its
678 Health Systems Performance Assessment

choices in the health system, or that health system subject to: 0.19 ≤ w1 ≤ 0.29
decision-makers might be maximizing their own pref- 0.17 ≤ w2 ≤ 0.25
erence functions. The overall attainment scores result- 0.12 ≤ w3 ≤ 0.18
ing from the benefit of the doubt are country-specific 0.11 ≤ w4 ≤ 0.17
global maxima conditional on the underlying levels of 0.22 ≤ w5 ≤ 0.30
attainment on the individual country indicators, and Σwi ≤ 1, i = 1,…,5
subject to some necessary constraints explained below.
where ci represents the attainment score on the five
individual outcome indicators for country j and wi is
Methods the weight for that component in the composite attain-
ment index for that country (index “1” corresponds
WHO originally used fixed weights to aggregate the to health, “2” to health distribution, “3” to respon-
five outputs into a scalar health system attainment siveness, “4” to responsiveness distribution, “5” to
index. The weights were 0.25, 0.25, 0.125, 0.125,
fairness in financial contribution). Country attainment
0.25 for the level of population health, inequality scores as measured according to this method of assign-
in the distribution of health, the level of health sys- ing weights will always be greater than or equal to
tem responsiveness, inequality in the distribution of country attainment scores using the original weights
responsiveness, and fairness in financial contribution, reported in The World Health Report 2000 (1).
in turn. For the benefit of the doubt analysis, each
country was assigned the set of weights giving it the Results
highest possible attainment score. However, all coun-
tries were required to have all weights for individual In Figure 49.1, country attainment scores obtained
indicators to be non-zero and to sum to one. Conse- under the benefit of the doubt assumptions are plotted
quently, bounds on the maximum and minimum val- on the vertical axis against attainment scores reported
ues for the individual weights are necessary, and the in The World Health Report 2000, obtained using the
bounds we use are those that derive from the above- original weights. If the two scores were the same, the
mentioned cross-population surveys. For each indica- plot would consist of points on the 45-degree line.
tor, the lower bound is the minimum country-specific However, attainment scores obtained using alterna-
average weight across the sample, where the country- tive weights always lie above the 45-degree line. The
specific average weight is the average of the valuations vertical difference of the alternative scores from the
provided by the respondents from that country. The 45-degree line tends to be greatest for countries with
upper bound was taken as the maximum of the aver- relatively low attainment scores using the original
age country-specific weights. The upper and lower weights—in other words, such countries have greater
bounds are found in Table 49.1. room for improvement than countries already scoring
Consequently, finding the maximum overall attain- close to the maximum. The correlation between the
ment score is a set of linear programming problems, alternative scores is 0.9978.
one for each country. For the jth country, the goal is A histogram of the magnitude of the changes in the
to determine the set of weights that maximizes over- overall attainment score obtained under the benefit of
all attainment, subject to various constraints. Mathe- the doubt is shown in Figure 49.2. The distribution
matically: of changes has a mean of 4.6 and a standard devia-
tion of 1.39. No country’s overall attainment score
max j (Σwi × ci), i = 1,…,5; j = 1,…,191 increases by more than 8.2 points. As can be seen in
Table 49.1 Original weights and benefit of the doubt weights with summary statistics
Benefit of the
Benefit of the doubt (Standard Benefit of the Benefit of the
Variable Original weight doubt (Mean) deviation) doubt (Minimum) doubt (Maximum)
Responsiveness level 0.125 0.130 0.019 0.12 0.18
Responsiveness distribution 0.125 0.180 0.004 0.16 0.18
Fair financing (distribution) 0.250 0.291 0.025 0.22 0.30
Health distribution 0.250 0.200 0.036 0.17 0.25
Health level 0.250 0.200 0.028 0.19 0.29
Measuring Health System Attainment 679

the density plot (i.e. a smoothed histogram), showing the original rank as reported in The World Health
a standard normal overlay (Figure 49.3), the distribu- Report 2000, the great majority of countries show
tion of changes in score is skewed slightly to the left little or no change (Figure 49.4). Nearly 40 countries
and has a fat right-hand tail. (20% of the sample) show no rank change at all under
Countries are understandably concerned about the benefit of the doubt, and 99 (52%) show changes
their rank as compared with other, frequently closely of only one, two or three ranks (Figure 49.5).
ranked, countries. However, this can result in an However, in restricted rank-neighbourhoods, where
undue emphasis on “local” comparisons, even though there is clustering of the underlying overall attainment
the main purpose of the attainment measurement exer- scores, rank changes naturally appear more substantial
cise is to derive global policy implications about what and the plot more dispersed. Overall, however, the
types of health system strategies and policies work and
what do not work. For example, when a country’s Figure 49.2 Histogram showing absolute differences in
rank under the benefit of the doubt is compared with two sets of attainment scores: alternative
(maximum) versus original (World Health
Report 2000)
Figure 49.1 Alternative (maximum) attainment scores
versus original (World Health Report 2000)
.3
scores, showing 45-degree line

100

Proportion of sample
.2
Alternative scores

80

.1
60

40 0
0 2 4 6 8
40 60 80 100
Original Scores Absolute difference in attainment score

Figure 49.3 Density plot of the changes induced Figure 49.4 Alternative ranks (based on maximum
under benefit of the doubt, showing the scores) versus original (World Health
standard normal distribution Report 2000) ranks

smoothed changes standard normal 200


.3
Proportion of sample (smoothed)

150
Alternative ranks

.2
100

.1
50

0
0
0 5 10 0 50 100 150 200
Difference in attainment score Original ranks
680 Health Systems Performance Assessment

Figure 49.5 Histogram of absolute value of differences in two


sets of ranks: based on alternative (maximum) and
original (World Health Report 2000) scores

.3

Proportion of sample
.2

.1

0
0 5 10 15
Absolute value of difference in rank

points in Figure 49.4 lie close to the 45-degree line Discussion


(simple linear correlation, 0.9972). Since both positive
and negative rank changes occur, points are scattered Overall attainment scores obtained under the benefit
above and below the 45-degree line. of the doubt put each country in the best possible light.
All countries will benefit from this procedure unless
Like the histogram for changes in overall attain-
the weights obtained under the benefit of the doubt
ment score, the histogram in Figure 49.5 is skewed
happen to be the same as those used in the original
to the left and shows a fat right-hand tail, although
analysis.
both of these non-central tendencies are much more
Weights obtained under the benefit of the doubt
pronounced for rank than for score changes. Again,
can be interpreted in two ways. First, they could be
due to substantial clustering in scores, one country
revealed social preference weights, at least for those
changes 16 ranks, and a number of countries make
social goals to which the health system contributes.
rank changes greater than 5. Nevertheless, all rank Observed outcomes in terms of health level, health
changes are within the rank uncertainty bounds inequality, responsiveness level, responsiveness
reported in the original analysis (1). inequality, and fair financing could be interpreted
Comparing the weights obtained under the benefit as the result of a political and social maximization
of the doubt to the original weights, interesting pat- process, subject to a budget constraint which takes
terns emerge (Table 49.1). Most countries do better into account the relative weights that society places
under the benefit of the doubt when the weights for on those components. The linear program specified
responsiveness distribution and fair finance are at or above simply identifies those implicit weights, assum-
near the upper bounds of their intervals, and when ing of course a linear social welfare function. Obvi-
those for responsiveness level and health level are close ously, this interpretation ignores uncertainty, and it
to their lower bounds. This implies that most countries might be true that the actual observed outcomes do
do relatively better on the first two indicators, and not fully reflect what social actors intended. The sec-
relatively worse on the second two. Interestingly, the ond possible interpretation is that they represent the
lower bound for responsiveness is almost identical to values of the key decision-makers.
the value used in The World Health Report 2000. On However, the most important point is that the use
the other hand, the sample mean for health inequality of variable weights across countries does not change
under the benefit of the doubt is close to the middle substantively the pattern of either overall attainment
of its range, but lower than the value assigned in the scores or corresponding ranks. Moreover, the varia-
original calculations. tion we find by allowing for intercountry differences
Measuring Health System Attainment 681

in valuation of the individual attainment goals is well (3) Navarro V. Assessment of The World Health Report
within the reported uncertainty intervals (1) calculated 2000. The Lancet, 2000, 356:1598–1601.
to reflect possible errors in the measurement of goal (4) Williams A. Science or marketing at WHO? A com-
attainment. This conclusion is at odds with some of mentary on ‘World Health 2000’. Health Economics,
the assertions made in criticisms of The World Health 2001, 10(2):93–100.
Report 2000 (3;4;9;12).
(5) Van der SP, Unger JP. Improving the performance of
However, it also suggests that it may not be nec-
health systems: The World Health Report as go-between
essary to use fixed weights in future rounds of per-
for scientific evidence and ideological discourse. Tropical
formance assessment. It might be effective to report Medicine and International Health, 2000, 5:675–677.
overall attainment using average weights derived from
the country surveys, as well as benefit of the doubt (6) Ginter E. World Health Report 2000: the position of
scores based on the upper and lower bounds for the Slovak Republic. Bratislavske Lekarske Listy (Bratislava
weights that emerge from the country surveys. Medical Journal), 2000, 101:477–483.
(7) Houweling TA, Kunst AE, Mackenbach JP. World
Health Report 2000: inequality index and socioeco-
Acknowledgements nomic inequalities in mortality. The Lancet, 2001, 357:
We are indebted to William Greene, Philip Grossman, 1671–1672.
Kaliappa Kalirajan, C.A. Knox Lovell, Subal Kumbha- (8) Tangcharoensathien V, Lertiendumrong J. Health-system
kar, Christopher Tong, Marijn Verhoeven, and Paul performance. The Lancet, 2000, 356 (Suppl.):s31.
Wilson for the discussions of the methods which led (9) Almeida C, et al. Methodological concerns and recom-
to the idea for this analysis and for the term “benefit mendations on policy consequences of the World Health
of the doubt.” Report 2000. The Lancet, 2001, 357:1692–1697.
(10) Williams A. Science or marketing at WHO? Rejoinder from
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