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A BLOODY BATTLE: THE LIFE OF A PERSON WITH SPECIAL NEEDS DEALING WITH
MENSTRUATION
Nisperos, Justin L.
Borja, Roselyn A.
.
BASIC EDUCATION SCHOOLS
URBIZTONDO, SAN JUAN, LA UNION
A BLOODY BATTLE: THE LIFE OF A PERSON WITH SPECIAL NEEDS DEALING WITH
MENSTRUATION
Abstract:
The menstrual cycle is a hormonal monthly bleeding that prepares women for a possible
pregnancy every month. Women, with or without a disability, are encountering this at the
same time but differ in their problems & experiences and should be given equal access to
Menstrual Hygiene. Consequently, the researchers attained to answer the following
queries. 1. What are the challenges being faced by the Persons with Special Needs on
menstruation. 2. How do the Persons with Special Needs practice menstrual health
management. 3. How do the Persons with Special Needs cope with their menstrual
problems. Descriptive research design was utilized in the study, the parents of the
menstruating girls with special needs in San Fernando City, La Union were the
participants, the instrument that was utilized is semi- structured interview to further ask
follow-up questions, convenience sampling was used in selecting the participants and
the data gathered was analyzed through thematization where the responses of the
participants were categorized into relevant themes. In conclusion, the challenges that the
girls with disabilities experience are rejection of sanitary napkin, fear of blood, poor
communication, inappropriate behavior and mood changes and physical discomfort. In
managing their menstrual health, the researchers identified two ways. First, the use of
sanitary pads which needs guidance by their mothers or caretakers. And second, through
professional assistance, they gain more knowledge in assisting their daughters. Thus, In
coping on their menstrual problems, they have various strategies such as through
emotional support and training. For the emotional support, the parents/ caretakers
always to understand them and make them calm. And for the trainings, the parents/
caretakers teach them on how to manage menstruation in their own simple ways.
The participants were asked if they The participants were asked what
were able to have a talk with their are the challenges do their daughters
daughter before they had their experience during menstruation and the
menstruation. One of the major common problem is having inappropriate
challenges for the mothers and their behavior and mood changes. The pain
d a u g h te rs i s h a v i n g d i ff i c u l t y i n that the girls with disabilities experience
communication due to their disability. has a significant impact on female’s
Some find it hard to express what they mood. (Ditchfield & Burns, 2004). Similar
need to say and some do not know what to the study of ,Quint, Elkins, and Kope
is happening around them. Thapa and (1999), inappropriate behavior and mood
Sivakami (2017), stated that having changes are the common issue for them.
difficulty in communicating with the girls Also, Chou et al. (2008) found that most of
with disabilities is a challenging one. them experience mood swings during Pre-
Some mothers did not even attempt to Menstrual Syndrome and during
communicate with their daughters menstruation.
because they know that they have
limitations in communication abilities.
“She is irritated and most of the time
her moods changes.”
“You can't talk to her. Not every
special child will be able to talk. Just “She is easily irritated. If she got her
like my child you can't talk to her, she period, she just want to lay down all
says what she knows. But if you talk day. If necessary she does not want
to her, she can't answer you the way to take a bath, but I explain to her the
she want.” possibilities if she will not”
A.4 THE GIRL WHO CRIED B. COMPLETE INDEPENDENCE
CRAMPS
The researchers asked the
The participants also reported that participants on how do their daughters
their daughters experience physical handle their menstrual hygiene. It was
discomfort such as dysmenorrhea, then revealed that some can fully handle
stomachaches and headaches which they themselves during menstruation. This is
perceive as a normal event for them. The because of their continuous training given
mothers shared the menstrual problem by their mothers/ caretakers. Thapa and
their daughter experience and it was Sivakami, (2017) stated that some of the
revealed that the common problem is girls with disabilities were independent in
having abdominal cramps/discomfort. te r m s o f t h e i r m e n s t r u a l h ea l t h
(Thapa and Sivakami, 2017). Similar to the management and one of the reasons for it
study of Nurkhairulnisa (2018). 47.7% of is continuous training and discipline by
the mothers reported that their daughters their mothers or caretakers. Similar to the
experience discomfort and 50.5% having study of Joshi and Joshi (2015), the girls
dysmennorhea. with disabilities are likely to be
independent in taking care of their
hygiene.
“Most of the time she experiences
dysmenorrhea but as she grew up
she becomes used to it.” “Now that she's 18 years old she's
more mature in handling
“She experiences dysmenorrhea if menstruation. You don't need to tell
she has menstruation” her to do this thing like that. I'm very
thankful because at her early age, I
“During menstruation, she disciplined her in handling her
sometimes do not feel well, she menstruation.”
experiences headaches and
stomachaches that’s why we need to “In managing her problems, she has
be attentive. There was this time that been independent ever since even
she was hospitalized because of her with her disability.”
menstruation.” “Since she is independent in taking
care of herself, I just advise her to
3.2 AUTONOMY VERSUS SHAME maintain her hygiene especially
AND DOUBT during menstruation.”
B.1 COMPLETE DEPENDENCE 3 . 3 M E N ST R U A L M A N A G E M E N T
APPROACHES
The researchers asked the
participants on how do their daughters The participants were asked what
handle their menstrual hygiene. It was are the feminine products their daughters
then revealed that some cannot do it by use in maintaining their hygiene during
themselves due to their limited actions. menstruation. In a study conducted by
They still rely on their mothers/ caretakers Wilson (1994) the mothers stated that they
when menstrual problems arise. Thapa were responsible for the changing of pads
and Sivakami, (2017) stated some of the and 37.5 % were partly independent and
girls with disabilities still rely on their 8.3& were completely independent. Also,
mothers/ caretakers in managing their Chou et al. (2008) found out that the
menstrual hygiene. Some still encounters adolescents require assistance in
difficulty in changing sanitary napkins changing their pads for their menstrual
when full and in taking a bath. Similar to health management.
the study by Nurkhairulnisa (2018), 41% of
the adolescents ask for assistance from
t h e m a n d 1 8 % w e r e co m p l e t e l y C. USE OF SANITARY NAPKIN
dependent on them.
The common feminine product the
“To maintain her hygiene, I check if girls with disabilities use is sanitary
her napkin is already full, then i will napkins. It was observed that their
bath her with a warm water. mothers were not picky in the products to
Sometimes, it is difficult to take her to be used as long as it will respond to their
our bathroom so i made a way for it. needs and also they consulted their
For example, if she is on a chair, i will daughter first on how to properly use it.
but a ‘palanggana” on the floor with
a warm water then she will already “She only use sanitary napkins.”
understand it. it is a matter of
training for her to be aware on my “For the feminine products, any will
actions.” do because I am not really particular
in the products. if her menstrual flow
“She cannot do it by herself. She is is heavy, then i will use the napkin for
already 28 but I am still the one heavy flow. Even if the product is at a
responsible for taking her to bath. low price, the important thing is it
Maybe she can if she is trained but can respond well to her needs.”
no, she cannot.”
“On her first day of having a period, I
gave her sanitary napkin. I explain
everything to her. I explain on how to
use it. She needs to change every 4 helping their daughters are to make them
hours at least and she need to wash feel calm and understand their needs and
it with warm water. I let her use pads situation. One of the coping strategies of
until now.” the girls with disabilities is to ask comfort
and support from their parents. This can
lead to greater success for them to handle
C.1 PROFESSIONAL ASSISTANCE menstruation. (Burnet Institute and Family
Planning Victoria , 2016)
It was revealed that some of the
mothers consulted for a professional’s “When she has period she always
advice in order to assist their daughters goes to her papa. She will ask her
well in their menstrual hygiene. In a 2018 papa to sing a song for her
survey conducted by Nurkhairulnisa, et al. because it make her calm.”
It was revealed that 21% of the mothers/
guardians prefer to have consultation with “We just talk to her. We make her
a doctor to help manage their daughter’s calm. You need to understand her of
menstrual hygiene. course, you can't please her because
she can't tell if what's bothering her
“She has feminine wash but I don’t not unless through sign language.”
use it on her most of time because it
is the advised by her doctor. Her “It is needed for you have a great
doctor wants mild soap like dove.” understanding. Because you can't
nag her. If her period comes, we are
“I don't allow her to use feminine doing everything not to get mad
wash because her doctor advised me because her attitude is not normal
not to. If needed, it's warm water when she have her monthly period.”
only.”
D.1 DEALING WITH MENS FOR
SURViVAL
3. 4 PUSH THROUGH THE PAIN
The mothers shared that for their
D. EMOTIONAL SUPPORT daughters to cope with their menstrual
problems, they give them consistent
During menstruation, when training and awareness on the proper
difficulties arise to the girls with menstrual management. This includes
disabilities it was observed that their how to put on sanitary napkins, when to
parents give unwavering support and change it, and where to dispose which
guidance to them as their strategy in resulted for the girls to attain discipline.
coping to their problems. Most of the The girls with disabilities who are given
participants revealed that their way of training or instructions for their menstrual
health management can slowly become the use of sanitary pad which needs
independent because their ability to guidance of their mothers or caretakers.
manage menstruation increases. (Kyrkou, And second, through professional
2005; Thapa and Sivakami, 2017) assistance, they gain more knowledge in
assisting the.
In coping on their menstrual
“I also educate and discipline her on problems, they have various strategies
menstruation by teaching her the such as through emotional support and
right things to do and the wrong training. For the emotional support, the
ones to avoid. Lastly, we give her parents/ caretakers always to understand
attention especially on her needs and them and make them calm. And for the
train her.” trainings, the parents/caretakers teach
them on how to manage menstruation in
“I practiced her to change her pad their own simple ways.
every 4 hours, and every time she
change her pad she must wash it Furthermore, it was revealed that
with warm water. All used pads will some of the girls with special needs are
be placed in the trash bin. A simple fully independent in managing their
rules like that. I made this rule, this menstrual health and problems due to the
was posted in her bulletin board in continuous discipline by their mothers/
her room. Every month, I let her sign caretakers. While some are fully
in the “contract", just to make sure dependent which requires for their
that she's doing what is written in her mothers/caretakers to assist them at all
bulletin board.” times.
RECOMMENDATION
4. CONCLUSION
This study highlighted the
From the results gathered and
importance of addressing the needs and
supporting elements from the study, the
difficulties encountered by the girls with
researchers found out that they the girls
disabilities during menstruation and
with special needs have various menstrual
their mothers/caretakers. With these
problems. These are the rejection of
findings, the researchers came up with a
sanitary napkin, fear of blood, poor
project entitled “The Period Power”
communication, inappropriate behavior
which targets the SDG # 3: Good Health
and mood changes and physical
and Well Being to ensure healthy lives
discomfort.
and promote well-being for all at all ages
specifically on the Persons with Special
In managing their menstrual health,
Needs.
the researchers identified two ways, first,
This project includes:
Yaacob, N., Nasir, N. M., Jalil, S. N., Ahmad, Quint, E. H., Breech, L., Bacon, J., &
R., Rahim, N. A., Yusof, A. N., & Ghani, Schwandt, A. (2006). Management
N. A. 2012). Parents or Caregivers quandary: 79 Menstrual issues in a
Perception on Menstrual Care in
teenager with developmental
Individuals with Down Syndrome.
Procedia - Social and Behavioral delay. Journal of Pediatric and
Sciences, 36, 128-136. doi:10.1016/ Adolescent Gynecology, 19, 53–55.
j.sbspro.2012.03.015
INTERVIEW
Before proceeding to the interview, the participants requested for their personal
information to be kept as confidential.
RESPONDENT 1
1. What are the challenges being faced by the Persons with Special Needs on
menstruation?
“No because before I do not know how to explain menstruation to her. My mindset
before was even if I explain it to her I know that she can't fully understand.”
b. How did you communicate with your daughter to manage her period?
“When she got her first period she cried that time. She was shocked because there is a
blood in her underwear. So I explained to her about menstruation. That it is normal to
experience it because she is a girl. I talked to her, I did everything just to make her
understand about menstruation.”
c. How did they react when they got their first period?
“As what I have said, she cried that time asking me what is happening. So I explained
every detail to her.“
d. What are the problems they are facing when they have their menstruation?
“She is easily irritated. If she got her period, she just wants to lay down all day. If
necessary she does not want to take a bath, but I explained to her the possibilities if
she will not wash her reproductive organ. I told her that there might be worms inside if
she doesn't wash it.”
b. What are the media they use in order to manage the effects of menstruation?
c. “On her first day of having a period, I gave her sanitary napkin. I explained
everything to her. I explained on how to use it. She needs to change every 4 hours
at least and she need to wash it with warm water. I let her use pads until now.”
b. What are the hygienic practices that are observed during menstruation?
“I don't let her use feminine wash because her doctor told me not to let her use
hygienic products like feminine wash. “
“I practiced her to change her pad every 4 hours, and every time she change her pad
she must wash it with warm water. All used pads will be placed in the trash bin. Simple
rules like that. I made this rule, this was posted in her bulletin board in her room. Every
month, I let her sign in the ‘contract’ I made just to make sure that she's doing what is
written in her bulletin board.”
3. How do the Persons with Special Needs cope with their menstrual
problems?
a. What are your strategies to cope with your daughter menstrual problems?
“When she started to ignore every person in our house, I asked her what's the problem.
I asked her if she wants something. I talked to her about girly stuff sometimes her Dad
will buy something for her just to lighten her mood. It's not easy to lighten her mood
because she's really hard to approach when she have period. Now that she's 18 years
old she's more mature in handling menstruation. You don't need to tell her to do this
thing like that. I'm very thankful because at her early age I disciplined her in handling
her menstruation.”
RESPONDENT 2
1. What are the challenges being faced by the Persons with Special Needs on
menstruation?
a. Have you oriented your child about menstruation?
“Before she had her menstruation, she already knew about it. I just remind her to not
do household chores like ironing and laundry.”
b. How did she react when they got their first period?
“When she first had her menstruation, it is okay for her. She always maintains her
hygiene compared to other girls.”
3. How do the Persons with Special Needs cope with their menstrual
problems?
a. What do you do in order for them to cope with their menstrual problems?
“She manages her menstrual problems independently. She knows what to do already. I
just advise her to maintain her hygiene especially during menstruation.”
RESPONDENT 3
1. What are the challenges being faced by the Persons with Special Needs on
menstruation?
“When she got her first period, she doesn’t know about it yet then i explained to her
that when a girl reached its puberty stage, she will have menstruation.”
b. How did she react when they got their first period?
“At first, she cannot accept it, she does not want to wear napkin. On her first time, she
threw the napkin on our garage. Then i explained to her that if she will throw it, she will
have a blood leak. After a while, she slowly accepts the changes and she understand it
now. Every first week of the month is her period, we already marked it on our calendar.
I always make sure she understands menstruation and of course her caretaker also
since i am a working mother. Our caretaker also needs to be educated on what she
needs to do.”
c. What are the problems they are facing when they have their menstruation?
“During menstruation, she sometimes do not feel well, she experiences headaches and
stomachaches that is why we need to be attentive. There was this time that she was
hospitalized because of her menstruation. That’s why we need to be very sensitive in
taking care of her. I, being her mother, needs to have awareness on menstruation and
to educate them about the right and and wrong during menstruation. She tells us
every time that she have her period since she is the one who knows it.”
“For the feminine products, any product will do because I am not really particular in
the products. if her menstrual flow is heavy, then i will use the napkin for heavy flow.
Even if the product is at a low price, the important thing is it can respond well to her
needs. She cannot do it by herself. She is already 28 now but I am still the one
responsible for taking her to bath. Maybe she can if she is trained but no, she cannot.”
“To maintain her hygiene, I always check if her napkin is already full, then i will bath her
with a warm water. Sometimes, it is difficult to take her to our bathroom so i made a
way for it. For example, if she is on a chair, i will put a ‘palanggana” on the floor with a
warm water then she will already understand it. it is a matter of training for her to be
aware on my actions.”
3. How do the Persons with Special Needs cope with their menstrual
problems?
a. What do you do in order for them to cope with their menstrual problems?
b. “My strategies are I should have awareness on what to do during menstruation and
to have available napkins already. I also remind her to say if her napkin is already
full, she also checks it and tell that it needs to be changed already, her caretaker
must also check it because she is very conscious, once it is full, she will get
uncomfortable and wants it to be immediately changed. I also educate and
discipline her on menstruation by teaching her the right and wrong during
menstruation. Lastly, we give her attention especially on her needs and train her.”
RESPONDENT 4
1. What are the challenges being faced by the Persons with Special Needs on
menstruation?
“I don’t know how to say it. She has been independent ever since even with her
disability, she cannot walk.”
b. How did she react when they got their first period?
“It is the same wth the normal teenage girls who experience menstruation but she
does not experience any problem.”
c. What are the problems they are facing when they have their menstruation?
1. What are the challenges being faced by the Persons with Special Needs on
menstruation?
a. How did you communicate with your daughter to manage her period?
“You can't talk to her. Not every special child will able to talk. Just like my child you
can't talk to her, she says what she knows. But if you talk to her, she can't answer you
the way she want. Her first menstruation us unpredictable but before she had her first
mens she has this bad attitude.”
b. How did they react when they got their first period?
c. What are the problems they are facing when they have their menstruation?
“She is irritated and most of the time her moods changes.”
a. What are the media that they use in order to manage the effects of menstruation?
“She knows she have period. She says ‘sa’ meaning basa (wet) and then ‘ligo’ (bath). I
will put her in the comfort room. She has feminine wash but I don’t use it to her most
of time because it is the advise of her doctor. Her doctor wants mild soap like dove.”
3. How do the Persons with Special Needs cope with their menstrual
problems?
a. What are the strategies to cope with your daughters menstrual problems?
“We just talk to her. We make her calm. You need to understand her ofcourse, you can't
please her because she can't tell if what's bothering her not unless through sign
language. When she have her mens, you just need to take care of her because you
don't know. Her mens is not normal.”
RESPONDENT 6
1. What are the challenges being faced by the Persons with Special Needs on
menstruation?
“She's crying that time. She taught she has wound. She has a mental disorder so it is
normal for her to react that way. She don't know what's happening around her. “
c. What are the problems they are facing when they have their menstruation?
“When she have her period she will cry because she is afraid of blood. Most of the pain
she has dysmenorrhea but as she grows up she is used to it.”
“When she was still young we've tried to make her use sanitary napkin but she's not
comfortable wearing it so she take it off. But after that she we let her use diaper until
now.”
b. What are the hygienic that are observed during menstruation?
“I don't allow her to use feminine wash because her doctor advised me not to. If
needed, it's warm water only.”
3. How do the Persons with Special Needs cope with their menstrual
problems?
a. What are your strategies to cope with your daughters menstrual problems?
“When she have period she always go to her papa. She will ask her papa to sing a song
for her because it make her calm. It is needed for you to have a great understanding
because you can't nag her. If her period comes, we are doing everything not to get mad
because her attitude is not normal when she have her monthly period.”