STEP 2: Synthesis of individual responses

The first step in your synthesis process is to synthesise the raw data you collected from each pa
noise - it will help you move forward with your data in a way that is not overwhelming and cum

You can refer to the Overview document for more details on how to use this guide.

IN THIS COLUMN: The prompts below offers guidance on

how to synthesise the raw data collected in the interviews
into the appropriate lenses (rows), as well as which
questions in the discussion guide to reference when
synthesising individual responses.

Example of data captured:

Reference questions Q1a from the discussion guide here.
What were the key moments that occurred prior to their diagnosis by an HCP? List
the steps out in a numbered sequence to make it easier to visualize on the map.
Patient did not book an appointment or speak to a
medical professional because they did not think
anything was serious.

Take note on who they were interacting with at the time and if it was helpful or not.

Example of data captured:

Reference questions Q1b, 1c, and 1g here. Experiencing mild discomfort in X

Capture whether the there were any physical changes occuring during this time.

If symptoms of the disease were present, capture that as well: was it severe,
moderate, mild? If no symptoms were present, note that down.

Key words to use in your synthesis include: symptoms begin, symptoms returning,
symptoms stabilizing

Did a most positive or negative moment occur here?

Example of data captured:

Reference questions Q1d and 1g here. Slightly negative emotions. Was confused
about what was happening, but skeptical
Take note of which emotions participants selected. that it could be anything too serious.
If you chose to use the seven point scale in your session, capture responses here as
well.

Did a most positive or negative moment occur here?

Reference questions Q1e and 1f here. Example of data captured:
"This is weird, but maybe this was because
of something I ate last night. It will probably
Capture what was going through participants' minds in this phase. go away later."
What questions and uncertainties did the individual have at this stage?
Take note on any valuable resources they used and why it was helpful.

Note: Verbatim quotes are often helpful here.

w data you collected from each participant into key data points and insights. Think about it like separat
that is not overwhelming and cumbersome.

how to use this guide.

PRE-DIAGNOSIS

Participant a Participant b Participant c Participant d

Medical Lens

Physical lens

Emotional lens
Mental lens
nk about it like separating the signal from the

*If you need to add more

participants, simply right click the
top of the column and select
"insert 1 right"

Participant e Participant f
STEP 3: Synthesis of this phase of the patient experience
The next step in the synthesis process is to help you synthesize data ACROSS
participants in order to get a coherent picture of the general patient experience in a
given phase. Use the instrcutions below to capture data and insights in this column.

Across participants, what parts of the experience seem to be consistent for most participants? What parts
of the experience seem to diverge? You can also look for the top 3 themes from each phase (a theme may
be a point of commonality, or a point of divergence).

For the Physical and Emotional lenses, the synthesized data will become data points on the map, with their
placement based on their respective scales.These data points will inform how the curved lines rise and fall
across the map, representing highs and lows of the experience.

Medical Lens

Physical lens

Emotional lens
Mental lens
<Copy this content into cell B4 of the
Summary Sheet

<Copy this content into cell B5 of the

Summary Sheet

<Copy this content into cell B6 of the

Summary Sheet
<Copy this content into cell B7 of the
Summary Sheet
STEP 2: Synthesis of individual responses
The first step in your synthesis process is to synthesise the raw data you collected from each pa
noise - it will help you move forward with your data in a way that is not overwhelming and cum

IN THIS COLUMN: The prompts below offers guidance on

how to synthesise the raw data collected in the interviews
into the appropriate lenses (rows), as well as which
questions in the discussion guide to reference when
synthesising individual responses.

Example of data captured:

Reference questions Q2a and 2b from the discussion guide here.
Take note on who they were interacting with at the time (was it helpful?), key
moments in the experience, and any key decisions that were made. Also helpful to
note is conversations with their HCPs, and if any diagnostics were done. List these
steps out in a numbered sequence to make it easier to visualize on the map.
Finally met with GP after his wife encouraged him
to do so. Was sent for a MRI. After the imaging
came back, the GP told him to come in for an
appointment. GP gave diagnosis, was sent to a
specialist to discuss next steps.

Example of data captured:

Reference questions Q2c, and 2i here. Moderate symptoms built up over time (e.g.
fatigue, weight loss, swollen lymph nodes,
Capture whether the there were any physical changes occuring during this time. night sweats, extreme fatigue, sleeping
challenges).
If symptoms of the disease were present, capture that as well: was it severe,
moderate, mild? If no symptoms were present, note that down.

Key words to use in your synthesis include: symptoms begin, symptoms returning,
symptoms stabilizing

Did a most positive or negative moment occur here?

Reference questions Q2d, 2e, and 2i here. Example of data captured:

Slightly negative in the beginning, and
Take note of which emotions participants select and how they described their became more negative as it progressed.
- Worried when the GP requested imaging
emotional journey. - Anxious awaiting results from imaging
- Depressed when the GP told him and his wife the
If you chose to use the seven point scale in your session, capture responses here as news
- Fear upon referral to specialist
well.

Did a most positive or negative moment occur here?

Reference questions Q2d, 2e, and 2i here. Example of data captured:
Slightly negative in the beginning, and
Take note of which emotions participants select and how they described their became more negative as it progressed.
- Worried when the GP requested imaging
emotional journey. - Anxious awaiting results from imaging
- Depressed when the GP told him and his wife the
If you chose to use the seven point scale in your session, capture responses here as news
- Fear upon referral to specialist
well.

Did a most positive or negative moment occur here?

Reference questions Q2f, 2g, and 2h here.

Example of data captured:
"I can't believe it. Why me?"
Capture what was going through participants' minds in this phase. What questions "Am I going to die? How long have I got?"
and uncertainties did the individual have at this stage? What did they know about
the disease at that time?

Take note on what resources they were provided and if it was helpful or not.

Note: Verbatim quotes are often helpful here.

w data you collected from each participant into key data points and insights. Think about it like separat
that is not overwhelming and cumbersome.

DIAGNOSIS

Participant a Participant b Participant c Participant d

Medical Lens

Physical lens

Emotional lens
Mental lens
nk about it like separating the signal from the

*If you need to add more

participants, simply right click the
top of the column and select
"insert 1 right"

Participant e Participant f
STEP 3: Synthesis of this phase of the patient experience
The next step in the synthesis process is to help you synthesize data ACROSS
participants in order to get a coherent picture of the general patient experience in a
given phase. Use the instrcutions below to capture data and insights in this column.

Across participants, what parts of the experience seem to be consistent for most participants? What parts
of the experience seem to diverge? You can also look for the top 3 themes from each phase (a theme may
be a point of commonality, or a point of divergence).

For the Physical and Emotional lenses, the synthesized data will become data points on the map, with their
placement based on their respective scales.These data points will inform how the curved lines rise and fall
across the map, representing highs and lows of the experience.

Medical Lens

Physical lens

Emotional lens
Mental lens
<Copy this content into cell C4 of the
Summary Sheet

<Copy this content into cell C5 of the

Summary Sheet

<Copy this content into cell C6 of the

Summary Sheet
<Copy this content into cell C6 of the
Summary Sheet

<Copy this content into cell C7 of the

Summary Sheet
]
STEP 2: Synthesis of individual responses
The first step in your synthesis process is to synthesise the raw data you collected from each pa
noise - it will help you move forward with your data in a way that is not overwhelming and cum

IN THIS COLUMN: The prompts below offers guidance on

how to synthesise the raw data collected in the interviews
into the appropriate lenses (rows), as well as which
questions in the discussion guide to reference when
synthesising individual responses.

Reference questions Q3a and 3b from the discussion guide here. Example of data captured:
Met with surgeon to talk about the
procedure. Heard a lot of new words but
How did they decide on the treatment? How did they arrive at the decision? How didn't ask for any clarification.
long were they on the treatment? List these steps out in a numbered sequence to
make it easier to visualize on the map.

Take note on who they were interacting with at the time and if it was helpful or not

Example of data captured:

Severe symptoms - felt a lot of pain in the
Reference questions Q3c and Q3i here. abdomen.

Capture whether the there were any physical changes occuring during this time.

If symptoms of the disease were present, capture that as well: was it severe,
moderate, mild? If no symptoms were present, note that down.

Key words to use in your synthesis include: symptoms begin, symptoms returning,
symptoms stabilizing

Did a most positive or negative moment occur here?

Reference questions Q3d, 3e, and 3i here.

Take note of which emotions participants select. How did they describe the Example of data captured:
emotional journey they went through? Slightly negative emotions.
Anxious and worried about how much time
If you chose to use the seven point scale in your session, capture responses here as recovery will take and whether they'll be in
pain afterwards, but hopeful that the surgery
well. will fix the problem.

Did a most positive or negative moment occur here?

Take note of which emotions participants select. How did they describe the
emotional journey they went through?

If you chose to use the seven point scale in your session, capture responses here as
well.

Did a most positive or negative moment occur here?

Reference questions Q3f, 3g, and 3h here. Example of data captured:

"I don't know what's happening but the
Capture what was going through participants' minds in this phase, and what they doctor will fix me."
expected treatment would do for them. What questions and uncertainties did the
individual have at this stage?

Take note on any valuable resources they used and why it was helpful

Note: Verbatim quotes are often helpful here.

w data you collected from each participant into key data points and insights. Think about it like separat
that is not overwhelming and cumbersome.

FIRST TREATMENT

Participant a Participant b Participant c Participant d

Medical Lens

Physical lens

Emotional lens
Mental lens
nk about it like separating the signal from the

ENT

*If you need to add more participants,

simply right click the top of the column
and select "insert 1 right"

Participant e Participant f*
STEP 3: Synthesis of this phase of the patient experience
The next step in the synthesis process is to help you synthesize data ACROSS
participants in order to get a coherent picture of the general patient experience in a
given phase. Use the instrcutions below to capture data and insights in this column.

Across participants, what parts of the experience seem to be consistent for most participants? What parts of the
experience seem to diverge? You can also look for the top 3 themes from each phase (a theme may be a point of
commonality, or a point of divergence).

For the Physical and Emotional lenses, the synthesized data will become data points on the map, with their
placement based on their respective scales.These data points will inform how the curved lines rise and fall across the
map, representing highs and lows of the experience.

Medical Lens

Physical lens

Emotional lens
Mental lens
<Copy this content into cell D4 of
the Summary Sheet

<Copy this content into cell D5 of

the Summary Sheet

<Copy this content into cell D6 of

the Summary Sheet
<Copy this content into cell D6 of
the Summary Sheet

<Copy this content into cell D7 of

the Summary Sheet
STEP 2: Synthesis of individual responses
The first step in your synthesis process is to synthesise the raw data you collected from each pa
noise - it will help you move forward with your data in a way that is not overwhelming and cum

IN THIS COLUMN: The prompts below offers guidance on

how to synthesise the raw data collected in the interviews
into the appropriate lenses (rows), as well as which
questions in the discussion guide to reference when
synthesising individual responses.

Reference questions Q4a and 4b from the discussion guide here.

Take note of key moments and who they were interacting with at the time and if it Example of data captured:
was helpful or not. List the steps out in a numbered sequence to make it easier to Was bed-ridden and can only eat limited
visualize on the map. things. Nurse called to check up on pain.

Reference questions Q4c and 4g here.

Capture whether the there were any physical changes occuring during this time. Example of data captured:
No symptoms but tired and exhausted and
slightly in pain from the operation.
If symptoms of the disease were present, capture that as well: was it severe,
moderate, mild? If no symptoms were present, note that down.

Key words to use in your synthesis include: symptoms begin, symptoms returning,
symptoms stabilizing

Did a most positive or negative moment occur here?

Reference questions Q4d and 4g here.

Example of data captured:
(Slightly positive emotions)
Take note of which emotions participants select and how they described their Relieved that operation went okay.
emotional journey.

If you chose to use the seven point scale in your session, capture responses here as
well.

Did a most positive or negative moment occur here?

Reference questions Q4e and 4f here. Example of data captured:

"The worst is over, I can get through this."
Capture what was going through participants' minds in this phase. What questions
and uncertainties did the individual have at this stage?

Take note on any valuable resources they used and why it was helpful

Note: Verbatim quotes are often helpful here.

w data you collected from each participant into key data points and insights. Think about it like separat
that is not overwhelming and cumbersome.

RECOVERY/REMISSION/ONGOING TREAT

Participant a Participant b Participant c Participant d

Medical Lens

Physical lens

Emotional lens

Mental lens
nk about it like separating the signal from the

OING TREATMENT

*If you need to add more

participants, simply right click the
top of the column and select
"insert 1 right"

Participant e Participant f
STEP 3: Synthesis of this phase of the patient experience
The next step in the synthesis process is to help you synthesize data ACROSS
participants in order to get a coherent picture of the general patient experience in a
given phase. Use the instrcutions below to capture data and insights in this column.

Across participants, what parts of the experience seem to be consistent for most participants? What parts of the
experience seem to diverge? You can also look for the top 3 themes from each phase (a theme may be a point of
commonality, or a point of divergence).

For the Physical and Emotional lenses, the synthesized data will become data points on the map, with their
placement based on their respective scales.These data points will inform how the curved lines rise and fall across the
map, representing highs and lows of the experience.

Medical Lens

Physical lens

Emotional lens

Mental lens
<Copy this content into cell E4
of the Summary Sheet

<Copy this content into cell E5

of the Summary Sheet

<Copy this content into cell E6

of the Summary Sheet

<Copy this content into cell E7

of the Summary Sheet
STEP 2: Synthesis of individual responses
The first step in your synthesis process is to synthesise the raw data you collected from each pa
the signal from the noise - it will help you move forward with your data in a way that is not ove

IN THIS COLUMN: The prompts below offers guidance on

how to synthesise the raw data collected in the interviews
into the appropriate lenses (rows), as well as which
questions in the discussion guide to reference when
synthesising individual responses.

Participant a
Medical Lens

Reference questions from the medical lens section in discussion guide here.

Take note on who they were interacting with at the time and if it was helpful or not

List the steps out in a numbered sequence to make it easier to visualize on the map.
Reference questions from the physical lens and big moments sections in the
discussion guide here.
Physical lens
Capture whether the there were any physical changes occuring during this time.

If symptoms of the disease were present, capture that as well: was it severe,
moderate, mild? If no symptoms were present, note that down.

Key words to use in your synthesis include: symptoms begin, symptoms returning,
symptoms stabilizing

Did a most positive or negative moment occur here?

Emotional lens
Reference questions from the emotional lens and big moments sections in the
discussion guide here.

Take note of which emotions participants select and how they described their
emotional journey.
If you chose to use the seven point scale in your session, capture responses here as
well.

Did a most positive or negative moment occur here?

Mental lens
Reference questions from the mental lens section in the discussion guide here

Capture what was going through participants' minds in this phase. What questions
and uncertainties did the individual have at this stage?

Take note on any valuable resources they used and why it was helpful
Reference questions from the mental lens section in the discussion guide here

Capture what was going through participants' minds in this phase. What questions
and uncertainties did the individual have at this stage?

Take note on any valuable resources they used and why it was helpful

Note: Verbatim quotes are often helpful here.

w data you collected from each participant into key data points and insights. Think about it like separat
your data in a way that is not overwhelming and cumbersome.

[new phase]

Participant b Participant c Participant d Participant e

hink about it like separating

*If you need to add more

participants, simply right click the
top of the column and select
"insert 1 right"

Participant f
STEP 3: Synthesis of this phase of the patient experience
The next step in the synthesis process is to help you synthesize data ACROSS participants in or
a coherent picture of the general patient experience in a given phase. Use the instrcutions below
capture data and insights in this column.

Across participants, what parts of the experience seem to be consistent for most participants? What parts of the ex
seem to diverge? You can also look for the top 3 themes from each phase (a theme may be a point of commonality,
divergence).

For the Physical and Emotional lenses, the synthesized data will become data points on the map, with their placem
their respective scales.These data points will inform how the curved lines rise and fall across the map, representing
lows of the experience.

Medical Lens

Physical lens

Emotional lens

Mental lens
<Copy this content into the
appropriate cell of the Summary
Sheet

<Copy this content into the

appropriate cell of the Summary
Sheet

<Copy this content into the

appropriate cell of the Summary
Sheet

<Copy this content into cell (x)7

of the Summary Sheet
The map before the map
After you have copied over the appropriate data from the previous sheets (phases) into their respecti

For example: Under "Diagnosis" you may notice that strong negative emotions were commonly felt

PRE-DIAGNOSIS

MEDICAL LENS

PHYSICAL LENS

EMOTIONAL LENS
MENTAL LENS
sheets (phases) into their respective cells below, take a look at each phase (columns) with a critical eye and m

ive emotions were commonly felt. Does that align with what you've captured in the other lenses? Can you see

DIAGNOSIS
at each phase (columns) with a critical eye and make sure that all four lenses supports each other from a storyt

you've captured in the other lenses? Can you see what pain points are causing this emotion?

FIRST TREATMENT
all four lenses supports each other from a storytelling perspective.

ints are causing this emotion?

RECOVERY/REMISSION/ONGOING TREATMENT
If there are additional phases, you can
add the columns accordingly