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Social media and postsecondary student
adoption of mental health labels:
protocol for a scoping review
Ethan Dylan Alexander ‍ ‍,1 Van-­Han-­Alex Chung,1 Alexandra Yacovelli,1
Ivan Sarmiento ‍ ‍,1,2 Neil Andersson1,3

To cite: Alexander ED, Chung V-­ ABSTRACT


H-A­ , Yacovelli A, et al. Social Introduction Many postsecondary students use social STRENGTHS AND LIMITATIONS OF THIS STUDY
media and postsecondary media at an age when mental health issues often arise ⇒ Mental health labelling is not well defined and re-
student adoption of mental quires a broad search strategy including identity,
for the first time. On social media, students describe their
health labels: protocol for a stigma and self-­disclosures.
mental states or social interactions using psychiatric
scoping review. BMJ Open
language. This is a process of mental health labelling ⇒ Including theses allows for insights and viewpoints
2024;14:e078193. doi:10.1136/
bmjopen-2023-078193 as opposed to receiving a formal diagnosis from a from postsecondary student authors.
psychiatrist. Despite substantial literature on psychiatric ⇒ Limited to English papers, theses and dissertations.
► Prepublication history ⇒ The heterogeneity of the literature limits inferences
labelling effects such as stigma, little research has
and additional supplemental about the effect of labelling on health outcomes,
addressed the mechanisms and effects of labelling
material for this paper are although it does allow general theories on mecha-
through social media. Our objective is to summarise the
available online. To view these
existing evidence to address this gap. nisms of action.
files, please visit the journal
online (https://doi.org/10.1136/​ Methods and analysis This review includes articles
bmjopen-2023-078193). in English published since 1995 on how postsecondary
students interact with mental health labels in their use time.2 Social media can be a mental health
Received 26 July 2023 of social media. We will consider empirical studies and resource for students because it is easy to
Accepted 15 January 2024 theses. The search strategy includes SCOPUS, PubMed, use, free and makes much information avail-
OVID MEDLINE (to access APA PsycINFO), Web of Science able, although without clear indications of
and ProQuest Global Dissertations and Theses. This scientific validity.3 Roughly one-­third of US
scoping review follows the Preferred Reporting Items for postsecondary students reported searching
Systematic Reviews and Meta-­Analyses extensions for for mental health information online at least
protocols and Scoping Reviews guidelines. The artificial
once.3
intelligence application, Connected Papers, will assist
in identifying additional references. The outcomes of
We do not yet fully understand the impact
interest are labelling by self or others and changes in of unlimited access to mental health infor-
self-­concept and presentation associated with these mation.4 Existing research has highlighted
labels. Two researchers will independently identify the activities, motivations and communication
included studies and extract data, solving disagreements partners as three major dimensions that
© Author(s) (or their with a third opinion. We will produce tables and narrative affect well-­being. Despite this, few researchers
employer(s)) 2024. Re-­use
descriptions of the operationalisation and measurement have considered labelling processes on social
permitted under CC BY-­NC. No
commercial re-­use. See rights methods of labelling and social media use, reported effects media.5 While some users can find health
and permissions. Published by and uses of labelling, and explanatory mechanisms for the information that facilitates seeking treat-
BMJ. adoption of labels. ment or social support, others can experi-
1
CIET-­PRAM, Department Ethics and dissemination This literature review does not
ence cyberchondria, using the internet to
of Family Medicine, McGill require ethics approval. The researchers will present their
University, Montreal, Quebec, findings for publication in an open-­access peer-­reviewed
create cycles of increasing concern about
Canada journal and at student/scientific conferences. Potential health6 or join social spaces that see psychi-
2
GESTS, Escuela de Medicina knowledge users include university students, social media atric illness such as anorexia as a way of life.7 8
y Ciencias de la Salud, users, researchers, mental health professionals and on-­ There are strong concerns about the overin-
Universidad del Rosario, Bogota, campus mental health services. terpretation of mental illness as a result of
Cundinamarca, Colombia
3
Centro de Investigación de
heightened cultural awareness and fears that
Enfermedades Tropicales (CIET), illness is being encouraged.9 Lindholm and
Universidad Autonoma de INTRODUCTION Wickström explored how young people use
Guerrero, Acapulco, Guerrero, The rising prevalence of mental health psychiatric labels such as anxiety and depres-
Mexico problems among postsecondary students sion when discussing their mental well-­being
Correspondence to is a global concern.1 Many postsecondary offline. In their everyday use of these labels,
Ethan Dylan Alexander; students use social media at an age when youth devalue and separate pathological
​ethan.​alexander@m
​ ail.​mcgill.c​ a mental health issues often arise for the first connotations from new cultural ones. This

Alexander ED, et al. BMJ Open 2024;14:e078193. doi:10.1136/bmjopen-2023-078193 1


Open access

BMJ Open: first published as 10.1136/bmjopen-2023-078193 on 13 February 2024. Downloaded from http://bmjopen.bmj.com/ on February 15, 2024 by guest. Protected by copyright.
has led to the application of these labels to deal with the media. Existing literature reviews have covered the ability
ups and downs of life.8 of artificial intelligence (AI) to detect depression and
Algorithms are crucial in determining what users see label users,21 ways that health professionals can deliver
on social media by combining their interests and engage- interventions through TikTok using dialogic loops22 and
ment patterns.10 The mood of users can affect their avoiding ‘judgement or labelling’ when seeking mental
engagement behaviour. When feeling down, individuals health help online.23 This research will contribute to
may spend more time viewing sad content, which can existing knowledge by synthesising current information
skew recommendations from the algorithm to suggest about the labelling processes on social media and filling
additional sad content.11 The affective nature of the the gap between formal and informal labelling processes
information presented can prime users to deeply identify as well as how postsecondary students engage with these
with information presented as diagnostic criteria.11 When processes on social media.
Instagram censored posts containing hashtags related to
eating disorders in response to public concerns about
increasing eating disorder (ED) prevalence, users adapted METHODS AND ANALYSIS
the censored words to preserve their community.12 Design and objectives
For this review, we will define mental health labelling This scoping review follows the Preferred Reporting Items
as the categorisation process used to discriminate and for Systematic Reviews and Meta-­ Analyses (PRISMA)
identify mental disorders or mental health problems.13 extensions for protocols24 and Scoping Reviews guide-
Labelling can be a formal diagnostic process, an informal lines.25 It also follows the considerations proposed by
process carried out by peers, or a self-­ driven process. Peters et al,26 Levac et al27 and Arksey et al.28 Our objec-
Labelling by others can occur due to self-­presentation/ tives are to map existing evidence linking social media to
disclosure, and self-­labelling is linked to self-­concept and the adoption and use of mental health labels. This differs
stigma.14 Mental health labels can be tools for navigating from the current research landscape because it focuses
university life by allowing individuals to gain sympathy on informal labelling as a potential mediator of psycho-
from peers and professors when asking for grace.15 Early logical well-­being.
labelling theory pioneered by Thomas Scheff argued
that mental illnesses were minor forms of social devi- Research question
ance. A society labelling a deviant person as mentally ill The overall research question is.
alters how they are treated and pressures the individual ► To what extent do social media platforms influence
to behave in accordance with the label, thus creating a postsecondary students’ adoption of mental health
self-­perpetuating cycle.16 Link et al further developed labels?
labelling theory with the argument that labelled individ- Specific questions include
uals have agency in responding to societal conceptions of ► How do researchers operationalise mental health
mental illness.17 They can recuse themselves from society labelling?
or try educating the public to shift public opinion.17 ► How do researchers measure social media exposure
The labelling process is also shaped by looping effects, a on social media platforms?
term coined by Ian Hacking, who explained how people’s ► How does university students, researchers and mental
behaviour and cognition change in response to psycho- health professionals use mental health labels?
logical classification and how classifications change in ► What are the reported effects of using mental health
response to the behaviours of groups.18 When an indi- labels?
vidual or group feels at odds with their label, classification ► What mechanisms have been reported to lead to the
incongruence leads to destabilising looping effects.19 For acquisition of mental health labels from social media?
example, some patients hid their auditory hallucinations
from doctors to avoid being labelled as having schizo- Eligibility criteria
phrenia, which led to auditory hallucinations receiving References included in the review must be published in
less attention in future diagnostic guidelines.19 Conversely, English between 1995 and 2023, as this coincides with
if individuals perceive congruence with a diagnosis, they the rise of the internet and the proliferation of social
will likely report relief in learning that they are not alone media. We will include empirical studies and theses.
and that their experiences have shared biopsychological Included studies should directly report on mental health
origins.20 Individuals satisfied with a label can engage in labelling in the context of social media. The studies
biosolidarity by raising awareness and sharing support.7 20 should include postsecondary students, defined as those
attending colleges, universities or institutes with the goal
The rationale for this review of attaining an academic degree. Postsecondary educa-
We could not find any published systematic reviews tion occurs after mandatory schooling has finished.
discussing looping effects and labelling theory as they We will exclude studies that do not present disaggre-
affect social media users. Much of the existing research gated data on students enrolled in postsecondary insti-
is concerned with measuring those with formal diagnoses tutions at the time of data collection. Reviewers will also
and how to encourage treatment seeking through social exclude systematic reviews, studies on academic or career

2 Alexander ED, et al. BMJ Open 2024;14:e078193. doi:10.1136/bmjopen-2023-078193


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BMJ Open: first published as 10.1136/bmjopen-2023-078193 on 13 February 2024. Downloaded from http://bmjopen.bmj.com/ on February 15, 2024 by guest. Protected by copyright.
Table 1 Terms used to develop the search strategy
Topic (joined by Population: Intervention: social Outcome: mental
AND operator) postsecondary students media Outcome: labelling health
Keywords (Joined (Universit* “Social media” Labe* “Mental Health”
by OR operator) Colleg* “Social networking Sit*” Stigma “Mental Illness”
Post-­secondary) and Online “Self-­disclosure” “Mental Disord*”
(Studen*) “Self-­presentation” welln*
Identif*
Self-­diagnosis)

outcomes of social media users, and online learning and mechanisms. To understand mechanisms, our study will
studies on online mental health education or informa- borrow from realist configurations.29 Mechanisms are
tion technology literacy. accounts of the processes that lead to an outcome.30
They describe how the use of social media influences the
Search strategy reasoning and behaviour of users to change their rela-
The review will cover five databases: SCOPUS, PubMed, tionship with the studied outcomes, adoption and usage
OVID MEDLINE (APA PsycINFO 1967–2023), Web of of mental health labels. We will identify the statements in
Science and ProQuest Global Dissertations and Theses. the included reports that suggest theories of causal path-
These databases were chosen for breadth during consul- ways and will compile and summarise them to present
tation with a librarian at McGill University. In addition, an overall synthesis.30 Each mechanism will have a quote
Connected Papers, an AI tool that creates visual maps of from the report to support its inclusion in the list. The list
related documents, will be used to supplement the results will also clarify the specific outcome to which the mecha-
with closely related papers not included in the search. nism might be related and the contextual elements that
Connected Papers can show shared references across might affect these relationships according to the informa-
papers and may point out important links not found in the tion reported in the paper.
initial search. We will look for search terms in the titles,
abstracts and key terms. We have chosen to use truncation Synthesis
and phrase searching methods to refine our results. Our We will collect data on the number of studies published
use of AI will allow us to cover papers that may not have and the methodology used to show the amount of existing
been included in the initial searches. Table 1 presents research in the field and possible gaps in the research. In
the search terms used to develop the search strategy, and addition, a narrative synthesis will be used to map studies
online supplemental file 1 contains the search strategies. and to discuss the research questions. The presentation
of results will consider the subgroups of postsecondary
Study selection students reflected in the students.
Reviewers will use Covidence to manage records and
data throughout the review. Two reviews will complete Quality assessment
a primary selection independently, as recommended We will use the Mixed Methods Appraisal Tool (MMAT
by Levac et al27 screening titles and abstracts against the 2018)31 to report the overall quality of the included
eligibility criteria. The reviewers will reassess the included studies and their implications for the interpretation of
references on the basis of full-­text reading and document our results. Quality will not determine inclusion.26 This is
reasons for exclusion. If conflicts arise, a third reviewer because the objective of this review is to map all available
will make the decision. The selection process will be evidence rather than to provide an empirical or clinically
reported using the PRISMA flow diagram. meaningful result.
Data collection process Patient and public involvement
Data extracted from the studies will be collected into a Three university students are leading this review. There
chart created collaboratively by the team, including both was no other patient or public involvement in the
descriptive numerical summary and a thematic analysis as design, conduct and synthesis of this review. We aim
recommended by Arksey et al28: to discuss and contrast our findings with user experi-
Citation information: title, authorship, study location ences following a protocol based on fuzzy cognitive
and study dates (from/to). mapping32 (ethical approval by McGill University IRB,
Study details: study population, level of postsecondary A00-­B27-­23B/23-­05-­034).
students, sample size, study type and a short summary of
findings. Ethics and dissemination
In addition, we will record operational definitions This literature review uses published secondary data and
of mental health labels, the specific social media plat- does not require ethical revision. We aim to disseminate
forms studied, and summarise the proposed labelling the results to stakeholders through McGill University

Alexander ED, et al. BMJ Open 2024;14:e078193. doi:10.1136/bmjopen-2023-078193 3


Open access

BMJ Open: first published as 10.1136/bmjopen-2023-078193 on 13 February 2024. Downloaded from http://bmjopen.bmj.com/ on February 15, 2024 by guest. Protected by copyright.
student-­run magazines and student conferences. We will Acknowledgements We would like to acknowledge research assistants Andrés
disseminate the results on social media, particularly on Rojas-­Cárdenas and Librarian Genevieve Gore, who guided the search strategy.
Instagram. Contributors EDA conceived the idea for the review and led the development of
the protocol. AY and V-­H-­AC read and revised the protocol and contributed to its
development. NA and IS acted as guarantors for this project and supported the
development of the review from the original idea.

DISCUSSION Funding The authors have not declared a specific grant for this research from any
funding agency in the public, commercial or not-­for-­profit sectors.
Potential findings
Competing interests None declared.
The scoping review will summarise the mechanisms
through which postsecondary social media users adopt Patient and public involvement Patients and/or the public were involved in the
design, or conduct, or reporting, or dissemination plans of this research. Refer to
and use mental health labels. We hope to highlight the Methods section for further details.
the crucial role that social media plays in the labelling
Patient consent for publication Not applicable.
process, as individuals identify with mental health labels
Provenance and peer review Not commissioned; externally peer reviewed.
through online interactions and discussions.11
Supplemental material This content has been supplied by the author(s). It has
not been vetted by BMJ Publishing Group Limited (BMJ) and may not have been
Links to related work peer-­reviewed. Any opinions or recommendations discussed are solely those
Using the definition of mental health labelling as the of the author(s) and are not endorsed by BMJ. BMJ disclaims all liability and
categorisation process to discriminate and identify responsibility arising from any reliance placed on the content. Where the content
mental disorders or problems as a starting point, this includes any translated material, BMJ does not warrant the accuracy and reliability
of the translations (including but not limited to local regulations, clinical guidelines,
scoping review establishes connections with existing terminology, drug names and drug dosages), and is not responsible for any error
research on labelling theory.4 7 8 This fits in with larger and/or omissions arising from translation and adaptation or otherwise.
debates about self-­ presentation, disclosure and self-­ Open access This is an open access article distributed in accordance with the
labelling in the construction of identity and stigma as Creative Commons Attribution Non Commercial (CC BY-­NC 4.0) license, which
part of mental health interpretations. The review delves permits others to distribute, remix, adapt, build upon this work non-­commercially,
and license their derivative works on different terms, provided the original work is
into the evolution of labelling theory, using early works
properly cited, appropriate credit is given, any changes made indicated, and the use
by Thomas Scheff on mental illnesses as forms of social is non-­commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
deviance.16 17 The scoping review also incorporates Hack-
ing’s notion of looping effects,18 19 shedding light on the ORCID iDs
Ethan Dylan Alexander http://orcid.org/0009-0006-1176-3806
nuanced interplay between labels and individual expe- Ivan Sarmiento http://orcid.org/0000-0003-2871-1464
riences. The review’s identification of social media as a
space for individuals to identify with mental health labels
is consistent with studies exploring online communities
and their influence on identity formation.10 33 34 These REFERENCES
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