AUTOR PALABRAS CLAVE ABSTRACT TITULO

HUMMEL P;ADAM BIOETHICAL ISSUES; BACKGROUND: NATIONAL ETHICS COMMITTEES (NECS) OFFER IMPORTANT TAKING STOCK OF THE
T;REIS A;LITTLER K BIOETHICS; ETHICS OVERSIGHT AND GUIDANCE FUNCTIONS AND FACILITATE PUBLIC DEBATE ON AVAILABILITY AND
COMMITTEES; ETHICS; BIOETHICAL ISSUES. IN AN INCREASINGLY GLOBALIZED WORLD WHERE FUNCTIONS OF NATION
RESEARCH; EUROPE; TECHNOLOGICAL ADVANCES, MULTI-NATIONAL RESEARCH COLLABORATIONS, AND ETHICS COMMITTEES
HUMANS; INFANT; PANDEMICS ARE CREATING ETHICAL DILEMMAS THAT TRANSCEND NATIONAL WORLDWIDE
NEWBORN; ARTICLE; BORDERS, COORDINATION AND THE JOINING OF EFFORTS AMONG NECS ARE KEY.
BIOETHICS; EUROPE; THE PURPOSE OF THIS STUDY IS TO TAKE STOCK OF THE CURRENT NEC LANDSCAPE,
GENOMICS; HEALTH THEIR VARYING ROLES AND MISSIONS, AND THE RANGE OF BIOETHICAL TOPICS ON
CARE POLICY; HIGH WHICH THEY DELIBERATED SINCE THEIR INCEPTION. METHODS: DATA ON THE
INCOME COUNTRY; AVAILABILITY, FUNCTIONS, AND ETHICAL DELIBERATIONS (PUBLICATIONS) OF NECS
INFERTILITY THERAPY; GLOBALLY WERE GATHERED THROUGH A SYSTEMATIC SEARCH OF NEC WEBSITES
ORGAN AND THROUGH CONTACTS KNOWN TO THE AUTHORS. THE SEARCH WAS
TRANSPLANTATION; CONDUCTED IN ENGLISH, FRENCH, AND SPANISH. THE DATA ABSTRACTION WAS
PROFESSIONAL DONE IN EXCEL AND INCLUDED THE NEC’S COUNTRY, REGION, FUNCTIONS, AND
STANDARD; PUBLIC DELIBERATIONS ON BIOETHICAL ISSUES. DELIBERATION TOPICS WERE CLASSIFIED
HEALTH; BIOETHICS; INTO THEMATIC CATEGORIES THROUGH AN ITERATIVE PROCESS OF REGROUPING TO
HUMAN; NEWBORN; ARRIVE AT THE MAIN SET OF THEMES. RESULTS: 124 NECS IN 100 COUNTRIES WERE
RESEARCH ETHICS IDENTIFIED. 44% OF THE NECS ARE IN EUROPE AND 47% ARE IN HIGH-INCOME
COUNTRIES. OUT OF THE 1108 RETRIEVED PUBLICATIONS, 40% WERE ON BIOETHICS
IN THE CONTEXT OF RESEARCH, FOLLOWED BY THE CLINIC (28%) AND PUBLIC HEALTH
ISSUES (22%). THE TOP FIVE TOPICS OF THESE PUBLICATIONS WERE: RESEARCH
ETHICS (124; 9%), GENETICS AND GENOMICS (62; 6%), ORGAN TRANSPLANTATION
(58; 5%), ASSISTED REPRODUCTIVE TECHNOLOGY (49; 4%), AND END OF LIFE (36; 3%).
CONCLUSION: OUR STUDY MAKES AN IMPORTANT CONTRIBUTION TO
UNDERSTANDING THE CURRENT INTERESTS AND FUNCTIONS OF NECS AND THE
RANGE OF THEIR BIOETHICS DELIBERATIONS. BY MAKING THE DATA PUBLICLY
AVAILABLE THROUGH THIS PUBLICATION, IT ALLOWS USERS TO CONDUCT TAILORED
ANALYSES AND QUERIES BASED ON THEIR INTERESTS, AND TO SEEK AND
STRENGTHEN COLLABORATION AND EXCHANGE. IT ALSO MAKES THE CASE FOR THE
FRUITFULNESS OF DEVELOPING AND MAINTAINING A GLOBAL REPOSITORY OF
CURRENT AND NEW DELIBERATIONS TO MORE EFFECTIVELY ADVANCE THIS FIELD
 FOR THE GREATER GOOD OF HUMANITY, RESEARCH, AND PUBLIC HEALTH. © 2021,
THE AUTHOR(S).
FENNEWALD THIS ARTICLE EXPLORES THE ROLE OF INTERPLAYER MORAL CONVERSATION IN ANALYZING MORAL
T;PHELPS D MULTIPLAYER GAMES WITH THREE SUBQUESTIONS: HOW TO DESIGN AND USE DELIBERATION DURING
GAMES FOR MORALITY RESEARCH, HOW ADVANCES IN MORAL THEORY CAN INFORM GAMEPLAY: MORAL
GAME-BASED RESEARCH INTO MORALS, AND HOW GAME-BASED RESEARCH CAN FOUNDATIONS THEOR
INFORM MORAL THEORY. A LONG TRADITION HAS INVESTIGATED MORALS USING AS AN ANALYTIC
GAMES SUCH AS ULTIMATUM AND DICTATOR; HOWEVER, THIS RESEARCH OFTEN RESOURCE
OMITS INTERPLAYER MORAL DIALOGUE. FURTHER, WHEN MORAL FOUNDATIONS
THEORY IS ACCOUNTED FOR, ANALYSIS OF THESE GAMES SEEMS TO INVESTIGATE A
NARROW RANGE OF MORAL REASONING. IN THIS METHODOLOGICAL CRITIQUE, WE
DRAW UPON DATA FROM GAMEPLAY OF A SIMULATION OF CLIMATE CHANGE
DEBATE AND FIND A WIDE RANGE OF MORAL FOUNDATIONS THROUGH ANALYSIS OF
DIALOGUE. OUR ANALYSIS SUGGESTS THAT IN-GAME PLAYER DIALOGUE IS A SOURCE
OF RICH MORAL DELIBERATION AND POTENTIAL FOR USING SIMULATION GAMES AS
GROUNDS FOR DISCOVERING NEW MORAL FOUNDATIONS. © THE AUTHOR(S) 2017.
KOK N;ZEGERS ARTICLE; CLINICAL THERE IS A CLAIM THAT CLINICAL ETHICS SUPPORT SERVICES (CESS) IMPROVE MORISPRUDENCE: A
M;VAN DER HOEVEN COMPETENCE; HEALTHCARE QUALITY WITHIN HEALTHCARE ORGANISATIONS. HOWEVER, THERE IS THEORETICAL
H;HOEDEMAEKERS CONCEPTUAL LACK OF STRONG EVIDENCE SUPPORTING THIS CLAIM. RATHER, THE CURRENT FOCUS FRAMEWORK FOR
C;VAN GURP J FRAMEWORK; DECISION IS ON THE QUALITY OF CESS THEMSELVES OR ON INDIVIDUAL LEARNING OUTCOMES. STUDYING THE
MAKING; ETHICS; IN RESPONSE, THIS ARTICLE PROPOSES A THEORETICAL FRAMEWORK LEADING TO RELATIONSHIP LINKING
HEALTH CARE QUALITY; EMPIRICAL HYPOTHESES THAT DESCRIBE THE RELATIONSHIP BETWEEN A SPECIFIC MORAL CASE
HUMAN; LEARNING; TYPE OF CESS, MORAL CASE DELIBERATION AND THE QUALITY OF CARE AT THE DELIBERATION,
MORALITY; ORGANISATIONAL LEVEL. WE COMBINE INSIGHTS FROM THE LITERATURE ON CESS, ORGANISATIONAL
PROFESSIONAL ORGANISATIONAL LEARNING AND QUALITY IMPROVEMENT AND ARGUE THAT LEARNING AND QUALI
STANDARD; TOTAL MORAL CASE DELIBERATION CAUSES HEALTHCARE PROFESSIONALS TO ACQUIRE IMPROVEMENT
QUALITY MANAGEMENT PRACTICAL WISDOM. AT THE ORGANISATIONAL LEVEL, WHERE IMPROVING QUALITY
IS A CONTINUOUS AND COLLECTIVE ENDEAVOUR, THIS PRACTICAL WISDOM CAN BE
AGGREGATED INTO MORISPRUDENCE, WHICH IS AN ONGOING FORMULATION OF
MORAL JUDGEMENTS ACROSS CASES ENCOUNTERED WITHIN THE ORGANISATION.
FOCUSING ON THE DEVELOPMENT OF MORISPRUDENCE ENABLES REFINED
SCRUTINISATION OF CESS-RELATED QUALITY CLAIMS. ©
NUTTGENS S ETHICAL DECISION-MAKING IS INHERENT TO THE RESEARCH ETHICS COMMITTEE IDENTIFYING AND
(REC) DELIBERATION PROCESS. WHILE ETHICAL CODES, REGULATIONS, AND ADDRESSING
RESEARCH STANDARDS ARE INDISPENSABLE IN GUIDING THIS PROCESS, DECISION- NONRATIONAL
MAKING IS NONETHELESS SUSCEPTIBLE TO NONRATIONAL FACTORS THAT CAN PROCESSES IN REB
UNDERMINED THE QUALITY, CONSISTENCY, AND PERCEIVED FAIRNESS REC ETHICAL DECISION-
DECISIONS. IN THIS PAPER I IDENTIFY BIASES AND HEURISTICS (I.E., NONRATIONAL MAKING
FACTORS) THAT ARE KNOWN TO INFLUENCE THE REASONING PROCESSES AMONG
THE GENERAL POPULATION AND VARIOUS PROFESSIONS ALIKE. I SUGGEST THAT
SUCH FACTORS WILL INEVITABLY ARISE WITHIN THE REC REVIEW PROCESS. TO HELP
MITIGATE THIS POTENTIAL, I PROPOSE AN INTERVENTIVE QUESTIONING PROCESS
THAT CAN BE USED BY RECS TO IDENTIFY AND MINIMIZE THE INFLUENCE OF THE
NONRATIONAL FACTORS MOST LIKELY TO IMPACT REC JUDGMENT AND DECISION-
MAKING. © THE AUTHOR(S) 2021.
DE SNOO-TRIMP DELIVERY OF HEALTH BACKGROUND: AS MORAL CASE DELIBERATIONS (MCDS) HAVE INCREASINGLY BEEN CONCEPTUALIZING TH
JC;VAN GURP CARE; ETHICS IMPLEMENTED IN HEALTH CARE INSTITUTIONS AS A FORM OF ETHICS SUPPORT, IT IS IMPACT OF MORAL CA
JLP;MOLEWIJK AC CONSULTATION; HEALTH RELEVANT TO KNOW WHETHER AND HOW MCDS ACTUALLY CONTRIBUTE TO DELIBERATION: A
PERSONNEL; HUMANS; POSITIVE CHANGES IN CARE. INSIGHT IS NEEDED ON WHAT ACTUALLY HAPPENS IN MULTIPLE-CASE STUDY
INTELLECTUAL DAILY CARE PRACTICE FOLLOWING MCD SESSIONS. THIS STUDY AIMED AT A HEALTH CARE
DISABILITY; MORALS; INVESTIGATING THE IMPACT OF MCD AND EXPLORING HOW ‘IMPACT OF MCD’ INSTITUTION FOR PEOP
ETHICS; HEALTH CARE SHOULD BE CONCEPTUALIZED FOR FUTURE RESEARCH. METHODS: A MULTIPLE-CASE WITH INTELLECTUAL
DELIVERY; HEALTH CARE STUDY WAS CONDUCTED IN A CARE ORGANIZATION FOR PEOPLE WITH DISABILITIES
PERSONNEL; HUMAN; INTELLECTUAL DISABILITIES AND/OR ACQUIRED BRAIN INJURY, BY OBSERVING MCD
INTELLECTUAL SESSIONS AS ‘CASES’, FOLLOWED BY INTERVIEWS WITH HEALTH CARE
IMPAIRMENT; MORALITY PROFESSIONALS CONCERNING THE FOLLOW-UP TO THESE CASES, AND A FOCUS
GROUP WITH INVOLVED MCD FACILITATORS. A CONCEPTUAL SCHEME CONCERNING
THE POSSIBLE IMPACT FORMED THE BASIS FOR ANALYSIS: (1) INDIVIDUAL MORAL
AWARENESS; (2) THE ACTIONS OF HEALTH CARE PROFESSIONALS; (3)
COLLABORATION AMONG HEALTH CARE PROFESSIONALS; (4) THE CONCRETE
SITUATION OF THE CLIENT; (5) THE CLIENT’S QUALITY OF CARE AND LIFE; (6) THE
ORGANIZATIONAL AND POLICY LEVEL. RESULTS: ACCORDING TO INTERVIEWEES,
THEIR MORAL AWARENESS AND THEIR COLLABORATION, BOTH AMONG COLLEAGUES
AND WITH CLIENTS’ RELATIVES, IMPROVED AFTER MCD. PERCEIVED IMPACT ON
 CLIENT SITUATION, QUALITY OF CARE/LIFE AND THE ORGANIZATIONAL LEVEL VARIED
AMONG INTERVIEWEES OR WAS DIFFICULT TO DEFINE OR LINK TO MCD. THREE
ASPECTS WERE ADDED TO THE CONCEPTUAL SCHEME CONCERNING THE IMPACT OF
MCD: (A) PREPARATIONS AND EXPECTATIONS PRIOR TO THE MCD SESSION; (B) A
TRANSLATIONAL STEP BETWEEN THE CONCLUSIONS OF THE MCD SESSION AND
PRACTICAL EVENTS IN THE FOLLOWING PERIOD, AND (C) COLLABORATION WITH
CLIENTS’ RELATIVES. A NEGATIVE IMPACT OF MCD WAS ALSO FOUND ON
MISUNDERSTANDINGS AMONG PARTICIPANTS AND DISAPPOINTMENT ABOUT LACK
OF FOLLOW-UP. CONCLUSIONS: CONCRETIZING AND CONCEPTUALIZING THE
‘IMPACT’ OF MCD IS COMPLICATED AS MANY FACTORS PLAY A ROLE EITHER BEFORE
OR DURING THE TRANSITION FROM MCD TO PRACTICE. IT IS IMPORTANT TO
CONSIDER ‘IMPACT’ IN A BROAD SENSE AND TO RELATE IT TO THE GOALS AND
CONTEXT OF THE MCD IN QUESTION. FUTURE STUDIES IN THIS FIELD SHOULD PAY
ADDITIONAL ATTENTION TO THE PREPARATIONS, CONTENT AND PROCESS INVOLVED
IN ETHICS SUPPORT, INCLUDING CLIENTS’ AND RELATIVES’ EXPERIENCES. © 2022,
THE AUTHOR(S).
DE SNOO-TRIMP ETHICS CONSULTATION; BACKGROUND: CLINICAL ETHICS SUPPORT (CES) SERVICES ARE OFFERED TO SUPPORT MORAL COMPETENCE,
JC;DE VET HUMANS; MORALS; HEALTHCARE PROFESSIONALS IN DEALING WITH ETHICALLY DIFFICULT SITUATIONS. MORAL TEAMWORK A
HCW;WIDDERSHOVE NETHERLANDS; EVALUATION OF CES IS IMPORTANT TO UNDERSTAND IF IT IS INDEED A SUPPORTIVE MORAL ACTION - THE
N GAM;MOLEWIJK NORWAY; SWEDEN; SERVICE IN ORDER TO INFORM AND IMPROVE FUTURE IMPLEMENTATION OF CES. EUROPEAN MORAL CA
AC;SVANTESSON M ETHICS; HUMAN; YET, METHODS TO MEASURE OUTCOMES OF CES ARE SCARCE. IN 2014, THE DELIBERATION
MORALITY; EUROPEAN MORAL CASE DELIBERATION OUTCOMES INSTRUMENT (EURO-MCD) WAS OUTCOMES (EURO-MC
NETHERLANDS; DEVELOPED TO MEASURE OUTCOMES OF MORAL CASE DELIBERATION (MCD). TO INSTRUMENT 2.0 AND
NORWAY; SWEDEN FURTHER VALIDATE THE INSTRUMENT, WE TESTED IT IN FIELD STUDIES AND REVISED REVISION PROCESS
IT. THIS PAPER PRESENTS THE EURO-MCD 2.0 AND DESCRIBES THE REVISION
PROCESS. METHODS: THE REVISION PROCESS COMPRISED AN ITERATIVE DIALOGUE
AMONG THE AUTHORS AS EURO-MCD-PROJECT TEAM, INCLUDING EMPIRICAL
FINDINGS FROM SIX EURO-MCD FIELD-STUDIES AND INPUT FROM EUROPEAN
EXPERTS IN CES AND THEORY. EMPIRICAL FINDINGS CONTAINED PERCEPTIONS AND
EXPERIENCES OF MCD OUTCOMES AMONG HEALTHCARE PROFESSIONALS WHO
PARTICIPATED IN MCDS IN VARIOUS SETTINGS IN NORWAY, SWEDEN AND THE
NETHERLANDS. THEORETICAL VIEWPOINTS ON CES, LITERATURE ON GOALS OF CES
 AND MCD AND ETHICS THEORY GUIDED THE INTERPRETATION OF THE EMPIRICAL
FINDINGS AND FINAL SELECTION OF MCD OUTCOMES. RESULTS: THE EURO-MCD 2.0
INSTRUMENT INCLUDES THREE DOMAINS: MORAL COMPETENCE, MORAL
TEAMWORK AND MORAL ACTION. MORAL COMPETENCE CONSISTS OF ITEMS ABOUT
MORAL SENSITIVITY, ANALYTICAL SKILLS AND VIRTUOUS ATTITUDE. MORAL
TEAMWORK INCLUDES OPEN DIALOGUE AND SUPPORTIVE RELATIONSHIPS AND
MORAL ACTION REFERS TO MORAL DECISION-MAKING AND RESPONSIBLE CARE.
DURING THE REVISION PROCESS, WE MADE DECISIONS ABOUT ADDING AND
REFORMULATING ITEMS AS WELL AS DECREASING THE NUMBER FROM 26 TO 15
ITEMS. WE ALSO ALTERED THE SENTENCE STRUCTURE OF ITEMS TO ASSESS THE
CURRENT STATUS OF OUTCOMES (E.G. 'NOW') INSTEAD OF AN ASSUMED
IMPROVEMENT OVER TIME (E.G. 'BETTER') AND WE OMITTED THE QUESTION ABOUT
PERCEIVED IMPORTANCE. CONCLUSIONS: THE EURO-MCD 2.0 IS SHORTER, LESS
COMPLEX AND MORE STRONGLY SUBSTANTIATED BY AN INTEGRATION OF
EMPIRICAL FINDINGS, THEORETICAL REFLECTIONS AND DIALOGUES WITH
PARTICIPANTS AND EXPERTS. USE OF THE EURO-MCD 2.0 WILL FACILITATE
EVALUATION OF MCD AND CAN THEREBY MONITOR AND FOSTER IMPLEMENTATION
AND QUALITY OF MCD. THE EURO-MCD 2.0 WILL STRENGTHEN FUTURE RESEARCH
ON EVALUATION OF OUTCOMES OF MCD. © 2020 THE AUTHOR(S).
HARTMAN CLINICAL TRIALS AS ALTHOUGH MORAL CASE DELIBERATION (MCD) IS EVALUATED POSITIVELY AS A DEVELOPING A ‘MORA
L;METSELAAR TOPIC; ETHICAL FORM OF CLINICAL ETHICS SUPPORT (CES), IT HAS LIMITATIONS. TO ADDRESS THESE COMPASS TOOL’ BASE
S;WIDDERSHOVEN ANALYSIS; ETHICS; LIMITATIONS OUR RESEARCH OBJECTIVE WAS TO DEVELOP A THEMATIC CES TOOL. IN ON MORAL CASE
G;MOLEWIJK B CLINICAL; ORDER TO ASSESS THE PHILOSOPHICAL CHARACTERISTICS OF A CES TOOL BASED ON DELIBERATIONS: A
HERMENEUTICS; MCDS, WE DREW ON HERMENEUTIC ETHICS AND PRAGMATISM. WE DISTINGUISHED PRAGMATIC
HUMANS; MORALS; FOUR CORE CHARACTERISTICS OF A CES TOOL: (A) FOCUSING ON AN ACTUAL HERMENEUTIC
ARTICLE; CLINICAL SITUATION THAT IS EXPERIENCED AS MORALLY CHALLENGING BY THE USER; (B) APPROACH TO CLINICA
EVALUATION; ETHICS; STIMULATING MORAL INQUIRY INTO THE MORAL CONCEPTS, QUESTIONS AND ETHICS
HERMENEUTICS; ROUTINES IN THE LIVED EXPERIENCE OF THE CES TOOL USER; (C) STIMULATING
HUMAN; MORALITY; MORAL LEARNING BY EXPLORING OTHER PERSPECTIVES; AND (D) INCORPORATING
PERSONAL EXPERIENCE; CONTEXTUAL DETAILS. WE PROVIDE AN EXAMPLE OF A CES TOOL DEVELOPED FOR
CLINICAL TRIAL (TOPIC); MORAL DILEMMAS OVER CLIENT AUTONOMY. OUR ARTICLE ENDS WITH SOME
HERMENEUTICS; REFLECTIONS ON THE NORMATIVITY OF THE CES TOOL, OTHER APPLICATION AREAS
 MEDICAL ETHICS AND THE IMPORTANCE OF EVALUATION STUDIES OF CES TOOLS. © 2019 THE
AUTHORS BIOETHICS PUBLISHED BY JOHN WILEY & SONS LTD
AST F INTEGRATIVE SOCIAL CONTRACTS THEORY (ISCT) IS A POPULAR FRAMEWORK TO THE DELIBERATIVE TES
ASSIST MANAGERS IN MAKING DECISIONS ON INTERNATIONAL MORAL DILEMMAS. A NEW PROCEDURAL
ALTHOUGH THE THEORY HAS BEEN PRAISED FOR ITS COMPREHENSIVENESS AND METHOD FOR ETHICAL
SOPHISTICATION, COMMENTATORS HAVE RAISED CONCERNS REGARDING THE DECISION MAKING IN
JUSTIFICATION AND IDENTIFICATION OF SUBSTANTIVE HYPERNORMS, INTEGRATIVE SOCIAL
FUNDAMENTAL MORAL PRINCIPLES VALID ACROSS CULTURES. THIS PAPER CONTRACTS THEORY
INTRODUCES THE DELIBERATIVE TEST, A NEW METHOD FOR TESTING THE CROSS-
CULTURAL VALIDITY OF ETHICAL NORMS IN ISCT. THE TEST RELIES ON THE CONCEPT
OF DELIBERATIVE CAPACITY, ARISING FROM NEW DEVELOPMENTS IN SYSTEM-LEVEL
DELIBERATIVE DEMOCRACY RESEARCH, WHICH STUDIES DELIBERATION AT THE LEVEL
OF NATIONAL SOCIETIES AND OVER TIME. BASED ON THIS RECENT STREAM OF
RESEARCH, THE DELIBERATIVE TEST HAS THE POTENTIAL OF PROVIDING BETTER
GUIDANCE FOR MANAGERS TO DECIDE WHICH NORMS TO FOLLOW IN CASE OF
CONFLICTING STANDARDS BETWEEN HOME AND HOST COUNTRIES. © 2017,
SPRINGER SCIENCE+BUSINESS MEDIA DORDRECHT.
LYNCH HF;ABDIRISAK BIOETHICS; ETHICS BACKGROUND: RESEARCH ETHICS REVIEW COMMITTEES (RERCS) AND HUMAN EVALUATING THE
M;BOGIA M;CLAPP J COMMITTEES; RESEARCH PROTECTION PROGRAMS (HRPPS) ARE RESPONSIBLE FOR PROTECTING QUALITY OF RESEARCH
RESEARCH; ETHICS; THE RIGHTS AND WELFARE OF RESEARCH PARTICIPANTS WHILE AVOIDING ETHICS REVIEW AND
RESEARCH; HUMAN UNNECESSARY INHIBITION OF VALUABLE RESEARCH. EVALUATING RERC/HRPP OVERSIGHT: A
EXPERIMENTATION; QUALITY IS VITAL TO DETERMINING WHETHER THEY ARE ACHIEVING THESE GOALS SYSTEMATIC ANALYSIS
HUMANS; QUALITY EFFECTIVELY AND EFFICIENTLY, AS WELL AS WHAT ADJUSTMENTS MIGHT BE QUALITY ASSESSMENT
INDICATORS; HEALTH NECESSARY. VARIOUS TOOLS, STANDARDS, AND ACCREDITATION MECHANISMS HAVE INSTRUMENTS
CARE; SYSTEMS BEEN DEVELOPED IN THE UNITED STATES AND INTERNATIONALLY TO MEASURE AND
ANALYSIS; UNITED PROMOTE RERC/HRPP QUALITY. METHODS: WE SYSTEMATICALLY REVIEWED 10
STATES; BIOETHICS; QUALITY ASSESSMENT INSTRUMENTS, EXAMINING THEIR OVERALL APPROACHES,
ETHICS; HEALTH CARE FACTORS CONSIDERED RELEVANT TO QUALITY, HOW THEY COMPARE TO EACH
QUALITY; HUMAN; OTHER, AND WHAT THEY LEAVE OUT. FOR EACH TOOL, WE COUNTED THE NUMBER
HUMAN EXPERIMENT; OF TIMES EACH OF 34 TOPICS (DIVIDED INTO STRUCTURE, PROCESS, AND OUTCOME
PROFESSIONAL CATEGORIES) WAS MENTIONED. WE GENERATED LISTS OF WHICH TOPICS ARE MOST
STANDARD; RESEARCH AND LEAST MENTIONED FOR EACH TOOL, WHICH ARE MOST PREVALENT ACROSS
 ETHICS; SYSTEM TOOLS, AND WHICH ARE LEFT UNMENTIONED. WE ALSO CONDUCTED CONTENT
ANALYSIS; UNITED ANALYSIS FOR THE 10 MOST COMMON TOPICS. RESULTS: WE FOUND WIDE
STATES VARIABILITY BETWEEN INSTRUMENTS, COMMON EMPHASIS ON PROCESS AND
STRUCTURE WITH LITTLE ATTENTION TO PARTICIPANT OUTCOMES, AND FAILURE TO
IDENTIFY CLEAR PRIORITIES FOR ASSESSMENT. THE MOST FREQUENTLY MENTIONED
TOPICS ARE REVIEW TYPE, IRB MEMBER EXPERTISE, TRAINING AND EDUCATIONAL
RESOURCES, PROTOCOL MAINTENANCE, RECORD KEEPING, AND MISSION,
APPROACH, AND CULTURE. PARTICIPANT OUTCOMES IS UNMENTIONED IN 8 TOOLS;
THE REMAINING 2 TOOLS INCLUDE ASSESSMENTS BASED ON ADVERSE EVENTS,
FAILURES OF INFORMED CONSENT, AND CONSIDERATION OF PARTICIPANT
EXPERIENCES. CONCLUSIONS: OUR ANALYSIS CONFIRMS THAT RERC/HRPP QUALITY
ASSESSMENT INSTRUMENTS LARGELY RELY ON SURROGATE MEASURES OF
PARTICIPANT PROTECTION. TO PRIORITIZE BETWEEN THESE MEASURES AND
PRESERVE LIMITED RESOURCES FOR EVALUATING THE MOST IMPORTANT CRITERIA,
WE RECOMMEND THAT INSTRUMENTS FOCUS ON ELEMENTS RELEVANT TO
PARTICIPANT OUTCOMES, ROBUST BOARD DELIBERATION, AND PROCEDURES MOST
LIKELY TO ADDRESS PARTICIPANT RISKS. VALIDATION OF THESE APPROACHES
REMAINS AN ESSENTIAL NEXT STEP. © 2020 TAYLOR & FRANCIS GROUP, LLC.
VROUENRAETS ADOLESCENT; CHILD; TREATMENT TEAMS PROVIDING AFFIRMATIVE MEDICAL TRANSGENDER CARE TO DEALING WITH MORAL
LJJJ;HARTMAN ETHICS CONSULTATION; YOUNG PEOPLE FREQUENTLY FACE MORAL CHALLENGES ARISING FROM THE CARE CHALLENGES IN
LA;HEIN IM;DE VRIES FEMALE; HUMANS; THEY PROVIDE. AN ADOLESCENT’S CAPACITY TO CONSENT, FOR EXAMPLE, COULD TREATMENT OF
ALC;DE VRIES MALE; MORALS; RAISE SEVERAL ISSUES AND CHALLENGES. TO DEAL WITH THESE CHALLENGES MORE TRANSGENDER CHILDR
MC;MOLEWIJK BAC SURVEYS AND EFFECTIVELY, SEVERAL DUTCH TREATMENT TEAMS STARTED USING A RELATIVELY AND ADOLESCENTS:
QUESTIONNAIRES; WELL-ESTABLISHED FORM OF CLINICAL ETHICS SUPPORT (CES) CALLED MORAL CASE EVALUATING THE ROLE
TRANSGENDER PERSONS; DELIBERATION (MCD). MCD IS A FACILITATOR-LED, COLLECTIVE MORAL INQUIRY OF MORAL CASE
ADOLESCENT; CHILD; BASED ON A REAL CASE. THIS STUDY’S PURPOSE IS TO DESCRIBE THE TEAMS’ DELIBERATION
ETHICS; FEMALE; PERCEIVED VALUE AND EFFECTIVENESS OF MCD. WE CONDUCTED A MIXED
HUMAN; MALE; METHODS EVALUATION STUDY USING MCD SESSION REPORTS, INDIVIDUAL
MORALITY; INTERVIEWS, FOCUS GROUPS, AND MCD EVALUATION QUESTIONNAIRES. OUR
PSYCHOLOGY; RESULTS SHOW THAT DUTCH TRANSGENDER CARE PROVIDERS RATED MCD AS
QUESTIONNAIRE; HIGHLY VALUABLE IN SITUATIONS WHERE PARTICIPANTS WERE CONFRONTED WITH
TRANSGENDER MORAL CHALLENGES. THE HEALTH CARE PROVIDERS REPORTED THAT MCD
 INCREASED MUTUAL UNDERSTANDING AND OPEN COMMUNICATION AMONG TEAM
MEMBERS AND STRENGTHENED THEIR ABILITY TO MAKE DECISIONS AND TAKE
ACTION WHEN MANAGING ETHICALLY DIFFICULT CIRCUMSTANCES. HOWEVER, THE
HEALTH CARE PROVIDERS ALSO EXPRESSED CRITICISMS OF MCD: SOME FELT THAT
THE AMOUNT OF TIME SPENT DISCUSSING INDIVIDUAL CASES WAS EXCESSIVE, THAT
MCD SHOULD LEAD TO MORE PRACTICAL AND CONCRETE RESULTS, AND THAT MCD
NEEDED BETTER INTEGRATION AND FOLLOW-UP IN THE REGULAR WORK PROCESS.
WE RECOMMEND FUTURE RESEARCH ON THREE MATTERS: STUDYING HOW MCD
CONTRIBUTES TO THE QUALITY OF CARE, INVOLVEMENT OF TRANSGENDER PEOPLE
THEMSELVES IN MCD, AND INTEGRATION OF CES INTO DAILY WORK PROCESSES. ©
2020, THE AUTHOR(S).
HOOVER GREEN QUANTITATIVE DATA ABOUT POLITICAL VIOLENCE ARE FREQUENTLY BASED ON CENTERING HUMAN
A;COHEN DK "DESK RESEARCH,"DATA DERIVED FROM SECONDARY SOURCES THAT DO NOT SUBJECTS: THE ETHICS
REQUIRE DIRECT CONTACT BETWEEN RESEARCHERS AND PARTICIPANTS, SUCH AS "DESK RESEARCH" ON
PEOPLE WHO WITNESSED OR EXPERIENCED VIOLENCE. THE RESEARCH THAT POLITICAL VIOLENCE
EMPLOYS THESE DATA IS OFTEN VIEWED IMPLICITLY AS ETHICALLY UNCOMPLICATED.
IN CONTRAST, WE ARGUE THAT THE PRODUCTION AND ANALYSIS OF POLITICAL
VIOLENCE DATA CODED FROM SECONDARY SOURCES REQUIRE CAREFUL ETHICAL
DELIBERATION REGARDING HUMAN SUBJECTS CONCERNS. WE CONSIDER TWO
BROAD CLASSES OF QUANTITATIVE POLITICAL VIOLENCE DATA OFTEN GATHERED
THROUGH DESK RESEARCH: INCIDENT LISTS AND INDICES. FOR BOTH TYPES, WE
IDENTIFY ETHICAL CONCERNS ABOUT HOW DATA PRODUCTION AND USE CAN
AFFECT RESEARCH PARTICIPANTS. WE CONCLUDE BY OFFERING A SERIES OF
SUGGESTIONS ON HOW TO INCORPORATE ETHICAL CONSIDERATIONS ABOUT
HUMAN SUBJECTS INTO THE DESIGN AND EVALUATION OF POLITICAL VIOLENCE
RESEARCH BASED ON SECONDARY SOURCES. © 2020 THE AUTHOR(S) (2020).
PUBLISHED BY OXFORD UNIVERSITY PRESS ON BEHALF OF THE INTERNATIONAL
STUDIES ASSOCIATION.
SENGHOR AS;RACINE HUMANS; JUDGMENT; ETHICS DESIGNATES A STRUCTURED PROCESS BY WHICH IMPORTANT HUMAN HOW TO EVALUATE TH
E MORALS; ARTICLE; VALUES AND MEANINGS OF LIFE ARE UNDERSTOOD AND TACKLED. THEREIN, THE QUALITY OF AN ETHICA
CREATIVITY; HUMAN; ABILITY TO DISCUSS OPENLY AND REFLECT ON (AKA DELIBERATION) DELIBERATION? A
HUMAN EXPERIMENT; UNDERSTANDINGS OF MORAL PROBLEMS, ON SOLUTIONS TO THESE PROBLEMS, PRAGMATIST PROPOSA
 LITERACY; PHYSICIAN; AND TO EXPLORE WHAT A MEANINGFUL RESOLUTION COULD AMOUNT TO IS HIGHLY FOR EVALUATION
PRAGMATISM; DECISION VALUED. HOWEVER, THE INDICATORS OF WHAT CONSTITUTES A HIGH-QUALITY CRITERIA AND
MAKING; MORALITY ETHICAL DELIBERATION REMAIN VAGUE AND UNCLEAR. THIS ARTICLE PROPOSES AND COLLABORATIVE
DEVELOPS A PRAGMATIST APPROACH TO EVALUATE THE QUALITY OF DELIBERATION. RESEARCH
DELIBERATION FEATURES THREE IMPORTANT MOMENTS: (1) BROADENING AND
DEEPENING THE UNDERSTANDING OF THE SITUATION, (2) ENVISIONING ACTION
SCENARIOS, (3) COMING TO A JUDGMENT BASED ON THE COMPARATIVE
EVALUATION OF SCENARIOS. IN THIS PAPER, WE PROPOSE SEVEN CRITERIA TO
EVALUATE ETHICAL DELIBERATIONS: (1) COLLABORATIVE DIVERSITY, (2)
EXPERIENTIAL LITERACY, (3) ORGANIZATION OF EXPERIENCES, (4) REFLECTIVE
CAPACITY TO INSTRUMENTALIZE THE EXPERIENCES OF OTHERS, (5) INTERACTIONAL
CREATIVITY, (6) OPENNESS OF AGENTS, (7) QUALITY OF THE REFORMULATION OF
SCENARIOS. THESE CRITERIA ARE EXPLAINED AND APPLIED TO THE THREE MOMENTS
OF DELIBERATION. BASED ON THESE CRITERIA, THREE KINDS OF OUTCOMES FOR
DELIBERATIONS ARE IDENTIFIED AND DISCUSSED: GOOD ETHICAL DELIBERATIONS,
PARTIAL ETHICAL DELIBERATIONS, BAD ETHICAL DELIBERATIONS. OUR PROPOSAL
WILL GUIDE RESEARCHERS AND PRACTITIONERS INTERESTED IN THE EVALUATION OF
THE QUALITY OF ETHICAL DELIBERATIONS. IT PROVIDES A REFERENCE TOOL THAT
ALLOWS THEM TO IDENTIFY THE POSSIBLE LIMITATIONS OF A DELIBERATION AND TO
IMPLEMENT ACTIONS AIMED AT CORRECTING THESE LIMITATIONS IN ORDER TO
ACHIEVE THE DESIRED QUALITATIVE OBJECTIVES. © 2022, THE AUTHOR(S), UNDER
EXCLUSIVE LICENCE TO SPRINGER NATURE B.V.
SPRONK DECISION MAKING; BACKGROUND: IN HEALTHCARE PRACTICE, CARE PROVIDERS ARE CONFRONTED WITH ADDRESSING HARM IN
B;WIDDERSHOVEN ETHICS CONSULTATION; DECISIONS THEY HAVE TO MAKE, DIRECTLY AFFECTING PATIENTS AND INEVITABLY MORAL CASE
G;ALMA H ETHICS; CLINICAL; GROUP HARMFUL. THESE DECISIONS ARE TRAGIC BY NATURE. THIS STUDY INVESTIGATES THE DELIBERATION: THE
PROCESSES; HEALTH ROLE OF MORAL CASE DELIBERATION (MCD) IN DEALING WITH TRAGIC SITUATIONS. VIEWS AND EXPERIENC
PERSONNEL; HUMANS; IN MCD, CAREGIVERS REFLECT ON REAL-LIFE DILEMMAS, INVOLVING A CHOICE OF FACILITATORS
INTERVIEWS AS TOPIC; BETWEEN TWO ETHICAL CLAIMS, BOTH RESULTING IN MORAL DAMAGE AND HARM.
MORALS; QUALITATIVE ONE ELEMENT OF THE REFLECTION PROCESS IS MAKING EXPLICIT THE HARM
RESEARCH; DECISION INVOLVED IN THE CHOICE. HOW HARMFUL ARE OUR DECISIONS? WE INVESTIGATED
MAKING; ETHICS; GROUP HOW FACILITATORS OF MCD EXPERIENCE THE IMPORTANCE OF ADDRESSING HARM
PROCESS; HEALTH CARE IN MCD AND WHAT PARTICIPANTS LEARN FROM REFLECTING ON HARM. METHODS:
 PERSONNEL; HUMAN; THE STUDY WAS QUALITATIVE, FOCUSING ON THE VIEWS AND EXPERIENCES OF THE
INTERVIEW; MEDICAL FACILITATORS OF MCD. SEMI-STRUCTURED INTERVIEWS (N = 12) WERE CONDUCTED
ETHICS; MORALITY; WITH FACILITATORS OF MCD. THE RESEARCH FOCUSES ON THE SUBJECTIVE
QUALITATIVE RESEARCH EXPERIENCES OF FACILITATORS. GROUNDED THEORY WAS USED FOR ANALYSIS.
RESULTS: THE RESULTS SHOW TWO MAIN CATEGORIES. THE FIRST CONCERNS THE
AWARENESS OF TRAGEDY. WITHIN THIS CATEGORY, FIVE THEMES WERE DISCERNED:
MAKING EXPLICIT THAT THERE IS NO SOLUTION, VISUALIZING CONSEQUENCES,
UNCOVERING PAIN, FOCUSING ON EMOTION, AND EXPLORING PERSPECTIVES ON
HARM. THE SECOND CATEGORY CONCERNS THE SUPPORT FOR HEALTHCARE
PROFESSIONALS IN DEALING WITH THE TRAGEDY OF THE CHOICES THEY FACE. IN
THIS CATEGORY, FIVE THEMES CAME FORWARD: ACKNOWLEDGING, OFFERING
COMFORT, MANAGING HARM, CONSIDERATION THROUGH DIALOGUE AND
REPAIRING HARM. CONCLUSION: OUR STUDY SHOWS THAT ADDRESSING HARM IN
MCD IN TRAGIC SITUATIONS PROVIDES AN IMPORTANT MORAL LEARNING
OPPORTUNITY FOR PARTICIPANTS. BY FORMULATING AND BECOMING AWARE OF
HARM, MCD AIDS HEALTHCARE PROFESSIONALS IN THE TASK THEY ARE FACED WITH,
NAMELY MAKING DIFFICULT AND PAINFUL CHOICES. MCD HELPS HEALTHCARE
PROFESSIONALS TO REPAIR MORAL DAMAGE, MAKING CLEAR AT THE SAME TIME
THAT HARM CANNOT BE UNDONE. © 2020 THE AUTHOR(S).
HARLOW J;WEIBEL DIGITAL TECHNOLOGY; MOBILE HEALTH (MHEALTH) RESEARCH INVOLVING PERVASIVE SENSORS, MOBILE USING PARTICIPATORY
N;AL KOTOB R;CHAN ETHICS COMMITTEES; APPS AND OTHER NOVEL DATA COLLECTION TOOLS AND METHODS PRESENT NEW DESIGN TO INFORM TH
V;BLOSS C;LINARES- RESEARCH; ETHICS; ETHICAL, LEGAL, AND SOCIAL CHALLENGES SPECIFIC TO INFORMED CONSENT, DATA CONNECTED AND OPE
OROZCO RESEARCH; HUMANS; MANAGEMENT AND BYSTANDER RIGHTS. TO ADDRESS THESE CHALLENGES, A RESEARCH ETHICS (COR
R;TAKEMOTO INTERNET; RESEARCH PARTICIPATORY DESIGN APPROACH WAS DEPLOYED WHEREBY STAKEHOLDERS COMMONS
M;NEBEKER C PERSONNEL; CONTRIBUTED TO THE DEVELOPMENT OF A WEB-BASED COMMONS TO SUPPORT
STAKEHOLDER THE MHEALTH RESEARCH COMMUNITY INCLUDING RESEARCHERS AND ETHICS
PARTICIPATION; BOARD MEMBERS. THE CORE (CONNECTED AND OPEN RESEARCH ETHICS) PLATFORM
TELEMEDICINE; USER- NOW FEATURES A COMMUNITY FORUM, A RESOURCE LIBRARY AND A NETWORK OF
CENTERED DESIGN; NEARLY 600 GLOBAL MEMBERS. THE UTILITY OF THE PARTICIPATORY DESIGN
HUMAN; INTERNET; PROCESS WAS EVALUATED BY ANALYZING ACTIVITIES CARRIED OUT OVER AN 8-
PERSONNEL; MONTH DESIGN PHASE CONSISTING OF 86 DISTINCT EVENTS INCLUDING ITERATIVE
PROCEDURES; DESIGN DELIBERATIONS AND SOCIAL MEDIA ENGAGEMENT. THIS ARTICLE DESCRIBES
 PROFESSIONAL HOW PARTICIPATORY DESIGN YIELDED 55 NEW FEATURES DIRECTLY MAPPED TO
STANDARD; RESEARCH COMMUNITY NEEDS AND DISCUSSES RELATIONSHIPS TO USER ENGAGEMENT AS
ETHICS; STAKEHOLDER DEMONSTRATED BY A STEADY INCREASE IN CORE MEMBER ACTIVITY AND
ENGAGEMENT; FOLLOWERS ON TWITTER. © 2019, SPRINGER NATURE B.V.
TELEMEDICINE
BROADHEAD THIS ARTICLE REPORTS ON A PRACTICE-BASED RESEARCH PROJECT THAT EXAMINED A CONVERSATION ABO
S;TOBIAS-GREEN THE VARIOUS ORIENTATIONS OF PRACTICE TO ETHICAL DELIBERATION. THE AIM WAS ETHICS: A DELIBERATIV
K;HOOPER S TO PRODUCE A FILM THAT CAPTURED ETHICAL DEBATE BETWEEN TWO CREATIVE AND PRACTICE-BASED
PRACTITIONERS AS THEY WALKED THROUGH THEIR LOCAL STREETS. THE FILM APPROACH TO ETHICS
WOULD BE A CATALYST FOR STAFF AND STUDENTS AT AN ARTS INSTITUTION TO ARTS EDUCATION
THINK ABOUT THEIR OWN ETHICAL PRACTICES. THE APPROACH TAKEN WAS BASED
ON ARISTOTELIAN NOTIONS OF PHRONESIS OR PRACTICAL WISDOM, WHICH IS
CONCERNED WITH MAKING ETHICAL JUDGMENTS BASED ON DELIBERATION. ISSUES
WERE RAISED BY THE PROJECT, SUCH AS THE TENSIONS BETWEEN POLICY AND
PRACTICE AND THE TENSIONS BETWEEN AESTHETIC CONSIDERATIONS AND ETHICAL
PRACTICE. QUESTIONS ABOUT THE VALUE OF NARRATIVE, REPRESENTATION, AND
LEARNING THROUGH DOING WERE RAISED BY THE WORK. © 2023 BY THE AUTHORS.