Spring 2019

Out and about

in Lincolnshire

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a r k i n s o n s U K L i n c o l n & d i s t r i c t b r a n c h n e w s l e t t e r - P a r k i n s o n s U K L i n c o l n & d i s t r i c t b r a n c h n e w s l e t t e r - P a r k i n s o n s U K L i n c o l n & D i s

Lincoln & District Branch AGM Linda, our Treasurer writes ...
The Lincoln and District Branch We are also continuing to search for Hello everyone, as you will have continue including 6 free sessions of
AGM for 2019 has taken place so someone with basic secretarial skills already noticed reading the complementary therapy with Maud and
we are now able to carry on as to take on the role of secretary which previous pages we have had the help with the costs of Neurophysio for
usual ... phew … well, almost. includes preparing an agenda for those that need it.
annual AGM and yet again I have
committee meetings that take place remained as your treasurer, this We can only do this if we manage to get
We have a committee of twelve which
around four times during the year and funds over the year to be able to pay for
includes a treasurer and a secretary. being the start of my 14th year.
taking and producing the minutes of those. the services and for costs of activities
Neville, our Chairman for the last I’m not trying to go for any record and such as hall hire etc.
two years, he who wrote the great tales Other Branch tasks can be carried out would be only too pleased to share / We are extremely grateful to everyone
of his childhood, as well as trying to without the need to join the committee; shadow someone if they felt they would who helps raise funds for us in many
steer the Branch along its path, has a list is to be drawn up of such tasks like to have a go at the role. It’s not as different ways, the one way that everyone
retired. Though he has promised more and we will be visiting the volunteer arduous as you might think, I’ve survived can be involved is by supporting the
tales from his very interesting life. bureaux in the near future. over the years without going too grey! Lincoln Lottery. We have ten people
As a Branch we are allowed to continue However if you have an Anyhow, all financial returns for 2018 and supporting us at present and it raises us
without a Chairman for a short while interest in joining the the budget for this year have been sent to £390 per year, if we could triple that ie.
but will be looking for someone with the team do contact 215 (PUK) and we carry on doing our best Thirty people it would be over £1,000.00
skills and will to take on the job in the either Paula that we can within our limitations. each year.
long term. or Linda. The good news for those that don’t If you need any help to set it up you can
already know is that all the activities and either contact the City Council phone
When the AGM business had been carried out and services that we have been providing number / email address or give me a call
refreshments were on the go our visiting speaker throughout the last year will be able to for assistance.
from Lincoln University set up his laptop and began to

A reason to celebrate
tell us about the COGNITIVE DAISY.
This seems to be a very simple idea but requires our support to obtain
information to take it forward. See the article and request by John Hudson February 2019, as many of you may we had an opportunity more than 30
on pages 4 and 5. well realise, is the 50 years anniversary people gathered at the Woodcocks,
of the beginnings of Parkinson’s Burton Waters to celebrate with

S u p p o r t O u r C a u s e
UK, known for many years as the balloons and chatter.
Parkinson’s Disease Society. The food was very good, the staff
Lincoln Community Lottery draw each week on Saturday at 8pm Lincoln Branch enjoys celebrations served us extremely well and a good
with food, so when we realised that time was had by all.
We need your help so we can continue to offer our
various activities and hopefully expand our service.
Thank you for your support and good luck!
About us: Parkinson’s UK Lincoln Branch Visit www.lincolnlottery.co.uk, select
provides a much valued service for “Buy Tickets” and enter “Parkinson’s UK
anyone who is affected by Parkinson’s Lincoln” in the search bar. This will take
including their carers and families within you to our page and select “Buy tickets”
our local community. and follow the instructions.
Lottery support: Visit lincolnlottery.co.uk | Tel: 01522 253888 | Email: support@lincolnlottery.co.uk
Always play responsibly, if you need to talk to someone about your gambling please contact www.gambleaware.co.uk. Lincoln Community Lottery is promoted by City of Lincoln Council, a
Local Authority Lottery licensed by the Gambling Commission. Gambling Commission Registration No: 000-051295-R-328529-001 © 2018 Gatherwell Ltd an External Lottery Manager (ELM)

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a r k i n s o n s U K L i n c o l n & d i s t r i c t b r a n c h n e w s l e t t e r - P a r k i n s o n s U K L i n c o l n & d i s t r i c t b r a n c h n e w s l e t t e r - P a r k i n s o n s U K L i n c o l n & D i s

The Cognitive Daisy (COG-D)

A tool for guiding care decision in Parkinson’s patients
Dr John Hudson and Dr Petra Pollux

Remembering strengths and Cognitive Daisy in Parkinson’s

weaknesses can pose a challenge For care of people in the community, the
for carers and this simple system Cognitive Daisy can be used to guide the

“
gives a visual guide to the decision making of family and friends. Above: Examples of individual patterns of need
individuals needs of support. Activities and pastimes that build on that
The Cognitive Daisy is a user friendly person’s strengths can be encouraged, Carers have reported that it has helped them when
system designed to give an instant thus improving esteem and wellbeing.
providing care; they are able to focus on the areas

”
snapshot of a person’s cognitive abilities Details of cognitive difficulties can be
and problems. used to predict problematic situations and of greater need and where residents have less needs,
promote safeguarding.
they can promote and encourage the
Professional carers can readily derive an
Seeing overview of the residents they will care
individuals to be independent as possible
for.
Understanding Ways to help with the research
Resisting

Communicating If you think COG-D would be useful for

ness
ware people affected by Parkinson’s
Remembering We need people with and without
Vi s

on
Distractio

iti
ual

ial A

Parkinson’s to be involved

gn
Attention co
Se

Spat

Re
Co Participants and advisors
arc

nc
on

en
h

tion
rs

tra Please let us know if you would like to

tio gni
Pe

n co contribute in either way

- Each person will have ec t Re
EN
T IO
N SEE
I Obj John M Hudson
different needs
Short-term Me
NG
TT

mory Senior Lecturer in Neuropsychology

MBERING A

UND

- It increases a sense Concept Formation 01522 886782 jhudson@lincoln.ac.uk

ERSTAND

of competence
y
ME

in the carer emor

IN

ion M
RE

G
Com
gnit
Time we reminded folk
CO
MMUNICATION
preh
- It helps staff Reco ens
ion


instantly recognise
strengths and e mo
ry
about medication timing in Parkinson’s
dM
Re

difficulties e The aim of this campaign is to educate to raise awareness of this campaign,
lay
ad

De
in

medical professionals, especially those as well as actively work with healthcare

ing
uring

- It informs decision
Writing

Nam

who work in residential environments professionals in their local area.

making & enhances
Gest

such as hospitals and care homes, about
person centred care.
how vital it is that people living with
Parkinson’s get their medication on time.
Parkinson’s UK are seeking volunteers
to help on a flexible, short-term basis
Contact Georgina (Local Campaign
Officer-East) for more information on
gsait@parkinsons.org.uk or by phone on
0344 225 9841.

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a r k i n s o n s U K L i n c o l n & d i s t r i c t
Community Transport
In February, the Branch Meeting
heard how Dial-a-Ride: Lincoln
is able to help those without
transport who are elderly or
disabled to get out
and about.
Lincoln Area Dial-a-Ride Ltd is a
Registered Charity that is managed
by a Board of Trustees that includes
users of both the Dial-a-Ride (DAR),
Voluntary Car Scheme (VCS) and
Shopmobility services.
The Dial-a-Ride service provides
accessible and affordable transport to our
local community. Users of the service can
be either elderly or disabled and of any
age (including children).
It dedicates itself to improving the quality
of life and promoting the social inclusion
and independence of those individuals
that are disadvantaged through age and/
or disability.
Lincoln Area Dial-a-Ride is only available
to those persons that qualify and become
registered with the service.
The core Dial-a-Ride service is available
Monday to Saturday 8.30am until 4.15pm.
Also 6.30pm until 9.45pm Monday to
Friday. We are closed on Bank Holidays.
Our Booking lines are open :
Dial-a-Ride 01522 544983 - Monday to
Friday 9am to 3.30pm (please note that
the line closes at 3.30pm and we are
not able to take bookings after this time
as we will be preparing the schedules
to send to the volunteer drivers for the
following day
Shopmobility: 01522 514477 - Monday
to Saturday 9am to 4.15pm (the office is
also closes on a Saturday between 12pm
and 1pm)
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b r a n c h n e w s l e t t e r - P a r k i n s o n s
ShopMobility will assist
You can become a Member of
Lincoln Shopmobility or use its
services as a visitor.
Lincoln Shopmobility is operated by Lincoln
area Dial-a-Ride Ltd and is a not for profit
service that provides the loan of powered
scooters, powered wheelchairs, manual
wheelchairs and wheeled walking aids to
assist those less mobile in accessing the
shopping precincts and other places of
interest within the City of Lincoln.
Perhaps you remember...
In the previous newsletter Ross Clifford,
a senior lecturer at the University of
Lincoln, outlined a potential study at the
University of Lincoln involving walking
analysis of people with movement
symptoms related to Parkinson’s disease.
Thank you to those who have already
expressed an interest in the research
and have already contacted Ross.
The research has now been given
favourable ethics opinion by the
University’s ethics panel.
You can see more details on the study
below. If you would like to express an
interest in this study or to ask questions
then you can contact Ross Clifford by
email: rclifford@lincoln.ac.uk
So here are the details
U K L i n c o l n & d i s t r i c t b r a n c h
East Midlands Local Development Team
Linda writes ...
Just in case any of you aren’t aware;
my role with the above team is
volunteer for Lincolnshire. Katie
Smith is the Area Manager and we
have volunteers for the other counties
within the East Midlands, we alternate
meetings one face to face and one
phone conferencing each month.
As we have budgeted to spend some of our
branch’s money on local development projects
within Lincolnshire I thought it would be good
to write a few words for each newsletter to
keep you in touch with what is happening.
We’re going to have a “Wellbeing Day” at the
Bentley hotel on Wednesday 5th June. This is
going to be run as 2 sessions over the day
10am to 12.30pm and repeated in the afternoon
at 1.30pm to 4pm thus enabling people to
attend at a time to suit them on the day.
We are inviting people to come and
Call for participants
Participants are wanted for a new
investigation in to whether computer
software can distinguish video
recordings of walking patterns caused
by Parkinson’s disease from ‘normal’
walking patterns. The computer
software will analyse only the outline
of your movement and thereafter the
video recording will be deleted.
You will be asked to participate in a
simple walking task on one occasion,
over a maximum total distance of
10 metres (3 x 3 metres). You must
be able to walk unaided over this
distance. Your walking pattern (gait)
will be captured using a standard
video recorder. You will be fully
clothed throughout but ideally in
n e w s l e t t e r - P a r k i n s o n s U K L i n c o l n & D i s
showcase their services and or products
which are of value to those people affected
by Parkinson’s to help improve their mental
and physical wellbeing.
Further details and how to book your place
will be available shortly.
In either September or October we are
having a County Day based on our Working
Together for Lincolnshire. This is a chance
for all branches, support groups and cafés
throughout Lincolnshire to get together
and plan how we can all benefit by working
together to provide support for everyone
throughout Lincolnshire equally, regardless
of where in the County they live.
I have one or two ideas about where to meet
but I would like to know where you think it
would be suitable and within reasonable
travelling distance for everyone.
Just give me a call or email with
your suggestions, 01522 872414
or lincolnparkinsons@gmail.com
closefitting clothing. The session is
expected to take 15-20 minutes.
To be included in the study you must
have a diagnosis of Parkinson’s disease
and consider yourself to potentially
have movement difficulty due to
Parkinson’s disease. You will be
aged between 18-65 years old.
We are looking for male and
female participants.
This research could have
implications for the monitoring of
Parkinson’s disease progression
and medication control. If you
are potentially interested in
participating, please contact
Ross Clifford, Senior Lecturer at
the University of Lincoln, 01522
835450 or rclifford@lincoln.ac.uk
a r k i n s o n s U K L i n c o l n & d i s t r i c t b r a n c h n e w s l e t t e r - P a r k i n s o n s U K L i n c o l n & d i s t r i c t b r a n c h n e w s l e t t e r - P a r k i n s o n s U K L i n c o l n & D i s

Hurry Up
by Sue Hammond
Become a Volunteer - Nordic
“Can’t you hurry up?” came the voice from the back of the queue,
Walking Instructor for Parkinson’s
they don’t realise what that throw away comment has done to you
As my confidence goes spiralling down to the floor
UK in the East Midlands
I just want to escape and head for the door. Parkinson’s UK are offering a In addition to instructing the technique
fantastic volunteering opportunity of Nordic Walking, you will also gain
As I try to hurry and put my change in my purse the opportunity to visit local Parkinson’s
to become a Volunteer Nordic
The Parkinson’s symptoms are now so much worse Walking Instructor, to help inspire groups to introduce them to Nordic
Apologetically facing the queues hostile glare and support people living with Walking and benefits it can bring.
Everyone’s in a rush, too busy to care. Parkinson’s across the East This is an immensely rewarding role
Midlands to get outdoors and for anyone who enjoys walking, loves
They don’t know that I fight everyday to stay independent being outdoors and supporting others to
active Nordic Walking.
As I now deal with the ripples of that thoughtless comment achieve their potential.
As a Volunteer Nordic Walking Instructor,
On a good day I can function although I’m a bit slow
you will give up to 10 hours of help
On a bad day My body just stops and won’t go.
a month which can flexibly fit around
One day you’ll be frail and old, stood in the queue other commitments you may have.
What difference does five minutes really make to you In this volunteer role there is a strong
So next time you’re in a rush, wait and take a deep breath emphasis on being a champion for
Nordic Walking, helping to inform and
coz the person in front may only have their dignity left.
inspire people living with Parkinson’s in Parkinson’s UK is proud to be
your local area to try out this beneficial partnering in this project with British
activity. As a volunteer, ideally you Nordic Walking, who will be training
All Shook Up is a whole book would have some awareness of volunteers to become Nordic Walk
of poetry written by Sue and Parkinson’s and a basic understanding Instructors. Their Nordic Walking
her friends. of how it can impact people in their day technique is internationally recognised,
to day lives. and British Nordic Walking are a
£6.99 from Sue or email
Nordic Walking is an activity that has member of the International Nordic
the branch on Walking Federation (INWA), the global
been shown to have positive effects
lincolnparkinsons@gmail.com on mobility, posture, brain activity and governing body of Nordic Walking.
www.xlibrispublishing.co.uk balance in an inclusive, enjoyable All volunteers will be provided for free
and social environment. All of which with any training or equipment required
are vital benefits to people living with to deliver in this role and help with
Available now Parkinson’s to help them maintain their travel expenses is also available.
physical and mental health. Parkinson’s UK are very happy to
As a volunteer you will give group consider joint applications from
‘taster session’ and demonstrations prospective volunteers who wish to
as well as work with people on an work as a team to deliver this role.
individual basis to mentor their For more information about this role
confidence and skills to be able to enjoy please call 0344 225 9863 or email
Nordic Walking safely. k.smith@parkinsons.org.uk

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a r k i n s o n s U K L i n c o l n & d i s t r i c t b r a n c h n e w s l e t t e r - P a r k i n s o n s U K L i n c o l n & d i s t r i c t b r a n c h n e w s l e t t e r - P a r k i n s o n s U K L i n c o l n & D i s

A visit to Barnsdale Gardens, Carers Group DATES FOR THE DIARY

Rutland Water. 26th June 2019
Parkinson’s Lincoln Branch will
be going to Barnsdale Gardens
(The late Geoff Hamilton’s Gardens
that were featured on TV for many
years) on the 26th June 2019.
We will be using our own cars to get
there to arrive and go in together for
11am.
Anyone who can offer a lift to members
who would like to go on this trip, as a
friend, it would be greatly appreciated.
The subsidised cost of entry to
Parkinson’s Lincoln Branch members
will be £5 per person.
This price is the same for carers.
This a good price reduction as the full
price is £9.50 per person.
Please book your place by May 13th
in person with Linda Flintham or by
telephone: 01522 872414 or email:
lincolnparkinsons@gmail.com
Barnsdale Gardens informed us
that most areas are accessible for
disabled people. Toilets on site
including for disabled persons. There
is a café on site and a large car park.
All at The Woodcocks, Burton Waters, Lincoln Up and coming events
n Thursday 18 April. 2pm (afternoon)
Monday Branch meetings are held at
Please note that the café can be very n Thursday 16 May. 7.30pm (evening) Bracebridge Heath Village Hall from
busy so expect to wait a while for any n Thursday 20 June. 2pm (afternoon) 2pm to 4pm.
meal you order. Some people meet at 12.30pm at the
n Thursday 18 July. 7.30pm (evening)
Please contact Allan Binding if you Bull hostelry, close by the village hall,
can offer a lift to anyone wishing to go Bowling for lunch prior to the meeting, all are
on this visit. welcome.
Bowling at the Grandstand, Carholme Road,
Contact details 01522 879002 or
Lincoln most Tuesdays 2pm to 4pm. n Monday 8 April
email abinding7@gmail.com
Contact Paula Justham 01427 788725 Oonagh Quinn from Health Watch
n Wednesday 8 May
Monthly drop in Singing for Fun Pub Lunch at The Ferry Boat Inn in
Parkinson’s Cafés First and third Wednesday each month Washingborough. Booking essential.
n Gainsborough 2pm to 4pm at: North Hykeham Town n Monday 13 May
Council Offices, Fen Lane LN6 8EY Isle of Wight - Landscape and Wildlife
Our newest informal drop in café.
25 April 2019 1pm - 2.30pm For details contact Karen Missenden
n Monday 10 June
on 01522 693160 Informal Meeting
Disability Network Office,
Marshalls Yard DN21 2NA
Pub Lunch n Wednesday 26 June
Contact Katie Smith on A Visit to Barnsdale Gardens, Rutland
0344 225 9863 or 07831 256748. A Pub Lunch has been organised
Water has been organised in June.
for the 8th May at:
n Mablethorpe See separate article.
The Ferry Boat Inn, 4 High Street,
Booking essential.
An informal drop in on the third Tuesday Washingborough LN4 1AZ
of the month between 10am to 12.30pm n Monday 8 July
Booking is essential as spaces
The Conservatory, Linkage Green café, Craft afternoon
are limited.
Stanley Avenue, Mablethorpe LN12 1DP n Monday 12 August
See Linda Flintham at a branch meeting
Contact Martin on 01507 339460 or telephone 01522 872414 or email at Garden tea to be arranged by
or email: martinsellars6@gmail.com Branch Committee
lincolnparkinsons@gmail.com
n Woodhall Spa n Monday 9 September
An informal Drop in on the second Exercise Classes 2019 Special edition chocolates
Wednesday of each month, between from Market Rasen
Mondays from 2pm to 3pm at
11am to 12.30pm Bracebridge Heath Village Hall. n Monday 14 October
Methodist Church Coffee Room
n May 20th Ghost Walk Talk by Karen Crow
Iddesleigh Road. Woodhall Spa LN10 6SH
Contact Christine on 01526 353606 or n June 3rd, 17th and 24th n Monday 11 November
email christinesharpe40@gmail.com Goltho Gardens. The designing
n July 1st, 15th, 22nd and 29th
and building of the garden.

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a r k i n s o n s U K L i n c o l n & d i s t r i c t b r a n c h n e w s l e t t e r - P a r k i n s o n s U K

Who’s who L I S T O F C O N TA C T S
National confidential helpline Janette Olive
0808 800 0303 Parkinson’s Local Advisor
(Free from UK landlines & most mobile networks) for North & South Kesteven,
Boston & South Holland districts
Email: hello@parkinsons.org.uk
National website: parkinsons.org.uk 0344 225 3606
Local page: www.parkinsons.org.uk/lincoln jolive@parkinsons.org.uk

Lincoln Branch Aimee Silvey

email: lincolnparkinsons@gmail.com Parkinson’s Local Advisor
for local general enquiries for East & West Lindsey districts
and the city of Lincoln
Follow us on Facebook 0344 225 3627
ParkinsonsUK.LincolnBranch asilvey@parkinsons.org.uk
Linda Flintham
Lincoln Branch Carers Group
Vice Chair and Treasurer
Margaret Martin
Fundraising Team Leader
01427 788639
01522 872414
Val Barber
Paula Justham. Branch Secretary 01522 691102
01427 788725
Carers Team, Lincolnshire County Council
Working Age Parkinson’s Group 01522 782224
Karen Missenden & Martin Newton Email: carers_team@lincolnshire.gov.uk
07498 412539
Everyone (formerly Lincolnshire Carers
Brenda Mighell. Exercise Classes
and Young Carers Partnership)
01526 321157
01522 811582
Allan Binding Email: hello@every-one.org.uk
Monthly Programme Team Leader
01522 879002 Dial-a-Ride. Lincoln Area
abinding7@gmail.com 01522 544983

If you no longer wish to receive this newsletter, or would prefer a copy by email,
please contact Paula Justham or email: lincolnparkinsons@gmail.com
Please note our Privacy Policy is available at Privacy policy | Parkinson’s UK
https://www.parkinsons.org.uk/about-us/privacy-policy-29-June-2018
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DISCLAIMER: Parkinson’s UK (Lincoln Branch) accepts no responsibility for the content of any advertisement
published in or enclosed with the Newsletter. Readers should note that the inclusion of any advertisement in no way
implies approval or recommendation of either the terms of any offer contained in it or of the advertiser by the Branch.

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