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1 Social Science Research Ethics For A Globalizing World
1 Social Science Research Ethics For A Globalizing World
The word ‘ethics’ is derived from the Greek ethos, meaning a person’s char-
acter or disposition, whereas the related term ‘morality’ is derived from the
Latin moralis, meaning custom, manners or character (Kimmel, 2007: 5).
In general, philosophers have drawn a distinction between morals in terms
of concerns of right or wrong, ought or ought not, a good action or a bad
one and the term ‘ethical’ as often used to refer to rules of behavior or
conformity to a code or set of principles (Kimmel, 2007: 5). The systematic
study of ethics is linked to ancient Greek civilization, and it included both
the study of the underlying basis for shaping judgments in specific situations
of what constitutes appropriate conduct and the essence of the judgments
themselves (Preissle, 2008). Some scholars, however, prefer to use the term
‘ethics’ for the study of frameworks for judgment (e.g., consequentialism)
and to use the terms ‘morals’ and ‘morality’ for specific injunctions (e.g., do
no harm) (Preissle, 2008: 273). The distinction between ‘ethics’ and ‘moral-
ity’ is culture specific, as Europeans view it in terms of a binary opposition
between “right and wrong, good and bad and doing the right thing and
avoiding wrong action,” whereas the Chinese see it as balancing comple-
mentary or competing forces, such as the Chinese yin and yang (Preissle,
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2008: 273). Florence Kellner has eloquently marked out the distinction
between the letter (codes) and the spirit (morality) and sees research as more
about morality than ethics (2002: 32).
Ethics are conceptualized in multifaceted ways: (1) Descriptive ethics pres-
ents the empirical dimensions of social sciences, which address the actual
behavior and the values that guide this behavior. (2) Normative ethics engages
with fundamental questions on the behavior of people that could be cate-
gorized as ‘good’ or ‘bad’ behavior and the distinction between these two
domains of ethics’ ‘is’ and ‘ought’ sides of human behavior. (3) Metaethics
engages with reasoning of moral decisions and the characteristic of moral con-
duct. (4) Applied ethics is based on normative ethics, which forms the basis
for the resolution of moral questions. Social science research ethics is in the
domain of applied ethics (see Kitchener 2000; Kitchner and Kitchner 2009).
In addition, Kitchener and Kitchener (2009) have developed a five-level
model of ethics: the lowest level is of particular behavior (action) and
6 Keerty Nakray
ordinary moral judgment. The second level is that of ethical rules that gov-
ern the decisions and actions, and this is where the critical evaluative level
begins. The third level is ethical principles that include morals, rules and jus-
tification for their existence. The next level is that of ethical theory, which is
the traditional normative ethics that defines worthwhile behavior. The fifth
and final level is metaethics, which includes the meaning of ethics.
According to Preissle (2008), normative ethics form the basis for research
ethics and it also, within its ambit, further incorporates justice-based ethics,
duty-based or deontological ethics, consequence-based or utilitarian ethics
and virtue-based ethics. Justice-based ethics is an assimilation of human
rights and tenets of fairness to form the underlying framework related to the
treatment of all human beings. It is guided by Aristotelean thought, that is
that “equals should be treated equally and unequals unequally” (Velasquez
et al., 1990). In modern societies, justice ethics is defined through statutory
agreements. Duty-based or deontological ethics is based on rules, duties and
obligations that humans have to their fellow humans, their communities and
Meta-Ethics
Ethical Theory
August 1947, the presiding trial judge, Walter Beals, promulgated criteria for
‘permissible medical experi- ments’; although he stressed that “certain types
of medical experiments on human beings, when kept within reasonably well-
defined bounds, conform to the ethics of the medical profession generally,
these criteria were not invoked by the judges in reaching their verdict”
(Weindling, 2001: 38). The judges viewed the Nazi experiments as crimes
against humanity and as war crimes. In fact, eight of the 23 defendants were
acquitted, indicating how complex it was to discriminate between war crimes
and politically sanc- tioned racial atrocities, on the one hand, and legitimate
scientific inquiry, on the other. Moreover, the prosecution was confronted
by a broad range of human experiments, varying greatly in scientific
sophistication—from the crude wounding of limbs, to comparative vaccine
trials. The nature of clini- cal experiments carried out by scientists at the
time could lead to serious aspersions being cast upon the moral and legal
justification of jeopardizing
human lives for the sake of scientific advancement. Therefore, the Code
played a vital role in assuaging concerns of human safety and ensured legal
safeguards (Weindling, 2001).
The World Medical Association’s (WMA) Declaration of Helsinki
went a step further than the Nuremberg Code and was formally adopted
by the General Assembly of the WMA in 1964. It introduced the concept
of guard- ianship, which is for subjects who are not able to consent for
themselves, such as children; the consent can be provided by their legal
guardians Coun- cil for International Organizations of Medical Sciences
(CIOMS) in collabo- ration with the World Health Organization (WHO),
2002. The Nuremberg Code (1949) and the Declaration of Helsinki
(World Medical Association, 1964) have set the international standards
on scientific research across the world. The Declaration of Helsinki has
been amended five times since its inception (Carlson et al., 2004). The
latest amendment to the Declaration in Edinburgh (2000) stated:
“Research investigators should be aware of the ethical, legal, regulatory
requirements for research on subjects in their own countries as well as
applicable international requirements. No national, eth- ical, legal or
regulatory requirement should be allowed to reduce or elimi- nate any of
the protections for human subjects set forth in this Declaration” (CIOMS
WHO, 2002).
The National Institutes of Health (NIH) (1966) developed policies for
the protection of human subjects based on the Nuremberg and Helsinki
standards. All institutions receiving funding from NIH were required to
establish Institutional Review Boards (IRBs). The IRBs comprise academic
staff members within the university or college, one community representa-
tive and one non-scientist representative. It is the responsibility of the uni-
versity based IRB to carry out appraisals of the proposal and take final
decisions pertaining to rejection and approval on the projects. All medical
and psychological research is expected to conform to these regulations with
some minor exceptions made to social science disciplines such as sociology,
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tion in the United States, including a clear call for fully informed consent
from research subjects. Henry Beecher was not in favor of institutionalizing
formal rules or the creation of ethics review committees but rather argued
in favor of the “presence of an intelligent, informed, conscientious, compas-
sionate and responsible investigator offered the best protection for human
research subjects” (Harkness et al., 2001: 366). Controversies in research
ethics continue to persist and careful attention to ethics should be part of
every scientist’s approach to research (Hazelgrove, 2002).
History is replete with examples of public outcries against the pursuit
of scientific knowledge carried out with scant concern for the well-being
of all living things. Some other examples include the Tuskegee Syphilis
Trials (1932–1972), Willowbrook Hepatatis Study (1963–1966), Mkultra
Project (1953–1964), Milgram Experiment (1961–1962), Stanford Prison
Experi- ment (1971) and Humphrey’s Tearoom Trade (mid-1960s) (Ragin
and Amoroso, 2011) (see Table 1.2).
Table 1.2 Case Studies of Ethical Failures in Scientific Research
Tuskegee Syphilis Trials: In the early 1930s, the trials were undertaken under the
US Public Health Service (PHS), which began a study of the long-term effects
of untreated syphilis. For the purposes of the study, 399 African-American
men with syphilis from rural Alabama were enrolled without any consent
or knowledge of being enrolled for the study. In 1947, when penicillin was
invented, it was deliberately not provided to these men, and researchers
continued with their research on long-term consequences. The findings of
the study were published in several journals, and it was only in 1972 that a
newspaper reporter exposed it to the wider public. The researchers had made
conscious efforts to ensure that these research participants did not see a doctor
outside of the study (Reverby, 2008). By this time, over two-thirds of the men
had died from syphilis or syphilis-related complications. In 1997, President
Bill Clinton apologized to the six remaining men from the study and to all
African-Americans. Nearly forty years after the study ended and ten years after
the formal apology, “Tuskegee” still reminds some Black Americans of the
institutional racism deeply embedded in the health-care system and why medical
research should be accountable (Reverby, 2008).
Willowbrook Hepatatis Study (1963–1966): The Willowbrook State School in
Staten Island, New York, housed and cared for mentally disabled children.
Dr. Saul Krugman from the New York University School of Medicine and
his coworkers began conducting hepatitis studies there in 1955 and
continued hepatitis studies there in 1955 and for more than 15 years. The
children from the school were deliberately infected with hepatitis, as there
was a tendency among the children admitted to the school, therefore if
infected under medical supervision the intensity was likely to be less. The
purposeful transmission
of the disease was questioned not only on ethical grounds but also on legal
grounds. The researchers had obtained consent from the parents of each child.
Parents of children who participated early in the study gave consent after
receiving information provided by Willowbrook orally and in writing. One
of the key questions relates to appropriateness of parental consent when the
children received no therapeutic benefit for his or her involvement.
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(Continued )
14 Keerty Nakray
Table 1.2 (Continued)
thought that believes that our concepts and knowledge can be achieved
beyond the sense experience. The three theses that form the bulwark of
rationalism include: a) The Intuition/Deduction Thesis pro- poses that
certain hypothesis can be known through intuition, whereas others have
to be deduced through valid arguments. (b) The Innate Knowl- edge
Thesis supposes the existence of innate knowledge of propositions as a
priori, that is, independent of experience and some of these propositions
might come into consciousness through experiences but do not create
new knowledge. (c) The Innate Concept Thesis as some claim is
subsumed within the innate knowledge; that is, a particular instance of
knowledge can be innate only if concepts that comprise that proposition
are innate. The com- peting epistemology was empiricism; that is, all
knowledge is a posteriori dependent upon sense experience (Markie,
2004). For empiricists, such as John Locke (1632–1704), human beings
are born tabula rasa, that is, with a ‘clean slate.’ What we come to know
is the result of our experience written
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Table 1.3 Paradigms: Epistemology, Ontology, Methodology and Methods in Social Science Research
Paradigm/
Type of Values and Ethical
Theory Criteria Form of Theory Narration Protocols
(Continued )
Table 1.3 (Continued)
Source: (Creswell, 2009; Guba and Lincoln, 1994: 193–97; 198–99; Lather, 1992)
20 Keerty Nakray
on that slate (Bernard, 2006). Hume’s (1711–1776) skepticism, based on
empiricist philosophy of knowledge, forms the basis of principles of modern
science. That is, we have to make improvements in existing knowledge, we
are moving toward truth but we can never reach a point to claim absolute
truth (Bernard, 2006). Immanuel Kant (1724–1804) questioned division
between a priori truths and a posteriori truths, he proposed the powerful
idea that a priori truths exist but our perception of truth is based on our
minds’ capabilities to organize sensory experience (Bernard, 2006).
The philosophical principles that formed the basis for scientific revolu-
tion in the 17th century propelled a greater interest in the application of
these principles toward understanding social problems. The leading French
thinker August Comte, founder of sociology, initiated the idea of a posi-
tivist approach to social sciences. Subsequently, Comte was followed by
another influential French scholar Emile Durkheim (1858–1917), whose
epoch-making work Suicide emphasized the role of social facts in shaping
everyday human behavior. Their leading counterparts in Germany, such as
G. F. W. Hegel (1770–1831), focused on dialectical views on varied
social processes, relationships, conflicts and contradictions (Ritzer and
Goodman, 2004). On the contrary, Karl Marx focused solely on the
dialectics of eco- nomic relations, whereas Max Weber introduced
verstehen in the context of study of society, and he understood human
motivations as being the result of a complex juxtaposition of varied
forces, including religion, capitalism, bureaucracy and industrialism.
Foucault provided a radical departure from these perspectives, focusing
on power as emerging from various sources to shape the experiences of
the modern human being. Feminist thinking led to paradigm shifts in the
social sciences, which was otherwise dominated by white, middle-class
thinkers who did little to capture women’s experi- ences. The purpose of
feminist research is to present women’s everyday life experiences as
valuable sources of knowledge toward understanding power hierarchies
in the society (Campbell and Wasco, 2000: 783).
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human suf- fering and oppression. Being critical requires a radical ethics,
an ethics that is always/already concerned about power and oppression,
even as it avoids constructing power as a new truth (Cannella and
Lincoln, 2011: 81). In their groundbreaking book Real Social Science:
Applied Phronesis, Flyvb- jerg, Landman and Schram questioned the
possibility of social sciences on the lines of natural sciences. They have
viewed social science enquiry as a site of contestations that involves
human consciousness, volition, power and reflexivity and attempts to
build generalizable, predictive models such as those for the natural world
are misplaced and even futile (Flyvbjerg et al., 2012: 1). In this context,
ethical research assumes new meaning that is one wherein researchers
follow the ethics of care toward their partici- pants and also to
themselves through self-reflective research practice (Gibbs et al., 2007).
Research Training in “Ethics”: Interdisciplinary
and Cross-Cultural Practices
In the context of cross-cultural research, critical research ethics has come
into prominence as it questions social contexts in which research is
carried out is not merely focused on research participants to prevent
further subjec- tification (Sikes, 2013). Growing criticisms of rigidly
defined ethical proto- cols emerges from its original basis in positivism,
wherein it was assumed that information could be elicited from
participants with little consideration to their social contexts (Holliday,
2013). Often students from non-Western cultures perceive ethical
procedures as non-negotiable, which is not actu- ally the case. Ethical
procedures evolve with research, with ingenuity of the researchers and
participants (Moosa, 2013). Therefore, cross-cultural research often
entails a dialogue between the researcher’s objectivity to achieve
academic outcomes against demands of local cultures. This rela- tionship
of subjectivities with a pinch of ‘objectivity’ is a raison d’etre for the
hybridity of universal ethical standards and local ethical environments
(Shamim and Qureshi, 2013).
Most universities in developed economies have adopted the new ethics
paradigms in the form of an Institutional Review Board with a set of cen-
tralized policies, bureaucratic procedures and processes that place limita-
tions on academic freedom to explore the field freely (Boden et al., 2009;
Israel and Hay, 2006). However, much of the focus of these boards has been
reduced to focusing on harm reduction to the research participants rather
than the ethical responsibilities of researchers (Kellehear, 1993). The tradi-
tional impersonal and objective ethical model assumed the separation of the
researcher and the researched, but the new fieldwork being practiced sug-
gests less distance or detachment between the researchers and the researched
and a new ethics or moral imperative that is not yet codified (De Laine,
2000: 4). Similarly, John Johnson and David Altheide (2002: 61) state that
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First
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