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Teachers + Families = Success for All Students

Demystifying
the IEP Process
for Diverse
Parents of
Children With
Disabilities
Lusa Lo

3
6

s
14 COUNCIL FOR EXCEPTIONAL CHILDRF.N
Mr. Sau's IEP Meeting Experience
Laws concerning special education,
such as the Individuals With Disabili- One of Mr. Sau's children was diagnosed with pervasive developmental disor-
ties Education Improvement Act of der-not otherwise specified. Mr. Sau received a meeting invitation 2 weeks
2004 (IDEA, 2006) and its predeces- before his son's initial IEP meeting. Althotigh the meeting was scheduled dur-
sors, were enacted to ensure that all ing his work hours, Mr. Sau knew that it was important for him to meet with
children with disabilities ages 3 to 21 his son's teachers. After numerous requests, his boss permitted him to take
receive a free and appropriate public time off from work without pay. Mr. Sau did not know how long the meeting
education as well as services that would last, so he asked to take 3 hours off from work.
address their needs. Local education Mr Sau arrived at his son's school 15 minutes prior to the meeting. He
agencies are mandated to have a team showed the school secretary the meeting invitation. The secretary said some-
of individuals hold an annual individu- thing to him, which he did not understand and then handed him a piece of
alized education program (IEP) meet- paper with "312" written on it. He went up to the third floor and found Room
ing for each child with a disability (34 312, but someone was using the room. He stood in the hallway and waited
C.F.R. §300.320). This team of individ- patiently. A teacher walked by and asked if she could help him. Mr Sau
uals should include, but is not limited handed her the paper with "312" written on it. The teacher then used the
to, parents/guardians, special educa- hallway phone to call the office. After a while, she gestured to Mr. Sau to fol-
tion teachers, general education teach- low her. She led him to another building where the meeting was taking place.
ers (if the child participates in the gen- Mr Sau noticed that he was 20 minutes late to the meeting. When he entered
eral education classroom), paraprofes- the room, he was shocked to see seven people already sitting around ihe
sionals, service providers (e.g., occupa- table.
tional therapists), and, as appropriate, Immediately after Mr Sau sat down, the meeting began. All the individu-
the student with disabilities. als in the room introduced themselves. The interpreter began interpreting, but
Active parental involvement in the because she spoke Mandarin and Mr. Sau spoke Cantonese he could not
IEP process is strongly emphasized in understand what she was saying. In order not to further delay the meeting,
IDEA. The underlying assumption of he simply nodded nervously. Fifteen minutes after the meeting began, two
more people walked in the room and sat down. During the meeting, two of
this expectation is that when parents
the participants left. At the meeting, each professional took turns saying
are actively involved in making deci-
something related to the papers they handed Mr Sau. Although the other IEP
sions regarding special education serv-
team members sometimes spoke for a long time, the interpreter's interpreta-
ices and placement, their children ben-
tions were often very short. To show his respect, Mr. Sau simply nodded. The
efit. However, according to Kalyanpur
entire meeting took about an hour Mr. Sau wished that he had known ahead
and Harry (1999), this belief is reflec-
of time that the meeting would only take an hour so that he could have
tive of a culture that values individual-
planned more accurately how much time to take off from work.
ism, equality, and the need to exercise
one's rights. These values are not
always shared by families from other
Before Hie IEP Meeting their home country. It is common for
cultures, and the complicated IEP
CLD families to attend their child's first
process is foreign to many immigrant Background Preparation
team meeting without knowing its pur-
families (Hughes, Valle-Riestra, & Much of the existing literature provides
Arguelles, 2002; Lo, 2008; Salas, 2004). pose (Hughes et al., 2002). Similar to
professionals (including educators and
These barriers, together with linguistic Mr. Sau, some parents might assume
service providers) with useful sugges-
challenges (Park, TurnbuU, & Park, they are there simply to meet with the
tions regarding how to increase parent
2001), can prevent culturally and lin- student's teacher and discuss their
participation in IEP meetings, such as
guistically diverse (CLD) families from child's progress. However, as soon as
using a round meeting table to show
fulfilling their expected roles in the IEP the equal status of all meeting partici- they step into the meeting room, they
process. Educators and service pro- pants (Dabkowski, 2004), providing are often shocked to see the large num-
viders should be prepared to demystify parents with information prior to IEP ber of individuals present at the meet-
the process for this growing popula- meetings (Lytle & Bordin, 2001), and ings (Simpson, 1995), at which point
tion. This article includes the very dif- being attentive to parents' concerns they realize that this meeting is much
ferent experiences of two parents when during discussions (O'Donovan, 2007). more than the usual parent-teacher
they went through the IEP process (see However, parents' perceptions of IEP conference. Parents new to the process
boxes, "Mr. Sau's IEP Meeting Experi- meetings begin as soon as they receive can greatly benefit from receiving
ence" and "Mrs. Carcia's IEP Meeting the IEP meeting invitation. background information from the
Experience") which help to identify Parents who are new to the United teacher, another parent, or even
best practices for professionals in States may find the special education through a short video explaining the
working with CLD parents. process very different from the one in process.

TEACHING EXCEPTIONAL CHILDREN | JAN/FEB 2012 15


Watkins, 2006)—it may be helpful for
Mrs. Gorcia's lEP Meeting Experience the general or special education
teacher to meet with the parents face-
Mrs. Garcia was very concerned about her son Alfredo's academic perform-
to-face before the IEP meeting, provid-
ance. The school suspected that he might have a disability and wanted to
ing information in the parents' native
evaluate him. Mr. Nelson, Alfredo's third-grade teacher, met with Mrs. Garcia,
language and answering general ques-
explained the evaluation process to her, and asked her to discuss it with her
tions about the process. At the IEP
family and determine if they would consent to having Alfredo evaluated for
meeting Mr. Sau attended, each profes-
special education .services. At the meeting, Mrs. Garcia learned that if Alfredo
sional took turns saying something
was eligible for special education services, a team would be formed to dis-
related to various reports (written in
cuss his services and placement; it was important for Alfredo's parents to be
English), as they handed these to him.
involved in this process because they were Alfredo's advocates and decision
It would be helpful to provide parents
makers. Mrs. Garcia went home, discussed it with her husband, and agreed
with important materials (e.g., evalua-
that the school should evaluate Alfredo so they could find out if he had a dis-
tion reports) prior to the meeting and
ability. Mr. Nelson and the special education teacher then scheduled another
translated into the parents' native lan-
meeting with Mrs. Garcia and informed her of the process after the evalua-
guage. Because Mrs. Garcia was new to
tion, her rights, and how she could be involved and prepared for the IEP
the special education process, instead
meeting. They told Mrs. Garcia to review the information with her family and
of sending her a consent form to sign,
invited her to speak with the teachers whenever she had any questions. She
Mr. Nelson took the time to meet with
also received a list of resources in her community. All the written information
her, explain the process, and offer
she received was in Spanish, her primary language. Because this process was
information such as the timeline and
new to her, Mrs. Garcia was pleased that the teachers took the time to meet
her rights as the parent. Mrs. Garcia
with her and explain the process in detail. She was also glad that the school
was never pressured to make any deci-
wanted her to be involved in the entire process.
sion at the meeting. Instead, she was
Prior to the team meeting, the professionals met with the Spanish inter-
encouraged to discuss it with her fami-
preter and explained how the meeting would be structured; they also provid-
ly. Mrs. Garcia shared that she felt she
ed her with a glossary of terms commonly used in IEP meetings. They asked
was part of the team and knew that
how often they should pause for her to convert oral messages. At around the
the school cared and wanted her son to
meeting time, the school secretaty informed the team that the parent had
succeed.
arrived. Mr. Nelson greeted Mrs. Garcia at the school office and escorted her
to the meeting room. The professionals and interpreter took turns introducing Schools should also consider offer-
themselves and stating their roles in the meeting. Mrs. Garcia was not sur- ing training sessions and workshops
prised to see the number of people at the meeting because their names had (with interpretation support) for par-
been in the invitation notice; it was nice to connect the names with faces. ents who have attended IEP meetings
Although Mrs. Garcia was riervous, she felt prepared because the meeting previously and need more information.
agenda and all the evaluation reports had been sent to her prior to the meet- Professiotials can invite parents who
ing. Alfredo was found eligible for special education services. The team dis- are familiar with the process to serve
cussed his services and placement. Throughout the meeting, Mrs. Garcia was as speakers. Parents of children with
repeatedly invited to ask questions, and the other members verified that she disabilities are more likely to relate to
understood the discussion. Toward the end of the meeting, Mrs. Garcia was others who can speak their own lan-
informed what she would receive after the meeting and when she would guage (Lo, 2010) and have experienced
receive it. If she had any questions, she was welcome to meet with the team similar challenges as theirs (Bull,
chair. 2003). Such a connection can allow
parents who are new to the complicat-
ed IEP process to see that with suffi-
* Recommendations for Practice uted at IEP meetings, Mr. Nelson chose
cient knowledge and information, they
Prior to sending home IEP meeting to inform Mrs. Garcia about her rights
can learn to be prepared and become
prior to the first IEP meeting. This
invitations, teachers should provide better advocates for their children with
preparation not only allowed Mrs.
parents with some basic information, disabilities. Parents can also offer each
Garcia to be familiar with her rights,
such as the purpose of IEP meetings, other additional emotional and psycho-
but also enabled her to see the impor-
what the IEP process entails, the prepa- logical support.
tance of her involvement throughout
ratiotis they tnight want to cotisider the process.
making before the meeting, their rights
Hie Day of the IEP Meeting
Because paperwork is likely to over-
in the process, and the importance of whelm many CLD parents—especially Welcoming Parents
their participation in the process. when the documents may not be writ- Although it was not Mr. Sau's first time
Although the notice regarding proce- ten in their primary language or to being at his son's school, he purposely
dural safeguards is commonly distrib- their level of education (Fitzgerald & arrived at the school early. Unfortun-

16 COUNCIL FOR EXCEPTIONAL CHILDREN


ately, due to the lack of assistance at them to have many professionals gath- spoken in the United States (U.S.
the school site and the complexity of er and discuss their child's needs. Census Bureau, 2003), choosing the
the school building, locating the meet- Information such as the number of right interpreters is vital. For example,
ing room was a challenge for him. He attendees was included in Mrs. spoken Chinese can be categorized
was eventually late to the meeting and Garcia's IEP meeting invitation, so she into seven major groups: Putonghua
apologized repeatedly to the profes- was not shocked to see numerous pro- (Mandarin), Gan, Kejia (Hakka), Min,
sionals. fessionals at her meeting. Parents Wu, Xiang, and Yue (Cantonese). Each
should also be notified that they have of these language groups includes a
Recommendations for Practice the right to invite others to accompany large number of dialects. The inter-
Welcoming parents to school is one of them to the meetings, as well. preter in Mr. Sau's meeting was unable
the crucial factors in developing effec- It is important to note that both pro- to bridge the communication gap
tive home-school partnerships fessionals and parents have busy between Mr. Sau and the school
(Epstein, 1995; Henderson, Mapp, & schedules. In order to ensure that all because the interpreter did not speak
Davies, 2006). Impressions of whether professionals can be present for the the same language group. Further,
or not a school welcomes parents entire meeting, information such as the although the professionals in Mr. Sau's
begin as soon as they step inside the estimated duration of the meeting IEP meeting often spoke for long peri-
school building. When parents arrive should be included on the IEP meeting ods of time, the interpreter only pro-
at school for a team meeting, the invitations. Longer meetings are need- vided Mr. Sau with a summary of the
school secretary could inform one of ed when interpretation services are discussion.
the team members, preferably the used. CLD parents, like Mr. Sau, may
classroom teacher or a staff member have blue-collar jobs, which most often Recommendations for Practice
who is fluent in the parents' primary pay by the hour. When parents like Mr. Ensuring that the family and the inter-
language, to greet the parents and lead Sau take time off work, it means less preter are speaking the same language
them to the meeting location. This income for the month. Letting parents is crucial, but the skills and experi-
direct personal approach can avoid any know in advance how much time they ences of the interpreters are equally
confusion, especially when the meeting
location might change at the last
minute. Additionally, parents always Letting parents know in advance how much time
appreciate the time professionals take
to welcome them. they need to commit to the meetings will allow them to
make appropriate arrangements at work and home.
Meeting Participants
Depending on the child's needed serv-
ices, it is common to have more profes- need to commit to the meetings will essential. In order to ensure the quality
sionals than parents present at team allow them to make appropriate of the interpretation services, the team
meetings. Sometimes a team meeting arrangements at work and home. in Mrs. Garcia's situation met with the
may have up to 10 professionals, interpreter prior to the meeting and
including general and special educa- Interpretation Services discussed how frequently they should
tors, principal, educational team facili- As the demographics of the U.S. popu- pause so the interpreter could provide
tator/team chair, and other service lation continue to change rapidly, the the parent with proper interpretations.
providers—whereas only one or two number of students with disabilities Specialized terminology is often
parents are in attendance. It is also from CLD backgrounds will also used—and necessary—in IEP team
common for many of these profession- increase. Forty-two percent of the stu- meetings. However, many of these
als to arrive late or leave before the dents receiving special education serv- terms are unfamiliar to individuals
meeting is completed. ices in 2008 were from CLD back- who are not in the field of special
grounds (U.S. Department of Educa- education. Words like maniptilatiues
Recommendations for Practice tion, 2010a, 2010b). However, less than and timeline may not even exist in the
Although the disproportionate number 20% of professionals in the schools vocabulary of some cultures. Due to
of school professionals to parent atten- were from diverse cultures (National the shortage of bilingual special edu-
dees in IEP meetings is very common, Center for Education Statistics, 2009). cators, school districts often hire inter-
this intimidates many parents, espe- Utilizing interpretation services has preters who are fluent in the language
cially those whose primary language is been considered the best solution to but may not have knowledge of the
not English (Salas, 2004). Many par- bridging the communication gap vocabulary related to the field of spe-
ents who were born outside of the between professionals and parents cial education (P. Riley, personal com-
United States are accustomed to meet- who are limited- or non-English speak- munication, June 3, 2008). When
ing with their child's teacher on an ers. However, because there are at these terms are used in IEP meet-
individual basis, so it might be new to least 380 different languages currently ings, interpreters may skip over the

TEACHING EXCEPTIONAL CHILDREN | JAN/FEB 2012 17


V

information and not interpret it to the nonverbal communication is frequently dent's family's beliefs, identify the dif-
parents, or provide parents with inac- misinterpreted by others who are unfa- ferences, and work towards collabora-
curate interpretations (Lo, 2008). This miliar with the culture. For example, tion that builds on the family's beliefs,
can create unnecessary misunderstand- nodding represents agreeing and perceptions, and strengths. Instead of
ings between schools and families. understanding in the dominant culture simply accepting Mr. Sau's nodding as
The interpreter in the IEP meeting Mrs. in the United States, but the same ges- understanding what was discussed at
Garcia attended was given a glossary of ture in the Asian culture means, "I the meetings, the other team members
words commonly used in the field and hear what you are saying;" because should have asked him for his opinions
their definitions. This list enabled the disagreeing and saying "No" are con- regarding some of the suggestions that
interpreter to provide high-quahty sidered impolite, nodding is sometimes were proposed at the meetings. Profes-
interpretations at the meeting. used to replace these responses (Su, sionals must take the extra step to
1993). In Mr. Sau's case, in order not ensure that CLD parents understand
Cross-Cultural Communication to disrupt the meeting, he nodded once the discussions and decisions made at
in a while to show respect, even IEP meetings and invite feedback from
Communication among people from
though he did not understand what them.
high-context versus low-context cul-
tures can be a complicated process. was said at the meeting. The profes-
sionals perceived his nodding as under- After the IEP Meeting
Individuals who are from low-context
cultures, such as Anglo-European standing what was being discussed and Meeting Summary
Americans, focus more on verbal com- were not aware that Mr. Sau was sim-
Often, CLD parents find IEP team
numication; those from high-context ply being polite.
meetings stressful because they cannot
cultures, such as Asian and Hispanic communicate well with professionals
cultures, emphasize verbal interactions Recommendations for Practice and feel that professionals tell them
less (Hall, 1976; Jandt, 2007). Indi- Professionals should no longer inter- what their children did wrong or did
viduals from high-context cultures per- pret their communications with CLD not do (Salas, 2004). With such a high
ceive nonverbal communication (e.g., families by relying solely on their own level of stress, parents may not be able
facial expressions, body language, ges- cultural perspectives. Kalyanpur and to process the large amount of informa-
tures, speed of interactions) to have Harry's (1997, 1999) concept of cultur- tion that is shared in the meetings. At
more meaning than verbal commun- al reciprocity suggests professionals the IEP meeting Mr. Sau attended, due
ication (Jandt, 2007). However, much compare their own beliefs and the stu- to the linguistic barriers he did not

18 COUNCIL FOR EXCEPTIONAL CHILDREN


that both parents and schools are
Figure 1 . Ciieciciist to Demystify tiie ¡EP Process for CLD Parents aware of the key decisions and agree-
of Ciiiidren Witii Disabiiities ments made at the meeting. It is also
helpful to have the summary' translated
Before the IEP Meeting and provided to CLD parents in their
• Meet and explain to parents the timeline, their rights, what is native languages.
involved in the IEP process, and how they can participate.
Q Provide parents with information on relevant community resources. Ttanslaled IEPs
• Offer parents opportunities to connect with other parents of children Providing CLD parents with translated
with disabilities. IEPs in a timely manner is another key
factor to successful home-school part-
Q Include, in the meeting notice, options for meeting dates and times,
nerships. Many parents who are limit-
who will be attending, how long the meeting will last, and available
ed- or non-English speakers rely on the
interpretation services.
information on the translated IEPs. In
• Send parents a draft meeting agenda and invite them to add items to order to best serve the child and follow
the agenda. the true spirit of the process, profes-
• Provide documents in parents' primary language and that match their sionals should make every possible
educational level. attempt at clear verbal and written
• Provide parents with directions to school. communication to ensure that the IEP
• Meet with interpreter at least 30 minutes prior to the meeting to pro- is understood by the parent.
vide a glossary of relevant terms and acronyms and to discuss how
Final Tiioughls
often the professionals should pause for converting oral messages.
Generally, professionals should pause every 2 or 3 sentences. Relay Home-school partnerships begin as
this information to the other team members. soon as children are enrolled in
school. For families of children with
The Day of the lEP Meeting disabilities, partnerships with schools
• Have one of the IEP team members escort parents to meeting room. It are even more crucial because parents
is best that this professional is someone the parents feel comfortable are the advocates for their children
with and have met before. If the welcoming professional does not and are the ones who can speak for
speak the parents' native language, have the interpreter also greet and their children regarding what services
escort the parents. and supports are suitable to address
their needs. IEP meetings become the
a Have team members introduce themselves and state their roles in the
meeting. forum for parents and professionals to
meet, discuss, and formulate how
• Ask parents open-ended questions to ensure that they understand the schools can better serve these chil-
meeting discussions.
dren. The tone and outcome of these
• Pay attention to parents' verbal and nonverbal cues. meetings and how familiar the families
• Invite parents to ask questions and offer feedback. are with the IEP process can have a
tremendous impact on relationships
After the IEP Meeting between schools and their students'
• Provide a written meeting summary and invite parents to call, e-mail, homes. Parents who feel respected and
or meet if they have questions. are considered as equal partners are
more likely to continue to participate
• Inform parents what will happen after the IEP meeting, such as when
they will receive a copy of the proposed IEP and what their rights are throughout their child's academic
if they disagree with the IEP. career. Because CLD parents may not
have the skills or the knowledge to
• Have the translated IEP available to parents in a timely manner.
take on the roles that are expected by
federal regulations and schools, profes-
sionals become the ones who can pro-
have the opportunity to understand the parents with a meeting summary as
vide this population with guidance
information being presented. they leave the meeting (Massachusetts
throughout the entire process. There
Department of Education, 2006). Such are speciflc ways that teachers and
Recommendations for Practice summary should include a completed school administrators can facilitate the
In order to ensure that parents are IEP service delivery grid and a state- participation of CLD parents. See
informed, some states, such as Massa- ment of major goal areas associated Figure 1 for a checklist of strategies
chusetts, require the team to provide with these services; this helps ensure that are mentioned in this article.

TEACHING EXCEPTIONAL CHILDREN | JAN/FEB 2012 19


As the U.S. population continues to Hughes, M. T, Valle-Riestra, D. M., & Simpson, R. L. (1995). Individualized edu-
Arguelles, M. E. (2002). Experiences of cation programs for students with
diversify, professionals need to acquire
Latino families with their child's special autism: Including parents in the process.
the knowledge to work collaboratively education program. Multicultural Focus on Autistic Behavior, 10, 11-15.
with families who are from cultures Perspectives, 4, 11-17. Su, L. I. (1993). On cross-cultural communi-
that are different from theirs. Cultural Individuals With Disabilities Education cation: Why a positive answer should not
competence is no longer sufficient; Improvement Act of 2004, 20 U.S.C. 1400 be taken seriously. (ERIC Document
et seq. (2006). Reproduction Service No. ED372605).
Jandt, F. (2007). An introduction to intercul- U.S. Census Bureau. (2003). language use
tural communication: Identities in a glob- and English speaking ability: 2000.
Because CLD parents may al community (5^^ ed.). Thousand Oaks, Retrieved from http://www.census.gov
CA: Sage. /prod/2003pubs/c2kbr-29.pdf
not have the skills or the Kalyanpur, M., & Harry, B. (1997). A pos- U.S. Department of Education, Office of
ture of reciprocity: A practical approach Special Education Programs. (2010a).
knowledge to take on the to collaboration between professionals Table 1-19: Number and percentage of
and parents of culturally diverse back- children ages 3 through 5 served under
roles that are expected hy grounds. Journal of Child and Family IDEA, Pan B, by the seven race/ethnicity
federal regulations and Studies, 6, 485-509. categories and state: Fall 2008. Retrieved
Kalyanpur, M., & Harry, B. (1999). Culture from https://www.ideadata.org/arc_toclO
schools, professionals in special education: Building reciprocal .aspttpartbCC
family-professional relationships. U.S. Department of Education, Office of
hecome the ones who can Baltimore, MD: Paul H. Brookes. Special Education Programs. (2010b).
Lo, L. (2008). Chinese families' level of par- Table 1-21: Number and percentage of
provide this population with ticipation and experiences in IEP meet- children ages 6 through 21 serx'ed under
ings. Preventing School Failure, 53, 21-27. IDEA, Part B, by the seven race/ethnicity
guidance throughout the categories and state: Fall 2008. Retrieved
Lo, L. (2010). Perceived benefits experienced
entire process. in support groups for Chinese families of from https://www.ideadata.org/arc_toclO
children with disabilities. Early Child .aspfpartbCC
Development and Care, 180, 405-415.
Lynch, E. W., & Hanson, M. J. (2004). Lusa Lo (Massachusetts CEC), Associate
Developing cross-cultural competence: A Professor, College of Education and Human
professionals must be self-aware of
guide for working with children and their Development, Special Education Program,
their own culture, values, and beliefs. University of Massachusetts, Boston.
families (3rd ed.). Baltimore, MD: Paul
Additionally, viewing each family as a H. Brookes.
unique entity is a must (Lynch & Lytle, R. K., & Bordin, J. (2001). Enhancing
Address correspondence concerning this arti-
Hanson, 2004). As new and effective cle to Lusa Lo, College of Education and
the IEP team: Strategies for parents and
Human Development, Special Education
practices related to teaming and collab- professionals. TEACHING Exceptional
Program, University of Massachusetts -
oration emerge, continuous profession- Children. 33(5), 40-44.
Boston, 100 Morrissey Blvd., Boston, MA
al development is needed for all profes- Massachusetts Department of Education.
02125-3393 (e-mail: lusa.lo®umb.edu).
(2006). Memorandum on the implemen-
sionals, with the needs of parents and tation of 603 CMR 28.05(7): Parent TEACHING Exceptional Children, Vol. 44,
the students schools serve being at the response to proposed IEP and proposed
No. 3, pp. 14-20.
center of all the activities. placement. Retrieved from http://www.
doe.mass.edu/news/news.asp?id = 3182 Copyright 2012 CEC.
National Center for Education Statistics.
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20 COUNCIL FOR EXCEPTIONAL CHILDREN


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