Professional Documents
Culture Documents
Alicia Hart
Autism Spectrum Disorders Coordinator
Slide 2: Introduction
In this presentation we will discuss: the ethics of caring for a student with ASD
including:
o What are basic human rights?
o How do we show dignity and respect?
o How do we ensure we respect individual differences?
o How do we use person first language?
o What is presuming competence?
o Why is confidentiality so important?
o How do we keep students safe and free from harm?
In this presentation, we will discuss one of the most important aspects of your job as a
paraprofessional: the ethics of caring for a student with ASD. As a paraprofessional, you have a
big responsibility. It is to ensure each student you support receives an appropriate education and
that you always do this with dignity and respect! Your responsibility as a paraprofessional carries
with it many ethical considerations. In this presentation, you will learn about these
considerations as we cover the following topics.
What are basic human rights? How do we show dignity and respect? How do we ensure
we respect individual differences? How do we use person first language? What is presuming
competence? Why is confidentiality so important? How do we keep students safe and free from
harm?
Autism is complex and can be very challenging for educators, professionals and
even families.
The child, teenager and adult with ASD needs to be treated like any other human
being.
If you follow only one rule, let it be what we consider the Golden Rule: “Treat
others as you would want to be treated.”
Yet once we take away all the labels, all the behaviors, all the challenges and all the
challenges and the fancy terms, we are left with a child, a teenager or a young adult. This child,
this teenager or this young adult needs you to balance what you will learn about Autism
Spectrum Disorder with how you would treat any other human being.
It seems simple, doesn’t it? The reality, however, is that being a paraprofessional is hard
work and situations can change quickly. What started out as a good day can quickly become a
crisis situation. How you handle the challenges will be crucial. If you follow only one rule, let it
be what we consider the Golden Rule. “Treat others as you would want to be treated.” In every
situation, no matter how serious, how challenging, or how confusing, remember this Golden
Rule and let it guide your work as a paraprofessional.
Every child, every teenager and every young adult with ASD needs what every
other typically developing person needs: basic human rights.
EVERY student, regardless of disability, has basic human rights including:
o The right to be treated with dignity and respect
o The right to privacy
o The right to be safe
Every child, every teenager and every young adult with ASD needs what every other
typically developing person needs: basic human rights. Your responsibility as a
paraprofessional is to remember that EVERY student, regardless of disability, has basic human
rights. Basic human rights are the following: Every student has the right to be treated with
dignity and respect. Every student has the right to privacy regarding the events of their life.
Every student has the right to be safe. Let’s go through each basic human right, starting with
dignity and respect.
Dignity and respect can mean different things to different people. Dignity simply means
“the condition of deserving respect.” So, the first question you must ask is, “Do I believe my
Now let’s talk about respect. What does respect mean to you? Respect can mean many
different things. It can involve all of the following. Respect may mean appreciating a person’s
individuality and differences. Respect may mean treating someone with compassion and
kindness. Respect may mean valuing another person’s beliefs or opinions, even if they differ
from yours. Respect also includes presuming a person is competent and capable and has the
ability to do something well.
For the paraprofessional, treating a student with respect will involve ALL of these things. Let’s
go through each of these in a little more depth in the upcoming slides.
Respect starts with understanding that all students with ASD are different.
Each student will have individual strengths, individual challenges, and individual
ways they learn.
As you learn more about ASD in this course and as you learn more about the students
you support, you will find that respect starts with understanding that all students with ASD are
different. Each student will have individual strengths, individual challenges, and individual
ways that they learn. Part of what makes a successful experience for the student with ASD is
playing up to a student’s strengths and providing the student with ways to overcome his or her
challenges.
As a paraprofessional, one of the first things you should do when you start supporting a
new student is take the time to learn about his or her strengths. These are often overlooked,
because we get so caught up in the student’s needs. Every student has many strengths, and you
will use these over and over again as you provide instruction and help the student learn.
Since EVERY student with ASD is unique, this means that our strategies and methods for
supporting students with ASD may be completely different!
Every student is different and a quality education program recognizes and appreciates
such differences.
Every time you provide support or instruction, it is crucial to make sure it is
individualized and designed to help the student learn.
Since EVERY student with ASD is unique, this means that our strategies and methods for
supporting students with ASD may be completely different! There will be different ways to
motivate and teach every student with ASD in your building. In this sense, we must respect that
every student with ASD needs an individualized education. In fact, later on, you’ll learn that IEP
stands for Individualized Education Program! While it may seem like a good idea to use the
same approach and the same strategies for all students with ASD, we know that every student is
different and a quality education program recognizes and appreciates such differences.
As a paraprofessional, you are on the frontlines of this student’s education and may often
be the first person to demonstrate and model respect for how the student learns. Every time you
provide support or instruction, it is crucial to make sure it is individualized and designed to help
the student learn. Let’s look at some example of this.
Slide 9: Examples
In this table you will find examples of teachers providing instruction that do and do not promote
dignity and respect.
Another component of respect is showing compassion and kindness. Think about simple
ways we show compassion and kindness. We comfort those who are in pain. We help those who
are struggling, and we stop others from being cruel or causing pain. We talked about the Golden
Rule. There’s another phrase that will be useful as you support the student with ASD and that is,
“Before you criticize someone, you should walk a mile in his shoes.”
Life for the student with ASD is often loud, scary, and out of control. He or she may not
always know how to handle every situation and may need a lot of guidance and patience. The
student with ASD needs you to understand that he or she sees the world from a very different
perspective and may not be able to handle seemingly everyday situations. As you go through
this course, you will learn how the student with ASD may perceive the world and also how to
support him or her through many different types of challenges. By the end, you will appreciate
how difficult that mile is to walk for your student!
Another way to show compassion and kindness is by using what we call person first
language. This means that we acknowledge that people are people, no matter what disability
they may have. I’m sure you may have heard people in the past use language that did not put the
person first. This would include statements like these: “autistic child” or “learning disabled
student.” In this event, the disability is put before the person. A better way to say this is “the
child with autism” or “John, who has a learning disability”. Do you see the difference? Of
course, the best way to talk about ANY student is to simply use their name!
People should not be defined by their disability. They should be thought of as a person!
The words and phrases we use when talking about a student greatly affects the images that are
formed about the student.
Find your Participant Handbook and go to the question entitled: Person First
Language.
Write down the correct way to refer to the same person using person first
language.
o Wheel chair bound
o Autistic boy
o Dyslexic girl
o Learning disabled
Find your Participant Handbook and go to the question entitled: Person First Language.
Let’s practice using person first language through the following exercises. We have provided
you with a list of incorrect ways to describe a student with a disability. You need to write down
the correct way to refer to the same person using person first language.
Wheel chair bound:
Autistic boy:
Dyslexic girl:
Learning disabled:
You may have written down the following. Instead of saying wheelchair bound, you
might say a boy who uses a wheelchair. Instead of saying an autistic boy, you might say a boy
with autism. Instead of saying dyslexic girl, you might say a girl with dyslexia. And finally,
instead of saying learning disabled student, you might say a student who has a learning
disability, or perhaps, a student with a learning disability.
Respect includes:
o Valuing other people’s beliefs and opinions
This includes valuing various beliefs about caring for and educating a child with ASD.
Families raising children with ASD have more stress than parents of any other children!
Another aspect of respect includes valuing other people’s beliefs and opinions. There are
many differences related to the family of the student with ASD. The family may have unique
cultural considerations. For example, Juan’s family is Hispanic. His mother speaks limited
Just as there are various beliefs and opinions about caring for and educating a typically
developing child, there are a great many beliefs and opinions about caring for and educating a
child with ASD. Families make decisions about their child with ASD based off a number of
different factors. It is certainly not easy to raise a child with ASD, and research has shown us
that parents of children with ASD have more stress than parents of any other children, including
children with other disabilities. Families may be raising other children besides the student with
ASD, may have challenging work schedules, and have varying levels of support from extended
family members. All of these factors may impact their ability to implement interventions at
home.
Again, it’s best to think of that phrase, ‘Walk a mile in someone else’s shoes,’ when
considering the family of a student with ASD. Most people do not understand the difficulties
and decisions caregivers must face day in and day out. While it may be very easy to judge a
family, I caution you against this. Families of students with ASD need our support just as much
as your student with ASD does!
Finally, one of the last ways to show respect to your student is by presuming competence.
To presume competence means that you believe your student has abilities and is capable. As
educators, we presume a great many things about our students every year! Teachers of general
education students presume that a student CAN do it, until they demonstrate that they cannot.
We should always presume competence in every student; however, many people do not
always presume such competence for many students with disabilities. Often, instead of
presuming they can, we assume they can’t. Presuming the student is incompetent can be a big
barrier for students with ASD. We must always remember each student is an intelligent and
capable human being with many skills and talents.
Because many students may not talk, may not follow directions, or may not seem to be
paying attention, many are likely to think they can’t learn. These attitudes are hurtful to students
on the spectrum! Research shows us that students do better when they are taught by people who
believe in them. Every educator and paraprofessional should believe in their student and always
In this next video, you will see an individual with ASD describe how she feels using a
communication device.
Reporter: Her name is Carly and for most of her thirteen years, she has been locked inside her
own world diagnosed with severe autism and developmental delay.
Father: People would absolutely assume that this was a severely impaired, incapable kid,
incapable of communication and pretty much right or wrong.
Reporter: But her parents never did. From the time she was four, Carly got 25-40 hours a week
of behavioral therapy and speech therapy.
Speech Pathologist: And we tried hard get her to talk verbally, but it just wasn't in the cards for
Carly.
Reporter: But one day two years ago, sitting at a computer, she surprised them all.
Father: Carly just spelled uh, help, hurt, and she typed teeth. And, we had no idea that she could
actually spell.
Carly: I can't talk with my mouth but I learned how to spell and I can talk on my computer.
Reporter: Working slowly, she revealed what it's like to live with severe autism.
Carly: People just look at me and assume that I am dumb because I can't talk or act differently
than them. I think people get scared with things that look or seem different than them.
Reporter: Carly began writing how she wanted to be treated like any other teenager, emailing her
father at work and asking could she go on a date.
Father: We were stunned. I mean we realized inside was this intelligent, articulate, emotive
person that we had never met. This was just unbelievable because it opened up a whole new way
of looking at her.
Reporter: When I tired making conversation with Carly she would not play back. I'll tell you
anything you want to know. Her finger hovered over the keys for hours until I brought up my
teenage son. He wants to play football.
Speech Pathologist: Ah, she's smiling, see? It's going to be something funny.
Reporter: yes, I guess he's cute. Then, there was this recent exchange:
Father: it's you know two years that we've been communicating and every time she writes
something there's a little bit of that sense of awe.
Reporter: A year after we first met Carly, she is happier, calmer, more independent.
Carly: I think that humankind is just oblivious to things that have been around for many years.
Reporter: She also has her own internet blog and twitters regularly answering questions from
people all over North America.
Father: I think Carly knows that she now has a voice that can help other kids. Now, she looks at
herself as someone who can make a mark on the world and that's got to be life changing.
Father: I want her to be happy. I want her to have dreams and goals and accomplish those goals
in spite of her challenges.
Carly: I think the only thing I can say is don't give up. Your inner voice will find its way out.
Mine did.
We must also remember that there will be times these same students require support.
Provide support that always demonstrates respect.
Teach the student to be independent.
Provide support that promotes positive peer interactions.
As we presume competence in our students with ASD, we must also remember that there
will be times these same students require support. There are several key points to remember as
you provide support: One, Provide support that always demonstrates respect. Any assistance you
provide should be done in both a dignified and respectful manner. Two, Teach the student to be
Student
Julia is a nonverbal student with ASD and is entering high school.
Competence
Julia’s educational team understands her challenges but also knows her capabilities and they
encourage her take more math classes.
Student
Maddie’s paraprofessional hands her the math book, pencil and workbook during math class.
Competence
Maddie’s paraprofessional teaches her how to independently get out her supplies at the
beginning of math class.
Student
Valerie is now 12 years old. When she goes into the hallway, the paraprofessional walks beside
her and holds her hand.
Competence
The paraprofessional realizes the need for a more independent arrangement and begins to walk
beside her, and then later behind her.
Student
Jeff is in a general education science class. A paraprofessional sits right beside him at the lab
table in science.
Competence
The paraprofessional notices that the other students do not want to sit at the table with an adult so
she moves to the table behind
Jeff to facilitate peer interaction.
Let’s take a moment and complete a Think About It! activity. Locate the Think About It!
paper entitled “Jerome.”
Jerome is a nine year old boy with autism. He is nonverbal and uses a communication
device to communicate. The device has nine pictures on it. Each picture is of something he
enjoys such as a cookie, slide, and computer. You are supporting Jerome while he is in the
cafeteria. While in the cafeteria he has to go through the lunch line. He has to order and pay for
his food. He sits with his classmates at a table in the back corner of the room. Describe how you
would presume competence in the areas of communication for Jerome.
Here are a few simple things you can do to show you presume the student to be
competent and you respect them. Here’s a list to help you.
Listen to and respect the wishes of the student and the family you are supporting, even if
those desires are in conflict with your beliefs. Everyone has the right to make choices and to
make mistakes, this includes students with ASD. Don’t let your belief system get in the way of
the students rights. For example, if Kevin likes to stay up late and watch the late show on
television with his parents even though he is often tired and sluggish at school in the morning it
is the choice of the parents and Kevin to allow for a late bedtime. You have to respect the choice
of the family even if you think he should get more rest in order to be better prepared for the
school day.
Talk to the person in an age appropriate voice and about age appropriate topics. You will
talk to a student in high school differently than you will talk to a young student in elementary
school. Your tone of voice and the words you use will more than likely be different. What you
talk about will be different too. Pay attention to the words, phrases, and topics that typically
developing students are in engaging in and use these when talking to the student with ASD.
Every person has the right to privacy regarding events in their life.
Confidentiality means that any information you learn about the student should
remain private.
It is critical to remember that everything you learn about a student is confidential
and must not be shared with anyone in the school or outside of the school.
Every person has the right to privacy regarding events in their life. This is certainly true
for our students with ASD. Confidentiality is sometimes difficult to understand and is sometimes
broken accidentally. This happens when we do not fully understand the scope of this
responsibility. Confidentiality means that any information you learn about the student should
remain private. As a person supporting student’s with ASD, it is critical to remember that
everything you learn about a student is confidential and must not be shared with anyone in the
school or outside of the school.
o The student’s program is private and should not be shared with others.
o Any information about the student and / or family is a private matter.
o The student is to only be discussed with relevant individuals.
o Any conversations about a student are to be conducted in areas where they cannot
be overhead.
o Student records and documents are to be kept confidential.
Here are some general rules for maintaining confidentiality. The student’s instructional
program is private and should not to be shared with others. Any information about the student
and/ or family is a private matter and should not to be shared with others. The student is to only
be discussed with relevant individuals. The relevant individuals are typically the student’s team
members. Everyone who supports a student must be aware of who these individuals are and only
share information with these people. Any conversations about a student are to be conducted in
areas where they cannot be overheard by anyone else. Student records and documents are to be
kept confidential. Maintaining confidentiality requires appropriate storage and disposal of
anything that contains information about the student.
o Never discuss the student / family with your friends and family.
o Never discuss information about a student / family in a public place.
o Never discuss a student with another student.
o Never share information concerning a child or parent with another parent.
o Store documents in safe locations.
o Obtain written consent.
o Never create a personal file about a student / family.
o Never take the child’s file home.
Remember, it is your legal responsibility to keep personal information about a child and
their family confidential. When maintaining confidentiality, there are several helpful guidelines.
They include: Never discuss the student or family with your personal friends and family
members. Never discuss information about a student or family in a public place. Conversations
can be overheard even if you think no one knows the student you are discussing. Never discuss a
student with another student.
Never share information concerning a child or parent with another parent. If a parent asks
you about another student, you can simply tell a parent that all student information is
confidential, and you are not able to share this with them. They will respect your integrity and
will want the same for their child.
Obtain written consent before taking and using photographs or videos and make sure the
intent and use of these items is clearly defined for the student and family. Never create a personal
file on a child or family. Of course, you will have professional files, but never create a personal
file for your own use. We all love our students, and sometimes this can be tempting to capture
great moments! Never take the child’s official file home. This is the file that is kept in the
school’s office. This is to be kept under lock when not in use, so store it appropriately.
Every morning, a student is placed in your care and every day, you must maintain a
student’s basic human rights throughout the day.
There is one last crucial piece to basic human rights: SAFETY.
EVERY paraprofessional supporting a student with ASD must realize that safety must be
the TOP PRIORITY for our students.
Every morning, a student is placed in your care, and every day, you must maintain a
student’s basic human rights throughout the day. As you’ve seen throughout this presentation,
there are several factors you must balance including dignity, respect and confidentiality. Yet,
there is one last crucial piece to basic human rights: safety. Every paraprofessional supporting a
student with ASD must realize that safety must be the top priority for our students.
Often, we see shocking examples of dangerous and hurtful practices regarding students
with ASD on the evening news. It is crucial that we put a stop to such human rights violations
by learning more about ASD, appreciating the student with ASD’s strengths and challenges and
by learning how to proactively and positively support the student with ASD. As you go through
this course, remember that everything we teach you will help you provide the student with ASD
the care that he or she deserves.
It should also go without saying that all students should remain free from harm at all
times. Harm can come in a lot of different forms. It can be in the form of physical abuse. It can
be in the form of verbal abuse. It can be in the form of neglecting the student. It can also be in
the form of using excessive force.
However, there are ways to use physical touch that do not cause harm to the student and
can even be used to provide positive support or encouragement. For example, you can give the
student a high five. You can provide a pat on the back. You can touch the student to provide
physical assistance to complete many different tasks. For example, you can physically help the
student to take off his coat, to write the letter “B” or to clap his hands.
You can also touch the student when he or she is showing problem or disruptive
behavior. For example, the student who got up from his desk can be gently physically guided
back to his desk. The student who is upset and is having a tantrum can be gently directed to the
corner of the classroom. The student who is throwing items can have his hand blocked when he
starts to throw.
However, the use of physical handling of a student is limited. Whether the physical
interaction is supposed to help him complete a task or is supposed to stop a behavior it should do
no harm. Physical interactions are to be done for the purpose of providing a safe and effective
support that will help keep the student or others free of harm and/or help the student complete a
learning task successfully. If you have any questions about what is and is not appropriate use of
physical contact with a student, ask your supervising teacher immediately.
Paraprofessionals often play the role of eyes and ears for our students. In this role, we
help students engage in behaviors that will prevent danger, such as teaching a student to ask for
attention instead of hitting himself, or teaching an adolescent with Asperger’s Syndrome how to
notify an adult if bullied. We also teach students to terminate behaviors that are harmful such as
darting into a parking lot without first looking for cars. If you see behaviors that are unsafe, you
are to intervene immediately. You also must talk to your supervisory teacher about these
behaviors so they can be stopped, and the team can determine how to make sure the student stays
safe.
On the next slide, you will see a short video clip that asks you to reflect on what we have
discussed in this presentation. You will listen to background music as you view photos of
students with autism, as well as concepts from this module that help you reflect on dignity and
respect and the role of the paraprofessional, including: supporting the student’s communication,
sensory and cognitive challenges while also appreciating strengths, abilities and encouraging
independence.
In this next video, you will see some of the most important aspects of being a paraprofessional to
a student with ASD.
Remember, every person deserves basic human rights. The first right is that every person
should be treated with dignity and respect. The second is that every person has the right to
privacy regarding events in our life. The third is that every person has the right to be safe. As a
person providing support to students with ASD you must always respect these rights and treat the
person with ASD as you would want to be treated.
Information for this presentation is from Virginia Commonwealth University's Autism Center for
Excellence (VCU-ACE) that is funded by the Virginia State Department of Education (Grant #
881-61172-H027A100107). Virginia Commonwealth University is an equal
opportunity/affirmative action institution providing access to education and employment without
regard to age, race, color, national origin, gender, religion, sexual orientation, veteran's status,
political affiliation, or disability. If special accommodations or language translation are needed
contact (804) 828-1851 VOICE -- (804) 828-2494 TTY