1. The study explored the experiences of 11 parents from 9 families whose child received an autism spectrum disorder (ASD) diagnosis in adulthood.
2. Using critical realism, the researchers identified 3 overarching themes from interviews with the parents: emotional reactions to diagnosis, changes in understanding after diagnosis, and unmet support needs.
3. The findings show that parents experience complex emotions like guilt after diagnosis, but understanding the diagnosis can facilitate positive changes. However, lack of post-diagnostic support can result in unmet needs, which clinicians should consider to guide conversations about expectations and consequences of adult ASD diagnosis.
1. The study explored the experiences of 11 parents from 9 families whose child received an autism spectrum disorder (ASD) diagnosis in adulthood.
2. Using critical realism, the researchers identified 3 overarching themes from interviews with the parents: emotional reactions to diagnosis, changes in understanding after diagnosis, and unmet support needs.
3. The findings show that parents experience complex emotions like guilt after diagnosis, but understanding the diagnosis can facilitate positive changes. However, lack of post-diagnostic support can result in unmet needs, which clinicians should consider to guide conversations about expectations and consequences of adult ASD diagnosis.
1. The study explored the experiences of 11 parents from 9 families whose child received an autism spectrum disorder (ASD) diagnosis in adulthood.
2. Using critical realism, the researchers identified 3 overarching themes from interviews with the parents: emotional reactions to diagnosis, changes in understanding after diagnosis, and unmet support needs.
3. The findings show that parents experience complex emotions like guilt after diagnosis, but understanding the diagnosis can facilitate positive changes. However, lack of post-diagnostic support can result in unmet needs, which clinicians should consider to guide conversations about expectations and consequences of adult ASD diagnosis.
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Cebula, K.; Wishart, J.; Willis, D.; & Pitcairn, Tom. (2017). Emotion Recognition in Children With Down Syndrome Influence of Emotion Label and Expression Intensity. American Journal on Intellectual and Developmental
Family-Centered Music Therapy in The Home Environment Promoting Interpesonal Engagement Between Children Witn Autism Spectrum Disorder and Their Parents PDF